You are absolutely incredible, as someone who is just starting the process I can’t tell you how much your videos are helping ease my anxiety! You are an inspiration and a fantastic role model, thank you so much for taking the time to help others..... all you ever hear is the “bad stuff” you have no idea how much you’re helping us worried mums ❤️ thank you
I contemplated ending my life today but after watching your videos it gave me hope and inspiration to being a better parent. My daughter was diagnosed with autism two years ago and as things get harder I feel more and more heart broken and just can’t cope anymore. If anyone feels like they have no desire to live anymore because they feel they're not enough remember I also feel this way and you’re not alone but everything you’re feeling is false. You are ENOUGH! There is no better parent for your child than you. There is a light at the end of the tunnel even though you’re tired of waiting and it doesn’t feel that way. You will see the light just keep swimming.
Thank you for your honesty and sharing your feelings. You are helping others by being open about your own struggles. You are right about so many things you’ve shared, especially: You are not alone! Wishing you and your child the very best life. ❤
I’m on the hunt for different therapy options for my 3yr autistic son and these were very helpful! In the US we have an early interventions through a program called BabyNet. Down side is it’s only until they turn 3yrs old. I’m contemplating the ABA thing. Heard so many mixed reviews more bad then good but I guess it’s worth a try and we can always stop it if we feel lots not a good fit for him, This is my personal take but I’m sooo glad you’re not doing the Shaman thing. Stuff like that along with the crystals and sage are dealing with ungodly spirits that we don’t want to invite in our homes, lives, atmosphere, etc. I get it we’re all desperate to help our children but not at the risk to something that can destroy us mentally, emotionally and especially spiritually. No judgment! Just sharing. Thanks so much for the helpful info and blessings to you guys!
We live in America and my daughter is 12 HF but still very autistic (which I feel like I shouldn’t have to say but here we are). We do ABA and just like she said the first few sessions were hell and meltdowns were hard. BUT she is starting to have many successes (we’ve been doing it for about 9 months now) and her flexibility has grown by leaps and bounds. The social aspect has been harder because of stupid Covid and we can’t have group therapy for her to practice in social sessions but we are hoping to have some of that soon. If your child suffered with any milestones, or needs more flexibility this will be great for them!
My son is is 2.9 years old n we are also starting him speech therapy from next week. Am waiting for him to call me mamma... Am so hurt n broken. The stress pain... I can't say in words....
My daughter is in a special school and gets speech there but we are getting her a formal assessment next month for a full diagnosis for more services!!!
Thank you for your videos. I’ve been watching them for the past year since my son was diagnosed at 2. My heart shattered when he was diagnosed even though I knew he had autism - it was like I was holding on to this tiny shred of hope that flew away. I experience a lot of grief, namely because I don’t know what to expect for the future. Will my child be potty trained? Will he graduate high school? Just like you my concern is about his ability to be independent when he gets older and I’m no longer around. I don’t care if he prefers his own company or doesn’t participate in family events (though I’d love it if he would) my biggest concern is his independence and that he is able to be content and make his needs and wants known. I’m so emotionally and mentally drained because I always need to be “on” in order to teach him and I worry about time running out - that the window for the best result is closing and he still hasn’t reached certain milestones.
You are an amazing loving mom, thank you for sharing this video, learned a lot🥰👍 my son is in aba therapy here in USA , 1hr 30 min 5 days a week , he is 23 months old, hopefully it'll help him to do better as well
You are a blessing! I have a 13 year old in the United States. We just started the UCLA PEERS 16-week program. UCLA will bill insurance but there is a co-pay for both the parent sessions and the student sessions. Although UCLA created the PEERS program it is available around the world.
Our son also walk on tiptoe before he was diagnosed and it fade eventually. We go to occupational therapy here in the Philippines once a week for 1hr only and he never had speech therapy becuase of availability. So what we did is we do a follow thru at home.. He also loves swimming 😊
Thank you for another great and informative video. In Israel, 2 of my kids go to specialist nurseries for ASD. They get 14.5 hours if therapies a week here.
We are in the USA and through my husband job insurance it covers all types of therapies for our four year old boy we get 40hrs a week of no cost to us of aba therapy, ofcouse we don't use all the hours because it is way to much for our child and our selfs, currently we give him about 20hrs a week and he also does speech and occupational therapy. I think my husband pays like $60 every two weeks for a health insurance for a family of 4. In the USA if you do not have a job or are low income you qualify for free medical which I believe pays for all the special needs therapies they may need.
wow having speech therapy everyday, such a luxury in my country. great programs you have there.. in my country, in the EIP usually we have only OT, and usually only 3 hours/day, and it also is very expensive for many of us in this country (private, pay with your own money). We have government school that can accept special needs children (free/minimum pay) but no therapy provided there. There is only 2 government institutions for 4-6 years old with therapy, but the waiting list is very long. At least there are places we can send our children especially in city areas, so we are still grateful. For those living in rural areas, they have it harder..
I know this hurts my heart. which Is why I have a few videos on speech therapy and OT to try and help. I want to help get this information to everyone . Everyone's a right to this. I am sorry that it's not easy for you. x
Hoya Tara I used to use specialist cutlery also I love swimming as well when I went away with the fam a few weeks ago I booked myself into swimming everyday it really Calms me very interesting Dylan finds it the same way. You are very right you can’t put children and young people with SEND in a bubble as it’s not real and that bubble will break when they grow up into teens and adults. We had a Play therapist when I was having my ops even at the age of 12 it helped as it was someone to talk to also children in need fund these I had help from children in need.
