Diagnosed with Fibromyalgia? This is what you need to know!
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- Опубліковано 30 чер 2024
- #Fibromyalgia #fibromyalgiaawarness #chronicillness
video links
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Are you or someone you know living with Fibromyalgia? This chronic condition affects millions of people worldwide, causing widespread pain, fatigue, and other symptoms that can be hard to manage. But there are ways to improve your quality of life and cope with Fibromyalgia, and in this video, I’ll share 7 rules to live by if you have this condition.
May is Fibromyalgia Awareness Month, and May 12th is Fibromyalgia International Day, so it's a perfect time to learn more about this condition and how to deal with it. In this video, I’ll cover some practical tips and strategies that can help you manage your symptoms, reduce pain and discomfort, and improve your overall well-being.
The 7 rules we'll discuss include:
1. Take care of your body
2. Manage stress
3. Connect with others
4. Learn to pace yourself
5. Avoid triggers
6. Advocate for yourself
7. Be patient and kind to yourself
By following these rules and incorporating them into your daily routine, you can better manage your Fibromyalgia symptoms and improve your quality of life. I also provide additional resources and recommendations for further support and information.
So if you have Fibromyalgia or know someone who does, be sure to watch this video and share it with others who may benefit from these tips. Together, we can raise awareness and support those living with Fibromyalgia.
s a y h e l l o
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a b o u t m e
I’m Daniela I have been diagnosed with several chronic illnesses. I look normal, I do things, have a job and go on vacations, but inside I'm sick. I live with several chronic illnesses and they affect my daily life. I am in constant pain and struggle with brain fog. Although I'm constantly looking for new doctors, new treatments and solutions I have also accepted my illnesses and do not let them define me. In this channel, I share a little bit of everything. Information about my conditions, my travels, my dreams, my journey, my life. This channel is about life through chronic illness lenses. Come and join me and see what I'm up to lately.
Check out those other videos about my chronic illness story:
👉🏻 MY FIBROMYALGIA STORY
www.youtube.com/watch?v=mWb_r...
👉🏻 IF YOU COULD SEE. MY ILLNESS
• IF YOU COULD SEE MY PA...
Chapters:
00:00-00:43 Intro
00:45-04:05 Rule #1 - take care of your body
04:06-05:04 Rule # 2 - manage stress
05:05-06:15 Rule # 3 - build a support network
06:16-06:44 Rule #4 - learn to pace yourself
06:45-07:47 Rule # 5 - avoid triggers
07:48-08:45 Rule # 6 - advocated for yourself
08:46-09:34 Rule # 7 - be kind to yourself
09:35-10:01 Outro
10:02-11:45 Bloopers
🦋The day I recorded this video was a hard Fibromyalgia day. Watch to the end for the bloopers 🤣and see how hard it can be to work with fibro fog. Thanks for watching. ❤
Fantastic information. Thank you so much. I carry a notebook/notepad and pen to write down things when my fibro fog is bad. ❤
Thank you. ❤️ I use my phone all the time for that. Using Siri to dictate notes is also great.
I just give you all the thumbs ups 👍👍👍👍👍👍👍👍👍👍
Another great vid and you're bloopers made me feel better about the brain fog I've had lately. Your tips are on point and such a help.
if you guys just saw me trying to film those videos... it is hilarious to watch but sometimes makes me want to cry. In my head, I am saying something but what is coming out is something different. Often I only find out after done filming and taking all the setup down. 😢
I lose my words sometimes too. Thank you for tips
You're welcome! We have to laugh about it, right?
Keeping a lighthearted attitude can be incredibly helpful when dealing with the challenges of fibromyalgia. Embracing humor and finding moments of happiness can make the journey a bit easier.! 😊
Thank you for this video, I’m struggling with a flare up at the moment. The more pain I have the less sleep I manage. Movement is essential,
if I over move I’m in trouble, if I don’t move enough I’m in more trouble. People don’t understand, as you often look well. To pace yourself is so very important, well for me it is. Good luck to all out there with fibromyalgia.💕 I love your personality, and the bloopers 😉
Thank you so much for your heartfelt comment. I truly understand the delicate balance of life with Fibromyalgia. You are doomed if you do and you are doomed if you don't. It's so important, as you said, to pace oneself.
. I'm glad my video could provide some comfort or support. And your comment about my personality and the bloopers brought a smile to my face! Laughter can be so powerful!
Sending you lots of positive vibes and wishing you good days ahead.💕
Love the bloopers, so funny!❤️ It must be frustrating sometimes to make a video especially with brain fog 🥴
or a migraine. It’s like my brain doesn’t work. 😂
Wonderful advice. Thank you for sharing. And for the bloopers lol😂
You are so welcome! Thank you for watching and commenting. ❤️
Thank you for this. It’s good to know there are others out there besides me.
You're welcome! I'm glad it was helpful. You're never alone in your journey with fibromyalgia. It's wonderful to discover a community of people who can understand and empathize with what we are going through. ♥️ This is a wonderful community.
I have only had my diagnosis for a month now, so I am trying to learn as much as I can.
I'm sorry you have been diagnosed with Fibromyalgia. When I got mine I wasn't sure if I should be upset or relieved. I'm glad you found my channel. I hope you find some information and inspiration here. Thank you for sharing and commenting. ♥️
Sometimes I write wrong numbers, clearly thinking that I am right 😂for example instead of 6 I thing its 2 or something like that 😮I wonder if anyone else have this problem 🤔
Could you have dyslexia? I have it and I mix numbers and letters all the time.
How do I bring up fibromyalgia with my doctor ?
Bringing up fibromyalgia with your doctor is an important step towards getting the support and treatment you need. You could start the conversation by mentioning the specific symptoms you've been experiencing, like chronic pain, fatigue, or any other relevant signs. It's helpful to note the duration and intensity of these symptoms, and how they impact your daily life.
It's also a good idea to mention any family history of fibromyalgia or related conditions and any treatments or lifestyle changes you've already tried. Being open and honest about your symptoms and concerns will help your doctor understand your situation and decide on the best course of action, whether that's further testing, referring you to a specialist, or discussing treatment options. Remember, you're advocating for your health, and it's okay to ask for help and clarification when you need it.
@@tt_looking_glass thank you so much I brought up my symptoms I got meds for my vertigo and migraines as well as joint pain but he said just have to wait to see the rheumatologist
Seeing a rheumatologist is a big step in finding answers and help for fibromyalgia. I hope it doesn't take too long for you to see one. Keep me posted.
@@tt_looking_glass I saw my rheumatologist Friday and he did a lot of blood work to rule out everything but he’s pretty confident that I have fibromyalgia and early on set arthritis because oh my hyper mobility in my joints
Getting a clear diagnosis can really help in managing symptoms more effectively, especially with something as complex as fibromyalgia coupled with early-onset arthritis. Hyper mobility can definitely complicate things, so it's good to hear your doctor is on top of it with extensive blood work. Hang in there, and I hope this leads to a treatment plan that brings you some relief soon.
I feel relaxed with hot water shower, hot bags on neck
Me too, heat is my best pain relief.
I just started watching this. I’m in a flare so I need all the advice I can get. I’m currently in the hottest Epsom salt bath I can stand.
I hope you’re feeling better! Have a nice weekend, Daniela. 💗🌸🏕️☀️
Love the bloopers! You must be worn out after filming.
I hope the bath helped. I have been known for taking scalding hot baths! I do find it helps a lot. Filming sit-down videos does wear me out a lot but I love having those resources on my channel. I will stick with weekly vlogs for now (which are a bit more relaxed and easy to film) and add an extra video on the weeks I have a bit more energy.