And whoever is saying “why do the parents need to suffer like this?” … what about the girl???? It’s comments like that which make myself and other epileptics feel like they’re a burden and not want to ask for help!
Amen to that, you hit the nail whrite on the hammer, then epeleptics get stuck getting stigmatized and ostracized on top of it it's not like we asked for this bullshit.
The parents aren't suffering they just wish they could take it away for their child! I'm talking from experience I would rather suffer than my child suffer!
Not sure if you are speaking from the perspective of an adult or a child, it doesn't really matter other than context for my reply. I can give my honest perspective as a parent of two children with disabilities, one with C.P. and seizure disorders. The truth is sometimes it is a burden because there is fear, physical exhaustion, frustration, uncertainty, etc. It is a burden you would never imagine not taking on for your child. The only thing worse for a parent is the thought that their child would be afraid to ask for, or take, help. As for other people, the world is made up of two groups of people, those who move towards problems and try to help or those who move away and avoid. That is all about them and not you. Take help from those who offer, don't spend too much time thinking about those that don't.
Im the only one who thinks its wrong filming her in a vulnerable moment like this to everyone see it? Ever wondered if she wants to be filmed? Zooming on her face face in a situation like this?I dont think so.. have some respect for her
Yes. You are. They wanted to publicize this to raise awareness for the condition. Not to exploit her in a moment where she was vulnerable. It’s a common way to raise awareness for various seizure conditions, but especially post seizure care, and what to do leading into, and during a seizure as well. Hope this explanation helps!
I don't care what anybody says it's wrong to to film her doing this raising awareness is going to help what everybody reacts different everybody has to be treated a different way
This is purely speculation from my own experience, but she doesn't want it for UA-cam. It is desperation, their baby is sick, either somebody doesn't believe what is happening or doesn't have an answer for them. They are hoping by recording it they can show it to someone and get answers. It is a horrible feeling.
Neurologists tell you to document EVERY SINGLE SEIZURE on video. So please inform yourself before shitting on a mom who was doing what the neurologist wants. Source- me, I am epileptic.
@@emilywebster-seely6192 Thank you for yet another perfectly rational explanation. It is sad that so many assume the worst without knowing the background.
Roditelji Bog Vas blagoslovio na Vašem trudu i brizi. Molim Boga za zdravlje Vašeg djeteta, Bog je milostiv i vjerujem u njega. Puno Vam hvala što ste objavili ovaj video. Ovaj video služi nama koji smo često nezahvalni u životu. Predivni ste roditelji. Sve će biti dobro. Puno Božjeg blagoslova. Pozdrav. ❤
For whomever this may be applicable, you might want to look into the possibility of what is called a "nasal trumpet" to use in lieu of an oral airway. You'll probably need a pediatric size. These are not all that hard to put in but can be very uncomfortable, possibly painful getting in. It's a good thing to consider if her breathing gets much worse than what is seen here. I'm glad to see that the woman trying to put the oral airway did NOT try to force her mouth open.
I agree. But! What really irritates me is the fact the dad yelled for a bowl so she could use if she may have thrown up or something and the mom said she wasn’t worried about that because she was recording! Like no, in my book as a mom I’d put the camera down and worry about my child first and foremost. I get if you’re trying to educate others but sorry not sorry the mom was only worried about getting a video. The dad was great. He took charge. I just wish the mom would have been a bit more helpful and not yell back at her husband who clearly sounded a big panicked when he thought his daughter was going to throw up or whatever and the mom literally said (and go back yourself and listen carefully) I’m not worried about that bc I’m recording. Wtf seriously 🤨 Nah your kid comes first before a camera to be in her face.
@@Bigrlboi1I’m glad someone else thinks the same as me, it was obviously intense for the father and the mother didn’t seem to be all that concerned. He mentioned a bowl and medicine to be prepared and his needs seemed to be ignored.
@@trahira9585 Exactly! If the mother was like this in the video yelling over having to get things so her child is safely taken care of then I’d hate to see her off camera. That’s no mother in my book. I get it if it’s for educational purposes but sometimes a camera isn’t needed. And you can educate people about certain things without the actual visuals being on the internet for all to see. That child isn’t stupid and probably gets embarrassed when they post this idk 🤷♀️ Just my opinion on it though. I’d be more worried about my kid than worrying about if the angle is good on camera.
Depois da convulsão ela chorava mto. Minha mãe procurou vários médicos e eu fiz mtos jejum para Deus curar.E ela é deficiente mental, mas Graças a Deus tem anos q ela não sente mais nada, hoje ela está com 55 anos nunca aprendeu neim ler neim escrever, mas tem uma vida normal ,vai pra escola todo dia ,, é mto vaidosa,tem que ir no salão arrumar cabelo e unha toda semana . Senti MTA pena da filha de vcs , é mto triste ver o sofrimento delas .