In New Hampshire USA we've been doing aba about a year. My son will be 3 in a few weeks. Hes in an early supports program. They provide a speech and occupational therapy and contract out a behavioral therapist. Everything is covered. Since covid happened everything moved to zoom and has been a nightmare. He was getting at home services 5 days a week and now he's only getting 2 days a week for only 30 mins on zoom. Now he's gonna be going to a special ed preschool but because of covid can only get a day. But we will be continuing the behavioral services 5 days a week now hopefully at our house. We r gonna try to see if we can get private services ontop of what we r getting cause we know he needs at least something everyday.
Yes this has been a complete nightmare for us since March. This week has been the worst for us. Since Monday my son all of a sudden has become hyperactive and is chewing everything in sight and constantly just wants nutrigain bars. He was never like this before. Only time he would have energy would be him running back and forth and the chewing everything in sight stopped when all his teeth came in. Hes a picky eater but wouldn't refuse any of his foods that he likes in front of him. Hes also sleeps better than me. Today he was up at 4am and wouldn't nap. We reached out to his therapists and pediatrician so hopefully they have suggestions. Im hoping its just a phase and can't wait until he can finally get in person help.
Thank you so much for such helpful information and being so straight talking about everything. Honestly, you deserve an OBE or some sort of Award, as your advice is priceless and from hands on experience. We are still waiting after 6 months to see pediatrician for diagnosis of our little one, as you say it is hell in this waiting period. He also has weakness in his legs and no one else has mentioned about the Achilles heel, etc. and to massage, as you said. Thanks so much.
There are all types of conventional therapies for Autism - play therapy, Speech therapy, occupational therapy, ABA therapy and other sensory activities. Most important therapy is prayers to God, who created the child in the womb is also a a source of healing, peace and happiness. I also play Quran recitation from UA-cam which is very calm and is melodious in nature.
In the US there is a lot of controversy over ABA therapy. It is said to cause PTSD and can be harmful in the long run. I don’t know if this is true or not but just the fact that there is controversy and there has been some autistic adults come out to say how bad this therapy was for them i will not put my son thru it. Parents do your research first. If it works for you great but it’s not for me.
This is the same thing I was thinking after I heard that story about the girl who went to the computer and typed the words help during her ABA session. I think her name is Carly.
ABA's principals are just basically dog training for kids to make them act neurotypical. In later years therapists have brought in more elements from good therapies such as occupational therapy and speech therapy, and just saying that it's part of ABA when it isn't. It was made by the same guy who made conversion therapy for homosexuals, which again is absolutely awful. And yeah, a lot of people who have been through the supposed "good ABA" have come out saying that they've been traumatized and that it did lasting or permanent damage to them. It hurts me a lot as an autistic that I see so many people (typically in the states, where it's covered by insurance) talking about how their children are going through ABA and them not doing enough research, or not having any other option, and just taking places like Autism Speaks' word for it that it's helpful. The basics are to make the child not do the "undesired things that autistic kids do" while not realising that there is a reason for everything. Every therapist is different, of course, but the good parts of ABA are just other therapies that have later been applied by ABA as well, so it's better to just do things like occupational, and creating a safe and supportive environment the autistic at home and at school or work etc. Therapy isn't gonna replace being treated inhuman other places.
This is the ultimate therapy that works on everything, but it is done by faith in Jesus as the Son of God. Go to your Bible book store and purchase a small bottle of anointing oil. Take it home, hold it up and ask God to anoint it in Jesus' name. Then every morning and night before your son goes to be and then wakes up in the morning, pour oil in your hands, lay both of your hands on his head and say exactly these words, " in the name of Jesus Christ, I command you to have a 'new brain' !" This therapy is not limited to autism, but covers alzheimers, brain injuries, and anything in between. Gradually, you will see a difference. Don't stop and don't give up. I have heard of many healings that occur when people invoke the name of Jesus. He's still healing today because His name is above every other name.
Just last week I diagonised my 2.9 year old son they didn't yet confirmed he is autistic. Bcoz due to lockdown we didn't go outside much n didn't interact with children also therapist told us that this might be bcoz of less parent child interaction. He is not started talking n does repetitive action more sensuous to sound also not potty trained. From next week we are giving him speech therapy first. I hope my son becomes normal n talk like other children. Am so hurt n broken now.
This is very helpful. Our daughter was diagnosed at the age of 10. It would be helpful to know if any of your friends have daughters that have autism and diagnosed later in age. We have started horse riding and she lives it we also bought a dog and the meltdowns she had has halved. Swimming is also a great help to her we go to a autism Swimming session weekly. I've found these have helped her so much 💖
Thank you for updating all your past journeys u helping us allot of parents , I would like to know when delen stop tip toe walking and what help him to stop. Thank you
thank you so much for all the helpful information, im new to your channel but i am also Autistic from the UK i really appreciate a parents perspective as you are the ones who know us best. Im excited for more of your content.
USA Early Intervention is 0-3, your child does not need any diagnosis for EI or play therapy, speech therapy, occupational therapy, ABA therapy(can be covered about health insurance), nutritional therapy. As you said, please do not be scared of an autism diagnosis, you can get more benefits such as a daycare/nursery that specializes in assisting non verbal schools.
@@fungamesandstories No. Most states have mandated coverage for ABA and major insurance covers it now. My son has had ABA for 3 years now and has been covered. There are out of pocket costs but the majority is covered. They also cover unlimited OT and Speech if its autism related.
