Treating his thyroid CANCER with RFA: Cyrus's story
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- Опубліковано 28 тра 2024
- Cyrus received a devastating diagnosis of thyroid cancer, but he was determined to save his thyroid from surgery. In this video, you'll hear the amazing story of how he was able to travel from Canada to Germany, in the midst of a worldwide pandemic, to receive his radiofrequency ablation treatment. He is now living free from thyroid cancer and hopes to help others by sharing his story.
Timestamps:
00:00 Introduction
01:25 Cyrus's thyroid cancer diagnosis
05:02 Questioning traditional thyroid cancer treatment
07:25 Discovering RFA for thyroid cancer
09:24 The importance of the thyroid
10:15 Choosing a thyroid RFA doctor for cancer treatment during the pandemic
12:15 Cyrus's thyroid RFA procedure
14:31 Comparing thyroid RFA to thyroidectomy and radioactive iodine therapy
15:00 rates of thyroid cancer
16:00 Cyrus's thyroid RFA follow up
19:10 Cyrus's cancer doctor weighs in on RFA
23:20 Cyrus's elevator pitch on thyroid cancer and RFA
23:50 The power of Facebook groups
Disclaimer: None of the statements made in this or any other video by "Its me Jen again" should be considered medical advice.
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I was diagnosed with papillary thyroid cancer. Both nodules were about 10mm. It had spread to my lymph node.
Doctor in the UK said if it had not spread to my lymph node he may have done RFA ablation.
So I decided to find someone who would do RFA. I thought what do I have to lose? If cancer comes back I'll just get my thyroid taken out or RFA done again.
So I began to search for a doctor willing to do the RFA. Finally found one in india after 3 years. Got it done in November 2023.
Will post the results in one years time if I'm still around and I remember!
Prayers for you and a good outcome!
Hi, praying for you! which doctor in the UK can do RFA please? I' also have a suspicious nodule which I just underwent FNA testing waiting for results..
@@baconator8192 thanks for the prayers. No UK doctors would do it, I found one in India.
@@baconator8192 thanks for the prayers. No UK doctors would do it, I found one in India.
@samfromuk796 could you please share the Doctor’s info in India please?
Nice. Let's finally be done with thyroidectomy and partials. There are so many unnecessary TTs and partials. It's sad.
What a great story. I love that you were “stubborn “ and did not just follow the regular protocol. Congrats and well done.
Yes Jen thank you! You have given me hope.. thank you thank you
Thank you so much 😊❤
Dr Korkusuz! My doctor. He treated me here in Frankfurt. I'm due to see him again soon. I'm so happy for Cyrus, who contacted me about my experience with Dr Korkusuz, that his thyroid cancerous nodule has been treated and that there is only scar tissue remaining.
Dear Kathleen, thank you so much for sharing this information! My mom was diagnosed with thyroid papillary carcinoma just a couple of days. She lives in Switzerland.
I could not find any doctor in Switzerland who can assess her for RFA eligibility. I found your doctor (Dr. Korkusuz) in the list and was inspired because he is not so far away. I wonder, whether my mom would be able to get an appointment with him, if she is a Swiss resident? But then I wonder if her insurance would pay for it or not. If you could share any information with me, I would appreciate it very much!
Thank you for the information. Get wait for my appointment.
Thank you Jen for this informative channel and thank you Cyrus for sharing your experience.
Thank you jen for this really give us hope and information about thyroid nodules. God bless.
Thank you for sharing this important information. God bless you.
Thankyou Thankyou Thankyou , I've been so scared
Hi Jen, please help me....I am scheduled for Surgery this coming August 31 2023. Im so stressed today receiving the call from the government hospital of Australia that I am already scheduled for my Surgery. So today I'm starting to read and research topics relating to thyroid and I found 2 topics and one of it is yours. I am willing to pay if RFA is the best option. Currently I'm here in South Australia. Starting to find physician or hospital that offer this procedure. I am delighted to hear this story I am crying now how happy I am to find you and sharing this issue. Please enlighten me 😭😭🙏
Hi. I also have a lump suspicious for cancer. Endo send me to surgeon for thyroidectomy. I m also in Australia. Wanted to ask how long does it take for govt hospital to call for surgery?
@@aliyahossaini8772 probably cancer and are they going to decide now whether your Thyroid will be removed? Don't get rushed. I have known for thirteen years that I have cancer, now several nodules and two metastases that are 6 cm in the neck nodes. In 3 1/2 years, one has grown by 0.5 cm. Thyroid cancer is very slow growing so don't be rushed
Omg . If not because of you i might have my thyroid removed. I met 2doctors in indonesia they told me to remove my thyroid. I have 3 nodules 1.9 cm 2cm and 2cm . Thank you so much 😢
Have you had any calcium deficiency after surgery..... I am getting calcium deficiency after surgery... I am very worried about it.
