It really is underrated!! Its hard because no one believes you when you tell them. They laugh or think you're joking. I feel it causes almost a social anxiety which can lead to issues at school, work, etc. Idk if y'all feel the same way...
Same with me. Born deaf in my right ear. Trying to have conversations in public places is a nightmare. And when ppl just stare at you like there's something wrong with you is frustrating.
Omg. Thanks for this video. I'm literally crying because nobody wants to understand how it feels and how badly affect my life. I will show this video to anyone who make jokes about me because I'm so sick to hear the same "But you can still hear with the right ear, hearing can't be a problem for you".
I certainly understand. My biggest problem is finding where sounds come from. People laugh because I look around when they call me. I have to explain a lot. Second is crowd noises and fans. Makes it really hard to hear.
I've never searched on youtube for pple that have my same problem, we are really struggling, i can't tell anyone about it, and what makes me upset is when i should tell my friends but they keep joking around and forget about it sometimes, when they want to whisper to me in my ear in public, they directly went to my deaf ear and when i stopped them they are being like " ooh that's your deaf ear give me the other side .." , I'm not ashamed of my ear, im proud of my self for being strong, but i believe that not anyone have the right to know about it but after reading the comments here it made feel understood thank you so much♡♡♡
My wife recently bought me headphones that have been rewired and developed for SSD. I'm happy to say that they work and give you full stereo in your good ear. There are separate channels on top and below. It's wild! Do a Google search and do yourself a favor if you have the means.
90% deaf in my right ear. It’s so hard to talk to people in restaurants when their crowded. I hated crowds to begin with now I avoid them like the plague because I can’t hear what anyone is saying. 21 and really don’t wanna have to wear a hearing aid, enough of an outcast with one eye as it is.
I am also 21 and deaf in one ear! I feel your pain, been looking into hearing aids recently because being at university has made it even worse socialising. I’m often forced to step back from the situation and be quiet when there’s too many people in a room.
In bars or pubs its incredibly frustrating. Not just for me but people trying to talk to me. I nod or laugh with context clues allot of the time to avoid being the guy thats like what?? What??
I am very particular about where I sit in a restaurant. I dont like anyone sitting on my right side. It makes me uncomfortable I always try to sit at the end of the table or the edge I can hear best from.
I was born deaf in my left ear. There are challenges with it for sure. But I wanted to express how often I'm thankful that I have one good ear. Not everyone is born with hearing. Don't feel too down about your SSD. We have what some might wish to have.
I feel like sometimes people don't believe me when I tell them I can't hear out of one ear or they think that since my other ear works fine I can probably hear everything the same. I hate repeatedly telling people that I need them to speak louder and not mumble and to try as best they can to be facing me when they talk.
I feel you completely. Worst part is having to quickly tell someone, like a cashier, that you can't hear them due to ssd. Really hate to have to say that to everyone I meet. Unless, of course, they speak loud enough as is.
You're right. They don't believe you. And if they do, they think it can't be that bad. Trust me. I've been 100% deaf in my right ear since birth! (42 now)
Shoutout to all the SSD peeps! I myself is deaf on the left ear. For the first time ever I'm probably going to try on some hearing aids. My hearing was perfect from 2007- I could hear from both ears but then I have no idea how or what caused my deafness. I didn't realize anything because I was just a kid but sometimes I would see the difference and then they did a hearing test again in 2010 and rip in pepperoni to my left ear :(
Splaze I m deaf with my left ear and I had to deal a lot of awkward situations..for example when somebody is sitting beside me calls me...on my left side in a train or any places where there is background noise..then I couldn't hear them..and they began to think that I am being too arrogant, mean and rude..which am I not in reality.
I am too deaf, on my left side. For years, I was teased as a child by my one childhood friend who would say jokingly...let me go on the other side so you can hear me. I hated this feeling and now that I am grown, I am suffering from tinnitus in the good ear (right ear). This is a horrible situation to be in because I never know when one day my world would be silenced :( So I empathize with you all because I too suffer the same madness.
Hi radeesha, thanks for your comment. I can understand that suffering from tinnitus must be very exhausting for you. Did you know that cochlear implants can help suppress tinnitus? You can read some more details on that here: blog.medel.com/cochlear-implants-tinnitus-cure/ Kind regards, Barbara
This is spot on. I had deafness in both ears, 5 years ago I had a stapedectomy in my right ear so I know what it's like to not hear well at all to hearing good out of the right and now 2 weeks ago I had another stapedectomy in my left ear and hearing good out of both again!!
I can’t hear when I am in a restaurant .. or in crowds. I am becoming nervous and feel anxiety.. it gets embarrassing asking people to repeat themselves or say “what” all the time.. Monday I have a hearing exam.. reading all these nice comments has made me feel better. God bless you guys ♥️ and thank you
Hi Imelda, thanks for your comment. We wish you all the best for your hearing exam and the rest of your hearing journey. Please keep us updated and let us know if you have any questions. Kind regards, Gordana
Hi Den Ric, thanks for your comment. If you want to get in touch with other people with SSD and other implant users, we can recommend the HearPeers Forum. It is a friendly community and a place to share your hearing journey and hearing loss experiences with others. Here's the link: forum.hearpeers.com/. Kind regards, Verena
Me too. I coped with teaching for thirty years, but it was tiring. Now that I'm retired, I enjoy the luxury of no longer craning my neck to hear something which, nine times out of ten, wasn't worth the bother anyway. I wish you good fortune in finding a place in your chosen career.
it feels so good to find people who face the same struggle as me. irl it feels so weird because no one even believes that its an actual disability istg.
Hi there, We're happy this video helped you understand your boyfriend's situation more. If you would like to read more about Single-Sided Deafness, you might find this page useful: hearlife.medel.com/cochlear-implants-for-single-sided-deafness Kind regards, Mary
This is exactly how it goes , Im totally deaf in one ear,and have such social anxiety, forget about loud places. I can never relax. Its has a major influence on your life , it certainly has on mine .
Hi Anna, thanks for sharing your experiences. Many of our recipients who have hearing loss in one ear report the same from their time before implantation. On our blog you can read some of their stories: blog.medel.com/?s=single-sided If you want to get in touch with our MED-EL team to learn more about our hearing solutions and if they might be an option for you, please just send us a message via www.medel.com/contact-med-el Kind regards, Barbara
I have a Q for the other SSD peeps here. Do you struggle to work or concentrate when there is noise around you? I feel like I need absolute quiet to focus.
I can focus a lot better when there is no annoying background noise. Sometimes if it gets too noisy I am not able to do anything because I just can't focus on what I'm doing
This is pretty spot on. The brain does so much filtering of lots of sounds at once by tuning out certain directions, and we lose that when we only hear out of one side. I'm deaf on my R, lost it suddenly about 8 years ago. Got a cochlear implant on that side a year later, from med-el and it's helped a lot... By no means as good as regular hearing but it helps 😊
The SSD parts are pretty accurate, I can’t judge the binaural parts since I have to listen in mono. When I was a kid a waitress once asked: “” Me: “what?” Her: “would you like the super salad?” I love salad so “Yeah! I’d love the super salad! ” Everyone laughed. Was bummed to be corrected “soup OR salad?” Far from a super salad at that :-(
I agree. SSD is pretty accurate. I wouldn't eat an individual talking in a group as clear as this video. But all of us hear a little different I'm sure
What's been people's job experiences? I have single sided deafness. I'm totally deaf in my right ear but can hear fine from my left ear. I can generally hear people well because of my left ear but the problems come when trying to hear people from my right side in noisy places like busy stores and restaurants. This has caused me to be more selective when picking jobs. You need good hearing for most jobs. There are consequences to not hearing well on a job. Hearing aids can vary as far as how well they can help people on jobs. I'd guess many people with hearing aids may have to avoid jobs where they want employees to wear hearing protection like ear plugs. Can't wear hearing aids and ear plugs at the same time.
