This is MORE VALUABLE than LUNG FUNCTION...

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  • Опубліковано 13 січ 2025

КОМЕНТАРІ • 118

  • @anovemberstar
    @anovemberstar Рік тому +14

    i check in every now and again, and gosh i remember the 'old days' before trikecta - you moved states to where you are because you were being evaluated for a double (lung / liver) transplant - and 4 years later you're the mum of 2 kids who didnt need the transplant, and got through covid 19 with CF! its truly just so awesome to see

    • @michaezell4607
      @michaezell4607 Рік тому +1

      Covid was definitely rough for me and I came down with it in February of this year but fortunately having the Covid vaccine helped to reduce the effects of the virus.

  • @hjcdormouse7337
    @hjcdormouse7337 Рік тому +35

    As a Nurse that cared for CF patients 35 yearrs ago the progress that has been made in available treatment options is truly amazing how I wish these treatments were, available then but heck if this is real life difference research and drug trials can bring I have hope for the future

    • @ashlee4512
      @ashlee4512 Рік тому

      Cause i been praying for you mary is why it’s the same stable. Love you 🥰

    • @melaniecurtin6402
      @melaniecurtin6402 Рік тому

      Even just seeing the improvement in Mary over the last few years shows how phenomenal the drugs are.

  • @beverlystahl1221
    @beverlystahl1221 Рік тому +3

    I’m so glad to see your faces!! I was worried about Mary and the kids. I’m used to seeing you regularly. I miss Elijah and Peter too and of course the little sweetie. I’m glad it was only a cold in the family but I know that’s really tough with 2 babies besides being sick yourself Mary. I was happy to see your smiling faces!!❤❤❤

  • @mama2boys123
    @mama2boys123 Рік тому +2

    You amaze me! I took care of some CF kids. My heart fell hard for them.

  • @ChronicallyMichelle1995
    @ChronicallyMichelle1995 9 місяців тому +1

    I’m happy to see how well you are doing and for the stability. I hope to have stability in my lungs one day. I don’t have CF but im 29, I have 32% lung function with severe asthma, pulmonary fibrosis and COPD from the pulmonary fibrosis with chronic pneumonia I get at least 8 + times a year along with several different illnesses

  • @joygross
    @joygross Рік тому +2

    I can’t believe it’s been 4 years since you started Trikafta. I’m so happy it has been such a good thing for you. I’m sorry the three of you got a cold. Love seeing you and your sweet babes. ❤

  • @lezup
    @lezup Рік тому +12

    Sorry to hear about the colds. I’m glad you were able to get in touch with the team quickly and fix it. Happy to hear PFTs are still good.

  • @ck4599
    @ck4599 Рік тому +3

    Mary I’m so happy for you. God is good and He is definitely working miracles in you life❤❤❤❤you are an inspiration to all❤❤

  • @RoadkillbunnyUK
    @RoadkillbunnyUK Рік тому +1

    My cats are already on purina one (for about 5 years) and when I first switched it was just my now 10 year old boy but the difference in him was night and day. He really loves it and previously he had been really picky with his food and every few months I would have to change him onto a different brand to keep him eating dry food but no more, as I say, he loves purina one and his weight is fantastic, his coat is beautiful and he is a very happy boy. My other cat is still a kitten right now (9 weeks tomorrow) and he is loving purina one. I really can’t second the recommendation from the Frey’s strong enough!

  • @justcallmejessz3712
    @justcallmejessz3712 Рік тому +49

    You never know how strong you are until being strong is the only choice you have. ❤❤❤

    • @babybluecheeks
      @babybluecheeks Рік тому +1

      Such a great and true comment.

    • @MissaLVT
      @MissaLVT Рік тому

      So true! Dealing with that right now with kidney stones and an ovarian cyst and my parents being out of the country. I have no one to help me right now, and it's hard.

