I am a chronic pain warrior. I take opiates to be able to function during the day and to be able to sleep at night. I take one Norco in the morning and one at night. It's about a medium dose size. It doesn't take away all my pain, but helps me cope with it so I'm able to put on my happy face. You learn to go on with your life with the pain concealed behind your smile. I'm so glad your pain management is underway again. I hope you get the relief you need. You are the bravest young lady I've ever known. Sending prayers everyday for you!
You hit the nail on the head with chronic pain, Jacquie. I do take opiates for pain. But I'm very careful with them. I've been in chronic pain for 44 years! Yes you do learn to deal with it and cope the best you can. I'm so happy that you can get your injections again. Good luck!
This video made me cry. When you so sweetly and sincerely said, " don't be ashamed " if you are on narcotics and you need them and it works. I cried. Because I carry such shame, guilt etc etc about needing them at this point in my life. So thank you for being so supportive, honest and lovely. I am so happy your pain management journey is coming together and forging ahead in an awesomely positive direction. 😍 Thank you again for this video 🌸xoxo Jamie and Sable🐶🌸 🌷🌷🌷🌷🌷🌷🌷🌷🌷🌷🌷 🌸🌺🌸🌺🌸🌺🌸🌺🌸🌺🌸
Thank you for your support of those on narcotics. I recently saw an interview with a recovering addict that is lauded for going around to doctors and trying to get them to pull back on opioid prescriptions. It made me so angry! I don't go around bashing 12 step programs because they didn't work for a friend! I am sorry that people have drug problems, but it shouldn't mean that people in pain should be denied treatment. I am in nursing school and in our "pain and comfort" lecture the other day it was all bash on people reporting pain. I have a stack of mri's, have had surgery, pt, and many other measures with minimal results. Doctors take extreme measures to prevent diversion and abuse. Narcotics knock my levels down to a level where I can focus on something other than my pain. Love you, Jackie. I appreciate all you do. Glad you have found someone who will help you--I know the anxiety of having to go without.
So happy that you will be receiving your long overdue procedure. Thanks for sharing your great news with us!! Hugs and prayers for you, Judd, and Harlow🙏🏻🤗❤️
That's so great! It gives me hope seeing others doing well snd getting better. I see a new doctor on Monday morning in Tampa. I also have Hypermobility Ehlers-Danlos Syndrome and my pain has been so severe with also some recent injuries so I'm hoping for some help. Continued prayers for you Jacquie! Hope your having a good day.
The reason you are getting optimal treatment is because you are so intelligent and knowledgeable about your complex medical conditions. You are the best advocate for yourself. Unfortunately, most patients are not well informed or well versed or even aware of what medical conditions they are dealing with and, sadly, the treatment they receive is inadequate or even detrimental. You impress me and are truly an inspiration.
Yeah, it's hard to comprehend medical research when one is not a med school student and is dealing with brain fog and pain. I wish doctors would do their jobs and research unexplained symptoms and lesser known conditions so that patients didn't have to do the work themselves, while not getting paid a doctor's wages and while suffering.
There is also tremendous benefit to having fantastic insurance and some financial freedoms -- even for the basics of just getting to appointments or traveling to see those who are qualified (since they're often so so far). And, if they aren't far for you, that's another major privilege. Those who must rely on Medicaid or low-coverage insurance, this level of pain mgmt is nearly impossible to achieve, esp when the very fact you're on low-income based insurance leads the clinicians you see to be even more skeptical of "drug seekers". ...or at least be unwilling to manage your care properly bc of pre-conceived notions of your lifestyle/friends/prognosis or limited reward to them for taking/treating you as a patient. The availability of clinicians that accept your insurance is uberrr scarce, especially ones that are familiar with these rare disorders. You basically require amazingggg insurance or thousands of extra dollars a month to spare. Poverty/low-income is suchhhhh a huge factor in pain care which is so fucked up. Those with money struggle like crazy, those without are just.... royally screwed over.
My husband and I both suffer from pain. I have fibromyalgia and my husband has a spinal injury. 4 months ago he had his bladder & prostate removed. He now has an urostomy bag. Long story short - the doctors felt ketamine was an option for pain relief . Bad idea. Hubby got agitated and ended up having a zombie apocalypse dream . He woke up but the zombies were still there. I am pleased that you have relief Jacquie . Unfortunately there can be a darker side. Keep well.
