2004 I had acute labyrinthitis I had a Zimmer frame at 39 years old it took me a while to get back to normal I had brain surgery in 1977 for a bleed on the brain Greetings from Scotland 🇬🇧🇬🇧🇬🇧
I had this driving home from work. It was like a light switch and the world was spinning. Luckley pulled over and felt like i was going to pass out someone helped me get ambulance. Tried getting out my van collasped throwing up everywhere couldnt stand up. Blue lighted to hospital they thought id had stroke has i have high blood pressure. In from thursday till saturday end up on stroke ward after all tests then came back as this took me 5 weeks to get my balance back. It was horrible especially the thought of when will this end will i ever be normal again.
Hi there Have you recovery yet? Your story is identical to mine. Collapsed early one morning. Spinning out of control. Vomiting terribly. No speech unable to move my body .spent 7days in stroke unit .didnt improve at all .had the cat scans & mri .ruled out stroke but diagnosed with Vestibular neuritis & bppv also? That was 6 months now and I'm still walking with a crutch / I was bed bound for nearly 2 months an still unable to speak correctly . I'm still having accupuncture & physio for thr VN .trying to stay positive is hard as I guess you know ? Whilst my balance issues are still there ' not as bad as the first few months tho. How is your journey now if you dont mind me asking ? As I read up on this daily from here in uk I wish you well 🙏
@@Lovemy911 hi there, I'm uk aswell. I'm fine now it took around 5 weeks, till I felt normal again. I have heard peoples recovery differs from a couple of weeks to couple of months usually but as with yourself alot longer which is the worrying part when will it go but I just seemed to improve each day is horrible scary experience not know what's happening to you. I can't even say I did or used anything to help relieve symptoms it went naturally. Wish you all the best with your recovery
Happened to me also , I’m 3/4 days in , started day before myself and partner were going on holiday , I woke up to the room spinning at 100mph , I was then vomiting every time I tried to lay down in bed , got some anti sickness tabs and did BPPV exercises and the vertigo has eased massively, although I’m lightheaded and a bit dizzy still . Hopefully see the doctor soon for a diagnosis, I suffer with hearing loss and tinnitus on one side. Sounds like I have the same as you guys…Manchester UK
@@gerardregan6937Morning Its truly a terrible experience when it first hits you ' Literally thought I was dying 😮. Sounds like your going thru it too . I have read up on this massively in the last 6 months and I believe with tinnitus & loss of hearing they class it as labyrinthitus/ or menieres disease if I'm correct? If your in hospital I'm guessing theyll put you in touch with ENT specialist. And if needed MRI SCAN to rule out anything else.i had both CT & MRI on head an stomach ' went back for neck scan recently. As my neck has been in agony since.limited movement an the Vestibular migraine coming thru this area into my lower skull. Very cloudy & severe brain fog . is this the same for you too? I know it affects people differently and for varying lengths of time too.im 6months in now and still have zero balance and terrible vertigo. The medication does nothing unfortunately. Walking is still impossible without my wife & my crutches to help me .hence I only leave the house for appointments etc. We pray every day!🙏 Ps I'm in my mid 50s and also uk Midlands. I'd say push your drs/ demand a scan etc.snd try for answers as my experience is even the so called experts seem confused or divided on opinions with Bppv / Vestibular issues etc Hey I wish you well buddy 🙏
In 2022 viral infection on my 8th cranial nerve. Complete and profound deafness, SNHL on right side. Loss of VOR. Continual vertigo and oscillopsis. Did two weeks high dose Prednisone. Did 2 months vestibular pt. Did 4 months vision therapy. History of 6 concussions prior. Looking like labyrinthectomy and nerve section for me next. It is now 8 months post acute onset.
I woke up on Mother’s Day 2023 with vertigo, I did not have any ear ache previously,went to my doctor & was prescribed meds & nausea but it’s may 23, & I’m still dizzy not as bad but still not over what ever this is? Called health dept to see if any other cases were reported but have never gotten a call back. I do no of 8 other cases.2 was hospitalized. How do I find out any more info? Charleston wv
@@northwestfunctionalneurolo5250hi , i had vertigo for same secons, not are loss hearing, but i feeling sounds and ringong in my ears, my test audicion is clear. Whae sinyomps did you have? Thankyou, and excuse me for my inglhis.
2004 I had acute labyrinthitis I had a Zimmer frame at 39 years old it took me a while to get back to normal I had brain surgery in 1977 for a bleed on the brain Greetings from Scotland 🇬🇧🇬🇧🇬🇧
I had this driving home from work. It was like a light switch and the world was spinning. Luckley pulled over and felt like i was going to pass out someone helped me get ambulance. Tried getting out my van collasped throwing up everywhere couldnt stand up. Blue lighted to hospital they thought id had stroke has i have high blood pressure. In from thursday till saturday end up on stroke ward after all tests then came back as this took me 5 weeks to get my balance back. It was horrible especially the thought of when will this end will i ever be normal again.
