You look good and seem to be staying positive and hopeful. I'm inspired to be hopeful as I go through the diagnosis of a nervous system disorder myself. If you want to talk about the moon and equinoxes, give me a shout 😉 Blessings and hope from Canada!
So happy and relieved to see your face here again, and looking so well! Your bizarre symptoms make me feel a lot less crazy. I've had strange sensory symptoms, itching, burning, cold wetness, vibration for example, from the start. They are fairly routinely dismissed as unrelated, and I feel strongly that they are important clues! I'm Christian also, and feel that perhaps God is using this to teach me to stop trying to be in charge of my life. Thank you for your videos, they are very helpful.
Hi Laura Jean. Thanks for updating us. I'm so glad to hear you're progression has slowed. If your case is unusual in terms of the lack of progression there's a neurologist named Richard Bedlack whose gathering data for ALS patients who've significantly slowed their progression or even reversed. He might be interested in your story.
I am so happy and surprised to see these new videos! Your looking good! Glad to hear u had an awesome summer to! I thought of you all and kept checking to see if you posted anything! 😀😀😀😀😀😀😀😀
You're 100% right about the ridiculous price of medications in the US. I have MS and the medicine I take costs about 7k a month. How is this allowed to exist in the greatest country on the planet?
AmethystSnow please vote carefully, that's the only way things will change. In Australia scrips cost around $15 or $7 if you're on a low income. Doctors and hospitals are free unless you want private care.
Have you heard about new copper treatment for als? Researchers say that it can slow down als progression significantly. And this is really true according to researchers! The medical tests are in the third stage so that medicine is coming quite soon for patients.
Ciprofloxacin, Levothyroxine and Zpack all are very concerning to me. I have Lyme and possibly co infections. I wasn't able to tolerate the doxycycline, I believe, but I never tried the others. I've had too many allergic reactions to older antibiotics. I wonder what the possibilities are of others with neurodegenerative diseases having taken those. Vaccines too? Like the polio and DEET connection no one wants to talk about. I follow you, your faith encourages me in mine. I hope for and pray for miraculous break throughs very soon. Blessings in the Lord with Love.
I just adore you.. I have a lot of weird symptoms for more than three years and no explanation but celiac disease.. but I think I lost my faith because of this situation I am in.. 😔 I wish I can return to faith but I can .. This is just can't be fair
You don't have to be Wiccan to be in touch with Nature and the Universe ... The more spiritually awakened you become the more you see with your eyes and hear with your ears 🙌🏼💜
Have you tried a high-fat/low-carb/medium-proteine ketogenic diet (which should be hypercaloric, from what I've gathered as ALS patients burn energy quicker)? It seems to be helpful with inflammatory diseases and ketone bodies serve as an alternative neuronal fuel. You said yourself that coocnut oil helped (the MCTs in it are directly converted to ketone bodies in the liver, which is why it helps with your energy). Also, this diet is incredibly good at preserving muscle (with adequate protein intake). BTW the diet was first prescribed to treat children with epilepsy. might be worth looking into.
Do lyme treatment please!! If u tested positive u have lyme.. But the sad thing is its not covered by insurance..so its hard for people to get treated 😪. I hurd bee Venom therapy works really good and it's low cost Always praying for u ...
Very glad to see a new video !! God bless you. 😊
Your skin is glowing. You look healthier. Good to get an update. You're often in my thoughts.
You look good and seem to be staying positive and hopeful. I'm inspired to be hopeful as I go through the diagnosis of a nervous system disorder myself. If you want to talk about the moon and equinoxes, give me a shout 😉 Blessings and hope from Canada!
So happy and relieved to see your face here again, and looking so well! Your bizarre symptoms make me feel a lot less crazy. I've had strange sensory symptoms, itching, burning, cold wetness, vibration for example, from the start. They are fairly routinely dismissed as unrelated, and I feel strongly that they are important clues!
I'm Christian also, and feel that perhaps God is using this to teach me to stop trying to be in charge of my life.
