LIVING WITH LEWY BODY DEMENTIA EP. 11 | FAMILY AND FRIENDS INTERVIEW
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- Опубліковано 4 жов 2024
- LIVING WITH LEWY BODY DEMENTIA EP. 11 | FAMILY AND FRIENDS INTERVIEW. Want to help us continue to make videos? Donate on Paypal: www.paypal.com...
FOLLOW ALONG ON JASON'S JOURNEY: • LIVING WITH DEMENTIA
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Leslie, this is a wonderful thing that you have done. So many people are suffering in silence. Your video let's them know they are not alone. Hopefully, this video will give them some insight into how important a support system is. My heart breaks for all of you. I just want to hug all of you. You and Jason have raised two very incredible daughters. You know, Dave and I will be there for you and Jason always. I'm right next door, if you need to talk or a shoulder to cry on. WE LOVE YOU GUYS!
Thank you guys for doing the interview! Most of all, thank you for always being there! We love you also! 🥰❤️
You are a haven where Jason can go and just be normal. Bless u.both.
Thank you for treating Jason like Jason and not Jason with disabilities :)
Thank you for sharing your story, it’s so important that people hear it. When my dad had a stroke that exacerbated his dementia, my mom lost nearly all of her friends. People were uncomfortable, and some thought that she was terrible because she wasn’t able to care for him, and he went to live in a wonderful facility. They didn’t care, and made my mom feel so guilty, it was devastating to her. Friends and neighbors are SO important to the family going through this horrible disease. Blessings to you both!
☮️💖🙏
I did give that like button the car warranty #... hahahaha.... I thought.... what the heck?!?! Jason is probably more right than we think!!! Love you guys so much. Following your journey. Sending peace and strength to all of you through this process. ❣️🙏❣️🙏❣️🙏❣️🙏❣️
They say you loose a loved one twice with dementia, no other disease is like that , this is why dementia is so heartbreaking ♥️
I’m crying the whole time I’m watching this. And what makes me so angry about this, is that there are terrible people out there that are perfectly healthy. And then there is this wonderful, warm, caring, fun guy having to go through this. It just hurts my heart. It’s just not fair.
I am a care giver for my husband who has mixed dementia so I’ve found this video very helpful thank you , sending love and prayers from England xx
Blessed be everyone who is going through this. You are angels on earth
If I had dementia and could still think, I'd try coconut oil. Grass fed bone broth powder (Swedish, tested).
I'd also add magnesium threonate, enough potassium, Vit D3 and K2 :)
It's an expensive gamble but at least, coconut oil's cheap in Lidl and also Aldi
@@joannepepe8512 I too was my husband’s caregiver for seven years before his death. We also had good days mixed with bad days. He was also a very smart and funny man. I kept him at home with me until the last three weeks when became incontinent.
This was amazing. I lost my mom to Alzheimer’s and can relate to your daughters- grieving now when he’s not even “gone”, grieving twice and hurting twice. May God bless you all with more and more love and time together ❤️
That’s why it’s called the “ Long goodbye…”.
My mother has recently been diagnosed with Alzheimer’s, and I see the personality change. This is really helpful for that as well. Thank you.
Aww this was so beautiful. I don’t think anyone has seen the ugly side of Jason that you deal with every day. You are not being disloyal when you mention it. You are an amazing person. It must break your heart to see your husband, your friend leaving you a little more each day. Stay strong. ❤️
Rather the ugly side of dementia, than of Jason. It's important to separate the disease from the person.
I meant no disrespect. Leslie has mentioned sometimes “Jason” turns on her because of the Dementia. I realize it’s the disease.
Thank you for doing this!! You have no idea how needed this was for me , at this exact moment. My step Dad has dementia,he is 83, and his care giver is my Mother who is also 83. This is so hard and heart breaking!!! Leslie, you make it all look effortless!! That is a credit to you! You are so very strong. I know that God makes that possible. My Mom says he is the only way she gets through it. Again, Thank You for this, and I’m keeping you all the n my Prayers 🙏
@@kimbibbs5700 I agree.
Leslie has spoken of her faith, and her family’s faith, for getting her through this. Everyone in video are Jesus’ hands, feet and shoulder to cry on🥺
I can do all things through Christ which strengthens me. Phil 4:13.
@@sarastewart2633 VERY IMPORTANT DISTINCTION. Thank you for reminding us!