Hi CrowdPleeza, thank you for sharing your thoughts. Hearing loss does affect many individuals around the world in their workplace. For many people with severe-to-profound hearing loss, improved hearing with cochlear implants has actually enabled them to return to work or studies. You might be interested in checking out this story from CI recipient Scott: blog.medel.com/overcoming-hearing-loss-in-the-workplace-scotts-tips/
I recently moved away from a career in a big city where I'd have to work in open plan offices and be expected to go out frequently to loud bars with my colleagues... It all became too much. I have only recently realised how much single sided deafness has effected me. I have now moved to a quiet village and have taken a break from working, I think I'm going to retrain as an accountant. Thankfully I have a supportive partner but I am conscious of how much I have lost out financially by having to start from scratch. I could have a bone anchored hearing aid, but I am not comfortable with that.
Driving with total hearing loss in your right ear can be tough (if you live in the US like me). Can't really have music on at the same time. Some people have been really considerate at my work places.. but a lot of people forget and think I'm ignoring them when they say hi. -.-
Interesting, I have the same deafness as you.. 100% deaf on the right ear and I also have problems hearing people in noisy places. In noisy places I get a ridiculously high tinnitus. It would be interesting to know what you work with. Professionally it was a huge drawback once I had my sudden deafness.
I once had a new job as a software developer and initially I sat in a quite office but after 3 months had to move into the office landscape. I kid you not but my performance and productivity went down 90% before I started using silent headphones. Even then it was never the same as working in a quite enviroment.
Thanks so much for the video, I have had SSD since I was born and it doesn’t get much light shed on it and I think more people need to understand what it is like to live like this and why I say “what” after questions that sometimes I even heard but I just am so used to saying “what” that i say it anyway
In my situation, and for many others with single sided deafness, the "what?" stuff is because of a syndrome called cognitive delay. I have total hearing loss in my right ear and have said "what?" so many times only to have understood the words while I'm saying "what?" I was told that it is because our brains have to exert more to parse the conversation and that we initially don't understand the speech but just a brief moment later our brains have fully decoded it. Learning this understanding after being deaf in one ear for 20 years really upset me. Knowing why I had said "what?" so many times while I had actually heard the words only with a slight delay was very emotional for me.
On the whole, I get by pretty well with SSD. Twenty years ago I totally lost the hearing in my right ear due to sudden hearing loss, so I’ve had time to adjust to it. In a group, I try to position myself to hear, and I briefly explain I why, if necessary. People have always been understanding, and sometimes will ask if they are on correct side of me, if they are aware of my issue. However, noisy situations are a big problem, as other comments have said. I do avoid noisy gatherings, which I regret having to do. It does make a difference in my social life.
Hi there, thank you for sharing your experience with SSD. If you would like to get in touch with your local MED-EL team to learn more about different hearing solutions that might fit your needs, you can get in touch with them here: www.medel.com/contact-med-el Kind Regards
This video is a great idea to let people experience the effects of being SSD. But I think with a few changes in the details it might be even more impressive: even in the SSD part I can still understand most of the conversation with only the left side of the headphone. Why not make it complete deafness instead of just reducing the volume? The other idea would be to change the deaf side to the right, so that the deaf ear would face the conversation at the table. This is often a great difficulty for people with SSD when they arrive late for a meeting and cannot chose the seat. It would be wonderful to have another, slightly more elaborated, video like this to share with colleagues and friends!
in reality you hear as well don't forget that sounds you normally pickup with your for example in my case deaf left now go over your head towards the right for your brain to figure out while at the same time it's dealing with what you normally hear from that side too , reduced/mumbled sounds is as best as one could describe it.
I think the dream would be finding a SSD-Person of the opposite ear since we could than walk with each other and still hear everyting they say. I for myself was known for the guy who always walked as far left as possible.
It happened to me by pure coincidence once :D it was with my first ever boyfriend and we got very lucky because we both had SSD but with our different ears! it was very convenient when we had to walk around a noisy town
The amount of times I look up to see someone’s impatient face who has obviously just asked me something I didn’t hear 🙄...so frustrating, often makes my interactions feel stilted and awkward.
I lost all hearing in my left ear suddenly about 6 months ago. I have no idea why, and I can't afford to see a specialist. I feel like no one really understands how much harder my life has been since I've lost it. I barely go out anymore because I just can't hear. As a sophomore in college, hearing loss really sucks, and nobody really understands that in noisy areas, i'm pretty much completely deaf.
Hi Angelique, thanks for your comment. I can understand how hard and frustrating this situation must be for you. Have you talked to one of the local MED-EL representatives yet? They are best placed to support you as they have information on insurance options etc. and can help find a solution for you. Here you can find their contact details: www.medel.com/clinic-finder Kind regards, Barbara
I am also at university, and I’ve been dealing with SSD since I was a teenager. With socialising at university often revolving around huge gatherings I feel excluded a lot of the time and end up stepping back and watching everyone interact as if behind glass an an aquarium.
I'm so grateful that you have said life is harder one ear down. I can't compare my before and after hearing loss, so I have wondered how big is the impact of SSD. I too feel that no-one understands. And SSD is its own special kind of torment in noisy environments isn't it?! Lol. You have to endure the unpleasantness of LOUDNESS, while also failing to hear any distinct sounds. A mixture of being affronted by noise and frustrated by an inability to follow a conversation.
Lack of positional audio input is really disorientating. Having someone shout your name but completely unable to work out where they called you from. Or hearing an ambulance siren and cannot figure out where it is coming from. (Deaf in left ear here)
I don’t find this to be accurate. I see commenters saying that they do. How somebody experiences single-sided deafness is on a spectrum. For me background noise is extremely loud and the person talking is very quiet. What I heard in this video was that everything was way quieter especially the person talking.
To me it’s accurate but I usually point my good ear towards the direction of the sound that I need to hear. Other than that what you described is what happens to me when I’m sitting on the wrong side of the table lol
I was born SSD and I’m happy to see there are videos to show what it’s like. Not everyone believes the struggles I go through. Hopefully this video will help with that. Hopefully this will encourage my family and friends to learn ASL.
i have ssd and what i think might make it different to other types of hearing loss is that in public places it is overwhelmingly loud (even though i have hearing loss) but also incredibly confusing i can hear someone is talking but i can’t tell who it is, where it’s coming from or what your saying it’s just a lot of chaotic noise i feel like a lot of people undermine it because i can technically hear but despite the fact that i can hear i really struggle to understand what people say to me
Yep. Same here. I feel like most people are too superficial to understand it. Like if we each had one arm, would everyone expect us to catch any thrown ball, no matter which side of our bodies it was thrown? Or if as SSD sufferers, if we had a 'deaf person's voice' would people be more accepting of our impairment? I think that acknowledgement and acceptance of disability is partly based on the viewers ability to determine a level of impairment by their own sensorial cue. Further, I personally think the reason is that most people are unaccommodating stems from a more broad issue in each others' lives. People seem to have so little interest in other humans that they cannot, or choose not to see beyond even the faintest veil of our humanity and individuality. They simply do not care. They do not care to understand, to make adjustments, etc. I believe what most people care about is our utility in their lives. I think every person knows they are a complex being with their own universe, but they do not look at another person and marvel as another universe walks by.