Hi there
Have you recovery yet? Your story is identical to mine.
Collapsed early one morning. Spinning out of control. Vomiting terribly. No speech unable to move my body .spent 7days in stroke unit .didnt improve at all .had the cat scans & mri .ruled out stroke but diagnosed with Vestibular neuritis & bppv also?
That was 6 months now and I'm still walking with a crutch / I was bed bound for nearly 2 months an still unable to speak correctly . I'm still having accupuncture & physio for thr VN .trying to stay positive is hard as I guess you know ? Whilst my balance issues are still there ' not as bad as the first few months tho. How is your journey now if you dont mind me asking ?
As I read up on this daily from here in uk
I wish you well
🙏
@@Lovemy911 hi there, I'm uk aswell. I'm fine now it took around 5 weeks, till I felt normal again. I have heard peoples recovery differs from a couple of weeks to couple of months usually but as with yourself alot longer which is the worrying part when will it go but I just seemed to improve each day is horrible scary experience not know what's happening to you. I can't even say I did or used anything to help relieve symptoms it went naturally. Wish you all the best with your recovery
Happened to me also , I’m 3/4 days in , started day before myself and partner were going on holiday , I woke up to the room spinning at 100mph , I was then vomiting every time I tried to lay down in bed , got some anti sickness tabs and did BPPV exercises and the vertigo has eased massively, although I’m lightheaded and a bit dizzy still . Hopefully see the doctor soon for a diagnosis, I suffer with hearing loss and tinnitus on one side. Sounds like I have the same as you guys…Manchester UK
@@philipbayliss879Thanks for your reply.
Glad your recovery went well
As you said it's very very hard at first trying to cope etc
Regards
D
@@gerardregan6937Morning
Its truly a terrible experience when it first hits you '
Literally thought I was dying 😮. Sounds like your going thru it too . I have read up on this massively in the last 6 months and I believe with tinnitus & loss of hearing they class it as labyrinthitus/ or menieres disease if I'm correct?
If your in hospital I'm guessing theyll put you in touch with ENT specialist. And if needed MRI SCAN to rule out anything else.i had both CT & MRI on head an stomach ' went back for neck scan recently.
As my neck has been in agony since.limited movement an the Vestibular migraine coming thru this area into my lower skull. Very cloudy & severe brain fog . is this the same for you too?
I know it affects people differently and for varying lengths of time too.im 6months in now and still have zero balance and terrible vertigo. The medication does nothing unfortunately. Walking is still impossible without my wife & my crutches to help me .hence I only leave the house for appointments etc.
We pray every day!🙏
Ps I'm in my mid 50s and also uk Midlands.
I'd say push your drs/ demand a scan etc.snd try for answers as my experience is even the so called experts seem confused or divided on opinions with Bppv / Vestibular issues etc
Hey I wish you well buddy
🙏
In 2022 viral infection on my 8th cranial nerve. Complete and profound deafness, SNHL on right side. Loss of VOR. Continual vertigo and oscillopsis. Did two weeks high dose Prednisone. Did 2 months vestibular pt. Did 4 months vision therapy. History of 6 concussions prior. Looking like labyrinthectomy and nerve section for me next. It is now 8 months post acute onset.
How are you doing now?
What can Doctors do besides cut, burn, or poison?
I woke up on Mother’s Day 2023 with vertigo, I did not have any ear ache previously,went to my doctor & was prescribed meds & nausea but it’s may 23, & I’m still dizzy not as bad but still not over what ever this is? Called health dept to see if any other cases were reported but have never gotten a call back. I do no of 8 other cases.2 was hospitalized. How do I find out any more info? Charleston wv
Oh & I do use a C- Pap machine & oxygen but only at night.
What is the treatment exactly? VRT?
Vestibular therapy
It took me 20 months of rehab and daily balance exercises to finally recover about 80%.
@@rolltide9547hi , did you have timitus or hypercusis? Hoaw you doing now? I hope you are ok
@@rolltide9547how are you doing? Did you have tinitus or hyperacusis?
If I stop my daily balance exercises my vertigo returns.
Vestibular therapy
How did you know at first that it was Labrynthitis and not Meniere's Disease?
The symptom presentation is significantly different in terms of onset, ear pressure and hearing loss.
@@northwestfunctionalneurolo5250hi , i had vertigo for same secons, not are loss hearing, but i feeling sounds and ringong in my ears, my test audicion is clear. Whae sinyomps did you have? Thankyou, and excuse me for my inglhis.