Living with a Rare Eating Disorder | ARFID
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- Опубліковано 29 сер 2024
- Avoidant Restrictive Food Intake Disorder (ARFID) is an extremely rare eating disorder, so it's not often that I meet another person with the same issues as me! In this video, I ask Noelle to share some of her experiences with selective eating and how it's impacted her life.
Check out the video we made for Noelle's channel, where we have a more in-depth discussion about food sensitivities, allergies, and eosinophilic esophagitis: • living with food disor...
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I didn't know that I had ARFID until a week ago. It's so enlightening to see that other people experience the same thing as me. Someone should schedule a picky-eater picnic where everyone brings there own food and nobody has to be selfconscious eating in a social situation
Sophie Megan this reply is like super late but YES.
Um....I dont like to eat period or be in public with others eating....
I was diagnosed with ARFID a long time ago and I went to therapy for it for awhile but it never helped me so I’m still dealing with it, I’ve been watching a lot of videos or just using Google to understand it better but haven’t found any help this way so far either. I’m deciding to research it more now because I’m growing and without eating that can stunt my growth so I’m constantly worrying about that which is not helping with my anxiety.
I would love to but I can’t eat food wrapped
I sorta hate eating in front of people. But only people who don’t know about my disorder. But I would go and bring my safe foods and be happy.
I have ARFID but well before I'd ever heard of it, people in school thought I was anorexic. I have some pretty bad anxiety disorders, and when my anxiety is really acting up, my appetite disappears. School was a major source of anxiety for me, so I would often skip lunch, or if I did eat, it would just be a soft pretzel, and this started a rumor that I was anorexic, which I never have been. The nurse (who was also my best friend's mom) called me in to talk about it, and I fibbed a bit, saying I don't like to eat in front of large groups (Which I actually don't mind, provided I'm with people I know well) and that I would eat when I got home (Which was true). She accepted this explanation but I don't think she was fully convinced until I had a group project with my best friend, and I went to work on it at his house. We ordered pizza, and she saw me devour two (plain) slices and then sit with Mike (my best friend) working on the project for an hour, so I clearly wasn't anorexic or bulimic. Not that the students stopped saying I was anorexic, but at least the staff wasn't on my case about it. So that was a fun four years.
I've experienced similar things. At family dinners I won't eat because of my disorder, and family members will come up to me worried about me and tell me to eat because they think I'm starving
I have ARFID as well and I can say that I’m so happy I found this comment section
If it’s just “all in your head” (which is what I have also been told) wouldn’t that just make it more complex and complicated to untangle and help thru therapy? It seems to me that instead of it just being brushed off and left for us to just fix and “get over “ they would be trying to HELP OUR BRAINS FUNCTION BETTER....but instead we are told to just get over it...super cruel.
YAY I'VE NEVER SEEN ARFID REPRESENTATION!!
I feel soooo connected here!! I have Arfid, anxiety, dysphasia, and a phobia of choking. Everyone said it was in my head and well, I have physical and mental illnesses. I am overjoyed rn to know others out there understand❤️ I hope y’all have an amazing recovery.
I hope this doesn't sound rude.. but y'all look like you could be siblings. Almost twins. Maybe it's the hair and glasses
Yeah we get that a lot, oops :'-)
Shit I was shipping it 🥲
My doctor sent me to an eating disorder clinic and they told me i have arfid, when i went back in and told her what they said she still tried to have me hospitalized because im “Anorexic”
SO MUCH RELATING HAPPENING RIGHT NOW OMG YES
Thank you both so much for sharing. It means the world to me to hear from somebody else who struggles with this. I’m 19 now and I’ve essentially had the same dysfunctional bread/cheese diet since I was 2. It’s so freaking difficult to combat and often feels like nobody takes you seriously. Thank you so much, once again, and good luck!!!
