My husband, who also has dementia, loves music too. I got him an Alexa for his room & 1 for his workshop. He just tells it to play songs from certain years & he’s in heaven!
Leslie, I am happy Jason can help you out when you are sick. I can't believe you've had the rona 3 times! Bless your heart. Jason did much better in the car both times compared to indoors. His eyes did light up the entire time he was telling the story from the past. His sense of humor is a gift that I hope and pray keeps on giving 🌹
My husband had those biopsies done and that’s when the doctor changed his diagnosis from Parkinson’s to definitely be Lewy Body Dementia “LBD” with some Parkinson effects! Unfortunately the medication the doctor prescribed to help with the LBD didn’t work for him. One of the main things with LBD is falling, a-lot and he did. One of the last falls he had was when he was getting out of bed. I helped him to stand up and he immediately fell sideways,straight down and hit his head on the end of the rocker on my rocking chair, he bounced and then hit his head a second time. In the Emergency Room “ER” they used 13 staples to close the holes in his head. We laughed about that for a long time after it happened. I pray that your day has been one of the good ones. Stay safe, Janelle Robison
Hi Janellerobison75 I have Lewy Body, I'm 58 and was diagnosed last fall. I fell 2 yrs ago, exactly how you described your husband falling. I fell like a log sideways but my right foot went in opposite direction. Ended up with broken ankle and 3 toes. Last Sat I fell again going upstairs at a venue walking with a crowd thankfully. I didn't know Lewy Body caused falls Ty for your post. It really helped 😊
Talking about things in the past, especially funny stories, was how I communicated with my dad in the 6 years that he lived with dementia. It not only gave us something to talk about, I feel like it also gave my dad a sense of confidence. He could actually remember what happened, unlike what his ‘current’ situation was. Plus - it was great to hear him laugh, and maybe even feel normal again. He couldn’t understand that he had dementia, or why he had to live in a facility. Story’s from 50 years previous helped pass the visit, and he was accurate up till the last few years of his life, when he hit another stage. Also, he loved to sing! And he could remember every word of the lyrics 😊 Thanks guys, it makes me reminisce a little, and yes, cry a little too. It will be 2 years this August since he passed. ☮️💖🙏
It sounds like you had a very special bond with your dad. I'm so glad he had you by his side. You made those last 6 years of his life count. Thank you for your kindness and unconditional love when it mattered the most!!
The vocabulary and word choice in phrases was awesome. I wonder what motion has to do with it. Would a back porch swing be a good purchase? Is it my imagination, or do you think there is something to movement having a positive influence?
Leslie I so admire you. Right now I am going thru so much and feeling really down. Listening to your life reminds me how thankful I am. I pray God gives you a refreshing that will carry you thru everyday. Life rarely ends up like we think. It's all about how we handle the journey. You are definitely a warrior. I am proud of you! God bless.
These videos warm my heart. A dementia diagnosis produces sadness and fear for both the patient and the family. These videos show you can make needed changes to life while still enjoying it. My father had Lewy body dementia. Dad never lost his long term memory. As the disease progressed he slept more and more. He told me it was such an effort to focus his brain during awake times it was exhausting, he slept more than he was awake. His anger increased as his disease progressed I suspect out of frustration. I wish these videos were available when Dad was alive! You are doing a good thing sharing your journey.
Jason’s random humor cracks me up! I bet the occasional “show timing” can be a lot but your love and patience with him shines through in your videos. Thank you for sharing with us. Incidentally, I just realized that my husband and I went to the same Junior High (Middle) school as Jason!