Yap I’m also Canadian , I too will either have RFA gone inter US or in Europe ... I’m so sad and frustrated that we don’t this procedure !
I had an RFA 4 days ago for a papillary microcarcinoma here in Brazil. I am very excited and looking forward to the next doctor appointments. I think I went through all those phases too. Happy for you!
Prayers for your good outcome!
How are you feeling a month later?
@@nykeiii I feel good. There was some swelling and pain when I moved my around but pain is 95% gone now and don't notice it. Need to do a TSH blood test to see if it's made any difference.
@@samfromuk796 happy to hear it♥️
start watching this newly diagnosed in Canada and not with the funds to go anywhere for this treatment. Very happy to hear about it and what a smart dude Cyrus is...but yeah. Oh Canada. Mine has grown 10 mm in less that a month to over 2cm and it's not on a lobe but over my isthmus and it HOITS I tells ya.
Thyroid RFA is now available in Canada! Please look at the list of physicians at saveyourthyroid.org for contact info.
Thank you, Jen & Cyrus for sharing this! I'm in discussion with Dr. Korkusuz thanks to you, guys. Question that's still in my head - with papillary carcinoma, how can I get some sort of 'certainty' that you're ok after the ablation? One thing is the nodule being 'fried', but what about lymph nodes and potential metastases? I've read that esp. spread to lymph nodes is quiet common and not always visible on ultrasound. So in case of ablation, there's a risk that one ablates the nodule, but leaves out remaining cancer in the lymph nodes, is there not?
That's a very good question that is something I would suggest you ask a provider. Find one here: www.saveyourthyroid.org
It takes a PET-Scan to determine whether it spread to lymph nodes and other organs
It is amazing, I have a question all the symptoms that you had before RFA in your neck, disappeared?
Yes!
Thank you for this , Cyrus and Jen. This is just like me. I want to observe plus keto, fasting and then get an ablation too - don't want to lose half my thyroid and a bunch of lymph nodes unnecessarily. Don't want to take tablets everyday. My doctor wants to whip out my right thyroid but I'm definitely taking my time to consider alternatives - it's also 1cm and less.
Do you have lymph nodes involved?
@ItsmeJenagain hi Jen and Cyrus. I would like to consider ablation as a treatment for solid thyroid nodules.
The nodules are on the rt. Side and the sizes are 1.2 ckm and .4 cm. Thanks for sharing this video. I hope to hear from you soon.
I'm getting RFA for my thyroid cancer this week in Sarasota Florida. Dr Ralph Tufano
How are you doing?
How large was your nodule if you don't mind me asking when you received RFA?
hi Jen. I'll give you interesting question... Have you checked now after 2 years is everything ok with Cyrus? I mean did nodules came back or he is perfectly healty. It would be interesting to know. I live in Croatia and thinking about this thermal ablation but I do not know anyone who went on this because it doesn't exist here.
Hi! I just found your channel and all this info on RFA. I found out I have papillary thyroid cancer in May of this year. Do you have info on where to find doctors who provide RFA treatments? I am in the U.S., Midwest. Thanks so much for sharing this information!!
Yes, please see the list of known physicians on saveyourthyroid.org.
Hi
How are can you please content me back i saw you yu tub i have thyroid cancer.
I want discuss with you about your experience.
Thanks
@@abdinuurmohamedali9516 I would encourage you to join the Save Your Thyroid community on FB: facebook.com/groups/saveyourthyroidnonsurgical
@@ItsmeJenagain got it- thank you so much! And thank you for sharing this information and getting it out there. Before I found your videos, I had no idea this was an option, as my doctor told me surgery and full thyroidectomy & lifetime medication was my ONLY option. God bless, you are helping so many people
Thank- you for your encouraging videos. I live in the San Diego area and I have a suspicious left thyroid cancer. Do you have any recommendations of Doctors in San Diego or Southern California that do RFA?
We have a list of providers at www.saveyourthyroid.org/?m=1. I'm not sure if the ones in and around San Diego are treating cancer currently, but you should verify that with them directly. I do know that Dr. Sean Nikravan in Newport Beach has treated thyroid cancer.
Dr. Nikravan of Newport beach, CA treats thyroid cancer
Unfortunately, I'm not a candidate for RFA. My thyroid cancer is next to my voice box. I'm suppose to have a lobectomy 9/5. Dreading it, and wanting any other way out.