“and so it was ironic because then i was allergic to apples” you needed an audience for that one cause it was GOOD😂😂 but seriously ty for this one! i know it’s been awhile to say the least probably, but hearing a POV like this has definitely helped. i would love to start a place hospitality wise for ARFID/ED-restrictive pallets :]
I have been looking into ARFID for my daughter. She is 7 now and since age 2 she stopped eating alot of the foods she ate as a “baby” and has eaten the same 5 or 6 foods. I have been told everything from she will grow out of it to let her starve and she will eat anything then (which I REFUSE to do thats just stupid old school advise). She is a very happy child, just when she tries new foods (and she does try) she will literally barf. Like rice makes her barf, pineapple makes her barf. She is comfortable eating in public because We have never made a big deal out of it. And her school allows us to pack lunches so its all good. I worry the world will judge her when she is older and she will develop anxiety. Thank you two young brave women for sharing your experiences. It really helps me to find a way to support my daughter as she grows. So many things you said are EXACTLY what my daughter describes to me. Thank you thank you thank you for sharing ❤
I’m so happy that I found your channel it made me understand that I’m not the only one with this.
I love how you talk about the combination of different things. I don't have ARFID but I do have EDNOS, gastrointestinal issues, likely food allergies, and anxiety, so they all kind of swirl together. I've considered going to either a naturopath or an intuitive eating coach because doctors are just so disappointing and view everything in isolation.
Hi Avory! Have you had any breakthroughs since this post?
I’m 14 and have arfid for as long as I can remember I only eat like 4 foods and it’s very scary! I’m so glad I have people I can relate to and glad I found your Chanel ❤️❤️
Hey I'm 99% sure that I have ARFID though I've never been diagnosed. For me I always felt like I needed to be on the "grown up" train. Eating fancy meals you see on TV shows or at least just not getting everything plain. I also felt so much extreme discomfort from trying foods I didn't think I ever would. It wasn't until I went to university at 24 that I started trying stuff. I was away from my family and I didn't feel the pressure like at home. Trying food still have me anxiety and felt like a brick wall I couldn't push through. But I pushed through a little at a time. And I can say, amazingly, I've found a lot of dishes I eat now that I didn't before! I love Houmous and pitta bread now, a Korean spinach dish, I discovered I liked sesame flavour like sesame oil noodles and stuff. I've tried avocado and had it on burgers and had haggis too. I've stopped thinking I *need* to be eating X, Y, Z or that my plate needs to look a certain way. Instead I allow myself the comfort of the foods I enjoy and I push myself to try new things when I feel like it. And I can take pride in doing that for me. I also know that when I have kids I am never going to pressure them to eat or force them. I want them to grow up with a curiosity for food. To get them involved in buying it, picking out ingredients, cutting it open, and trying it - in different ways - cooked differently. I really want that future 😊 I'm 30 now btw
I’m a grown woman and I always though and was told that I was just being picky and that I should just “expand my palette”. I’m very sensitive to textures. I basically don’t like any raw vegetables or fruit. I will only eat some of them cooked or blended. Onions (which are in everything) are my kryptonite. And I will literally get sick if I get a chive in my mouth. This has all lead to some abnormal eating habits like straining the seasoning for ramen and straining the vegetables out of pasta sauce.
The only symptom I do not have is being underweight. I’m actually overweight because all I eat are carbs. 🤷♀️
Thanks for sharing yourself with us. It’s nice to know that I’m not just being a baby or picky. It’s so much more than that and I’ve always known it. If eating something or the thought of eating something makes you cry, it’s more than just being picky.
"straining the seasoning for ramen" literally me my whole life!
@@samylee2803 oh my god I’m glad I’m not the only one 😭
Also in the ARFID and fat club. Unfortunate side effect of eating cheese pizza all the time.
So happy to find others who have my same issue. It’s bringing a lot of compassion and understanding, thank you.
omg I am glad I looked up videos on ARFID from youtubers and not from like doctors because they are no help. -.-
I was diagnosed with anorexia (I did not have this. AT ALL) at 16 and forced into a hospital or else they would take me away from my parents. I have an extreme phobia of throwing up (Emetophobia) which cemented my troubles with eating when I had a major triggering event regarding it and learned the hard way I was lactose intolerant. Also, both of my parents are naturally skinny and I assumed I just had their genes and ate whenever I wanted or when I felt hungry which wasn't often and when I did eat, I didn't eat a lot because I'd feel full quickly because I grew up as a picky eater. Parents really didn't know how to deal with me being like that so they just gave up forcing me to eat more.
