FOXG1 Parents Conference 2024: Closing Remarks by Co-founder Nicole Zeitzer Johnson

The 2024 FOXG1 Parents and Caregivers Conference concluded with heartfelt closing remarks by Nicole Zeitzer Johnson, Co-founder and Executive Director of the FOXG1 Research Foundation, and mom to Josie, who inspires Nicole’s advocacy work. Nicole is also the author of the children's book "Joyfully Josie" and the founder of Live Joyfully Education, a program spreading disability inclusion and empathy through professional development for educators and social-emotional learning for students worldwide.
In this closing session, Nicole shared her deeply personal journey-from the day Josie was diagnosed with FOXG1 syndrome to the founding of the FOXG1 Research Foundation. She emphasized the critical role parents play in advancing the road to treatments for FOXG1 syndrome, urging families to join the official FOXG1 Patient Registry and the Citizen Health Natural History Study.
Nicole left the audience with an inspiring message:
"We see you, we see every single one of you FOXG1 parents, we see your stories, we are inspired by you and we are you, and we promise you that we are going to be here until all of our children can live the healthier lives that they deserve. Thank you for being on this journey with us."
A special thank you to everyone who made this conference possible, including the incredible FOXG1 Research Foundation planning committee, speakers, attendees, and our sponsors: Chan Zuckerberg Initiative, American Airlines, and AMGEN.
#######
Help advance treatments for FOXG1 syndrome: foxg1research....
Find the "Joyfully Josie" children's book: www.joyfullyjo...
Learn more about Live Joyfully Education: www.livejoyful...