Someone told me long ago to "lie to my face" when I was in pain. It seemed like a great idea at the time but, I got way too good at it over the years. I didn't want to let my family know how much pain I was in, so... I don't really know how to put it into words except to say, I disconnected my face from my feelings. Unfortunately, I became virtually unable to express that pain in my facial expressions even if I wanted to. That meant that I never appeared to be in much pain at all, even when I knew something serious was going on. Even when I literly begged doctors to take me seriously. That led to countless medi-vac flights when things got so bad it became impossible to not see the symptoms. I shudder to think how much extra money all those flights cost our health care system. At least I live in Canada. If I lived where you do I would have been bankrupt decades ago. Probably dead actually. I would have never let my family lose everything for me. You are so lucky to have good insurance. Way too many people don't.
I can relate to the local anesthetic problems. It took forty five minutes for a dose four times higher than average to kick in, and even then it was gone within an hour. Surgery's a lot of fun, because it takes way longer than that for standard pain meds to work.
Thank you soooooooo much Jaquie for saying what you did about narcotic pain medication. I do take a narcotic medication to help with my chronic pain and ever since my pain has gotten manageable. I'm still limited, but my life changed for the better. When I've had to go to the ER I've been treated as if I'm a drug seeker and addict. Most ER docs don't know enough about pain management programs that they go straight to those accusations. My Mom was a nurse for 43 years and from the beginning my Mom has taught me how safe to be with all my medications. I'm very safe and I ALWAYS follow exactly what my doctors tell me to do. But I still have to face the accusations and stigma of the treatment I get. What you said about taking these types of medications really gets the word out that we are not addicts. We have a chronic illness and these types of medications are just one tool we use to fight our illness. We don't deserve the looks and accusations. We also don't deserve to be put into a category with those that have abused narcotics! Jaquie, thank you so much for getting the word out! As a chronic pain warrior, it's nice to know I'm not alone!
Totally agree with what you said about dealing with chronic pain. I have two herniated discs in my lower back, spinal stenosis and the beginnings of arthritis in my spine.. I'm barely 26 years old!!! And I'm already on 30mg of Extended release Morphine twice a day along with other medications for my pain. It sucks but thankfully my pain management doctor has been helping me as much as he can.
I'm so glad everything is falling into place with you! Great topic today! Butrans patches have given my life back and is one of the few opioids that don't cause major mast cell mediator release! I don't get any bad side effects from it and it is the only one I've ever had that truly reduces the abdominal pain to tolerable. It also decreases my nerve, bone, and joint pain too! The other thing I love is after they get you on a dose necessary to help the pain you can be on the same dose for a year or more without building up a tolerance and because it's not a pill, I don't get nauseated or throw it up. I do get irritation from the adhesive but found a way to minimize it, but even without that the irritation is way more tolerable for me than the pain is!
I can't even believe how alike we are. I first found out that I didn't react well 2 sedatives when I woke up during my wisdom teeth surgery. I also did not go under during an emergency surgery and I was awake screaming the whole time I felt everything I've not yet found the right medications
So glad you are better and talking about pain management. Mine is from 40+ years of rheumatoid arthritis and degenerative disc condition. Currently on low dose prednisone which helps the arthritis but havent found the answer for back problem. But feeling better anyway!
Also RA, Deg. Disk and Psoriatic arthritis. Docs won't prescribe pain meds even though a 30 day script lasted me for 4-6 months. My pain mgmt doc said I was doing the right thing to only take when the pain spiked so high nothing else would help. But still won't prescribe. Have a new neurologist appointment next week. Maybe he will be helpful.
Lol. My pup has that same ball except she has 2 blue, 2 green. The squeaker usually lasts only 5 min and then busts them open after a couple days. Hence why she has 4. It's her fav. Everytime we go to PetSmart she walks right up to the basket and grabs a new one
Purple is my favorite. I need to see if I can find those for my surgery in December. Finding a pain managment doctor that will see a complex patient is hard. I have one doctor in my area that will see me and he refuses to try anything that goes above and beyond because of the war on Opioids. I have a team of doctors that know my Klippel-Feil and Syringomyelia, but they are 1000 miles from me. So, pain managment in Ohio is out of the question.
