Thank you so much. Yes, sometimes I do feel very much alone with this. Dr's don't believe you, the ER is not helpful and as loving as your family can be, they think you should just keep going because they can't physically see what's going on. Thank you so much for being here and I pray strength for you and all those who are suffering.
I am at the hospital for the first time being diagnosed with MS. I’m already being “hugged”. I am so thankful for finding your videos. You bring a little light and confidence to me because you are so real about it. Thank you.
I used to say it feels like I'm wearing a corset or being crushed by a vice. I've had this along with other strange symptoms for about 15 years and now I'm awaiting MRI results. It's strangely comforting hearing someone talk about something I thought only I experienced.
People with ME/CFS can also have an 'MS Hug' ME is in the same class of illness as MS but after having ME for more than 40 years I am only now learning that there is a name for the horrible vice that crushed me off and on during these years and now it is almost a constant for me. Thanks for your video.
The heating pad! I used it on my check and back and I can feel my legs and butt again! Thank you! It was like I had Novocain from the waist down. I’ve been trying everything. Thank you. 🥹🥺🥹🥺
It's the first time since my diagnosis (2009) that I feel this tightness around my abdomen. It feels as if I was wearing a wide tight belt, strapped around my rib cage. It's been two Days now and it's sooo incomfortable. I was wondering what it could be, all evening tonight, when I suddenly remembered reading about the MS hug once, in an MS magazine. It didn't strike a nerve with me at the time, since it wasn't a symptom I had expériences. I'm glad I remembered and am looking it up. Oh, my gosh, what a delightful accent you have! It makes it even more interesting while listening to your UA-cam video. And you are such a beautiful person too and so well spoken. Thank you for sharing your knowledge about the MS hug! MS could be such a lonely journey... ... especially as sooo much of it's symptoms are invisible.
I was diagnosed with RRMS in 2006. I started experiencing MS Hug about 6 or 7 years ago in my chest shoulders & neck. Sometimes, it's on one side. Other times, it is on both sides. It took a couple of years for me to figure out what it was. I had heart tests, stress tests... i had to do my own research to find out about MS hug. When i brought it to my Dr's attention, they had not heard of it. Found out thats what it was. MS Hug. Physical Therapy was what ended up helping me.
Wow, everything is the exact same with me. I’ve had a cardiac cath and they say it’s normal but I feel the tightness in my neck and shoulders. That’s why I stopped lifting weights. What makes you feel better?
I am relieved to hear it can occur in the back, too. Over the 2023 New Year’s weekend, I had significant pain and spasm across my chest and around my upper back/shoulder blades. It kept coming and going all weekend. Other times, I get that on my left side. I also frequently experience horrible, debilitating muscle spasm along the bottom of my rib cage, and that takes my breath away. I have seen a cardiologist, and had the full gamut of cardiology tests, short of an angiogram. No issues with my heart we’re observed. I don’t have a diagnosis, but I am finally going to a neurologist/MS specialist in a month. I felt for a few years I may have RRMS. I have journaled all my symptoms for the past two years, although looking back I have had symptoms for maybe ten years. I have also seen an endocrinologist to rule out a hormonal issue with testosterone or thyroid, due to the crippling fatigue and brain fog. I actually hope they do find some thing on MRIs, so I can finally have a diagnosis/explanation, and I can get the treatment I need.
Your videos are more helpful than any neurologist who only wants to talk about DMTs and then they are gone. ( I was only diagnosed a little over a month ago.)
Thank you so much for this! I had a Spinal Cord Injury 6 years ago affecting C5/6. This seems to have triggered MS symptoms and I have been having the MS Hug constantly, going from bearable to intense discomfort to breath-holding pain. I also have pins and needles in hands and feet - I feel I am plugged into the National Grid - and walking is now more like ‘lurching’ so use a stick. But worst of all is the Hug. No diagnosis as local GP not interested in us oldies. I consider myself lucky as original diagnosis was that I wouldn’t walk again. But managing pain is difficult as I don’t want to become addicted so tend to just wait it out instead of chucking down OTC tablets. Wine helps.
Thank you for sharing. I am having the MS hug for 3 weeks now 24/7 and it’s been tough. Just came out of emergency with high dosage of steroid and no help. Finding any information is always helpful.
So that’s what I’m feeling! Been telling people I feel like I’ve got cling film round my torso! Got the chilled leg feelings too! Thanks for such a clear explanation and stay well x
I recently had my gall bladder removed.. ive had mri ct scan endoscopy etc nothing showing up but suffer evertday with this hug feeling its really bad wen i walk i get pins needles and like burning pains in feet and hands im waiting for a hida scan to rule anything else out but i will mention this to my doc hopefully can look into it ive just started take baclofen . Subscribed
Thanks for sharing this. I am 61 years old and have just been diagnosed with MS. The hug is so frustrating to me, I am going to try some of what you have shared. I likely have had MS for many years, it was just pushed off as other symptoms of other health issues I have had to deal with. My first hug started out slow and eventually covered a wide area of my chest and abdomen, this lasted almost an entire month. I had just started a vacation and was on a cruise for 12 days, my strange feeling started when we landed in New York, the day before the cruise. Eventually on day 2 of the cruise I realized my feet were numb up to my hips and gradually my torso. Then Hug. It stayed that way my entire vacation. I had a cane with me due to the fact I had balance issues and brought it just in case. After returning home and seeing doctors, MRI, Nero-Surgeon, then , MRI, Neurologist, more MRI’s , bloodwork and then diagnosed with two lesions, one on brain and one on spine, both inactive. As I look back in my history I see signs of this, but all in all , I am very thankful I am doing as weal as I am. Currently am being Hugged and some numbness in my legs, I will be starting on a medication soon as my TB test has returned.
Yes ! I’ve been describing it to ppl as being wrapped around by a boa constrictor! Informative video thanks! My MS hug just seems to be a constant at this point didn’t think to look for triggers
I use an electric blanket to lay on when I have severe pain or use an electric heat pad to wrap around my ribs (it fastens with velcro) when I have the MS hug. ❤
Thank you for this, I might have MS (Four doctors are concerned about it) and learning about it from other peoples experience makes it far less scary for me. I recently went to the Hospital for chest pain and they said it was likely neurological so it’s helpful to know about these things!
This is exactly what I told my doctor who looked at me like I lost my mind. I have discussed it with the emergency nurse and she said it's nothing to worry about. It definitely feels like a blood pressure cuff that is squeezing the life out of you.
That's exactly how it feels to me, I have not been diagnosed, I have seen two neurologists, an opthamologist, an urgent care doctor diagnosed the pain in my left eye and left side of my face as trigeminal neuralgia, I have had horrible double vision for four years and have fallen many times, am now having difficulty walking. The hugs are becoming more frequent...
Thank you so much for this video ❤ I have now realised that I have had this for 20 years and only found out today what it is and what it’s called. Once again, thank you very much. PS your black leggins comment made my day.
Baclofen has been a life saver for me with muscle spasms & MS Hug. I dont like taking it too much because it makes me so relaxed that I cant do much after it kicks in. But then again, i cant do much when I'm having muscke spasms & MS Hug.