This was so gut wrenching to watch. You are such a brave family to share the “real” behind the scenes. I can’t imagine going through this and being so brave. Hugs to all of you. ❤️
Leslie, interviewing your family and friends about Jason is a wonderful video to share with others that are battling this awful disease. It is so admirable that ya’ll are educating others and helping people by sharing his journey. God bless your family! You’re in my prayers!🙏🏻
I have walked down the long road where you are now. My dad was near the end and was no longer able to speak. One day I broke down, and I looked in his eyes and said, "I miss you dad. I miss the sound of your voice." HE UNDERSTOOD WHAT I SAID, and tried so hard to speak, and then patted me on my face. DO NOT STOP TALKING TO THEM. Their hearing is the last to go. The sound of my voice always calmed him. As difficult as it is, and it will be hard, stay with them on their journey. You will never regret it.
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I’m sorry about your Dad. What beautiful words and advice you gave. God bless you.
I’ve always thought that as difficult as it must be to be with someone who is suffering from such a disease how horrific it must be to be the one trapped inside the disease. As your father showed you he was still in there, but unable to communicate what he felt. As a caregiver I cared for several men and women with various forms of brain robbing diseases. It’s heartbreaking on both sides. I sit here today in my apartment, alone, with no to very little relief post Covid. I’m still waiting for the appointment with my physician regarding the voices on the radio (that doesn’t exist) and get a direction. My children are in Dallas and I learned last week that my relocation has been moved forward another year…do I have another year of relatively mild symptoms or will I have progressed because of whatever is causing the aural hallucinations? I have so many questions that need answers but I’m stuck in place without a car, or transportation. I keep reminding myself that I am a child of God and when no one else is there he is. But it is hard because I am so isolated. I guess I’m having a pity party for myself and that’s not what I intended. God bless you Leslie, as primary caregiver you have a very tough job…you are extraordinarily lucky to have the support system you have around you. This video was amazing. Do you realize the help you are providing for other caregivers? I so admire the way you are handling your piece of the life you live with joy in your heart and know that would not be possible if not for extraordinary love for Jason. ❤️
Jason has the best sense of humor! He cracks me up!
Oh gosh...this was hard to watch because I lost my Dad to Alzheimer's...the chat with your oldest daughter hit extremely close to home...I just wanted to give you guys a huge hug! ❤️ Bless your heart for sharing!
It's 7.30 am here in Australia and I'm sitting here crying you really are a strong family God bless
I want you to know that I worked for the Alzheimer’s Association for five years and my mother in law also had what he has for 9 years. This video is amazing and your family is absolutely beautiful! Thank you for putting this out there.
Lewy bodies is not Alzheimers.
My sister Becky's lewy bodies dementia in a year and a half now, she can't talk. 😥 Be thankful for the time you have with him now. Keep those precious memories within your heart ❤ 🥰🤗😘 🙌🙏🦅
I’m so sorry Venita. My husband had DLB as well. It broke my heart slowly over 8 long years. I cared for him the whole time except for 3 months after he had aspiration pneumonia. I had to place him in a care home until he could walk again. I wouldn’t trade the 8 years for anything. I still had my husband but he was different. I’m sorry for you. It keep talking to her and loving her. I’m sure you do. God bless you
@@Sedgies .. My brother and his wife abused her. I was given guardian of her. Due to covid restrictions I couldn't see her. Was finally able to move her to assisted living facility. Now I'm being told she has to stay there indefinitely. 😥😭 Thank you for you sharing your story. Just know he suffers no more God bless..🙏
Thankyou for this video. I too am a caregiver to my husband who is terminally ill. I am never sure if I should share with family how I truly feel. I tend to be over positive and cheerful all the time but in a strange way you have given me permission to show my sadness to my closest family.
Tear jerker but a big thank you for sharing. I’m so sorry for the girls because my Dad was a lot like Jason and I miss him every single day. Leslie, I pray for you and Jason all the time, but now I know others through this video to pray for. Y’all are in my heart💜💝🙏🙏✝️
My husband has dementia and he gets upset easily 😞I wish I had more patients with him 🙏🏼
I understand and I will pray for you.🙏🏻
His mother's account of five year old Jason leaping over her beautifully made cakes - AND making a perfect landing into the passenger seat - priceless!
Jason has a beautiful daughter and I wouldn’t expect anything less as he’s a great man. So wonderful that she was prepared to talk and share. Bless her heart.
This vlog is an amazing resource. I spent the first years of my nursing career taking care of dementia patients, and I’ve seen the bewilderment, confusion, and sadness of the family members. If you are a good nurse you know that you don’t just take care of the patient, you also make yourself available to the family as needed. This vlog should be watched by nurses and CNAs to better educate them in regards to family members and their emotional needs.