7:58 In our defense, I seem to remember you watching a video showing your loopiness and enjoying it yourself. I'm just saying. :-) In all seriousness, I can understand that it's more peaceful for you and you have to do what you think is best. I'm so glad about the good news. Thank you for sharing it.
It has nothing to do with chronic pain and I'm not trying to compare it, but it makes me think a little bit of the feeling of living with depression .. like, it's not because sometimes we can hang out with people, laugh and have a good time, that we're fine, the feeling of loneliness and sadness is (almost) always here !
I appreciate your view on opiates and pain management. I am unable to take many meds due to my allergies to aspirin and all NSAIDS. It’s a real problem because there are few other meds that help pain. I’m thankful for medical marijuana and opiates as they make it possible for me to function as much as I can.
I'm trying to get my pain mgmt doc to use ketamine for my procedures. No luck so far. I had one anesthesiologist I worked with for several surgeries who gave me the high dose of it and man it helped so much. Unfortunately he moved to another hospital and no one I've had since seems to understand it's benefits for chronic pain.
YAY! That's exciting, yeah, especially in the hips something is better than nothing. That pain from walking, thats the only time i can feel my muscles...not a fan!😄😖 It's better anyway to be under ( I have spasms so I understand that part) But also its a normal reaction to freakout. I get numbed at the dentist for this reason. Harlow is so smart! Lol, one day shes going to bring you half a ball!😂 I only use youtube and i know you don't talk about her here but i've been thinking about Janiece and hope shes doing well❤️🙏
Love listening to you Jacquie ok hope things are going well for you love the cute pants sorry your pain is bad at the moment hope the treatment works for you love you Jacquie
How does someone deal with a pain clinics office staff being completely incompetent to the point I missed about two weeks with out my meds, nurse practitioners miss handling charts and the fact that it’s the only place I can go to. I’m just frustrated and worn out and at this point they want me to lower my meds, but at the pain level I’m at lowering any of my meds would be stupid. My pain level on my best day ever is a 6 so lowering the meds that sorta help would make them not help at all. So if someone could give me advice I would really appreciate it.
Have you ever had friends who stopped talking with you/talked less with you because you're sick or just never reply to messages where you talk about things like your chronic pain etc.? I'm going through that right now and except seeing a friend for maybe an hour a few weeks ago I haven't seen any of my friends in 5 months and if we have a conversation online they'll sometimes ask how I'm doing and then just not respond when I tell them the truth about my pain... I don't really know how to deal with it all
I've never needed any work done, so I actually have not thought about that. P.S. Not a fan of the dentist, it is like a sensory nightmare. I went recently and gosh it was not my favorite thing to do lol ;D
Hi Jaquie, I would like to ask you a question regarding EDS. Due to the fact it’s a connective tissue syndrome and causes various other issues, do you believe that EDS is the catalyst for your health issues?
Hey miss jaquie :) with your joint injection will it be a cortisone injection? I have Rheumatoid arthritis (auto immune) and want to try these injections but i also have severe fibromyalgia so it will hurt a hell of a lot more so was curious if yours was cortisone so i might be able to request i have mine done while knocked out also... hmmm would be great if they could! Best of luck with your injection jaquie! I love your videos i feel less alone 💗
They will give you a numbing agent but it never worked well on me. They can give you something to knock you out but you will have to have someone to drive you home. Also, may need to be scheduled in a surgical center instead of in the doctor's office so call them ahead of time so they can make arrangements for both insurance coverage and to schedule the room. Thirdly, ice it!! I made the mistake of waiting several hours before using ice packs once and I paid for that big time! As soon as you get home ice packs every 30-45 minutes for 20-30 minutes at a time. I, too, have RA plus degenerative disk, psoriatic arthritis and psoriasis...so lots of pain 24/7/365.
Out of curiosity Is there a medical term for your injections? I’m currently getting trigger point injections with a physiatrist on my upper back but doesn’t help my lower back. So I’m waiting to see a pain management doctor. I’m scared he’ll only suggest an epidural.
About the ketamine and the hospital: can't your old pain management doctor talk with the doctor at the hospital and tell them how he used to do it? Maybe that's an option to get more pain relief?