    • @elizabethr.9359
      @elizabethr.9359 Рік тому +2

      Anyone with chronic illness can tell you this is so so true 💗

    • @jeangreco9561
      @jeangreco9561 Рік тому +2

      So very true! You learn to deal cuz that’s all there is to do 🤷‍♀️ chronic overcomers unite!! Hope you feel better soon Mary 😊❤

    • @Peas286
      @Peas286 Рік тому

      Sooo true for sure!❤

  • @patriciaconstantino4669
    @patriciaconstantino4669 Рік тому +3

    So so happy to see you both again!! Sorry you and your two precious babies had bouts with colds but thankfully all doing better now. It is truly amazing and a miracle how Trikafta has changed your life so drastically Mary. Before Trikafta it was so difficult for you to do everyday tasks and now to be a parent to two precious little ones. You all had colds while Peter was away for the weekend and you handled everything so well!!!! It brings me tears of happiness to see such a positive change!! Beyond happy for all of you. I was sooooo happy to see notification that you had a post! Appreciate and enjoy all of them. Happy you are all feeling better and sending you all lots of love!!
    💙💗💙💙💙💙

  • @sunrisedesign3267
    @sunrisedesign3267 Рік тому +1

    Sending Blessings 🙏🏼

  • @steveloux4709
    @steveloux4709 Рік тому +6

    Great to see you two!

  • @karendeakin9628
    @karendeakin9628 Рік тому +16

    How can it be four years since trikafta I remember that first tablet! Lovely to see you again

  • @sweett6214
    @sweett6214 Рік тому +2

    So happy to see your faces! God bless!!

  • @heidiyoule6721
    @heidiyoule6721 Рік тому +1

    Ive been here since the beginning and its been such a blessing to follow along your journey. Thank you for sharing small parts of your sweet family. I love ur'alls approach to life and ministry.
    God Bless

  • @summerfun20111
    @summerfun20111 Рік тому +2

    I’ve missed you all! I’m glad you are recovering well. ❤️

  • @deniselovelace3075
    @deniselovelace3075 Рік тому +1

    ❤ Amazing Stability!!! Praise God! ❤️

  • @terriehumphries6028
    @terriehumphries6028 Рік тому

    It has been a while since I have tuned in. My life is busy. I am sorry everyone got sick but so glad you are better. I will continue to pray for you.

  • @natysm25
    @natysm25 Рік тому +16

    Glad you’re feeling better Mary and the babies too ❤❤I kind of enjoy the sporadic videos I’ve followed you guys since you first started ! It now feels even more special when I get the notification a video is up , feels like a surprise visit from like your favorite family member 😅hope you both have a lovely day ❤❤and yay for stability ! 🤗

  • @deboralintner6223
    @deboralintner6223 Рік тому +3

    We’ve missed you, feel better soon

  • @rheagalarneau1366
    @rheagalarneau1366 Рік тому

    It’s hard to believe how different things are for you. You’ve come so far, and I say this with tears in my eyes.

  • @marykowalski7349
    @marykowalski7349 Рік тому +2

    I was just thinking yesterday (wearing my “I Choose Joy” hoodie) how much I miss the vlogs. I hope we can get a peek at the boys in the next one. Thanks so much for the update!!!!!!❤️❤️❤️❤️

  • @bettyloumilstead7341
    @bettyloumilstead7341 Рік тому +2

    Good to see you guys! It’s been a while. Thanks for the update. Feel better soon ❤️

  • @dottieburton5501
    @dottieburton5501 Рік тому +3

    I think since you have been on tricafta (sorry if I spelled that wrong ) your health seems so much better yes you still get sick but you recover so much easier I remember before you moved to NC when you caught a cold you would end up in the hospital it has been a long time since you have had to go to the hospital. I am so happy for you and Peter now you go girl there is nothing you can't do

  • @robertgillis2697
    @robertgillis2697 Рік тому

    Thanks!

  • @elizabethgreen6770
    @elizabethgreen6770 Рік тому +1

    Feel better soon! Miss you guys! Hope to see the boys in the next update vlog.

