Adult with Autism | Autism & Medication | 64
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- Опубліковано 30 чер 2024
- This video was requested, and unusually difficult to find the words to explain. I appreciate there is a near infinite number of ways and reasons medication might be needed. I just simply explain my experience and perspective.
0:00 Intro / Channel Changes
3:46 Autism & Medication
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This is where I am at a 60 yo. I got diagnosed with 'Autism with no intellectual disability' 4 years ago. With several physical medical issues it put me on the Disability Pension which was effectively early retirement. I had been put on antidepressants for 10 years plus. The thing is I wish I was diagnosed with ASD in my late teens/early 20s because I'd've been more confidant to get rid of toxic people, not people please and try and fix relationships, and get out of toxic workplaces much earlier. And do it without guilt.
I have started to do this in the past 4 years and it is refreshing. I have moved to a town and live next door to a National Park. I've told my sister and mother it's best we never talk again after they continually trampled boundaries I'd set......
Surprise! Surprise! Remove a bad environment and you do not need anti-depressants
Really glad you have a new route to walk...literally.
Hi Paul. I really enjoy your channel. Thank you for doing it. As I know it isn't easy. I am a 56-year-old male who is self-diagnosed with high functioning autism. I have an overwhelming amount of evidence and now it looks as though I may have passed this on to my son who is 18 years old. He exhibits all the classic behaviors such as lack of friends, obsession with certain activities, sensory issues with textures, foods and fabrics and he rattles off facts and figures constantly that no one cares about. If this is an ASD, I don't know what it is but no one, including those closest to me. Believe me. It's so frustrating that I'm going to find an adult testing center for myself so that I can prove that I have it. This way I may be able to talk to my son. But without that piece of paper saying that I have it. Absolutely no one will listen to me. It's very frustrating and I appreciate having you as a resource. Thanks again!
That piece of paper will help with that. Deeply frustrating as your word should be good enough to be heard without it...unfortunately that's not the way of the world 👍🏻
Maybe hold off on that for 6 months to keep yourself safe (if ur in USA) in the event Republicans win the election.
Court rulings released by SCOTUS today are going to change the legal landscape here.
This is hell. I don t know if you know the stats but the average life expectancy of autist is 54 years and they make up over 40 percent of suicide victims. You should be proud of yourself, that you are still alive and even have been able to bring a son to adulthood.
I agree that the piece of paper has value. I was diagnosed at age 75! Not even my sisters would have believed me if I hadn't got the "official" diagnosis -- which was all based on what I told and showed to the psychologist. (Haha!) My son is 46 and he has a lot of autism characteristics, too. Not all the same as mine. Best wishes to you and your son!
I can relate to the part about friends or family not having my best interests, Difficult to face
Something I wonder about too
It is, but it is something that needs to be faced. And hopefully you will, when the time is right for you 👍🏻
If someone in my life doesn't have my best interests in mind, I stop having them in my life. I love and respect my family and friends and if they don't do the same, there is no reason to have them in my life. I stopped having contact to a lot of people in my past life. It's just right and an act of selfrespect and selflove for me.
I think the most important thing about youtube videos is resonating with them. And it's very useful to resonate with the things that you are getting wrong in your life. We don't need to hear so much the typical top 10 traits of austism, or what masking or shutdowns are. We just (or at least I just) want to feel a connection with someone who is getting the same things wrong as me, or along similar lines that I can resonate with. In regards to your opening quote, I feel if anything, more alone in a room with a thousand people.
I feel like I've had a personal chat with you and enjoyed every second. The stuff about toxic people is just 100 percent true. Thank you.
Autism strengths and positives.
Indeedy 👍🏻
Hi Paul, thank you very much for your channel & videos, especially this one ...so glad you have a dog-companion, & that you have booked a holiday together, knowing what you like & need. I love deserted beaches/outdoor places in winter too, fresh & peaceful, & I miss beloved dog a lot.
I was diagnosed asd & adhd & cptsd, aged 48 (6years ago). I've never taken medication, instinctive but also some experience of others incl my mother being 'numbed' / "zombified" as you describe, so I'm grateful for your affirmation of that.
Also as a still-trying-to-recover- people-pleaser I really appreciate hearing your experiences & your three points of get rid of toxic people, leave toxic environments, & don't care about things one can't control.