Anyways, that hospitalization caused me to have extremely more trauma triggers which I learned several years ago that it had turned into PTSD and I would have flashbacks that I would struggle to get out of. I also have general anxiety, severe depression currently, panic disorder, as well as the PTSD and eating disorder. It wasn't until a couple years ago that my mom came across ARFID and I fit that category! I was so happy that I couldn't be labeled as anorexic anymore and that there was something just for me out there. My second round of ED treatment went a lot better than the one at 16 because they were now aware of the ARFID disorder and that anxiety and stuff affects my ability to eat. (Also, I do as well have texture problems and my taste buds are extremely sensitive and I have a strong sense of smell and a sensitive gag reflex with slight swallowing issues)
But yeah. Thank you so much for making this video. I would like to also educate people on my eating disorder so that there is more awareness about it for the people who are suffering under a misdiagnosis.
Your story sounds so similar to mine, omg! :o
My arfid was actually triggered by an allergy I have and they treated me (quote forcefully) for anorexia as a teenager. Fast forward and I'm in my 20's and they're saying it probbaly made my arfid worse considering I was literally force fed foods I'm scared off as a child 😅
Hello, I'm really enjoying your videos. I am 61 yrs old. I hope this will encourage you, but it does/can get better. Its not easy but it is possible. Its so nice to finally find a name for what we have. This also started for me when I was very young. I have never met anyone personally with this disorder. All while growing up I felt like a freak. Social situations were always horrible. I was bullied a lot in school. I also struggle with anxiety. I've had some awesome friends who have always been there for me and that has helped. I remember eating an apple for the first time and being so thrilled that I was eating some fruit. Feeling "normal."
So everyone.....hang in there, don't give up, keep trying foods when you are able to. I am still a picky eater but I've added a lot more variety to my diet over the years. Eating out is no longer an issue. I think now days, as opposed to years ago, people are more accepting and understanding than they use to be. Good luck to everyone out there struggling with this.....Blessings!!!
I'm 22 and recently had to drop out of University because of my diet. Flash forward to yesterday and it turns out I've had ARFID since I was 2. It is so, so validating to know that this is not just in my head after 20 years of feeling broken. I'm really determined to get better, and I want to thank you for making these videos!!
wow, I just found out I used to have that, it didn't last long because my parents ended out shoving food down my throught. I had really bad anxiety from my parents split and also how my dad was fighting my mum and threatening court and my step mum bullies me. it went on for 4 months, and then I started to get it back. I couldn't swallow anything solid for 4 months. I remember spitting out popcorn (that I couldn't eat) into the bin at the movies, I still struggle to swallow sometimes but anyway I'm happy I figured that out
thank you for making these videos, I have felt so alone for so long and I can finally connect with someone on this topic and I just thank you so much
Thanks for sharing ladies! I JUST got diagnosed with ARFID and it's a huge relief to be able to put a name to my lifelong struggle with food. Everything you described I was like "ditto! Ditto! Ditto!" I'm 57 and it got better for me in my 20s when I was on my own and nobody was pressuring me to try new things. If something smelled or looked good I'd try it, and slowly expanded my safe list.
idk whether or not you like ice cream, but the thing about breads and cheeses reminded me that a couple of days ago, at the ice cream shop i work at, (we have a whiteboard where people can write down their favorite ice cream flavors that we didn't have that day, and) someone wrote on the whiteboard "Grilled Cheese."
we have never had, nor do we ever plan to have such a flavor. and then someone else added the word "Spicy" in front of it. and it got at least 10 tally marks of people agreeing.
Omgosh I have ARFID, anorexia nervosa and legit food allergies!
Noelle, thanks for sharing this!! So thankful to see another person like me.
This changed my life. I had no idea other people were dealing with what I always thought was some short of curse. ❤️
Exciting and thought prokvoking discussion, thank you for you honesty and bravery to talk about something you are dealing with on a daily basis. Food is such an intimate part of how we humans, human and to be place as an outcast because of something you can't control is very de-humanizing I'm sure. ARFID isn't as rare as one may believe, most cases go undiagnosed and some feel the same but fly under the radar cause with most things in our world this disorder is a spectrum. I encourage everyone who is interested or may suspect that you or a loved one may have this disorder to seek professional guidance. UA-cam is a great starting point to build awareness but it's a not a place to seek treatment, even if the UA-camr is a licensed professional. All humans, human differently and in order to heal from any disorder physical or psychological you gotta find the right doctor for you. Great video, looking forward to future discussions!
This is really interesting. I had a horrible experience three years ago because I was misdiagnosed with anorexia. I wish the doctors had known about ARFID at the time. It would have saved me an awful lot of suffering.
