I just got out of hospital yesterday I have been there for 20 days. Watching this gave me strength to recover from this disease. Anyone who is reading this stay strong it will be better but it takes time. I am able to get up with help and walk few steps but it gets better everyday. We will beat GBS.
How are you doing now? I have a friend in the hospital now with GBS and is on a ventilator. It’s just saddens me that they were a perfectly healthy person and is now suffering from this.
Hi Carissa. I was a healthy 26-year-old when I came down with GBS. My numbness and tingling started in all four extremities at once. Within about two weeks I was paralyzed from the neck down. I spent three weeks in intensive care and a total of a month and a half in the hospital. I went from weighing 160 pounds to 100 pounds at my low point, a had hoses and lines emanating from me in every conceivable place. Hands down worst experience of my life! My recovery, however, was swift. The hospital actually discharged me a week before I could fully walk, and I rehabbed successfully on a stationary exercise bicycle at my parent's house. In six months I bested a five mile hilly course running time achieved even BEFORE I was sick, bested by two minutes my 10K PR ten months later, and ran my first marathon in three hours two years later. The GBS situation was scary and frustrating, but after full recovery the satisfaction was there that I had triumphed over it--a feeling I am sure you are experiencing as well. Never take life for granted. Enjoyed your video!
I am 17 months into recovery from GBS and your story gives me hope for a full recovery. I am walking again and started skiing again this winter. My feet are still very numb but after reading many of the comments below I feel very lucky to be where I am now. Unfortunately there are several comments here that describe being diagnosed with GBS after getting the jab. I am so sorry for those folks and I sincerely hope that you make a full recovery. The onset of GBS is documented in the VAERS website. For those of you who have not gotten the jab, or have loved ones that have not; do not get it. I am not a doctor. Thank you Carrisa for sharing your inspirational story.
Carissa It's so good to see you are back to how you were. It's amazing to see how someone so sick can pull through with the help of so many lovely caring people. Wonderful
June 23 rd took the 1st covid shot. July 3 2021 I'm losing my balance I feel numb at my feet witch feel like plastic Now, my legs feel numb,. I'm bumping into things anything I do with my hands or fingers is very annoying bothersome.. My finger tips feel like razors at the the tips.. I'm dropping some things I feel as if I have to take heavy breaths or relax. I feel like things are crawling on me so I'm scratting. my legs feel wobbly even in a shower, walking around, standing up standing still. Im feeling more anxious lately or seeing my anxiety going higher. nerve pain in my arms especially at night when laying down or when my arms are reaching for something. My strength feels weak sometimes my toes in fingers feel hot or cold. I noticed my hands especially my right one wants to Shake. high blood pressure, I can be standing still and sweat really bad And my handwriting is getting shaky. And small headaches just once in a while Still going on and it's now Oct. 24 2021 Update: Nov.7th 2021 I'm having to get a walker. diagnosis will come in a couple more days. November 10th 2021 diagnosed with Gillian Beret syndrome. By doc noland. I need to drive as little as possiable..or NOT at all.im having to quit working. House payment is going up. As it did last year. Now hitting on 745.oo a month. started off at 715.oo 😒 In rehabilitation now. Today is Nov. 19. Just got evaluated... Can't even walk down 1 step. Got very weak waiting for this rehabilitation to start.. 5 days after treatment just been laying around waiting to get Rehabilitation. Rehabilitation started on November 18th 2021 going home but need my wheelchair and Walker the toilet seat and a shower chair. Getting out of the hospital today December 2 2021 went into hospital on november 10th 2021 it is now December 15th 2021 I'm home I can barely walk I'm in a wheelchair I am seeing therapies and nurses neurologist doctor says another round of treatment for me I'm just hanging where I'm at next treatment could make me better let's hope pray for the best I am so so thankful this was never so far has gotten in my lungs. A long road of patience a long road of waiting truly trusting God.
Hi, Im Fernando. I'm sorry to hear that, especially at 17. I am currently recovering. I was treated for GBS a month ago, March 1st. It is terrible, how you loose your Independence. Wish you healthy future as well
My GF has been recently diagnosed with this. I am doing everything in my power to support her, but this Covid is not allowing me to see her. She's very depressed and her mind is a bit foggy. She's upset with me since I can't and won't take her from the rehabilitation hospital. This is depressing me as well, but I need to stay strong for her. I hope her mind clears, but I'll be there no matter what.
Hi Carissa, Wonderful story thank you. It is a life changing disease for sure. I contracted the virus in 1977 when I was just 19 yrs old now at age 65 I still have a balance issue with complete paralysis of both feet but grateful that I can and have been able to move on my own steam and do much of what I used to be able to do except run! Have a blessed day
I just recently learned about this, to be honest i just thought it had to- do with the eyes. I wouldent have known different if it wasn,t for this video. Thank you so much for posting.
Such an inspiration.. My daughter is suffering from the illness right now, she's still in the hospital at the moment. I pray that she can recover fast just like you 🙏🙏🙏 nothing is impossible with God's Grace and Mercy
What is your daughter's name? My daughter is going through this right now we are not in the hospital but will be for the first time meeting with a neurologist, tomorrow. She can't walk on her own and is in a lot of pain. This is very scary to see your child suffer so much. My daughter's name is Isabella please also pray for her.
