We have to take ownership of our feelings! NO ONE can make me feel anything :) Haven’t we had enough of MS thievery??!! Own it, it’s awful, what the heck can we do about it?!! I WON’T allow my zest of life be torn away too!! Slam a weighted ball at the gym visualizing squishing the whammy MS!! Slam it hard repeatedly if possible because at least you’re getting some exercise and helplessness out of your body!! Love and hug your now sweaty self, you are perfectly IMPERFECT 🤗 🤩 💋
I have ms now for 14 years…Ms has just about taken all of me…It certainly brought me to God! Only positive Thing, is God!!…I couldn’t do this without him, and his Son Jesus Christ….❤❤❤
Don’t be alone- is there an ms nurse or neuro you can talk to? What about your doctor? You have to make sure you talk about this with folks who can understand. If I can help or just be a listening ear my email is shirley2322@icloud.com ❤️
I wish I had found this video a few years ago. I've been living with MS since late 2011. In my case, multiple sclerosis is hereditary because my mother has MS. She was diagnosed in 2001. My mother's mother(grandmother) had MS from 1975 and died from it in 2002. And it's even worse on me than it is on my mother. Because I'm an African American male. From what studies say that it's worse on black men. In the 1970s, they didn't have the treatments that they have nowadays. So my grandmother had it. They basically told her not to do much of anything she listened to them. She got worse, and she was paralyzed from the neck down. The doctors didn't know that it could be hereditary. I'm living proof that it's hereditary. I'm not married and I don't have children. One of my biggest fears is that if I had children that I will pass it onto 1 of them, and I don't want them to live with that burden. When I was first diagnosed, one of the symptoms that I mostly have was walking impairment. And my walking has decreased over time. Also, I love to buy my bike, but my bike riding is severely diminished because of MS. I also have the nystagmus in my eyes, and my left eye is blurrier, which also causes dizziness. Personally, I feel like my life has been stolen from me since I've have MS.
I am so sorry that you have it also…You need to talk and tell God to help you..He hears, and will help you…But you have to show and tell him, you need him, that you want to continue to do what he wants you to do, and Be….Hugs and prayers for you my friend….
Thank you thank you thank you for this video. Yes finally someone with MS saying we have brain damage because that is what it is. Like Dr.Boster says "But honey you look so good"We might look good or ok on the outside but having a tornado on the inside. But prayer really helps. Jesus helps and understands.Blessings and prayers for you all friends.
Thank you so much for sharing this, I am newly diagnosed (2 days before my 40th 😢) My mental health is absolutely shot to pieces, I don’t think I have ever felt this low. I am seeking help but I needed to see this tonight. Thank you 🙏🏻
Got diagnosed 2 years ago but i’ve been having problems like blurred vision from time to time with an annoying headache since i was like 11, later also tingling/numb feeling in my legs for a few months, first left then right and left again and a few months before my first mri also my left arm. And looking back i can see how it also effected me mentally and how i destroyed most of my relationships. Now im really close to 30 and i live a life i never imagined i would live… if u can call this living ofc.
Watching this in 2024. I have a neurology appointment soon. I've been dealing with so many symptoms. I am scared...for so many reasons. Particularly I have 3 kids and a husband and I am the sole income provider. My daughter has Down syndrome and will need care for her whole life. I don't have an official diagnosis and I don't want this diagnosis but I know my body and how I have been feeling. This just makes nw so sad.
Thank you so much for this it was really interesting . My partner tells me I need not to apologise for my mood swings but I do! I hate being mean and it’s so important to me to acknowledge my behaviour.
I was diagnosed January 2019 and I have not been able to accept it because it's never the same. It's gotten so much worse to the point. I am very close to being wheelchair bound. I can't go out anywhere unless I'm in a wheelchair but I'm home I can get around With my walker, but I fall a lot and I don't like that.
Scientific is good. Please make more video’s. Seriously, you’re the most helpful I’ve found. Also I’m a rage-aholic & yeah anxiety depression; but mostly blind rage fuels me. I threatened to burn my ex husband to death while he was sleeping. - I’m only sorry it was a threat. Ps. Oh yes I see - the hypothalamus & aggression. You know I freeze sweat in the winter & barely sweat in the summer now? The spring & summer are the best. The fall & winter are now my hell. I’m a winter person & my state in the US just went from 58 to 8 - in less than 8 hours yesterday. Ask me how my day was.
Love the video, very informative. My sister has had MS for 30yrs now. She said as also a psychology major. The stress of her disease has rippled through out the whole family. Stay strong, doing what you’re doing helps people.