I enjoy your calm presentation & steady voice.
Glad to read the comments here too: Autistics do seem to be generally more sensitive & honest than average.
I agree, I also find it insane that anyone cares about the colour of another person's skin.. absolutely being a decent person is what matters.
Best wishes from West Sussex, Judith
Four years ago I was diagnosed as mildly autistic, high functioning etc. Prior to that I was on antidepressants; SSRIs. Autistic burnout, and crushing anxiety causing depression. This one was all from work; I was working with a Linux orchestration system that, well, felt like juggling hand grenades with the pin half out. So I was crapping myself trying to keep this horror on the road, and frankly the sane option was to walk away and find another job either in the same organisation or elsewhere.
Things changed, systems changed, managers changed and the anxiety went away.
The key to understanding the neurotypical humans is actually fairly simple: they're hardwired to try to work out where they are in the local social hierarchy. Humans only have brain space to truly know about 150 other humans in a group, but there are (apart from some very unusual and enlightened groups) more humans than that in the average person's social circle.
Basically, the average neurotypical is buggered by hardwired instinct.
They HAVE to work out where they stand socially, but they have too many other people to keep track of. So, they turn to proxies of status. Cars, for instance. A car is a box with a wheel at each corner that gets you to places. A box is a box is a box. Some have slightly different attributes like cheaper to run, do special stuff and so on but mostly it's a box on wheels.
Some are more fashionable than others. Some of the really fashionable ones are basically so unreliable you pretty much want the tow truck people on speed dial, but they are more fashionable and so more desired and so people think if you use one of these you're higher social status than others. Barking mad, makes no sense at all; that's neurotypicals for you.
Fashion in clothes. This is a similar thing, with added mimicry. I joke that it is best explained by a group of fashion designers in a pub, betting each other on what ridiculous thing they can make fashionable in the world. Thus far "Tea cosy hat" is winning, with "ripped to shreds trousers" mounting a stern challenge and the rest nowhere.
I look at this, and the people who do it and they all call me mad. I can but laugh.
Thank you for your perspective! I definitely relate to needing to feel my feelings rather than taking meds for the depression.
Always a pleasure. Learning more about myself and other people on the spectrum.
20 yrs ago i started taking psychiatric medications. Only now in my early 40s am I free of pharmaceuticals, and I can FINALLY start my life. What you said - these meds all "block" something, feels exactly right - they try to "fix" you through subtraction of mental traits alone. Maybe that works for some, but many of us need to do the slow and painful work of figuring out how our neurodivergent brains work - mostly alone - in some cases when we're way too f-ing old :)
I can measure the damage to my shortterm memory, I have heart damage now and strong chronique pain. This meds are poison. Read again: the neurotypicals are poisoning us. If I write "genocide" people think I ak overdramatic. But this is what it is: Average life expectancy of 54 years, suicide risk 13 times higher in autist women than in normal women. Can't wait to get out of here.
Hi Paul,
Part of my ASD makes me a complete time freak, I would rather be 2 hours early than 2 minutes late, I think that the reason for this is that it gives me time to settle in to whatever the given situation maybe, I think that if I did not do this I would have a lot of overwhelming sensory issues, I know I get on my work colleagues nerves as if they want a lift to work, they know that they are going to be there 40 minutes early to start their shift. I have tried to explain to them the reason that I’m like this, and I think that they kind of get it. I also annoy them by talking about my Casio watch collection, but I guess that this goes hand in hand with my version of Autism, it’s great to see you making a new video, and as always they are very much appreciated.
Definitely the same as you in relation to time management. I'd rather lose half a day to boredom waiting than have to gain a second back of being late. That feeling is horrible.
hi Paul so good to see you back !!! thank you for covering this topic so well.
Hi Gemma, thank you
Thanks Paul, its great to see a new video from you again.
Thank you for sharing your insights so eloquently. The peace you feel when standing at the water’s edge contemplating its depth, is exactly how I feel right now, standing at the edge of you. Your self awareness is beautiful to behold.
thank you for your videos, Paul. they've helped me a lot in the past months since discovering my autism
It's good to hear that, thank you
Relationships with other autistic people and the hardships. My marriage and past has been quite the challenge
Thanks for nuggets of experience. So true 😊
No problem 👍🏻
I eould love if you could do a video on why other people with ASD get annoyed with me when I see so many similar signs of my ASD in them. It mak3s no sense.