Thank you for your videos, they are very helpful.
Thanks, Laura! So thoughtful. Always in my prayers.
So proud of you for advocating for yourself and doing everything you can to treat yourself ... keep the fight
Good to see an update and see your symptoms are not progressing! I am normally just a watcher but I appreciate the updates!
Hi Laura Jean. Thanks for updating us. I'm so glad to hear you're progression has slowed. If your case is unusual in terms of the lack of progression there's a neurologist named Richard Bedlack whose gathering data for ALS patients who've significantly slowed their progression or even reversed. He might be interested in your story.
ALS cause is extra level of stress
I am so glad that your progression has slowed down
I am so happy and surprised to see these new videos! Your looking good! Glad to hear u had an awesome summer to! I thought of you all and kept checking to see if you posted anything! 😀😀😀😀😀😀😀😀
Wow! Your update is do amazing! Happy for you that the progression has slowed down.
Your faith is amazing! We can all learn from you. May God bless you.
you look fantastic !!! thanks for updating us
You're 100% right about the ridiculous price of medications in the US. I have MS and the medicine I take costs about 7k a month. How is this allowed to exist in the greatest country on the planet?
AmethystSnow please vote carefully, that's the only way things will change. In Australia scrips cost around $15 or $7 if you're on a low income. Doctors and hospitals are free unless you want private care.
Have you heard about new copper treatment for als? Researchers say that it can slow down als progression significantly. And this is really true according to researchers! The medical tests are in the third stage so that medicine is coming quite soon for patients.
Ciprofloxacin, Levothyroxine and Zpack all are very concerning to me.
I have Lyme and possibly co infections.
I wasn't able to tolerate the doxycycline, I believe, but I never tried the others.
I've had too many allergic reactions to older antibiotics.
I wonder what the possibilities are of others with neurodegenerative diseases having taken those.
Vaccines too?
Like the polio and DEET connection no one wants to talk about.
I follow you, your faith encourages me in mine.
I hope for and pray for miraculous break throughs very soon.
Blessings in the Lord with Love.
I guaranty if the doctor had A LS. He would be chasing rabbit trails. 😊
you are SOO right about doctors.
You seem like such a delightful young lady, will keep you in my prayers. I found your video interesting
I pray that the good Lord will heal you to the glory of HIS Name, amen.
I just adore you.. I have a lot of weird symptoms for more than three years and no explanation but celiac disease.. but I think I lost my faith because of this situation I am in.. 😔 I wish I can return to faith but I can .. This is just can't be fair
do you get fasciculations?
You don't have to be Wiccan to be in touch with Nature and the Universe ... The more spiritually awakened you become the more you see with your eyes and hear with your ears 🙌🏼💜
Have you tried Lunasin..?
Thank you dear girl
Have you tried a high-fat/low-carb/medium-proteine ketogenic diet (which should be hypercaloric, from what I've gathered as ALS patients burn energy quicker)? It seems to be helpful with inflammatory diseases and ketone bodies serve as an alternative neuronal fuel. You said yourself that coocnut oil helped (the MCTs in it are directly converted to ketone bodies in the liver, which is why it helps with your energy). Also, this diet is incredibly good at preserving muscle (with adequate protein intake). BTW the diet was first prescribed to treat children with epilepsy. might be worth looking into.
I agree. Restrictive diets are the worst thing for MND.
Hi I want to send my love and prayers
Do lyme treatment please!! If u tested positive u have lyme.. But the sad thing is its not covered by insurance..so its hard for people to get treated 😪. I hurd bee Venom therapy works really good and it's low cost Always praying for u ...
Try CBD oil, but be sure it is pure.
Please do a new video
❤️
YOUR NOT ALONE....HERE IF NEED TO TALK...........FIND ME ON FB MY DJI VIDEOS AND PICTURES
May Jehovah God psalms 83:18 carry you tgrough His Son Jesus,
You look great,
Hope u continue to remain stagnant in progression...