living with liver disease, dealing with ascites "the worst part in my opinion "
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- Опубліковано 20 гру 2023
- living with liver disease, dealing with ascites. What I did to help with it and the symptoms I noticed.
#alcholic #alcohol #alcoholfree #alcoholism #liver #liverdisease #narcotics #pancreatitis #aa #cirrhosis
good day! middle of day 11 here. and i told you i would get back to you, once i got back from the Dr. great news! based on my lab results, and a physical exam, the Dr, who is an addictions specialist Dr, and is filling in for my regular GP, whos is on Christmas holidays, and did an exam, and i do not have ascites, nor any other indicator of liver/kidney damage. he told me to stop worrying, and stop looking at WebMD and sites like that. so, a clean bill of health. this not diminish my resolve. i will NEVER drink again. this is the biggest wake-up call of my life. i have been praying so hard, and maybe God reached down and helped me out. and thank you for your prayers, sean. blessed.
Wow!!! Thank you so much for getting back and letting me know!!! I am so happy for you!!!! That really makes my day! Thank God that you are ok! Yes, I wouldn't drink again either. Good for you. Keep up the good work and it looks like you have a fresh new start. Well... you enjoy yourself a celebratory non alcholic beverage! There are tons out there. God bless!
Wow! Excellent news from the doctor. I hope that takes the massive weight off your shoulders knowing your organs are doing well. Take care. Stay on the sobriety train this holiday season. IWNDWYT. L.P.
@@liverdisease-qb6rkI was sick for a year. I couldn't get doctors to help me. I couldn't get sleeping tablets for 10 years and it made me sick. Drinking makes me realy sick now. I've been feeling fine for 4 days now. The longest I went with out sleep was 14 days.
David, You and I quit drinking around the same time! I agree with you. I don’t ever want alcohol around me ever again! This has made me sicker than anything that I have ever been through before. Congrats 🎈 on your clean time now! Take good care.
My friend just got out of the hospital with ascites! Another friend dying from Ascites/ liver cirrhosis! Devastating! Thanks for another important video!
Thank you. I'm so sorry to hear that. God bless!
While I've made the personal decision years ago to not drink anymore, I wish party drinkers and those that think alcohol has no consequences could watch your videos. I know so many in the restaurant and bar industry and my heart aches for the friendly regulars who drink every single day. I pray your videos reach those that need hope and help. You are healing yourself with these videos and a side effect of that is you are helping others. Hang in there.
Thank you for this. Yes.... I have known so many people over the years that were the daily regulars that are no longer here, the " I only drink on weekends " people who are no longer here, it's really horrible what alcohol does to our society. I think we all start out... partying. Then it's not fun anymore. God bless!
Such a shame, isn't it, how people, almost ubiquitously in society, believe alcohol is a no consequence sort of thing. Ever notice how when people talk about drinking in daily conversation there is always laughter in the conversation? As if it is fun, or no big deal, or not THAT bad for you. Especially young people. It is a HARD drug and has serious potential to really mess you up later, without you knowing until it has gotten too far.
I did the same. I wish ppl I know would watch these videos too.
As someone who got sober 6 years ago, I have a big appreciation for your videos. Not only do they keep me honest, but it’s going to help out a lot of people who are hooked on alcohol. It will help educate them on the real dangers of alcohol and even give them some hope. Respect.
Thank you so much for say that, and congratulations on 6 years. That is no small feat at all. You should be very proud of yourself. Thanks again! God bless
Thank you so much for doing these videos. I've been watching my brother go through this for the past 4 years, but one of his symptoms ended up being liver cancer and he's almost gone. I've been looking for resources online about his condition just to try and understand what he's been going through. I know your videos are going to help a lot of people, thank you for doing these!
It's these kinds of comments that keep me going. Doing this takes a lot of time, I try to get to all the comments. Sometimes I get really negative comments that just wear on me. But.... it's the people like you that tell me how much they help that keep me going. Thank u so much! God bless!
And I am really sorry to hear about your brother. I really am. It's not a glamorous way to go by any means... i hope that he is at least pain free now. God bless
My sister was diagnosed with cirrhosis in January of this year. I have been doing the same as you, to learn about what she is going through. I found this on UA-cam and I have been watching since then.
Your channel deserves more views and subscribers. You are doing gods work, helping a lot of people. Have a blessed day.