@@hg-tm6gnsorry for the late reply.. her name is francheschina, she recovered in just 4 months. But last May she was diagnosed of germ cell tumor and undergone a surgery last August did a 4 cycles of chemotherapy and last January she again undergo a liver resection for the metastasis and she again went through for 2 cycles of chemotherapy...right now we're here in the hospital for her last cycle of chemotherapy. Praying for your daughter 🙏 hope she is okay now.
@@mercyganub2559 I am so sorry your daughter is going through so much, how incredibly heart breaking for a mother to watch. We will keep her in our prayers, hoping she will recover from all sickness . Our daughter recovered from GBS pretty quickly after a couple off days in the hospital, I am grateful for that. However, we are dealing with a new thing she now has been diagnosed with pain syndrome around her stomach, we are in the beginning stages but we are hoping she will recover from this too.
I got it as a bad side affect from a flu jab. I had it when I was 6 (I'm 18 now), I was in hospital for 9 days, bed bound for 6 months and took two years to recover fully. Hydro therapy was the thing that helped me most.
Those 37 days with your "trach" (I'll go on a limb) remain "unforgetteable", right? I needed mine almost 80 days while in the ICU. I only remember a lot, tons of patients coming in but quickly leaving. Most of them dead --I could tell by the nurses sobbing, which always touched me and I sobbed along. Somehow it was deeply moving what they were going through. It takes an especial breed to do well as an ICU nurse. I believe in just a day one can tell who will make it or break it! My doctors forecast was quite depressing (crutches, "at best" they said and for life) Luckily, I needed a cane! Which I dropped a week later. I appear fairly normal, but I carry the residuals to this day, almost forty years later.
at 6 years old I had in 1967 just bin commenting on few post tonight, wish I had documented mine when I had it, it happened last 2 days of first grade, I was paralyzed with 2 collapsed lungs, and about 8 months later was back to being a kid never home and full of energy, my most memorial day was after a few months I'd go home for the day and go back at night to the hospital and still brings tears to my eyes was walking out of the elevator and nurses see me walk out with no help for the first time, shortly after was able to go home, and then came back for therapy for few months
I am 54 and I was diagnosed with GBS in 2016. I still have it . I walk with the heip of a walker and have severe neuropathy now . My lower extremities are almost numb . I had to learn how to talk and still need help with almost everything. But I haven't given up .Life is still Livable with GBS. I have some amazing doctors at Rush Hospital who take excellent care of me. I actually feel like I'm floating on air. My doctors are amazed at some of stories about what's going on inside my body. You would never know the feeling if you never had GBS. I try to explain it but it's unexplainable 😂. I'm stuck with GBS for the rest of my life but it's okay . This is not a Sob Story but a Survival Story. My body is Amazing 😀. Stay well ❤️😀
Lisa Wiliams god bless you. My dad got diagnosed yesterday and I literally can’t handle it. I can’t lose my dad. He’s supposed to live til he’s 100, I wanna die before he dies and this is the scariest and saddest thing I’ve experienced in life. Your positive outlook keeps me hopeful god bless you
SweetDollaT nooo... he can Still live to be 100 ... please tell him to stay positive and you guys stay positive too . My Entire Body including facial muscles were paralyzed... I did therapy inpatient and outpatient. It's hard but it Can Be Done . Say hi to your dad for me and Any questions you have I promise I'll answer . Stay safe and Stay well 🙏🏽🙏🏽🙏🏽
Thank you so much for sharing!!! Do you mind telling me your very first symptoms and how long you waiting to go to the doctor?? I’m scared I may have it but with this virus going on it’s hard to make doctor’s appointments😩😩
Kiara Ellis Hello... my first symptoms were numbness in my extremities ... then I started falling for no reason. I was always going to the doctor. I had an endoscopy and when I woke up I couldn't feel anything... but I'm still here . Take care
Lisa- were you put on a ventilator? How long from your symptoms did you go to the hospital go to get IVIG! I’m praying for your recovery and thanks for the info
No money on earth can buy a nurse or any member of health team's contentment when they see you regaining you life at the fullest. This made up my mind not to give up on nursing. Hope everyone will appreciate us the way you do.
Amazing recovery you so blessed 🙏 Meself GBS diagnosis 9/12/15 and still fighting this, it's a individual thing some recover quickly.. But like me don't, on crutches, balance issues, muscle wastage, essential tremor in hands..
God bless u u recover very fast i got Gbs on 22nd february 2016 i had aman gbs it is akready 4 years i still hv balance issue foot drop n my fingers still cannot bend properly I m A high tech Real Estate Neg pls pray i will get back aleast my balance
I am starting to go through it now I've been a long hauler for covid for over nine months I just started with me yesterday and it's already up to my face and I wonder where God is
God will help you keep on praying. I came out a hospital 2 weeks ago. Am still WEAK. I try to do my exercises it is difficult ii ask God to help every day. Don't give up.
I hope you can help us Maam. My husband is also suffering the same disease as of the moment and we are so anxious.I hope you can help us find sponsors to help us with his medication.God bless you.
