Відео

Meu José possui essa condição. Ele nasceu em 2023. Conseguimos o diagnóstico através do exame EXOMA. Desde então iniciamos as terapias para promover uma melhor qualidade de vida pra ele.

23:50, OMG!

Heart melting... beautiful child with a beautiful smile/laugh.. she is so blessed and blessed with LOVE❤.. brings tears to my eyes...

Oh God!! It is very comforting for me to know that there is a possibility of communication for them. I have two children with FoxG1 Syndrome. God bless these angels.🙂

Türkiye den yazıyorum. 7 yaşında kızım var. 3 yaşında bu teşhis konuldu. Süreçler çok zor. Allah yardımcımız olsun. Bilgi paylaşmak isteyen olursa buradan mesaj yazabilir. Bakımı zor çocuklar. Çocuğumuzun hayatını kolaylaştırmak için elimizden geleni yapıyoruz. Ailelerimize sabır dilerim.

My 2 year old just had his eeg today all the symptoms are lining up with this. Seizures started last month. 100% infantile spasms. Neurology appointment isn’t till next year. How can we get faster results ? Thank you in advance.

The camera man is shaking. I would too and zoom in now and then. I would tell her thank you for showing me what I wanted.

Wow, Miss Lady I love your short dress

23:51 Red shoes match red lingerie

I likento shinenshoes of red shoe guol

Thanks alot for the update through Q&A and well articulating the current progress.

This is a great Q&A. Thank you for providing some clarity on these topics.

What would a gene therapy potentially mean for an older child or teenager with foxg1 that is well past the early stages of brain development?

Great insights. I appreciate the explanation. 🙏🏼

It’s great to hear this type of research is underway. I look forward to hearing more about the progress and outcomes of this work in the Fink Lab at UCD.

Well said Nasha, thanks for sharing these observations. We agree!

❤❤❤❤

I loved it when Abey quoted Donald Rumsfeld - "I went to school with the brain I have".

hi corbin!!!!

I got diagnosis for my son today, how do I get in touch with you ?

Amazing job. This is an unprecedented, unbelievable story. I hope my fox will write anything one day to me. God bless you.

What a wonderful message by inspiring people! Thank you for sharing your experiences and children with us.

Nice shoe

Was für ein demotivierendes Videos

Dr.your a very beautiful woman and I wanted to say hi

Hi beautiful how are youy name is Pete Carbullido I seen you on you tube and want to talk to you

Who is the one in the white pants

Hey buetiful how are you

She pretty good looking

I like to see her in person

Dr. Nadia Bahi Buisson 🥂

2:42

A truly memorable experience that we will never forget ❤️ #CureFoxG1

"promosm"

23:51

Amazing! It's just so inspiring what a community of passionate people can achieve.

❤️🙏🏼🤲🏼🛐

❤

I have a grandchild with Fox G1 Syndrome. I pray one day there will be a cure.

Hi Nasha, Could you share more details about the clinical trials. How can parents share interest to have their children enrolled? Thank you

Nasha, so clear, so good AND hopeful. CONGRATULATIONS to you and all the FOXG1 Research Foundation team!!

Congratulations to the FOXG1 Research Foundation team on your tremendous progress!! Happy 5th Birthday!!!

Well done Nasha. The Rett syndrome community is cheering for you!

Thank you so much ❤️🙏🏼🛐💎

Há avanços nessa pesquisa? Fiquei bastante animado!!!

I would be very interested to see what impacts whole plant cbd oils would have on cells

Thank you for the update!

Thank you for sharing Josie. 🥰

♥️