Hi! I agree peoples amusement with side effects or too much of a drug to one person and others thinking its funny. Really isnt. Namaste Jaquie. Hugs. Keep moving forward! :)
Hi Jaquie, You are always in my thoughts and prayers honey. I am old enough to be your mother and want to tell you that I think you are adorable and sweet. Sending positive vibes your way. xoxoxoxoxoxo
Ketamine can make PTSD worse so be careful when you do get to try it. It has a warning on it about causing in some people flashbacks of traumatic events. Just so you are aware.
Can you ask your previous pain doctor how and how much ketamine (I think it’s written like that, I am not sure) he gave you so you can give that to your anesthetist?
The other issue is that, since my doc relocated, he has not established yet and there is not a way to reach him. The old office he practiced at has my records, but I cannot yet contact the doctor himself. :/
I am a chronic pain warrior. I take opiates to be able to function during the day and to be able to sleep at night. I take one Norco in the morning and one at night. It's about a medium dose size. It doesn't take away all my pain, but helps me cope with it so I'm able to put on my happy face. You learn to go on with your life with the pain concealed behind your smile. I'm so glad your pain management is underway again. I hope you get the relief you need. You are the bravest young lady I've ever known. Sending prayers everyday for you!
You hit the nail on the head with chronic pain, Jacquie. I do take opiates for pain. But I'm very careful with them. I've been in chronic pain for 44 years! Yes you do learn to deal with it and cope the best you can. I'm so happy that you can get your injections again. Good luck!
Glad to see you smiling and things are coming together . Lighting a candle for you, your husband, family and Harlow when I go to church tomorrow.💗
This video made me cry. When you so sweetly and sincerely said, " don't be ashamed " if you are on narcotics and you need them and it works. I cried. Because I carry such shame, guilt etc etc about needing them at this point in my life.
So thank you for being so supportive, honest and lovely.
I am so happy your pain management journey is coming together and forging ahead in an awesomely positive direction. 😍
Thank you again for this video
🌸xoxo Jamie and Sable🐶🌸
🌷🌷🌷🌷🌷🌷🌷🌷🌷🌷🌷
🌸🌺🌸🌺🌸🌺🌸🌺🌸🌺🌸
Thank you for your support of those on narcotics. I recently saw an interview with a recovering addict that is lauded for going around to doctors and trying to get them to pull back on opioid prescriptions. It made me so angry! I don't go around bashing 12 step programs because they didn't work for a friend! I am sorry that people have drug problems, but it shouldn't mean that people in pain should be denied treatment. I am in nursing school and in our "pain and comfort" lecture the other day it was all bash on people reporting pain. I have a stack of mri's, have had surgery, pt, and many other measures with minimal results. Doctors take extreme measures to prevent diversion and abuse. Narcotics knock my levels down to a level where I can focus on something other than my pain. Love you, Jackie. I appreciate all you do. Glad you have found someone who will help you--I know the anxiety of having to go without.
You look like you are feeling better overall. Glad your surgeon can help take over the pain management. I know that's a relief.
so glad you're getting some relief soon!
So happy that you will be receiving your long overdue procedure. Thanks for sharing your great news with us!! Hugs and prayers for you, Judd, and Harlow🙏🏻🤗❤️
That sounds like a wonderful plan! Good luck!
That's so great! It gives me hope seeing others doing well snd getting better. I see a new doctor on Monday morning in Tampa. I also have Hypermobility Ehlers-Danlos Syndrome and my pain has been so severe with also some recent injuries so I'm hoping for some help. Continued prayers for you Jacquie! Hope your having a good day.
The reason you are getting optimal treatment is because you are so intelligent and knowledgeable about your complex medical conditions. You are the best advocate for yourself. Unfortunately, most patients are not well informed or well versed or even aware of what medical conditions they are dealing with and, sadly, the treatment they receive is inadequate or even detrimental. You impress me and are truly an inspiration.
Yeah, it's hard to comprehend medical research when one is not a med school student and is dealing with brain fog and pain. I wish doctors would do their jobs and research unexplained symptoms and lesser known conditions so that patients didn't have to do the work themselves, while not getting paid a doctor's wages and while suffering.