Just found you and thanks for this valuable information, I have had it over a week, I do know stress brings it on, I take baclofen and find heat better than cold and anything tight makes it worse, going to check out your other content now too xx
I tend to get MS hugs from time to time.I take Baclofen when my legs bother me.Thank you for sharing that you take it when you have a MS hug.I will do that next time.
We all experience MS symptoms uniquely. Including the MS Hug. For me personally, this particular symptom is hands-down the #1 Most distressing, uncomfortable, and nefarious of symptoms (of many) that I experience w/ MS. In my personal journey with the MS hug, it's not just a singular sensation of feeling like I'm being squeezed. And most specifically, my MS hugs have evolved to the point where there's a tendency for this symptom to encompass the entire area from just below the clavicle, down to my groin area. As the 'episode' intensifies, it get's to the point where I almost feel like I'm going to explode. The best way to describe it is the sensation that my entire chest and mid section is expanding to the point of bursting. Much like what happens when you fill a balloon with too much helium. And this sounds silly, but I become instinctually driven to remove clothing in the attempts to relieve pressure. 1. The chest pain unto itself is terrifying. And I've lost count how many times the Doctors have ordered chest x-rays, EKG's/ECG's, Troponin blood tests (a blood test used to see if you've had a heart attack), CT scans, etc. It got to the point where I told them, " My EKG/ECG is going to be normal. My Troponin levels are going to be unremarkable, and If you guy's give me one more chest x-ray and ct scan I'm going to become radio active." 2. My MS hug episodes will peak. And at this peak of any given episode I'll start getting intense pinching electrical shock sensations throughout various parts of my body. They're so startling and painful that it takes my breath away. Compared to the feeling of getting the wind knocked out of you. Complete w/ dizziness, near syncope, and my leg buckling at the knee. 3. I start getting cognitively confused and unable to concentrate. 4. The epic pins and needles sensation starts creeping in and spreading. And although it's an almost constant symptom of mine with MS = During an MS Hug episode in particular, it Intensifies. Frankly, during an MS Hug episode, labeling it 'Pins and needles' puts it mildly. It's more comparable to the velocity of a torrential down pour of rain impacting the ground (or your car windshield). It stings. One day during an MS hug episode, I literally felt it creep up from the front base of my neck up to (and around) the underneath of my chin and head. Followed by numbness. Again, It's hands down the most insidious sensation I've ever had the misfortune to endure. 5. You intuitively understand that it's ravaging your body.
So I watched this video of you a few weeks ago. I found not only interest in your topic but your personality as well. Fyi I looked up(searched) ms hug England girl up and you were the 1st video...#hashtag that. Anyway I also experience MSHug. I have found a 5% latacaine patch to help as well as a topical my pain dr uses with ketamine/latacaine/gabepentaine/topical they make in-house as a valuable treatment as well. Enough I thought I'd share. Thanks for sharing as well. You taught me to love my heating pad again while I ice my knee as a regimen too!
Just found you! Just started having MS hugs after being rear ended. Thought it was from the seatbelt but it is constant although the pain subsides the pressure remains. Looking forward to future videos! Thank you!
I’ve had a little bit of a blip from taking time for videos but your kind words give me motivation to keep on. I’m so so glad it’s helped in some way ❤️
Stretching your torso instead f Of crunching down keeps the muscles from being able to contact as tightly. I also use dry needling with E-stim and muscle scraping for a medication free approach, but keep baclofen close by for the worst ones.
I’m so very happy to have found your video. I have been living with MS for 28 years. I’ve experienced many of the worst situations and I’ve never heard anyone else besides myself that speaks about the symptoms and experiences the way you have. After many years of using a cane to help me walk, I had to begin using a walker. Within the last three years I’ve been in a wheelchair and that has been the hardest thing to get used to. But hearing you talk about your own experiences and pain and the trial and error of the different drugs available I must admit that Baclofen has been my constant savior in pretty instant relief. I’ve enjoyed your video and subscribed so I can have the feeling of comradely.
I would love to get a copy of the spine diagram you presented. Could you tell me where I might find one? 😊 I have not yet been diagnosed with MS, but feel certain I have many of the symptoms. Your videos are helpful to me to explain possible solutions to issues. Thank you so much for your factual and informative, concise videos!
I have that hug symptom when i first wake up. I cant hardly breathe sometimes. That "hug" goes away after being up and walking around for 10 or 15 minutes. Now im wondering if i have ms. I have numbness in hands and arms and and started out like carpal tunnel . Hmmm. Im 79 so have i had it for years and didnt know.
I used to get this symptom a lot when I was younger, now my symptoms are different and depend on the stress I'm feeling at the time.. I hope you feel better soon. When I changed my diet, it really helped a lot with my symptoms. I became vegetarian and now I'm vegan.
Hi, hope this finds you well... I wondered if you could attach a link for the braces you mentioned in this video, I sometimes get the hug & am always looking for alternative methods of pain relief. By the way, I love your sense of humour in this & all your vids. Love & light to you MS warrior.
Yes I can: if you go to Amazon and type in "Sciatica support belt, they are usually about the right size to accommodate some pressure on the affected area - they range from £10-£20 / $15-25 roughly :-) Sending hugs - not MS ones though!
I love your videos! I have just started having the Hugs for the last month and I found your advice very helpful. Could you do a video addressing balance and gait, particularly on uneven terrain like sand, or squishy carpet?
I certainly can- I’ve added it to the list Linda. I’m so glad it’s helping someone! If you can take it easy and rest a little it’ll help the hugs ! It’s not easy to do though. Big hugs! Xxx
I loved your message. I just went to ms hug to remind myself what I did last time I was hugged. My neurologist has given me solumedrol but it’s 11pm and I have to wait. Thanks for the help. I did take. Tegretol, THC, and gabapentin now. Ugh. ❤️😳👋
Thank you for this…….I think I am currently experiencing my first MS hug 😣 it doesn’t exactly feel like a hug, it feels like I really pulled out my back but I didn’t do or feel the exact moment when you know “crap 😖 I just pulled my back!”. I just started feeling sore and Over a few hours it has become full blown pain. Because it’s so severe and came on so fast without any reason is the reason I’m thinking MS hug 😟 I’m in the US and unfortunately it takes weeks or months to get out in to see doctors 🥺 and I’m in Florida so we currently have all the damn snow birds here and they hog ALL appts. I feel doctors should leave some openings for permanent residents. I seen my neurologist in about 4 months, so I have a ways to go. I think I will at least call dr this week to report it. I was diagnosed in 2006 and so far I’ve been very lucky but I have been slowly getting worse….this ms hug (if that is what is happening) may be my next new issue. Thank you for this video 🙏 I have subscribed and look forward to watching all your other vids. I hope you are doing well and wish you all the best luck ☺️😘 MS can be hard and very frustrating because people can’t see how we feel.
This helped me. You mentioned your back. It’s been years. I thought it was just back pain. Just dx RRMS 12/15/22. Fun Christmas Eve here. Thanks again & I hope you got some help (yeah. I know).