Greetings from Australia. I hear ya brother. I'm going through right now what you described. I'm 65 and have been a big drinker for 50 years. Beer in the beginning days and over the last few years my drink of choice was Port. Morning, noon and night. I'm surprised I lasted this long. Anyway, I've also had a big belly for ages so I wasn't too concerned when last November 2023 my belly started to explode in size. By early January I was in hospital with ascites and had 15ltrs drained. I'm now back home on the road to recovery. Your diet advise is exactly what I was told. Full-on protein, high energy, low salt, keep fluid intake to 2 ltrs. I had a giggle when you described your weight loss. I knick-named myself ( Skeletor ) due to all the weight loss around my face and upper body. I'm slowly getting back into lifting some weights again and getting on the push-bike. I've been 7 weeks sober now. It's hard but necessary............ Looking forward to your new updates. They give us all hope when things look glum................... God Bless You.....
Hey there in Australia!!! I'm so sorry to hear that you are dealing with this too. 15 liters!!!! Jeewizz! You must have been sooooo uncomfortable! I'm so glad to hear that you have stopped. It does get better, just hang in there. You are doing exactly what you need to do to get better. Tons of protien shakes. I know how hard it can be to eat, especially with the ascites. Thank you for being here! God bless
I am just so so very sorry that you’re having to deal with this ❤
Thanks for this. I announced to my family over the weekend that I've entirely quit drinking. This is thanks to your videos.
Thank you for your videos!
You are welcome! Thank you for watching! God bless!
This is an Excellent Video!! Thank you so much for sharing this one. I’m experiencing this now and it’s very very painful and I’m dreadful. Take good care of you.❤
A guy that sang for Skid Row by the name of Johnny Solinger just died from this. I'm a heavy drinker myself, currently on the wagon. I really appreciate these videos and I thank you for documenting all this, they do a lot of good. My best to you and your family, you're a true survivor
Thank you! I really appreciate you watching! God bless
Glad to hear you are on the wagon too!!!
Thank you for sharing your story. You’re helping more people than you’ll ever know. Have a blessed Christmas! Much love to you and your family!
Wow! Thank you! That means a lot! God bless and merry Christmas!
Thanks for sharing 🙏 Prayers for your healing ❤️🩹 Enjoying sharing in your journey.
Thank you again!!!! God bless!
This is a great video and you answered all my questions. I will follow up with my doctor during my physical. This will be such a good resource for people to help aware of long term side effects of alcohol usage.
Thank you. I'm glad that I was able to answer your questions. Are you having problems with ascites at the moment? If you are .... I am so sorry. I know how horrible it really is. I feel for you. God bless!
You are a good young man.. keep the faith my friend.. sounds like you have it already in the father, through the son by his holy spirit!! Thanks for your brutal honesty..just came across your video for the first time!
You telling your story is really going to help alot of people and wake some people up to the facts of the seriousness of drinking because alot of people don't think about this when they are drinking and not sick yet. It's hard to watch a loved one suffer because what it does to you is horrible, and once it takes hold, it can kill you fast if you dont stop drinking. 😞
Thank you so much for this. It really is a sneaky and horrible drug for what it does to people and families. Thank you for watching and for the comment. God bless
Thank you for doing a video on ascities.
You're welcome! Thank you for asking! God bless!
Your info is magical 😊
That's so awesome of you to say!!!! Thank you!!! God bless!!!!
Thank you for sharing , your a blessing to us all. God Bless 🙏💖.
Thank you so much! God bless!
@@liverdisease-qb6rkAlways welcome. Sending prayers and blessings to you and yours, have a good day. GB 😊🙏💝.
Hey bro thank you for another video. I am a struggling on this holidays
Hello! You are welcome! I'm sorry you're struggling. Anything I an do to help? God bless!
Thank for responding family live out state only me and girlfriend
@onellmonjarrez3295 got you. Sorry to hear that. I hope that you have a great holiday! If anything.... you do not, I mean do not, want to end up like me! It's not worth it! God bless!
Thank you. I really appreciate
Lots of people are so preoccupied by their own insecurities that they have no energy and no time to notice your flaws.
Have a good day brother been really busy these past couple of days but I’m still here
That's what's up man. Thanks for still being here brother! God bless. Being busy is really good!!!@
My sister was diagnosed with acute liver failure, got jaundice and had acites, they took off 30 pounds of flluid! She is now on furosemide and spironolactone (diuretics). She was diagnosed in January and is doing okay, but has to go to the doctor all the time now. She had esophageal varices and had to have banding, as she was vomiting blood. Alcohol is poison! I pray my sister keeps doing okay. She totally quit alcohol and is on a restrictive diet and fluid restriction. My sister had horrible back pain right before being diagnosed.