I'm so sorry you're not s candidate for a nonsurgical approach. But a lobectemy is definitely the most ideal and least invasive surgical option, and I'm glad you're able to do that. ❤️
Hi Jenny... So it is true about the scar tissue in that case. Hopefully one never needs to have surgery done after having an rfa...
So far, I am not aware of anyone needing surgery after thyroid RFA. The scar tissue is supposed to be limited to within the treated nodule and should not extend to areas outside of that.
I’ve moved to Canada and had complete blood works done and was diagnosed with Subclinical Hypothyroidism. I suddenly started reading about it and got paranoid I felt like there was a lump in my neck. I went back to my home country in the Philippines, just 2 weeks ago where it’s so much faster to get everything done ( ultrasound, biopsies etc) I’ve done my ultrasound and they found and 3cm mass in my right thyroid (trirads 3). I shall be doing my biopsy tomorrow. Doctors are telling me I should go a surgery even if it turns out benign. I don’t feel comfortable. I would like to ask does Canada offer RFA now?
Yes! At Toronto General and Sunnybrook Hospital.
I'd like to join your Facebook group. Diagnosed with papillary thyroid cancer in April, I would like to keep my thyroid.
What treatment did u get?
Just came across your chanel as i have been looking for some answers about thyroid cancer which i have been diagnosed with. I am scheduled for hemitheroidectomy next month but i have been complacent about it. Never heard of this RFA treatment before and i was wondering if i should cancel my surgery and look into this. Please shed some light or if theres anyone in the comment section who has had RFA treatment for their thryoid cancer, please share your experience id be grateful
I would encourage you to watch my playlist on thyroid cancer to learn if you might be a candidate. ua-cam.com/play/PL5tSaOk33p79pNzI2Md7pYra2tE2xRZN0.html&si=kUwCOO8ZwsJfpRMb
Also, we did 2 sessions on nonsurgical treatment of thyroid cancer at the recent ThyCa conference. You can still view the sessions. Register at Thyca.org.
Has there been any cases of people having done the RFA and subsequently have the cancer cells metastasized to other area of the body? Any study on the % of such cases? Any idea anyone?
This is a great question. I don't know the answer. I can say that thyroid cancer usually stays local and doesn't typically spread outside of the neck.
@@ItsmeJenagain I have a stage IV Bethesda nodule (based on a biopsy 2 years ago) near my isthmus. Consulted an ENT back then and he advised removal but I declined citing that the nodule basically stayed more or less the same size for the past 8 years. This year, I have had the nodule for 10 years now but unfortunately the nodule grew from about 1cm to 1.5cm compared to 2 years back. From time to time during the past 10 years, the nodule will occasionally grew bigger and smaller. I suspect that if I were to perform another ultrasound, the may has changed size too. This year, I have decided to do an RFA to at least reduce the "fear" that it will progress to become cancerous. Given that I am only 46 this year, I really can't bear with the thought of all the complication that may come along with a thyroidectomy and also the need to be eating thyroidxine for the rest of my life. I think it's all matter of probability and I am willing to take a shot at RFA. Even if the nodule regrow, which according to some study, it will be an indication of malignancy, I will still have the option of a complete removal then. Meanwhile, I also plan to have TCM to see how it will help me in the longer run. Thank you for your good work on this topic and I am sure it helps to give people information for them to make more informed decision for themselves. Cheerios.
Thank you So much for your experience. I have a nodule and would really appreciate the name of an endocrinologist who is on your list in CapeTown South Africa. So many are against alternatives. I am alone in this.
Unfortunately, I don't know of anyone in South Africa. There is a physician in Egypt. Please visit our website saveyourthyroid.org for more information.
There is Dr. S. Steyn from drsburger at UNITAS in Pretoria, South Africa. I am scheduled to do mine in June. Thank you again Jen. I started following you 2 years ago when the doctor discovered 2 nodules.
@JunMother953 I really appreciate you sharing this! We will add the dr to our list on saveyourthyroid.org. Praying for you to have a good outcome!
@JunMother953 Can you please share a website for the dr in South Africa?
@@ItsmeJenagain I don't know the website. I can get it on the day of my appointment. I need to point out that he only does benign nodules.
Just had my RFA procedure and I am experiencing severe fatigue….hoping it’s just transient and my body is just trying to adjust. My labs were normal prior to. Anyone experience this after theirs?
Yes this can happen, and happened to me. But it was temporary. Watch my interview with Dr. Yasmin Elshenawy to hear her take on it.
Does HMO insurance approve RFA
You would need to ask your insurance company.
Is there any way I can reach Cyrus directly? I'm an Ontario resident dealing with a TIRADS 4 nodule (3.3 cm) that was biopsied as a follicular neoplasm. I'd like to ask him about his treatment and recovery over the long term. Thank you!