I very much appreciate you. Thank you for sharing your knowledge and personal life experience with us. I am in my 7th year of battling this monster and everything you said still rings true for me. Many blessings to you and yours
Thank u so much u have helped me understand what I been going through. I have had ms since 2006.u helped me understand why I do the things.i hate it when people tell me I can't do something. I love in NC and there is very little help or groups to help.ty I went to c a neurologist and didn't even know he was only a np not a dr.
Anyone out there struggling with balance and coordination? Love to exercise? Look for a pool near you that has a class you can do, like aquafit. Im 42, but i feel young in this class😂 I too have been told I have demyelinating lesions. Mine is tumefactive in the brainstem (pons). Tumefactive, to my understanding means that the lesion is large (2cm). Which could explain why they initially sent me to a neurosurgeon of the spine (as I also have a t11 intradural extramedullary lesion or "tumor" but the spinal neurosurgeon wanted me to get an ms diagnosis of the brain/pons 1st and said come back in 6 months????)
I know a person with MS. They have become so rude I am not going to talk to them. They also think they know everything and are a genius. Really do not have time for their defects. Got enough problems without their abuse.
My aunt has had MS for 40 years. She's become mean and hateful. She drives when she should not. She is a danger on the streets. She is now going on social media and attacking her siblings. It's out of control. Is this the MS or something else? I've always been kind to her, but she is being abusive to people I care about.
I lost my happiness 10 years ago, and have been looking for it ever since.. 😢
My personality has changed. Your statement really hits home. I miss my happiness.
We have to take ownership of our feelings! NO ONE can make me feel anything :) Haven’t we had enough of MS thievery??!! Own it, it’s awful, what the heck can we do about it?!! I WON’T allow my zest of life be torn away too!! Slam a weighted ball at the gym visualizing squishing the whammy MS!! Slam it hard repeatedly if possible because at least you’re getting some exercise and helplessness out of your body!! Love and hug your now sweaty self, you are perfectly IMPERFECT 🤗 🤩 💋
@@cihualong955I don’t feel happy either .
My wife just got diagnosed after 13 years and out of no where wants a divorce
I have ms now for 14 years…Ms has just about taken all of me…It certainly brought me to God! Only positive Thing, is God!!…I couldn’t do this without him, and his Son Jesus Christ….❤❤❤
Ms has really knocked my confidence. Ive got no self esteem . I am so low at the moment its horrible
Don’t be alone- is there an ms nurse or neuro you can talk to? What about your doctor? You have to make sure you talk about this with folks who can understand. If I can help or just be a listening ear my email is shirley2322@icloud.com ❤️
Right there with you
me too
I wish I had found this video a few years ago. I've been living with MS since late 2011. In my case, multiple sclerosis is hereditary because my mother has MS. She was diagnosed in 2001. My mother's mother(grandmother) had MS from 1975 and died from it in 2002. And it's even worse on me than it is on my mother. Because I'm an African American male. From what studies say that it's worse on black men.
In the 1970s, they didn't have the treatments that they have nowadays. So my grandmother had it. They basically told her not to do much of anything she listened to them. She got worse, and she was paralyzed from the neck down. The doctors didn't know that it could be hereditary. I'm living proof that it's hereditary.
I'm not married and I don't have children. One of my biggest fears is that if I had children that I will pass it onto 1 of them, and I don't want them to live with that burden.
When I was first diagnosed, one of the symptoms that I mostly have was walking impairment.
And my walking has decreased over time. Also, I love to buy my bike, but my bike riding is severely diminished because of MS. I also have the nystagmus in my eyes, and my left eye is blurrier, which also causes dizziness.
Personally, I feel like my life has been stolen from me since I've have MS.
I am so sorry that you have it also…You need to talk and tell God to help you..He hears, and will help you…But you have to show and tell him, you need him, that you want to continue to do what he wants you to do, and Be….Hugs and prayers for you my friend….
@dawnjannuzzi1109 thank you
Thank you thank you thank you for this video. Yes finally someone with MS saying we have brain damage because that is what it is. Like Dr.Boster says "But honey you look so good"We might look good or ok on the outside but having a tornado on the inside. But prayer really helps. Jesus helps and understands.Blessings and prayers for you all friends.
Thank you so much for sharing this, I am newly diagnosed (2 days before my 40th 😢) My mental health is absolutely shot to pieces, I don’t think I have ever felt this low. I am seeking help but I needed to see this tonight. Thank you 🙏🏻
Got diagnosed 2 years ago but i’ve been having problems like blurred vision from time to time with an annoying headache since i was like 11, later also tingling/numb feeling in my legs for a few months, first left then right and left again and a few months before my first mri also my left arm. And looking back i can see how it also effected me mentally and how i destroyed most of my relationships. Now im really close to 30 and i live a life i never imagined i would live… if u can call this living ofc.
you're describing what i've seen in my wife the past 15 months...i am so worried for my kids, as she is not herself
You just got me out of a bad mental episode right now. Thank you.