This was so pure and beautiful… this video is such a gift to so many.
This is both beautiful and heartbreaking. Praying you all feel peace and God's eternal love.
Leslie, this is a treasure. I sit silently in the background and your videos bring forth a revelation that many may silently suffer with. Lift Jason up, and lift those who love him so much up too. We are here for you.
The Love and Light of Christ shines so brightly through all of these interviews. Thank you for sharing this.💔🙏
My mom went through Altzeimers for 12 years…they call it the long goodbye. It is so hard on the family! Treasure what you have now with Jason. We learned to love and cherish our mom as the new person she became even though we desperately missed the old mom so much. There are so many changes that you will experience and it’s not easy. It broke my heart to hear your daughters thoughts about their dad. It was the hardest thing our family went through. Stay strong.❤️
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Yes a long goodbye 😢 have been there , with parents,God is there for you, glad you have a support group, blessings to them
The important things to do with a person with alzheimers or dementia, i stopped trying to correct my disters story and just listen to her story and make up things to add to her story. We had so many laughs. It was the greatest time we had together.
I needed to see this today because we had a rough day yesterday. My husband has Alzheimer’s and he can be so mean in his approach to me. He reins it in if others are around, but when we are by ourselves he can let loose his anger. He basically wants to be left alone and to watch TV all the time. Don’t ask him to do anything or say anything to him or he will become very ugly. Just to me, his wife of many years. He has always had a short fuse, but now he has no filter. I am very isolated, hurting and so lonely. Thank you for sharing this message of love from your family and friends. I want to remember the good times too. However, they were a long time ago. I grieve for you as you lose Jason. You are both brave and I thank you for sharing.
@@patricialong3492 my husband was on Aricept for a year and it made him sick to his stomach. So the Doctor took him off of it. Now we have nothing but Prozac. He is just an angry person. I don’t know why. We went to lots of counselors in our marriage for his anger management. He can be very charming to others, but very REAL to me. When Leslie did a you tube on Dr Jekyll and Mr Hyde I could so relate to it. That has been my life for at least 25 years. No matter the counselors, or the meds. Verbal abuse and now physical abuse. He is sorry, but it is all painful. I just try to do my best. When it gets more than I can take, he will have go to a memory center.
@Jan: reading your replied sounded so much like what my mother is going through with my father. My heart goes out to you. I really believe there’s a special place in heaven for caregivers. You give so much of yourself to care for your loved ones. You are truly special. May God bless you and give you strength at this difficult time. Know you’re not alone.🥰
@@twothousand8051 thank you for your kind words. I need lots of prayers! ❤️
I don't know you but just wanted to send you a hug..
Oh dear I feel you completely. My husband was just diagnosed last April with LBD, started changing a lot in November but in February he had two seizures and now here it is March( not even a year) and he’s in horrible shape. Up four, five times a night. They took him off meds except klonopin to help calm him but last night he woke me at twelve with two coats in his hands to buy and I said ok and took him to his bed, but then ( me being so tied) I took the coats and hung them up and he went crazy saying I was a Btch and a horrible sales person and what kind of business was I running and came at me and punched me in my head, by right eyebrow. He then picked up a folding table and threatened to hit me, so I ran outside and called police. He then took off with said table. The police spent an hour n half to find him and brought him home. Police wanted me to press charges , I said no, then they said let emts take him to hospital but emts said they will just evaluate and send him to nursing home. I said we are moving next month ( to be by family, so they can help, emts said well if they put him in, they will label him dangerous and it may be hard to get him out. ( we are moving to another state) sooo here we are. Why on earth won’t they give him something to totally sleep well the Dr just called and they don’t want to give him more meds as it will cause a fall risk. Wtf.
If I could like this a thousand times I would!! You are an incredible family! Praying for you all!
His daughters are such a wonderful legacy. Your entire family is so centered and loving. His humor, his light and his love are so apparent in his children.
Leslie, absolutely beautiful. It was so wonderful to see your daughters, Jason’s mom, & your neighbors speaking so highly of Jason. I can tell that he is an amazing man, & for me, his illness doesn’t diminish him in my eyes. I’m a nurse, too, & I know how full your heart is from having such a fantastic life partner. ❌⭕️
Hi Leslie, Jason and family. Jason is truly that wonderful guy, father, friend, funny, intelligent, adventurous guy that he strikes me to be even before this videoclip. I just went through this same battle. I lost my lifetime partner (December 1, 2021, 54 years together) to Lewy Body Disease, Parkinson’s and Cancer. You are spot on, this is the grieving process and one of the lifetime crosses we bear. Love him, hug him, hang on to him as long as you can. He will go on his terms and when he is really and he will know when. We all go through these processes the best we can and I admire you and especially Jason to agree to help others by sharing your experiences publicly. (I suspect it is not something he enjoys but agrees to). You are all courageous. Kindness is key. HUGS to all of you. With you from Canada.