He is a member of our FB community. Perhaps you could connect with him there.
@@ItsmeJenagain Thank you!
Hi. I had the same case with you but after change my diet in 3 months. Finally I decided to removed my left thyroid. The result of carcinoma papillary. Follicular neoplasm is like they cant diagnosed and it nessary to do a surgery. My point i think you need to remove it before it spread out. I still need to check my doctor whether i need to removed the right side also and do ablation:(. Hopefully you get healthy
Hey Alma! Hope you are doing well 🙌🏼 I have the exact same diagnosis, everyone is pushing for surgery as they don’t know what exactly it might be. Did you get the RFA, where you a candidate in the end?
@@agnesestrupule396 No, every hospital in Toronto that offers RFA said that I would not be eligible. They only treat benign nodules. My surgeon gave me the option of active surveillance to see if there are any changes in the nodule.
I have thyroid nodules benign I have struggled with PT, where I feel out of breath, labored breathing. I was told it was depression. I’ve never felt depressed. Well, energy, foggy unclear. Thinking. I did have some thyroid test in years ago. It was normal. Any thoughts or ideas for me? Lately I am having the fatigue again, it comes with some pretty intense life changes, so it’s possible it is depression. I do feel anxious at times..
Request a thyroid ultrasound to rule out any nodules or structural issues. If that's clear, I'd maybe think adrenals. Im not an expert, but I know from personal experience that life changes and stress can be hard on them.
@@ItsmeJenagain I have had an ultrasound. And I do have thyroid nodules. I have had the testing done and they are benign.
In your experience, could this be causing my fatigue?
@@s.thomas5220 it would depend on if they are obstructing your ability to breathe. If so, then possibly. Are you hypothyroid?
Not that I know...
How do I join your group?
The link is in the video description, or you can find it I'm the patient resources section on saveyourthyroid.org.
What was Cyrus’ tirad number when he was diagnosed?
He had a papillary cancer diagnosis.
DOES LOUISIANA HAVE RFA.?
Yes, Dr. Emad Kandil at Tulane. I have 2 interviews with him on this channel. Here is one: ua-cam.com/video/NWBAU5W5qDo/v-deo.htmlsi=C_qQeZqutMJVM1UC
Where in Germany did you go? What is the name of the Hospital or Clinic?
Dr. Korkusuz in Frankfurt Germany.
Nobody does RFA in Hawaii yet!!!
I know. I hope that will change.
How do I join the group? I also have thyroid cancer and I'm refusing to cut it out. Please help.
You can find the FB group link on our website saveyourthyroid.org
Hi Jen
I was diagnosed with papillary cancer and I would like to join your cahnnel
I would like to explore RFA. I want to save my thyroid. I live in the USA
Were do I see the list of doctors
Please join our Save Your Thyroid FB community. The link is in the video description. Also you can find the list of US providers on www.saveyourthyroid.org
I'm diagnosed too of papillary thyroid cancer and i want to save my thyroid! I'm scare of all the adverse side effects of the medicines and tha side effect of RAI and surgery itself its scaresme 😢. Thanking God for showing me this Video's. Been praying everyday about it. And my neighbor told me not to go on surgery. Look for 2nd opinion or go check for alternatives medicine. I'm schedule for surgery this 29th of august. Thank God i decided to let my neighbor know about my disease.
@@ElinaAlves-do2zrI was I also diagnosed on the 18th of July the day I will never forget. I am also considering the RFA. Did you have your procedure done? I don’t know what to expect.
what ifthe cancer spread in your lympnode.
Patients are carefully screened to determine candidacy and are typically only selected if they have a solitary papillary cancer that is 1 to 1.5 cm or less. Patients with lymph node involvement are not considered to be appropriate candidates. After treatment, they have continuous follow up to monitor for any signs of progression, but typically don't. Papillary thyroid cancer is slow growing does not typically spread.
@@ItsmeJenagainmine has Spread to a lymph node but I still had microwave ablation done. I thought what do I have to lose if I do ablation? No doctor would treat but after 2 years of searching I found someone.
Will report back in 6 months to a year if it worked to those interested.
Does RFA used for medullary thyroid carcinoma?
Not as a first line treatment. However, if it is inoperable RFA can be used as a palliative treatment in some cases.
1 third would have thyroid nodules, 5 % of them maybe cancer
That was supposed to say fatigue not PT… Lol
HI jen can thank you for amazing information. I have a nasty nodule I'm told to have surgery. Can you please let us know the names and contact of the surgeon who helped Cyrus with RFA.
Cyrus' dr was Dr. Korkusuz in Germany. His contact info is on our website, saveyourthyroid.org