Seizures in Music Class
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- Опубліковано 7 тра 2023
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TikTok ▹ / zeezee25
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Stream my song "She's Mine" here 👇🏻
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FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
‣ fndhope.org/fnd-guide/
5. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, UA-cam and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself! - Розваги
I'm so sorry you go through this. Thank you for sharing your experience. As a nurse, this helps me
@bread32 lol ok
@bread32how are you gonna tell someone you’ve never seen that they aren’t a nurse?
I have seizures to you know
@@kimndang7464who even are you??
@@Hina_my_beloved_dont ask who he is whoever has a seizure is sad
I know there's a girl in my class who has a similar condition. I remember her having to lie on the floor once because of it and some of her friends sat with her to keep her company as she came out of it.
I have this and myoclonus but none anymore so far
Seizures usually lying down is safe.
The need for attention is very strong in the youth.
@@andrewhall7176 If I'm being honest here, I don't think having a seizure is attention seeking
@@BeanieBabyXx No, but I think Zara is seeking attention.
My boyfriend has epilepsy and he gets absent seizures sometimes so I know what your going through and I’m sorry that you have to go through that but I’m glad people like you raise awareness ❤
My uncle had is and before a full on shaking on floor seizure he would start pointing to words in a book.
sorry you have to go through this. you are very pretty and sweet. life is fked up and i wish you the best
Is she faking this for tiktok clout or is this for real??
She’s for real
@TwilightKing0 it is real
@@LeonSKennedy7777it is real but her seizures are from a psychological origin rather than your classical epileptic origin. An epileptic absence seizure looks similar to this but is slightly different. Both types are involuntary and real, but epileptic absences are caused by electrical activity in the brain changing (it's physiological). In her case, the electrical patterns stay the same, and on a psychological level something changes. Either way she is very brave to share her story and raise awareness, wishing her strong thoughts and admiring her drive to carry on with her day to day activities ❤
My cousin, who is 24 years old, has special needs and requires a caregiver. Additionally, she has been diagnosed with seizures but we will always love her and we are sorry you have to go through that😊😢
Special needs from seizures only??
@@sky-hv4zono they said additionally, she had been diagnosed with seizures
I'm sorry for your burden. Honestly, no one would judge you if she accidentally rolled down a hill somehow or fell out of a car.
@@spackerinternational6131 seriously? Ok that's messed up. People with special needs are BLESSINGS, not burdens!
I know how it feels. I have it too. I try to ignore the pain. As a man. Nobody gives a shit. Until it gets critical. Fainting away. Usually when I have it. I cant tell someone. Because it affects my words. Usually try to ignore it. The overheating and the pain. Until I can get safe place. Or find someone that can help me. But its tough. Its a huge struggle.
Yes, i too
I wish society didn't make it seem like if men had problems, were sick or showing emotions they were weak. Everyone has feelings and shouldn't be treated any less cause they were showing 'weakness'. everyone deserves the right to receive help or support and not be judged for it. I hope you have some people to lean on. You deserve it.
I'm so sorry that this happens but you're so positive and deserve the world
My friend has fnd so she knows how this feels. I have to help her sometimes, for instant she scratches herself and doesn't realise so I have to hold her hands apart to stop her from damaging herself. I know it's hard but we all are here to help ❤.
You are a real friend we need more people like you in this world and spread awareness ❤
@@Stawrberii functional neurological disorder. I'm not the one to explain so the NHS website might be better
I’m 43 but I remember in 6th grade there was a girl in my class who had something similar. Being nasty children, everyone thought she was faking it for attention. Also the late 80’s and early 90’s we weren’t very informed. I feel guilt when I think back at nobody believing her. Thank you for your videos. You are helping to educate people and bring awareness to a pretty silent topic (by silent I just mean that there isn’t much talk or education about it). Thank you for teaching this old lady new stuff. You are strong and brave. Wishing you so much happiness 💜💙
Everyday you put forth more energy and effort just to get through each moment. I think people with disabilities are the real heroes.