  • @carolynlong9148
    @carolynlong9148 Рік тому

    I'm glade you have the gift of stability. I work in an infant center so I know what it's like to catch a cold. Glade to see you again glade to hear the boys are doing good despite a cold God bless.

  • @GoFishOffice
    @GoFishOffice Рік тому

    Please stay strong!

  • @gthornton3
    @gthornton3 Рік тому +1

    So very sorry you had to deal with this. Get well soon.

  • @BNHAalltheway
    @BNHAalltheway Рік тому +2

    Good to see You two

  • @Saltyrose14
    @Saltyrose14 Рік тому

    This reminded me how thankful I am for Trikafta myself. Thanks for sharing!!

  • @pavelsmom1089
    @pavelsmom1089 Рік тому +1

    Praise the LORD for HIS many Blessings and merices and love for your beautiful family! ❤

  • @magdalenaurban4749
    @magdalenaurban4749 Рік тому +1

    Yaaaay for the stability of lungs❤❤❤❤❤

  • @elizabethanderson9012
    @elizabethanderson9012 Рік тому +1

    Yay glad to see you both ~ prayers your cold gets better fast

  • @masunshine2970
    @masunshine2970 Рік тому

    Mart bless you honey I pray you get well soon.
    Still trying to get over my stroke.
    Praying you feel much better soon honey. Love watching you guys since quite a while before Tricafta, and before you move to where you are now. Get well soon from your cold. You two are great parents to your children and animal children. ❤

  • @sheilablackwell6785
    @sheilablackwell6785 Рік тому +1

    So happy you guys are back😁😁 Have missed you sooooo much. What a blessing on your lung function test- This being Breast Cancer Awareness month and my being a 8 year triple negative survivor, know how it’s the being able to function thst gets us through the day💕Love you guys and pray you all feel better soon❤️🙏🏻❤️

  • @patsymullins7338
    @patsymullins7338 Рік тому +2

    Hi it's awesome to see you both

  • @loriscott5701
    @loriscott5701 Рік тому +11

    So glad your lung function is stable. I am just about to be listed for double lung transplant at the University of Maryland for COPD. My God daughter had CF ( she was at Hopkins, Mandy Wagner) and unfortunately didn't make it to be able to try Trikafta. I am so happy that it is working for you and seeing the difference before and after is amazing. God bless you and your family .

  • @MissaLVT
    @MissaLVT Рік тому +9

    I'm so very thankful for your stability!! PTL!! I really miss your daily vlogs but totally understand that family comes first. Just know we miss you but are praying for you and cheering you on every day. You and Peter are such wonderful parents and I know what a blessing those babies are to you and you are to them.
    BTW, my parents are in Canada right now and are bringing me some (48 to be exact 😂) real Kinder Eggs! I'm so excited!!! I've never gotten to open a real one! Those stupid Kinder Joys we have in the States definitely don't count...lol. And yes, I'm an adult and I'm legit excited about little toys inside eggs 😂😂 It makes me miss your Scotland vlogs!

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 Рік тому +1

    Welcome back guys! I’ve really missed you all xxxxxxxx

  • @janaleonard4702
    @janaleonard4702 Рік тому

    I am so freaking thankful your lungs are so stable Mary!!! Such a blessing!

  • @VMeral
    @VMeral Рік тому

    Great to see you both again!! Take all the time you need in life

  • @janaye7iverson
    @janaye7iverson Рік тому

    I can’t believe it’s been four years already. I’m so happy for you guys, time flys when your having fun right. What a blessing that you originally moved for transplant but now have been making a family ❤️ I pray for you guys all the time. I wonder how long it has been that I have followed you. We have also become friends but I’m curious cause it’s been a long time, maybe 8-9yrs 😮so blessed to know you and have your videos to brighten my day 🫶🏼

  • @mhelen7360
    @mhelen7360 Рік тому

    So glad to see you two again, but sorry you've had colds. Hope the little guys are feeling better by now. Mary, I listened to a couple of online devotionals today and immediately thought of you. One was by Our Daily Bread and the other by In Touch ministries. The theme of each one had to do with choosing our attitude, and one of them used the phrase Choose Joy. They're only a couple of minutes long, and you might enjoy listening. I still love the Choose Joy necklaces I got from your shop. Such a good reminder. Look forward to your upcoming video.