My daughter get ABA Mon-Friday from 1:30-6:00 and she goes to school from 7:55 -1:00 where she gets otd , speech and PE 😊, she is 6 still not talking 😣 working progress , but we are almost potty train 😊 .. from the USA
@@manichatt I’m too and now she is pulling us to where she wants us to go or give her but she does get frustrated whenever we can’t understand or get what she really wants more the usual now. Really praying for things to get better and her to take soon.
Great video. So you know there are a number of local authorities funding ABA therapy here in the UK . Our ABA therapist works with a number of children that are been funded by the LA. The parents requested it however were declined but after an appeal was made they managed to get it through. I have an appeal going through currently and using a specialist solicitor for this process. Will let you know how it all goes
My son’s ABA is funded by West Sussex. We started it straight after diagnosis at 3 privately. We gathered data to support our application for it to be included in his Ehcp. We of course had to engage a lawyer to help us through this process and we’re Successful. It’s helps if you can prove ABA results ours were supported by both the nursery and Speech therapist who teamed up With ABA tutor for support to manage my son’s avoidance behaviour. Good luck.
@@shamilaadam-march6098 Hi Shamila, i have currently applied for the ECHP. Can you give me some info on how to start the ABA process? Do I need to start with privat ABA and then put it through for funding? I’m at a very confusing state right now, any help will be greatly appreciated. Thank you
@@zohrahammad3247 unfortunately you need evidence that ABA is working and making a difference. Even with the evidence be prepared to go to tribunal. So get yourself a good lawyer. We did ABA privately for almost 2 years plus we had private speech therapy. We managed to produce evidence on how we used Aba tutor and techniques help our son access learning by supporting both the nursery and Salt. We provided a tutor to assist these professionals to help manage is escapism behaviour which was making it impossible for them to do any sessions especially Salt. The other challenge is finding a school that is open to aba. The special needs school around our area do not aba they have other therapies. So it also depends on where you would like to send your son will depend on the route you should take. Aba works differently for different kids. Try it privately to see if it’s the right fit for your son before embarking on this battle.
When they acess your child though in person they sometimes only see the good side in experience because parent put in a lot to maintain their child or prevent triggers ect - so it can appear that the child is not in need of such great support because the challenges are not always glaring because your always trying to avoid those worst moments ect But then you put them in a school and then the child can ‘act out’ and then the school will wonder why And my personal experience was that they don’t listen to what you want in the ehcp unless they see it for themselves - and this process can put your child through unnecessary stress unless you have a very good LA
Thank you for your help. I'm the grandmother of an autistic 4 yr old boy. I was the one that took him to the doctor to be diagnosed his parents, his mom particularly were ignoring the signs. Now that he has parents have been given the tools to help him they do not do any of it and his mother ignore the teachers giving her instructions. How can I help him when we all live together and she interferes with his trying to be helped from me?
Great video and thanks for all the information. It would be amazing to see a video just on Rosie at some point-how you decided on the breed, the training she will need, etc. Maybe once you are a bit further along with her. Thanks 😀
This is such an inspirational video. I am based in USA and my son is referred to First step last week and he is showing signs of autism. I was depressed and crying since last week till i see your video and i feel hopeful now. You are a great Mom. Kudos to you and to your family
Last week I also diagonised my 2.9 year old son since he was not talking. Also there were symptoms of autism. But doctor didn't confirmed it's autism bcoz due to lockdown n covid we didnt go outside much n had not interacted with children. Also doc told that this might be also due to less parent child interaction. I hope my son talks like every other kid.
Hi sowbhagya this was months before when we had doubt i was unnecessary worried about him now he already has about 500 words he talks fine interacts with us has great eye contact and reaponds to his name and all now I don’t see any signs of autism
Loved your video. Did you live in London during Dylan’s early years? Because here in London getting speech therapy 4 times a week in school is a dream. My son is 5.5 Years has ECHP plans but still isn’t getting any kind of therapy. He got one speech therapy and one Occupational therapy last year. We are giving him every therapy privately. Tried to get some help from council but school didn’t like it. Don’t know what to do. Feels like leaving London . Not getting any help. And therapies are expensive.
I wish I could get some free services. Since my husband makes over 90k a year we have to pay 100% for speech, in home services or any service for that matter. We are starting 30 minute sessions once a week on January 4th. They only offer once a week where I live for in home therapy. I'm so confused and feel so overwhelmed with everything. I feel like I can't find or get the proper help. My daughter is 2 1/2. I started to seek help when she was 18 months and I've only accomplished having someone come once a week and being charged. I see so many 2 year olds on here getting so many services. I think it is absolutely ridiculous that parents with a special needs child have to pay out of pocket at 100% for any services to help their child. It should be free regardless of how much you make.
Thank you fir you helpful videos and all th informations you gave us ,I wish I could watch ur vlogs long time ago I would be taking less tentions and stress nd getting depressed 😭,because only mothers like u and me who knows what means to deal and handle autistic kid,,you r heroine 👍😊
It is very exhausting to fill all that paperwork out. I'm in the middle of doing it right now to get my son into ABA therapy and speech therapy. And ABA is funded here in America. I live in the state of Indiana. I believe there was 20 different insurance companies that fund ABA 100%. And Medicaid which is the government paid health insurance here in America also funds it 100%.
