THIS WAS IN MY CHEST FOR 6 YEARS! 😱

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  • Опубліковано 16 гру 2024

КОМЕНТАРІ • 113

  • @JulieR73
    @JulieR73 Рік тому +37

    I’m completely blown away by how different your life is since Trikafta! Just incredible!

    • @ivark56ofPA
      @ivark56ofPA Рік тому +2

      It like a complete miracle that shes Experienceing!!

  • @peppermintwoman2049
    @peppermintwoman2049 Рік тому +11

    34?! Girl you look 20!!! And you are so so strong, thank you for showing us your vulnerability, super brave

  • @patriciaconstantino4669
    @patriciaconstantino4669 Рік тому +12

    So happy to see you again Mary. You look great 👍 love hearing the babies in the background .. so precious!!! Elijah gets more precious with every vlog. Blessings and love to The Frey Life Family 💙💗💙💙💙💙

  • @Paula_Limberg
    @Paula_Limberg Рік тому +4

    Love the explanation of how the port works, and being able to see it outside the body! I’m a huge medical device nerd, and I must say I learned from the best - you! Thanks for the learning opportunity 😊

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 Рік тому +4

    So nice to see you looking so well, Mary, and a joy to see Eli playing with the new toys too xxxxxx

  • @treywhite4186
    @treywhite4186 Рік тому +2

    Having a bath or shower the first time post-surgery feels INCREDIBLE.

  • @stephanieandlollipop5424
    @stephanieandlollipop5424 Рік тому +6

    Mary, I love your “revenge” on the port by boiling him. 😂😂😂 I wish you a speedy recovery. Cheers to port #3. 🌷

  • @janeroberts7066
    @janeroberts7066 Рік тому +15

    My dad taught me never be afraid to show your battle scars as it proves you are a survivor 😘 I have extremely long scars on both sides of my hips from operations when I was 12. I wear them with pride in my shirts and swimsuits ❤️😍

  • @coraliedubois5890
    @coraliedubois5890 Рік тому +7

    Elijah's communication is getting more and more verbal, he sounded almost like he was saying the alphabet at the beginning lol! He's adorable! So smart and concentrated on the new toys! And mini baby is also cooing and chatting a lot more now. Are they interacting together more now that mini baby is a bit older?

  • @maddieadams75
    @maddieadams75 Рік тому +10

    Oh my hearing Elijah call Mary “Mommy” is so heartwarming. I can hardly believe he’ll be 2 in December.
    Mary the cut in the tubing was made during or after surgery. I’m a surgical nurse, your experiment is cracking me up. Internal device can fail over time. 6 years is a good run for a port. Reminder our bodies don’t like foreign agents, in order to protect us, we wall off foreign objects, science testing can only predict so much. Everyone is didn’t and reacts differently. Good luck and hope you have another long run with the new port. ❤

    • @ivark56ofPA
      @ivark56ofPA Рік тому +2

      He will be 2 years and mommy turned 34 A month ago... And the series is in year 10 already. How crazy is time flying!!!

    • @AmyAndThePup
      @AmyAndThePup 4 місяці тому

      What do you mean by "walling off?" I'm very curious... I find so much about the medical field to be fascinating. If I weren't blind, I'd probably have gone into it in some way.
      Just hearing her describe what she was doing was amusing. I could see myself doing similar if I had a port or other device they let me keep after its removal.
      I love this family. They are so beautiful.

  • @ptszpwr783
    @ptszpwr783 Рік тому +11

    Missed you, glad to see you're doing well in recovery.

  • @paulineandrews6710
    @paulineandrews6710 Рік тому +3

    I am so intrigued when you teach us! Love the port tutorial.
    So glad to see you back but glad you took time to heal

  • @benpavy9969
    @benpavy9969 26 днів тому

    Your little foster baby boy is such a smart and cute little baby boy

  • @AmyAndThePup
    @AmyAndThePup 4 місяці тому

    As a blind person, I am dying to actually hold one of these ports to see what actually goes on. I've seen them on people I knew, but only where they were, never in detail.
    Mary, I love how you were experimenting, and having funw hile doing it! I wish I could have watched, not just followed the dialogue.
    So happy hearing baby noises, and you up and about after your port replacement vlog.
    I'm so grateful God has given you the boys, trikafta (sp?), Peter, so many wonderful years. May you guys have many, many more.