Hey 🤗 I just had a Brain MRI and no lesions.. but i had a sudden symmetrical leg weakness And after 3 days my harms and mouth movements and breathing was bad were heavy all this happened in 1 week so fast!! Now im probably in recovery but some symptoms persist....
My name is Eniola Alex, i live in lagos, Nigeria.. I am 20 years old.. I was diagnosed with GBS - Acute flaccid paralysis secondary to viral encephaliti. It started 2016, i had a different symptom entirely.. I was at intensive care unit for 6 months and later was taken to the ward before my discharge where i was on the wheel chair and.. It been a journey of recovering since then. And i am yet to recover fully. Currently like 40 % . I am so worried and tired
I'm one year out from having GBS and I'm getting around but I still have numbness in my hands and feet and my back I seem to be getting a little better but I'm still unable to work.
So sad lady's.. I'm sorry.. I too am dealing with GBS. Doctors are going to try a second treatment on me I feel like waited too long to get treatment it started in July and just now getting treatment in November and in December
@@lauralewallen3701 I wish you the best of luck! I do hope it works for you. Living like I do is no picnic. I take 800 mg of Gabapentin 4 times a day just to help with the pain. When asked about my pain I always say "It's all the above"
I've had GBS complete loss of feeling head to toe but I was also in and out of the hospital and back to work in less than 3 weeks... it was nothing like what she is saying
I had this in the early 90s. They filtered out my plasma and gave me synthetic plasma and I got immediate results. I wonder if this is still an option?!
I had GBS when I was 22 yrs old... Ryt now I m 29.. doing fine.. jst a small advice anyone recovering from GBS.,... Don't miss out doing your facial exercises as suggested by speech therapist... I being reckless, stopped following .. Nd still today I m not able to blow balloons as I used to do..😅.. good luck be brave... Don't give a shit how other ppl will be looking at you when u speak.. as your facial movements might be a little different..
hey guess what! Even more cases from the normal flu vax! Also, you have higher chances of gettign it from an actual virus, or something as simple as a stomach bug.
June 23 rd took the 1st covid shot. July 3 2021 I'm losing my balance I feel numb at my feet witch feel like plastic Now, my legs feel numb,. I'm bumping into things anything I do with my hands or fingers is very annoying bothersome.. My finger tips feel like razors at the the tips.. I'm dropping some things I feel as if I have to take heavy breaths or relax. I feel like things are crawling on me so I'm scratting. my legs feel wobbly even in a shower, walking around, standing up standing still. Im feeling more anxious lately or seeing my anxiety going higher. nerve pain in my arms especially at night when laying down or when my arms are reaching for something. My strength feels weak sometimes my toes in fingers feel hot or cold. I noticed my hands especially my right one wants to Shake. high blood pressure, I can be standing still and sweat really bad And my handwriting is getting shaky. And small headaches just once in a while Still going on and it's now Oct. 24 2021 Update: Nov.7th 2021 I'm having to get a walker. diagnosis will come in a couple more days. November 10th 2021 diagnosed with Gillian Beret syndrome. By doc noland. I need to drive as little as possiable..or NOT at all.im having to quit working. House payment is going up. As it did last year. Now hitting on 745.oo a month. started off at 715.oo 😒 In rehabilitation now. Today is Nov. 19. Just got evaluated... Can't even walk down 1 step. Got very weak waiting for this rehabilitation to start.. 5 days after treatment just been laying around waiting to get Rehabilitation. Rehabilitation started on November 18th 2021 going home but need my wheelchair and Walker the toilet seat and a shower chair. Getting out of the hospital today December 2 2021 went into hospital on november 10th 2021 it is now December 15th 2021 I'm home I can barely walk I'm in a wheelchair I am seeing therapies and nurses neurologist doctor says another round of treatment for me I'm just hanging where I'm at next treatment could make me better let's hope pray for the best I am so so thankful this was never so far has gotten in my lungs. A long road of patience a long road of waiting truly trusting God.
Carissa, on a friendly scale of one to ten, you are exactly twelve! I was so sad for sixteen years that you couldn't be friends on social media. No cheating on my friend requests. I wish father Steven Mitchell Simmons wasn't so serious on me.
Hello, Carissa. Long time no talk. How are you missing me for many years? You’re the only joyous emotion of my whole existence. If you would’ve started liking me anymore, my life won’t be doomed. I hope Steve was a better father than John.
MY GBS STARTED AFTER A RESPIRATORY INFECTION FOLLOWED BY A INTESTINAL INFLAMMATION AND INFECTION AND THEN A MUSCLE RELAXER MEDICATION WHICH IMMEDIATELY CAUSED NUMBNESS IN MY BODY AND THEN THE NUMBNESS STARTED TO LEAVE FOLLOWED BY A SEVERE NUEROPATHY AND LOSS OF REFLEXES WHICH WAS THERE FOR 2 MONTHS BUT I WAS NOT PARALYSED . THIS ALL HAPPENED DURING THE INTIAL CORONA LOCKDOWN AND SENIOR DOCTORS WERE NOT SEEING PATIENTS . MY GENERAL PHYSICIAN HAD RIGHTFULLY DIAGONISED THIS AS GBS AND ASKED ME TO TAKE COMPLETE REST AT HOME AND GAVE ME VITAMINS ONLY AND IN CASE I FIND DIFFICULT TO BREATHE THEN GET ADMITTED IN A HOSPITAL WHICH HAS MECHANICAL VENTILATOR . BUT MINE DIDN'T GO TO THAT STAGE AND RECOVERY STARTED .THEN SLOWLY THE SYMPTOMS BEGIN TO CALM DOWN AND STARTED TO RECOVER . STILL NOW I HAVE NOT YET FULLY RECOVERED BUT MY CONDITION IS AROUND 80 % BETTER THAN WHAT IT WAS IN THE BEGINING .