I have MS (11 years) and full clinical depression. Dark time.
Watching this in 2024. I have a neurology appointment soon. I've been dealing with so many symptoms. I am scared...for so many reasons. Particularly I have 3 kids and a husband and I am the sole income provider. My daughter has Down syndrome and will need care for her whole life. I don't have an official diagnosis and I don't want this diagnosis but I know my body and how I have been feeling. This just makes nw so sad.
Thank you so much for this it was really interesting . My partner tells me I need not to apologise for my mood swings but I do! I hate being mean and it’s so important to me to acknowledge my behaviour.
I'm so glad it was helpful in some way - you are not alone...we can feel the worst ways at times and those who love us understand :-)
I was diagnosed January 2019 and I have not been able to accept it because it's never the same. It's gotten so much worse to the point. I am very close to being wheelchair bound. I can't go out anywhere unless I'm in a wheelchair but I'm home I can get around With my walker, but I fall a lot and I don't like that.
Scientific is good. Please make more video’s. Seriously, you’re the most helpful I’ve found. Also I’m a rage-aholic & yeah anxiety depression; but mostly blind rage fuels me. I threatened to burn my ex husband to death while he was sleeping. - I’m only sorry it was a threat. Ps. Oh yes I see - the hypothalamus & aggression. You know I freeze sweat in the winter & barely sweat in the summer now? The spring & summer are the best. The fall & winter are now my hell. I’m a winter person & my state in the US just went from 58 to 8 - in less than 8 hours yesterday. Ask me how my day was.
That was the reason I studied psychology as well.❤
Love the video, very informative. My sister has had MS for 30yrs now. She said as also a psychology major. The stress of her disease has rippled through out the whole family. Stay strong, doing what you’re doing helps people.
Thank you sweetheart 💓 from the bottom of my heart ❤️
Wow! So needed! Thank-you from the bottom of my heart.
I very much appreciate you. Thank you for sharing your knowledge and personal life experience with us. I am in my 7th year of battling this monster and everything you said still rings true for me. Many blessings to you and yours
Thank you for this Joe. It’s really encouraging for me to know it’s helping in some way for someone out there. We’re all in this together ❤️
@@makingsenseofmultiplescler2187
My Nero is Doctor Aaron Boster, he is awesome! He puts out a lot of videos on YT you might want to check out
Needed to hear this. Thank you❤
Magic 🍄 has been proven to help so much. As you are not in your "body" when you experience the spiritual healing and lessons
Thank u so much u have helped me understand what I been going through. I have had ms since 2006.u helped me understand why I do the things.i hate it when people tell me I can't do something. I love in NC and there is very little help or groups to help.ty I went to c a neurologist and didn't even know he was only a np not a dr.
I really needed and appreciate this today!
I'm so glad it was helpful - it's great to know it's done something for someone somewhere....you are never alone Emma :-)
my wife became very confrontational....She was told she has MS type symptoms after a long covid problem....she never went to see a neurologist
Thankyou
Really needed to hear this today. So thank you
Thank you!❤
Anyone out there struggling with balance and coordination? Love to exercise? Look for a pool near you that has a class you can do, like aquafit. Im 42, but i feel young in this class😂 I too have been told I have demyelinating lesions. Mine is tumefactive in the brainstem (pons). Tumefactive, to my understanding means that the lesion is large (2cm). Which could explain why they initially sent me to a neurosurgeon of the spine (as I also have a t11 intradural extramedullary lesion or "tumor" but the spinal neurosurgeon wanted me to get an ms diagnosis of the brain/pons 1st and said come back in 6 months????)
Im happy for you that your able to keep make-up on your eyes! My eyes are always tearing and my nose does too! All thw time! Nomatter the weather
Heat makes me feel suicidal. I live in a tropical country where there is often no electricity and I’m getting worse fast !
I get a lot of verbal abuse from my husband
Don't say that i have MS and I stay happy I except myself the way I am I don't care about other people 😊 smile 😅
I’m back. I possess very little remorse now. Honestly though, it’s really not me - it’s other people. Mostly men.
I know a person with MS. They have become so rude I am not going to talk to them. They also think they know everything and are a genius. Really do not have time for their defects. Got enough problems without their abuse.
I’m so sorry to hear this 😢
Maybe they’re just an asshole & it’s not MS or maybe someone else is too 🤷🏼♀️
I've become mean. Hard to stay positive with PPMS.
My aunt has had MS for 40 years. She's become mean and hateful. She drives when she should not. She is a danger on the streets. She is now going on social media and attacking her siblings. It's out of control. Is this the MS or something else? I've always been kind to her, but she is being abusive to people I care about.