So I came back to this vid after viewing a while back. Fellow one ear deafies, I want to ask you a question. In semi-noisy environments where you can, with effort, make out what a person is saying to you, do you find it takes your brain a few secs to untangle the noise-mess and figure out what they've just said? If you experience this like I do, do you find it difficult to have a conversation in 'real time' with another person? I feel like my brain is processing and clarifying sounds too slowly, that I always appear somewhat slow-witted in these situations. And on top my ear/brain sometimes gets it wrong by missing a word (and hence changing the meaning of the phrase), or gets part of the word wrong like hearing 'squaring' rather than 'despairing' and then my actual hearing loss becomes WORSE because it is then compounded by a psychological embarrassment effect of loss of confidence in what I'm hearing. And then I feel I can't confidently contribute to a conversation, because even when I am hearing things correctly, I still doubt my own hearing AND I respond with too much of a delay. So the net effect is that I just can't have a conversation that is satisfying for myself or the other person in these situations. Honestly I feel like anytime we're in an environment with noise us SSD peeps are essentially playing a game of chinese whispers with our good ear to the hearing part of our brain and we all come out looking like duffers. Frustrated, tired duffers. And unlike one eye peeps, we don't even have a cool mascot like pirates to represent us and to look up to.
Totally agree. I was losing hearing in my right ear due to an acoustic neuroma and a few months ago I had surgery which caused me to lose all my hearing in that ear. It is very difficult to hear in noisy places like restaurants and gyms. I tried going with my friend to the gym and honestly couldn’t hear anything she said she has to repeat herself and I could tell she was annoyed. I think knowing that I probably won’t hear someone makes the condition even worse. I also just feel like no one can relate or I don’t know anyone who does because I am only a teenager. I wish the best for you.
Lol, my SSD is in my right ear, so I had to switch headphones to hear it the way it should ;p . I couldn't hear the difference with the binaural when my headphone was one my left ear, nd barely couldn't hear anything from the unilateral when it was on my right side... Amazingly done though, this video!
I went deaf on the left side as I child so I experienced normal hearing before losing hearing in my left ear. I can tell you that this is a significant disability and, to make it worse, it is an invisible disability. CROS hearing aids help a lot in everyday situations, but are hopeless in loud environments.
Hi there, thanks for reaching out. We recommend contacting your local MED-EL team via www.medel.com/clinic-finder as they are best equipped to help you in this case. Kind regards, Gordana
I have SSD(R) and I'm using headphones and thought it was really funny, cause I'm completely deaf in my right ear. So using headphones was kinda useless
I’m deaf in my left ear and could barely hear in my right ear, so getting around is pretty rough. They said a hearing aid can’t even help because I was born without a nerve in my left ear 👂
Hi there, thanks for reaching out to us, and I'm sorry to hear you're finding it rough with hearing loss. A medical/hearing specialist will be able to help give you information on what your options could be. We can help put you in touch with a local specialist - just send us a private message either on our UA-cam or Facebook channel with where you're from, and we can send contact details through. Kind regards, Leigh facebook.com/medel.hearlife/
Dhilip, thank you for your comment. We recommend that you get in touch with your local MED-EL team. You can fill out the contact form here: www.medel.com/contact-med-el and they will get in touch with you. Kind regards, Alicia
I'm SSD since 11 years ago. Got a cochlear implant, but does not work as expected. Now becoming partially deaf by the other side. I have a Fluctuating low frequency hearing loss. It's a sort of nightmare 😢
I think this video is pretty accurate though I can hear neither v well. I have hearing loss (severe on left and mild on right) but I can see the poor girl's confusion
The one bonus is hearing songs differently and almost in seperate pieces that people don't normally experience through headphones because they hear both sides naturally....when I want an almost " b " side to a favorite albumn I just use the other wireless headphone. Deaf in left ear since birth - 36yrs old
Did you know Brian Wilson and Rob Lowe are both deaf in their right ears? I am too, although I am not quite as talented as them. I find listening to classical and jazz music helps me.
The struggle is real. I have a bone anchored hearing aid and choose to laugh with it. I worked in a building with 6 elevators. The "ding" became what I called "the elevator tango"; spinning around to find where the sound came from only to see the door closing. LOL! Hearing loss is what you make of it; it can make you miserable or make you laugh - choose to laugh.
This is a good example of SSD in a moderately noisy environment. However, when the clamor in the background gets louder, I just can't hone in on any sound at all from a speaker and have to rely almost totally on lip-reading. It's actually embarrassing (kinda shown by the blonde's face at the end of the vid, but it's also really really tiring after an hour or so. There is also a guy with SSD who has married into my extended family and no-one can stand him because everyone thinks he's sullen and never talks. But I TOTALLY get it. Anyhow, he's been married to my niece for about 20 years but we've still never actually spoken, because the one time we were seated at a dinner together we both had our bad ears facing each other. Oh lolz! I still have no opinion of the guy. Sullen bad guy? Misunderstood fella? Who knows haha!
This really is how it is in a weird way. Heartbreaking 😅 I wish there were a way to fix it, I definitely feel like a retord all of the time. I've been fired from jobs and I feel like it contributed to me losing my kid and being beat so many different times. because I "never listen" . it's a catastrophe. The worst part is it's so normal and subtle but so absurdly apparent at the worst times.
Hi Mandy, thanks for sharing your experiences. Have you been in touch with a medical specialist regards your hearing loss already? They can take a closer look at your situation and maybe a cochlear implant, a middle-ear implant or a bone conduction implant can be an option for you. Many of our recipients have reported that not only their hearing but their over all quality of life has increased after being implanted. I'd recommend to get in touch with a MED-EL team near you. They are best placed to support you and help find the best hearing solution for you. You can contact them via our website www.medel.com/contact-med-el Kind regards, Barbara
Makes me think, I had a situation in middle school where a guy would talk to me, I didnt hear him right and I kept asking him to repeat himself louder (the environnement was loud in the first place) and at some point he leggit got super angry at me and shouted "'ARE YOU FUCKING DEAF OR SOMETHING ?!" and of course he meant in a derogatory way. When I told him that yes I am indeed deaf he started to feel guilty about shouting at me and being rude like that. I hope this experience will help him avoid using deafness as an insult in the future. This has happened a long time ago so idk about that. I guess my point is that some people simply do not realise that being deaf is a reality and not just an insult it's okay to throw at people.
I'm 13 and have been told by a doctor I am "partly deaf in my right ear but that was many years ago. Now I can't hear anything in my right ear when I cover my left ear.
Thank you for reaching out. To assess your situation please get in touch with a medical professional or with our local MED-EL team, who are best placed to support you. On our website you'll find their contact details: www.medel.com/clinic-finder. Kind Regards, Giulia
I had an idea of what this is like. I had an almost complete perforation of my left tympanic membrane. Mid to hi frequencies to almost impossible to hear. A year later I had a tympanoplasty to “repair it. I got about 30% back
Hi Žak, thanks for your comment. I'd recommend to get in touch with our local MED-EL Representatives as they can support you and help find the best hearing solution for you. On our website you'll find the contact details of specialists near you: www.medel.com/clinic-finder Kind regards, Barbara
My right ear went totally deaf to the outside with loud tones fluctuating loudly within, my left ear used to be my bad ear with tinnitus and is my only one that can hear. In a restaurant setting like that I can hardly make out what people say if at all, I figure I better learn telepathy but before that I must be indifferent to peoples judgments and mental chatter so I don't get offended.