I immediately wanted to say as I began reading your paragraph here I was gonna say oh girl you will know when you have MS hug sometimes they come on like all over like really quick and sometimes I like gradually creep up on you whatever you do stop breathing try to take deep breaths to expand your ribs. A little it might hurt a little, but it’s like no pain no vein, right But if you can breathe like that. Xox
😂 Great video but at the end the bit about the boa constrictor was so loud in my headphones! I was listening to the video and doing work at the same time and them BAM! Scared me so much!😂😂😂
Idk if mine is the hug or not. I just got dx with RRMS. I’m new. It hurts around my back where the bra strap is & when it happens, I don’t even like a piece of cloth touching my chest. It feels like my bra is too tight, even if I’m not wearing a bra. I’ve had that for years. It’s a dull, deep, ache. It’s just not going away. I feel like puking. - brain only. Clean spine. Maybe it’s just back pain in the same spot for like 97 years. Thanks for this video. This has been the most helpful info I’ve found (even Dr. Boster didn’t get this one right). - just subscribed. Thanks again
My wife finds that having a vibrating back massager run across her back helps with MS Hug, although she still ends up rolling around the floor or bed, barely able to speak because her abdomen is so tight and uncomfortable. She's already taking Diazapam on occasion and daily high dosage of gabapentin, although i don't think she's tried Baclofen, so we'll have to talk to her MS nurse about that.
My Father had MS I'm now developing similar symptoms. I'm a bit younger than he was but I watched him go through it and stayed with him in in the hospital a few times. I've just been getting over a bout of sciatica where my leg is crippled and screaming in pain. Also my abdominal muscles are so tight, uncomfortable, aching, and sharp pain off and on on the right side. I've just had a CT scan that came back normal. I was really hoping something would show the source of all this pain. I'm using Diazepam and another prescription pain medicine to deal with it all. I take them once a day in the evening when the pain starts to get bad. I have an appointment to make with gastroenterology soon. So my plan is to make fresh juices and let my stomach and digestion rest a bit. I also need to get a food allergy test. I'm glad I found your page because it looks like I'm on track and lining up with what my Dad went through.
Have you asked for a neurology referral? Even if it was initially requested on the base of the sciatica worsening? I always feel that a CT scan isn’t quite enough in diagnostics - they really need to do and MRI. If they suspect anything from the MRI they can then request a lumbar puncture/spinal tap to look at oligoclonal banding. Don’t ever stop pushing or request for further investigation because this is your quality of life. And you deserve for it to be much better than it is. Always here if you need help. Have a look at the requesting referral/going through diagnosis video. I’m going to try and make videos shorter this year as it’s a long time to get to the point! 🙈 sending hugs your way x
@@makingsenseofmultiplescler2187 thank you so much! I had an MRI when I lived in California and fifteen or so years ago, maybe more. I need to get those results sent to my doctor. I'm working on having my older medical records sent here.
I hope this is t when I feel my rib cage isn’t expanding…. I call it”iron lung” and start feeling exhausted- my allergist keeps looking at it as asthma… ButI wonder if it’s poor nerve conduction of the intercostals and or diaphragm.
Chamomile tea…. And I can say it does make a difference if you use fresh or dried flowers as opposed to store bought tea; the fresh or dried flowers work better in my personal opinion
Have you looked into thiamine & other b vitamin problems. I had this crap for years along with the vision blurring thing,. It turned out I had a problem with methylation and methylated b vitamin complex along with methycobalamin, which causes almost identical problems to MS. I'm pretty sure they never check mthfr gene mutation in the UK. Just a thought.
Oh I got a attack this morning and my dog thought I was going crazy and my visitor thought I was playing a game . Just like you , I was folding up dubble and starting sort of screaming . Freaking scary . Previous times they were shorter and not as bad this one a long bastard pain . My poor dog was wondering what the hell was going on
You are so helpful and thank you. I am waiting to see a Neurologist still as it’s a 56 weeks wait from date of referral. I was hit with a severe symptom this week which now takes it to 30 symptoms. I have had horrendous head pain and been violently sick. Am I going mad if I said that my vision has turned to grey and white at times for a few seconds. Also flooring at times looks like it comes up and stands on it’s side. Is this another classic symptom ?
Hello. Can I ask a question, I’ve not got a diagnosis of MS. But I have been experiencing a pain like this. I tried to explain it to my GP as a tight belt around my ribs/chest, but they said it’s probably trapped wind. I googled ‘facial neuralgia and a tight band around my chest’ and it came up with MS. I haven’t mentioned this to my GP yet as I’ve already been sent for an MRI on my cervical spine as they’re checking for a trapped nerve or something causing a lot of pain in my neck and shoulder.
I got this symptom for past 1 year (it never goes away). Started to occur after I recovered from covid. My heart test, ecg, eeg n USG were normal. Probably I'll meet the doctor again.
Can this just be a sensitivity thing too? I can't stand ANY weight on my sides or middle torso. For example, if my hubby and I are cuddling, he can't put an arm around my middle when we're laying on our sides. It makes me CRAZY
Oh my gosh, your dog … so funny 🤣 I don’t know if what I got is this but I can relate. Does anybody experience like a restriction in breathing during one of these attacks?
I am experiencing this suspect MS hug extreme tightening around torso /abs and breathing difficult at times. Aswell as trouble swallowing at times. I put it down to chronic stress for 8/10 weeks. Is a brain MRI scan or CT scan the best direct diagnosis of MS? or can blood tests be done specifically to spot MS? As i have explained these symptoms to my GP over the phone post Covid R cannot get into see a GP. absolute nightmare
To fully diagnose MS they usually need two steps. First one is MRI scan and second one is a lumbar puncture/spinal tap to establish the number of oligoclonal banding. Bloods wouldn’t show any signs of MS other than perhaps heightened white cell count or raised inflammatory markers. I would definitely push for a neurology referral and an mri to see what’s going on. Sorry to hear you are experiencing this. It’s not pleasant. But you’re not alone 🙂
Thank you so much for getting back to me and giving me a proper direction of diagnostic tests to rule out MS. Just as you mention blood tests . I was on Naproxen for inflammation and i took an adverse reaction to it. they did my bloods at hospital and the nurse said he noticed that my white blood cell count was extremely high. One kind of knows their own body. But spinal tap and brain MRi will be the way to go. Here in N Ireland we have a big shortage of Neurologists waiting list is 1.5 years to see one and 8 months to see 1 private.
