As far as I heard on UA-cam from Peter Tass the professor from Stanford, the gloves will probably be available in 2026 latest. I had a friend help me make a pair of gloves. I then feed the Stanford papers from Tass to Chat gpt and had it produce the code for the Arduino Nano. I use it for two hours every second day and I really finds that it helps on my symptoms. I'm happy to share the code If anyone wants it!
David, first thank you for sharing and the whole channel content. The video conveys mixed feelings , and I found the title image in UA-cam sounds very dissuasive, which I found worrying, since I am finishing a pair of gloves for a close relative. That pushed me to have a look at some of your videos pre-gloves, and some more of the last year. I found comfort at the fact that your motor-symptoms seem to have notably improved (of course the gloves is not yoir only therapy). I think you should answer the question "would I do again the gloves or go directly to the vilim ball", and reconsider the video's front image and message based in the answer. For my relative, until I hear more from you and others, I stilk think some glove therapy will be useful, gradually transitioning to vilim ball. Thanks again.
I made a video with still images of my glove and connections to the Arduino. Link in the description to the Arduino code text document ua-cam.com/video/haAnpS5CIcs/v-deo.htmlsi=dZWGTo4c7INzJ6jT
WWP and age 74. My son made gloves for me a year ago and they have been very helpful. He did not use the Tass code for vibration but set it up as a random sequence. I have tremor dominant Park with right leg dystonia. My balance and sense of smell improved greatly and I experience far less insomnia, constipation and fogginess. In the beginning I used it for 2 hours in the am and again in the pm for 2 hours. I did that for 3 months and then switched to one hour in am and pm for about 6 months. I now use them for one hour in the evening. Interestingly, I went on a 2 week vacation and didn't take the gloves and after day 4 I was a wreck experiencing difficulty walking (balance + wandering) with painful foot cramps and debilitating insomnia. It took a month to feel better. I don't notice an improvement in my tremors however, but I will happily take the relief that I have achieved. I am hopeful that the Tass program will help me even more. best wishes to all Parkies.
Hi Laura, thank you for sharing your PD glove experience. Great work by your son to figure out a random sequence that obviously works well for you. I have heard from others that the gloves do little for tremors. Hopefully future evolutions solve that riddle. Thanks again!😊😁😃
I agree with you. In my case there has been almost no research for my autoimmune conditions which I’ve had over 25 yrs. You have to find your own way. Cardiac research for women (I now have CHF/afib) I would say is even slower than 17yrs. Doctors push antiquated drugs which have very low rates of success/reduced mortality and significant side effects. You made your point clearly and heartfelt. Thank you.
Hi Mishu, thank you for sharing a bit of your story, and for echoing what many I have heard from, feel and experience what you do. It would be great if we could somehow figure out how to bring about some change.😊😁😃
Brother..keep up with the great work ❤❤ you are doing a fantastic job sharing, educating and hope for us with PD. Keep the battle going! Maybe one day you can ask your dr. About dbs if it is an option 👊🏼👍🏼
Give up on the hope - let it go and just live in the moment. You will just frustrate yourself if you hope. Accept that you have this incurable, devastating disease, and you will live with it for your entire life. And, it will get worse. PD controls your body, not you. If you follow this non-medical personal advice, you will still be miserable and suffer, but your life will be real. You can slow down symptoms and temporarily reduce their effect but you cannot stop them. If you could, there would be a cure for PD.
Giving up on Hope? I feel that hope is the only way that I can live with Parkinson’s. With no hope what is there to keep us going and not giving in to the fact that we are going to die sooner than rather than later. Parkinson’s is not a natural death. When talking to survivors of some who had Parkinson’s it was better for there loved one to die because the disease was so horrible for their family to watch happen. This information from the family was not helpful either. People who don’t have Parkinson’s may want to think twice before they share their feelings about what they witnessed to a person with Parkinson’s. How was that information helpful or not?what has happened to being positive in times of distress and uncertainty? I would like to know how denial of a debilitating disease can be helpful? There are proven ways to cope with the anxiety, depression and stress of Parkinson’s these are symptoms of the disease not psychological byproducts but caused by the depletion of vital neurons. Mindfulness meditation, self-compassion are ways to cope daily so this may be a way of being present in the moment but to give up hope of finding or feeling able to cope with the degeneracy of progression of the body and mind issues that are present daily but fluctuating. Oh I feel physically okay now or not. To never lose Hope is what help us be Brave in this moment. The only other way I see that denial can be the only way that someone is able to cope with Parkinson’s deny that there’s a problem and continue living as best you can with no problems. There is nothing wrong with me. This is just the way it goes. That I see can be beautiful to the person who is able to stay in their denial. But I don’t have the ability to deny the pain of my symptoms physically, mentally and emotionally. Thank you for your insight on hope and what it’s not doing for you.
