Dating & Cystic Fibrosis | What it Was Like for Us!

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  • Опубліковано 26 гру 2024

КОМЕНТАРІ • 147

  • @thefreylife
    @thefreylife  3 роки тому +25

    You all have the best questions! So we answered some :)

    • @abbykuusisto4641
      @abbykuusisto4641 3 роки тому +1

      Loved It!

    • @wt0416
      @wt0416 3 роки тому +1

      When do u know its appropriate to vlog or not cuz.. life happens and some inturruptions happan
      Ham and cheese roll up... my go to.... i thought it was just me but i know that im not the only one who like food that people hate

    • @jessnapier4149
      @jessnapier4149 3 роки тому

      Are you taking us mini vacation this please let me know

    • @simplycuriosly9263
      @simplycuriosly9263 3 роки тому

      When I was on chemo I practically lived on a flour tortilla, a slice of American cheese microwaved for 20 seconds. Still my go to comfort food! I’d wash it down with a glass of half cranberry juice half water.

    • @JeriAnnHenson
      @JeriAnnHenson 3 роки тому

      Ok so I’m ALWAYS hungry but comfort food is cream cheese and jelly on a roll like my mom would make is!

  • @davegoodridge8352
    @davegoodridge8352 3 роки тому +14

    Fun video thank you. I just brought home my wife’s aches. Sitting here watching this I’m drinking iced tea. Honestly I haven’t eat much past few days. I love you guys relive memories. After 42 years with my wife, I’ve got a few. I don’t see much to the future right now. I know the sun will shine again, just not right now. I know my wife is with the lord and one day I’ll see her again. God will make it all good someday, somehow. Today it’s iced tea in an empty house, but one day a feast in paradise.

    • @karendeakin9628
      @karendeakin9628 3 роки тому +3

      I lost my mum not long ago I understand how you feel may I send you good wishes at this time

    • @mjoy4382
      @mjoy4382 3 роки тому

      Well said, fellow griever. Thanks for sharing the hope we have!

    • @susiewashburn1821
      @susiewashburn1821 3 роки тому +1

      So sorry your wife passed away. Prayers for you and your family at this sad time.

    • @43greengirl
      @43greengirl 3 роки тому

      Bless you I am so sorry for your loss god is always there for us when we need him. Prayers
      For you l. I love iced tea take care x

  • @JeriAnnHenson
    @JeriAnnHenson 3 роки тому +2

    So grateful Peter picked the UA-cam WORK side of the day. People sometimes have no idea the work that goes into it. Thank you both!

  • @sarahlynn9816
    @sarahlynn9816 3 роки тому +1

    You’re amazing Mary. Taking and doing all of your medications. I’m 33 with Cystic Fibrosis. Never hospitalized for lung involvement. Stayed 3 days for a small bowel obstruction. I don’t do any of my treatments and I haven’t been to see my Pulmonologist at the U of I. I was so sick of taking 25 meds a day and going to clinic every 3/6 months.

  • @stephaniesmith598
    @stephaniesmith598 3 роки тому +1

    I'm a new subscriber. I feel blessed to find your channel. I'm disabled I have cerebral palsy I can relate to medical appointments exetera but that doesn't stop me from living . You seem like you have a great attitude

  • @rae1957tn
    @rae1957tn 3 роки тому +6

    I love seeing your families. Peter’s mom is a very good cook and Mary’s mom is so talented and both are very loving. And Mary’s dad loves his girls.

  • @susanharris1285
    @susanharris1285 3 роки тому +3

    I really enjoy being a part of your journey 💕

  • @HopeAndSunshine
    @HopeAndSunshine 3 роки тому +5

    I love the story of how your relationship started!

  • @jamieirwin2498
    @jamieirwin2498 3 роки тому +3

    I am impressed with all the coughing that Mary used to do that you didn't have big girl accidents like I often do when I had someone to a coughing fit with my stage 4 lung cancer

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 3 роки тому +1

    Your friendship is a real blessing to us xxxxxxxxxxxxxx

  • @Judymontel
    @Judymontel 3 роки тому

    Thank you! What a sweet, Q&A! About the other 23 hours and 45 minutes - well, I know a lot MORE than 15 minutes goes into putting up a 15 minute video!! Thank you for your faithful work getting them to us viewers!

  • @phyllisaleshire4460
    @phyllisaleshire4460 3 роки тому

    Happy birthday, Peter

  • @cameleoncom
    @cameleoncom 3 роки тому +1

    I would definitely also take the bean burritos :-) sounds amazing!

  • @SchizophrenicCathy
    @SchizophrenicCathy 3 роки тому +11

    My go-to food for no-good days is macaroni and cheese.