Thank you so so much for replying and giving me a proper protocol of various diagnostic tests that need to be done. I really appreciate it. One kind of knows their own body and well being. As you say about bloods i was told my white blood count was extremely high. To get to see a neurologist here in N Ireland we have a huge shortage and huge waiting list like 2 years. Going private to see a Neuro is 8 months. I may pay private to get a Brain Mri private in Republic of Ireland . probably best thing to do. I know i am out of sorts. brain fog, swallowing, extreme tight chest, blurred vision at times. All came on from chronic stressful situation where i was in fight or flight for 8 weeks following physical impact to my lower spine. Again thanks so much for replying to me i really appreciate it xx
@@MP-po6fj I hate that you’re having to wait so long. Because that can potentially impact the permanence of any lesion or brain damage. It’s better to have it seen to asap so they can intervene with immunomodulators or DMDs to stop any progression. If you worsen in any way shape or form, call the appointments line for NHS or local health service and tell them condition is worsening. That way they will push you up the list. And if you can afford to go private, it’s absolutely worth it. I believe that if they hadn’t intercepted my MS when they did, I would have been left with the chest down paralysis and sight loss that I was experiencing. Only you can fight for your healthcare better than anyone. And might I also suggest your local MP/councillor. They can help with your appt too. 🙂 always here if you need an ear. 🙏🏼
Hi Ya thank you so so much for getting back to me with sound advice and action plan going forward. Would you advise a CAT scan or a MRI brain scan to go private asap for a scan to rule out MS or other neurogenic disorders? Which is the best between the 2 scans? I know very little about MS tbh. But i think they say MRI brain scan is more accurate? but i could be wrong?. I can go private and get a MRI brain scan within 4 weeks with a GP referral letter in ROI private scanner centre. As their are private agencies that have MRI scanners now 350.00 GBP done and dusted in 4 weeks for a MRI brain scan. 300 euro each section for an back MRI as you have 3 sections Cervical, Thoracic, Lumbar Or is the lumbar spinal tap the best way to get an accurate diagnosis. I have so many symptoms at present. Severe fatigue , difficulty swallowing, tight muscles in chest, seeing black dots. Cognitive Fog . Extreme tiredness all the time etc Just feel so out of sorts. Since Covid 19 R My GP surgery to get an appointment 2 days ahead you have to ring between 9 and 930am each morning and it is literally impossible. I mentioned to my GP on the phone a few weeks ago i feel poorly and could i be referred to see an Neurologist and he said we have a shortage of Neuros in N Ireland. it will be 2 years waiting list on NHS. Or 8 months private IF you are even willing to pay £260.00 for a private consultation before paying for any tests. Unreal I am so concerned i may go to A and E thats where everyone is directed now since Covid 19 and they are understaffed and waiting lists are 8 hours at least. if I had the money i would pay for private healthcare plan and you would get all the tests needed done and dusted in a week or two to rule out A B and C. Its the waiting time and the unknown is the worst. Thanks for giving me ideas to try and reach out for to push to get diagnosis. I really appreciate it Michael P :)
Thank you❤ I had a question .. I understand it's called an ms hug so maybe my question is silly. But I'm wondering if this hug could potentially be a symptom of any other type of disease or disorder??. I'm still in the nothing's wrong with you fais 😢 and I'm trying to learn as much as I can to at least describe my symptoms more accurately. I def have this symptom. Ty
I’m still waiting on diagnosis but dr calls mine…costochritis (sp.) but I feel it almost ever day…I use heat and have used my daughters preggo belly band on backwards lol😂
I think I'm having these hugs along with alot of other things. But I've not been diagnosed. I find it hard to go shopping, my spine goes into a spasm. Then the tightness starts around my chest and upper back starts. Then my eyes start going weird and I get a headache. I feel like im hungover without the alcohol. Does this make sense to anyone?
It’s really not pleasant. Make sure she reaches out to someone for help if she needs it- there’s always something that can be done to take the edge off it until it passes. Big hugs to her.
The ONLY thing that helps me is to lie flat down on the floor! Not the bed, not the sofa the floor. If I have time I will get a few swallows of water and drink them when the pain is so bad and it gets a little better, but lay back down on the floor! Get up only when you know the hug has left your body!!
In summary, when you are physically exerting yourself ....stop and rest. Drugs not needed for pressure hugs? I am still wondering what this pressure feeling is in my back and shoulders....feels also like someone is pushing me underwater when I am on land.
Wow I was literally am Literally going through a really really bad one and wow it might help you to get to the point quicker on remedies then speak on them because it’s quite long and excruciatingly difficult to understand what you’re saying with all of the interruptions.
I’m sorry. I’m not trying to disagree with you. But I am literally ALONE in this world. I feel like I’ve always been alone except for when I served in the United States Air Force I was never alone in the Air Force. I was forced to medically retire once I got multiple sclerosis. My mother and father have passed my brother and I don’t talk. We never have I left at 18 years old and never went back because it was a very, very difficult abusive, upbringing lived. So I never went back a few years back. I tried to look for family couldn’t find any of them. I’m literally alone. I’m so alone. I can’t even get anybody to give me a ride for an MRI. I have to be knocked out for my MRI because I can’t sit still, and I have claustrophobia. Yeah I haven’t had an MRI in over two years now and I’ve had active stuff going on in my brain. I feel like. But I don’t even know your name. I just discovered your videos today was diagnosed 17 days after my son was born in December 2001. So I’ve had this for a pretty long time and I never understand what people mean when they say you’re not alone well, I’m looking around me. Nobody’s here. I’m not alone because my cats always around so yeah if somebody could please explain that to me maybe help me to find a way to look at it differently Thank you so much for making your videos. The first video I watched was the absolute best video I’ve ever seen where somebody described the cognitive the speech all that stuff that when I go out in public, I sound like a special needs person who has different speech. Ugh. But thank u so much for what u do!! I just love ur accent too. It could put me to sleep. It’s so soothing. lol
Ms hug is a stupid name just like a little scratch when its a bloody bee sting at the hospital taking your blood. Its more like a tight band around your chest . Hope you're doing better and I hope them Gremlins go away. Hugs.
Feels like I'm getting smothered sometimes, also it's hard to tell difference between it and anxiety but I know it is this as I have rrms, so there is no way it's only anxiety.
Thank you so much. Yes, sometimes I do feel very much alone with this. Dr's don't believe you, the ER is not helpful and as loving as your family can be, they think you should just keep going because they can't physically see what's going on. Thank you so much for being here and I pray strength for you and all those who are suffering.
I am at the hospital for the first time being diagnosed with MS. I’m already being “hugged”. I am so thankful for finding your videos. You bring a little light and confidence to me because you are so real about it. Thank you.
I used to say it feels like I'm wearing a corset or being crushed by a vice. I've had this along with other strange symptoms for about 15 years and now I'm awaiting MRI results. It's strangely comforting hearing someone talk about something I thought only I experienced.
Just had this happen in Wal Mart yesterday.
Good lord, I feel the same way. It does feel comforting even in the least bit. Although I’m sad thinking I might have MS . 😢
Holy crap!
Thank you for this video. This is exactly what I’ve been trying to explain to the Drs. No Drs ever know what it is.
I hope it helps! It’s crazy how many doctors don’t even know it exists. If they ask a neurologist or ms nurse they can be brought up to speed x
Your video is the absolute best I have found. Most of them are junk, even from the doctors!
People with ME/CFS can also have an 'MS Hug' ME is in the same class of illness as MS but after having ME for more than 40 years I am only now learning that there is a name for the horrible vice that crushed me off and on during these years and now it is almost a constant for me. Thanks for your video.
The heating pad! I used it on my check and back and I can feel my legs and butt again! Thank you! It was like I had Novocain from the waist down. I’ve been trying everything. Thank you. 🥹🥺🥹🥺
It's the first time since my diagnosis (2009) that I feel this tightness around my abdomen. It feels as if I was wearing a wide tight belt, strapped around my rib cage. It's been two Days now and it's sooo incomfortable. I was wondering what it could be, all evening tonight, when I suddenly remembered reading about the MS hug once, in an MS magazine.
It didn't strike a nerve with me at the time, since it wasn't a symptom I had expériences. I'm glad I remembered and am looking it up.
Oh, my gosh, what a delightful accent you have! It makes it even more interesting while listening to your UA-cam video. And you are such a beautiful person too and so well spoken. Thank you for sharing your knowledge about the MS hug! MS could be such a lonely journey...