Hi very informative thank you just a quick one I'm in South Africa and medical aid doesn't really cover much still finding my feet would like to understand when you started sending Dylan to speech therapy my son Mason just turned four and is currently in play therapy what readiness should I look for?
speech therapy can start very early on its not just about speech its self but communication. even babies communicate through crying so i think start as soon as you can xox
We have ABA in USA but depends ón where you live at how much therapy you can get. Florida has the best I think. Look up fathering Autism. Never heard of play therapy here though. Love your videos ♥️
My child has been diagnosed HFA at age 6, since he is smart and does things as instructed, his diagnosis at an early age was a miss! I have been redirected to Autism intervention team who might suggest ABA therapy, speech to come later though. I want to know how long the therapy needs to be done and will be continued lifelong!?
I need help . My boy is now 15. I have tried to get him helped and I was very I'll so I couldnt fight for it. He has all the trates. Hes so angry and miserable and misunderstood. I feel like I have totally let him down. I dont know what to do. No one would listen to me. All my kids are autistic but only has been helped. And that was having social involved for years which made life hell.hes going to college soon and I'm terrified for him. He explodes and loves adrenaline rushes and he gets pushed into dangerous situations but others. I'm scared he will get hurt
Oh darling that’s hard. Have you tried cbd oil? It’s great especially for older kids. Also have you spoken to the mental health charities they might be able to help give him some support and help mentally. So hard 15 they also have raging hormones too. Does he like swimming or trampoline ? X
@@ComingHometoAutism thank you for replying. I will try the oil and see if he likes the swimming. It's hard in this time as the pools are normally shut but I will try and sort it out soon as the lockdown stops. Thanks for the options. It gives me something to work with instead of being totally powerless
Thank you. Wishing you all the move into new house 🏠 it will be worth it 👌 what app do I download load on ipad to hear my boy 👦 Jack with his speech 💬 because as you he is non verbal only uses words, comprehension and reading and spelling very good 👍 numbers never got them.
To help my boy Jack 👦 💙 this predicted text can be a bit of pain sometimes. What's the name of app to download 👀 🤔 for speech because he pinched me yesterday because he could not communicate! Thanks again Tara. I'm in awe of you 💓 and your family 👪
The app we used is now not working you can use nursery rhymes and also phonics apps. There is another app which we are using at the moment do you follow me on Instagram? I’ll be putting on there as well as posting on my community wall later this week thanks x
You are absolutely incredible, as someone who is just starting the process I can’t tell you how much your videos are helping ease my anxiety! You are an inspiration and a fantastic role model, thank you so much for taking the time to help others..... all you ever hear is the “bad stuff” you have no idea how much you’re helping us worried mums ❤️ thank you
I’m so happy they help x
I totally agree. Her voice is therapeutic and she is really giving us the meet and potatoes to this process that is so difficult. Thanks Tara
I contemplated ending my life today but after watching your videos it gave me hope and inspiration to being a better parent. My daughter was diagnosed with autism two years ago and as things get harder I feel more and more heart broken and just can’t cope anymore. If anyone feels like they have no desire to live anymore because they feel they're not enough remember I also feel this way and you’re not alone but everything you’re feeling is false. You are ENOUGH! There is no better parent for your child than you. There is a light at the end of the tunnel even though you’re tired of waiting and it doesn’t feel that way. You will see the light just keep swimming.
Thank you for your honesty and sharing your feelings. You are helping others by being open about your own struggles.
You are right about so many things you’ve shared, especially: You are not alone!
Wishing you and your child the very best life. ❤
Amen! God loves you and knows your enough for your child! Stay strong! ❤❤❤❤❤
I cried because this is what I feel most of the time thank you this touched me so deeply
I understand you, you are not alone.
Caring about needs, loving, and wanting the best for your child is beyond enough...it is amazing!
Thank you so much for being a great mom first of all. But also for helping other moms through this journey.
please check Mark Hemans UA-cam channel / autism healed
Thank you for being so down to earth. At this point we need help. Your transparency is much appreciated!
I appreciate that!
I’m on the hunt for different therapy options for my 3yr autistic son and these were very helpful! In the US we have an early interventions through a program called BabyNet. Down side is it’s only until they turn 3yrs old. I’m contemplating the ABA thing. Heard so many mixed reviews more bad then good but I guess it’s worth a try and we can always stop it if we feel lots not a good fit for him, This is my personal take but I’m sooo glad you’re not doing the Shaman thing. Stuff like that along with the crystals and sage are dealing with ungodly spirits that we don’t want to invite in our homes, lives, atmosphere, etc. I get it we’re all desperate to help our children but not at the risk to something that can destroy us mentally, emotionally and especially spiritually. No judgment! Just sharing. Thanks so much for the helpful info and blessings to you guys!
I love the way you are helping so many families Tara. So amazing xx
Thank mama
Thank you, amazing and so helpful as always. I couldn't stop staring at the GORGEOUS view outside your window. Love love Autumn ♡
Me too 🍂🍂🍂🍂
We live in America and my daughter is 12 HF but still very autistic (which I feel like I shouldn’t have to say but here we are). We do ABA and just like she said the first few sessions were hell and meltdowns were hard. BUT she is starting to have many successes (we’ve been doing it for about 9 months now) and her flexibility has grown by leaps and bounds. The social aspect has been harder because of stupid Covid and we can’t have group therapy for her to practice in social sessions but we are hoping to have some of that soon. If your child suffered with any milestones, or needs more flexibility this will be great for them!
My son is is 2.9 years old n we are also starting him speech therapy from next week. Am waiting for him to call me mamma... Am so hurt n broken. The stress pain... I can't say in words....
I don't have words.......... You are perfect mom in the world. God bless 🙏
I am so great full for this video. My son just get diagnosed too, I am crying every day.