Me too!
Im so sorry that you have to go through this, we all have challenges in life, all different and unique. But thats what makes us unique. Your so gorgeous but more importantly your so amazing and have such a good personality. Im in rough times right now, but every time i see you post on yt or insta it makes my heart so happy to see you and how you are, good or bad. Your golden and i hope you know that, you make a difference, your making one right now, stay safe and stay you. Love you!
Damn I feel you. I’ve had 10 in a 7 year span being unpredictable and recently have gotten worse and has caused me to develop very bad anxiety to where I can confuse it with a seizure coming sometimes. Just know you’re not alone and I understand the fear and feeling of it
You’re so strong Zara. Luv ya 🫶🫶🫶🫶
I was diagnosed with Epilepsy when I was 2.
I had a Seizure in Kindergarten and the Teacher called my Mom to take me home.
Both my Mom and Dad were Army National Guard back then.
When I was 8 I had a Brain Tumor surgically removed.
24 years Seizure free.
I’m so sorry for what you go through. I want you to know that we all love you and support you and I’ll be here any time. I’ll pray for your health, happiness, anything. I just want you to be safe, love u 🙏🏻💗
Thank you for sharing this with us. I hope you go through this journey perseveringly in prayer and patience, and that people around you will understand and be a help to you. May God bless you always!
I have recently been diagnosed with epilepsy at the age of 27, and have tonic-clonic seizures. The most recent one has cut my eyebrow open and the back of head. I wouldnt wish it upon my worst enemies. I hope you are well and p.s you're a very beautiful lady ❤️
Your story is so close to mine, I had my first one driving after trying to stop smoking weed for a few days after doing it my whole life. Then totaled my wife’s car and was arrested because I couldn’t pass a field sobriety test. Because I didn’t know what tf just happened.. been dealing with them for 6 years now since. Hope life brings you everything you want and then some. Shits so scary with my kids man
I remember in 6th grade I was in math class and a kid started having a seizure and started saying protect my shoe! Protect my shoe! And then started to fall so my teacher pushed a kid out of the way and dived headfirst catching her.
As a severe epileptic who has several types of seizures myself, this was very anxiety endusing to watch. Sometimes i think its harder on my family then myself. Sorry kiddo. Please don't let this define who u are. ❤️
Hi Zara, hope your doing ok, I’d hope for some more info about your fainting episodes because I don’t fully understand (if you are comfortable with sharing)
You are going through stuff but we are your friends and we will support you through the way
I remember in high school I took a ‘bathroom break’ and just started walking the hallways. I go down the stairs and a girl in my grade was having a seizure (apparently they had everyone on lockdown after I left so nobody would see it), a bunch of admins and the nurse around her. None of them thought to support her head, so I took my sweatshirt off and my t shirt went with it. I was pretty hefty at the time, but wasn’t thinking about that, just placed it under her head so she wasn’t banging her head on tile floor. We became really good friends after that.
I have seizures too. I had one in the car and I knew it was coming, but good thing the car was parked 😥
I have POTS and am getting tested for absence seizures because I have points in time that I don’t remember and trying to remember is like running into a brick wall. The testing is just a precaution because it could just be a lack of oxygenation to my brain. I had a tilt table test, and the oxygenation to my brain goes down 48% when I stand up.
I fainted at a funeral… they thought I was next 😭
😭😭😭 that's funny but also, are you okay
Awww you are quite an amazing person. Strong through and through
That must be so difficult ❤ thank god you have 242k people supporting you
I kind of having seizures, it happens once a year, but this year it happened twice; once in my Mom's car, way to college and another one in the campus, in the classroom. My classmates told me, that they're scared and watches me laying on the floor, while thrashing about and screaming or talking incoherent words, and while my lecturer try to calm me down, they call for my parents to help. I woke up after a few hours later and my Mom took me home..
Since that accident, I become overthinking and anxious around my classmates, scared that if my seizure happened again and scared them. I just feel bad about them, that I'm afraid they don't want to become my friends again..