... especially as sooo much of it's symptoms are invisible.
You should hug your old dog, she is so precious....a gift from the creator.
The 1st several times it happened to me, I thought that I was having a heart attack.
Me also
I was diagnosed with RRMS in 2006. I started experiencing MS Hug about 6 or 7 years ago in my chest shoulders & neck. Sometimes, it's on one side. Other times, it is on both sides. It took a couple of years for me to figure out what it was. I had heart tests, stress tests... i had to do my own research to find out about MS hug. When i brought it to my Dr's attention, they had not heard of it. Found out thats what it was. MS Hug. Physical Therapy was what ended up helping me.
Wow, everything is the exact same with me. I’ve had a cardiac cath and they say it’s normal but I feel the tightness in my neck and shoulders. That’s why I stopped lifting weights. What makes you feel better?
I am relieved to hear it can occur in the back, too. Over the 2023 New Year’s weekend, I had significant pain and spasm across my chest and around my upper back/shoulder blades. It kept coming and going all weekend. Other times, I get that on my left side. I also frequently experience horrible, debilitating muscle spasm along the bottom of my rib cage, and that takes my breath away. I have seen a cardiologist, and had the full gamut of cardiology tests, short of an angiogram. No issues with my heart we’re observed.
I don’t have a diagnosis, but I am finally going to a neurologist/MS specialist in a month. I felt for a few years I may have RRMS. I have journaled all my symptoms for the past two years, although looking back I have had symptoms for maybe ten years.
I have also seen an endocrinologist to rule out a hormonal issue with testosterone or thyroid, due to the crippling fatigue and brain fog. I actually hope they do find some thing on MRIs, so I can finally have a diagnosis/explanation, and I can get the treatment I need.
Your videos are more helpful than any neurologist who only wants to talk about DMTs and then they are gone. ( I was only diagnosed a little over a month ago.)
Thank you so much for this! I had a Spinal Cord Injury 6 years ago affecting C5/6. This seems to have triggered MS symptoms and I have been having the MS Hug constantly, going from bearable to intense discomfort to breath-holding pain. I also have pins and needles in hands and feet - I feel I am plugged into the National Grid - and walking is now more like ‘lurching’ so use a stick. But worst of all is the Hug. No diagnosis as local GP not interested in us oldies. I consider myself lucky as original diagnosis was that I wouldn’t walk again. But managing pain is difficult as I don’t want to become addicted so tend to just wait it out instead of chucking down OTC tablets. Wine helps.
Thank you for sharing. I am having the MS hug for 3 weeks now 24/7 and it’s been tough. Just came out of emergency with high dosage of steroid and no help. Finding any information is always helpful.
This is terrible Erika. If you’ve any requests for videos please do ask xx
how u feel actually,, plz create group with ms hug
So that’s what I’m feeling! Been telling people I feel like I’ve got cling film round my torso! Got the chilled leg feelings too! Thanks for such a clear explanation and stay well x
I recently had my gall bladder removed.. ive had mri ct scan endoscopy etc nothing showing up but suffer evertday with this hug feeling its really bad wen i walk i get pins needles and like burning pains in feet and hands im waiting for a hida scan to rule anything else out but i will mention this to my doc hopefully can look into it ive just started take baclofen . Subscribed
Thanks for sharing this. I am 61 years old and have just been diagnosed with MS. The hug is so frustrating to me, I am going to try some of what you have shared. I likely have had MS for many years, it was just pushed off as other symptoms of other health issues I have had to deal with. My first hug started out slow and eventually covered a wide area of my chest and abdomen, this lasted almost an entire month. I had just started a vacation and was on a cruise for 12 days, my strange feeling started when we landed in New York, the day before the cruise. Eventually on day 2 of the cruise I realized my feet were numb up to my hips and gradually my torso. Then Hug. It stayed that way my entire vacation. I had a cane with me due to the fact I had balance issues and brought it just in case.
After returning home and seeing doctors, MRI, Nero-Surgeon, then , MRI, Neurologist, more MRI’s , bloodwork and then diagnosed with two lesions, one on brain and one on spine, both inactive. As I look back in my history I see signs of this, but all in all , I am very thankful I am doing as weal as I am. Currently am being Hugged and some numbness in my legs, I will be starting on a medication soon as my TB test has returned.
Yes ! I’ve been describing it to ppl as being wrapped around by a boa constrictor! Informative video thanks! My MS hug just seems to be a constant at this point didn’t think to look for triggers
I use an electric blanket to lay on when I have severe pain or use an electric heat pad to wrap around my ribs (it fastens with velcro) when I have the MS hug. ❤
Thank you for this, I might have MS (Four doctors are concerned about it) and learning about it from other peoples experience makes it far less scary for me. I recently went to the Hospital for chest pain and they said it was likely neurological so it’s helpful to know about these things!
I tell others that my MS hug feels like I have a blood pressure cuff around my body that inflates until I can’t breathe.
This is exactly what I told my doctor who looked at me like I lost my mind. I have discussed it with the emergency nurse and she said it's nothing to worry about. It definitely feels like a blood pressure cuff that is squeezing the life out of you.
I tell people that I feel like I'm in a bear hug from a full grown Bear, an angry Bear! 😠
That's exactly how it feels to me, I have not been diagnosed, I have seen two neurologists, an opthamologist, an urgent care doctor diagnosed the pain in my left eye and left side of my face as trigeminal neuralgia, I have had horrible double vision for four years and have fallen many times, am now having difficulty walking. The hugs are becoming more frequent...
Exactly!
Thank you so much for this video ❤ I have now realised that I have had this for 20 years and only found out today what it is and what it’s called. Once again, thank you very much. PS your black leggins comment made my day.
Baclofen has been a life saver for me with muscle spasms & MS Hug. I dont like taking it too much because it makes me so relaxed that I cant do much after it kicks in. But then again, i cant do much when I'm having muscke spasms & MS Hug.
Just found you and thanks for this valuable information, I have had it over a week, I do know stress brings it on, I take baclofen and find heat better than cold and anything tight makes it worse, going to check out your other content now too xx
That's truth 💯 AMEN 👍 truth 👍. 👍 thanks for sharing this. 👍
Thank you so much, this is wonderful information.
Physical therapy helped me. I still do the exercises when i get the hug. It helps. It doesnt last for weeks like it did when I 1st started having it.
How old are you my friend?
I tend to get MS hugs from time to time.I take Baclofen when my legs bother me.Thank you for sharing that you take it when you have a MS hug.I will do that next time.
We all experience MS symptoms uniquely. Including the MS Hug.
For me personally, this particular symptom is hands-down the #1 Most distressing, uncomfortable, and nefarious of symptoms (of many) that I experience w/ MS.
In my personal journey with the MS hug, it's not just a singular sensation of feeling like I'm being squeezed. And most specifically, my MS hugs have evolved to the point where there's a tendency for this symptom to encompass the entire area from just below the clavicle, down to my groin area.
As the 'episode' intensifies, it get's to the point where I almost feel like I'm going to explode. The best way to describe it is the sensation that my entire chest and mid section is expanding to the point of bursting. Much like what happens when you fill a balloon with too much helium. And this sounds silly, but I become instinctually driven to remove clothing in the attempts to relieve pressure.