This made me cry. My Dad passed 2/2/22. 3 days shy of his 88th birthday. He had, what we THINK was LBD. Thinking back, I'm guessing over 5 years with light symptoms before that. That last year was the worst. So much of what your daughters said were my exact feelings. I felt like it was a shell of "my dad" . I grieved my Dad way before he passed. He didn't know me the last year. He thought I was a boy who came to hang out and help around their house. He had Capgras Syndrome- not knowing who my Mom was, at times. He thought "she" was an imposter. They'd been married 66 years. It was heartbreaking to watch. I stopped working last June to help my mom take care of Dad. He couldn't be left alone. I watched him die a little more every day. I still cry alot. I truly feel for you and your daughters. You just have to tell yourself, "its not Jason, its the disease". Its so hard. But the fact that Jason is younger breaks my heart. You'll thank yourself later for taking videos and photos. I commend you for sharing your and his journey. I never thought I could be a caregiver but I it was my Dad- how could I not!? I miss him terribly but he wasn't having any quality of life at the end. I wish I had done great advice for you all. Just love him for him. He's still in there right now. I will keep you all in my prayers. You're doing an amazing job! You are patient and kind. He seems like a great hearted, funny guy! My Dad was that way.
I will say that after Dad passed, we donated his brain for dementia research. Plus they will let us know the exact issues that he had. That may bring me/us some peace....
Again, my Dad was much older. But heartbreak is all the same. I feel your pain.
I enjoy your videos and thank you for all you share.
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I have written this before..I think you both are so brave. As a nurse myself, I can only imagine how hard this is for you Leslie. I lost both my parents in my 40s and 2 years apart. It was so hard realizing what I was going to see happen with my Dad who had crohns disease and end stage kidney disease. My Dad was career Army and he stuffed alone of emotion and I felt I had to follow his example. It is such a gift Jason and you are giving families who face this cruel disease. Bless you both, know many many of us truly care for you both.
Oh this was awesome. I loved his mom. She gave some indication of how he came into the world and how he lived his life the same way.
You are so strong Leslie!
This is such an honoring tribute to the wonderful man that Jason is and was, and what an amazing support you are to him. It is so hard on families to watch them go through this disease. My mom was older when she started forgetting things and I felt like we lost her before she passed. So I know how you 3 are feeling. Jason is such a goofball at times so that helps to remember when he is having such a hard day. I'm so glad you have a support system yourself. My heart goes out to you all. 🙏🙏🙏
Jason sounds like such a wonderful dad and friend.
I lost my dad to this disease in 2010. I was his primary caregiver. I was single at the time and gave up everything… my apartment, job and social life to care for him. My mother was still alive, but sick as well. It is a terrible disease that robs you twice. Once while they are alive then when they pass. This disease is so aggressive. The doctors told us at the time of his diagnosis that he had 4 to 6 years. He lived 4 and half years and then passed from kidney failure due to this disease. I look back and I cherish the time I had with him and mom during those painful 5 years. I say 5 years because my mother passed almost 1 year after dad. With all this that I have shared I want you to know you are doing a great job. Thank you for sharing your story with us. I know it is helping other families that are going through this. Many blessing from our family to yours.
I went through dementia with my mother and my Mil, who i was very close to. These interviews highlight not only the painful trajectory but also the opportunity to catch inklings of their personalities and be reminded that that person is still available to love and cherish. What a loving group of people; a real tribute to Jason! Thanks to all of them and to you, Leslie, for continuing the difficult job of being present.
I understand exactly how your daughters feel so much! It’s one of the hardest things to get your head around that Dad is not that person who was your Dad. The whole grieving process is so right. I have told people my it’s not my Dad anymore. Occasionally he’s there but mainly he’s gone. Then there is the guilt for feeling like I do… no one prepares you for all the feelings… I live with my parents and I help my Mum care for my Dad and it’s hard work emotionally and mentally, and very few people truly understand what we go through. Thank you so much for this video.