My daughter is in a special school and gets speech there but we are getting her a formal assessment next month for a full diagnosis for more services!!!
❤️
Thank you for your videos. I’ve been watching them for the past year since my son was diagnosed at 2. My heart shattered when he was diagnosed even though I knew he had autism - it was like I was holding on to this tiny shred of hope that flew away. I experience a lot of grief, namely because I don’t know what to expect for the future. Will my child be potty trained? Will he graduate high school? Just like you my concern is about his ability to be independent when he gets older and I’m no longer around. I don’t care if he prefers his own company or doesn’t participate in family events (though I’d love it if he would) my biggest concern is his independence and that he is able to be content and make his needs and wants known. I’m so emotionally and mentally drained because I always need to be “on” in order to teach him and I worry about time running out - that the window for the best result is closing and he still hasn’t reached certain milestones.
You are an amazing loving mom, thank you for sharing this video, learned a lot🥰👍 my son is in aba therapy here in USA , 1hr 30 min 5 days a week , he is 23 months old, hopefully it'll help him to do better as well
Did you need a diagnosis before you could send him?
@Dr Yuching Lee lol what is normal?
Hi Joy, my son is about to start ABA therapy here in USA. He is 3 1/2. Did you see much difference since your son started?
You are a blessing! I have a 13 year old in the United States. We just started the UCLA PEERS 16-week program. UCLA will bill insurance but there is a co-pay for both the parent sessions and the student sessions. Although UCLA created the PEERS program it is available around the world.
What did you think of the PEERS program, was it beneficial???
Our son also walk on tiptoe before he was diagnosed and it fade eventually. We go to occupational therapy here in the Philippines once a week for 1hr only and he never had speech therapy becuase of availability. So what we did is we do a follow thru at home.. He also loves swimming 😊
Your videos are amazing. Good advice for filling out the forms about their worst day. VIDEO REQUEST: Massage technique for stretching their feet.
Thank you so much for this video! God bless you and your family loads! Going to order your book now!!
@Dr Yuching Lee Who is Doc Oyalo?
Thanks for sharing. Very helpful for our family.
Thank you so much for sharing this! Very helpful . Your son is lucky to have you :)
Thank you for another great and informative video. In Israel, 2 of my kids go to specialist nurseries for ASD. They get 14.5 hours if therapies a week here.
That’s awesome thank you x
Thank you for doing this. It is a huge help not just for parents but also for carers. :)
Thank you for sharing your story! God bless you and your family.
Thank you so much for these videos. You son reminds me so much of my own. You've given me so much hope.
Godsend 😇 Much love and congratulations for all the effort and your results~~
We are in the USA and through my husband job insurance it covers all types of therapies for our four year old boy we get 40hrs a week of no cost to us of aba therapy, ofcouse we don't use all the hours because it is way to much for our child and our selfs, currently we give him about 20hrs a week and he also does speech and occupational therapy. I think my husband pays like $60 every two weeks for a health insurance for a family of 4.
In the USA if you do not have a job or are low income you qualify for free medical which I believe pays for all the special needs therapies they may need.
Thank you so much for this lovely video and I know what is like to be your son because I have ASD and I hope you keep making more video.
Please do a video on whether screen time has anything to do with autism
You are an amazing mum. I watched the full video & got so many helpful information.
All this therapies are very interesting, what about diet supplements and biomedicine? Did you do anything like that?
Thank you that your helping that it's not me just being a terrible mummy. I have been told that for so long by social.
Your a great mum don’t let anyone make you doubt that . Your trying your best x
wow having speech therapy everyday, such a luxury in my country. great programs you have there.. in my country, in the EIP usually we have only OT, and usually only 3 hours/day, and it also is very expensive for many of us in this country (private, pay with your own money).
We have government school that can accept special needs children (free/minimum pay) but no therapy provided there. There is only 2 government institutions for 4-6 years old with therapy, but the waiting list is very long.
At least there are places we can send our children especially in city areas, so we are still grateful. For those living in rural areas, they have it harder..
I know this hurts my heart. which Is why I have a few videos on speech therapy and OT to try and help. I want to help get this information to everyone . Everyone's a right to this. I am sorry that it's not easy for you. x
Hoya Tara I used to use specialist cutlery also I love swimming as well when I went away with the fam a few weeks ago I booked myself into swimming everyday it really Calms me very interesting Dylan finds it the same way. You are very right you can’t put children and young people with SEND in a bubble as it’s not real and that bubble will break when they grow up into teens and adults. We had a Play therapist when I was having my ops even at the age of 12 it helped as it was someone to talk to also children in need fund these I had help from children in need.
Dear Olivia. At what age have you started swimming???
In New Hampshire USA we've been doing aba about a year. My son will be 3 in a few weeks. Hes in an early supports program. They provide a speech and occupational therapy and contract out a behavioral therapist. Everything is covered. Since covid happened everything moved to zoom and has been a nightmare. He was getting at home services 5 days a week and now he's only getting 2 days a week for only 30 mins on zoom. Now he's gonna be going to a special ed preschool but because of covid can only get a day. But we will be continuing the behavioral services 5 days a week now hopefully at our house. We r gonna try to see if we can get private services ontop of what we r getting cause we know he needs at least something everyday.
Thank you so much for sharing . It’s been so hard over this whole covid thing hasn’t it x
Yes this has been a complete nightmare for us since March. This week has been the worst for us. Since Monday my son all of a sudden has become hyperactive and is chewing everything in sight and constantly just wants nutrigain bars. He was never like this before. Only time he would have energy would be him running back and forth and the chewing everything in sight stopped when all his teeth came in. Hes a picky eater but wouldn't refuse any of his foods that he likes in front of him. Hes also sleeps better than me. Today he was up at 4am and wouldn't nap. We reached out to his therapists and pediatrician so hopefully they have suggestions. Im hoping its just a phase and can't wait until he can finally get in person help.