  • @smwbball50
    @smwbball50 3 роки тому

    My go-to foods when I'm not feeling great are pasta, toast, grilled cheese, or gatorade (which seems to cure all ills for me, including headaches, nausea, body aches, it works miracles!)

  • @virginiagrenier8572
    @virginiagrenier8572 3 роки тому +2

    One of my "go to" foods is peaches and cottage cheese, Chinese noodles, or oyster/soup crackers

  • @PinkHawk191
    @PinkHawk191 3 роки тому

    I have been so grateful for Zoom. I have been able to do classes with my Rabbinical staff. We have been able to maintain our close relationships with everyone at my synagogue. I have been able to meet new neighbors on Zoom since we moved during the pandemic. My day program for adults with Autism is on Zoom. We moved closer to my hospital since my health has worsened. My medical team during the pandemic have been amazing! I am so grateful for my support team from my day program for adults with Autism and my medical team who have both been amazing during the pandemic.

  • @suzykauffman1831
    @suzykauffman1831 3 роки тому

    Ginger Ale is my go to when I don't feel well...whether it is a stomach bug or cold or flu or after surgery, etc.

  • @maddie4712
    @maddie4712 3 роки тому +1

    Mary, how do you spend time with Jesus on the daily...especially with Chronic Illness? Would love to see your routine! I may have missed that video if there is one..so sorry if you've done a video on your Jesus Bible time. Thank you! 💜 If not, would love to see it. I love your spirit and both of your hearts for the Lord! Thank you for all you both do!

  • @chrisswinerton9603
    @chrisswinerton9603 3 роки тому

    No no no the INTENSE business discussions especially if there is some yelling on Peter or Mary's part. Thats made for UA-cam gold. Lol you guys are amazing. ❤️😀🙏

  • @PinkHawk191
    @PinkHawk191 3 роки тому

    When I am not feeling well. My Bubby’s matzah ball soup. It’s my favorite comfort food. I miss my Bubby. She passed away in February. I still have days where I am sad and I miss her.

  • @MsBrat1967
    @MsBrat1967 3 роки тому

    Thank you for sharing your story.

  • @AdrienneZazulak
    @AdrienneZazulak 3 роки тому

    my go to when I'm not feeling great but also when I'm in a rush- yogurt, apple, walnuts, and honeybars!

  • @irishpixierose
    @irishpixierose 3 роки тому +2

    Go to food when I'm not up to doing much or not feeling well... watermelon, cherries, saltine crackers, toast or maybe a toasted bagel

  • @janetmarceau2821
    @janetmarceau2821 3 роки тому

    Grilled cheese sandwich with tomato soup! That has been my go to whenever I am sick with anything. I loved it the first time you guys were having that for a meal!! Love from Florida!

  • @Missyfoo81
    @Missyfoo81 3 роки тому +2

    If I'm not feeling well or get overwhelmed with chosing food I make oatmeal. It a comfort food to me.

    • @43greengirl
      @43greengirl 3 роки тому

      I,m the same it’s so filling and I really enjoy it

  • @mytealdippedlife9702
    @mytealdippedlife9702 3 роки тому +1

    HARRY is the surprise blessing 😂😂😂😂 and PETER’S love of cats 😜😜

  • @emilyboller7588
    @emilyboller7588 3 роки тому

    I eat vegetable beef soup when I'm not feeling great. We either buy it from a local restaurant or I make and can big batches to keep on hand for lunches or whenever I'm not feeling great.

  • @jaimebh30
    @jaimebh30 3 роки тому

    I love pasta with butter and cheese, mac and cheese, oatmeal with fruit and peanut butter, or fried rice. I love rice with cream of mushroom soup and ground beef with extra pepper a side of brocolli. Comforting and tasty.

  • @melissakoon2097
    @melissakoon2097 3 роки тому

    Soft shell heat over burner put peanut butter on it and roll it up so good for something quick

  • @sharongasparaitis3392
    @sharongasparaitis3392 3 роки тому

    My go to is ritz crackers with peanut butter and sometimes grape jelly

  • @kellyfruin4418
    @kellyfruin4418 3 роки тому

    When will your parents ( Mary) come visit? I love your blogs with them in it! I loved meeting Peter’s mom last week!

  • @amandaanderson8254
    @amandaanderson8254 3 роки тому

    Some of my go to foods for low appetite days are turkey avocado blt on a toasted tortilla, avocado toast, pretzels, California sushi bowl, and carrots and broccoli with ranch. For sick days usually soup broccoli and cheese soup or veggie soup so good and warm and like a hug.