I have one other question for SSD peeps. So with often struggling to hear with my SSD I naturally learnt to lip read a bit. As a kid I used to sometimes stare through the shop window at the TVs in the electronic stores. The TVs were of course on mute and I was usually out on a noisy street anyhow. Anyway, when there was someone on the TV screen with clear pronunciation, almost always a newsreader, I could literally, and yes I mean literally, hear them. I couldn't just see what they were saying, I could hear it. If I knew the newsreader it was always more pronounced as well, I think especially so with Anne Sanders. I guess it's a kind of learnt mechanism to have the brain produce an auditory hallucination that fits what it sees? Because I had learnt to partially 'hear with my eyes'? I haven't noticed myself having that experience in a long time, but I used to have it not infrequently. Has anyone else had this?
I do this sometimes! I've started watching shows in the past only using captions/lip reading (at the gym), and then picking them up later at home with more volume. I often like the voice I "heard" in my head better their actual voice lol
I am deaf in my left ear and, I read lips and sometimes if I get some of the sentence have to add words to get it like feel in the blacks. it is so hard the pandemic showed me ho much I use lip reading.
Hi there, thanks so much for your comment. We understand that masks can be a problem when you rely on lip reading. If you want to speak to your local MED-EL team to see what options might help, you can find them here: www.medel.com/clinic-finder Kind regards, Gordana
What’s the point ?? I’m sure a lot of us (I know I have) have already experienced what this is like, whether it be headphones, earplugs, or something else . What is the point/goal of the vid ???
No one understand mental pain how It affect our daily life due csom I lost hearing capacity of right ear since childhood still I am facing a lot to deal it with people
Hi there, we here at MED-EL understand you. We are in touch with many people who report that their hearing loss does not only effect their daily life, but also their mental health. And with our hearing solutions we want to help them overcome these issues. If you like to learn more and get in touch with our local MED-EL team near you, just send us a message via www.medel.com/contact-med-el They are best placed to support you as they can take a closer look at your situation. Kind regards, Barbara
kind off but for me this scenario the crow voice are very unpleasent cant stand for much time that why now dont go out for a meal, and the hearing aids for me right side didnt help
Has anyone felt any improvement using a hearing aid? I can't understand anything in noisy environments. I am considering the use of a hearing aid. But can anyone give me feedback?
Hi there, thank you for your message. You can find user experiences with different devices on our MED-EL blog. One that we recommend reading regarding your question is this: blog.medel.com/i-only-wish-i-had-done-it-sooner-sams-story/ Kind regards, Gordana
I’ve had this condition for 40 years. What I will tell all of you is that God gave you 2 ears and so while it can be a pain in the butt sometimes, you and your brain will learn to adapt. The other point to make her is that sadly, I have not found many solutions to the prob over the years. Most advanced right now is a cochlear implant but who wants to go around w a disc on your head and another device behind your ear and unsure if insurance will cover. Almost best to just learn to live w it.
Yes definitely I think that was the point. We know from the binaural clip that she was asking what he wanted to drink, but in the SSD clip he sees the waiter and says "I'll just have the fries." She looks frustrated and the woman he was talking to thinks he's weird or acted like a jerk to the server
Not exaggerated, especially in noisy environments like these with multiple conversations echoing in the room. Due to the "head shadowing" effect, the lack of sound localisation as well as the missing ability to subconsciously filter out background noise from actual conversation. Sometimes you miss others altogether and don't even know you're being spoken to. Those decibels lost due to sound coming the "wrong side" can make all the difference between hearing a discernible mess or nothing at all. I've had complete unilateral hearing loss all my life with no chance of any improvement with today's technology (missing connector nerve), so this is from personal lifelong experience.
@@Cloud7050 I have had unilateral hearing loss from birth , I'm curious do we hear differently than other normal people ? It affects me when someone is ony right and talks to me also in noisy environments, is there anything else tho ?
Im 18 and deaf in my right ear since i was born. I think the struggle we have is underrated .
Taiy it totally is unfortunately
It really is underrated!! Its hard because no one believes you when you tell them. They laugh or think you're joking. I feel it causes almost a social anxiety which can lead to issues at school, work, etc. Idk if y'all feel the same way...
Taiy Same
Same with me. Born deaf in my right ear. Trying to have conversations in public places is a nightmare. And when ppl just stare at you like there's something wrong with you is frustrating.
same
Woah i just found my community. Brooooo i've never seen sooo many comments about this problem before. Im almost crying
Omg. Thanks for this video. I'm literally crying because nobody wants to understand how it feels and how badly affect my life. I will show this video to anyone who make jokes about me because I'm so sick to hear the same "But you can still hear with the right ear, hearing can't be a problem for you".
damn, some people are really fucked up, take care
I certainly understand. My biggest problem is finding where sounds come from. People laugh because I look around when they call me. I have to explain a lot. Second is crowd noises and fans. Makes it really hard to hear.
I've never searched on youtube for pple that have my same problem, we are really struggling, i can't tell anyone about it, and what makes me upset is when i should tell my friends but they keep joking around and forget about it sometimes, when they want to whisper to me in my ear in public, they directly went to my deaf ear and when i stopped them they are being like " ooh that's your deaf ear give me the other side .." , I'm not ashamed of my ear, im proud of my self for being strong, but i believe that not anyone have the right to know about it but after reading the comments here it made feel understood thank you so much♡♡♡
I‘m here with you i‘m deaf in one ear too, its no joke
Playing video games with a headset on and being deaf in one ear is my biggest struggle😂but if the house is too noisy I just sleep on my hearing ear 😂👌
We would never experience the full quality of having a headset on :(
My wife recently bought me headphones that have been rewired and developed for SSD.
I'm happy to say that they work and give you full stereo in your good ear. There are separate channels on top and below.
It's wild! Do a Google search and do yourself a favor if you have the means.
@@zenmasterdude1362 WOW! Can you tell me the brand?
Jonathan Lloyd I feel you man
Haha yeah, I can relate to both! ;-)
90% deaf in my right ear. It’s so hard to talk to people in restaurants when their crowded.
I hated crowds to begin with now I avoid them like the plague because I can’t hear what anyone is saying.
21 and really don’t wanna have to wear a hearing aid, enough of an outcast with one eye as it is.
I am also 21 and deaf in one ear! I feel your pain, been looking into hearing aids recently because being at university has made it even worse socialising. I’m often forced to step back from the situation and be quiet when there’s too many people in a room.
In bars or pubs its incredibly frustrating. Not just for me but people trying to talk to me.
I nod or laugh with context clues allot of the time to avoid being the guy thats like what?? What??
I am very particular about where I sit in a restaurant. I dont like anyone sitting on my right side. It makes me uncomfortable I always try to sit at the end of the table or the edge I can hear best from.
@@Boneheadboyfriendbro have you got job?
I was born deaf in my left ear. There are challenges with it for sure. But I wanted to express how often I'm thankful that I have one good ear. Not everyone is born with hearing. Don't feel too down about your SSD. We have what some might wish to have.