Thank you so much for such helpful information and being so straight talking about everything. Honestly, you deserve an OBE or some sort of Award, as your advice is priceless and from hands on experience. We are still waiting after 6 months to see pediatrician for diagnosis of our little one, as you say it is hell in this waiting period. He also has weakness in his legs and no one else has mentioned about the Achilles heel, etc. and to massage, as you said. Thanks so much.
Oh bless you thank you so much your just so lovely x
came across your video,love this explanation n as im so new to this,my toddler just got diagnos and im trying to learn more about it,thank you,
Thank you very much. I’m in London and waiting for formal diagnosis for my son.
There are all types of conventional therapies for Autism - play therapy, Speech therapy, occupational therapy, ABA therapy and other sensory activities. Most important therapy is prayers to God, who created the child in the womb is also a a source of healing, peace and happiness. I also play Quran recitation from UA-cam which is very calm and is melodious in nature.
In the US there is a lot of controversy over ABA therapy. It is said to cause PTSD and can be harmful in the long run. I don’t know if this is true or not but just the fact that there is controversy and there has been some autistic adults come out to say how bad this therapy was for them i will not put my son thru it. Parents do your research first. If it works for you great but it’s not for me.
Absolutely it’s actually down to the therapist as well I think. For us it was really gentle and Great for helping him put shoes on in a fun way x
This is the same thing I was thinking after I heard that story about the girl who went to the computer and typed the words help during her ABA session. I think her name is Carly.
ABA's principals are just basically dog training for kids to make them act neurotypical. In later years therapists have brought in more elements from good therapies such as occupational therapy and speech therapy, and just saying that it's part of ABA when it isn't. It was made by the same guy who made conversion therapy for homosexuals, which again is absolutely awful.
And yeah, a lot of people who have been through the supposed "good ABA" have come out saying that they've been traumatized and that it did lasting or permanent damage to them. It hurts me a lot as an autistic that I see so many people (typically in the states, where it's covered by insurance) talking about how their children are going through ABA and them not doing enough research, or not having any other option, and just taking places like Autism Speaks' word for it that it's helpful. The basics are to make the child not do the "undesired things that autistic kids do" while not realising that there is a reason for everything.
Every therapist is different, of course, but the good parts of ABA are just other therapies that have later been applied by ABA as well, so it's better to just do things like occupational, and creating a safe and supportive environment the autistic at home and at school or work etc. Therapy isn't gonna replace being treated inhuman other places.
This is the ultimate therapy that works on everything, but it is done by faith in Jesus as the Son of God. Go to your Bible book store and purchase a small bottle of anointing oil. Take it home, hold it up and ask God to anoint it in Jesus' name. Then every morning and night before your son goes to be and then wakes up in the morning, pour oil in your hands, lay both of your hands on his head and say exactly these words, " in the name of Jesus Christ, I command you to have a 'new brain' !"
This therapy is not limited to autism, but covers alzheimers, brain injuries, and anything in between. Gradually, you will see a difference. Don't stop and don't give up. I have heard of many healings that occur when people invoke the name of Jesus. He's still healing today because His name is above every other name.
You truly are extremely helpful, thank you for all your great advice!
Just last week I diagonised my 2.9 year old son they didn't yet confirmed he is autistic. Bcoz due to lockdown we didn't go outside much n didn't interact with children also therapist told us that this might be bcoz of less parent child interaction. He is not started talking n does repetitive action more sensuous to sound also not potty trained. From next week we are giving him speech therapy first. I hope my son becomes normal n talk like other children. Am so hurt n broken now.
This is very helpful. Our daughter was diagnosed at the age of 10. It would be helpful to know if any of your friends have daughters that have autism and diagnosed later in age. We have started horse riding and she lives it we also bought a dog and the meltdowns she had has halved. Swimming is also a great help to her we go to a autism Swimming session weekly. I've found these have helped her so much 💖
This is very helpful and realistic. Thank u
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Love your videos! You help me so much reassurance that my child will be ok
Thank you beautiful x
Thank you for updating all your past journeys u helping us allot of parents , I would like to know when delen stop tip toe walking and what help him to stop. Thank you
Yesss..I 've been waiting for this video for so long..thank you for the information..we love you so much..
Ah thank you so so much xox
Thank you so much for sharing the really helpful information.
thank you so much for all the helpful information, im new to your channel but i am also Autistic from the UK i really appreciate a parents perspective as you are the ones who know us best. Im excited for more of your content.
Thanks so much x
Please check Mark Hemans UA-cam channel / autism healed
USA Early Intervention is 0-3, your child does not need any diagnosis for EI or play therapy, speech therapy, occupational therapy, ABA therapy(can be covered about health insurance), nutritional therapy. As you said, please do not be scared of an autism diagnosis, you can get more benefits such as a daycare/nursery that specializes in assisting non verbal schools.
I'M in America and my 4 year old boy was just diagnosed with autism, i'm going to look up this ABA your refering to
Rene went to little Hillbrook last academic year! This year I opted for Paddock! Ps. I had pause so I can write
That is awesome!
Here in the USA insurance covers ABA. Luckily my son's OT, Speech and ABA are all covered. Thank you for all your advice.