1. The chest pain unto itself is terrifying. And I've lost count how many times the Doctors have ordered chest x-rays, EKG's/ECG's, Troponin blood tests (a blood test used to see if you've had a heart attack), CT scans, etc. It got to the point where I told them, " My EKG/ECG is going to be normal. My Troponin levels are going to be unremarkable, and If you guy's give me one more chest x-ray and ct scan I'm going to become radio active."
2. My MS hug episodes will peak. And at this peak of any given episode I'll start getting intense pinching electrical shock sensations throughout various parts of my body. They're so startling and painful that it takes my breath away. Compared to the feeling of getting the wind knocked out of you. Complete w/ dizziness, near syncope, and my leg buckling at the knee.
3. I start getting cognitively confused and unable to concentrate.
4. The epic pins and needles sensation starts creeping in and spreading.
And although it's an almost constant symptom of mine with MS = During an MS Hug episode in particular, it Intensifies. Frankly, during an MS Hug episode, labeling it 'Pins and needles' puts it mildly. It's more comparable to the velocity of a torrential down pour of rain impacting the ground (or your car windshield). It stings. One day during an MS hug episode, I literally felt it creep up from the front base of my neck up to (and around) the underneath of my chin and head. Followed by numbness. Again, It's hands down the most insidious sensation I've ever had the misfortune to endure.
5. You intuitively understand that it's ravaging your body.
I feel exactly like y
So I watched this video of you a few weeks ago. I found not only interest in your topic but your personality as well. Fyi I looked up(searched) ms hug England girl up and you were the 1st video...#hashtag that. Anyway I also experience MSHug. I have found a 5% latacaine patch to help as well as a topical my pain dr uses with ketamine/latacaine/gabepentaine/topical they make in-house as a valuable treatment as well. Enough I thought I'd share. Thanks for sharing as well. You taught me to love my heating pad again while I ice my knee as a regimen too!
Just found you! Just started having MS hugs after being rear ended. Thought it was from the seatbelt but it is constant although the pain subsides the pressure remains. Looking forward to future videos! Thank you!
I’ve had a little bit of a blip from taking time for videos but your kind words give me motivation to keep on. I’m so so glad it’s helped in some way ❤️
Stretching your torso instead f
Of crunching down keeps the muscles from being able to contact as tightly. I also use dry needling with E-stim and muscle scraping for a medication free approach, but keep baclofen close by for the worst ones.
I’m so very happy to have found your video. I have been living with MS for 28 years. I’ve experienced many of the worst situations and I’ve never heard anyone else besides myself that speaks about the symptoms and experiences the way you have.
After many years of using a cane to help me walk, I had to begin using a walker. Within the last three years I’ve been in a wheelchair and that has been the hardest thing to get used to. But hearing you talk about your own experiences and pain and the trial and error of the different drugs available I must admit that Baclofen has been my constant savior in pretty instant relief. I’ve enjoyed your video and subscribed so I can have the feeling of comradely.
be careful, I had a subarachnoid haemorrhage following 6 weeks of baclofen treatment
Thank you! This was very helpful. Love your lightness and sense of humour! Lol
You crack me up girl! Lol Loved it! Thank you so much for making this video. You were very informative. Thought you did great! Love the dog! 😁
Glad you liked it!! x
I would love to get a copy of the spine diagram you presented. Could you tell me where I might find one? 😊 I have not yet been diagnosed with MS, but feel certain I have many of the symptoms. Your videos are helpful to me to explain possible solutions to issues. Thank you so much for your factual and informative, concise videos!
I have that hug symptom when i first wake up. I cant hardly breathe sometimes. That "hug" goes away after being up and walking around for 10 or 15 minutes. Now im wondering if i have ms. I have numbness in hands and arms and and started out like carpal tunnel . Hmmm. Im 79 so have i had it for years and didnt know.
The feeling of carpal tunnel is real! It’s getting worse though. I’m 32
I think most people get diagnosed between 20 and 40, so maybe it's something else? Maybe a herniated disc?
I used to get this symptom a lot when I was younger, now my symptoms are different and depend on the stress I'm feeling at the time.. I hope you feel better soon. When I changed my diet, it really helped a lot with my symptoms. I became vegetarian and now I'm vegan.
Hi, hope this finds you well... I wondered if you could attach a link for the braces you mentioned in this video, I sometimes get the hug & am always looking for alternative methods of pain relief. By the way, I love your sense of humour in this & all your vids. Love & light to you MS warrior.
Yes I can: if you go to Amazon and type in "Sciatica support belt, they are usually about the right size to accommodate some pressure on the affected area - they range from £10-£20 / $15-25 roughly :-) Sending hugs - not MS ones though!
I love your videos! I have just started having the Hugs for the last month and I found your advice very helpful.
Could you do a video addressing balance and gait, particularly on uneven terrain like sand, or squishy carpet?
I certainly can- I’ve added it to the list Linda. I’m so glad it’s helping someone! If you can take it easy and rest a little it’ll help the hugs ! It’s not easy to do though. Big hugs! Xxx
I loved your message. I just went to ms hug to remind myself what I did last time I was hugged. My neurologist has given me solumedrol but it’s 11pm and I have to wait.
Thanks for the help. I did take. Tegretol, THC, and gabapentin now. Ugh.
❤️😳👋
excellent info....thank you so much.
Thank you for this…….I think I am currently experiencing my first MS hug 😣 it doesn’t exactly feel like a hug, it feels like I really pulled out my back but I didn’t do or feel the exact moment when you know “crap 😖 I just pulled my back!”. I just started feeling sore and Over a few hours it has become full blown pain. Because it’s so severe and came on so fast without any reason is the reason I’m thinking MS hug 😟 I’m in the US and unfortunately it takes weeks or months to get out in to see doctors 🥺 and I’m in Florida so we currently have all the damn snow birds here and they hog ALL appts. I feel doctors should leave some openings for permanent residents. I seen my neurologist in about 4 months, so I have a ways to go. I think I will at least call dr this week to report it.
I was diagnosed in 2006 and so far I’ve been very lucky but I have been slowly getting worse….this ms hug (if that is what is happening) may be my next new issue.
Thank you for this video 🙏 I have subscribed and look forward to watching all your other vids. I hope you are doing well and wish you all the best luck ☺️😘 MS can be hard and very frustrating because people can’t see how we feel.
This helped me. You mentioned your back. It’s been years. I thought it was just back pain. Just dx RRMS 12/15/22. Fun Christmas Eve here. Thanks again & I hope you got some help (yeah. I know).