I hope she's OK! Not everyone with liver failure even uses alcohol, however. Some have genetic disorders, such as Alpha-1 antitrypsin deficiency, hemochromatosis, hypercholesterolemia, Wilson's disease, Berger's disease, etc.
Some of these are genetic, and people can have some or even all of these. I have 4 of 5, and my liver failed. Now, I'm just praying I don't need a liver transplant.
I hope and pray that she recovers
Awesome video just starting my journey with medication and changing my complete diet.
Thank you! That is so awesome! Keep me posted on how you are doing please. I would really like to know. God bless
@@liverdisease-qb6rk Will do brother, as far as protein drink that was your whole meal?
@VikturGrand yeah, I drink 3 protein shakes a day and have one meal. I have a really hard time digesting food right now. Hopefully here soon I won't have so many problems with it. I have a lot of problems with my pancreas and they are working on getting it right. I have another ercp in a month. Thank you! God bless
I had never heard of this, and I’m 62. Another reason to quit alcohol. Thanks
Thank u for watching and for the comment! That's awesome! God bless!
Thank you so much for your informative videos. I have been diagnosed with end-stage liver disease for the past 5 years and have been thru many of the same problems from cirrhosis, especially ascites. Almost died from throwing up blood from esophageal varices. I take a lot of the same meds. My weight has fluctuated between 118 to 134 lbs because of the fluid. I am going thru a bad bout of ascites right now. In January I went to the ER twice, only to be told they could not help me and also had 2 painful paracentesis procedures at interventual radiology that did not help the bloating and pain. The small amount of fluid removed from the second procedure was cloudy and might mean an infection (haven't got test results yet). Getting frustrated and depressed with the care I'm getting. I will try some of your suggestions and hope for the best. Wishing you the best and look forward to seeing more of your videos!
I'm really sorry. I know exactly how you feel. I hope that some of the things I have gone over in these videos help you. Keep me posted please! God bless
The diet is exactly what was recommended for my husband. The sodium in food is eye opening! He had ascites but it was well controlled with diuretics and never had to have it drained off.
Yes. There is so much sodium hidden in foods. It's really scary actually. Some things I would have never thought would have it in them. Soda for example... never would have thought, and never once looked. Same thing with carbs. Until I had diabetes I had never once in my life looked at the amount of carbs in anything, soda again... eye opening!
Acites is horrible my LO just got 3 liters removed 2 weeks ago and now she is filling up again! So frustrating. She can’t breathe and her pain is horrible!! But these doctors in New Jersey treat you as a meld score!
Jersey girl can definitely drink. I hope your friend is doing well.
Hey well done on HEALTHIER EATING THOUGH! ITS ANAZING HOW THE BODY JUST KNOWS WHQT IT NEEDS IN NOURASHIMENT AND REFRESHMENT!
Thank you! It really is amazing! God bless!
Happy holidays.
From Leonard. 😊
Happy holidays to you and yours as well! God bless!
Nurses know their stuff! They are trained very well and some are even practitioners.
Appreciate your sharing my friend..will milk thistle help you?
Awe bro hope you're doing good today the doktor gaved my results .
Hey! Doing good! What did you find out?
@@liverdisease-qb6rkhe said my my liver score was low like the enzymes and the other stuff but I'll get the numbers tomorrow then I will show you and yes he did a urine count or something he said that looked fine to I thought I had a problem cause I have spider engiomas on my chest and the say it can indicate liver disease but it seem like everything is fine he said the spider stuff can be caused by being in the sun allot .But you still gave me an eye opener and from now on I'm going to love my liver but I'll chat with you later on its past my sleep time its almost half past one in the morning my wife is going to kick my ass🤣
My husband is going through this now. He said he will go to hospital Tuesday after Christmas. He's been jaundice for 4 weeks and ascites for 2 weeks. He has lasix and the syrup to take from the last episode of this in 2020. He took it for 4 days, then stopped. He's been working everyday M-F. He also looks like a zombie from lack of sleep. I'm very frustrated about this situation and him not going to hospital. He don't realize what this is doing to me either.Thank you for sharing.
