MS, many symptoms , crazy disease, had it, 40 years, in the beginning felt like somebody was sticking their fingers in my eyes, lasted for a long time, Now at 66, it’s been years and I haven’t had any eye problem, crazy disease anyway, so true if there’s a will, there’s a way and life can still be Amazing thank you for your honest insightful , caring, positive and inspiring presentation! Just for today, I will take care and be well, one day at a time 💕🎶😔🤜🏽🤛🏻Jorge from California Namaste. ☮️
Thank you for this video, it was very helpful and comforting! I was diagnosed with MS after two attacks of optic neuritis - first in my left eye and then in my right eye. I still remember the fear and frustration of not being able to see properly so I can only imagine how difficult it must have been for you to completely lose your eyesight. I had pain when moving my eyeballs, it felt like it was 'stretching' the nerves, headache, faded colours (red especially) and blurred vision. It also got worse when my body was warm (the Uhthoff's symptom you mentioned) It still happens, also when I'm stressing. Since my eyes were very sensitive I also found wearing sunglasses, even in the house, very helpful. Also lowering the brightness of my computer screen to the minimum helped
Someone, who can understand my optical plight...it has been many years. I lived and worked through it as best I could. But, today, it is mostly, scintillating stoccoma that is bothering me mostly today, the pain comes and goes, still seeing things, that is not there and/or what its not doing... confusing!
Thanks for this video I’ve complained to my neurologist about my vision and he down played it along with the other new symptoms I was experiencing while I was going to have my treatments which I stopped because I didn’t feel like it was helping me. But it’s refreshing to hear that I’m not alone in what I’m experiencing still haven’t completely accepted my diagnosis because I don’t feel like I have a good support system. Ok enough rambling thanks again this video helped me understand at least this part that I’m dealing with. 😊
Hello. Thanks for the video. I have vision loss in the central vision of my left eye. My neuro ophthalmologist mentioned the possibility of NMO. After several MRIs she diagnosed MS. To my point, I have been learning more everyday. Through the countless hours of trying to figure out how to beat this, I stumbled upon red light therapy. I’m using 850 nm light, 3 minutes per week. One 3 minute session on Saturday. Within 3 hours of waking is a must. I stare at it with the affected eye. I’ve been at this since November when I was diagnosed. My vision is coming back. Not back to where it was before, but not 100% blotted out spot in my central vision anymore. It is improving! I can’t read with my left eye only yet, but i can tell that there are words. Visual acuity has improved according to my optometrist, as i can now make out letters on the chart, prior to this was futile. Sharing my experience. There is hope. Have a good and blessed day. Thank you.
Omg I have 4 different glasses and sitting ing in the dark helps and reading books becomes crazy!!!! People make fun of me for needing audio books it’s absolutely sad a lot of the law books are not audio smh thank you for getting to the point. Oh your dog is so cute I miss my Lola her person won’t give her back she was given to her by mistake! After 9 years Maltese she is still my dog we love each other so much… I miss her very much when going through this ms hug and anything she was the best companion to for some reason she made the episodes not so devastating.
For anyone with visual issues and MA, please see a neuro ophthalmologist and not only your neurologist. Also, ask them to do an OCT scan of the eye to measure retinal ganglion cells as well as never fibers. This was a great summary, but there’s more visual issues that MS causes including side vision loss due to lesions on the optic tracts.
I have optic neuritis from MS. Having cataract surgery tomorrow. Nervous and anxious. Thanks for your info and expertise. I also am very heat sensitive but didn’t know it had a name in ms world. Good to know. Thanks for help as I don’t drive or live at home…assisted living. You’re doing good things, Shirley.💋
I will be thinking of you tomorrow Patricia. It’s always scary to go into any kind of surgery but especially your eyes. This might do a world of good for you. Always here to chat, you’re not alone. Thanks for encouraging me today Patricia ❤️
Four years ago I woke up from a nap and realised I couldn't see out of my left eye, it was like looking through frosted glass. After about an hour my vision started to return in patches through the opacity. I had laser scans and specialised eye photography but they could not find the cause. The sight loss occurred again last February, but in reverse, I had 5 or 6 large blotches of opacity with clear vision between them. Lasted about 6 minutes this time before clearing. Now having problems with double vision and occasional blurring in my left eye. Also my balance has been deteriorating over the past few years and I now need 2 walking sticks while out and about.
This was absolutely excellent video!!! Wow!!! So impressed with all the information in it and also the coping aspect of the video! Sending much love 💕💖💕💗💕💖💕💛💕💖💕
Thanks I am a painter with M.S. and I have double vision. It is been 2 months. I am very frustrated with the situation. I dont drive my car and pretty much sit alone. I have Dr. app scheduled.
