Low Dose Naltrexone for Fibromyalgia - What is LDN and my experience
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- Опубліковано 28 чер 2024
- Hey friends, it's Daniela from 'Through the Looking Glass.' Join me today as I share a key part of my fibromyalgia journey - exploring Low Dose Naltrexone (LDN). Discover how LDN helped manage my fibromyalgia symptoms, the science behind it, and my experience convincing my doctor to prescribe it.
If you're battling fibromyalgia or interested in alternative treatments like LDN, this video is a must-watch! I dive into both the scientific and personal sides of LDN, offering insights and hope for those in search of relief.
Share your experiences, questions, or thoughts in the comments - your story could inspire others! And don’t forget to like, subscribe, and turn on notifications for more fibromyalgia management tips and personal insights.
Catch you in the next one!
#fibromyalgia #chronicpain #naltrexonetreatment
00:00-00:36 - Introduction to the Episode
00:37-01:16 - Discovering LDN: A New Hope
01:17-01:54 - Researching LDN: Understanding the Science
01:55-02:29 - LDN Mechanism: Targeting Central Sensitization
02:30-03:07 - Convincing My Doctor: Starting LDN
03:08-03:47 - The Realities of Living with Fibromyalgia on LDN
03:48-04:24 - The Importance of Medication: A Personal Reflection
04:25-04:58 - Considering LDN: Practical Advice
04:59-05:33 - Sharing My Story: Hope and Understanding
05:34-End - Closing Thoughts
😢 I started low dose LDN last month last month it works we need to get the word out to other suffers of fibromyalgia
Thanks for sharing your experience with low-dose LDN. I'm so glad to hear it's working for you! 💖 It's always encouraging to find something that helps manage the symptoms of fibromyalgia.
Getting the word out is so important because we all deserve the best tools and treatments to help us feel better. I'm grateful you took the time to comment. Stay strong and keep spreading the word! 💪😊
Thank you for your video. People need to know about this. This medication saved my life as I was ready to die or go somewhere for euthanasia. Let’s spread the world suffering is no longer needed. ❤
Thank you so much for sharing your powerful and personal experience. It's incredibly inspiring to hear how Low Dose Naltrexone (LDN) has had such a positive impact on your life. Your story is a testament to the potential benefits of this medication for those struggling with fibromyalgia. I agree that spreading awareness is crucial, as it can offer hope and options to others who are suffering. Your courage in speaking out truly makes a difference. Sending you continued strength and wellness. ❤️
What are you taking it for?
@rommajiwan1972 Fibromyalgia
@luizavina8485 what are you taking it for? At what dose? How long did it take to work?
@@rommajiwan1972 I take it for Fibromyalgia. I started at 3mg and now I take 4.5mg. It took a couple of months for me to really notice a difference.
So happy for you! This is awesome. :)
It definitely makes a difference!
This was really interesting!
Also the background is giving cozy fall vibes! 🤎
Thank you. ❤️My bedroom colors are very fall like. I love this color scheme .
I am so glad to see your u tube channel ,now i feel there is some one in this who can understand the pain that i am experiencing today.
I'm really touched to hear that my channel has been a source of comfort and understanding for you. Knowing that you're not alone in your experience can make a big difference. It's so important to have a community where we can share and validate each other's pain and experiences. Please remember, that you're not alone, and your feelings are completely valid. Feel free to reach out and share whenever you need to. We're here to support each other.
I had reached the final straw with my chronic pain back in the spring as my doctor wasn't taking me seriously. Your videos helped me through the summer just the fact that you share the good and the bad and are someone I can relate to. I definitely agree about help coming in unexpected ways. We are in a doctor shortage here in the maritimes and everyone thought I was crazy searching for a new doctor. Today was my first time talking to my new doctor about my pain. She is taking me seriously and we should have a treatment plan within 8-12 weeks.Thanks for sharing your journey!
I'm truly touched to hear that my videos have been a source of support for you during your journey with chronic pain. It's so important to have someone you can relate to and who shares both the ups and downs of the experience.
I'm really sorry to hear about the doctor shortage in your area, but I'm glad you persevered in your search for a new doctor. It's a huge relief to know that your new doctor is taking you seriously and working on a treatment plan for you. I hope that the coming weeks bring you some much-needed relief and improvements in your quality of life.