I haven't been diagnosed with it tho because of financial problem, but I'm sure I have it, because it happened. It was so sudden and it happened in public place, when before that, it only happened at home and only my family know it..
(Sorry if this confusing and bad grammar..)
I have Epilepsy, but idk how to controll my Seizures, cuz i am still a kid sometimes i feel dizzy too but I always distract myself from the fact that I am healthy because I always panic about getting a seizure. I love how the way you are. You're such a great person. I hope one day That you are healthy and will lead a great life!❤
I was diagnosed with Epilepsy when I was 2.
I remember my Mom telling me about the time I was in Kindergarten and I had a Seizure and the School called my Mom.
Both my Mom and Dad were Army National Guard.
I had a Tumor surgically removed when I was 8.
24 years Seizure free.
No one deserves this,I’m so sorry this has happened to you,I hope your ok
That's really scary. My mom gets seizures. I hope you stay safe
I wish more everyday people were as strong as you, your an amazing young lady and you never quit at success! Bless you❤
your eyes are so pretty
Hi I really feel for you. I also have epilepsy and it's put me in a coma before. Although before the coma I couldn't tell if a seizure was coming or not but since the coma I can tell about 90percent of the time and that's really scary as I still hit the floor and lose consciousness. All my love ♥️
I understand EXACTLY what you're going through, as I have had a couple this year already & I think its one thing for people who witness, but a whole other for the ones experiencing it & I can tell you, even at 39 years old, feeling one coming on is SCARY! I will lie down & just keep telling mySelf to go to sleep, so I don't have to stay conscious for the twitches & spacy feeling... also, do your hands & feet get clammy? Mine do & thats a sure sign for me, that I'm about to have one...
The fact that you still live your life an do normal things is awesome!! I pray things gets better for you an everyone that suffers with this syndrome… Be safe Godspeed
I’d never realized seizures were this scary in person until yesterday. My one year old baby brother had a seizure due to a high temperature fever. 106 was the temp. Nothing we did would help get it down. I was terrified, at the age of 13 in hysterics as I voiced my fears to the 911 operator on the phone. My mother was panicking screaming and pleading for him to be okay as we watched his head jerk and I counted his each breathe.
I’m forever greatful for those who showed up yesterday, they were there within literally 3 minutes. I was terrified to even hold the baby that day. He would shake and shiver and I’d freak out because I was alone as I watched him. My mother was sick, so I was left to the task of babysitting. It was so scary, poor baby.
I’ve been lucky to never have an epileptic seizure in class. But still, having seizures is a traumatic thing for me to experience, given medical related trauma with the first seizure I ever had when I was 12
I want to say thank you for sharing your experiences this has really opened my eyes I've been experiencing this for years now and I didn't know what was going on thank you for having the courage to show the world you're an amazing person and you're a beautiful person inside and out you're strong woman thank you again
It's a love hate with these type of videos. I love your courageous enough to show us and educate us.. but I hate how heartbreaking it is to watch a beautiful soul deal with such an ugly condition.
Are you kidding??.what's so heartbreaking about gently dozing off??..
I have it too and it’s really scary😭💔💔💔
Remember, Guys. Seizures can be different for each individual. I was diagnosed, but every time I have a seizure, it always comes in the form of parasympathetic movements (Nonvoluntary). I jerk my head every time, and it's uncontrollable. It hurts, but I've learned to manage.
Thank you for sharing all your videos. I'm so sorry you have to go through all of this 😢
Thank you, genuinely, for making a video of this. I've never heard of FND before and you seem to have almost all the symptoms I do. I've been to the ER twice for my seizures and never gotten much help. And I've been trying to get a diagnosis for over two years. This probably isn't just this, but it could have something to do with my health issues, and I'll grasp any straws I can get at this point.
I feel for you I know the pain would never want anyone to go through this alone 💜💜
My daughter has partial or focal seizures that she can usually feel coming on. You kids that have to deal with this, at school or at the store are so strong!