This is the only video I could identify with having a an macro Aneurysm left eye. I’ve just had a new brain MRI & Orbits MRI yesterday. I’m losing my vision. I’ve had 5 neck surgeries in 2 years and 10 procedures to my left shoulder scapular with not much use of my left arm . One eye procedure and now I’m waiting for new diagnosis.
Very helpful video thank you I havnt been diagnosed yet.But I have had a blinds pot that wiped out my lower left side when I looked down there was nothing there just blank I have floaters in both eyes I get blurred vision I told my optician that I feel like my eyes are bouncing she put it down too now being long in one eye and short sighted in the other eye I get light sensitivity pain around the eye hurts when I move my eyes from side to side or up and down.
I keep hearing about optic neuritis and the optic nerve... It's frustrating but you are the first I have come across to describe my episodes exactly. It was like the macular degeneration examples you showed, but I have gotten new glasses and I described my previous symptoms. They said well it's not happening now and nothing particular is showing up. As far as I know nothing shows up on my optic nerve, but I also need a new neurologist. It looked like an optical migraine with aura but went keep going and a literal gray storm cloud grew in the middle of my vision. It happened a few times potentially at least 15 minutes but would clear up. Eventually it changed to light sensitivity and light filtering or interpretation.
One thing to remember is: You didn’t do anything to get MS, there isn’t a cure for it, as yet, and worrying about it or getting very upset about it only makes things worse. So, learn as much as you can, learn how to compromise and deal and live the best life you can. ❤😊
Your story is inspiring for me as an ms sufferer and I can relate to all you mentioned. Thank you, I hope you're doing much better, now. Please, take care! Monique.
MS, many symptoms , crazy disease, had it, 40 years, in the beginning felt like somebody was sticking their fingers in my eyes, lasted for a long time, Now at 66, it’s been years and I haven’t had any eye problem, crazy disease anyway, so true if there’s a will, there’s a way and life can still be Amazing
thank you for your honest insightful , caring, positive and inspiring presentation! Just for today, I will take care and be well, one day at a time 💕🎶😔🤜🏽🤛🏻Jorge from California Namaste.
☮️
Thank you for this video, it was very helpful and comforting! I was diagnosed with MS after two attacks of optic neuritis - first in my left eye and then in my right eye. I still remember the fear and frustration of not being able to see properly so I can only imagine how difficult it must have been for you to completely lose your eyesight. I had pain when moving my eyeballs, it felt like it was 'stretching' the nerves, headache, faded colours (red especially) and blurred vision. It also got worse when my body was warm (the Uhthoff's symptom you mentioned) It still happens, also when I'm stressing. Since my eyes were very sensitive I also found wearing sunglasses, even in the house, very helpful. Also lowering the brightness of my computer screen to the minimum helped
Same as my story... R u permanently fine now pls tell me
Someone, who can understand my optical plight...it has been many years. I lived and worked through it as best I could. But, today, it is mostly, scintillating stoccoma that is bothering me mostly today, the pain comes and goes, still seeing things, that is not there and/or what its not doing... confusing!
I came across your video and I thank you for helping me understand what I'm dealing w/today after being diagnosed 18yrs ago. Thank you once again🥰
Thanks for this video I’ve complained to my neurologist about my vision and he down played it along with the other new symptoms I was experiencing while I was going to have my treatments which I stopped because I didn’t feel like it was helping me. But it’s refreshing to hear that I’m not alone in what I’m experiencing still haven’t completely accepted my diagnosis because I don’t feel like I have a good support system. Ok enough rambling thanks again this video helped me understand at least this part that I’m dealing with. 😊
I’m so glad it helped you ♥️
@@makingsenseofmultiplescler2187 🥰
Hello. Thanks for the video.
I have vision loss in the central vision of my left eye. My neuro ophthalmologist mentioned the possibility of NMO. After several MRIs she diagnosed MS.
To my point, I have been learning more everyday. Through the countless hours of trying to figure out how to beat this, I stumbled upon red light therapy. I’m using 850 nm light, 3 minutes per week. One 3 minute session on Saturday. Within 3 hours of waking is a must. I stare at it with the affected eye. I’ve been at this since November when I was diagnosed.
My vision is coming back. Not back to where it was before, but not 100% blotted out spot in my central vision anymore. It is improving! I can’t read with my left eye only yet, but i can tell that there are words. Visual acuity has improved according to my optometrist, as i can now make out letters on the chart, prior to this was futile.
Sharing my experience. There is hope. Have a good and blessed day. Thank you.