Me too
Agreed. I was born deaf in my left ear too and am very thankful that I have one good hearing ear.
I was born aswell with one good ear and am grateful but you can’t deny the struggle
Thank you so much for sharing this! I hope my daughter can feel the same
I have a question does anybody have a thing when you talk your mouth goes where your hearing hear is?
I feel like sometimes people don't believe me when I tell them I can't hear out of one ear or they think that since my other ear works fine I can probably hear everything the same. I hate repeatedly telling people that I need them to speak louder and not mumble and to try as best they can to be facing me when they talk.
Zayden, I have the same issue and hated to tell folks to come on the other side so that I can hear what you are saying, this sh*t is bogus.
I feel you completely. Worst part is having to quickly tell someone, like a cashier, that you can't hear them due to ssd. Really hate to have to say that to everyone I meet. Unless, of course, they speak loud enough as is.
You're right. They don't believe you. And if they do, they think it can't be that bad. Trust me. I've been 100% deaf in my right ear since birth!
(42 now)
@@Maluhkye I know, but if you wear a hearing aid at work and point to it when you have to tell a customer, they will believe you. I promise!
Shoutout to all the SSD peeps! I myself is deaf on the left ear. For the first time ever I'm probably going to try on some hearing aids. My hearing was perfect from 2007- I could hear from both ears but then I have no idea how or what caused my deafness. I didn't realize anything because I was just a kid but sometimes I would see the difference and then they did a hearing test again in 2010 and rip in pepperoni to my left ear :(
Splaze i am also deaf from my left ear, unfortunately 😢😢 but i adapted to this problem, i feel like a anyone else
+Jesus Daniel Molina i m also deaf from left ear and also gone 50% right ear
Splaze I was born deaf in my left ear :) only found out a few years ago though 😂
Splaze i m also deaf from my left ear .. I cant hear from my left ear .. Can you give me the solution of that condition..
Splaze I m deaf with my left ear and I had to deal a lot of awkward situations..for example when somebody is sitting beside me calls me...on my left side in a train or any places where there is background noise..then I couldn't hear them..and they began to think that I am being too arrogant, mean and rude..which am I not in reality.
This made me cry. I hate that I've gaslit myself my whole life like it isn't as bad as it really is. This hit me to my core! So accurate!
I am too deaf, on my left side. For years, I was teased as a child by my one childhood friend who would say jokingly...let me go on the other side so you can hear me. I hated this feeling and now that I am grown, I am suffering from tinnitus in the good ear (right ear). This is a horrible situation to be in because I never know when one day my world would be silenced :( So I empathize with you all because I too suffer the same madness.
Hi radeesha, thanks for your comment. I can understand that suffering from tinnitus must be very exhausting for you. Did you know that cochlear implants can help suppress tinnitus? You can read some more details on that here: blog.medel.com/cochlear-implants-tinnitus-cure/ Kind regards, Barbara
Hi
I have the same problem. I am trying to find a solution.
What's tinnitus? Is a related diseases to ssd patient
I m also suffering same problm, i toaly deaf from right side, also using hearng aid in left ear who is 80 db damg, also tintitus, alergy nosal, 😢😢
This is spot on. I had deafness in both ears, 5 years ago I had a stapedectomy in my right ear so I know what it's like to not hear well at all to hearing good out of the right and now 2 weeks ago I had another stapedectomy in my left ear and hearing good out of both again!!
You are lucky that your hearing loss is curable. My mom has the same problem as yours.
I can’t hear when I am in a restaurant .. or in crowds. I am becoming nervous and feel anxiety.. it gets embarrassing asking people to repeat themselves or say “what” all the time.. Monday I have a hearing exam.. reading all these nice comments has made me feel better. God bless you guys ♥️ and thank you
Hi Imelda, thanks for your comment. We wish you all the best for your hearing exam and the rest of your hearing journey. Please keep us updated and let us know if you have any questions.
Kind regards,
Gordana
It's so hard hearing with one ear...In a crowd I hear everyone, but no one....
Im deaf in my left ear and no body understands how difficult it is to love with it
Agreed :(
I've had an acoustic neuroma that caused my SSD. Glad to meet SSD's here. This had an impact on my self-confidence and getting a job that I want.
Hi Den Ric, thanks for your comment. If you want to get in touch with other people with SSD and other implant users, we can recommend the HearPeers Forum. It is a friendly community and a place to share your hearing journey and hearing loss experiences with others. Here's the link: forum.hearpeers.com/. Kind regards, Verena
Hello, how are you doing hope you having a wonderful morning
Me too. I coped with teaching for thirty years, but it was tiring. Now that I'm retired, I enjoy the luxury of no longer craning my neck to hear something which, nine times out of ten, wasn't worth the bother anyway. I wish you good fortune in finding a place in your chosen career.
it feels so good to find people who face the same struggle as me. irl it feels so weird because no one even believes that its an actual disability istg.
My boyfriend is profound SSD(L) and this video helped me a lot to understand his struggle. Thank you.
Hi there,
We're happy this video helped you understand your boyfriend's situation more. If you would like to read more about Single-Sided Deafness, you might find this page useful: hearlife.medel.com/cochlear-implants-for-single-sided-deafness
Kind regards,
Mary
Felt glad that there r people who can love someone with ssd😊stay blessed
This is exactly how it goes , Im totally deaf in one ear,and have such social anxiety, forget about loud places. I can never relax. Its has a major influence on your life , it certainly has on mine .
Hi Anna, thanks for sharing your experiences. Many of our recipients who have hearing loss in one ear report the same from their time before implantation. On our blog you can read some of their stories: blog.medel.com/?s=single-sided If you want to get in touch with our MED-EL team to learn more about our hearing solutions and if they might be an option for you, please just send us a message via www.medel.com/contact-med-el Kind regards, Barbara
I have a Q for the other SSD peeps here. Do you struggle to work or concentrate when there is noise around you? I feel like I need absolute quiet to focus.
I can focus a lot better when there is no annoying background noise. Sometimes if it gets too noisy I am not able to do anything because I just can't focus on what I'm doing
I find classical and jazz music can help sometimes.
I can focus only in complete silence or when I put on mild background music that masks my tinnitus.
@@heini9008 That is exactly my experience. My brain kind of goes into this state of shutdown due to noise overload.
Same no hearing in my right ear, but iam glade that my left ear still works
Sedik Bendaoud same
same, although I don't think my left ear is quite what it used to be, so make extra sure to look after your good ear :)
This is pretty spot on. The brain does so much filtering of lots of sounds at once by tuning out certain directions, and we lose that when we only hear out of one side. I'm deaf on my R, lost it suddenly about 8 years ago. Got a cochlear implant on that side a year later, from med-el and it's helped a lot... By no means as good as regular hearing but it helps 😊
The SSD parts are pretty accurate, I can’t judge the binaural parts since I have to listen in mono. When I was a kid a waitress once asked: “” Me: “what?” Her: “would you like the super salad?” I love salad so “Yeah! I’d love the super salad! ” Everyone laughed. Was bummed to be corrected “soup OR salad?” Far from a super salad at that :-(
Any one could have made that mistake, the waitress could have even been at fault for that and how she said it .
Been there & done that
I agree. SSD is pretty accurate. I wouldn't eat an individual talking in a group as clear as this video. But all of us hear a little different I'm sure
ALL THE TIME I HATE IT!!
this happens alot, and they think your ditzy
The comments just feel so warm.
What's been people's job experiences?