  • @jasongates-
    @jasongates- 3 роки тому

    "Just be." Interesting line from Mary.

  • @jduggan4129
    @jduggan4129 3 роки тому

    Glad you’re doing so well. Love you guys. Joanna California

  • @hopeleanna6292
    @hopeleanna6292 3 роки тому

    My go to food is mashed potatoes and ground turkey browned with onion and topped with some cheese! My version of a mashed potato bowl!

  • @tammiw4686
    @tammiw4686 3 роки тому

    Yes it is very hard to shut off work mode when you work from home. It is definately not a 9 to 5 job.

  • @elainehardy3502
    @elainehardy3502 3 роки тому

    Mary, what is your facial routine ? When you ever wear makeup, what do you use ? You have pretty skin.

  • @jessnapier4149
    @jessnapier4149 3 роки тому

    Are you taking us this week on Mini vacation please let me know please asap

  • @disneyfunatic3179
    @disneyfunatic3179 3 роки тому +2

    Mary, i know a mask is a big part of your life....what I want to know is if the mask become an every day part of your life when you go out and about? our mask mandate was just lifted in our state but I am a person who is immune compromised medically and was just curious about your thought on this!

  • @petaks01
    @petaks01 3 роки тому

    Safe food for me is instant noodles with a handful of frozen mixed veggies and reduced amount of water while cooking. Fast, easy and doesn't really hurt my stomach on those days.

  • @troopertaylor498
    @troopertaylor498 3 роки тому +1

    Ensure is my go to recently simply because I have ZERO appetite, have hyperadrenergic POTS so it’s hard for me to stand and make food and the ensure has protein and vitamins and minerals which I desperately need. Sad but true.

    • @ThePollydoodles
      @ThePollydoodles 3 роки тому +1

      hugs to you .. and well done for being adaptable with what you need to do 😊

    • @troopertaylor498
      @troopertaylor498 3 роки тому

      @@ThePollydoodles It’s basically survival mode at this point. 🤷🏼‍♀️

    • @ThePollydoodles
      @ThePollydoodles 3 роки тому +1

      @@troopertaylor498 I have cystic fibrosis like Mary and know the hard times too ! I'm doing well on Kaftrio and reading the comments around not being able to cook and eat definitely remind me of myself at times.. keep pushing through 😊

    • @troopertaylor498
      @troopertaylor498 3 роки тому +1

      @@ThePollydoodles That’s all I can do is push through. I’m so happy that you guys (CF’ers) finally have some viable treatment options. A beautiful young lady from my small hometown had a lung transplant in 2017 but unfortunately died a year later due to rejection. She was doing so well, until she wasn’t. She actually had her transplant at Duke.

    • @ThePollydoodles
      @ThePollydoodles 3 роки тому +1

      @@troopertaylor498 Thankyou, its been great for alot of us 😊 aw bless her, it can take over very quickly when it decides to..! Have a good rest of your day!
      Polly
      x

  • @jonki1980
    @jonki1980 3 роки тому +2

    Fantastic Q+A
    Recap ❓➕🅰️

  • @stephaniesmith598
    @stephaniesmith598 3 роки тому

    I go to is a quick nutrition drink and I'm not feeling well or don't feel like eating

  • @ellen6646
    @ellen6646 3 роки тому +1

    My go to food when I don’t feel great is ALWAYS Toast with peanut butter.

  • @maryreynolds5310
    @maryreynolds5310 3 роки тому

    My go to food..guacamole on toast. You need to do more Q&A’S!
    Omgoodness...PETER, seriously?? I feel like the lowest of low at this moment when you spoke of your podcast! I didn’t think you were still doing it. In the beginning I watched then suddenly I heard nothing more of it, didn’t pop up. I thought maybe you ..I didn’t know what to think. I just kinda forgot about it. I feel horrible! Well I’m rejoining your podcast as of right now! Please forgive me. I was one of your first viewers I think, well me and many more. I feel bad.
    I love ya both and your always in my thoughts and prayers xo

  • @jonki1980
    @jonki1980 3 роки тому +2

    Everyone really should follow Mary and Peter on Instagram. Fabulous updates

  • @BNHAalltheway
    @BNHAalltheway 3 роки тому

    You guys are great love hearing about when You guys met

  • @kimberleytramper8966
    @kimberleytramper8966 3 роки тому +1

    Mashed potatoes or pudding, or popsicle or ice cream when I’m not feeling good. Something easy to slide down.