I have a daughter with Epilepsy and it's very hard and scary we almost lost her 3 times when my dad passed away because she was close to him she had a 7 hour fit yes very scary good job dad may God bless her always and for ever 🙏🏿 and my beautiful daughter also 🙏🏿 ❤️ 💙 it's very hard to see your child go through it 🙏🏿 God bless you always 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️
I have taken care of a 16 th years old Cerebral Palsy daughter..It was realy wonderful time ..and Alhamdulillah I have never ever given up to love and care as much as I could and Allah's love ..Now She has passed away with smile on her face to say good bye ..She couldn' do any communicated but her body language only..The last Stiffing on her to get her through Allah's Subhana wata a'la Heaven❤🌹..Keep Patience, Strong and faith to all The Parents who have this Gratefull by having disability or Special Need kids...👍🏾❤️❤️❤️
OMG I felt so bad..for the beautiful young lady that the parents have to go through all this everyday!!! My goodness i give you all my heart and soul for you and for her ...and powerful love and passion GOD will heal and help you you all ❤.........peace in GOD'S words
CBD oil also has totally changed my friends daughters life when it comes to her seizures, from almost completely stopping them or red them from 6 to 9 a day to maybe 1 to 3 a week, of course she stays on her reg. prescription medications but the doc did lower 2 of her 4 meds which was a win win too, 👍just mentioning the CBD because I see others here have , hoping only the best for your family , your daughter is simply lovely 🌻
Yup CBD or medical cannabis is the magical medicine that can do so much but still is so shunned upon….I strongly suggest having seen how severe her seizures are it is definitely the way to go for this young woman, because these type of seizures regularly stopping breathing and more frequent as a teenager is extremely debilitating and life threatening . Poor darling girl and two beautiful parents 🤞 ❤
Nome do senhor Jesus Cristo seja repreendido nome de Jesus seja repreendido todo espírito mal que atrofia os nervos vai queimando nesta noite pai em nome do senhor Jesus Cristo seja lançado por terra toda a fúria do inimigo em nome
You can hold a person that is having a seizure, and if they know you it can be very helpful. You do not apply restraints or try to prevent any movement. You should help them to a safe position, try to prevent them from injuring themselves and help them remain calm and safe afterward. This dad is handling her perfectly, keeping her safe without being overly forcefully.
I pray for this precious girl and her family. I couldn't imagine my child going through this and the difficulties for her and the hard and emotional work taking care of her, but however I don't understand the mother's thinking that it was more important to capture this event on camera ( honestly it didn't look like dad was understanding why she felt the need to capture this traumatic event on video either) the only important thing at that moment was to care and help her. I apologize in advance for this part of my comment. Thank you for sharing but honestly we don't need to video all parts of our lives and post them online for the world to see. But all the same my heart breaks and goes out for this precious child and we all need to pray for her.
Tonya, I understand your compassion and asking the question is fair. I do know when my toddler, now 35 was having severe head pain for hrs on end, I had to video it. Dr from John Hopkins Neuro-pediatrics wanted it plus, as hard as it is to see, it could help another parent with same conditions.
As a parent of two special needs children you video for the Dr. to see what's happening! I've done the same. When my son started having seizures at two and half years old I took him to the emergency room the Dr was going to send him home until I made him stay in the room to actually see what was going on! And once he did we immediately was sent to another hospital more equipped to handle it. Parents have to advocate for their children!
Dear Lord God Jesus please protect that Young Lady from Evil 🙏❤ Lord God Please help her with her illness and expose any predators in her life in the mighty name of Jesus Christ 🙏❤ I love You ❤
¡¡¡¡¡ Fuerza padres !!!!!!! Vuestro Ángel está por encima de toda hipocresía ¡¡¡ Ángel , Bonita criatura !!!!!! Te deseo todo, todo , todo lo mejor . Eres fuerte , pues 💝💝💝💝💝💝
Tomé una foto del HERMOSO ROSTRO de vuestro ÁNGEL :::: ME ACOMPAÑA , intelectualmente ,durante momentos de mis largas caminatas , en solitario , y , en mi soledad :::: 70 años , y mi mayor deseo , es que este ÁNGEL , PUEDA PROSPERAR ::::: ¡¡¡¡ MUCHISIMA SUERTE , PADRES !!!!!!!! 💪💪💪👍👍👍💝
i am aspergers and get seizures too, myoclonic ones, have been trying to catch them on video to show the doctors but it's so difficult. at first i was a bit irked thinking this was just exploiting sienna - what a beautiful name, btw - but then realised when the mum said how they needed to get it on video. the part where all the muscles spasm up and you're retching, it is sooo fkn scary. the father dud a wonderful job of keeping her safe, the mum, too. i hope she gets the help she needs to keep the seizures under control. looks like was ws having a laugh with the basketball, too. healing and harmony to her and all of you.💖✨️😅🌈
My niece suffers from LGS. Out of curiosity, have you tried CBD for her seizures? I know everyone is different, but for my niece, it's been truly a lifesaving addition to her meds. Sienna is a beautiful girl. And very lucky to have such wonderful parents. 💖
My heart goes pit to thos little girl and her parents you both did an amazing job...im not so sure I could have been so calm and poised. No child should have to go through this and it's heart breaking. I just found this by accident so I don't know your daughter's story or history. Is this something g that happens to her often and do they know what causes this? Is there any chance she will one day get better and be seizer free? I pray so she seems like a beautiful soul and she's lucky to have you both there for her. I have 2 daughters and this really touched me for some reason.
