Live Q&A on DI/AVP Deficiency Name Change
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- Опубліковано 31 січ 2023
- We speak to Dr Miles Levy about the name change of AVP Deficiency, formerly known as Diabetes Insipidus (DI). We start with a short video explaining the needs of the name change after the death of Kane Gorny. We then have some presubmitted questions and open the floor to questions from the audience.
Fantastic session, very sad story to begin with. Very informative and good to know the name change is global! Personally very glad the name is being changed as encountered the diabetes mix up numerous times whilst in Hospital.
Thank you❣️ as a person with AVP Deficiency (D/I), it takes energy, I don't have to spare, explaining the difference. The thirst is no joke and that's how I know I am late on my pill. I take desmopressin twice daily.
I have had AVP deficiency for 40 years and it's a real pain trying to explain this to nurses. I had one nurse try to give me insulin and I'm just glad I was with it enough to stop her. You really need someone else who can advocate on your behalf.