You mean YOUR insurance covers those therapies. Not all insurances in usa. I don't want people to be confused about the american healthcare system
@@fungamesandstories YES MY INSURANCE COVERS
Dina what insurance do you have im trying to find on here in 🇺🇸 that will cover all this for my daughter?
@@fungamesandstories No. Most states have mandated coverage for ABA and major insurance covers it now. My son has had ABA for 3 years now and has been covered. There are out of pocket costs but the majority is covered. They also cover unlimited OT and Speech if its autism related.
thanks a million for all your videos👍 thanks for sharing your experiences and being so open! ❤️ you’re a lifesaver 👏👏👏
My daughter get ABA Mon-Friday from 1:30-6:00 and she goes to school from 7:55 -1:00 where she gets otd , speech and PE 😊, she is 6 still not talking 😣 working progress , but we are almost potty train 😊 .. from the USA
Same here ... looking for ideas on how to get her conversational
@@manichatt I’m too and now she is pulling us to where she wants us to go or give her but she does get frustrated whenever we can’t understand or get what she really wants more the usual now. Really praying for things to get better and her to take soon.
Great video. So you know there are a number of local authorities funding ABA therapy here in the UK . Our ABA therapist works with a number of children that are been funded by the LA. The parents requested it however were declined but after an appeal was made they managed to get it through. I have an appeal going through currently and using a specialist solicitor for this process. Will let you know how it all goes
That’s really great advise and Information thank you for sharing x
My son’s ABA is funded by West Sussex. We started it straight after diagnosis at 3 privately. We gathered data to support our application for it to be included in his Ehcp. We of course had to engage a lawyer to help us through this process and we’re Successful. It’s helps if you can prove ABA results ours were supported by both the nursery and Speech therapist who teamed up
With ABA tutor for support to manage my son’s avoidance behaviour. Good luck.
@@shamilaadam-march6098 Hi Shamila, i have currently applied for the ECHP. Can you give me some info on how to start the ABA process? Do I need to start with privat ABA and then put it through for funding? I’m at a very confusing state right now, any help will be greatly appreciated.
Thank you
@@zohrahammad3247 unfortunately you need evidence that ABA is working and making a difference. Even with the evidence be prepared to go to tribunal. So get yourself a good lawyer. We did ABA privately for almost 2 years plus we had private speech therapy. We managed to produce evidence on how we used Aba tutor and techniques help our son access learning by supporting both the nursery and Salt. We provided a tutor to assist these professionals to help manage is escapism behaviour which was making it impossible for them to do any sessions especially Salt. The other challenge is finding a school that is open to aba. The special needs school around our area do not aba they have other therapies. So it also depends on where you would like to send your son will depend on the route you should take. Aba works differently for different kids. Try it privately to see if it’s the right fit for your son before embarking on this battle.
Thank you for the lovely information x
When they acess your child though in person they sometimes only see the good side in experience because parent put in a lot to maintain their child or prevent triggers ect - so it can appear that the child is not in need of such great support because the challenges are not always glaring because your always trying to avoid those worst moments ect
But then you put them in a school and then the child can ‘act out’ and then the school will wonder why
And my personal experience was that they don’t listen to what you want in the ehcp unless they see it for themselves - and this process can put your child through unnecessary stress unless you have a very good LA
Hi really good informative video can you share details of ABA therapist you used please?Thank you
Thank you for your help. I'm the grandmother of an autistic 4 yr old boy. I was the one that took him to the doctor to be diagnosed his parents, his mom particularly were ignoring the signs. Now that he has parents have been given the tools to help him they do not do any of it and his mother ignore the teachers giving her instructions. How can I help him when we all live together and she interferes with his trying to be helped from me?
Great video and thanks for all the information. It would be amazing to see a video just on Rosie at some point-how you decided on the breed, the training she will need, etc. Maybe once you are a bit further along with her. Thanks 😀
Absolutely x
Yeah waiting period is jus like🙄🙄....Thank you ❤️❤️
Sending hugs
Thanks you so much and helpful information you are amazing mother
Thank you x
I love this Ma'am. Thank you for sharing your journey.
Thanks for watching!
Hey,
Thank you a lot for that informative Video!!
Do you have a Video where you explain the foot Stretching/Massage?
Thank you for making these videos. Thank you Thank you
My pleasure!
Great video ur my inspiration dear luv you alot m Indian but I watched ur video m so happy to see uh everyday .luv you
I live in the US and my kids did receive ABA therapy for free through partnership Healthcare
This is such an inspirational video. I am based in USA and my son is referred to First step last week and he is showing signs of autism. I was depressed and crying since last week till i see your video and i feel hopeful now. You are a great Mom. Kudos to you and to your family
Last week I also diagonised my 2.9 year old son since he was not talking. Also there were symptoms of autism. But doctor didn't confirmed it's autism bcoz due to lockdown n covid we didnt go outside much n had not interacted with children. Also doc told that this might be also due to less parent child interaction. I hope my son talks like every other kid.
Hi sowbhagya this was months before when we had doubt i was unnecessary worried about him now he already has about 500 words he talks fine interacts with us has great eye contact and reaponds to his name and all now I don’t see any signs of autism
I live in America and we have early steps early intervention that will help families get diagnosed
Thank you so much, your help is worth watching 💜
That’s so lovely of you to say thank you x
Brilliant help at this time the twins are not talking at 28 months one of the twins Stims so just waiting to be assessed
Same here
You are a great mother !!!! 💓💓💓
Thank you!!
Thane has a theopy cat. He calms him down. Free from system here in Ontario Canada.