There is also tremendous benefit to having fantastic insurance and some financial freedoms -- even for the basics of just getting to appointments or traveling to see those who are qualified (since they're often so so far). And, if they aren't far for you, that's another major privilege. Those who must rely on Medicaid or low-coverage insurance, this level of pain mgmt is nearly impossible to achieve, esp when the very fact you're on low-income based insurance leads the clinicians you see to be even more skeptical of "drug seekers". ...or at least be unwilling to manage your care properly bc of pre-conceived notions of your lifestyle/friends/prognosis or limited reward to them for taking/treating you as a patient. The availability of clinicians that accept your insurance is uberrr scarce, especially ones that are familiar with these rare disorders. You basically require amazingggg insurance or thousands of extra dollars a month to spare.
Poverty/low-income is suchhhhh a huge factor in pain care which is so fucked up. Those with money struggle like crazy, those without are just.... royally screwed over.
I love all see hardlow pup glad your doing new videos
Love the pjs, going to check out Target. You’re looking like you’re feeling better and better.
My husband and I both suffer from pain. I have fibromyalgia and my husband has a spinal injury. 4 months ago he had his bladder & prostate removed. He now has an urostomy bag. Long story short - the doctors felt ketamine was an option for pain relief . Bad idea. Hubby got agitated and ended up having a zombie apocalypse dream . He woke up but the zombies were still there. I am pleased that you have relief Jacquie . Unfortunately there can be a darker side. Keep well.
So glad things r getting on track.
Someone told me long ago to "lie to my face" when I was in pain. It seemed like a great idea at the time but, I got way too good at it over the years.
I didn't want to let my family know how much pain I was in, so... I don't really know how to put it into words except to say, I disconnected my face from my feelings.
Unfortunately, I became virtually unable to express that pain in my facial expressions even if I wanted to. That meant that I never appeared to be in much pain at all, even when I knew something serious was going on. Even when I literly begged doctors to take me seriously. That led to countless medi-vac flights when things got so bad it became impossible to not see the symptoms.
I shudder to think how much extra money all those flights cost our health care system.
At least I live in Canada. If I lived where you do I would have been bankrupt decades ago. Probably dead actually. I would have never let my family lose everything for me.
You are so lucky to have good insurance. Way too many people don't.
I can relate to the local anesthetic problems. It took forty five minutes for a dose four times higher than average to kick in, and even then it was gone within an hour. Surgery's a lot of fun, because it takes way longer than that for standard pain meds to work.
The brokenness makes the ball Even better!!!!! And soon she'll have TWO!!!!
Thank you soooooooo much Jaquie for saying what you did about narcotic pain medication. I do take a narcotic medication to help with my chronic pain and ever since my pain has gotten manageable. I'm still limited, but my life changed for the better. When I've had to go to the ER I've been treated as if I'm a drug seeker and addict. Most ER docs don't know enough about pain management programs that they go straight to those accusations. My Mom was a nurse for 43 years and from the beginning my Mom has taught me how safe to be with all my medications. I'm very safe and I ALWAYS follow exactly what my doctors tell me to do. But I still have to face the accusations and stigma of the treatment I get. What you said about taking these types of medications really gets the word out that we are not addicts. We have a chronic illness and these types of medications are just one tool we use to fight our illness. We don't deserve the looks and accusations. We also don't deserve to be put into a category with those that have abused narcotics!
Jaquie, thank you so much for getting the word out! As a chronic pain warrior, it's nice to know I'm not alone!
So glad stuff is finally coming together! Also, I just moved to a place without a Target, I don’t know what to do!
Totally agree with what you said about dealing with chronic pain. I have two herniated discs in my lower back, spinal stenosis and the beginnings of arthritis in my spine.. I'm barely 26 years old!!! And I'm already on 30mg of Extended release Morphine twice a day along with other medications for my pain. It sucks but thankfully my pain management doctor has been helping me as much as he can.
I'm so glad everything is falling into place with you! Great topic today! Butrans patches have given my life back and is one of the few opioids that don't cause major mast cell mediator release! I don't get any bad side effects from it and it is the only one I've ever had that truly reduces the abdominal pain to tolerable. It also decreases my nerve, bone, and joint pain too! The other thing I love is after they get you on a dose necessary to help the pain you can be on the same dose for a year or more without building up a tolerance and because it's not a pill, I don't get nauseated or throw it up. I do get irritation from the adhesive but found a way to minimize it, but even without that the irritation is way more tolerable for me than the pain is!