I have single sided deafness. I'm totally deaf in my right ear but can hear fine from my left ear. I can generally hear people well because of my left ear but the problems come when trying to hear people from my right side in noisy places like busy stores and restaurants. This has caused me to be more selective when picking jobs. You need good hearing for most jobs. There are consequences to not hearing well on a job.
Hearing aids can vary as far as how well they can help people on jobs. I'd guess many people with hearing aids may have to avoid jobs where they want employees to wear hearing protection like ear plugs. Can't wear hearing aids and ear plugs at the same time.
Hi CrowdPleeza, thank you for sharing your thoughts. Hearing loss does affect many
individuals around the world in their workplace. For many people with
severe-to-profound hearing loss, improved hearing with cochlear implants has
actually enabled them to return to work or studies. You might be interested in
checking out this story from CI recipient Scott: blog.medel.com/overcoming-hearing-loss-in-the-workplace-scotts-tips/
I recently moved away from a career in a big city where I'd have to work in open plan offices and be expected to go out frequently to loud bars with my colleagues... It all became too much.
I have only recently realised how much single sided deafness has effected me.
I have now moved to a quiet village and have taken a break from working, I think I'm going to retrain as an accountant. Thankfully I have a supportive partner but I am conscious of how much I have lost out financially by having to start from scratch.
I could have a bone anchored hearing aid, but I am not comfortable with that.
Driving with total hearing loss in your right ear can be tough (if you live in the US like me). Can't really have music on at the same time. Some people have been really considerate at my work places.. but a lot of people forget and think I'm ignoring them when they say hi. -.-
Interesting, I have the same deafness as you.. 100% deaf on the right ear and I also have problems hearing people in noisy places. In noisy places I get a ridiculously high tinnitus. It would be interesting to know what you work with. Professionally it was a huge drawback once I had my sudden deafness.
I once had a new job as a software developer and initially I sat in a quite office but after 3 months had to move into the office landscape. I kid you not but my performance and productivity went down 90% before I started using silent headphones. Even then it was never the same as working in a quite enviroment.
Thanks so much for the video, I have had SSD since I was born and it doesn’t get much light shed on it and I think more people need to understand what it is like to live like this and why I say “what” after questions that sometimes I even heard but I just am so used to saying “what” that i say it anyway
me all the time: "wait what?? oh, yeah ....." literally how I answer questions lol!
I identify.
In my situation, and for many others with single sided deafness, the "what?" stuff is because of a syndrome called cognitive delay. I have total hearing loss in my right ear and have said "what?" so many times only to have understood the words while I'm saying "what?" I was told that it is because our brains have to exert more to parse the conversation and that we initially don't understand the speech but just a brief moment later our brains have fully decoded it. Learning this understanding after being deaf in one ear for 20 years really upset me. Knowing why I had said "what?" so many times while I had actually heard the words only with a slight delay was very emotional for me.
On the whole, I get by pretty well with SSD. Twenty years ago I totally lost the hearing in my right ear due to sudden hearing loss, so I’ve had time to adjust to it. In a group, I try to position myself to hear, and I briefly explain I why, if necessary. People have always been understanding, and sometimes will ask if they are on correct side of me, if they are aware of my issue. However, noisy situations are a big problem, as other comments have said. I do avoid noisy gatherings, which I regret having to do. It does make a difference in my social life.
Hi there, thank you for sharing your experience with SSD. If you would like to get in touch with your local MED-EL team to learn more about different hearing solutions that might fit your needs, you can get in touch with them here: www.medel.com/contact-med-el
Kind Regards
This video is a great idea to let people experience the effects of being SSD. But I think with a few changes in the details it might be even more impressive: even in the SSD part I can still understand most of the conversation with only the left side of the headphone. Why not make it complete deafness instead of just reducing the volume? The other idea would be to change the deaf side to the right, so that the deaf ear would face the conversation at the table. This is often a great difficulty for people with SSD when they arrive late for a meeting and cannot chose the seat. It would be wonderful to have another, slightly more elaborated, video like this to share with colleagues and friends!
in reality you hear as well don't forget that sounds you normally pickup with your for example in my case deaf left now go over your head towards the right for your brain to figure out while at the same time it's dealing with what you normally hear from that side too , reduced/mumbled sounds is as best as one could describe it.
You're right, we definitely need some more ssd simulation videos.
I think the dream would be finding a SSD-Person of the opposite ear since we could than walk with each other and still hear everyting they say. I for myself was known for the guy who always walked as far left as possible.
It happened to me by pure coincidence once :D it was with my first ever boyfriend and we got very lucky because we both had SSD but with our different ears! it was very convenient when we had to walk around a noisy town
Lmao, this isn't a shoujo manga
The amount of times I look up to see someone’s impatient face who has obviously just asked me something I didn’t hear 🙄...so frustrating, often makes my interactions feel stilted and awkward.
Oh boy hearing the one sound come only through my bad ear... brought flashbacks
I lost all hearing in my left ear suddenly about 6 months ago. I have no idea why, and I can't afford to see a specialist. I feel like no one really understands how much harder my life has been since I've lost it. I barely go out anymore because I just can't hear. As a sophomore in college, hearing loss really sucks, and nobody really understands that in noisy areas, i'm pretty much completely deaf.
Hi Angelique, thanks for your comment. I can understand how hard and frustrating this situation must be for you. Have you talked to one of the local MED-EL representatives yet? They are best placed to support you as they have information on insurance options etc. and can help find a solution for you. Here you can find their contact details: www.medel.com/clinic-finder Kind regards, Barbara
I am also at university, and I’ve been dealing with SSD since I was a teenager. With socialising at university often revolving around huge gatherings I feel excluded a lot of the time and end up stepping back and watching everyone interact as if behind glass an an aquarium.
I'm so grateful that you have said life is harder one ear down. I can't compare my before and after hearing loss, so I have wondered how big is the impact of SSD. I too feel that no-one understands. And SSD is its own special kind of torment in noisy environments isn't it?! Lol. You have to endure the unpleasantness of LOUDNESS, while also failing to hear any distinct sounds. A mixture of being affronted by noise and frustrated by an inability to follow a conversation.
Lack of positional audio input is really disorientating. Having someone shout your name but completely unable to work out where they called you from. Or hearing an ambulance siren and cannot figure out where it is coming from. (Deaf in left ear here)
Agree. Deaf in right ear
Yes. When i Hear Someone Said my Name. I muss See around tiene try to find who is calling me. If it is a crowded area. Forge it I will never find
I don’t find this to be accurate. I see commenters saying that they do. How somebody experiences single-sided deafness is on a spectrum. For me background noise is extremely loud and the person talking is very quiet. What I heard in this video was that everything was way quieter especially the person talking.
To me it’s accurate but I usually point my good ear towards the direction of the sound that I need to hear. Other than that what you described is what happens to me when I’m sitting on the wrong side of the table lol
I was born SSD and I’m happy to see there are videos to show what it’s like. Not everyone believes the struggles I go through. Hopefully this video will help with that. Hopefully this will encourage my family and friends to learn ASL.
i have ssd and what i think might make it different to other types of hearing loss is that in public places it is overwhelmingly loud (even though i have hearing loss) but also incredibly confusing
i can hear someone is talking but i can’t tell who it is, where it’s coming from or what your saying it’s just a lot of chaotic noise
i feel like a lot of people undermine it because i can technically hear but despite the fact that i can hear i really struggle to understand what people say to me
Yep. Same here.