I was reading the headlines on Yahoo and ran across this: Jenna Jameson Diagnosed with Guillain-Barré Syndrome After She 'Wasn't Able to Walk' I then came to youtube and searched on Guillain-Barré and ran across this video. Are most cases as extreme as yours (temporary full paralysis) ?
There is a man his name is henry budoi and he has this disease and he don't have anyone to help him he lives in Nairobi Kenya actually I don't know him I saw his video on UA-cam on ebru TV Kenya Story of my life, and he is asking for help please can someone help him he really need help thank you
genetic... Some peoples immune systems are unable to identify certain cells and it starts to attack it self. As the nerve fibers look similar to your immune system.
I've been living with the damage GBS took a toll on my body, diagnosed in 2008. I have weakness in my hand, feet and legs, extreme pain daily, arthritic! I was told by a very honest neurologist who was treating me when I became sick that I probably you came sick from childhood vaccines and it could take 40 to 50 years to mutate in one's body and that's exactly what happened to me so I've been living with this disease and the side effects it did on my nervous system and my my immune system is very weakened for 12 years now so I please with anyone and everyone please get away from these vaccines there was another H1N1 in 1976,000s work it with GPS and that is not newsworthy he's vaccines are poison and to tell me the CDC now went the third booster this is experimental they haven't even approved it please from one that suffers with GPS and all the others may the Lord bless all of us
I just got out of hospital yesterday I have been there for 20 days. Watching this gave me strength to recover from this disease. Anyone who is reading this stay strong it will be better but it takes time. I am able to get up with help and walk few steps but it gets better everyday. We will beat GBS.
How are you doing now? I have a friend in the hospital now with GBS and is on a ventilator. It’s just saddens me that they were a perfectly healthy person and is now suffering from this.
Hi Carissa. I was a healthy 26-year-old when I came down with GBS. My numbness and tingling started in all four extremities at once. Within about two weeks I was paralyzed from the neck down. I spent three weeks in intensive care and a total of a month and a half in the hospital. I went from weighing 160 pounds to 100 pounds at my low point, a had hoses and lines emanating from me in every conceivable place. Hands down worst experience of my life! My recovery, however, was swift. The hospital actually discharged me a week before I could fully walk, and I rehabbed successfully on a stationary exercise bicycle at my parent's house. In six months I bested a five mile hilly course running time achieved even BEFORE I was sick, bested by two minutes my 10K PR ten months later, and ran my first marathon in three hours two years later. The GBS situation was scary and frustrating, but after full recovery the satisfaction was there that I had triumphed over it--a feeling I am sure you are experiencing as well. Never take life for granted. Enjoyed your video!
I am 17 months into recovery from GBS and your story gives me hope for a full recovery. I am walking again and started skiing again this winter. My feet are still very numb but after reading many of the comments below I feel very lucky to be where I am now.
Unfortunately there are several comments here that describe being diagnosed with GBS after getting the jab. I am so sorry for those folks and I sincerely hope that you make a full recovery. The onset of GBS is documented in the VAERS website. For those of you who have not gotten the jab, or have loved ones that have not; do not get it. I am not a doctor.
Thank you Carrisa for sharing your inspirational story.
I am currently in recovery from GBS, Two weeks out of the hospital... This gives me hope
Hi me too are you getting better
Hi are you getting better
Are you getting better
My hands and feet still feeling numb. I try to do my exercises
Lisa! Hope you are good. How are you and how long it took you to get back up!
@@jaquelinejacky9195 Hope youre doing better now!
Carissa It's so good to see you are back to how you were. It's amazing to see how someone so sick can pull through with the help of so many lovely caring people. Wonderful
Thank you for telling your story. My 26 year old son is going through this now. You have given me hope. Bless you and best wishes
I would like to connect with you as iam an gbs survivor. Please share your info to contact.