I can't even believe how alike we are. I first found out that I didn't react well 2 sedatives when I woke up during my wisdom teeth surgery. I also did not go under during an emergency surgery and I was awake screaming the whole time I felt everything I've not yet found the right medications
So glad you are better and talking about pain management. Mine is from 40+ years of rheumatoid arthritis and degenerative disc condition. Currently on low dose prednisone which helps the arthritis but havent found the answer for back problem.
But feeling better anyway!
Me too! Only I can't use steroids, I'm intolerant to them, what a bummer!
Also RA, Deg. Disk and Psoriatic arthritis. Docs won't prescribe pain meds even though a 30 day script lasted me for 4-6 months. My pain mgmt doc said I was doing the right thing to only take when the pain spiked so high nothing else would help. But still won't prescribe. Have a new neurologist appointment next week. Maybe he will be helpful.
Really really good news Jaquie... so happy for u!!
Love to all!!😃✌️
So glad things are coming together for you! You’ve been such a big inspiration for me in my journey. Just wondering what type of eds you have?
I saw the title of the video and did a little happy dance for you
You look good Jaq! Last time I saw you was when you were in the hospital. You look good!
Lol. My pup has that same ball except she has 2 blue, 2 green. The squeaker usually lasts only 5 min and then busts them open after a couple days. Hence why she has 4. It's her fav. Everytime we go to PetSmart she walks right up to the basket and grabs a new one
That’s amazing news so happy
Congrats!!
Purple is my favorite. I need to see if I can find those for my surgery in December. Finding a pain managment doctor that will see a complex patient is hard. I have one doctor in my area that will see me and he refuses to try anything that goes above and beyond because of the war on Opioids. I have a team of doctors that know my Klippel-Feil and Syringomyelia, but they are 1000 miles from me. So, pain managment in Ohio is out of the question.
Good to hear!!!!💖😇🙏🏻
7:58 In our defense, I seem to remember you watching a video showing your loopiness and enjoying it yourself. I'm just saying. :-)
In all seriousness, I can understand that it's more peaceful for you and you have to do what you think is best.
I'm so glad about the good news. Thank you for sharing it.
It has nothing to do with chronic pain and I'm not trying to compare it, but it makes me think a little bit of the feeling of living with depression .. like, it's not because sometimes we can hang out with people, laugh and have a good time, that we're fine, the feeling of loneliness and sadness is (almost) always here !
My dog did the exact same thing that Harlow did to her pink ball
I appreciate your view on opiates and pain management. I am unable to take many meds due to my allergies to aspirin and all NSAIDS. It’s a real problem because there are few other meds that help pain. I’m thankful for medical marijuana and opiates as they make it possible for me to function as much as I can.
I'm trying to get my pain mgmt doc to use ketamine for my procedures. No luck so far. I had one anesthesiologist I worked with for several surgeries who gave me the high dose of it and man it helped so much. Unfortunately he moved to another hospital and no one I've had since seems to understand it's benefits for chronic pain.
YAY! That's exciting, yeah, especially in the hips something is better than nothing. That pain from walking, thats the only time i can feel my muscles...not a fan!😄😖 It's better anyway to be under ( I have spasms so I understand that part) But also its a normal reaction to freakout. I get numbed at the dentist for this reason. Harlow is so smart! Lol, one day shes going to bring you half a ball!😂 I only use youtube and i know you don't talk about her here but i've been thinking about Janiece and hope shes doing well❤️🙏
Love listening to you Jacquie ok hope things are going well for you love the cute pants sorry your pain is bad at the moment hope the treatment works for you love you Jacquie
I have neuropathy in my feet and I have chronic pain and I now have a spinal cord stimulator and I sometimes have to take tramadol
How does someone deal with a pain clinics office staff being completely incompetent to the point I missed about two weeks with out my meds, nurse practitioners miss handling charts and the fact that it’s the only place I can go to. I’m just frustrated and worn out and at this point they want me to lower my meds, but at the pain level I’m at lowering any of my meds would be stupid. My pain level on my best day ever is a 6 so lowering the meds that sorta help would make them not help at all. So if someone could give me advice I would really appreciate it.