Hi paul, im scottish, and i can tell you the culture is so different up here. We tend to be quite thick skinned and our banter can be a bit brutal. Im still in Scotland but i work for an office in England. One thing i like about in scotland tho is you offend others less. I unknowingly upset some of my English colleagues more often than i have with Scots but thats autism for you - we offend people accidentally. Anyway, glad you are happier now and back where you are comfortable. Thanks for your videos you have helped me not feel so alone
I loved living where I was, unfortunately in my case it wasn't banter...but was drama. Lying, backstabbing etc. wasn't good. Edinburgh is still one of my favourite cities, and still met some good people. The idiots ruined it.
🤷♂I want to watch what you put out.
I get why you're asking but I subbed because you were just saying how you feel in a respectful way, even if I don't always agree with all of it
Sorry to hear you went through that! I've had similar experiences with "friends"
No shame in taking medication if it's helping but I feel you shouldn't take it blindly!
Demand answers from your Doctor!
I have multiple friends/family who couldn't function without their medication but I also have a few friends and family member who were misdiagnosed and given medication that made them not want to be around anymore, then they had trouble convincing their Dr that they needed to come off it 😔
I also don't take any medication directly for Autism. I am on testosterone due to having Klinefelter Syndrome and majorly for the fact that I was randomly passing out due to low energy. I was recently on anti-depressants for which I believe I was going through Autistic burnout, I'm now off it because now I realise that was not depression. It was a result of being overwhelmed with life at that point in time, and now I've discovered ways to minimise things that I find overwhelming (such as LED lights, soft sounds, trying to limit stims). By minimising these overwhelming situations, I can gather more (I can't find the word) ... range? to deal with other overwhelming situations.
Thank you for your amazing videos - learning so much!
Thank you
Hi Paul, I enjoy your videos. I appreciate your honesty. It would be nice if you could talk about dealing with ableism, and also about the positive side of autism. Thanks
I will add them to the list. Thank you 👍🏻
Thanks Paul. I'm not a fan of medication either for very similar reasons.
always a good chat from you with every video.
Hi Paul, another great, thought-provoking video, thank you 🙂 I need to have a look through your back catalogue and see if you've already discussed pain perception and autism. How being autistic affects pain perception and how it also makes it difficult to communicate effectively with health professionals who perhaps don't believe the person who says they're in pain or don't believe the pain can be as serious or impactful as the person says it is. How that affects the person's mind and trust and confidence in the health system - to feel you're not believed or should feel ashamed for taking up their time because they don't seem to attach any importance to how you feel or how the situation is affecting your life. Anyway, that's my topic request for Paul's Pearls of Wisdom, but as I say, perhaps you've already done one on that, I haven't looked yet. Hope you're doing alright yourself just now. Matthew
Matthew, I have fibromyalgia as well as autism. My autism was diagnosed long after the fibro. Fibromyalgia is a central nervous system disorder in which one feels pain when nothing is really wrong with the part that is hurting. I think it's akin to autism sensitivities. In my case the pain is in muscles. The "pressure points" long used to diagnose autism are where the tendons join the musles to the bones. The pain moves around. Right now I have a very sore jaw. You might want to try to find out more about fibromyalgia, which literally just means "muscle and nerve pain." It's perplexing, because it's hard to know when one is really injured and when the pain can be safely ignored. Also, there's a good TED talk on chronic pain at ua-cam.com/video/gwd-wLdIHjs/v-deo.html Best wishes!
@@marthamurphy7940 Hello Martha, thank you for your thoughts. Fibromyaligia doesn't sound like much fun at all, I hope your jaw pain stops soon. My pain is linked to a specific area and a vascular malformation for which I've already had two surgical interventions to try and sort out. It still hurts, though the doctors don't seem to think it should. I have an appointment with a chronic pain specialist soon, but in my previous consultations i've had trouble with things like ranking the pain on a scale of 1 to 10 and describing the pain itself, which has left me with the impression the doctors don't really believe what I'm saying to them. I'm still on the waiting list for my autism assessment, which is also frustrating because I can only say to the doctors that I believe I'm autistic but I don't yet have formal confirmation (or not) of that belief. I just wondered what other peoples' experiences of pain as an autist might be - is it a common issue, not being able to communicate about pain perception and feel on the same wavelength as the doctor listening?