Very scary situation seizures are really scary I remember my girlfriend suffered from seizures I had to give her medicine to her everyday but she got sick and died it's really heartbreaking to see stuff like this I will be praying for her
Looked this topic up because my lifelong epilepsy is now being denied , i had PCOS ,, and Catamenial Epilepsy, then misdiagnosed with Bipolar 1 after Tegretol gave me a bad drug rash. After tapering, the focal/ temporal lobe epilepsy was made worse by SSRI'S, Antipsychotics, and neuroleptics, and all i needed was another AED and the progesterone which the Drs refused to keep giving me. Now i have # Akathisia, return of epilepsy after being seizure free for 20 years, Tardive Dyskinesia Dystonia... Take care ❤ I do have 2 AED'S, one is Clonazepam, taken daily for years, and my body grew tolerant. I was not given informed consent. Im so sorry for all the children who suffer from this, ive had epilepsy since a child. Be vigilant with Doctors
My heart goes out to this young little girl and her precious dad who my heart was wrenching for him… Are used to have grand mal and petit mal seizures as a young child and my mom most the time was the one having to help me through them and she was amazing thank God we didn’t have videotaping back then because I think attentiveness to her first then video set the camera down if you wanna videotape most cameras are set up to be reliant on their own accord in the right positioning I’m not real happy with the mom I get that she wanted to have it on video so to share the experience but you’re a mom first video photographer second blogger third you’re a wife and mother number one I know you love your daughter not seeing you don’t let my heart was wrenching for the little girl and definitely for dad who looked scared for his daughter and thankfully he was giving such wonderful comfort
The dad was doing pretty well to deal with her daughter. To some extent I do agree with you about more help with the girl however, The fact that she did record it may have been invaluable in terms of someone being able to figure out what is going on. The reason I say this is that there may be no consistency as to when these seizures are happening and the chances of getting the girl into a doctor's office at just the right time for them to see a seizure are pretty slim. Plus they may end up going through a number of doctors before they get someone who may have an idea. Having the one video to be linked to what medical professionals need it. This would simplify many things and allow the parents more time with the child. 🙂
@@84953 I agree but I am a mother a grandmother and I as a child I had severe seizures there are times because there’s plenty out there on the Internet now regarding what a seizure looks like that there’s trains were you can still put the camera down let it run and you both intervene and you both call 911 no if Ann’s or butts… But my heart really to go out for the child especially and for that dad who looked frightened… There’s been other videos with the same family and he even pleaded for the mother to put the camera down and she didn’t want to and that’s very disheartening… But yes these videos can be educational but there’s plenty out there sometimes your child becomes number one social media is last on the list
@@84953 I think most neurologists or even GPs will be able to diagnose a seizure and write up tests to exclude other factors that could contribute to such seizures but it does help medical students like myself to learn about seizures through visual observation of one taking place.
I pray for her I know how seizures are I'm epictic myself but I found It hard to watch her go throw it my harte gone out to you I wish all the best I hope she fills better soon 🙏
This broke my heart! How horrific! Poor girl! I also feel so awful for her parents. We love our kids so much and watching them endure something so terrible must make their hearts so heavy.
The fact that the mom just wanted to put this on social media and didn't care about her daughters health is wild. What has this retched earth come to. 😢
Well, there is really nothing you can do when you are having a seizure. I assume the parents are used to the seizures, so they know what to do. When I have one of my seizures, people wait it out and let me recover. And that works perfectly fine. (the seizure ain't fun tho). They did the right things, like turning her on her side and keeping her from choking on her saliva. Sometimes, it is a GOOD thing to record a seizure. This gives visual info to neurologists. It may appear a bit cruel to you, seeing that parents do nothing, but they have everything under control.
Wow what a bad mom she said that she doesn't care about that she just cares about getting that on video I would care about my own daughter if she was having a seizure what a bad mom just recording
Exactly the video means nothing if the person doesn’t come out of it. She could have put the camera down so many times to film and help her instead she just sat there like paparazzi trying to get every angle the medicine could have kicked in sooner and babygirl wouldn’t have had to convulse so bad. 😞 she’s looking at her mom like what took you so long to help me. So sad
@@M.M__-None of it is as simple as that. The type of seizure and her medical conditions dictate when she gets the medicine and what type. As for what she is thinking about her mom, she is probably post-ictal, which would mean she is coming out of the seizure but not particularly oriented or alert. It has been described to me as like waking from anesthesia. The best thing for her is what she is getting, people she knows, holding her close and doing familiar things as she recovers.
@@willj1598 so you’re proving my point. Instead of filming mom could have out that camera down somewhere to continue the film and help give her daughter the attention and medicine that she needed. Her daughter did not need to struggle that long.
@@M.M__- My point was, it may not be a rescue medicine and timing may not matter. Since they didn't explain anything about her diagnosis, history, or type of medicine we are just speculating. I do not believe she was doing this for views. The channel has one video and no explanation. The video has the default file naming generated by a camera or phone. I'm guessing they uploaded this as a means of sharing it with someone specific, maybe not even realizing it would be public. Please don't be so quick to assume bad things about her. They are clearly dealing with a horrible situation. Sometimes, in times of desperation, we do things differently than we would if we had time to think them through.
@@willj1598 clearly they know of what the situation is. The father even told her in the video get the medicine now. But the mother was being selfish and putting the camera first. Either way she could have put that camera down and be with her child or help to hold her with the father. She was about to vomit and dad asked for a bucket or bowl her response was I want to record. Father told her to get the medicine she chose recording keep in mind this was right after she confirmed that the medicine was ready. Yet she had to run and go get it after the convulsing became worse when it didn’t need to get that far.