Thank you for sharing this video, and please thank the people who were willing to be interviewed. I found this video very helpful. My mom has dementia and some days, I leave her house in full tears over the hurtful things she had said that day or the way she snapped at me over the smallest thing. I’m a Registered nurse and have a lot of experience dealing with such, but at the end of the day, I’m only human and it’s alot to take in most days. I feel like this video made me realize that I do need a support system in more ways than I realized. I try to be strong and deal with it on my own, but it’s harder than I ever imagined possible. Many prayers for you, your hubby, and your sweet family. I appreciate all of you for sharing this info with us ♥️
Thank you so much! My Dad is much older but I’ve been grieving for a long time now. In the early stages I always felt ‘ok’ when my Dad would say ‘how you doing Kiddo’?? 2 years ago...it stopped. Today he’s in a home and doesn’t know any of us. Thank you for sharing!!
God bless you and your family. I cried right along with you guys. I have never met Jason but he brings a smile to my face when he's on your videos. Now Jason this message is for you. The car warranty people drive me nuts so your little speech at the start of the video absolutely cracked me up. Good job big guy...lol
I so related to the "grieving" while they are alive. My mom suffered with Alzheimer''s for 14 yrs and we grieved through it all. You are doing a wonderful thing by sharing your pain and joys. It will be so helpful to others. God bless you all!
I took care of my Grandmother, who raised me... I was only in my early 30's and there wasn't much information about Alzheimers back then. I had no one to go to for support. One thing I will always cherish.. we would be sitting at the table... she would look up and say "Vicki's coming". I would say ''I'M HERE!!" She would be so excited.. for a very short moment. But she remembered me to the very end... especially when she didn't remember anything else. It is buried deep in my heart and still today (some 30+ years later) I cherish that more than anything. Many, many blessings and prayers to you and your family.
That is so true about the daily grieving. My dad had Alzheimer's.
What beautiful memories you all have to share. You are a reflection of your tribe and you and your husband have an amazing tribe♥️
Watching through tears for this beautiful family 😊
I cried from the very beginning. God bless you and your family. Jason is blessed to have you and the world is blessed to have had him when he was fine, and still blessed when his life changed. I pray that God will give you and Jason peace and comfort as things change. ❤
Such a beautiful video...literally cried through it all but feeling blessed to be included in your lives. Jason is blessed to be loved by so many but how blessed are you and your children to know you have such a wonderful man. Stay strong and keep building your support system. Prayers and blessing for you all.
Thank you guys ❤️. I wanted to add that you aren’t just helping people who are going through something similar. You are educating people on what to look for in their loved ones. Because some day most of us will be dealing with this. Thank you again 🥰
Hugs of love to your daughters for sharing their thoughts re their Dad. I too am a daughter caring for my Dad with dementia. It truly is living with daily grief as we see them slip away from us. So thankful for the hope you all have in Christ that you will be together again with Jesus. Oh what a glorious day that will be when we all see Jesus, and the minds of our fathers will be restored. Thank you for sharing your story with strangers who are walking this same journey.
A beautiful tribute.
Your utube site was sent to me by my niece in Florida.
Upon investigation, discovered I too live in Bonner Springs and just down the road two miles. Perhaps one nice Spring day, if you are in the yard, I will drive by to say hi. Small World. Blessings 😊
Dear Jason and Leslie, Thank you for this video as a way of helping those of us who are caregivers for our spouses. My husband also was diagnosed over four years ago with dementia. Last summer a neuropsychologist said it was the same disease that Jason has. Months later in December our main neurologist believes it’s a rare dementia related to his whole body( not Parkinson’s tho) shaking due the stenosis in his neck from a broken neck. You see he’s a 100 percent disabled veteran. But I have seen the same behaviors as you. We’ve been married 40 years this summer, and there have been times when my husband has spoken to me in ways that he never had before. It took finally sharing with a social worker and doing some research to realize this is the dementia speaking and not my husband. Like you I don’t spend a lot of time in the future because none of us know where that takes us. We also have an adult child with a rare and incurable brain disease. And I’ve learned that you can waste a lot of today’s worrying about tomorrow. I thank you for sharing something so personal… as an encouragement to other caregivers and families like myself and our three adult children. We also have two joys that bring so much love into our life and that live nearby them, so that’s wonderful as well. I also worked as an Activity Director in a nursing home, so I know exactly what a diagnosis like this means. But like you, I try to immerse my husband in family activities and get out a little bit… but also schedule in plenty of rest and naps so that when he is awake his quality of life is good. And really that is exactly what palliative care, which he is now on, means “quality of life” no longer just end of life but quality life, and isn’t that what all of us want anyway? Thank you Lord for this dear couple and family. I feel like I know you after watching dozens of your videos and I just encourage you as well to stay close to the Lord. I had a mother that had cancer for eight years when I was a young girl and thru college, and as I said, you can waste a lot of today’s worrying about tomorrow’s. Scripture tells us “Let the days own troubles be sufficient for the day.” In Jesus name I pray this, for all of us. Amen.