I think it was 2021 when my local news ran a segment about ARFID. My mom saved it on the DVR and showed it to me because holy crap the thing I'd been living with for the past 33 years actually had a name. It's been kind of a surreal experience to learn more about it and wrap my around the idea that I'm not the only one who has this kind of relationship with food.
*When People Think You Have Anorexia* as someone with ARFID this title is a big fucking mood
This wins best comment
I’ve always been a “fussy eater” and told I have psychological issues but nobody ever looked into it, a few months ago I got annoyed at not having answers and began to look online to try and figure out what’s going on. I came across ARFID and instantly it felt right, I dug a little deeper to try and find out more and the more I uncover the more I realise that this is me. I’ve think I’ve finally found of why I’m like this, all that’s left is to finally tell my mum that I think I have a disorder, which is honestly terrifyingly.
(Ps. I’m 16 and have been like this for as long as I can remember)
I really feel you on when physical and eating disorders overlap, it makes everything SO much more complicated! I've had severe anorexia, but is partially recovered now (weight and eat normally) but still have my thoughts left. I also have gastro-problems which most likely is gastroparesis (slow stomach emptying) so I need to eat very special to combat that. Lastly, I take a medication that makes me super hungry!
So, I wanna eat low calorie for my past anorexia, I have to eat small amounts for my gastroproblems, but I'm so hungry I want to eat a lot of volyme and sweets all the time. No matter how I eat, some part of me is suffering. Right now I'm being kind to my stomach and eating little, which means I lose weight so my anorexia is happy, but I'm hungry all the time and I can't continue to lose weight forever.
Ugh... I hardly remember a time when food was uncomplicated. My anorexia started when I was 13-15 and now I'm 31. I will probably never have a normal relationship to food again.
The family thing is tough. My mom has struggled with weighing more than her body's set weight for a long time, so the fact that she's constantly trying to keep from stress eating more than she needs while I'm constantly trying to eat more than my brain says I want makes it really hard for us to both get the diet we need whenever I'm staying there.
Honestly, when she stopped eating lunch to lower her calorie intake and told me that I was an adult now and could just find food whenever was probably the moment that the worst ARFID symptoms I've ever dealt with were triggered. She didn't intend it, but I had absolutely no idea how to manage my own food and it gave me such anxiety to have to find and prepare food I could eat that I just wouldn't eat lunch.
Before that, I'd been relying on home-cooked meals on breaks and weekends from school to help make up for not eating enough on campus, but when that happened I no longer had the opportunity to make up lost calories, and my body just started deteriorating. Add trauma recovery on top of that, and my brain was just constantly in a fog.
I have just learned about this disorder since my 13 year old son,who was always an adventurous eater (even sushi), has started not liking a LOT of foods he used to love, and also takes forever to eat. Just starting down this road with getting him help. Mostly I’m concerned about getting him enough protein and calories to grow on as he mostly likes fruits and veggies. Good luck to everyone dealing with this!
I love your channel! I just found it and this explains a lot! I’ve been picky like my whole life and this past year I’ve gotten so bad with it. Every year I stopped eating more food but this year I gotten so much worse. When I was younger in daycare they made the food. So one day they made sweet potatoes and said if I didn’t eat it I would have to starve! So I refused to eat it and then she was like what if we add ketchup. I still said no, so she forced it down my throat and I gagged so I hard!!! That happened another time when I tried eating chicken, I gagged and she yelled at me :( Also, my mom worries a lot but at the same time she sorta dosnt care and gets mad if I don’t try new food. She has stopped caring and lets me eat the same food everyday now though :) 2 days ago my uncle and my best friend made fun of me for it and was like “go see a doctor.” People are like “just try food” I hate those three words smh :( I’m currently living on protein drinks, corn dogs, pasta, rice, and turkey burgers :) I’m a huge snacker too. Recently I went to my friends house and I slept over. They asked what I wanted for dinner and it was so embarrassing and awkward, so they got me McDonald’s which I love and also work at! But it was so awkward :( my whole life if I slept over someone’s house I would either bring my own food or the parents made me something different. Also, at camp in middle school that was 3 days I had to survive on lettuce and that’s it! Because you weren’t aloud to bring food so I ate lettuce for all my meals :( I’m hoping to seek treatment soon because I’m pretty sure I’m anemic because I faint a lot when I stand up from laying down too long or I blackout and get really dizzy :( Thank you for this Channel and I hope we can both get so much better and recover!! :)
I think I might have this. It developed out of nowhere and certain smells made me absolutely disgusted with food, and the taste could be so powerful and the THOUGHT of chewing made me spit it out and gag. I lost a LOT of weight and I really only eat a bit during lunch at work, and I eat dinner at 9/snack all night and that's it. I LOVE food, I WANT to eat and not lose weight but I physically cannot eat a LOT of foods. I can only eat fresh fruits/veggies with absolutely no problem whatsoever. I cant afford to see anyone so I'm trying so hard to attempt to figure out what's wrong with me.