  • @misspepe7416
    @misspepe7416 Рік тому

    It is so great to see you! Thank you for sharing! Hallelujah we won't stop celebrating the gift stability is!

  • @michellerobinson4653
    @michellerobinson4653 Рік тому +1

    So great to see you xxxx

  • @jmw5550
    @jmw5550 Рік тому

    Such great news!

  • @terriekranjcevich1353
    @terriekranjcevich1353 Рік тому +2

    I always can't wait to see your life.

  • @lyndaakasissy
    @lyndaakasissy Рік тому +1

    I have missed you guys !

  • @bobbimccrea2310
    @bobbimccrea2310 Рік тому +1

    Glad you are getting better, sure missed you guys❤😊🙏

  • @carolyngarrison10
    @carolyngarrison10 Рік тому

    Great to see a video from you guys. Miss seeing Elijah. I do follow you on IG, so have seen some glimpses. He’s changing so much.

  • @jademccardle9074
    @jademccardle9074 Рік тому +4

    Hi am from Edinburgh in Scotland i miss missing yous ❤❤❤

  • @stjernoga
    @stjernoga Рік тому

    Its so amazing and fantastic to see, hope you are better now 🥰🙏

  • @sharibrown1668
    @sharibrown1668 Рік тому

    💖You have been missed. Thankful you have such stability!

  • @user-gq4xw3fe2s
    @user-gq4xw3fe2s Рік тому +1

    How wonderful that you’re better Mary! How wonderful your parents came to help. How wonderful your babies are recovering well. How wonderful that you have such a caring loving husband! How wonderful that you both posted this tonight because I truly missed you all more than I can express. Welcome back! Glad Ollie and Harry are ok. We’re ok here as well. Can’t wait to see your next posting.
    Everyone keep getting better and enjoying each day. Love from Grandma Debbie on Grandpa Gary’s iPad 💟xo 13:46

  • @timothyhalloran5128
    @timothyhalloran5128 Рік тому +1

    Congratulations to you, Mary that you have good PFTT

  • @JustBethTrying
    @JustBethTrying Рік тому +2

    About Elijah being a climber. I know it is potentially risky, but when you allow children to do dangerous things (climbing the outside edge of the stairs)in a safe way (only 5 steps or only as high as mommy can reach) children learn their limits and they learn to mitigate risks on their own. It might be time for some indoor climbing equipment 😊

  • @sarahwilliamsen238
    @sarahwilliamsen238 9 місяців тому

    Great to see your progress on Trikecta!

  • @JennCampbell
    @JennCampbell Рік тому

    Cheers to stability and miracles!!! ❤😊❤😊❤😊

  • @ALittleCreative
    @ALittleCreative Рік тому +1

    LOVE you guys and so happy to see you. I hope you feel better soon. xoxo

  • @kristawineburner5016
    @kristawineburner5016 Рік тому

    I've been missing your sweet faces! Sending so much love to you all! I miss the days of daily vids, but I know life has just become so crazy in good ways for you guys! I think back to the beginning of finding you guys, and it is like you guys have become these whole different people over time! Not in a bad way, just so crazy to see the night and day differences your sweet family has made! Big hugs to you all! Sending love out to you and to all of your followers, new and old! Squeezes for Ollie boy and Harry kitty!❤❤❤

  • @geriann8
    @geriann8 Рік тому +1

    Miss the bloggs that you used to do more often. Hope all is well.

  • @nicolabannister3582
    @nicolabannister3582 Рік тому

    I miss you guys ❤ glad to hear youve handled having a cold okay and that you're all doing good other than that

  • @lorifox4699
    @lorifox4699 Рік тому +1

    So very proud of you Mary and Peter. Such a beautiful testimony. Thank you.