I think what you may have been trying to say is- Don’t let your Parkinson’s define who you are. Even this statement is very hard to make happen because of the complexity of Parkinson’s. I f I have physical symptoms most of the time how can I separate them from who I am? Sure I am who I always been but add the overwhelming symptoms of Parkinson’s disease how is that going to keep me from changing who I am? Or vice versa? I won’t let Parkinson’s change me??? This seems impossible because if I have the awareness of my Parkinson’s and my symptoms how can I not be changed? Isn’t life about learning and adapting to the experiences we live? The main end goal is to grow to be comfortable with self, right? What are we if we remain stuck in one place or belief. Isn’t it human nature to be curious about what is happening and how we can make it better? In my understanding it you have Parkinson’s, you do medication, exercise, diet, physical therapy, occupational therapy, speech therapy, psychotherapy, rehabilitation if a fall happens. Is there anything I missed?
@@sharonkaycomstock5535 Hi Sharon, thank you for your great insight, thought, care that went into your comment. I know that whoever reads it will find it helpful. Here is my video about "Does PD define who you are" ua-cam.com/video/A-2JPsPx8NM/v-deo.html
@@sharonkaycomstock5535 Hi Sharon, this is a great comment, so well expressed about thought out. You have not missed anything at all. Thank you for taking the time to leave something so valuable,💓💓
As far as I heard on UA-cam from Peter Tass the professor from Stanford, the gloves will probably be available in 2026 latest. I had a friend help me make a pair of gloves. I then feed the Stanford papers from Tass to Chat gpt and had it produce the code for the Arduino Nano. I use it for two hours every second day and I really finds that it helps on my symptoms. I'm happy to share the code If anyone wants it!
Yes, please, share the code.
David, first thank you for sharing and the whole channel content. The video conveys mixed feelings , and I found the title image in UA-cam sounds very dissuasive, which I found worrying, since I am finishing a pair of gloves for a close relative.
That pushed me to have a look at some of your videos pre-gloves, and some more of the last year. I found comfort at the fact that your motor-symptoms seem to have notably improved (of course the gloves is not yoir only therapy).
I think you should answer the question "would I do again the gloves or go directly to the vilim ball", and reconsider the video's front image and message based in the answer.
For my relative, until I hear more from you and others, I stilk think some glove therapy will be useful, gradually transitioning to vilim ball.
Thanks again.
I made a video with still images of my glove and connections to the Arduino. Link in the description to the Arduino code text document
ua-cam.com/video/haAnpS5CIcs/v-deo.htmlsi=dZWGTo4c7INzJ6jT
Thank you for sharing.😊😁😃
Thanks for the heads up and the help!😊😁😃
Tech support here. Glad I was able to help build the gloves. It was amazing to see what the gloves did for you.
Hi Trevor, all of your help and friendship is greatly valued.😊😁😃
WWP and age 74. My son made gloves for me a year ago and they have been very helpful. He did not use the Tass code for vibration but set it up as a random sequence. I have tremor dominant Park with right leg dystonia. My balance and sense of smell improved greatly and I experience far less insomnia, constipation and fogginess. In the beginning I used it for 2 hours in the am and again in the pm for 2 hours. I did that for 3 months and then switched to one hour in am and pm for about 6 months. I now use them for one hour in the evening. Interestingly, I went on a 2 week vacation and didn't take the gloves and after day 4 I was a wreck experiencing difficulty walking (balance + wandering) with painful foot cramps and debilitating insomnia. It took a month to feel better. I don't notice an improvement in my tremors however, but I will happily take the relief that I have achieved. I am hopeful that the Tass program will help me even more. best wishes to all Parkies.
Hi Laura, thank you for sharing your PD glove experience. Great work by your son to figure out a random sequence that obviously works well for you. I have heard from others that the gloves do little for tremors. Hopefully future evolutions solve that riddle. Thanks again!😊😁😃
Thanks for sharing! Keep up the great work with all your testing!
Thanks Michele. Hope you are doing well.😊😁😃
I agree with you. In my case there has been almost no research for my autoimmune conditions which I’ve had over 25 yrs. You have to find your own way. Cardiac research for women (I now have CHF/afib) I would say is even slower than 17yrs. Doctors push antiquated drugs which have very low rates of success/reduced mortality and significant side effects. You made your point clearly and heartfelt. Thank you.