I spend so much time in absentee seizure activity. I have had to be put in medically induced for unstoppable Grand Mal seizures that lasted so long that fluid accumulated in my lungs. Prayers for you beautiful and precious lady.
I think this might be happening to me… I’m in 7th grade and every day I’m getting dizzy one time I passed out during class I stood up and passed out right away my friend caught me before I could slam my head on the desk and I’ve went to the drs I’ve gotta get a heart monitor and I’ve been zoning out so much every day I get so dizzy to the point I can’t feel anything or I can barely hear and I’m getting scared I’m only 13 and like I’m so ready for this to be over i
This is literally me before a tonic clonic 😢
As a fellow epileptic person, I feel you. It’s so scary to “awaken” from a seizure and have no idea what happened or what you did while experiencing it.
I'm so sorry
The piano in the background is beautiful and eerie all at once
May God watch over u 😢 This breaks my heart. I have SVT not the same but people who have physical problems we can feel when something is about to start. It's the worst feeling. I'll pray for u sweetie 🙏
I can relate to this 100% I have epilepsy with absent seizures and half the time I can’t talk and I will either stare off into space or I’m making a chewing motion with my mouth, and over the last 2 years I’ve had 13 seizures at school. Last year and the year before all together I missed a total of a whole year of school. The only way to get through it is to keep fighting. I always say to other who have epilepsy is “you are one of the strongest warriors on the planet. Nobody who doesn’t have epilepsy can say anything different. Remember to keep fighting and no matter what you will always win over the fight against epilepsy even if it means you’re in a hospital with an IV in your arm.”
have the same problem here. I play mobile games, I just lose my self I am a little bit aware but I truly zone out and right after time has passed at little makes me feel annoyed as i only get a few seconds to do a quick move in chess. It gets on my nerves I just quit playing and I really think it was just daydreaming but when i watch clips about a seizure I relate on it more
I had a period in my life when I used to get daily auras , flashy eyes, and numb hands. I would get a migraine on the opposite side of my head, depending on which hand went numb. One day I had physio on my back, she decided to work on a park of my back that I had no idea was a problem. I screamed when she pressed on it. After working on my mid back with ultra sound and acupuncture, my migraines disappeared. It was life changing.
I say this because sometimes it might be an underlying physical cause. B4 the physio I was on all sorts of serotonin medication, beta blockers etc. But all it took was a physio to think outside the box.
She has FND. Functional Neurological Disorder.
Oh Zara ...this just sucks so bad. But you are so strong getting through all of it. I couldn't even imagine. My heart just breaks every time. Maybe because I'm a mom. Maybe because of how unfair it is. Idk. But you are such a trooper and we just love you ❤
After having multiple TIA (mini strokes ) in 2023 December 2023 I had my first seizure. I'm documenting my life since. I'm 27 now and never saw my life like this but thankful for everyday and my family helps keep me mentally healthy while my physical body goes through so many changes. I hope my journey gives someone comfort peace.
im sorry to everybody who has to deal with this💔🤦🏾♀️
I hate that you have to endure this, I know what you’re going through! I have Epilepsy and it’s scary, I have went through a seizure at work and it scared my manager and the people who were there enjoying a game of bowling 🎳. I am a housekeeper at a bowling alley.
You shouldn’t have to go through this I think you deserve much better❤
Hey I'm a new supporter but I have a question and I'm sorry if its stupid. But what is FND? You don't have to answer obviously but I'm curious. Keep up the good work xx
FND stands for functional neurological disorder. It can show in many different symptoms such as paralysis, tics and seizures but also many others. It basically comes down to a problem in the nervous system where the brain either isn't sending signals or is sending too many. It's usually described as by using a computer to help so there isn't a problem in the hardware but in the software.
Hope this helps.
@Chicken Cactus hi, thanks so much. That Really helped.
