How Long Can I Live with CLL? (Chronic Lymphocytic Leukemia) | The Patient Story

How long can I live with chronic lymphocytic leukemia or CLL? Top leukemia experts say many patients can live for decades with CLL without needing treatment! In this video, they discuss the impact of age, disease biology, and genetic tests on your prognosis.
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[@johnf8609]

I was diagnosed 4 years ago. My WBC is now over 100k. I'm at the gym 5x week taking cardio classes, yoga, and resistance training. Plus I walk 5-7 miles a day. I had COVID a couple of years ago and WBC dropped down to 19k from 60k at that time. I was in the ICU for five days. The doctors couldn't explain why my numbers dropped and now creeped up over the past 2 years. I feel pretty good for being 68.

[@water2wine1]

My cousin has been living with this illness for about 20 years now.

[@ThePatientStory]

That’s amazing!

[@DaveCLL]

What is needed in the "modern" era of CLL treatment is a longer term comparison. I'm speaking of treatments not involving chemo. And the comparison should be against a general age matched population. For example, at age 65, compare the percentage of deaths for CLL patients with the general population. Then do this at age 70, 75, 80..... The gap between the two populations would convey some idea of the impact of CLL on mortality.

[@saeedabri]

My Dad past away at the age of 68 he lived with this terrible disease for 10 years, after he was given FCR chemo he did not recover.

[@Beepinsqueekin]

My mother had CCL for 4 years and passed away in 1998 at Age 69

[@KashanandHaribHkkids]

I am cll patient since last 5 years
Stage biant A
Wbc 40,000
Hemoglobin 14
Platelets 250k
No any symptoms
No medicine i used

[@InaLouw-cv8dc]

I am cll patient since Nov 2023 watch and wait stage no meds

[@rissvinpanchadcharam6836]

@@InaLouw-cv8dc is it terminal?

[@vishalwarale5937]

Is ur lymph nodes get swellon

[@colleenmisner454]

My cancer marker total is 18. I can’t find anything on the internet on the total. Does anyone know

[@TrudyContos-gq1bw]

No one here is stating which subtype they have their are several!?

[@joannboyd8855]

Smh