Preparing for Pituitary Surgery: A Live Session Recording

This is a live session recording from Pituitary Awareness Month. How do you prepare for surgery with a pituitary condition? Adult and paediatric neurosurgeon Mr Saurabh Sinha specialises in pituitary surgery, and joins pituitary patients online to look at how you prepare for surgery with a pituitary condition. Saurabh will go through the important practical process of preparing for surgery and answer questions with his trademark energy and humour.
Thank you to Saurabh for giving up his time for this session. All of the resources mentioned in the video are available for free on our website here: www.pituitary.org.uk/informat...
This video is a valuable resource for anyone living with a pituitary condition, and has been created as part of Pituitary Awareness Month: Living Well October 2022. This is a whole month's worth of events, in person and online, combined with our annual conference as an opportunity to bring the pituitary community together whilst raising awareness of pituitary conditions.
It doesn't stop here - get involved with The Pituitary Foundation and help us to continue to raise awareness. There's lots you can do like go for a sponsored wellness walk, hold a tea party, have a talk at your local school, send some resources to your GP and much more. Find the full list here: www.pituitary.org.uk/get-invo...
We're proud to bring you Awareness Month and all of the recordings to you for free, but we do rely heavily of the kind donations of viewers and the pituitary community. If you are able to do so, please consider donating to The Pituitary Foundation so we can keep providing top quality care, resources and support to all of the those affected by pituitary conditions. thepituitaryfoundation.enthus...

[@TheMyisa]

Michael is loved by Cushies all over the world!! He goes out of his way to learn and share his knowledge with the community. I would not be watching if it were not for him sharing the video. I’m grateful that he’s a pain in your arse! 😂
I’m in Los Angeles. Dr David Kelly’s patient. I wish he would’ve been more honest about the post op nightmare. He told me that I would feel like I had a bad flu for a week and most people go back to work after 2-3 weeks. I’m 4 years post op and I will never return to work. My cortisol never totally crashed after a week in hospital. They sent me home without steroids. The following week I shook like a junkie, vomiting, pain from head to toe, I have never been so thirsty. Thanks to our Cushing’s community I understood to watch out for AI and DI. 2 weeks post op, I ended up back in the hospital for 3 days after I needed to be pushed into the endo’s office in a wheelchair and I suggested that I needed IV steroids.
I feel like all I did for weeks was drink and pee for weeks. They denied that I had DI even though I peed 7 liters for a 24 hr urine!
I wasn’t strong enough to shower for a month! I had terrible emotional dysregulation, everything made me cried 😢. They did put me on steroids after I left the hospital the second time. My cortisol was still in low of normal. But if someone can’t function, treat them! I explain the weakness as we go from having a nuclear plant in our heads to trying to live on a small watch battery. I was weak and in pain for a year. It was so bad that I regretted having surgery until I got to the other side. Then I had the best 8 months that I’ve had in 20 yrs. Then came the relapse. Unbelievable. I agree that the Cushing’s patients know more than most drs and they need to trust us. I got a new primary doc earlier this year and I spent our first appointment explaining the diagnostic process to her. I needed to go to the ER last weekend because I had a high fever and tested positive for Covid at home. The ER dr looked at me like I was lying about having Cushing’s! I couldn’t even sit up, I was going into shock and told him that I needed a low dose of dex. I finally had him call my endo on Saturday night. He came back with Dex in his hand and had me admitted.
I also had tumor left in my right cavernous sinus, but it’s not viewable on MRI.
So many Cushing’s patients have tumors that are unseen. Patients are struggling to get diagnosed and always fighting with drs.
Thank you for your efforts and compassion for your patients!

[@markjones5235]

Great info. Appreciate the straightforward, down to earth delivery of this information. Very helpful.

[@barbaramunro2931]

Is 4.5mm pituitary cleft cyst large enough for surgery. I’m female 71 of age