I was diagnosed with anorexia, but was told i'm nothing like an anorexic... They literally said I have a different disorder but they can best treat me if they call it anorexia. I want to get tested for ARFID and hopefully I don't have to call it anorexia anymore.
I love Noelle’s shirt
THANKS
nowhalle I thought the same thing, but I dont know what it means.
It’s the shirt for a song called “6/10” by dodie Clark. You should check her out, she’s wonderful!
Morgan Mehaffey That sounds good.
Morgan Mehaffey Oh fam you were so right.
Cheese and crackers was my sole diet until about 12
I hate most food. Like macaroni, grilled cheese, cheese, soup, beans, almost everything. It can't touch anything on the plate, it has to be made the right way and be the right brand. It has to look the right way and it can't have any food I don't like in it. I thought maybe I have arfid but I don't think so because I'm not scared of food. I just don't like it. I even started out starving myself because I didn't like the food my school gave. (No longer starve myself and I don't have a starving myself type of disorder) So I don't know what I have but I'm the pickiest person ever I swear and I get pickier over time (I'm 13)
You do have ARFID
Thank you for sharing your stories- I think my niece- possibly both- definitely one (the other one may have a slightly different disordered eating issue) - and I just worry so much about how it's affecting their growth and how it will impact their long term health.
Thankyou for this.
It’s funny, I still have Arfid present today, but I used to have a really severe case when I was little, but my parents just thought I was a extreme fussy eater. When I was really little, I would eat absolutely everything, then at the age of about 3, after becoming sick over tomato source, I stopped eating, almost completely. (A bit vague, according to parents account this bit).The only things I eat for a while were Porridge, Pasta and this minor side food thing called Soreen. Eventually, they got me eating similar things to these foods, and since then, my dietary has slowly improved. Until I was 8, My mum had a list In the cook book of all my ‘selective bypass foods’ but most of them were minor things and not main dishes with most of them being fruit and Veg with Cheese and Milk being the main dairy I had. Furthermore, my family is really into running so I took the hobby up to, when I was 11 and I still do it now, however it does make me even skinnier. For years people just thought I was extreme fussy eater but ARFID fits me perfectly. I have never ever brought food from the cantine, with the exception of fruits like Apples, or grapes. Once I stayed at a dinner table for about 2 hours because I was forced to eat chicken but I literally couldn’t on a residential trip, and stayed there with a teacher until I finally ate it, but then was sick not long after. I hate eating out, and I find meals out difficult. I have not diagnosed with Arfid whatsoever, but after watching this video I’m almost certain that I have it. I’m 15 years old now, and if you are curious these a the only main dish foods that I like: (I don’t like food touching each other either) Pasta (Always plain, I hate sources), Bread/Toast, Rice, Porridge, Pizza (recently), and that’s it. I hate Meat, and I hate sources. I’m trying to like sausages recently but it is hard.
I haven’t been diagnosed with ARFID, though I (strongly) suspect I have it. I can’t eat anything whole without taking tiny bites to inspect the inside (ex. Grapes) and I cannot handle many textures. There’s more, but I don’t want this to be a whole essay haha 😙
I actually wanted to ask anyone who has an ED a question, and I’m sorry if it’s tmi or something
Do you guys have a problem with your stomach always being really loud 24/7? Like, I know I probably eat less than I should, but it’s not like I’m starving or anything.. idk I was just wondering if anyone else deals with this and can tell me that it will go away with a diagnosis and treatment 😶
I can't forget the day that my mom said that I must hate myself because I barely eat anything, she refused to listen to me at all. I wish I could tell her that I don't hate my body, I just don't eat as much as other people, I feel like I can't eat sometimes even though I'm hungry, but I feel like she'll doubt me no matter what and I feel sad. I'm 14 right now, I'm just gonna wait until I'm 18 to do anything about it lol.