@@mohdmujahed2958 305-218-8603
June 23 rd took the 1st covid shot. July 3 2021 I'm losing my balance I feel numb at my feet witch feel like plastic Now, my legs feel numb,. I'm bumping into things anything I do with my hands or fingers is very annoying bothersome.. My finger tips feel like razors at the the tips.. I'm dropping some things I feel as if I have to take heavy breaths or relax. I feel like things are crawling on me so I'm scratting. my legs feel wobbly even in a shower, walking around, standing up standing still. Im feeling more anxious lately or seeing my anxiety going higher. nerve pain in my arms especially at night when laying down or when my arms are reaching for something. My strength feels weak sometimes my toes in fingers feel hot or cold. I noticed my hands especially my right one wants to Shake. high blood pressure, I can be standing still and sweat really bad And my handwriting is getting shaky. And small headaches just once in a while
Still going on and it's now Oct. 24 2021
Update: Nov.7th 2021
I'm having to get a walker. diagnosis will come in a couple more days. November 10th 2021 diagnosed with Gillian Beret syndrome. By doc noland. I need to drive as little as possiable..or NOT at all.im having to quit working. House payment is going up. As it did last year. Now hitting on 745.oo a month. started off at 715.oo 😒
In rehabilitation now. Today is Nov. 19. Just got evaluated... Can't even walk down 1 step. Got very weak waiting for this rehabilitation to start.. 5 days after treatment just been laying around waiting to get Rehabilitation. Rehabilitation started on November 18th 2021 going home but need my wheelchair and Walker the toilet seat and a shower chair. Getting out of the hospital today December 2 2021 went into hospital on november 10th 2021 it is now December 15th 2021 I'm home I can barely walk I'm in a wheelchair I am seeing therapies and nurses neurologist doctor says another round of treatment for me I'm just hanging where I'm at next treatment could make me better let's hope pray for the best I am so so thankful this was never so far has gotten in my lungs. A long road of patience a long road of waiting truly trusting God.
I had GBS when I was 17. It was horrendous. Wishing you a happy healthy future. 🙏🏽❤️
Hi, Im Fernando. I'm sorry to hear that, especially at 17. I am currently recovering. I was treated for GBS a month ago, March 1st. It is terrible, how you loose your Independence. Wish you healthy future as well
Had GBS when I was 11. 15 years later and I'm enjoying life. Never take being able to eat, breathe, and move for granted.
My GF has been recently diagnosed with this. I am doing everything in my power to support her, but this Covid is not allowing me to see her. She's very depressed and her mind is a bit foggy. She's upset with me since I can't and won't take her from the rehabilitation hospital. This is depressing me as well, but I need to stay strong for her.
I hope her mind clears, but I'll be there no matter what.
Prayers for you both!!! Stay strong, mate. This shall pass! 🙏
Hi Carissa, Wonderful story thank you. It is a life changing disease for sure. I contracted the virus in 1977 when I was just 19 yrs old now at age 65 I still have a balance issue with complete paralysis of both feet but grateful that I can and have been able to move on my own steam and do much of what I used to be able to do except run! Have a blessed day
1 week into my recovery and scared. This video along with the comments give me hope.
May you continue to get better.
Hope you get well soon.
Which therapies did you get? Is it just time that cures or is it special therapies?
I had GBS last year 2019; 5 days before my Wedding.I was unconscious for 1 whole month.
Thank God I survived within 2-4 months 😘
I just recently learned about this, to be honest i just thought it had to- do with the eyes. I wouldent have known different if it wasn,t for this video. Thank you so much for posting.
Such an inspiration..
My daughter is suffering from the illness right now, she's still in the hospital at the moment. I pray that she can recover fast just like you 🙏🙏🙏 nothing is impossible with God's Grace and Mercy
What is your daughter's name? My daughter is going through this right now we are not in the hospital but will be for the first time meeting with a neurologist, tomorrow. She can't walk on her own and is in a lot of pain. This is very scary to see your child suffer so much. My daughter's name is Isabella please also pray for her.
Hi how are your daughter now
@@hg-tm6gnsorry for the late reply.. her name is francheschina, she recovered in just 4 months. But last May she was diagnosed of germ cell tumor and undergone a surgery last August did a 4 cycles of chemotherapy and last January she again undergo a liver resection for the metastasis and she again went through for 2 cycles of chemotherapy...right now we're here in the hospital for her last cycle of chemotherapy. Praying for your daughter 🙏 hope she is okay now.
@@jaquelinejacky9195 she's okay from GBS and going through a lot but thank God for his mercy and he gave my daughter a miracle healing 😊
@@mercyganub2559 I am so sorry your daughter is going through so much, how incredibly heart breaking for a mother to watch. We will keep her in our prayers, hoping she will recover from all sickness . Our daughter recovered from GBS pretty quickly after a couple off days in the hospital, I am grateful for that. However, we are dealing with a new thing she now has been diagnosed with pain syndrome around her stomach, we are in the beginning stages but we are hoping she will recover from this too.
I am now recovering from Gillian Barre. Your story was up lifting.
May your recovery be Fast!! I had GBS when i was 12 years old i am now 24
May I ask your symptoms and what you had to do for recovery, as well as how long it took?
I had it when i was 3. I hate that syndrome. You cant walk cause you always fall down man that sucks but now i play football and my legs are strong
Marissa you testimony make me crying the best for you ... you’re a real warrior
Glad that the works of the dedicated healthcare providers being acknowledged
You make me so proud as I had GBS in December and have recovered
I am so inspired by you
I wish we could speak. I'm 1 week into my treatment and so scared.
I got it as a bad side affect from a flu jab. I had it when I was 6 (I'm 18 now), I was in hospital for 9 days, bed bound for 6 months and took two years to recover fully. Hydro therapy was the thing that helped me most.
I just got treated last month, I'm in recovery. I keep coming back to listen to your story. Best wishes to you!
zegna frame hi I may I ask you what symptoms you felt? And how long you waited to go to the doctor??