Hi Mishu, thank you for sharing a bit of your story, and for echoing what many I have heard from, feel and experience what you do. It would be great if we could somehow figure out how to bring about some change.😊😁😃
Brother..keep up with the great work ❤❤ you are doing a fantastic job sharing, educating and hope for us with PD. Keep the battle going! Maybe one day you can ask your dr. About dbs if it is an option 👊🏼👍🏼
Hi GoPro, thank you, glad you found the video helpful. Very happen you got the DBS you needed.😊😁😃
I've had that vibration ball for a long time now and it did not help me a bit
Hi Trent, did you contact the makes of the VILIM ball to see if they had any suggestions?😊😁😃
Hello brother which madecine take you now
Hi Arup, this video lays out all of my treatments and medications.😊😁😃
ua-cam.com/video/dY8XnFr3jIo/v-deo.html
May God always bless you with good health and cure you completely Ameen ❤
Thank you wonderwoman, that is very kind of you.😊😁😃
Give up on the hope - let it go and just live in the moment. You will just frustrate yourself if you hope. Accept that you have this incurable, devastating disease, and you will live with it for your entire life. And, it will get worse. PD controls your body, not you. If you follow this non-medical personal advice, you will still be miserable and suffer, but your life will be real. You can slow down symptoms and temporarily reduce their effect but you cannot stop them. If you could, there would be a cure for PD.
Hi Alec, check this video please to hear my response to your comment. Thank you.😊😁😃
ua-cam.com/video/nvlTJrNJ5lA/v-deo.html
Giving up on Hope? I feel that hope is the only way that I can live with Parkinson’s. With no hope what is there to keep us going and not giving in to the fact that we are going to die sooner than rather than later. Parkinson’s is not a natural death. When talking to survivors of some who had Parkinson’s it was better for there loved one to die because the disease was so horrible for their family to watch happen. This information from the family was not helpful either. People who don’t have Parkinson’s may want to think twice before they share their feelings about what they witnessed to a person with Parkinson’s. How was that information helpful or not?what has happened to being positive in times of distress and uncertainty? I would like to know how denial of a debilitating disease can be helpful? There are proven ways to cope with the anxiety, depression and stress of Parkinson’s these are symptoms of the disease not psychological byproducts but caused by the depletion of vital neurons. Mindfulness meditation, self-compassion are ways to cope daily so this may be a way of being present in the moment but to give up hope of finding or feeling able to cope with the degeneracy of progression of the body and mind issues that are present daily but fluctuating. Oh I feel physically okay now or not. To never lose Hope is what help us be Brave in this moment.
The only other way I see that denial can be the only way that someone is able to cope with Parkinson’s deny that there’s a problem and continue living as best you can with no problems. There is nothing wrong with me. This is just the way it goes. That I see can be beautiful to the person who is able to stay in their denial. But I don’t have the ability to deny the pain of my symptoms physically, mentally and emotionally. Thank you for your insight on hope and what it’s not doing for you.
I think what you may have been trying to say is- Don’t let your Parkinson’s define who you are.
Even this statement is very hard to make happen because of the complexity of Parkinson’s. I f I have physical symptoms most of the time how can I separate them from who I am? Sure I am who I always been but add the overwhelming symptoms of Parkinson’s disease how is that going to keep me from changing who I am? Or vice versa? I won’t let Parkinson’s change me??? This seems impossible because if I have the awareness of my Parkinson’s and my symptoms how can I not be changed?
Isn’t life about learning and adapting to the experiences we live? The main end goal is to grow to be comfortable with self, right? What are we if we remain stuck in one place or belief. Isn’t it human nature to be curious about what is happening and how we can make it better?
In my understanding it you have Parkinson’s, you do medication, exercise, diet, physical therapy, occupational therapy, speech therapy, psychotherapy, rehabilitation if a fall happens. Is there anything I missed?
@@sharonkaycomstock5535 Hi Sharon, thank you for your great insight, thought, care that went into your comment. I know that whoever reads it will find it helpful. Here is my video about "Does PD define who you are" ua-cam.com/video/A-2JPsPx8NM/v-deo.html
@@sharonkaycomstock5535 Hi Sharon, this is a great comment, so well expressed about thought out. You have not missed anything at all. Thank you for taking the time to leave something so valuable,💓💓