What do my titers mean?! And why you shouldn't see an infectious disease doctor: Part 1
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- Опубліковано 29 сер 2024
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Link 1: Galaxy’s handy dandy sheet on test recommendations
www.galaxydx.c...
Link 2: Frontal and stealth attack strategies in microbial pathogenesis from the journal Nature www.csus.edu/i...
DONATE HERE to support the Bartonella Project at North Carolina State University College of Veterinary Medicine via the Bartonella/Vector Borne Research Fund: securelb.imodu...
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High-quality, open access journal articles about Bartonellosis and helpful links:
1.Cat-Scratch Disease-Associated Arthropathy: onlinelibrary....
2. Musculoskeletal Manifestations of Cat Scratch Disease: academic.oup.c...
3.Bartonella spp. Bacteremia and Rheumatic Symptoms in Pateints from Lyme Disease-endemic Region: www.ncbi.nlm.n...
4. PCR Amplification of Bartonella Koehlerae from Human Blood and Enrichments Cultures: parasitesandve...
5. Rheumatological Presentation of Bartonella Koehlerae and Bartonella Henselae Bacteremias: A Case Report: www.ncbi.nlm.n...
6. Bartonella Species in Blood of Immunocompetent Persons with Animal and Arthropod Contact: www.ncbi.nlm.n...
7. Bartonella ssp. Bacteremia in Patients with Neurological and Neurocognitive Dysfunction: jcm.asm.org/co...
8. Neurological Manifestations of Bartonollosis in Immunocompetent Patients: A Compositeof Reports from 2005-2012: www.lymepa.org/...
9. Cat-scratch Disease: An Unusual Cause of Combative Behavior: www.sciencedir...
10. Hallucinations, Sensory Neuropathy, and Peripheral Visual Deficits in a Young Woman Infected with Bartonella Koehlerae: jcm.asm.org/co...
11. Bartonella and Intraocular Inflammation: A Series of Case and Review of Literature: www.ncbi.nlm.n...
12. www.galaxydx.c...
13. Bartonellosis: One health perspectives for an emerging infectious disease: academic.oup.c...
14. Bartonellosis, One Health, and all creatures great and small: onlinelibrary....
Understanding Bartonella Webinar:
• Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-...
Best diagnostic testing:
www.galaxydx.com/
JOIN my Bartonella support group on Facebook called Breaking Down Bartonella:
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Bartonellosis,
Chronic bartonella
, Cat scratch fever,
Cat scratch disease,
What do my titers mean
, Bartonella symptoms,
IFA
, ePCR,
Bartonella titers
, Bartonella tests
, Galaxy bartonella test,
Bartonella henselae
, Bartonella quintana
, Mozayeni, Breitschwerdt
, Galaxy diagnostics,
Mast cell activation,
LLMD
, Jake Picker
, Bartonella Babe,
Bartonella and mast cell
, Mysterious illness
, Infectious disease,
Lyme disease,
Lyme
, One health
, Stealth pathogen
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→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Keep it up. This is one of the most intelligent vlogs I watch. Lots of information.
Thank you Paul! Always appreciate your comments :) because who doesn't like praise?! lol
Clearly BB's videos are providing a HUGE public service! Sifting through dry scientific research and publications is no small feat, not to mention explaining the jargon that is essentially a 'foreign' language to most of us! While it's a lot to take in, having the video's AND the transcripts, gives patients power to understand, question, and have some feeling of control over an insidious disease. Love the humor AND the wallpaper is FABULOUS!!!
Your wallpaper is amazing!😍 And your videos are so informative. Our family is very, very new to this bartonellosis world and I've gleaned so much information just from a few of your videos. So much so that I was able to go to our daughter's first LLMD and not be completely overwhelmed by terminology, acronyms and testing options.
Please keep sharing, it's much appreciated!
Melissa Lee aww thank you so much that warms my ice cold heart lol. And thank you for your good taste in wallpaper ;) this illness has been so hard and when I feel well enough my favorite thing is to work on these videos so that one day bartonellosis will be recognized by more doctors
Where have u been I was concerned cause last time u were off the antibiotics! Great to have u back Thanks
Can you talk about your day to day treatment approach? Great job! Such a smart person!