Have you ever had friends who stopped talking with you/talked less with you because you're sick or just never reply to messages where you talk about things like your chronic pain etc.?
I'm going through that right now and except seeing a friend for maybe an hour a few weeks ago I haven't seen any of my friends in 5 months and if we have a conversation online they'll sometimes ask how I'm doing and then just not respond when I tell them the truth about my pain... I don't really know how to deal with it all
Get some new friends
@@lukeism2 easier said than done when you can barely get out of the house because of youe pain and have social anxiety😅😕
What do you do when you need dental work done, like fillings? What do they give you for anesthetic?
I've never needed any work done, so I actually have not thought about that. P.S. Not a fan of the dentist, it is like a sensory nightmare. I went recently and gosh it was not my favorite thing to do lol ;D
Glad to hear. I’m a dental assistant, so I was just curious of course...
I have EDS and sometimes it doesn't work. After four shots I go home with a whopper of a headache.
What are the types of opiates that you have tried in the past or some opiates that are not good for you
0:49 Harlow is like human get that out meh face
Hi Jaquie, I would like to ask you a question regarding EDS. Due to the fact it’s a connective tissue syndrome and causes various other issues, do you believe that EDS is the catalyst for your health issues?
Hey miss jaquie :) with your joint injection will it be a cortisone injection? I have Rheumatoid arthritis (auto immune) and want to try these injections but i also have severe fibromyalgia so it will hurt a hell of a lot more so was curious if yours was cortisone so i might be able to request i have mine done while knocked out also... hmmm would be great if they could! Best of luck with your injection jaquie! I love your videos i feel less alone 💗
Chloe Mahr she gets toradol injections in her joints. It’s an NSAID not a steroid like cortisone. :)
They will give you a numbing agent but it never worked well on me. They can give you something to knock you out but you will have to have someone to drive you home. Also, may need to be scheduled in a surgical center instead of in the doctor's office so call them ahead of time so they can make arrangements for both insurance coverage and to schedule the room. Thirdly, ice it!! I made the mistake of waiting several hours before using ice packs once and I paid for that big time! As soon as you get home ice packs every 30-45 minutes for 20-30 minutes at a time. I, too, have RA plus degenerative disk, psoriatic arthritis and psoriasis...so lots of pain 24/7/365.
Out of curiosity Is there a medical term for your injections?
I’m currently getting trigger point injections with a physiatrist on my upper back but doesn’t help my lower back. So I’m waiting to see a pain management doctor. I’m scared he’ll only suggest an epidural.
Maybe it's Harlow's favorite ball because it is split and she can grab it easier :)
About the ketamine and the hospital: can't your old pain management doctor talk with the doctor at the hospital and tell them how he used to do it? Maybe that's an option to get more pain relief?
Hi! I agree peoples amusement with side effects or too much of a drug to one person and others thinking its funny. Really isnt. Namaste Jaquie. Hugs. Keep moving forward! :)
I can’t use narcotics because addiction runs in my family and we don’t want to risk it
PetSmart has those balls. I have one for you girl.
Nice to see you in something besides pink lol!
Hi Jaquie, You are always in my thoughts and prayers honey. I am old enough to be your mother and want to tell you that I think you are adorable and sweet. Sending positive vibes your way. xoxoxoxoxoxo
How old is hippo
Im hoping ketamine will soon be available in Canada for treatment for chronic pain, depression, ptsd, etc. It's not yet been approved ☹
Ketamine can make PTSD worse so be careful when you do get to try it. It has a warning on it about causing in some people flashbacks of traumatic events. Just so you are aware.
Can you ask your previous pain doctor how and how much ketamine (I think it’s written like that, I am not sure) he gave you so you can give that to your anesthetist?
The other issue is that, since my doc relocated, he has not established yet and there is not a way to reach him. The old office he practiced at has my records, but I cannot yet contact the doctor himself. :/
Chronically Jaquie ohh I am so sorry... I hope you will be able to contact him in the near future so you can get your information...
Hi
How long have you had all your syndrome and when you diagnosed and bye the why get well soon I love the idea of a doggy worker xx 😊