My husband lost all his motivation and apathy. He thinks nothing is wrong . He was a lot like yours before. And so happy go lucky! Different kind of dementia. How long has Jason had this? So good he’s part of the process. Hope he never looses it. Blessings to you both.💖🙏🏽
Oh now I see. He has the motivation in his mind, like when he talked about doing the walk way, but has trouble following thru. That’s what my husband does on his good days. Talk about projects. The other day I told him, “ The spirits willing but the flesh is weak, isn’t it?” He nodded and said “ yes”. How do you keep from not being scared sick ? I’m trying to stay positive when I see something he can do. Like feeding the horses. Do you have to take him for walks? Thanks for sharing your lives! Jesus loves you both. He’s coming back soon!❤
All my love to you both.. Jason is such a wonderful man and loved and cared for by his family.. you are an amazing wife.. I can’t even imagine how sad this is for you to watch the love of your life slowly deteriorating in front of you.. I admire your strength.. you are a true inspiration and your giving so much to other families that are dealing with family health issues.. thank you for being as open as you feel comfortable.. God bless you both ❤
I have or was diagnosed with Ischeamic disease on my brain about 4 maybe 5 years ago and I have the same problem with short term memory loss, it's crap!! My long term is no problem it's just the short term memory loss. I also get brain fog as I call it and that stresses me the hell out. What's really upsetting is I don't remember how important events went, say like a funeral or wedding and when my kids they are all grown up and left home, mention "Oh Mum do you remember such and such?" It can be something that only happened say 6 months to a year and I don't remember it, that hurts me the most. My brain fog is like spaghetti, mangled up and trying to un mangle it makes me exhausted. I have no trouble falling asleep but I wake up like every 2 hours and then 10 minutes later I am back to sleep and 2 hours later awake again. I thought I had early onset dementia but after they did an MRI scan they told me I had Ischeamic disease on the brain. I was about 54 years ald and now I am 59. I still believe it is a form of Dementia but doctors only tell you what they want you to know. So watching these videos helps me to know there are many out there living with some form of Dementia. I haven't watched any updates for sometime because I forgot the name of the original channel then I found it today, so I am playing catch up. Hugs and happy thoughts, peace, love and light from God's Angels be with you guys.
My mother was diagnosed with Vascular dementia in 2017. My father was diagnosed with Alzheimer’s also in 2017. He died in 2019 from a seizure with aspiration in the hospital with Sepsis but undiagnosed reason for the seizures for over a year. He was an anesthesiologist and demanded he be DNR. It was a blessing that he died without the end stages. Mom has now been diagnosed with Parkinson’s like PSP a rare brain disorder that affects 20k in the US. It is a cruel disease with no medication . She has caretakers 24/7 and they are amazing but if she is in a room with more than 2 people she shuts down. The bad days have become more frequent where she doesn’t want to do anything nut sleep and doesn’t want to talk to anyone.
Oh my! I’m just coming through my first time of having Covid and it’s awful. Not sure how you do it taking of yourself and Jason’s and being sick too. Covid knocked us down for days, we are over a week now.
I read music is the only thing that lights up both sides of the brains. There are a few videos showing studies on the amazing effects of music on people with severe, non-verbal dementia patients. The brain is such a complicated organ that even the most talented neurologist doesn't know everything. I prefer the 'Crazy, whack, funky' diagnosis. Hey! It's plausible!
I love you both, very much! My husband had AML, Leukemia. He had a stem cell transplant, it took his toll on his body. But we made it through it. He now reminds me a lot of Jason. And he never gets sick either. And I’m grateful for that. I tease him, he has a stem cell donor (a girl,24) no wonder your not sick! God bless all of us❤
I think it’s hard with short term memory loss especially with a husband because you’ve lost someone to be with you in the present! 😢 my husband is older than Jason and has dementia also.
I would love if someone could figure out all these dementia diseases. My Mother had a great long term memory nearly to the end but could not remember what happened 10 minutes before. God, is it too much to ask for healing of Jason and others like him?
Guitars on the wall is a 'man thing'. My husband used to have a huge room with all things sports on the wall but we gave up that area for an apartment for son and dil so he gave away half a dozen bb gloves and baseball bats. Normal guy thing!!