Nicole R Thank you so much for watching! I haven’t done a video on treatment for many reasons but I can tell you the treatment that I am working up to. This is not medical advice! I eventually want to work up to clarithromycin and rifampin and then after several months I will switch the rifampin to rifabutin and slowly titrate that up. Have you added yourself to the Beating Bartonella Facebook group? People there have recommendations on treatment. Aside from antibiotics, your doctor needs to account for issues like pain management, hormones, probiotics, etc.
Bartonella Babe I got rid of Facebook like 6 years ago so i’m just learning via UA-cam :) Thanks for the info
Exactly what happened to me. Negative triple draw. 1:64 titers for both. All neurological symptoms for me. Always makes ya wonder if your doing the right thing treating bartonella
Yes exactly! That's why I made this video. To clear up confusion and hopefully guide people. Most people either have titers or a positive ePCR. Not both. Galaxy is still working out why this happens with human bartonellosis
Love your videos and thanks for adding a little lite comedy to this very serious issue. Thank you for explaining how complex Bartonella is. I’m sure it’s not easy researching all of this. Keep it up!!
Bear W. Yes I put in a lot of work for these videos so thank you for your kind words!
Great video, thank you! 💕
Tara Oehlmann thanks for watching! ❤️
Here's an Infectious Disease doc who had Bartonella, figured it out, cured himself and now helping others - including me. Dr. Steven Phillips who wrote the wonderful book CHRONIC.
So glad to hear that he is helping you! He treats these vector borne illnesses like bartonellosis and borreliosis but as far as I am aware he is a doctor of internal medicine and not infectious disease. I’ve never spoken to him but he seems like a very compassionate doctor and he treats quite a few people in our Facebook support group 🙂
Rip Jake ❤😢
OK I am in Montreal, Quebec, Canada when I see all the titers you list seems our PCR use a different # scheme 1/160 1/320 1/640 1/1280 as far as you know does this mean we could be using a different way of reading it?
So those numbers are titers for serological tests (IFA perhaps EIA) not PCR. Titers cannot be compared across different serological tests. So if the test that you are familiar with uses the numbers you listed above, you can't say that 1/320 is similar to our 1:256. Each test has it's own cut-off values and it's own definitions of high and low titers. Hope this was helpful :)
Hi, how do you feel about testing though the Igenex lab instead of Galaxy?
Old video. But if you’re still around, how much less reliable is IgeneX?
Do you know if it's possible to get enlarged lymph nodes from Bartonella henselae after being chronically infected for years? For years I've had neurological symptoms, headaches, and fatigue to varying degrees, but I didn't get the cat-scratch lymph node symptom (along with a new symptom of sore muscles while lying down) until just a few months ago. This past summer, I did get bitten by a wild cat, so my dad (a doctor) told me that the new lymph node symptom was caused by Bartonella. I just wonder if I could've actually had the infection for longer, and if it's only now manifesting with a readily identifiable symptom.
I know that swollen lymph nodes can last a long time in acutely infected people. I am not sure if you can develop swollen lymph nodes after having the infection for a long time. It's also possible you got reinfected with a different species (or strain). There is a lot more that we don't know about Bartonella than we do. If I were you, I would find a Bartonellosis literate practioner and order testing from Galaxy Diagnostics
You shouldn't see any doctor besides a Lyme specialist doc, every other doctor will make you believe your symptoms are psychosomatic and maybe need an antidepressant.
Afura33 You’re right that a lot of doctors do tell patients that they are psychosomatic and that is very disheartening. However, I have a great allergist/immunologist who has been an invaluable member of my team and people who are having severe ocular symptoms from bartonellosis like uveitis or neuroretinitis should see an ophthalmologist so that they can check for damage with a slit lamp and help prevent further damage. So we can’t count out all other doctors!
ID Docs, take note 👀
Great videos, keep it up 👍 I wish I had your brain, unfortunately I have two more other co-infections and had it for 16 years... None the less, I am being treated now.
Gran Autismo thanks for watching! I’m glad to hear you’re in treatment. Good luck! ❤️
Do you have bartonella only, or do you have lyme too?
“Just” Bartonella