Даст бог тебе здоровья аминь у моей девочка такая же пристоп благодаря врачу уже 6 месяц не одного приступа не было она каждый день лекарства принимает леватрацитам канон и депакин оба 500 мг Господи дай здаровья всем 🙏🙏🙏
This looks similar to my sezuires/episodes. I hope you don’t mind if I suggest that the important thing is to support her head and neck. Also don’t hold her arms to her body. This must be so hard for you all. X
У меня тоже дочь- эпилепсик, уже 30 лет. Это результат безграмотной работы акушеров, принимавших роды. Какие мы только препараты не пили, уже и нейростимулятор установили в мозг, а приступы все продолжаются. Дай Аллах выздоровления нашим детям
The mother I am guessing is the one taking the video... Idgaf how bad you want to get something on video... When your daughter needs help and your husband/her father is basically asking you for help. Drop the damn phone and go HELP! To the girl I hope she is doing good and to the father You are amazing! Continue to show your compassion and love for your daughter! She can feel it!
I supported a young woman with cerebral palsy, she also had seizures. Even though she struggled with communcation, she absolutely understood everything that was said to her. This poor girl has her own mother discussing her periods, denying her medication and completely disrespecting her and her privacy, all for her own self satisfaction of making a youtube video! I found this video as it just popped up, I won't be watching anymore from this woman.
And whoever is saying “why do the parents need to suffer like this?” … what about the girl???? It’s comments like that which make myself and other epileptics feel like they’re a burden and not want to ask for help!
Amen to that, you hit the nail whrite on the hammer, then epeleptics get stuck getting stigmatized and ostracized on top of it it's not like we asked for this bullshit.
The parents aren't suffering they just wish they could take it away for their child! I'm talking from experience I would rather suffer than my child suffer!
Not sure if you are speaking from the perspective of an adult or a child, it doesn't really matter other than context for my reply. I can give my honest perspective as a parent of two children with disabilities, one with C.P. and seizure disorders. The truth is sometimes it is a burden because there is fear, physical exhaustion, frustration, uncertainty, etc. It is a burden you would never imagine not taking on for your child. The only thing worse for a parent is the thought that their child would be afraid to ask for, or take, help. As for other people, the world is made up of two groups of people, those who move towards problems and try to help or those who move away and avoid. That is all about them and not you. Take help from those who offer, don't spend too much time thinking about those that don't.
Her playing with that ball was so precious 🖤
😢, que Deus venha abençoar esta família, que PAIS valorosos, quanto sofrimento a esse anjinho de luz!!!
Ангелочка хорошая все будет хорошо береги добрый отец сохрани и спаси аминь
Auch dieses Mädchen weiß was Freude und Spaß macht. 👍Auch wenn sie viel viel Hilfe braucht. 🤗
Отец хороший!!! Тронута. Такие редкие.😥💕
Not where i live, dads are as goods a mothers, i live in normal land, not russia.
@@turji в России тоже есть такие родители и помощь инвалидам, паллиативным детям. Не надо писать гадости про нашу страну.
@@user-1Romashka No translator anymore on this tread, so i dont understand u.
@@turji В вашей стране нет гадов и идиотов😂😂😂😂😂??
@@user-od1nr8pj6m Ciertamente los hay en todos los países 🙁
Im the only one who thinks its wrong filming her in a vulnerable moment like this to everyone see it? Ever wondered if she wants to be filmed? Zooming on her face face in a situation like this?I dont think so.. have some respect for her
Yes. You are. They wanted to publicize this to raise awareness for the condition. Not to exploit her in a moment where she was vulnerable. It’s a common way to raise awareness for various seizure conditions, but especially post seizure care, and what to do leading into, and during a seizure as well. Hope this explanation helps!
Actually no
I’m glad I seen it
Even though I’m crying
Praying 🙏🏾 for Sienna
I don't care what anybody says it's wrong to to film her doing this raising awareness is going to help what everybody reacts different everybody has to be treated a different way
🤣
I agree with you, it feels like vouyerism to me and I can’t help but think it’s a bit degrading too.
Дай АЛЛАХ девочке крепкого здоровья и выздоровления а родителям большого терпения и сил.
Toutes nos prières pour elle... qu'Allah la protège et la guérisse... amine ya rab 🤲🤲🤲❤❤❤اللهم اشفيها يا الله
Такая красивая девочка, Господи помоги..🙏🏼🤗🤗😢💓💓
That fact that she said “im not worried about that! I wanna get this on video” no offense but I think you should care abt a child more than footage
This is purely speculation from my own experience, but she doesn't want it for UA-cam. It is desperation, their baby is sick, either somebody doesn't believe what is happening or doesn't have an answer for them. They are hoping by recording it they can show it to someone and get answers. It is a horrible feeling.
Neurologists tell you to document EVERY SINGLE SEIZURE on video. So please inform yourself before shitting on a mom who was doing what the neurologist wants.
Source- me, I am epileptic.
@@emilywebster-seely6192 Thank you for yet another perfectly rational explanation. It is sad that so many assume the worst without knowing the background.