  • @ChronicallyMichelle1995
    @ChronicallyMichelle1995 3 роки тому

    Do you guys have a hello fresh or some sort of meal kit commercial happening? I was watching TLC last night, I’m in Canada so that’s the only channel we get American commercials. But I swear I saw a commercial starting then it got skipped over but it was Peter clear as day Peter in your kitchen saying “Mary is” then it got skipped over. I live with my mom she doesn’t watch you guys with me but sees me watching and I go “mom was that Peter?” And she though so too

  • @Oceanadventures_canada
    @Oceanadventures_canada 3 роки тому

    My go to food when I'm not feeling well is a standard dill pickle. Ginger ale ( flat) will be the drink. I also love pickle Ginger.

  • @celtic_cait_littlerose_802
    @celtic_cait_littlerose_802 3 роки тому

    Garlic bread grilled cheese with muenster or cheddar cheese

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 3 роки тому

    My go to food is always my Oma’s boiled fowl in a white chicken sauce , served with floury potatoes to mash into the sauce. So yummy!

  • @carolynlong9148
    @carolynlong9148 3 роки тому

    Peter I think you're great about going CF with Mary. Love and support is the best thing. My go to foods are snack foods such as crackers or trail mix or cereal. Sometimes when I'm really not feeling well peanut butter and jelly. Thanks for sharing your day god bless.

  • @jtrujillo1985
    @jtrujillo1985 3 роки тому

    Ok this was crazy to me, i "just" watched 1 of yalls old videos last night & thought it was cute how yall used to flirt without words in your old videos 🥰 i noticed once before awhile back but then noticed it again in last nights vid.

  • @troxie6
    @troxie6 3 роки тому

    Milk toast. My dad used to make this for us when we were sick. Toasted butter bread with sugar and warm milk over it🙂

  • @shannone1471
    @shannone1471 3 роки тому

    My go to when I dont feel well is Pho with extra veggies

  • @marinakiell1069
    @marinakiell1069 3 роки тому

    With the move ... Peter started making his own Kombucha

  • @lynnkihara2323
    @lynnkihara2323 3 роки тому

    Miso soup is the Asian chicken soup for colds and my family's go to for all ailments.

  • @contrapasso
    @contrapasso 3 роки тому

    My go to food is a cheeseburger (I recommend BurgerFi where y’all live!) or pb&j

  • @lisanorton7749
    @lisanorton7749 3 роки тому

    My go to is peanut butter with honey and crushed bbq potato chips on the softest white bread, not artisan bread, just good old fashioned Butternut or Wonder Bread! That or a good old fashioned McDonald’s hamburger.

  • @kanditallant6740
    @kanditallant6740 3 роки тому

    Our go to food is old fashioned nachos. Tortilla chips, sharp cheddar cheese & jalapeño’s.

  • @sallymay24
    @sallymay24 3 роки тому

    There’s a ravioli soup in a can that I like to make but instead of having the large raviolis I blitz it so it makes a meat and ravioli soup add cheese and it’s so yummy

  • @ashleyofnaath
    @ashleyofnaath 3 роки тому +2

    Having POTS, sodium intake is critical. So my favorite foods when I don't feel well are scrambled eggs w/sriracha and popcorn (separately of course) because in both cases you can add a shedload of salt without ruining the taste of the food.

  • @debbiewilliams8727
    @debbiewilliams8727 3 роки тому

    Love you guys so much! Love your honesty and compassion! My go to foods when I feel sick or JUST DON’T WANT TO EAT...mashed, diced and fried, diced and just eat with butter and salt potatoes. Baked potatoes too! Cucumbers. Cutie oranges. Tomatoes.
    Flat bread. More stuff but I have to go.
    Grandma D. xoxo

  • @carolbonnell6675
    @carolbonnell6675 3 роки тому

    Sandwich or some combos. Today I had a bologna jalapeno mustard sweet pickle sandwich.

  • @Kcricket82
    @Kcricket82 3 роки тому

    haha little fast, did you speed it up or am i just seeing things?

  • @eej1983able
    @eej1983able 3 роки тому

    I consider y'all friends 🥰

  • @carolkelly1136
    @carolkelly1136 3 роки тому

    Peanut butter & jelly, preferably strawberry preserves

  • @Orangezebra86
    @Orangezebra86 3 роки тому

    My go to food is cheaters pho broth it’s beef broth with fish sauce, Chinese five spice and Sriracha

  • @dianefitzpatrick4250
    @dianefitzpatrick4250 3 роки тому

    My go to food when not wanting to eat Is usually toast and a hot soup like chicken noodle or potato.