This was wonderful, sad, and funny all at the same time. My brother passed from this disease and many in our family didn’t even know he was sick as he and his wife kept it a big secret and we all lived far away. I am so glad to view these videos as they help me to understand just a little what my brother and his wife must have gone through. Thank you from my heart! One day I will meet you both in heaven.
It was amazing, I cried thru the whole thing , 😢
Seeing your daughter's, was heartbreaking
It was nice to Hear from his mother, your neighbors and your sister
So happy you have support system
Your girls look alike and I see both of you in them
I pray 🙏 a lot for all of you
When my son passed , I say we are not promised for tomorrow
I am sure you all live each day to the fullest,
Thank you so much for sharing , I know it was hard on you , hugs and bless you all
I just did my makeup and I’m trying not to cry.
Nobody knows until they know. My mother was in her late 50’s when we started noticing the changes. She passed away at 67, it was a long hard road to watch the decline. My father was her caretaker and kept her home the entire time. It took a toll on his health though. I worried more about him than I did her.
I think it hit me the hardest when I saw her sit down at her sewing machine and she was unable to remember how to use it. She was a master quilter and very Involved within the quilting community, that’s when it really hit me that I was about to watch her slowly fade away.
My love goes out to your whole family as this affects every single person that knows Jason. It’s unfair but I will say you will learn a lot about yourself and those around you going through this experience. 💜
Oh Leslie! I never cried and laughed in such a small frame of time before❣️ My heart hurts so much for you, the girls and rest of the family and friends. I hope you know how respected you are, taking this challenge on. I know you would not have it any other way. That being said, you have a very strong support team that admires you and always want to be there for you. How blessed you are for that.
I think we all somewhat know what a wonderful guy Jason must of been because we see those bits and pieces still. Cherish each day, as I know you do. Thank you for sharing your story, I know it will help others.
I am a 64 year old woman who has been a caregiver to the people I love and also have been one who needed my love ones to be my caregiver. You show the truth about both sides and that is very important. Care Givers need Care Givers to help them threw those trying times. I keep your family in my daily prays. Stay strong beautiful lady. God has your back. Keep up the outstanding job you are doing in helping people who are in the same positions as you and Jason are. I Love you and your family.
I commend you for doing this video. I’ve gone through this with my dad the exact diagnosis Lewy Body and without a doubt the caretaker and loved ones are so affected in the progression of this disease. Stay strong! God bless you and your loved ones.💗💗💗
Leslie I’m not sure you will even get to read this since it’s been a few weeks since anyone has commented. I’m not sure how this all works. I want to say that I have been depressed lately because of some things going on in my life and I just happened to come across your channel. What a wonderful blessing for me. If I understood right Jason’s dementia is because of an accident while he was serving our blessed country. I want to tell him thank u for serving so that me and my family have the freedoms we have. Freedom is not free and y’all are paying a very heavy price so that all Americans can be blessed with that freedom. I am a Christian and I know that we have faith but it’s easy to get down sometimes but watching y’all has given me a kick in the pants and I also thank y’all for that. As your sister said in the video she will see Jason again in heaven if he goes first. What a beautiful promise we have from the Lord. Thank you both. What a witness y’all are for the world. God bless y’all.
Really enjoyed your programs. I lost my brother to dementia 2 years ago. I admire how you handle Jason n the toll it puts on you. Bless you
This was such a great idea to do. I'm sure it was therapeutic for everyone!
Your Jason IS clearly a kind and sweet soul! He is so loved and adored! What a blessing! Blessings to you all!
I lost my Mom to Alzheimer’s in 2014. But I felt I lost her many years before. She lost her speech, but I never stopped talking to her because she heard and understood. Like your daughter in Florida, I didn’t get to see her as often as I wanted. But when I came in town she always knew me and smile and hold my hands. Praying for continued strength to you and your family.🙏🏻😘
Love is a feeling, not a memory. Dementia patients always know when they are with people who love yhem.
Thank you to both of you for showing us true love, strength, and humor during a sometimes difficult journey.
