Inn residents Niclas and Jessica thank you for staying home

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Families of children with rare and serious diseases as well as young adults staying at The Children’s Inn at NIH are calling attention to the importance of staying home and practicing physical distancing with a thank you message to the local community: “Thank you for staying home to keep us safe.”
They are children with difficult-to-treat blood cancers, rare genetic diseases, sickle cell disease, blood disorders and other life-threatening conditions. All of them are staying at The Children’s Inn during the coronavirus outbreak because their treatment as part of NIH clinical trials cannot wait. Among them is a family from Sweden with three young children with a degenerative genetic disease that is ultimately fatal. A gene therapy trial at the NIH is their best hope to change their children’s genetic fate.
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