I immediately wanted to say as I began reading your paragraph here I was gonna say oh girl you will know when you have MS hug sometimes they come on like all over like really quick and sometimes I like gradually creep up on you whatever you do stop breathing try to take deep breaths to expand your ribs. A little it might hurt a little, but it’s like no pain no vein, right But if you can breathe like that. Xox
😂 Great video but at the end the bit about the boa constrictor was so loud in my headphones! I was listening to the video and doing work at the same time and them BAM! Scared me so much!😂😂😂
Idk if mine is the hug or not. I just got dx with RRMS. I’m new. It hurts around my back where the bra strap is & when it happens, I don’t even like a piece of cloth touching my chest. It feels like my bra is too tight, even if I’m not wearing a bra. I’ve had that for years. It’s a dull, deep, ache. It’s just not going away. I feel like puking. - brain only. Clean spine. Maybe it’s just back pain in the same spot for like 97 years. Thanks for this video. This has been the most helpful info I’ve found (even Dr. Boster didn’t get this one right). - just subscribed. Thanks again
Kane gonna bring yall to the promise land? #anythingtokeepmymindoffthesymptoms
My wife finds that having a vibrating back massager run across her back helps with MS Hug, although she still ends up rolling around the floor or bed, barely able to speak because her abdomen is so tight and uncomfortable. She's already taking Diazapam on occasion and daily high dosage of gabapentin, although i don't think she's tried Baclofen, so we'll have to talk to her MS nurse about that.
My Father had MS I'm now developing similar symptoms. I'm a bit younger than he was but I watched him go through it and stayed with him in in the hospital a few times. I've just been getting over a bout of sciatica where my leg is crippled and screaming in pain. Also my abdominal muscles are so tight, uncomfortable, aching, and sharp pain off and on on the right side. I've just had a CT scan that came back normal. I was really hoping something would show the source of all this pain. I'm using Diazepam and another prescription pain medicine to deal with it all. I take them once a day in the evening when the pain starts to get bad. I have an appointment to make with gastroenterology soon. So my plan is to make fresh juices and let my stomach and digestion rest a bit. I also need to get a food allergy test. I'm glad I found your page because it looks like I'm on track and lining up with what my Dad went through.
Have you asked for a neurology referral? Even if it was initially requested on the base of the sciatica worsening? I always feel that a CT scan isn’t quite enough in diagnostics - they really need to do and MRI. If they suspect anything from the MRI they can then request a lumbar puncture/spinal tap to look at oligoclonal banding. Don’t ever stop pushing or request for further investigation because this is your quality of life. And you deserve for it to be much better than it is. Always here if you need help. Have a look at the requesting referral/going through diagnosis video. I’m going to try and make videos shorter this year as it’s a long time to get to the point! 🙈 sending hugs your way x
@@makingsenseofmultiplescler2187 thank you so much! I had an MRI when I lived in California and fifteen or so years ago, maybe more. I need to get those results sent to my doctor. I'm working on having my older medical records sent here.
@@choppinbroccoli7037 It's seems like you have Haital hernia. Go gor a endoscopy test soon.
I hope this is t when I feel my rib cage isn’t expanding….
I call it”iron lung” and start feeling exhausted- my allergist keeps looking at it as asthma…
ButI wonder if it’s poor nerve conduction of the intercostals and or diaphragm.
Your dog is awesome 😂
Chamomile tea…. And I can say it does make a difference if you use fresh or dried flowers as opposed to store bought tea; the fresh or dried flowers work better in my personal opinion
And this whole time I thought it was a electrical nerve feeling. It's really like a muscle spasm burning feeling?
Have you looked into thiamine & other b vitamin problems. I had this crap for years along with the vision blurring thing,. It turned out I had a problem with methylation and methylated b vitamin complex along with methycobalamin, which causes almost identical problems to MS. I'm pretty sure they never check mthfr gene mutation in the UK. Just a thought.
I have transverse myelitis and there is the TM hug which is the same. Many symptoms in common but with much less support
Oh I got a attack this morning and my dog thought I was going crazy and my visitor thought I was playing a game . Just like you , I was folding up dubble and starting sort of screaming . Freaking scary . Previous times they were shorter and not as bad this one a long bastard pain . My poor dog was wondering what the hell was going on
I find an ice pack works with the pain. Mine goes across my front ribs.
Also hot bathing relieves it, I live very close to a frozen lake and in North
You are so helpful and thank you. I am waiting to see a Neurologist still as it’s a 56 weeks wait from date of referral. I was hit with a severe symptom this week which now takes it to 30 symptoms. I have had horrendous head pain and been violently sick. Am I going mad if I said that my vision has turned to grey and white at times for a few seconds. Also flooring at times looks like it comes up and stands on it’s side. Is this another classic symptom ?
LOL! "I just peed", thank you for bringing humor to this life.
Fab video, thank you!
Is the reason for Ms hug have to do with vitamin deficiency like B12 and vitamin D3
Mthfr gene mutation & methylation issues can cause those symptoms from personal experience.
im feeling there tight elastic band around chest and rib cage its create lot of issues,, and same time feeling something rock lodge in throat area
Make sure you always get checked out by your dr - just to make sure there's nothing else going on :-)
Acid reflux most probably haital hernia
Hello. Can I ask a question, I’ve not got a diagnosis of MS. But I have been experiencing a pain like this. I tried to explain it to my GP as a tight belt around my ribs/chest, but they said it’s probably trapped wind. I googled ‘facial neuralgia and a tight band around my chest’ and it came up with MS. I haven’t mentioned this to my GP yet as I’ve already been sent for an MRI on my cervical spine as they’re checking for a trapped nerve or something causing a lot of pain in my neck and shoulder.
I have a golden too. She moans and harrumphs all the time. 😂 Yours is beautiful. Thank you for explaining MS hug xx ❤
I got this symptom for past 1 year (it never goes away). Started to occur after I recovered from covid. My heart test, ecg, eeg n USG were normal.
Probably I'll meet the doctor again.
Do u have MS ?
I've had it for a year too. Did you get vaccinated?
If you force a breath during this, do you feel like there is a kind of extra painful SNAP sensation as the breath comes?
🤣 'I just peed myself . . .' Stop, please! It hurts so much to laugh. 🤣🥰 Thanks for the giggles and amazing information.
Can this just be a sensitivity thing too? I can't stand ANY weight on my sides or middle torso. For example, if my hubby and I are cuddling, he can't put an arm around my middle when we're laying on our sides. It makes me CRAZY
Oh my gosh, your dog … so funny 🤣
I don’t know if what I got is this but I can relate. Does anybody experience like a restriction in breathing during one of these attacks?
I am experiencing this suspect MS hug extreme tightening around torso /abs and breathing difficult at times. Aswell as trouble swallowing at times. I put it down to chronic stress for 8/10 weeks.
Is a brain MRI scan or CT scan the best direct diagnosis of MS?
or can blood tests be done specifically to spot MS?
As i have explained these symptoms to my GP over the phone post Covid R cannot get into see a GP.
absolute nightmare
To fully diagnose MS they usually need two steps. First one is MRI scan and second one is a lumbar puncture/spinal tap to establish the number of oligoclonal banding. Bloods wouldn’t show any signs of MS other than perhaps heightened white cell count or raised inflammatory markers. I would definitely push for a neurology referral and an mri to see what’s going on. Sorry to hear you are experiencing this. It’s not pleasant. But you’re not alone 🙂
Thank you so much for getting back to me and giving me a proper direction of diagnostic tests to rule out MS. Just as you mention blood tests . I was on Naproxen for inflammation and i took an adverse reaction to it. they did my bloods at hospital and the nurse said he noticed that my white blood cell count was extremely high. One kind of knows their own body. But spinal tap and brain MRi will be the way to go. Here in N Ireland we have a big shortage of Neurologists waiting list is 1.5 years to see one and 8 months to see 1 private.