Thanks so much for your help I rely on you for help with my son
Happy to help
ABA is covered in all private insurances and state funded insurance in the USA
Loved your video. Did you live in London during Dylan’s early years? Because here in London getting speech therapy 4 times a week in school is a dream. My son is 5.5 Years has ECHP plans but still isn’t getting any kind of therapy. He got one speech therapy and one Occupational therapy last year. We are giving him every therapy privately.
Tried to get some help from council but school didn’t like it. Don’t know what to do. Feels like leaving London . Not getting any help. And therapies are expensive.
We did live in london in clapham and then Wimbledon we moved for the same reason to Brighton and then to dorset x
Thank you for your video, it is so helpful. Can you please suggest me any Aba therapy centre in UK? I’m interested for my 3years son.
Thank you learnt a lot again . Always learning 🙂🙂🙂🙂🙂🙂🙂🙂
I wish I could get some free services. Since my husband makes over 90k a year we have to pay 100% for speech, in home services or any service for that matter. We are starting 30 minute sessions once a week on January 4th. They only offer once a week where I live for in home therapy.
I'm so confused and feel so overwhelmed with everything. I feel like I can't find or get the proper help. My daughter is 2 1/2. I started to seek help when she was 18 months and I've only accomplished having someone come once a week and being charged. I see so many 2 year olds on here getting so many services. I think it is absolutely ridiculous that parents with a special needs child have to pay out of pocket at 100% for any services to help their child. It should be free regardless of how much you make.
Thank you fir you helpful videos and all th informations you gave us ,I wish I could watch ur vlogs long time ago I would be taking less tentions and stress nd getting depressed 😭,because only mothers like u and me who knows what means to deal and handle autistic kid,,you r heroine 👍😊
Great video.helps me a lot
What books did the play therapist recommend to you?
I live in Sussex can you please recommend a specialist swimming instructor. Thanks
If you google swimming teacher for special needs some will come up. The lady we saw has now stopped x
Thanks so much. This is so helpful x.
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It is very exhausting to fill all that paperwork out. I'm in the middle of doing it right now to get my son into ABA therapy and speech therapy. And ABA is funded here in America. I live in the state of Indiana. I believe there was 20 different insurance companies that fund ABA 100%. And Medicaid which is the government paid health insurance here in America also funds it 100%.
Hi very informative thank you just a quick one I'm in South Africa and medical aid doesn't really cover much still finding my feet would like to understand when you started sending Dylan to speech therapy my son Mason just turned four and is currently in play therapy what readiness should I look for?
speech therapy can start very early on its not just about speech its self but communication. even babies communicate through crying so i think start as soon as you can xox
We have ABA in USA but depends ón where you live at how much therapy you can get. Florida has the best I think. Look up fathering Autism. Never heard of play therapy here though. Love your videos ♥️
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Hello Tara I’ve been thinking bout getting a weighted blanket but not what price what to look for. I see John Lewis sell them.
hey there yes there are lot of options out there also dunelm sell one thats £30 pounds i think. they dont need to be expensive to work x
Thank you so much for sharing this video. Here in the uk how can I get ABA therapist or play therapist please?
This one is really helpful
Love the video! And I can't wait to see a house tour of your new home!
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Tara, which part of city
are you living in UK? In Birmingham not much help
“For a life beyond us” .....yes.
My child has been diagnosed HFA at age 6, since he is smart and does things as instructed, his diagnosis at an early age was a miss! I have been redirected to Autism intervention team who might suggest ABA therapy, speech to come later though. I want to know how long the therapy needs to be done and will be continued lifelong!?
Excellent. Thanks 🙏🏽
Great video thank you
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I need help . My boy is now 15. I have tried to get him helped and I was very I'll so I couldnt fight for it. He has all the trates. Hes so angry and miserable and misunderstood. I feel like I have totally let him down. I dont know what to do. No one would listen to me. All my kids are autistic but only has been helped. And that was having social involved for years which made life hell.hes going to college soon and I'm terrified for him. He explodes and loves adrenaline rushes and he gets pushed into dangerous situations but others. I'm scared he will get hurt
Oh darling that’s hard. Have you tried cbd oil? It’s great especially for older kids. Also have you spoken to the mental health charities they might be able to help give him some support and help mentally. So hard 15 they also have raging hormones too. Does he like swimming or trampoline ? X
@@ComingHometoAutism thank you for replying. I will try the oil and see if he likes the swimming. It's hard in this time as the pools are normally shut but I will try and sort it out soon as the lockdown stops. Thanks for the options. It gives me something to work with instead of being totally powerless
Thank you. Wishing you all the move into new house 🏠 it will be worth it 👌 what app do I download load on ipad to hear my boy 👦 Jack with his speech 💬 because as you he is non verbal only uses words, comprehension and reading and spelling very good 👍 numbers never got them.
All the best 👍 sorry 😞
To help my boy Jack 👦 💙 this predicted text can be a bit of pain sometimes. What's the name of app to download 👀 🤔 for speech because he pinched me yesterday because he could not communicate! Thanks again Tara. I'm in awe of you 💓 and your family 👪
Dylan lot of luv you babu I want to meet uh dearest but I can't God bless uh .
What was the speech and language app you mentioned you used ?
I'm still waiting Tara for the name of app to download, to help jack with his communication via his ipad. Thank you in anticipation. Teresa
The app we used is now not working you can use nursery rhymes and also phonics apps. There is another app which we are using at the moment do you follow me on Instagram? I’ll be putting on there as well as posting on my community wall later this week thanks x