@@emilywebster-seely6192thank you for commenting this! I have a niece that gets seizures and now I know what to do! ❤
She's so adorable 😍
God is very sad dad is doing good job and Mum doing good job we pray for this girl in the name of Jesus amen
Amen
The mom and dad should be in jail and the girl should be put in to foster care
Aameen🤲🤲
Иисус Сын Бога
Он умер за грешное человечество
В будущем не будет ни каких болезней, старости и смерти
Amen
Господи спаси эту девочку!!!
А зачем он сделал её больной?
Linda menina. Deus sbencoando com pais zelosos e que a amam muito. ❤❤❤
Дай Бог здоровья и терпения
Мой племянник мучился так 20лет с рождения😢😢😢
she's so beautiful and sweet, god bless her and pls heal her amen🙏🏾🙏🏾🙏🏾❤❤❤
Roditelji Bog Vas blagoslovio na Vašem trudu i brizi. Molim Boga za zdravlje Vašeg djeteta, Bog je milostiv i vjerujem u njega. Puno Vam hvala što ste objavili ovaj video. Ovaj video služi nama koji smo često nezahvalni u životu. Predivni ste roditelji. Sve će biti dobro. Puno Božjeg blagoslova. Pozdrav. ❤
Sending Prayers for Your Daughter, Her Dad and You. I pray for a Full Healing and Recovery 🙏👆❤️🤗
Dios de mi vida ayuda a este hermoso angelito
Ya.Tuhan..lindungila anandah ini..Beri Kesehatan.Beri kesembuhan..dan Beri kesempurnaan...Seperti orang2 yang kau Beri Kesempurnaan..AMIIN...3x..🙏🙏🙏
شكرا لهذا الاب الحنون
Very very kind.
For whomever this may be applicable, you might want to look into the possibility of what is called a "nasal trumpet" to use in lieu of an oral airway. You'll probably need a pediatric size. These are not all that hard to put in but can be very uncomfortable, possibly painful getting in. It's a good thing to consider if her breathing gets much worse than what is seen here. I'm glad to see that the woman trying to put the oral airway did NOT try to force her mouth open.
What is this girl?
I agree. But! What really irritates me is the fact the dad yelled for a bowl so she could use if she may have thrown up or something and the mom said she wasn’t worried about that because she was recording! Like no, in my book as a mom I’d put the camera down and worry about my child first and foremost. I get if you’re trying to educate others but sorry not sorry the mom was only worried about getting a video. The dad was great. He took charge. I just wish the mom would have been a bit more helpful and not yell back at her husband who clearly sounded a big panicked when he thought his daughter was going to throw up or whatever and the mom literally said (and go back yourself and listen carefully) I’m not worried about that bc I’m recording. Wtf seriously 🤨 Nah your kid comes first before a camera to be in her face.
@@Bigrlboi1I’m glad someone else thinks the same as me, it was obviously intense for the father and the mother didn’t seem to be all that concerned. He mentioned a bowl and medicine to be prepared and his needs seemed to be ignored.
@@Bigrlboi1What the fuck, listen to the exchange of words starting at 2:30, the woman only cares about capturing the video, what a bitchy tone.
@@trahira9585 Exactly! If the mother was like this in the video yelling over having to get things so her child is safely taken care of then I’d hate to see her off camera. That’s no mother in my book. I get it if it’s for educational purposes but sometimes a camera isn’t needed. And you can educate people about certain things without the actual visuals being on the internet for all to see. That child isn’t stupid and probably gets embarrassed when they post this idk 🤷♀️ Just my opinion on it though. I’d be more worried about my kid than worrying about if the angle is good on camera.
Depois da convulsão ela chorava mto. Minha mãe procurou vários médicos e eu fiz mtos jejum para Deus curar.E ela é deficiente mental, mas Graças a Deus tem anos q ela não sente mais nada, hoje ela está com 55 anos nunca aprendeu neim ler neim escrever, mas tem uma vida normal ,vai pra escola todo dia ,, é mto vaidosa,tem que ir no salão arrumar cabelo e unha toda semana . Senti MTA pena da filha de vcs , é mto triste ver o sofrimento delas .
Tapfere Familie! Viel Kraft wünsche ich euch!
I pray that she makes it through everything alright. And kudos to the parents because it's a job.
The parents should be in jail and the girl should be put in to foster care
I have a daughter with Epilepsy and it's very hard and scary we almost lost her 3 times when my dad passed away because she was close to him she had a 7 hour fit yes very scary good job dad may God bless her always and for ever 🙏🏿 and my beautiful daughter also 🙏🏿 ❤️ 💙 it's very hard to see your child go through it 🙏🏿 God bless you always 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️ 💙 😢 ♥️ 💔 🙏🏿 ❤️
I have taken care of a 16 th years old Cerebral Palsy daughter..It was realy wonderful time ..and Alhamdulillah I have never ever given up to love and care as much as I could and Allah's love ..Now She has passed away with smile on her face to say good bye ..She couldn' do any communicated but her body language only..The last Stiffing on her to get her through Allah's Subhana wata a'la Heaven❤🌹..Keep Patience, Strong and faith to all The Parents who have this Gratefull by having disability or Special Need kids...👍🏾❤️❤️❤️
OMG I felt so bad..for the beautiful young lady that the parents have to go through all this everyday!!! My goodness i give you all my heart and soul for you and for her ...and powerful love and passion GOD will heal and help you you all ❤.........peace in GOD'S words
Дай Бог здоровья этой девочке.Пусть всё будет хорошо.