First one, I'll edit this after watching.
Addition: That was an interesting veiw into the different ways people can experience ARFID. Very well done.
I have an anxiety disorder and have numerous food allergies. I am allergic to nuts, mushrooms, turkey, eggs, soy, and shellfish. I literally won’t eat sauce unless it’s white pasta sauce. I hate red foods and i don’t like very strong textures or smells. I HATE when food touches and I hate spongey foods. I get so scared that if I try something new I’ll hate it and then I think about how gross is was for the rest of the day
Basically, autism and it subsidiary disorders that accompany it for many people.
I can really relate to the allergies on top of having arfid. I have celiac, allergies and arfid. I'm really struggling to eat enough food. I'm underweight but can't have inpatient as insurance doesn't cover it.
Opposite happened to me, I have atypical anorexia but was diagnosed with ARFID despite a board diet and no texture issues. The only foods I won't eat are meat, bell peppers, raw onions ( thanks Covid ) and raw tomatoes. I stop eating because I needed to lose weight but I can't have anorexia due to being obese.
OMG I’ve had arfid since I was two aswell
I am sure that my son has this. I don't think he can just think himself out of it but I am so stressed about trying to get him to eat more food.
Question--can a person have both anorexia and ARFID?
Definitely. I don’t think I’ve spoken to anyone with both, but I can’t think of any reason why it couldn’t happen.
@@MorganGale Thank you for responding! I had my first appointment with an eating disorder specialist yesterday and he was leaning towards an anorexia diagnosis, but he wants to talk more before deciding since I have so many ARFID symptoms, too. I think it’s possible that might have both, and if so, I think I really only started intentionally restricting because I hate the texture of so many foods 😖
Hi Morgan thank you for making this video. You have a new subscriber! I’m 46 and am absolutely positive I have ARFID and have had since before I was 2. How do I go about getting a diagnosis? Obviously it wasn’t recognized when I was a kid so I’ve had to just explain it as a really fussy eater all my life which has been terrible. Thanks and cheers from Australia 🇦🇺 😊
My brother has ARFID and he only eats about 5 different foods. It always annoys me when people say “oh he’s just a picky eater” ugh! 😑
I've had arrow sense I was 2. I'm 27 now and I'm still struggling. I weigh 150 pounds and I'm 5'6.
Omg this happens to me so much but people don't say it directly i just know lmao. I was on a camping school trip (for 3 days) and we had beans and hot dogs. I refused to eat anything on my plate and my best friend (who now understands what ARFID is) kept on telling me "you need to eat". I also have depression and she knows that so that probs made her think i had anorexia even more.
ive been denied the kids menu for years, every place I go. WHY do restaurants hate adults with ARFID so much?
I had arfid between age 2 and 14 and now I'm anorexic but no one believes me except my therapist
So.....I really didn’t wanna eat this spaghetti that I made for me and my family but I finally convinced myself to eat it, I ate for about 3 minutes before I was like “NOOOOOO!!!” I stopped felt awful and literally started crying, what is wrong with me????
I can eat some fruit and vegetables, but I can't eat mixed textures, I don't have the support of my family.
Okay I don't want to be stupid and disrespectful by self-diagnosing myself, yet I really feel like I could have ARFID... I've been watching videos and stuff to learn about eating disorders since I feel like I could have one. It's not very nice when your brothers say you have anorexia... especially in front of people. I'm scared to say anything, plus if I did then my mom would either tell me I'm being stupid or she'd try cramming carrots down my throat.
Personally, I think self-diagnosis is fine! In some communities, like adult women with ADHD/autism for example, it's extremely difficult to get a diagnosis because of misconceptions about symptoms, so self-diagnosis is common. (For example, I got tested for ADHD a couple years ago and was told that I can't have it because I did well in school.) And seeing a doctor is expensive in the U.S.!
I can't speak for the entire disability community, but my perspective is that if you think you have something, it's not disrespectful to say you might have it. But talk to a doctor for guidance if you can.