Thank you for being a part of this community and for sharing your own journey. We're all in this together, and your story is a reminder of the importance of persistence and self-advocacy. Wishing you all the best on your path to better health and well-being! 💪❤️👩⚕️
My english was poor , acutally i wanted to share my experience with others who experiencing sam situation befere the i need to deeply know about chorinice illness your channel really helped me
I'm really glad that my channel has been helpful to you in understanding chronic illness better. Don't worry about your English, your message and experiences are what truly matter, and there will always be people who can relate and find comfort in your words. Keep learning and sharing; your voice is valuable and can make a difference in someone else's life. Thank you for being a part of our community!
My Dr at the pain clinic prescribe it for me yesterday. I will be starting it on Thursday in order to give the compound pharmacy time to make it. Please pray or think of me in trying this medication and it works well enough for me to get out of bed. I loved your video and many blessings for you!❤
I'm sending you all my positive thoughts and hopes as you begin this new medication. It's a significant step forward, and I truly hope it brings you the relief and improvement you're looking for. Thank you for your kind words about the video; I'm so glad it resonated with you. Please keep us updated on your progress, and know that you have a community here cheering you on and hoping for the very best outcomes for you.
@@tt_looking_glass thank you!
How's it going for you? thxx🌺
@@EC-yd9yv Had to come off of it. I was on 4mg but I stayed drunk with no feelings at all. Back on the dreadful gabapentin. I gonna give it my best shot this time and if doesn't help me I am going to come off of everything. Why put all this poison in my body if I hurt the same. Matter of fact since they upped my gabapentin I hurt worse. In 2 months I go back to see my dr. If nothing has changed then I'm quitting all meds.
I'm really sorry to hear that the medication didn't work out for you and caused such unpleasant side effects. It's so frustrating when treatments don't provide the relief we're hoping for. Gabapentin can be tough too, and I understand your feelings about not wanting to put more medication into your body if it's not helping.
I hope your next doctor's appointment brings some new options or insights. It's important to keep advocating for yourself and exploring different treatments, but I totally get how exhausting it is. Sending you strength and positive thoughts as you navigate this difficult journey. We're here for you, and I'm hoping you find something that brings you the relief you deserve. 🌺
Take care!
Read the book "Super Gut" by William Davis. He shows by his research that fibromyalgia, restless leg syndrome, chronic fatigue and many other chronic illnesses are the result of an overgrowth of negative bacteria and fungus. This situation can be reversed by diet and avoidance of certain foods and food additives. I personally know three people who have transformed their lives with this information and protocol. Well worth reading his book it may transform your life.
Thanks for the recommendation! I haven’t read "Super Gut" yet, but I really appreciate the suggestion. It's always great to hear about different approaches that have helped others. I'll definitely keep it in mind. Thanks again for sharing, and take care! 💜
I started it today!
Best of luck as you begin your journey with LDN! It's important to remember that patience is key here. For many, it may take a few months to notice a significant change, so give yourself ample time to evaluate its effectiveness. Also, it's crucial to manage expectations. While LDN isn't a miracle cure, it can potentially make a substantial difference in your symptoms. I've personally realized its impact on my well-being most prominently during times when I've had to pause taking it for a week due to prescription renewals. Keep this in mind as you monitor your progress.
It’s an amazing meditation!!! It helped me so much over the past 3 years!! For my fibromyalgia,and chronic fatigue syndrome! And now I know it helps Mast cell activation that’s makes since that it has helped me so much. It’s not a cure for me personally but definitely took me from bed ridden to functional and I can survive my flares much better. I’m so glad it helps you too!
I'm glad to hear that this meditation has been such a positive experience for you over the past three years. While it may not be a cure, it's fantastic to hear that it has improved your functionality and ability to cope with flares. Your shared experience highlights the potential benefits of LDN for managing chronic pain and fatigue and can inspire others to explore similar approaches. 😊🙏
Hey there! Can you tell what is the meditation you talking about please? Thanks 🙏🏻
It’s called Low Dose Naltrexone or LDN. I take it at 4.5mg. I hope it answers your question.
So glad it helped you! I was on it for about a year and didn’t feel a difference unfortunately. I was taking it for EDS pain so that could be the difference!
I appreciate your kind words! You are right, not every treatment works the same for everyone, and it's possible that LDN may have different effects on EDS. Thank you for sharing your experience with LDN for EDS pain, as it can provide valuable insights for others exploring treatment options. 💕😊
I have heds to but I take it for.the fybromyalgia parts as apparently.most of us have fybromyalgia together but doesn't help my m
Pain either but with fatigue and IBS so I keep takng it do you have àspergers to with heds
@@Truerealism747 as far as I know I don’t have neither fibromyalgia or Asperger’s. I definitely have other issues that come along with EDS like POTS and something similar to mast cell. I have lots of non life threatening food allergies but the dr said he doesn’t think it’s MCAS. Also, depression and anxiety with the pain from all of my joints.