Omg I have 4 different glasses and sitting ing in the dark helps and reading books becomes crazy!!!! People make fun of me for needing audio books it’s absolutely sad a lot of the law books are not audio smh thank you for getting to the point. Oh your dog is so cute I miss my Lola her person won’t give her back she was given to her by mistake! After 9 years Maltese she is still my dog we love each other so much… I miss her very much when going through this ms hug and anything she was the best companion to for some reason she made the episodes not so devastating.
For anyone with visual issues and MA, please see a neuro ophthalmologist and not only your neurologist. Also, ask them to do an OCT scan of the eye to measure retinal ganglion cells as well as never fibers. This was a great summary, but there’s more visual issues that MS causes including side vision loss due to lesions on the optic tracts.
Thank you for this 😊
I have optic neuritis from MS. Having cataract surgery tomorrow. Nervous and anxious. Thanks for your info and expertise.
I also am very heat sensitive but didn’t know it had a name in ms world. Good to know.
Thanks for help as I don’t drive or live at home…assisted living.
You’re doing good things, Shirley.💋
I will be thinking of you tomorrow Patricia. It’s always scary to go into any kind of surgery but especially your eyes. This might do a world of good for you. Always here to chat, you’re not alone. Thanks for encouraging me today Patricia ❤️
Thanks Shirley. All went well so doing next eye Friday. I feel better about it. 💋
I’m glad! Sometimes you just want to have an understanding of what’s going on and some support. Feel free to message me anytime. Thinking of you ❤️
Four years ago I woke up from a nap and realised I couldn't see out of my left eye, it was like looking through frosted glass. After about an hour my vision started to return in patches through the opacity. I had laser scans and specialised eye photography but they could not find the cause. The sight loss occurred again last February, but in reverse, I had 5 or 6 large blotches of opacity with clear vision between them. Lasted about 6 minutes this time before clearing. Now having problems with double vision and occasional blurring in my left eye. Also my balance has been deteriorating over the past few years and I now need 2 walking sticks while out and about.
This was absolutely excellent video!!! Wow!!! So impressed with all the information in it and also the coping aspect of the video! Sending much love 💕💖💕💗💕💖💕💛💕💖💕
Thanks I am a painter with M.S. and I have double vision. It is been 2 months. I am very frustrated with the situation. I dont drive my car and pretty much sit alone. I have Dr. app scheduled.
I have extreme anxiety about the hearing loss that I’m experiencing.
This is the only video I could identify with having a an macro Aneurysm left eye. I’ve just had a new brain MRI & Orbits MRI yesterday. I’m losing my vision. I’ve had 5 neck surgeries in 2 years and 10 procedures to my left shoulder scapular with not much use of my left arm .
One eye procedure and now I’m waiting for new diagnosis.
Thanks for sharing.
I always love your explanations and your accent too 🥰❤️🥰❤️
Very helpful video thank you I havnt been diagnosed yet.But I have had a blinds pot that wiped out my lower left side when I looked down there was nothing there just blank I have floaters in both eyes I get blurred vision I told my optician that I feel like my eyes are bouncing she put it down too now being long in one eye and short sighted in the other eye I get light sensitivity pain around the eye hurts when I move my eyes from side to side or up and down.
I keep hearing about optic neuritis and the optic nerve... It's frustrating but you are the first I have come across to describe my episodes exactly. It was like the macular degeneration examples you showed, but I have gotten new glasses and I described my previous symptoms. They said well it's not happening now and nothing particular is showing up. As far as I know nothing shows up on my optic nerve, but I also need a new neurologist.
It looked like an optical migraine with aura but went keep going and a literal gray storm cloud grew in the middle of my vision. It happened a few times potentially at least 15 minutes but would clear up. Eventually it changed to light sensitivity and light filtering or interpretation.
Vision auras is something i contend with daily.
Very informative thank you I have optic neuritis from Multiple Sclerosis
Thank you for your comforting advice. 💕
One thing to remember is: You didn’t do anything to get MS, there isn’t a cure for it, as yet, and worrying about it or getting very upset about it only makes things worse. So, learn as much as you can, learn how to compromise and deal and live the best life you can. ❤😊
Double vision in both eyes
Thank you for this video
Your story is inspiring for me as an ms sufferer and I can relate to all you mentioned. Thank you, I hope you're doing much better, now.
Please, take care!
Monique.
I’m in the early days of this, but it is my eyesight distortion is what I’m finding hardest to deal with.
I think it’s the one that robs us of the most at times.... x
Love those pups
I have constant eye pain especially in the back of my eyes and head
I see the first two floaters
This is same signs I have with migraine