What state do you guys live in? I’m assuming that this isn’t current since wherever you are in this video it is cold. Seems like the whole series is delayed. Just inquiring not judging. You two are awesome!! I love watching the love between you!! Blessings from Ohio! 💞
I have a hardly used large set of 100 (I think) Arteza colored pencils which are much easier to use than Crayola I would like to send you. I am a 71 y/o with way-too-many art supplies who is not sure how this works not being You-tube savvy.
Thank you! Not draining at all! I spend about 15 mins a day washing my face, putting a little makeup on and touching up my hair. I’ve had all this hair my whole life so I can fix it super fast! You have to remember you are worth 15mins of the day, if it makes you feel better about yourself! ❤️
Have you all used methylene blue? I am using it now, and only orally, and it has made some difference. But with dementia, it can be administered intravenously. Great results for many!
I'm scheduled for that skin biopsy test in a couple of weeks. My neurologist doesn't believe I have LBD but agreed to do this test. I do have two other preliminary diagnoses of LBD but the neurologist doesn't believe this.
@@yvonnekneeshaw2784 My sleep physician gave a diagnosis of possible LBD due to REM sleep behavior disorder and a neuro-psychological exam showed marked cognitive decline consistent with LBD.
I don't know how many people find the medications helpful. In our case, the meds all had side effects and interactions and complications. In the end, my mom was much better when she was off everything. She obviously still had symptoms, but she was more herself and had less confusion. She was never particularly compliant, but being in a stupor didn't make that better.
Hi you probably don’t know, but I have an immune deficiency. So having Covid 3 times is not out of the ordinary for someone like me! I catch anything and everything, but that’s just my life!
@@LIVINGWITHDEMENTIAPODCAST no I didn’t know. Since you are going in and out of doctor offices and hospitals does it help to take precautions? Masks everywhere you go, sanitizer etc. you have added pressure keeping well. Hopefully, you are getting enough sleep etc. the anger would be the hardest thing to deal with aside from watching Jason slowing losing his battle. My mom died from dementia. Luckily,she was able to stay in a quality memory care home. (Minimum $8000 monthly fee). She passed at 96 after a good long life. Some of her hallucinations were so funny. I miss her desperately since we only became friends during the last 3 years of her life. She visits me often and she will be waiting with my angels when it’s time for me to cross! Prayers to you for strength.
Hello Jason and Lynne have just found your channel my mother had dementia and my father has Alzheimer's I'm a bit concerned if I will get either one I'm 61 so far have bit of short term memory loss but that could be age and all the medication I take Jason has such a great sense of humour 🤗💞🙏🍀☀️
You are right! Jason is much better in the car and going back to the past occasionally. He’s so cute.
Glorifying Him in your story is wonderful !!❤️🇨🇦✝️
Strange how this disease works. Sure wish they could find a cure.
My husband, who also has dementia, loves music too.
I got him an Alexa for his room & 1 for his workshop. He just tells it to play songs from certain years & he’s in heaven!
Leslie, I am happy Jason can help you out when you are sick. I can't believe you've had the rona 3 times! Bless your heart. Jason did much better in the car both times compared to indoors. His eyes did light up the entire time he was telling the story from the past. His sense of humor is a gift that I hope and pray keeps on giving 🌹
My husband had those biopsies done and that’s when the doctor changed his diagnosis from Parkinson’s to definitely be Lewy Body Dementia “LBD” with some Parkinson effects! Unfortunately the medication the doctor prescribed to help with the LBD didn’t work for him. One of the main things with LBD is falling, a-lot and he did. One of the last falls he had was when he was getting out of bed. I helped him to stand up and he immediately fell sideways,straight down and hit his head on the end of the rocker on my rocking chair, he bounced and then hit his head a second time. In the Emergency Room “ER” they used 13 staples to close the holes in his head. We laughed about that for a long time after it happened. I pray that your day has been one of the good ones. Stay safe, Janelle Robison
Hi Janellerobison75
I have Lewy Body, I'm 58
and was diagnosed last fall. I fell 2 yrs ago, exactly how you described your husband falling. I fell like a log sideways but my right foot went in opposite direction. Ended up with broken ankle and 3 toes.