@@MorganGale Oh thank you so much! I talked to my mom about it and explained ARFID to her and she wasn't sure if I had it, but thinks I have a sensory disorder/hypersensitivity to texture in food. She does think I'm malnourished ad well. I'm trying to get better with eating food and I've been eating stuff like cheese and carrots and I even tried beef (it totally freaked me out I could barley take the squishyness of it) Anyway, thank you for talking to me 😄
I have had this for many years and I am not sure how to go about getting officially diagniosed! ive always thought I ha bulimia but it was never about weight or body image for me.
Was wondering... for ARFID.... has any doctor suggested getting a G-tube? I’m not a doctor but was thinking... if you had a G-tube you could make fresh juices and smoothies to give your body (without the texture/tasting)... i would think it would give you the nutrition your body has been craving and get you on the road to great health.?
beningers tubes should be a last situation kind of deal. i was going to be put on one because of how bad my arfid was but they decided the trauma from getting it (i’m afraid of vomiting) would outweigh the pros.
Never, ever, ever is this a good solution for ARFID. It was forced upon me and I was so traumatised I nearly died (no joke). Plus it triggered the problem to be even worse than before.
Hi! Can I take a piece of your video and translate it into Russian for my video about ARFID on my channel, with a link to the original source?
Yes, go ahead! 👍
@@MorganGale thanks!
Is this National Harbor?
Restaurant staff get angry at you for asking for an ingredient to be omitted but because they are not actually making it fresh, something they don't want anyone to know, they would rather humiliate the fussy eater. People who have autism are fussy eaters. It's often a texture thing. And they've been bullied mostly by adults for this their entire life. Kids aren't that cruel.
What if you go from Ana recover and end up with afrid and it triggers the ana? I neeed a dr
I think it might be helpful to see a nutritionist in that case, to make sure you're getting enough calories and make a plan to hit the most essential food groups!
heyooooooo i also have arfid :D
hard times coming for us...Im the cook....LOL...a very good one and I must cook 2 christmas meals....one tonight..friend got new home..tomorrow he with his family...christmas eve..then christmas day..he with me..several of us breaking in his new house tonight...big meal...but Im cooking 15 coarses for christmas lunch for family and friends,takes me two days to cook it all....but....I wont eat it.I did thanks giving...had 15 people over,they all ate several plates each,I had nothing and they notice.I can only ask them not to say things to me....its hard,so hard..oddly..wife isnt from the USA where I live but met her here...she has a friend that just moved away from atlanta to our town north of atlanta.she from where my wife is from out of the country..she has arfid too..she been working on it a year..Ive had the issue 6 months...she is getting over it ,havent met her yet but hopefully tonight I will,she has things for me to read and study on this thing...only way Ive figured out how to eat with this..is single bite stuff,or finger food stuff...cut off a small piece of cheese from the block...or several grapes...tiny spoon with peanut butter on it...that I can do.I also figured out if lets say wife and I go out to eat..we order one plate and I get a small plate,I can some how eat almost regular if I know that whole plate of food isnt mine....we did that the other night at a steak house and I hate almost normally...this is very hard and I dont understand it yet....
I found out I had Arfid at a very young age (maybe 6?)and I told my friends about and they told me these responses, it’s not real, so you anorexic?, Um, just eat it’s not that hard
Dodie top!!!
I'm greenaphobic
sahreal
Are you related because you look so similar.
Chicken nugget people of the world unite
It may be anecdotal but people in third world countries don’t suffer from this illness.and is it a coincidence that most people that have this illness look alike?
That's like saying people in third world countries aren't autistic (which overlaps significantly with food sensitivity). It's there, it presents differently in different cultures.
coming from someone who has anorexia i dont appreciate the title.
Hi! I am open to other title ideas, but I feel this one accurately describes the video content. It seems to be a nearly universal experience that ARFID is mistaken for anorexia, which obstructs recovery for people with ARFID because the treatment is very different. Many doctors/parents hear "eating disorder" and automatically assume anorexia, when in reality there are many kinds of disordered eating.
@@MorganGale i recognize that and agree that other eds need to be talked about more and i really love that you are doing that! i dont like this title bc the word anorexia is already demonized so much and is a common insult i hear other none eating disordered people use. you dont need to change it if u feel this is the only way to describe the video i totally get that. i just wanted to let u know how someone who has that disorder feels reading it. explaining that the disorders are different is one thing but to me this comes off more as “oh at least i dont have THAT disorder, i have this one”.
I will do some brainstorming on how to rephrase it then! Thank you for the feedback. 💙