I hope everyone is doing well on their chronic illnesses journeys.
Dealing with EDS and its related issues is challenging, especially combined with food allergies, depression, and anxiety. It's a lot to manage, and you're doing it with so much strength. It's good that your doctor is involved in figuring things out, even though it can be a complex process. Here's to hoping you find some relief and effective ways to manage the pain and other symptoms.
@@tt_looking_glassthankyou have ve had to find doctors but as yet no relief in pain diet helps a bit and d ribbose a little but to me I've read alot Asperger's and ADHD cause all these central nervous system dysfunction s Dr lenz reccomeds ADHD meds so I await these when UK can supply after April it's even in Google ADHD and fybromyalgia 50 percent comorbid
I take it too!
It has become a lot more popular now than when I first started taking it. Sometimes I think it’s not working but whenever I stop I see how much it helps. I believe I do all the things I do because of it.
Sadly it didn’t do anything for me😢
I'm sorry to hear that. Don't lose hope. Keep trying different things.
My first episode of migrai e was at 5 years, the experience recurrent episodes of migraine , my life was very harder at my teean years i was not able to study and perform up to my expectation , parents never understand that .worst part of my life was on college days brain fog ,slurredspeech, blurred vision ,hearing loss ,fatige .....people always blame me ,not listening, not doing, they consider me as idle iddiot ,i hate my college days ,some how i cleard my papers.now i am 25 year old and mother of 1 year old child ,now i need to get into a profession ,i am so worried about my illness ,can you suggest a suitable profession .
I'm so sorry to hear about the challenges you've faced with migraines from such a young age. It's tough when others don't understand the impact of such a debilitating condition, especially during crucial phases like your college years. As for entering a profession, consider roles that offer a flexible schedule and a low-stress environment. Remote or part-time work might be a good fit, allowing you to manage your health better. Fields like graphic design, writing, or data entry can be more adaptable to your needs. Remember, your well-being is important. Take the time to explore options that align with your strengths and health requirements. Wishing you all the best in your journey ahead!
Did you notice LDN helping before you got to 4.5mg? I don't really notice anything at my initial starting dose of 1.5mg. Would love to know your journey finding 4.5mg as the dosage that worked for you
It's great that you're exploring LDN as a treatment option. I understand that you might not notice significant improvements at the initial lower doses, like 1.5mg.I started at 3.5mg right away and in my own experience, I didn't see noticeable changes until after I had reached the 4.5mg dosage by my second month and had been on it for an additional month. It's quite common for the effects to be gradual and subtle.
With medications like LDN, the pain isn't completely eliminated, and day-to-day improvements can be hard to detect. Often, people only realize how much it was helping when they stop taking it and see their symptoms worsen. Keeping a symptom diary can be very helpful in tracking these subtle changes and discussing them with your healthcare provider. This can guide any necessary adjustments to your dosage and help you better understand the medication's impact.
Hang in there, and give your body time to adjust. It's all about finding the right balance that works specifically for you.
What dose do you take?
4.5mg
@tt_looking_glass can you please tell me at what interval you increased to 4.5 mg. The doctor who prescribed it to me doesn't really seem to know. I'm on 1.5 mg since 6 days.
I believe I started at 3mg and then went straight to 4.5mg I never had any side effects, which is really rare for me.
Plz look into carnivore diet
I tried the carnivore diet. Unfortunately, it is not for me but thank you so much for mentioning it. I hope it may help someone.
The exaggerated pain after stopping something its a withdrawl flare, my dear. That tells me you shouldnt take it.
Im a firm believer in foods being your medicine. It works better, imo.
Your perspective on the importance of diet and seeing food as medicine is certainly valuable, and there's no denying that nutrition plays a crucial role in our overall health. It's great to hear opinions that emphasize natural approaches to wellness.
Regarding the concept of withdrawal flare, you make an interesting point. It's indeed possible for symptoms to flare up when stopping a medication, which can sometimes be mistaken for withdrawal. However, it's also important to consider that this might indicate that the medication was effectively managing those symptoms. For example, in the case of high blood pressure, if medication lowers it and then it rises upon stopping the medication, it's a sign that the treatment was working.
That being said, it's equally important to explore and understand the root causes of symptoms. Medication can be very effective in managing and minimizing certain symptoms, but it's also crucial to work with healthcare professionals to understand the underlying issues.
Your emphasis on using food as medicine is a valuable reminder of the power of a holistic approach to health. It's all about finding the right balance and combination of treatments that work for each individual. Thanks for sharing your insights!