Last Sat I fell again going upstairs at a venue walking with a crowd thankfully. I didn't know Lewy Body caused falls
Ty for your post. It really helped 😊
Talking about things in the past, especially funny stories, was how I communicated with my dad in the 6 years that he lived with dementia. It not only gave us something to talk about, I feel like it also gave my dad a sense of confidence. He could actually remember what happened, unlike what his ‘current’ situation was. Plus - it was great to hear him laugh, and maybe even feel normal again. He couldn’t understand that he had dementia, or why he had to live in a facility. Story’s from 50 years previous helped pass the visit, and he was accurate up till the last few years of his life, when he hit another stage. Also, he loved to sing! And he could remember every word of the lyrics 😊
Thanks guys, it makes me reminisce a little, and yes, cry a little too. It will be 2 years this August since he passed.
☮️💖🙏
It sounds like you had a very special bond with your dad. I'm so glad he had you by his side. You made those last 6 years of his life count. Thank you for your kindness and unconditional love when it mattered the most!!
The vocabulary and word choice in phrases was awesome. I wonder what motion has to do with it. Would a back porch swing be a good purchase? Is it my imagination, or do you think there is something to movement having a positive influence?
I'm glad you guys could still have fun. I hope you still can. ❤
Your hair looks gorgeous! ❤
Leslie I so admire you. Right now I am going thru so much and feeling really down. Listening to your life reminds me how thankful I am. I pray God gives you a refreshing that will carry you thru everyday. Life rarely ends up like we think. It's all about how we handle the journey. You are definitely a warrior. I am proud of you! God bless.
Love these God give you strength to endure these hard times...your such a beautiful lady...
Jason you are so funny and good luck on the biopsies and thank you for your service
These videos warm my heart. A dementia diagnosis produces sadness and fear for both the patient and the family. These videos show you can make needed changes to life while still enjoying it. My father had Lewy body dementia. Dad never lost his long term memory. As the disease progressed he slept more and more. He told me it was such an effort to focus his brain during awake times it was exhausting, he slept more than he was awake. His anger increased as his disease progressed I suspect out of frustration. I wish these videos were available when Dad was alive! You are doing a good thing sharing your journey.
Jason’s random humor cracks me up! I bet the occasional “show timing” can be a lot but your love and patience with him shines through in your videos. Thank you for sharing with us. Incidentally, I just realized that my husband and I went to the same Junior High (Middle) school as Jason!
That was the first thing I noticed compared to the previous video where he got upset and didn’t want all the questioning
Leslie...could you let us know when tour videos were filmed as well as when they are posted please? I pray for you both.❤
My husband lost all his motivation and apathy. He thinks nothing is wrong . He was a lot like yours before. And so happy go lucky! Different kind of dementia. How long has Jason had this? So good he’s part of the process. Hope he never looses it. Blessings to you both.💖🙏🏽
Oh now I see. He has the motivation in his mind, like when he talked about doing the walk way, but has trouble following thru. That’s what my husband does on his good days. Talk about projects. The other day I told him, “ The spirits willing but the flesh is weak, isn’t it?” He nodded and said “ yes”. How do you keep from not being scared sick ? I’m trying to stay positive when I see something he can do. Like feeding the horses. Do you have to take him for walks? Thanks for sharing your lives! Jesus loves you both. He’s coming back soon!❤
Your hair looks amazing
BTW, your hair looks lovely.