I feel like most people are too superficial to understand it. Like if we each had one arm, would everyone expect us to catch any thrown ball, no matter which side of our bodies it was thrown? Or if as SSD sufferers, if we had a 'deaf person's voice' would people be more accepting of our impairment? I think that acknowledgement and acceptance of disability is partly based on the viewers ability to determine a level of impairment by their own sensorial cue.
Further, I personally think the reason is that most people are unaccommodating stems from a more broad issue in each others' lives. People seem to have so little interest in other humans that they cannot, or choose not to see beyond even the faintest veil of our humanity and individuality. They simply do not care. They do not care to understand, to make adjustments, etc. I believe what most people care about is our utility in their lives.
I think every person knows they are a complex being with their own universe, but they do not look at another person and marvel as another universe walks by.
Same here.
So I came back to this vid after viewing a while back. Fellow one ear deafies, I want to ask you a question.
In semi-noisy environments where you can, with effort, make out what a person is saying to you, do you find it takes your brain a few secs to untangle the noise-mess and figure out what they've just said? If you experience this like I do, do you find it difficult to have a conversation in 'real time' with another person?
I feel like my brain is processing and clarifying sounds too slowly, that I always appear somewhat slow-witted in these situations. And on top my ear/brain sometimes gets it wrong by missing a word (and hence changing the meaning of the phrase), or gets part of the word wrong like hearing 'squaring' rather than 'despairing' and then my actual hearing loss becomes WORSE because it is then compounded by a psychological embarrassment effect of loss of confidence in what I'm hearing. And then I feel I can't confidently contribute to a conversation, because even when I am hearing things correctly, I still doubt my own hearing AND I respond with too much of a delay. So the net effect is that I just can't have a conversation that is satisfying for myself or the other person in these situations.
Honestly I feel like anytime we're in an environment with noise us SSD peeps are essentially playing a game of chinese whispers with our good ear to the hearing part of our brain and we all come out looking like duffers. Frustrated, tired duffers.
And unlike one eye peeps, we don't even have a cool mascot like pirates to represent us and to look up to.
Totally agree. I was losing hearing in my right ear due to an acoustic neuroma and a few months ago I had surgery which caused me to lose all my hearing in that ear. It is very difficult to hear in noisy places like restaurants and gyms. I tried going with my friend to the gym and honestly couldn’t hear anything she said she has to repeat herself and I could tell she was annoyed. I think knowing that I probably won’t hear someone makes the condition even worse. I also just feel like no one can relate or I don’t know anyone who does because I am only a teenager. I wish the best for you.
@@L0v3linz Thanks for replying - UA-cam didn't give me a notification. Yes I agree completely with what you've said. I hope you are coping okay.
Lol, my SSD is in my right ear, so I had to switch headphones to hear it the way it should ;p . I couldn't hear the difference with the binaural when my headphone was one my left ear, nd barely couldn't hear anything from the unilateral when it was on my right side... Amazingly done though, this video!
I can really relate to this, having been deaf in my left ear due to surgery for over twenty years. However it did cure my meniere's so was worth it.
I went deaf on the left side as I child so I experienced normal hearing before losing hearing in my left ear. I can tell you that this is a significant disability and, to make it worse, it is an invisible disability. CROS hearing aids help a lot in everyday situations, but are hopeless in loud environments.
Hi there, thanks for reaching out. We recommend contacting your local MED-EL team via www.medel.com/clinic-finder as they are best equipped to help you in this case.
Kind regards,
Gordana
I have SSD(R) and I'm using headphones and thought it was really funny, cause I'm completely deaf in my right ear. So using headphones was kinda useless
Sennamon Adams same for me
Yeah that's why I didn't bother to plug one in.
Hahaha same, I did the video once in a normal way, and the second time I did put the right on my left ear etc., such a difference.
I’m deaf in my left ear and could barely hear in my right ear, so getting around is pretty rough. They said a hearing aid can’t even help because I was born without a nerve in my left ear 👂
Hi there, thanks for reaching out to us, and I'm sorry to hear you're finding it rough with hearing loss. A medical/hearing specialist will be able to help give you information on what your options could be. We can help put you in touch with a local specialist - just send us a private message either on our UA-cam or Facebook channel with where you're from, and we can send contact details through. Kind regards, Leigh facebook.com/medel.hearlife/
Bone conduction hearing aids can help you. Best wishes.
YES THERE IS HOPE NOW WITH NEW ADVANCES
Yikes... I'm almost deaf in my left ear, and just watching this video gave me anxiety lol
Im also deaf in one ear, my left side ,i cant hear voice on the crowdy places .it's very frustrating.🥺
Dhilip, thank you for your comment.
We recommend that you get in touch with your local MED-EL team. You can fill out the contact form here: www.medel.com/contact-med-el and they will get in touch with you.
Kind regards,
Alicia
I'm SSD since 11 years ago. Got a cochlear implant, but does not work as expected. Now becoming partially deaf by the other side. I have a Fluctuating low frequency hearing loss. It's a sort of nightmare 😢
I am deaf in my right ear and this video is perfect
I think this video is pretty accurate though I can hear neither v well. I have hearing loss (severe on left and mild on right) but I can see the poor girl's confusion
The one bonus is hearing songs differently and almost in seperate pieces that people don't normally experience through headphones because they hear both sides naturally....when I want an almost " b " side to a favorite albumn I just use the other wireless headphone. Deaf in left ear since birth - 36yrs old
On your computer in the accessibility settings, you can select “play audio as mono” and this has solved that headphone problem for me.
Did you know Brian Wilson and Rob Lowe are both deaf in their right ears? I am too, although I am not quite as talented as them. I find listening to classical and jazz music helps me.
The struggle is real. I have a bone anchored hearing aid and choose to laugh with it. I worked in a building with 6 elevators. The "ding" became what I called "the elevator tango"; spinning around to find where the sound came from only to see the door closing. LOL! Hearing loss is what you make of it; it can make you miserable or make you laugh - choose to laugh.
YESSSSSS THANK YOUUU THIS IS A PERFECT EXAMPLE OF WHAT ITS LIKE
This is a good example of SSD in a moderately noisy environment. However, when the clamor in the background gets louder, I just can't hone in on any sound at all from a speaker and have to rely almost totally on lip-reading. It's actually embarrassing (kinda shown by the blonde's face at the end of the vid, but it's also really really tiring after an hour or so. There is also a guy with SSD who has married into my extended family and no-one can stand him because everyone thinks he's sullen and never talks. But I TOTALLY get it. Anyhow, he's been married to my niece for about 20 years but we've still never actually spoken, because the one time we were seated at a dinner together we both had our bad ears facing each other. Oh lolz! I still have no opinion of the guy. Sullen bad guy? Misunderstood fella? Who knows haha!
Do they have children????
This really is how it is in a weird way. Heartbreaking 😅 I wish there were a way to fix it, I definitely feel like a retord all of the time. I've been fired from jobs and I feel like it contributed to me losing my kid and being beat so many different times. because I "never listen" . it's a catastrophe. The worst part is it's so normal and subtle but so absurdly apparent at the worst times.