Oh no.... that's really not good. He really needs to go to the hospital now. I hope that he goes asap! God bless. Keep me posted please
There are several high protein milk shakes targeted to weight lifters and body builders that a person can buy at a vitamin store or a health store.
I would like to hear more about your TIPS procedure. My husband is currently having problems with varices. So far, the doctors haven’t suggested tips, but I would like to know if it made the encephalopathy worse. Another way to get more protein in the diet is to add protein powder into foods like oatmeal, soups, baked goods and cereals.
Hello. No. It did not make it worse. It will actually help it. There are only a fee hospitals that do the tips. I know musc in Charleston SC does them. That's were I went. Let me know if there is anything else I can help u with. God bless
Thanks, we are going to Mayo Clinic in Phoenix. Will be having more bloodwork and endoscopy this week, I will have him ask the doctor if that is an option for him. I thank you for your videos, sometimes it feels like we are the only ones going through this stuff and real information is hard to come by!
@maureencavin873 I totally get it! There isn't a lot of information out there. Has he been prescribed xiffaxin yet? That really helped with the brain fog, it's very expensive and caused me some gi issues as well. But I would really suggest asking about it. It's a powerful antibiotic. Not sure how it works. The tips really did completely change everything for me. I have not had ascites since I had the procedure or encephalopathy either since I had that procedure. Let me know if there is anything else I can help you with or any questions you have. I am more than happy to help with whatever you need. Praying for your husband. Could you maybe tell me his name? I would like to ask everyone for prayers for him. If not, I completely understand.
My husband’s name is Doug. He has been dealing with cirrhosis for 7 years now. He is taking xifaxin and lactulose. The latest problem we are fighting is varices, so far we have been lucky that none have ruptured. We go for another scope tomorrow. Prayers are welcomed!
@@maureencavin873 I will be praying for Doug and I will ask for prayers in tomorrow's video. I just finished getting it started uploading. So I'll do it in tomorrow's video. Be sure to show your husband please! Have they talked about doing the bands on the varices to stop them from bleeding? That is an option. I do know that it can cause the portal hypertension to worsen sometimes. Hope all is well. Merry Christmas, and God bless
Most U S pharma companies have a charitable section that will give you permission to buy the drug at a highly reduced price for several months or a year.
You have to reach out and tell them you need the magic coupon.
My first paracentesis drained 19L, the Tech said it was close but not a record. The next was 16L, then 6L and finally gone. Its been about 10 years but I no longer take any medications. I don't remember ascites being painful but I think I got so used to it over a period of time, it was more uncomfortable after being drained, but not too long. One of my friends said I looked 9 months pregnant and my legs had pitting edema and petechiae (small red spots.) None of it is fun but I feel better now than I ever have in my life. Still have to be vigilant with follow-ups forever.
Holy cow!!!! 19 liters? I can't imagine! That is insane! Well... glad to hear that you are doing ok now. That had to be so uncomfortable. It really hurt me because I have broken a bunch of my ribs in kayaking accidents. They still bother me to this day, point is, all the pressure from my abdomen was pushing on my ribs causing a lot of pain. I just couldn't breathe. I know what u mean about looking 9 months pregnant. I did as well. I was skin and bones with a huge protruding belly. Couldn't keep my pants up.. I hate even thinking about it. Thank you for watching! God bless!
@@liverdisease-qb6rkgod bless you brother
They kept telling me that I would breath better and feel better, I must have been so acclimated that I didn't even realize I was in pain or having trouble breathing. The first time (19L) they did not give me albumin after which I was told should have been done, every time after they gave it by IV. If you are drained ask about albumin if it is not given, it helps stabilize the blood fluids so they don't leak out into the available spaces...legs and belly.@@liverdisease-qb6rk
1k for life saving meds...crazy! America medical system is a joke!
Yeah... unfortunately! Thanks for the comment man!
Socialized medicine is even worse
@@rsuber6210 do you have socialized medicine where u are? If so, what do you "not" like about it? God bless
@@liverdisease-qb6rk I live in the states. The healthcare system in this country is definitely messed up. We pay more for drugs in our own country than any other country in the world. Most of these drugs are produced by big pharmaceutical companies right here in the US. That is wrong, but there is more to the story.
Countries that practice socialized medicine have outrageous tax rates. Anyone that thinks they get FREE healthcare is badly mistaken. Nothing comes without a price tag. Plus, you will have to wait for your turn in the queue to receive what could be life saving procedures.