You both are so strong and sincere. Blessings❤️
This pulled at my heart strings. Especially hearing Kelsey talk about her dad. 🥺
I just went through this with our precious mom, she passed last December 2020. It is so hard and heartbreaking to see them go through these stages, and I would look at my mom and she looked so lost and confused. I am so sorry that your family is going through this horrible disease.. I'm still in a deep depression since losing my mom I miss her and I love her so much... I'm sending love n hugs for you all💞❤💕prayers too🙏🙏
I enjoyed this so much Leslie! It’s just beautiful seeing your village that surrounds you. I’ve been married 25 years.It’s hard for me to see you cry but it’s so necessary for you to cry! Thank God for Krissy 💕and all of the others
Sisters are the best 🥰
Thank you for letting us in to your private lives it was so hard to watch but so beautiful and raw. 😘🥰. I’m so sorry this is happening to Jason and the whole family. Leslie I’m hugging you so tight right now
May the lord be with you and your family Leslie!😘
I work in nursing and take care of Dementia patients daily. My heart breaks for each of you. Cling to those moments of clarity, as they come and go. God is still in the healing business. He’s no respecter of persons. I’m praying for a miraculous healing to manifest in Jason. Thank you for sharing your life with all of us. God Bless you.
What wonderful memories you have and a beautiful family and supportive sister. It breaks my heart you and your family are going through. I was the care giver for my Mother through her Alzheimer . Praying for you and Jason and family.🙏🏻🙏🏻🙏🏻❤️
Thank you for sharing this video. Since my family,y member is going thru LBD.This video will help so many to understand. Sending hugs prayers and kindness with lots of love. ❤️🙏🏼🌹
You two are such very special people….thank you both for helping us to understand this sad disease…my love and hugs go out to you for helping us to understand …God Bless❤️❣️❤️❣️
I am also a patient with LBD and Parkinson’s . It is nice to watch your videos and your progression…it helps to give people an idea of what is like for caregiver as well as patient. It is definitely a long road. Thank you both for your strength.
Amazing footage, as a psychiatric nurse and having nursed my mum who had mixed dementia, you are all so brave. Keep going xx
Praise God that you have Christie and Kelsey! Accept more help, Leslie!
4 minutes in and I’m crying. This is not my family and was really hard to watch. I love you as a couple and individuals. Your personalities bring me such joy. Both of you are so positive and that’s not something I’ve had in my own life. I wish I could take this from you two.
Oh my heart hurts for all of you. There is no way to watch this with dry eyes. You are such an amazing momma, wife and video friend. I grew up without a family so I'm not sure how I would deal with it but Jason and you have done such an incredible job with the kids. So although I don't have a family connection but if I did I would hope they would be just like you all. Thank you for sharing. It means so many different things for so many different ppl.
Thank you for this beautiful video. My mother had dementia and I relate to the grieving that is going on now at watching the person you love leave and someone else take over the person they once were. I have often said that the Mom (she died in 2013 at age 89) my mother was becoming was not the woman I grew up with, but I grew to love this new person that she became. There were parts of Mom that still occupied the person she became and I will always be thankful for that. I missed my old Mom and I still do. But I do think about the woman she became that I grew to love, too. I was so blessed that Mom never went through the angry side of the dementia personality, but, oh, how I missed her "mothering" me. The roles switched and I became the mother in her life. God Bless You All...I can feel the love you have for Jason. You are honoring who he used to be while giving those caregivers a picture of how things can become over time. Diane in NC
This will help a lot of people. Jason, you and the children are lucky to have everyone rallying around you.
THANK YOU FOR SHARING THIS, I OFTEN THINK OF YOU TWO AND HOW YOUR DAYS ARE.. YOU ARE A BLESSING
Thank you for sharing your lives in this way! My husband also has been diagnosed with Lewy Body Dementia and had to retire from pastoral ministry at a young age because of it. We have 2 married daughters also (1 of which has experienced 3 miscarriages and is now 17 weeks pregnant.) We are a little bit older than you both, but we have found it hard to find people who are going through what we are because he is so young. You have blessed me! ❤️
I would have never asked for this segment, knowing how difficult it would be to pull together. But I do think it is powerful and will help many people who are going through many different health changes, especially Lewy Body Dementia, which being less common and there is much less support. Such a terrible disease. You are all very brave in this difficult path.
It is such a blessing to have such beautiful family and friends who are there for you and such a amazing support system!! God is with you and your family!!!🙏🙏❤️
Its not the same but my father had a Brain Tumour and his personality totally changed and it was heartbreaking to watch him and his decline. Your all in my prayers.