And yes, what pain can one safely attempt to ignore and what pain is actually giving important information and should be heeded. Awkward question. I'll have a look at the video you suggest. Here's one I watched the other day which seemed helpful, though still doesn't answer the question as to what pain can be ignored and what shoudl be heeded: ua-cam.com/video/ZUXPqphwp2U/v-deo.html
Dark Side of Autism. We need more of that. I’m so sick and tired of all the ‘Autistic superpower’, glamourisation, it’s so quirky and cool approach that, like, EVERYone else takes. It’s not belong with acceptance, and it sure as shit isn’t helping with understanding. Stuff like that makes people think Autism is just this silly little pastime. It’s just Bob being Bob. And it bloody isn’t!
So. More Dark Side of Autism
I feel like certain parts of the media who talk about autism being a “superpower” also encourages infantilisation of many people on the spectrum. It’s often low-skill/ high need that gets praised. And don’t get me started on the stereotype of autistics having a superpower with maths. It was my worst GCSE and to this day, I struggle to calculate change when shopping
It’s
Something I'd like to see discussed: Post diagnosis treatment. What happens when you get the call?
In my case, nothing. Maybe it depends on where you live. I do see a therapist, and she coaches me on "mistakes in my thinking" and how to make friends, but she doesn't have any special qualifications about autism. If you want some therapy, you'll probably have to look for it yourself.
I don't take medication for autism, which I believe to be caused by differences in brain structures. It's not a disease. I also have fibromyalgia (FMS), which is highly correlated with autism. (Meaning a lot of people have both.) I knew I had fms a long time before knew I was autistic. My doctor recommended an antidepressant and an anti-inflammatory taken together. Maybe it's the placebo effect, but it works for me. I'm not entirely pain free, but it allowed me to get on with my life. (Fibromyalgia is also not a disease -- it's a syndrome.) Some people may have sensitivity to any medication. I think people always have to work WITH their physicians to figure out what works for them. I wish blessings on everybody.
As far as I know a lot of autistic people have weird reactions to prescribed medications for mental health conditions (bipolar disorders, bipolar depression, anxiety disorders, schizophrenia, schizoaffective disorder to name some common mental health conditions). It would be nice to do a series on comorbidities with autism including language processing disorders (LPD) also known as expressive language disorder, receptive language disorder or mixed receptive-expressive language disorder (MRELD) without intellectual disabilities, auditory processing disorders (APDs) with and without intellectual disabilities and oral language disorders (also known as spoken language disorders) in autistic people with and without intellectual disabilities for example. I am beyond tired of seeing UA-cam channels just dedicated to autistic people without intellectual disabilities who also have ADHD especially when I am autistic without any intellectual disabilities and no forms of ADHD at all, but has a generalized anxiety disorder, an auditory processing disorder (APD), a language processing disorder (also known as a mixed receptive expressive language disorder (MRELD)) and an oral language disorder (also known as a sound language disorder)).
Can you make a video about alexithymia?
Do you have a female skeleton ?
Leave Paul alone. His videos have helped me and many others not feel so bad and given me the courage to keep going. His podcasts have kept me company on many dog walks this year. From someone who has a male skeleton.
@@sanfordcurtis8242 wasn’t trying to offend . He comes across as a straight shooter
What is a female skeleton? Is this figurative speech or a real medical phenomenum?
@@0NeverEver most men you see walking around have a female skeleton as proven by their gait and other skeleton markers . The gait is the best to go by, how they walk, but it’s also easy to tell from the skull and jaw and facial features etc . There’s two skeletons of every creature male and female and there’s clear differences between us . The inversion thing is a satanic effort to wipe out man made in God’s image. Look up walking shots and videos of any celebrity you can think of or politician etc - you can see they all have the opposite gait /‘skeleton they should have for the gender they present as . With a female skeleton you walk more in line foot fall , whereas for males there is a space . You’ll see what I mean when you study it . The inverted are all lying children of the devil