Senhor tem misericórdia desa vida pai😢
CBD oil also has totally changed my friends daughters life when it comes to her seizures, from almost completely stopping them or red them from 6 to 9 a day to maybe 1 to 3 a week, of course she stays on her reg. prescription medications but the doc did lower 2 of her 4 meds which was a win win too, 👍just mentioning the CBD because I see others here have , hoping only the best for your family , your daughter is simply lovely 🌻
Yup CBD or medical cannabis is the magical medicine that can do so much but still is so shunned upon….I strongly suggest having seen how severe her seizures are it is definitely the way to go for this young woman, because these type of seizures regularly stopping breathing and more frequent as a teenager is extremely debilitating and life threatening .
Poor darling girl and two beautiful parents 🤞 ❤
Nome do senhor Jesus Cristo seja repreendido nome de Jesus seja repreendido todo espírito mal que atrofia os nervos vai queimando nesta noite pai em nome do senhor Jesus Cristo seja lançado por terra toda a fúria do inimigo em nome
God bless 🙏 this strong little family ❤❤❤ I hope the future will have some better days for you and your daughter much love ❤❤❤
Здравствуйте хочу пожелать вам родным которым борется за здоровье своей дочери счастье любви и семейного здоровья,,,,
Que Deus dê muita força aus pais e muito oração
I have epilepsy and i can say that it really hurts
I'm sorry. You mean physical pain or just all around hurts your soul and life?
No he visto AMOR MAS GRANDE QUE EL DE ESTOS PADRES, ORARE POR ELLOS,ME HAN ENSEÑADO TANTO, BENDIGO ESTA HERMOSA NIÑA,EN EL DULCE NOMBRE DE JESÚS AMEN.
Not suppose to restrain someone with a seizure. The person is more important than “getting it on camera for UA-cam” just wow.
It's not for UA-cam it's for the Doctor!
@@Kelshth . doctors don't want to fix , they only want to "manage"
You can hold a person that is having a seizure, and if they know you it can be very helpful. You do not apply restraints or try to prevent any movement. You should help them to a safe position, try to prevent them from injuring themselves and help them remain calm and safe afterward. This dad is handling her perfectly, keeping her safe without being overly forcefully.
Mi hermosa niña mi linda princesa hay un Dios Todopoderoso qué tiene el poder para sanarte oraremos por ti linda Dios escucha linda princesa 🙏🙏🙏
Que le pasó para estar así
Fue al nacer ?
I pray for this precious girl and her family. I couldn't imagine my child going through this and the difficulties for her and the hard and emotional work taking care of her, but however I don't understand the mother's thinking that it was more important to capture this event on camera ( honestly it didn't look like dad was understanding why she felt the need to capture this traumatic event on video either) the only important thing at that moment was to care and help her. I apologize in advance for this part of my comment. Thank you for sharing but honestly we don't need to video all parts of our lives and post them online for the world to see. But all the same my heart breaks and goes out for this precious child and we all need to pray for her.
Tonya, I understand your compassion and asking the question is fair. I do know when my toddler, now 35 was having severe head pain for hrs on end, I had to video it. Dr from John Hopkins Neuro-pediatrics wanted it plus, as hard as it is to see, it could help another parent with same conditions.
Если другие родители увидят,.то могут друг другу помочь в личении ребенка,.Могут советоваться с друг другом ,как помочь своим детям итд,,
As a parent of two special needs children you video for the Dr. to see what's happening! I've done the same. When my son started having seizures at two and half years old I took him to the emergency room the Dr was going to send him home until I made him stay in the room to actually see what was going on! And once he did we immediately was sent to another hospital more equipped to handle it. Parents have to advocate for their children!
我覺得他們夫妻做得很好讓外界了解這種病況如何緩解得到幫助...❤
Praying for this sweet girl 🙏🏻
Здоровья девочке 🙏
Meu Deus quanto sofrimento nesse mundo
Dear Lord God Jesus please protect that Young Lady from Evil 🙏❤ Lord God Please help her with her illness and expose any predators in her life in the mighty name of Jesus Christ 🙏❤ I love You ❤
¡¡¡¡¡ Fuerza padres !!!!!!! Vuestro Ángel está por encima de toda hipocresía ¡¡¡ Ángel , Bonita criatura !!!!!! Te deseo todo, todo , todo lo mejor . Eres fuerte , pues 💝💝💝💝💝💝
👍👍👍
Tomé una foto del HERMOSO ROSTRO de vuestro ÁNGEL :::: ME ACOMPAÑA , intelectualmente ,durante momentos de mis largas caminatas , en solitario , y , en mi soledad :::: 70 años , y mi mayor deseo , es que este ÁNGEL , PUEDA PROSPERAR ::::: ¡¡¡¡ MUCHISIMA SUERTE , PADRES !!!!!!!! 💪💪💪👍👍👍💝
i am aspergers and get seizures too, myoclonic ones, have been trying to catch them on video to show the doctors but it's so difficult.
at first i was a bit irked thinking this was just exploiting sienna - what a beautiful name, btw - but then realised when the mum said how they needed to get it on video. the part where all the muscles spasm up and you're retching, it is sooo fkn scary.
the father dud a wonderful job of keeping her safe, the mum, too. i hope she gets the help she needs to keep the seizures under control. looks like was ws having a laugh with the basketball, too.
healing and harmony to her and all of you.💖✨️😅🌈
My niece suffers from LGS. Out of curiosity, have you tried CBD for her seizures? I know everyone is different, but for my niece, it's been truly a lifesaving addition to her meds. Sienna is a beautiful girl. And very lucky to have such wonderful parents. 💖
Can I ask what other medicines she takes? Can there be anything with diet to change?