I know this because I used to travel to Canada a lot for business. I have/had several great friends there. One of these friends acquired esophageal cancer around 2015. The cancer was isolated at the time, but he needed surgery to remove part of his esophagus…to make a long story short, he was told it would be approximately 7 months before the surgery could be performed. During this time he was receiving radiation and other treatments. 1 month before his scheduled surgery, he was informed the cancer had spread to many other areas of his body. They continued to treat him with radiation and chemotherapy for another few months but it was too late to help his current condition. He died 4 months later.
Many people travel to the US to receive surgery for this exact reason. Many cancers are very aggressive and require timely treatment…anyone wishing for socialized medicine should understand how the whole process works.
Thanks for this channel man! It’s really helping me on my journey to sobriety…day 3 again.
Merry Christmas and God bless!
I knew a guy with ascites. His arms and legs were thin but he had this big bulging belly. He'd told me he had a liver transplant but his liver disease had come back (due to drinking again).
That is not good. Damn. God bless
Hey man meant to ask you did you have the shakes when you were drinking? I never ever had the shakes but still got diagnosed with AH
Never got the shakes when I drank, only when I wasn't. God bless
@@liverdisease-qb6rk crazy because I never got the shakes at all. Still got diagnosed with AH. It affects everyone different
@Jeffburns1980 damn.... I'm sorry to hear that. Yeah, I used to get the shakes really bad in the morning when I woke up, didn't go away until I got a couple in. God bless
👍
Thank you. Your a blessing from God
Wow! Thank you so much!!!! God bless!!!
Do you still get ascities? Did you have have to get paracentesis?
I haven't had it since getting my tips. And no I don't right now. Thank you for the question. God bless!
What's the longest you've gone without having any ascites?
Hey. Thank you for the question. At this point it's been 10 months. So quite sometime. It will come back again one day.... God bless!
If you have a liver issue, try CDS (Chlorine Dioxide) 2L enemas.
What did the pain feel like in your liver area
A really dull pain. It's really hard to describe. I could feel my liver. It was definitely larger than normal. God bless
Did you ever have the right side pain at your ribs
Oh yeah. All the time. God bless
How are you now ?
Hello. As far as?
Did you eat big meals when you had that?
Hello! No, not at all. Only very small meals. Mostly shakes, yogurt, and fruit and vegetables. Thank you. God bless
@@liverdisease-qb6rk I can’t handle big meals , I only drink a few drinks at night now
@@cute7g467please stop drinking it doesn’t matter how much anymore
I'm going under again guys at 3:30 pm. I'll reach out when I'm done
Sounds good! Hope everything goes ok! I'll be praying for you Veronica!!!! God bless!
I understand you are having some serious issues. I am sorry to hear that, I will pray. Wishing for the best.
Thank god i live in ireland i have a medical card so all my medicine is free as are any hospital visits or any hospital stays and procedures.
Hey there. Yes, here in the USA, getting sick, especially very sick can ruin you financially. Many people loose everything because of it. They have even changed the laws in my state to where they can come after your assets, freeze your bank accounts, and put a lean against your home due to unpaid medical bills. It's pretty sad. God bless! I really want to go there one day. I know I have Irish roots and would like to see where my ancestors came from.
Furosemide - water pill
That's the one! God bless
Isn’t it crazy, how you don’t even notice (or, I didn’t anyways) you’re malnourished and would likely die in the next cpl days if you hadn’t gone in?
That’s a fistula
Are you sober now?
A year and 7 months sober
@@liverdisease-qb6rk that’s fantastic I’ve been sober for 12 years and life is great now but I do know that if I took one drink 🍹 that would be me drinking again xx
@@bronaghreilly2691 oh! Absolutely! The Dr's told me one drink and that's it... I'll be dead, so there's that. I do not want to die! I got the you know what scared out of me. God bless!
@@liverdisease-qb6rk yeah my brother has a decompensated liver and all his organs are packing in between that and his frequent falls and hospital 🏥 admissions but yet he says he’s not an alcoholic. But he’s my brother and I will love him and be there for him always it’s a horrible disease 😪
Bro you should do hijama and take propolis trust me
Thank you forbthe advice. I am going to look into it. I haven't heard of either. I just looked up hijama and have seen it, but know nothing about it. God bless!
Ascites is very uncomfortable. You feel like a "sick" person.
He should stop saying and um , uh