Best wishes keep on fighting
what treatment did you receive please
Those 37 days with your "trach" (I'll go on a limb) remain "unforgetteable", right? I needed mine almost 80 days while in the ICU. I only remember a lot, tons of patients coming in but quickly leaving. Most of them dead --I could tell by the nurses sobbing, which always touched me and I sobbed along. Somehow it was deeply moving what they were going through. It takes an especial breed to do well as an ICU nurse. I believe in just a day one can tell who will make it or break it! My doctors forecast was quite depressing (crutches, "at best" they said and for life) Luckily, I needed a cane! Which I dropped a week later. I appear fairly normal, but I carry the residuals to this day, almost forty years later.
at 6 years old I had in 1967 just bin commenting on few post tonight, wish I had documented mine when I had it, it happened last 2 days of first grade, I was paralyzed with 2 collapsed lungs, and about 8 months later was back to being a kid never home and full of energy, my most memorial day was after a few months I'd go home for the day and go back at night to the hospital and still brings tears to my eyes was walking out of the elevator and nurses see me walk out with no help for the first time, shortly after was able to go home, and then came back for therapy for few months
Same story.. September 1999 when I was 13 years old, I was treated in Army R&R hospital, India.
i had Gbs at the age of 10(1996), Now i am 34. I was treated in Apollo hospital chennai India...
I am 54 and I was diagnosed with GBS in 2016. I still have it . I walk with the heip of a walker and have severe neuropathy now . My lower extremities are almost numb . I had to learn how to talk and still need help with almost everything. But I haven't given up .Life is still Livable with GBS. I have some amazing doctors at Rush Hospital who take excellent care of me. I actually feel like I'm floating on air. My doctors are amazed at some of stories about what's going on inside my body. You would never know the feeling if you never had GBS. I try to explain it but it's unexplainable 😂. I'm stuck with GBS for the rest of my life but it's okay . This is not a Sob Story but a Survival Story. My body is Amazing 😀. Stay well ❤️😀
Lisa Wiliams god bless you. My dad got diagnosed yesterday and I literally can’t handle it. I can’t lose my dad. He’s supposed to live til he’s 100, I wanna die before he dies and this is the scariest and saddest thing I’ve experienced in life. Your positive outlook keeps me hopeful god bless you
SweetDollaT nooo... he can Still live to be 100 ... please tell him to stay positive and you guys stay positive too . My Entire Body including facial muscles were paralyzed... I did therapy inpatient and outpatient. It's hard but it Can Be Done . Say hi to your dad for me and Any questions you have I promise I'll answer . Stay safe and Stay well 🙏🏽🙏🏽🙏🏽
Thank you so much for sharing!!! Do you mind telling me your very first symptoms and how long you waiting to go to the doctor?? I’m scared I may have it but with this virus going on it’s hard to make doctor’s appointments😩😩
Kiara Ellis Hello... my first symptoms were numbness in my extremities ... then I started falling for no reason. I was always going to the doctor. I had an endoscopy and when I woke up I couldn't feel anything... but I'm still here . Take care
Lisa- were you put on a ventilator? How long from your symptoms did you go to the hospital go to get IVIG! I’m praying for your recovery and thanks for the info
No money on earth can buy a nurse or any member of health team's contentment when they see you regaining you life at the fullest. This made up my mind not to give up on nursing. Hope everyone will appreciate us the way you do.
My onset and recovery time were almost identical. It is so awesome to see others have such amazing recoveries
Wow! I am so happy for you and thanks to all health care team
My mom went though this as well. It’s amazing what the human body can do.
Hope she's doing better
zegna frame thank you. She made almost a full recovery. She has more pain than before. She’s also terrified to get sick with this virus going around.
I went through this bht thankfully my grandparents instantly got in tact with dlctors and now im fully recovered
Thank you sir. Without this help we may be unable to pronounce such terms accurately.
Amazing recovery you so blessed
🙏 Meself GBS diagnosis 9/12/15 and still fighting this, it's a individual thing some recover quickly.. But like me don't, on crutches, balance issues, muscle wastage, essential tremor in hands..
Wish you a full recovery I also have Gbs been out of the hospital for almost 2 weeks
@@jaquelinejacky9195 many thanks 🙏 hopefully you will make full recovery
Meself just over 5yrs now
@@kevinbaxter7390 thank you I know you can do this.
Wow!! Carissa this is amazing!
Stay well Carissa Simmons and Thanks for sharing.😋
I’m still recovering from this and this still gives me hope I’m almost back to myself I’m at 80 percent right now
Hang in there! It takes time.. and work, but it WILL come back. It WILL. 💪
Carissa Simmons thanks I appreciate it
I have Gbs now for the 2nd time. This time not as bad as the first time. I wish you a full recovery.
Had it 32 years ago, just before my 21st birthday, im about 70% recovered, im in London in the UK
God bless u u recover very fast i got Gbs on 22nd february 2016 i had aman gbs it is akready 4 years i still hv balance issue foot drop n my fingers still cannot bend properly I m A high tech Real Estate Neg pls pray i will get back aleast my balance
I still hv foot drop problem n Hot feet..till 2yers from 2018 august 25
I'm here ciz this was added to the long list of jab side effects.