Hi Mandy, thanks for sharing your experiences. Have you been in touch with a medical specialist regards your hearing loss already? They can take a closer look at your situation and maybe a cochlear implant, a middle-ear implant or a bone conduction implant can be an option for you. Many of our recipients have reported that not only their hearing but their over all quality of life has increased after being implanted. I'd recommend to get in touch with a MED-EL team near you. They are best placed to support you and help find the best hearing solution for you. You can contact them via our website www.medel.com/contact-med-el Kind regards, Barbara
Makes me think, I had a situation in middle school where a guy would talk to me, I didnt hear him right and I kept asking him to repeat himself louder (the environnement was loud in the first place) and at some point he leggit got super angry at me and shouted "'ARE YOU FUCKING DEAF OR SOMETHING ?!" and of course he meant in a derogatory way. When I told him that yes I am indeed deaf he started to feel guilty about shouting at me and being rude like that. I hope this experience will help him avoid using deafness as an insult in the future. This has happened a long time ago so idk about that. I guess my point is that some people simply do not realise that being deaf is a reality and not just an insult it's okay to throw at people.
Thanks for sharing this personal experience with us
@@medel Thank you for reading!!
I was born deaf on my right ear but idk it's not that huge of a problem for me
Yes it's not a problem,but when you're in crowdy places it's difficult to understand from deaf side
I'm 13 and have been told by a doctor I am "partly deaf in my right ear but that was many years ago. Now I can't hear anything in my right ear when I cover my left ear.
Thank you for reaching out. To assess your situation please get in touch with a medical professional or with our local MED-EL team, who are best placed to support you. On our website you'll find their contact details: www.medel.com/clinic-finder. Kind Regards, Giulia
I had an idea of what this is like. I had an almost complete perforation of my left tympanic membrane. Mid to hi frequencies to almost impossible to hear. A year later I had a tympanoplasty to “repair it. I got about 30% back
Im deaf on my left ear from my birth on...
Hi Žak, thanks for your comment. I'd recommend to get in touch with our local MED-EL Representatives as they can support you and help find the best hearing solution for you. On our website you'll find the contact details of specialists near you: www.medel.com/clinic-finder Kind regards, Barbara
My right ear went totally deaf to the outside with loud tones fluctuating loudly within, my left ear used to be my bad ear with tinnitus and is my only one that can hear. In a restaurant setting like that I can hardly make out what people say if at all, I figure I better learn telepathy but before that I must be indifferent to peoples judgments and mental chatter so I don't get offended.
I have one other question for SSD peeps. So with often struggling to hear with my SSD I naturally learnt to lip read a bit. As a kid I used to sometimes stare through the shop window at the TVs in the electronic stores. The TVs were of course on mute and I was usually out on a noisy street anyhow. Anyway, when there was someone on the TV screen with clear pronunciation, almost always a newsreader, I could literally, and yes I mean literally, hear them. I couldn't just see what they were saying, I could hear it. If I knew the newsreader it was always more pronounced as well, I think especially so with Anne Sanders. I guess it's a kind of learnt mechanism to have the brain produce an auditory hallucination that fits what it sees? Because I had learnt to partially 'hear with my eyes'? I haven't noticed myself having that experience in a long time, but I used to have it not infrequently. Has anyone else had this?
i sure haven't. Really cool that you can do that though!
I do this sometimes! I've started watching shows in the past only using captions/lip reading (at the gym), and then picking them up later at home with more volume. I often like the voice I "heard" in my head better their actual voice lol
@@UnrelentingHiccups Yes! I'm glad to find someone else out there experiencing this!
me watching this not being able to hear out of my left hear already: 😃❓
I am deaf in my left ear and, I read lips and sometimes if I get some of the sentence have to add words to get it like feel in the blacks. it is so hard the pandemic showed me ho much I use lip reading.
Hi there, thanks so much for your comment. We understand that masks can be a problem when you rely on lip reading. If you want to speak to your local MED-EL team to see what options might help, you can find them here: www.medel.com/clinic-finder
Kind regards,
Gordana
The one-sided parts were on my less efficient ear too
Thats why I have isolated myself. I cant hear properly outside home.
Interesting Fact: Millie Bobby Brown from Stranger Things is deaf in one ear.
Srsly
man the struggle is real. i am too deaf in my right ear.
What’s the point ?? I’m sure a lot of us
(I know I have) have already experienced what this is like, whether it be headphones, earplugs, or something else .
What is the point/goal of the vid ???
Tell me about it
No one understand mental pain how It affect our daily life due csom I lost hearing capacity of right ear since childhood still I am facing a lot to deal it with people
Hi there, we here at MED-EL understand you. We are in touch with many people who report that their hearing loss does not only effect their daily life, but also their mental health. And with our hearing solutions we want to help them overcome these issues. If you like to learn more and get in touch with our local MED-EL team near you, just send us a message via www.medel.com/contact-med-el They are best placed to support you as they can take a closer look at your situation. Kind regards, Barbara
kind off but for me this scenario the crow voice are very unpleasent cant stand for much time that why now dont go out for a meal, and the hearing aids for me right side didnt help
Has anyone felt any improvement using a hearing aid? I can't understand anything in noisy environments. I am considering the use of a hearing aid. But can anyone give me feedback?
I would like to know too.
Hi there, thank you for your message. You can find user experiences with different devices on our MED-EL blog. One that we recommend reading regarding your question is this: blog.medel.com/i-only-wish-i-had-done-it-sooner-sams-story/
Kind regards,
Gordana
No just more noises which I can't decipher at all it very frustrating
I’ve had this condition for 40 years. What I will tell all of you is that God gave you 2 ears and so while it can be a pain in the butt sometimes, you and your brain will learn to adapt.
The other point to make her is that sadly, I have not found many solutions to the prob over the years. Most advanced right now is a cochlear implant but who wants to go around w a disc on your head and another device behind your ear and unsure if insurance will cover. Almost best to just learn to live w it.
Can you give me some suggestions,how do you face your problem on hearing on deaf side
Wow! I'm missing a lot.
Yep can’t afford it.
I wait tables and have ssd since probably birth ,exhausting
LOL how about just confuckeled. I can't function in a place with noise.
Now do a video about being partially blind 😎
I was born deaf in my right ear. If a waitress was on my left side I could hear her better than this!
Probably the most viewers are SSD so the video makes no scenes. How am I going to see a difference if I am deaf one ear lol
My daily struggles
😭
i'm deaf in my left ear have been since birth.....it is just me or did that waitress have an attitude on the 2nd clip???
Yes definitely I think that was the point. We know from the binaural clip that she was asking what he wanted to drink, but in the SSD clip he sees the waiter and says "I'll just have the fries." She looks frustrated and the woman he was talking to thinks he's weird or acted like a jerk to the server
this is obviously exaggerated but it's true
Can you hear me Major Tom? Not that exaggerated in my experience .
Not exaggerated, especially in noisy environments like these with multiple conversations echoing in the room. Due to the "head shadowing" effect, the lack of sound localisation as well as the missing ability to subconsciously filter out background noise from actual conversation. Sometimes you miss others altogether and don't even know you're being spoken to. Those decibels lost due to sound coming the "wrong side" can make all the difference between hearing a discernible mess or nothing at all. I've had complete unilateral hearing loss all my life with no chance of any improvement with today's technology (missing connector nerve), so this is from personal lifelong experience.
@@Cloud7050 I have had unilateral hearing loss from birth , I'm curious do we hear differently than other normal people ? It affects me when someone is ony right and talks to me also in noisy environments, is there anything else tho ?
@@oganesson7034 I have the same question too.
@@oganesson7034 yes. Completely hearing people can hear all noises in the direction they are coming from.