All my love to you both.. Jason is such a wonderful man and loved and cared for by his family.. you are an amazing wife.. I can’t even imagine how sad this is for you to watch the love of your life slowly deteriorating in front of you.. I admire your strength.. you are a true inspiration and your giving so much to other families that are dealing with family health issues.. thank you for being as open as you feel comfortable.. God bless you both ❤
Great video of driving chat! I hope you'll update us soon about the results of Jason's skin biopsy. Fascinating!! XX
Video tomorrow with the results!
I can't help but feel sorry for Jason talking about death etc. I don't know how I would cope in his position. Its all so hard for everyone
I have or was diagnosed with Ischeamic disease on my brain about 4 maybe 5 years ago and I have the same problem with short term memory loss, it's crap!! My long term is no problem it's just the short term memory loss. I also get brain fog as I call it and that stresses me the hell out. What's really upsetting is I don't remember how important events went, say like a funeral or wedding and when my kids they are all grown up and left home, mention "Oh Mum do you remember such and such?" It can be something that only happened say 6 months to a year and I don't remember it, that hurts me the most. My brain fog is like spaghetti, mangled up and trying to un mangle it makes me exhausted. I have no trouble falling asleep but I wake up like every 2 hours and then 10 minutes later I am back to sleep and 2 hours later awake again. I thought I had early onset dementia but after they did an MRI scan they told me I had Ischeamic disease on the brain. I was about 54 years ald and now I am 59. I still believe it is a form of Dementia but doctors only tell you what they want you to know. So watching these videos helps me to know there are many out there living with some form of Dementia. I haven't watched any updates for sometime because I forgot the name of the original channel then I found it today, so I am playing catch up. Hugs and happy thoughts, peace, love and light from God's Angels be with you guys.
Ty Jason and Leslie for the fun car 🚗 ride 😁
Thank u. ♥ it helps us
My mother was diagnosed with Vascular dementia in 2017. My father was diagnosed with Alzheimer’s also in 2017. He died in 2019 from a seizure with aspiration in the hospital with Sepsis but undiagnosed reason for the seizures for over a year. He was an anesthesiologist and demanded he be DNR. It was a blessing that he died without the end stages. Mom has now been diagnosed with Parkinson’s like PSP a rare brain disorder that affects 20k in the US. It is a cruel disease with no medication . She has caretakers 24/7 and they are amazing but if she is in a room with more than 2 people she shuts down. The bad days have become more frequent where she doesn’t want to do anything nut sleep and doesn’t want to talk to anyone.
Ready for a new one 👍
Love you guys. Your love is extraordinary!!!!❤️
Oh my! I’m just coming through my first time of having Covid and it’s awful. Not sure how you do it taking of yourself and Jason’s and being sick too. Covid knocked us down for days, we are over a week now.
I like to hear Jason tell stories about his past travels.
I read music is the only thing that lights up both sides of the brains. There are a few videos showing studies on the amazing effects of music on people with severe, non-verbal dementia patients. The brain is such a complicated organ that even the most talented neurologist doesn't know everything. I prefer the 'Crazy, whack, funky' diagnosis. Hey! It's plausible!
I love you both, very much! My husband had AML, Leukemia. He had a stem cell transplant, it took his toll on his body. But we made it through it. He now reminds me a lot of Jason. And he never gets sick either. And I’m grateful for that. I tease him, he has a stem cell donor (a girl,24) no wonder your not sick! God bless all of us❤
❤u two r so amazing I enjoy all this knowledge
Where does Jason get his motivation to do a project? My husband doesn’t want to do anything inside or outside of the house?
I’ll be honest, not much motivation is happening very much any more. It’s dwindling away.
❤
Yeah, I think it's much more casual in the car and you said, do you want to talk about it. 👍
❤❤❤🙏🙏🙏
The guitar idea is so artistic...maybe the creative side of his brain is taking the lead
❤️🇧🇻
I think it’s hard with short term memory loss especially with a husband because you’ve lost someone to be with you in the present! 😢 my husband is older than Jason and has dementia also.
You both look great! Is this an old video? February? The trees have no leaves & your wearing jackets.