@@millyscothern9270 I'm happy to help
@@chickencactus1451 it’s not a problem with the nervous system, it is psychological thing where you get physical symptoms as a result of your brain not knowing how to deal with certain stress or emotional problems. It is 100% very real though and people with it have no control over it and it’s not there fault in the slightest
@@picassothedog4011 No, that's a different thing - FND is called Functional Neurological Disorder, because it's Neurological, not Psychological. Psychology involves mental disorders and illnesses, usually resulting from chemical imbalances - Neurology means there's an issue with the brain's wiring itself or the electrical signals it's sending. Not much is known yet on why FND happens, but neuroimaging has shown that for people with FND there are entire sections of brain circuit that don't function correctly - it's not psychological, but neurological.
This is also the reason that autism, adhd, ocd and others are considered neurological disorders, not mental illnesses - the problem is a result of the brain's circuitry malfunctioning.
I have epilepsy, this happened to me during class in 3rd grade when I was first diagnosed with epilepsy, I feel happy that there are others going through the same thing as me, and just know, your not the only one going through this
I now how it feels stay strong gurl 😢😢
I hope all is well I personally group up with epilepsy at the age of 9 until I was 16 years old they discharged me there was no more seizure activity. However I know how you feel during this type of moment keep strong there is hope all of it will go away one day.
I always have absence seizures in class and end up getting in trouble for not paying attention because it’s not diagnosed yet 😢
It’s not diagnosed yet?
I was diagnosed with Epilepsy when I was 2.
When I had a Seizure in Kindergarten the Teacher called my Mom to take me home which must have been real awkward because my Mom and Dad were Army National Guard.
I had a Seizure surgically removed when I was 8.
24 years Seizure free.
My autism also isn’t diagnosed
😑 also it could just be me zoning out
I have tonic clonic seizures, and there's a lot more time spent between the phases. It's also difficult to breathe and your awareness isn't there even when it's over. You almost forget everything around you
❤❤❤
this is a random question so please don’t take it seriously if it is secret information but have u had tourette’s+seizures+fainting condition ur whole life even when u were a little kid?
haha not you helping me find out that i have had many absent seizures a lot. i thought i was just zoning out but right after i had cheats pain and also dizziness, im so sorry you have to go through this tho
I feel you very much because I also have epilepsy
I had my first seizure last week and craned my car into a lamp post, then took another 2 within 8 hours after that, i just wanted to thank you for posting these videos, ive watched them for a while and it not only helps me feel less alone, but was also reasuring to know what i went through when i was unconscious
I have epilepsy too, it’s gotten worse since I stopped my meds back in 2014. Hoping to get back on them
I went from watching an itsartemm UA-cam short to watching these poor souls suffer like this. I feel terrible for these people.
Your teaching me a lot about this. I really appreciate you putting your story out there for others to learn from.
I saw in a different video, where you got an instant headache & this time it was chest pain. Do you usually have some type of pain after each episode?
I pray for you to feel Gods loving hands over you, His comfort and strength whenever you feel this come on 🙏🏻❤️🩹
You're a soldier even with this stay strong
It is so difficult to explain to people the aura (pre-sezuire) or absent seizure. Thank you for showing what it is.
The music sounds relaxing 😊
ikr
Last summer I learned that my 9 yr old granddaughter has absent seizures. When I learned of this and the symptoms it made me wonder if I experienced these when I was younger.
Petite mal…I have these. They were worst when I was younger but I grew “out” them I’m 33 and they come and go. The last one I remember is like 4 years ago while I was driving made it home from one city to another and didn’t remember how I got there.