  • @michaezell4607
    @michaezell4607 Рік тому

    I recently had to do an LFT at my first consultation with my new pulmonologist and it was definitely difficult.but I managed to do it.

  • @christenlkingsley540
    @christenlkingsley540 Рік тому +2

    Wow 😊😊😊

  • @wheelchere
    @wheelchere Рік тому +1

    Did you guys close the store?

  • @babygrils1000
    @babygrils1000 Рік тому

    This video is awesome

  • @trashcanjenny162
    @trashcanjenny162 Рік тому +2

    Hey! 😊😇

  • @ashlee4512
    @ashlee4512 Рік тому

    Do what you can do. Don’t ever force or push yourself ❤❤❤

  • @joistevens4454
    @joistevens4454 Рік тому +2

    How do your Doctors know if it’s viral or bacterial? Just wondering

    • @SweetThing
      @SweetThing Рік тому

      Yes, antibiotics can't help a virus, only if you have an infection can they help. Unless she was tested for Covid, she really doesn't know what she had. Covid can have cold-like symptoms.. And it's a shame her dad got it too. Be careful with those babies; we are now in flu and RSV season, and it can be pretty hard on babies. And Covid. :(

  • @susanharris1285
    @susanharris1285 Рік тому

    Peter I like your hair, Mary stay strong love you all ❤

  • @kaylabarnes
    @kaylabarnes Рік тому +2

    Hi!!!

  • @karenwood9593
    @karenwood9593 Рік тому

    I was worried about you. I'm so glad you're surviving and working out how to handle things best. I really believe the measure of a person is how they handle the problems and issues in their life. 😊

  • @ivark56ofPA
    @ivark56ofPA Рік тому +2

    Good afternoon family !!
    Long time no see! I was wondering if there going to be random check in
    Since the last visit two or three weeks ago!! I know its been a couple of weeks since your port surgery replacement.. And the recovery time happening now!! And welcome to fall already it almost two months past
    Your 34th birthday!! And now as of August 24th were now in SEASON 10th anniversary of your series on UA-cam 🎂🎂year 10 how crazy is that already..🎂 Im glad to hear the boys are getting along and your animals Ollie and harry doing fine while doing the Purina cat food challenge.. I will be looking forward to that next life update episode!!
    Todays episode is released on OCTOBER 6th already about 25 days to Halloween 👻💀🎃🎃 til next time god bless you and PEACE!!!❤🤘

  • @cherylwilliams3347
    @cherylwilliams3347 Рік тому +1

    That is what happens g eats, he’s a 3 year old border collie and he loves it🐶🐶❤

  • @dawnlimachi6782
    @dawnlimachi6782 Рік тому +1

    I've had many cats growing up and they eat anything. Cat food wet/dry/mice/bugs/canned tuna. The cat we got for my daughter would eat wet food/tuna as a kitten. By about 9mos old she became picky and would only eat Purina dry cat food.

  • @thegatesofdawn...1386
    @thegatesofdawn...1386 Рік тому +2

    I don't know if you can take zinc, but it shortens the duration of the cold. ❤

  • @BGing_Foodie
    @BGing_Foodie Рік тому

    It's amazing that you can be that symptomatic with so much mucus in your lungs, but have the same PFT results. I can't wrap my head around how that works, but obviously soooo happy that's the reality.
    Do you guys remember the 90s CatDog cartoon??
    Just want to quickly recommend Jackson Galaxy for all things cat because he has a video series on cat food that explains why wet food is so much better than dry. I don't think you mentioned what kind you're using, but hopefully it can help at least 1 person out there if they stumble upon this comment.

  • @anson.meadows
    @anson.meadows Рік тому

    This may be a dumb question but can MSCs (stem cells) help CF patients?

  • @moonmaiden1973
    @moonmaiden1973 Рік тому

    Will you be doing more tshirts and stuff?

  • @Komskimd3
    @Komskimd3 Рік тому +1

    Is Oliver still around ??