I would love if someone could figure out all these dementia diseases. My Mother had a great long term memory nearly to the end but could not remember what happened 10 minutes before. God, is it too much to ask for healing of Jason and others like him?
Guitars on the wall is a 'man thing'. My husband used to have a huge room with all things sports on the wall but we gave up that area for an apartment for son and dil so he gave away half a dozen bb gloves and baseball bats. Normal guy thing!!
What state do you guys live in? I’m assuming that this isn’t current since wherever you are in this video it is cold. Seems like the whole series is delayed. Just inquiring not judging. You two are awesome!! I love watching the love between you!! Blessings from Ohio! 💞
I have a hardly used large set of 100 (I think) Arteza colored pencils which are much easier to use than Crayola I would like to send you. I am a 71 y/o with way-too-many art supplies who is not sure how this works not being You-tube savvy.
How do you keep your hair looking so beautiful! You always look, dry put together! It must be draining.
Thank you! Not draining at all! I spend about 15 mins a day washing my face, putting a little makeup on and touching up my hair. I’ve had all this hair my whole life so I can fix it super fast! You have to remember you are worth 15mins of the day, if it makes you feel better about yourself! ❤️
HE DID SO GOOD IN THE CAR....IF ONLY IT LASTED.
Have you all used methylene blue? I am using it now, and only orally, and it has made some difference. But with dementia, it can be administered intravenously. Great results for many!
Where do I find ur decorating show
I'm scheduled for that skin biopsy test in a couple of weeks. My neurologist doesn't believe I have LBD but agreed to do this test. I do have two other preliminary diagnoses of LBD but the neurologist doesn't believe this.
Are u willing to describe the 2 tests Don?
@@yvonnekneeshaw2784 My sleep physician gave a diagnosis of possible LBD due to REM sleep behavior disorder and a neuro-psychological exam showed marked cognitive decline consistent with LBD.
Best wishes
Which video talks about your health concerns?
Hi Diane, it’s over on my main channel! Here’s a link to the original one! ua-cam.com/video/a4FwmMQIQiA/v-deo.html
What is your health diagnosis? I am relatively new to your channel and do not know.
I don't know how many people find the medications helpful. In our case, the meds all had side effects and interactions and complications. In the end, my mom was much better when she was off everything. She obviously still had symptoms, but she was more herself and had less confusion. She was never particularly compliant, but being in a stupor didn't make that better.
Will the biopsies require anesthesia?
I like the home vid,did not like car
Where do you guys live? You laugh a lot.
I hope you are doing everything to keep yourself protected against Covid. 2-3 times sounds like you might not. All the reports say it is still around.
Hi you probably don’t know, but I have an immune deficiency. So having Covid 3 times is not out of the ordinary for someone like me! I catch anything and everything, but that’s just my life!
@@LIVINGWITHDEMENTIAPODCAST no I didn’t know. Since you are going in and out of doctor offices and hospitals does it help to take precautions? Masks everywhere you go, sanitizer etc. you have added pressure keeping well. Hopefully, you are getting enough sleep etc. the anger would be the hardest thing to deal with aside from watching Jason slowing losing his battle. My mom died from dementia. Luckily,she was able to stay in a quality memory care home. (Minimum $8000 monthly fee). She passed at 96 after a good long life. Some of her hallucinations were so funny. I miss her desperately since we only became friends during the last 3 years of her life. She visits me often and she will be waiting with my angels when it’s time for me to cross! Prayers to you for strength.
I've had the rona twice, Leslie... I feel for ya. It is no fun.
Hello Jason and Lynne have just found your channel my mother had dementia and my father has Alzheimer's I'm a bit concerned if I will get either one I'm 61 so far have bit of short term memory loss but that could be age and all the medication I take Jason has such a great sense of humour 🤗💞🙏🍀☀️
That aspect is so scary. My brother, cousins & I live this daily because of the rampant prevalence on Mom's side.