Leslie a very helpful video channel is Joe Joe Dementia…where a son Joey shares his experience with his mother, Molly’s journey with dementia with Lewy bodies. This channel helped me so much and I am thankful for Joey making this channel to document and support those family members suffering losing a loved one to this devastating disease.
This was a lovely insight into Jason, my prayers are with you both. My late husband had dementia related to Parkinson’s
And it was one of the most difficult times I’ve ever had.😢🙏🙏🙏💕💕
My mother-in-law had dementia related to Parkinson's also. Very difficult times.
You are helping so many people. You all are in my prayers always.
This is very brave of your family and friends to share their feelings and observations of Jason. You have a great support system. God bless!
My husband passed away from Lewy body dementia 18 months ago. It was a 5 year progression, quite rapid. He was 63 when he passed. Our children lost a wonderful dad and they loved him so. I ache for them and we are grieving. He did not get to meet his first grandchild. I know they were so saddened when he couldn't remember who they were exactly. He had moments of clarity though. At the end he didn't know me either, but I knew him so it was a joy to care for him. While I thought I was slowly grieving over the 5 years and trying to prepare for his death, one is never prepared. Our solace is Jesus and the promise of eternal life.
My prayers for you all. I'm just starting going though the Grief Share program.
This is a wonderful video! My heart goes out to you and you're girls and family!!!
My heart breaks for you all. My Mom was from a family of 7 girls, 5 of the 7 had Alzheimers, one of our cousins has Lewey Body & another starting with dementia. My Mom had Alzheimer. It is frightening what is in store on a hereditary basis.
I so wish I'd had known then what I know now and this vlog is so helpful for those caregivers now experiencing this new in their lives. Thank you for sharing your lives, it is so generous of you. God bless you and I so admire you. The caregiver I believe suffers even more than the person with it. 🙏💕🙏
Thank you for sharing your lives with us. I loved this "episode" and can identify with your girls. Sending my love to everyone.
It really brought it home to me when your daughter said that he’s there but he’s not dad anymore and right now my husband is terminal with cancer and he’s here but he’s not the same. He is not the same father, he’s not the same husband and it’s like you’re grieving every day watching him go downhill and you know where the end result is headed. It’s also very hard for my children because the person that they grew up with is not fully there anymore and that breaks my heart.
So nicely done, Leslie and Jason. It’s wonderful to see and hear from the people who love you and are closest to you. Have to admit your daughters sharing choked me up. My father in law had Lewy Body Dementia. What you’re doing sharing your journey is a gift to others.
So true Debra. This is my go-to place when I need to have someone understand what we are going through with our loved one. It’s a community of empathy and I am so grateful to Leslie for starting this aspect of her channel. 🥰
Thank you for making this difficult video, it was very insightful and was both heartbreaking and heartwarming. Although my parents died from different diseases I could identify with what your daughter was saying about the process of active grieving for the person that was. It’s really important that we do that because that is how we make room for the different persona developed through the disease. It helps us be more tolerant, and patient and to exhibit kindness more readily. I’m sorry you and your family are facing this. Heartfelt prayers for you and yours.
What an incredible testimony of Jason and the love he has all around him. God bless you and your family.
My dad had dimentia. He was one of the most intelligent people I knew. What was difficult for us was when our family would get together (14 biological children) with our significant others and our kids, it was very stressful for dad. Unfortuntely, he was not able to enjoy those times and that was when we would see the worst that the dementia brought out. A lot of friends and relatives thought we were terrible to talk about the behaviours we were experiencing with him, but it is so important that you find a support system! I'm so sorry for you and your loved ones to have to go through Jason's departure a little at a time. ❤
What in the world would we do without the Lord? It gives me such a great feeling to see the faith in your family. He will walk you all through this and you will know His peace beyond measure. When things are difficult, just keep looking up and know that, God's got this. I pray that God will show you His unending grace.
I am so thankful that you and your family are so open and honest to share with us. I must admit that I was sobbing watching the interviews. You are a living example of our marriage vows, in good times and in bad times, in sickness and in health. I am also very thankful that you have a wonderful support network for you. My MIL had Alzheimers and dementia. She was hateful and hurtful. My husband had to deal with it without help from his brother. I would help as much as I could and we had in home care for her. It wasn't easy and it was bad. We had to keep saying she doesn't realize what she is doing, but the anger and hurtful words directed at my husband was so hard to hear and witness. She passed away in 2021.
Keeping you and your family in my prayers.