Thanks for sharing and delighted you recovered so well. Great audio and video also. Greetings from James J in Limerick city Ireland
When I was 7 I had gbs but I only couldn’t move waist down but thank god I recovered
glad this happened before covid.. you wouldnt get the same help so glad your better
I am currently recovering from GBS this does give me hope
Will pray for you and your family! 🙏
I am starting to go through it now I've been a long hauler for covid for over nine months I just started with me yesterday and it's already up to my face and I wonder where God is
God will help you keep on praying. I came out a hospital 2 weeks ago. Am still WEAK. I try to do my exercises it is difficult ii ask God to help every day. Don't give up.
God is big and never give up. I’m going to the same thing with COVID now this
I wish we could talk. I'm in my 1st week of it because of covid virus. 305-218-8603.
Hi are you getting better @@aldomusiclover
Someone I know was just diagnosed with mild GBS after getting the jab.
I believe it
can you explain what you mean by mild? Im worried my husband is going through this right now but it isnt as intense
I am currently 18 years old in hospital with GBS on the road to recovery
Wow!!! I am so impressed with the help you got to get better and healthy again. God uses people to bless us.
I hope you can help us Maam. My husband is also suffering the same disease as of the moment and we are so anxious.I hope you can help us find sponsors to help us with his medication.God bless you.
God Bless You.. I pray that Jesus, and the Saints will watch over everyone that’s trying to recover from a bad reaction to a Vaccine.
True
Carissa you were lucky. It had a real effect on you but believe me it could have been soooooooo much worse. I’m glad you recovered.
Hey 🤗
I just had a Brain MRI and no lesions.. but i had a sudden symmetrical leg weakness
And after 3 days my harms and mouth movements and breathing was bad were heavy all this happened in 1 week so fast!!
Now im probably in recovery but some symptoms persist....
Hi me too my hands is still numb
Nice, pleaseeeeee give some advises which can help in recovery from GBS, My father is in recovery phase
My name is Eniola Alex, i live in lagos, Nigeria.. I am 20 years old.. I was diagnosed with GBS - Acute flaccid paralysis secondary to viral encephaliti. It started 2016, i had a different symptom entirely.. I was at intensive care unit for 6 months and later was taken to the ward before my discharge where i was on the wheel chair and.. It been a journey of recovering since then. And i am yet to recover fully. Currently like 40 % . I am so worried and tired
I'm one year out from having GBS and I'm getting around but I still have numbness in my hands and feet and my back I seem to be getting a little better but I'm still unable to work.
I am also a survivor of Guillian Barre Syndrome. Unfortunately I will never completely recover and it's been almost 10 yrs since.
When did you get gbs? My 7 year old daughter is now recovering from gbs
So sad lady's.. I'm sorry.. I too am dealing with GBS. Doctors are going to try a second treatment on me I feel like waited too long to get treatment it started in July and just now getting treatment in November and in December
@@zuhena 2011
@@lauralewallen3701 I wish you the best of luck! I do hope it works for you. Living like I do is no picnic. I take 800 mg of Gabapentin 4 times a day just to help with the pain. When asked about my pain I always say "It's all the above"
I've had GBS complete loss of feeling head to toe but I was also in and out of the hospital and back to work in less than 3 weeks... it was nothing like what she is saying
I had this in the early 90s. They filtered out my plasma and gave me synthetic plasma and I got immediate results. I wonder if this is still an option?!
Where
I had GBS when I was 22 yrs old... Ryt now I m 29.. doing fine.. jst a small advice anyone recovering from GBS.,... Don't miss out doing your facial exercises as suggested by speech therapist... I being reckless, stopped following .. Nd still today I m not able to blow balloons as I used to do..😅.. good luck be brave... Don't give a shit how other ppl will be looking at you when u speak.. as your facial movements might be a little different..
Praise God!
This has now become an issue with the new Co-vid Jab By Astra Zeneca
hey guess what! Even more cases from the normal flu vax! Also, you have higher chances of gettign it from an actual virus, or something as simple as a stomach bug.
June 23 rd took the 1st covid shot. July 3 2021 I'm losing my balance I feel numb at my feet witch feel like plastic Now, my legs feel numb,. I'm bumping into things anything I do with my hands or fingers is very annoying bothersome.. My finger tips feel like razors at the the tips.. I'm dropping some things I feel as if I have to take heavy breaths or relax. I feel like things are crawling on me so I'm scratting. my legs feel wobbly even in a shower, walking around, standing up standing still. Im feeling more anxious lately or seeing my anxiety going higher. nerve pain in my arms especially at night when laying down or when my arms are reaching for something. My strength feels weak sometimes my toes in fingers feel hot or cold. I noticed my hands especially my right one wants to Shake. high blood pressure, I can be standing still and sweat really bad And my handwriting is getting shaky. And small headaches just once in a while
Still going on and it's now Oct. 24 2021
Update: Nov.7th 2021
I'm having to get a walker. diagnosis will come in a couple more days. November 10th 2021 diagnosed with Gillian Beret syndrome. By doc noland. I need to drive as little as possiable..or NOT at all.im having to quit working. House payment is going up. As it did last year. Now hitting on 745.oo a month. started off at 715.oo 😒
In rehabilitation now. Today is Nov. 19. Just got evaluated... Can't even walk down 1 step. Got very weak waiting for this rehabilitation to start.. 5 days after treatment just been laying around waiting to get Rehabilitation. Rehabilitation started on November 18th 2021 going home but need my wheelchair and Walker the toilet seat and a shower chair. Getting out of the hospital today December 2 2021 went into hospital on november 10th 2021 it is now December 15th 2021 I'm home I can barely walk I'm in a wheelchair I am seeing therapies and nurses neurologist doctor says another round of treatment for me I'm just hanging where I'm at next treatment could make me better let's hope pray for the best I am so so thankful this was never so far has gotten in my lungs. A long road of patience a long road of waiting truly trusting God.