Thank you so so much for replying and giving me a proper protocol of various diagnostic tests that need to be done. I really appreciate it. One kind of knows their own body and well being. As you say about bloods i was told my white blood count was extremely high. To get to see a neurologist here in N Ireland we have a huge shortage and huge waiting list like 2 years. Going private to see a Neuro is 8 months. I may pay private to get a Brain Mri private in Republic of Ireland . probably best thing to do.
I know i am out of sorts. brain fog, swallowing, extreme tight chest, blurred vision at times.
All came on from chronic stressful situation where i was in fight or flight for 8 weeks following physical impact to my lower spine.
Again thanks so much for replying to me i really appreciate it xx
@@MP-po6fj I hate that you’re having to wait so long. Because that can potentially impact the permanence of any lesion or brain damage. It’s better to have it seen to asap so they can intervene with immunomodulators or DMDs to stop any progression. If you worsen in any way shape or form, call the appointments line for NHS or local health service and tell them condition is worsening. That way they will push you up the list. And if you can afford to go private, it’s absolutely worth it. I believe that if they hadn’t intercepted my MS when they did, I would have been left with the chest down paralysis and sight loss that I was experiencing. Only you can fight for your healthcare better than anyone. And might I also suggest your local MP/councillor. They can help with your appt too. 🙂 always here if you need an ear. 🙏🏼
Hi Ya
thank you so so much for getting back to me with sound advice and action plan going forward. Would you advise a CAT scan or a MRI brain scan to go private asap for a scan to rule out MS or other neurogenic disorders? Which is the best between the 2 scans? I know very little about MS tbh. But i think they say MRI brain scan is more accurate? but i could be wrong?.
I can go private and get a MRI brain scan within 4 weeks with a GP referral letter in ROI private scanner centre. As their are private agencies that have MRI scanners now 350.00 GBP done and dusted in 4 weeks for a MRI brain scan.
300 euro each section for an back MRI as you have 3 sections Cervical, Thoracic, Lumbar
Or is the lumbar spinal tap the best way to get an accurate diagnosis. I have so many symptoms at present. Severe fatigue , difficulty swallowing, tight muscles in chest, seeing black dots. Cognitive Fog . Extreme tiredness all the time etc
Just feel so out of sorts. Since Covid 19 R My GP surgery to get an appointment 2 days ahead you have to ring between 9 and 930am each morning and it is literally impossible.
I mentioned to my GP on the phone a few weeks ago i feel poorly and could i be referred to see an Neurologist and he said we have a shortage of Neuros in N Ireland. it will be 2 years waiting list on NHS. Or 8 months private IF you are even willing to pay £260.00 for a private consultation before paying for any tests.
Unreal
I am so concerned i may go to A and E thats where everyone is directed now since Covid 19 and they are understaffed and waiting lists are 8 hours at least.
if I had the money i would pay for private healthcare plan and you would get all the tests needed done and dusted in a week or two to rule out A B and C. Its the waiting time and the unknown is the worst.
Thanks for giving me ideas to try and reach out for to push to get diagnosis.
I really appreciate it
Michael P :)
Thank you❤ I had a question .. I understand it's called an ms hug so maybe my question is silly. But I'm wondering if this hug could potentially be a symptom of any other type of disease or disorder??. I'm still in the nothing's wrong with you fais 😢 and I'm trying to learn as much as I can to at least describe my symptoms more accurately. I def have this symptom. Ty
I’m still waiting on diagnosis but dr calls mine…costochritis (sp.) but I feel it almost ever day…I use heat and have used my daughters preggo belly band on backwards lol😂
I think I'm having these hugs along with alot of other things. But I've not been diagnosed. I find it hard to go shopping, my spine goes into a spasm. Then the tightness starts around my chest and upper back starts. Then my eyes start going weird and I get a headache. I feel like im hungover without the alcohol. Does this make sense to anyone?
My partner has just experienced this in the pass week. But she hasn't had any other symptoms
It’s really not pleasant. Make sure she reaches out to someone for help if she needs it- there’s always something that can be done to take the edge off it until it passes. Big hugs to her.
Do you have an email contact regarding what you spoke about in this video?
Shirley2322@icloud.com 🙂
I feel bloated like full of gas and like a tight grip around my stomach. Is that a MS hug???
Does this happen several hours past doing activity?
I would describe it more as pulling.
Great video thankyou. I loved the dog lol
Yes nothing affectionate about this hug 😃😂so innoying.
The ONLY thing that helps me is to lie flat down on the floor! Not the bed, not the sofa the floor. If I have time I will get a few swallows of water and drink them when the pain is so bad and it gets a little better, but lay back down on the floor! Get up only when you know the hug has left your body!!
Oooo nooo!!! I went to the ER. I thought I was having a stroke 😢
I subscribed, too. 🥰
Hi. Can you develop an MS hug from anxiety? Or if you have ms hug, does it mean you have MS?
MS hug is a symptom of MS. Not everyone with MS gets it, but you have to have MS to get MS hug.
I have this feeling...chest tibs n abdomen feels like being squeezed to death ..😭 It's from Klonopin withdrawal.
You’re so beautiful!!
In summary, when you are physically exerting yourself ....stop and rest. Drugs not needed for pressure hugs?
I am still wondering what this pressure feeling is in my back and shoulders....feels also like someone is pushing me underwater when I am on land.
Haha my dog does that all the time.
I call it the devil's grip
Wow I was literally am Literally going through a really really bad one and wow it might help you to get to the point quicker on remedies then speak on them because it’s quite long and excruciatingly difficult to understand what you’re saying with all of the interruptions.
Prednsone takes it away.
I’m sorry. I’m not trying to disagree with you. But I am literally ALONE in this world. I feel like I’ve always been alone except for when I served in the United States Air Force I was never alone in the Air Force. I was forced to medically retire once I got multiple sclerosis. My mother and father have passed my brother and I don’t talk. We never have I left at 18 years old and never went back because it was a very, very difficult abusive, upbringing lived. So I never went back a few years back. I tried to look for family couldn’t find any of them. I’m literally alone. I’m so alone. I can’t even get anybody to give me a ride for an MRI. I have to be knocked out for my MRI because I can’t sit still, and I have claustrophobia. Yeah I haven’t had an MRI in over two years now and I’ve had active stuff going on in my brain. I feel like.
But I don’t even know your name. I just discovered your videos today was diagnosed 17 days after my son was born in December 2001. So I’ve had this for a pretty long time and I never understand what people mean when they say you’re not alone well, I’m looking around me. Nobody’s here. I’m not alone because my cats always around so yeah if somebody could please explain that to me maybe help me to find a way to look at it differently
Thank you so much for making your videos. The first video I watched was the absolute best video I’ve ever seen where somebody described the cognitive the speech all that stuff that when I go out in public, I sound like a special needs person who has different speech. Ugh. But thank u so much for what u do!! I just love ur accent too. It could put me to sleep. It’s so soothing. lol
Ms hug is a stupid name just like a little scratch when its a bloody bee sting at the hospital taking your blood.
Its more like a tight band around your chest . Hope you're doing better and I hope them Gremlins go away.
Hugs.
Wow! Your beautiful !
Feels like I'm getting smothered sometimes, also it's hard to tell difference between it and anxiety but I know it is this as I have rrms, so there is no way it's only anxiety.