That was the way The Doctors gave to my Daughters ..Depaken Syroup and Diazepam ..every time got seizure whole her life
Que triste pobresita,que dios la vendiga😪❤
Господи спаси и сохрани всех детишек на земле 🙏🙏🙏 и взрослых тоже 🙏🙏🙏
¡¡¡¡🤝💪💪💪👏👏👏👏👏!!!!!!!
Amin
Дай бог здоровья.
Господи!Спаси и Исцели девушку Сиенну!😇😇😇❤🙏🙏🙏
Anjo grabiel ajuda esta menina obrigado 😢🙏🙏🙏🙏🙏🙏🙏🙏
Your daughter is beautiful. I pray she will be ok.
My heart goes pit to thos little girl and her parents you both did an amazing job...im not so sure I could have been so calm and poised. No child should have to go through this and it's heart breaking. I just found this by accident so I don't know your daughter's story or history. Is this something g that happens to her often and do they know what causes this? Is there any chance she will one day get better and be seizer free? I pray so she seems like a beautiful soul and she's lucky to have you both there for her. I have 2 daughters and this really touched me for some reason.
Very scary situation seizures are really scary I remember my girlfriend suffered from seizures I had to give her medicine to her everyday but she got sick and died it's really heartbreaking to see stuff like this I will be praying for her
SFYL, my guy. Prayers be with you.
Hang in there Sienna, you are loved by people you'll never know. Prayers always.
Дай бог здоровья! Молимся за вас!
Дай Бог!
Looked this topic up because my lifelong epilepsy is now being denied , i had PCOS ,, and Catamenial Epilepsy, then misdiagnosed with Bipolar 1 after Tegretol gave me a bad drug rash.
After tapering, the focal/ temporal lobe epilepsy was made worse by SSRI'S, Antipsychotics, and neuroleptics, and all i needed was another AED and the progesterone which the Drs refused to keep giving me.
Now i have # Akathisia, return of epilepsy after being seizure free for 20 years, Tardive Dyskinesia Dystonia...
Take care ❤
I do have 2 AED'S, one is Clonazepam, taken daily for years, and my body grew tolerant.
I was not given informed consent.
Im so sorry for all the children who suffer from this, ive had epilepsy since a child. Be vigilant with Doctors
Mí amor qe linda es la la nena qe dios la proteja siempre 🙏🙏🙏
My heart goes out to this young little girl and her precious dad who my heart was wrenching for him… Are used to have grand mal and petit mal seizures as a young child and my mom most the time was the one having to help me through them and she was amazing thank God we didn’t have videotaping back then because I think attentiveness to her first then video set the camera down if you wanna videotape most cameras are set up to be reliant on their own accord in the right positioning I’m not real happy with the mom I get that she wanted to have it on video so to share the experience but you’re a mom first video photographer second blogger third you’re a wife and mother number one I know you love your daughter not seeing you don’t let my heart was wrenching for the little girl and definitely for dad who looked scared for his daughter and thankfully he was giving such wonderful comfort
The dad was doing pretty well to deal with her daughter. To some extent I do agree with you about more help with the girl however, The fact that she did record it may have been invaluable in terms of someone being able to figure out what is going on. The reason I say this is that there may be no consistency as to when these seizures are happening and the chances of getting the girl into a doctor's office at just the right time for them to see a seizure are pretty slim. Plus they may end up going through a number of doctors before they get someone who may have an idea. Having the one video to be linked to what medical professionals need it. This would simplify many things and allow the parents more time with the child. 🙂
@@84953 I agree but I am a mother a grandmother and I as a child I had severe seizures there are times because there’s plenty out there on the Internet now regarding what a seizure looks like that there’s trains were you can still put the camera down let it run and you both intervene and you both call 911 no if Ann’s or butts… But my heart really to go out for the child especially and for that dad who looked frightened… There’s been other videos with the same family and he even pleaded for the mother to put the camera down and she didn’t want to and that’s very disheartening… But yes these videos can be educational but there’s plenty out there sometimes your child becomes number one social media is last on the list
My nephew Alex suffer from seizure
@@84953 I think most neurologists or even GPs will be able to diagnose a seizure and write up tests to exclude other factors that could contribute to such seizures but it does help medical students like myself to learn about seizures through visual observation of one taking place.
I pray for her I know how seizures are I'm epictic myself but I found It hard to watch her go throw it my harte gone out to you I wish all the best I hope she fills better soon 🙏
ربنا يشفيها ويعافيها يارب امين 💜
Господи дай ей здоровье❤
This broke my heart! How horrific! Poor girl! I also feel so awful for her parents. We love our kids so much and watching them endure something so terrible must make their hearts so heavy.