  • @carolfink3991
    @carolfink3991 3 роки тому

    MY GO TO FOOD WHEN I AM SICK IS ICE CREAM OR LIME JELLO OR WATERMELON WITH SALT

  • @joannecottam2387
    @joannecottam2387 3 роки тому

    Love the blessings in life.
    Here is a question what is the difference between a pepper with 4 bumps and 3 bumps? Which color is likely to have a baby inside?
    My go to food when I don't feel good liquid jello, mashed potatoes, apple sauce or my husband's eggs!!

    • @Jaspurrsmum
      @Jaspurrsmum 3 роки тому

      Males have 3 bumps. Females have 4. Female peppers are full of seeds but are sweeter and better for eating raw. Males are better for cooking. From what I read it might be a myth. Dunno

    • @troopertaylor498
      @troopertaylor498 3 роки тому

      I have found that reds usually have babies inside them. 🤷🏼‍♀️

  • @faithandautism-myjourney264
    @faithandautism-myjourney264 3 роки тому

    My go to is 2 minute noodles or macaroni and cheese.

  • @constancecashmorris1927
    @constancecashmorris1927 3 роки тому +1

    Kate and the queen

  • @sasham6486
    @sasham6486 3 роки тому

    I love your videos

  • @jesseslifeisdolls
    @jesseslifeisdolls 3 роки тому

    Homemade lunchables are my go to and cup noodles are great

  • @DemonxHunterxFan
    @DemonxHunterxFan 3 роки тому +1

    my go-to food is ramen with some frozen veggies or rice and beans usually. Or just a whole bag of chips and salsa LOL

  • @robinblack7501
    @robinblack7501 3 роки тому

    how many times a week is the trucks there with med supplies , i so dread unloading most of the time but yet so very thankful but it is a job and a half and then all the trash lol i know my garabage men cuss me hahaha

  • @43greengirl
    @43greengirl 3 роки тому

    Go to food if I am not feeling well
    Is scrambled eggs and go to food if I’m
    Feeling uninspired or lazy is a large pizza from my local takeaway

  • @hollyosgerby1901
    @hollyosgerby1901 3 роки тому

    Enjoyed your video Mary and Peter. If I am unwell and able to eat....probably tea & toast. If I am well but don’t want to cook (LOL)....probably Chinese takeout or Subway and a can of tomato soup or cream of mushroom soup. Thanks for sharing! 🤗❤️❤️🙏🏼😘🐕🐱

  • @constancecashmorris1927
    @constancecashmorris1927 3 роки тому

    Do you two live together

  • @abbiekay27
    @abbiekay27 3 роки тому

    Vanilla shake from Sonic hands down!

  • @sarahseedtostem
    @sarahseedtostem 3 роки тому

    Baked potato is my comfort food and eggs with corned beef hash. Basically potatoes are my comfort food 🤣

  • @sasham6486
    @sasham6486 3 роки тому

    Omg i had a bean burrito for lunch today

  • @lindsay1408
    @lindsay1408 3 роки тому

    My go to food is Tv Dinners.

  • @Fighting.Butterflies
    @Fighting.Butterflies 3 роки тому +1

    My go to foods when I don’t feel good are ramen, chips and cheese, or McDonalds Chicken McNuggets. Lol.

  • @nathantatosian280
    @nathantatosian280 3 роки тому +1

    Hi Mary and peter ❤️😎

  • @dottieburton5501
    @dottieburton5501 3 роки тому

    my dad use to always eat crackers in milk like cereal and I also love it like that

  • @elainehardy3502
    @elainehardy3502 3 роки тому

    If I don't feel well, icecream and soups.

  • @danatillack9178
    @danatillack9178 3 роки тому

    Grilled cheese sandwich and tomato soup. Or chicken noodle soup.

  • @joycechivis6317
    @joycechivis6317 3 роки тому

    My go to foods are potato chips

  • @chadbivona3572
    @chadbivona3572 3 роки тому

    Cheese pizza is my go to food

  • @jademccardle9074
    @jademccardle9074 3 роки тому +1

    Hi how are yous xx

  • @elliethompson7934
    @elliethompson7934 3 роки тому

    My go to food is teriyaki rice

  • @tjae6462
    @tjae6462 3 роки тому

    Go to food when I'm not feeling well... Grilled Cheese (swiss cheese and honey wheat bread grilled with real dairy butter).

  • @shannonrosewiley
    @shannonrosewiley 3 роки тому

    Pepper jack and five blend mexico cheesey corn

  • @alyssawssinging4039
    @alyssawssinging4039 3 роки тому

    Hey

  • @hannahkeller2721
    @hannahkeller2721 3 роки тому

    I eat peanut butter on whole grain toast when I'm not feeling well

  • @geannabell4218
    @geannabell4218 3 роки тому

    Your frozen enchiladas that you make ahead of time and pull out of the freezer and heat them up in the oven!