So miracle ❤️
Carissa, on a friendly scale of one to ten, you are exactly twelve! I was so sad for sixteen years that you couldn't be friends on social media. No cheating on my friend requests. I wish father Steven Mitchell Simmons wasn't so serious on me.
Was this case of GBS caused by a flu shot?? On the CDC website, one of the rare potential side-effects of the influenza vaccine is GBS.
My dad has been diagnosed with this today. He had the flu jab for the first time just over two weeks ago and was else fit and healthy.
Hello, Carissa. Long time no talk. How are you missing me for many years? You’re the only joyous emotion of my whole existence. If you would’ve started liking me anymore, my life won’t be doomed. I hope Steve was a better father than John.
My dad still has GBS since i was around 9 and now am 16 and he still cant walk that well and he cant run at all, he can only sprint walk
But hes 63 already so i dont if thats why
MY GBS STARTED AFTER A RESPIRATORY INFECTION FOLLOWED BY A INTESTINAL INFLAMMATION AND INFECTION AND THEN A MUSCLE RELAXER MEDICATION WHICH IMMEDIATELY CAUSED NUMBNESS IN MY BODY AND THEN THE NUMBNESS STARTED TO LEAVE FOLLOWED BY A SEVERE NUEROPATHY AND LOSS OF REFLEXES WHICH WAS THERE FOR 2 MONTHS BUT I WAS NOT PARALYSED . THIS ALL HAPPENED DURING THE INTIAL CORONA LOCKDOWN AND SENIOR DOCTORS WERE NOT SEEING PATIENTS . MY GENERAL PHYSICIAN HAD RIGHTFULLY DIAGONISED THIS AS GBS AND ASKED ME TO TAKE COMPLETE REST AT HOME AND GAVE ME VITAMINS ONLY AND IN CASE I FIND DIFFICULT TO BREATHE THEN GET ADMITTED IN A HOSPITAL WHICH HAS MECHANICAL VENTILATOR . BUT MINE DIDN'T GO TO THAT STAGE AND RECOVERY STARTED .THEN SLOWLY THE SYMPTOMS BEGIN TO CALM DOWN AND STARTED TO RECOVER . STILL NOW I HAVE NOT YET FULLY RECOVERED BUT MY CONDITION IS AROUND 80 % BETTER THAN WHAT IT WAS IN THE BEGINING .
I was reading the headlines on Yahoo and ran across this:
Jenna Jameson Diagnosed with Guillain-Barré Syndrome After She 'Wasn't Able to Walk'
I then came to youtube and searched on Guillain-Barré and ran across this video.
Are most cases as extreme as yours (temporary full paralysis) ?
There is a man his name is henry budoi and he has this disease and he don't have anyone to help him he lives in Nairobi Kenya actually I don't know him I saw his video on UA-cam on ebru TV Kenya Story of my life, and he is asking for help please can someone help him he really need help thank you
I am also suffering with GBS
I am now recovering from this deis
me , too! Stay well
@@AlekaCraftaholic and me, all the best ...
Did you get a flu vaccine, an H1NI vaccine?
What caused this, genetic? Or is there a certain age of onset or unknown
genetic... Some peoples immune systems are unable to identify certain cells and it starts to attack it self. As the nerve fibers look similar to your immune system.
I used to have it at 5 but thabkfully i got cures
I wanna talk about it with someone plz. Anyone! Its just ....
I've been living with the damage GBS took a toll on my body, diagnosed in 2008.
I have weakness in my hand, feet and legs, extreme pain daily, arthritic! I was told by a very honest neurologist who was treating me when I became sick that I probably you came sick from childhood vaccines and it could take 40 to 50 years to mutate in one's body and that's exactly what happened to me so I've been living with this disease and the side effects it did on my nervous system and my my immune system is very weakened for 12 years now so I please with anyone and everyone please get away from these vaccines there was another H1N1 in 1976,000s work it with GPS and that is not newsworthy he's vaccines are poison and to tell me the CDC now went the third booster this is experimental they haven't even approved it please from one that suffers with GPS and all the others may the Lord bless all of us
Amazing Generosity, that's for sharing your terrible challenge!
Vaccines?
Yes my husband had it after COVID vac he is in rehab center hopefully recover soon
@@thepeace1975 Which Covid vaccine, i hope he will be better soon
The FDA has added a new warning that Johnson & Johnson COVID-19 vaccine can cause Guillain-Barré syndrome.