The fact that the mom just wanted to put this on social media and didn't care about her daughters health is wild. What has this retched earth come to. 😢
Well, there is really nothing you can do when you are having a seizure. I assume the parents are used to the seizures, so they know what to do. When I have one of my seizures, people wait it out and let me recover. And that works perfectly fine. (the seizure ain't fun tho). They did the right things, like turning her on her side and keeping her from choking on her saliva. Sometimes, it is a GOOD thing to record a seizure. This gives visual info to neurologists. It may appear a bit cruel to you, seeing that parents do nothing, but they have everything under control.
Allah im sen yardım et anne baba için çok zor bir durum evladını böyle görmek 😢
Wow what a bad mom she said that she doesn't care about that she just cares about getting that on video I would care about my own daughter if she was having a seizure what a bad mom just recording
Exactly the video means nothing if the person doesn’t come out of it. She could have put the camera down so many times to film and help her instead she just sat there like paparazzi trying to get every angle the medicine could have kicked in sooner and babygirl wouldn’t have had to convulse so bad. 😞 she’s looking at her mom like what took you so long to help me. So sad
@@M.M__-None of it is as simple as that. The type of seizure and her medical conditions dictate when she gets the medicine and what type. As for what she is thinking about her mom, she is probably post-ictal, which would mean she is coming out of the seizure but not particularly oriented or alert. It has been described to me as like waking from anesthesia. The best thing for her is what she is getting, people she knows, holding her close and doing familiar things as she recovers.
@@willj1598 so you’re proving my point. Instead of filming mom could have out that camera down somewhere to continue the film and help give her daughter the attention and medicine that she needed. Her daughter did not need to struggle that long.
@@M.M__- My point was, it may not be a rescue medicine and timing may not matter. Since they didn't explain anything about her diagnosis, history, or type of medicine we are just speculating. I do not believe she was doing this for views. The channel has one video and no explanation. The video has the default file naming generated by a camera or phone. I'm guessing they uploaded this as a means of sharing it with someone specific, maybe not even realizing it would be public. Please don't be so quick to assume bad things about her. They are clearly dealing with a horrible situation. Sometimes, in times of desperation, we do things differently than we would if we had time to think them through.
@@willj1598 clearly they know of what the situation is. The father even told her in the video get the medicine now. But the mother was being selfish and putting the camera first. Either way she could have put that camera down and be with her child or help to hold her with the father.
She was about to vomit and dad asked for a bucket or bowl her response was I want to record.
Father told her to get the medicine she chose recording keep in mind this was right after she confirmed that the medicine was ready. Yet she had to run and go get it after the convulsing became worse when it didn’t need to get that far.
poor girl...I give her all my support!!
No any Update for her afte a year?
How's she now? God blessed you❤
Nice girl !. Looks wonderful !. 🙂💐💗💋✨
So cute and wholesome 😍❤️😘😍❤️😘😍😢😢😢😢
God bless you sweet heart.
im glad you guys got that on video to show her neurologist. hope she gets better soon and they can put her on meds to stop her seizures
the fact she really said, "im not worried about that i wanna get this on video" is heartbreaking
Даст бог тебе здоровья аминь у моей девочка такая же пристоп благодаря врачу уже 6 месяц не одного приступа не было она каждый день лекарства принимает леватрацитам канон и депакин оба 500 мг Господи дай здаровья всем 🙏🙏🙏
This looks similar to my sezuires/episodes. I hope you don’t mind if I suggest that the important thing is to support her head and neck. Also don’t hold her arms to her body. This must be so hard for you all. X
Can I ask why they are holding her arms to her body and why this is not good to do?
Dios los Bendiga❤❤❤❤❤❤❤
God bless you and your family 😊
Dad n mom = supehero 😢❤
feel better soon seinna you have lots of people looking after you. get better soon
God bless her.❤❤❤❤❤❤❤❤
Poor little Childe I wish you get better :'(
awwwww sooooo cute
May Allah give her shifa Ameeeeeeen yaa Allah
I hope one day she gets better soon
Aameen🤲🤲😘😘
I am so sorry She is going through that. God love you all
У меня тоже дочь- эпилепсик, уже 30 лет. Это результат безграмотной работы акушеров, принимавших роды. Какие мы только препараты не пили, уже и нейростимулятор установили в мозг, а приступы все продолжаются. Дай Аллах выздоровления нашим детям
Ay señor Dios pobrecita muchacha y los padres también sufren que tristeza
Prayers. ❤
God bless this child
My heart felt prayer to God
He will keep her in good condition.Don’t worry parents
She will be alright
The mother I am guessing is the one taking the video... Idgaf how bad you want to get something on video... When your daughter needs help and your husband/her father is basically asking you for help. Drop the damn phone and go HELP!
To the girl I hope she is doing good and to the father You are amazing! Continue to show your compassion and love for your daughter! She can feel it!
Hope you feel better Sienna
I supported a young woman with cerebral palsy, she also had seizures. Even though she struggled with communcation, she absolutely understood everything that was said to her. This poor girl has her own mother discussing her periods, denying her medication and completely disrespecting her and her privacy, all for her own self satisfaction of making a youtube video! I found this video as it just popped up, I won't be watching anymore from this woman.
Good Girl
Siana. Cool 😎
God bless her and be with her and the family in Jesus name amen 🙏
Oh My Goodness We Need Sick And You Need To Rest This Is So Cool
Could you do a story time. I've worked with special needs and this a Lil different