i had a seizure today and im watching videos to help me get aware of how to stop it more
Your such a beautiful person, love watching your shorts.❤
wow I have tourette's and absence seizures too I've been diagnosed with a lot of things too. It's hard to get use to especially in public I have tourettes seizures schizophrenia and a little more 9 pills a day used to be 10 but we decrease it. you're very brave to get on a camera and show what you have keep up the good videos I'm looking forward to watch more 💕
Thank you for sharing this! I am writing a character with seizures, which has been really difficult to do since I myself do not have seizures. So I really appreciate people sharing their real life experiences and so grateful that others will learn what seizures look like. I think you’re going to help a lot of people, both with this and your videos on Tourettes (I think I have a couple tics, so those videos have been especially nice : ) )
Hi I couldn't help but offer some information which could help, as I work in Neuro with epileptic patients and deal with seizures daily. A seizure is basically abnormal excessive synchronous neuronal activity and usually results from the neurons firing in the way I just described (this is not how the brain usually fires neuronal signals). On a EEG (an electrical brain scan), during a seizure the brain activity will change and seizure patterns will occur during a seizure event. The seizures shown here in this video are what used to be referred to as non-epileptic attacks (NEA)/ and in some contexts, dissociative seziures. They are another class of seizures caused by a psychological origin. On an EEG you will not see a change in the brain activities for NEA, however a patient will visibly be displaying seizure-like symptoms and they are usually unable to control this (it's involuntary), despite the electrical brain activity not actually changing. Both types are real, although there are differences. In a typical Absence seizure usually there is a complete behavioural arrest, the patient will go completely still and stares blankly without any warning, and small ticks and jerks don't usually occur and the patient returns to normal immediately with no residual symptoms afterwards. They usually can't tell they've had one, unless their surroundings make it obvious that they've 'blanked out' for a little while. There are variations of Absence seizures, such as atypical absences where small movements can still occur. The lovely brave person in this video, to my understanding, has non-epileptic absence seizures in keeping with her FND condition, so the symptoms you see in this video are similar but are different from someone diagnosed with epileptic absence seizures. I hope this helps with your understanding ☺️
@@sairachohan9723 you’re literally the best oh my gosh. Tysm, know that you have helped me a lot by saying all of this and hopefully it’ll go towards me more accurately representing seizures in my writing
@@xill4008 you're very welcome ! I'm happy this can help you in some way 😊
My poor sister has absence seizures quite often :( I’m so sorry you have to do Al this and go through all of it..
This so hurts me inside for her. I wish i had the power to cure her ❤❤
I feel your pain I have seizures too and it sucks cuz I can be having a good day next thing you know the world is upside down
This girl when I was in 2 grade had a seizure in the middle of class and it scared everyone so bad like she just stared falling out of her chair and was shaking
Aw I feel bad for you I hope your feeling better now😊
Its Strange for me when I have seizures. I've noticed music is a trigger for me (or menstrual). She was able to stay sitting upward mine use to nearly make me fold over as if I were severely drunk and would lose eye sight ... now mostly controlled by medicine, I usually stay conscious but I hold me head because I can feel a "vibration" /glitching in my head. And still smell burning rubber
Tbh, I actually HAVE felt like this before in class, coming back to reality, drowsiness, basically everything you felt during this, but I also remember not getting enough sleep, and it happened at the same time everyday, but I think it was just from me not getting enough sleep I'm pretty sure, because my friend tapped my desk and it scared me a bit and I was immediately back on board, so it might've just been me not getting good rest.
I know how she feels as all my best friends have it😮😢
Thanks for sharing!
Helpful for research!👍
Love and Prayers from El Salvador! I have been seizure free since last year! Im taking Dilantin 1000 mg ( 1 am / 1 pm)
Great job being positive about it, Zara 🫶🏼
I always see your videos and just want to say the first thought that comes to mind is "wow, she is so grogeous!"
gorgeous*
I’ve been trying to find someone who goes through this too! I just had one today and my brain didn’t work for three hours after it happened!! I hate FND it causes so many problems including sezujres!
U should always stay with someone near you, the chest pain to me it looks like u stoped breathing when u spaced out ( I might be wrong but it really looks like you chest stoped moving) stay safe girl! U are a precious human being ^-^
Lucky, you feel it coming, who tf told me this wasn’t an option, I didn’t feel it coming, I just planked onto the kitchen floor than the following Wednesday, I had a seizure during homeroom.
Tbh i felt this just 3 hours ago. I wasn't feeling right. No one knew because I looked tired and sleepy.
I had one energy can as it kept me going throughout the shift i work. Unfortunately I didn't consider the consequences