  • @SaraNerys
    @SaraNerys Рік тому

    💛💛💛

  • @ashlee4512
    @ashlee4512 Рік тому

    Hi Mary I gave you 700 likes🎉🎉🎉. I also have lung issues since birth. On oxygen since 5 years old still am as an adult now . . ❤❤❤. Xo💕. Keep yourself strong and positive. You are a cute family.

  • @regalkammerlocher6162
    @regalkammerlocher6162 Рік тому +2

    This made me tear up. I remember really questioning if your body was going to make it to wait for a donor for all the organs you were going to need in order to really survive. So happy that this drug has helped your body thrive!

  • @maddieadams75
    @maddieadams75 Рік тому +1

    Mary I’m so excited to hear the news regarding your PFT’s. Our bodies have a amazing ability to adapt to lower PFT. Trikafta is a miracle drug❤ 🙏 prayers for swift recovery from your cold ❤

  • @chiming333
    @chiming333 Рік тому +2

    Not surprised you lost your voice. With all that coughing, that has to have something to do with it. It's amazing you can now deal with a cold and still get on with things, even if you have to slow down a bit. That's a miracle!!! Haven't been following you for very long, but have seen some of your old videos, and it's amazing what Tricafta has done for you. Maybe one day babies can get it when they're diagnosed so they don't have to live with the scarring. Now that would be awesome!!!! Science is amazing, and God is good.

  • @310tammie
    @310tammie Рік тому

    I missed your videos

  • @karenwood9593
    @karenwood9593 Рік тому

    What happens sometimes , maybe too often, people fall into anxiety and depression and start giving up on the problems or the disease . You're a fighter Mary. You want LIFE!

  • @Sassygrannyvlogs
    @Sassygrannyvlogs Рік тому

    💙

  • @lake8115
    @lake8115 Місяць тому

    9:00 minha filha faz esses testes

  • @XenonTetrafluoride
    @XenonTetrafluoride Рік тому +1

    It’s absolutely a blessing and a miracle that even while fighting off a gunky cold, your pulmonary function remains …stable! And yeah, you might’ve needed to call in the crew, but…you still got through the week of baby cold sans Peter! This is definitely a win! 🎉🎉🎉
    (Don’t worry, I also call in my parents when I’m down to just me and kiddo, and we’re both sick. Partially because Mum has to look after me, while Dad looks after kiddo. And so that there’s someone with kiddo for the inevitable ER visit - that’s me going to the ER, not kiddo, although wow does he strike high fevers.)

    Sasha

  • @mariefreeman3890
    @mariefreeman3890 Рік тому

    That great god is this you

  • @rosebojorquez1237
    @rosebojorquez1237 Рік тому +1

    I remember when my children were very young, it seems were were always catching cold after cold. It was the worst once they started school!! Start lots of hand washing! Lol they bring home all the germs and viruses out there!! Not kidding 😮😊❤

  • @TheBookOfRoo
    @TheBookOfRoo Рік тому

    Is that med actually making you better though or is it just masking it. My fear if your lung function is slowly still getting worse than is the meds masking it till one day you wake up and your lung function is so minimal that the meds can no longer even mask it. I’m not trying to put thoughtts in your head just am asking?

  • @aschmidt570
    @aschmidt570 Рік тому +1

    Hellllloooo!!

  • @melissakoon2097
    @melissakoon2097 Рік тому +1

    The lady that helped me with my breathing test last time didn't do it right she kept on and kept on making me redo it many times I had just been sick a month before that and I wasn't as well as I usely am and she kept trying to get a better one and I couldn't do it hope I never get that person again

  • @crimson25543
    @crimson25543 Рік тому +1

    Content focus has shifted back to health stuff, with twice a month updates. Hmmmm.

  • @helenschulz547
    @helenschulz547 10 місяців тому +1

    Hi guys, I didn't watched a while your channel.the risen Tor that is, I just don't like when Mary interrupted constantly Peter by talking. Doesn't sound good!!!!!!!