  • @rutherpa
    @rutherpa Рік тому +3

    I've been a fan since almost the very beginning (I tell my friends about my imaginary UA-cam friends Mary and Peter ;) ) and it is such a joy to see you both so happy and with such full lives - beyond CF. My husband, who has never watched himself but only overheard me watching each night before bed, just commented on how happy you sound, xo

    • @AmyAndThePup
      @AmyAndThePup 4 місяці тому

      Not to sound like a creeper...
      I used to dream I got to meet Peter and Mary in person.
      They moved to NC not even two years before my mom left there :( Not that my childhood home was near Peter and Mary--it was several hours away--but still... I always wonder what it'd be like meeting people I know online.

  • @carolynlong9148
    @carolynlong9148 Рік тому +3

    I'm glade you got your new port and recovered well. I work in child care so I'm all for developmental toys. Its great to hear Elijah saying mama and daddy. Port science interesting to learn about. Nice to see the family thanks for sharing God bless.

  • @lifewiththem9822
    @lifewiththem9822 Рік тому +1

    I am giggling with the dipping of the port. Loved watching the experience

  • @BNHAalltheway
    @BNHAalltheway Рік тому +2

    Glad You are recovering well Elijahis so cute playing with his toys

  • @CloggingSweetyG1
    @CloggingSweetyG1 Рік тому +4

    So cool to see your port and the boiling for safety ❤

  • @lunastefanieroy
    @lunastefanieroy Рік тому +13

    I remember singing "life with a lego in your chest!" along with you so many years ago! How far you've come, Mary. :) I miss you guys.
    edit: also it's so strange you couldn't flush it! That port was definitely due for removal.

  • @lindad1195
    @lindad1195 Рік тому +3

    Elijah is growing so fast! He’s so cute! I’m glad you’re doing better Mary!

    • @ivark56ofPA
      @ivark56ofPA Рік тому

      I know he will be 2 years in December already..

  • @babybluecheeks
    @babybluecheeks Рік тому

    There is something about seeing a Dad with their kids, its just so adorable.

  • @gthornton3
    @gthornton3 Рік тому +3

    I had an external bar on my wrist for 6 wks when I fell abs crushed my wrist. They placed a metal T looking piece in my wrist. When they removed it I kept it and it’s on my key ring. Glad to see you guys.

  • @teijaflink2226
    @teijaflink2226 Рік тому +1

    Elijah is so cute. Are you planning on adopting your foster son? I really hope you can adopt him as you have had him for a rather long time now, so you are all he knows.

    • @junbh2
      @junbh2 Рік тому

      Yes, that would be lovely for the baby. Although, it's still infinitely better for a baby to know loving parents and have to lose them and learn new ones than not to have had them at all. Even if he has to move on someday he will go with the knowledge of what love is deep inside his bones.

  • @rosebojorquez1237
    @rosebojorquez1237 Рік тому +1

    It's amazing how your lives have changed!! Miracles do happen, you're proof of that. You look so good compared to when I first started to follow your channel ❤❤😊. I'm so happy for you!

  • @lezup
    @lezup Рік тому +2

    Thank you for showing us with the old port (even if it was busted) how it works. I was curious.

  • @karendeakin9628
    @karendeakin9628 Рік тому +10

    Who else is listening intently to Mary talk about her port …. Then hearing babies in the background realising they are her babies …. How life has changed love it! And Mary hot baths keep me going with my fibromyalgia!

  • @summerfun20111
    @summerfun20111 Рік тому +1

    So good to see you all! Glad you are doing better Mary. ❤

  • @elizabethgreen6770
    @elizabethgreen6770 Рік тому

    Good to see the frey's! I have missed watching every day. I know its hard to do so with two kids and Peter working. Always excited to watch a new video!

  • @biddiemutter3481
    @biddiemutter3481 Рік тому +1

    Elijah is so bright...and great toys.
    Splendid picture too❤

  • @lenac7655
    @lenac7655 Рік тому

    Miss seeing you guys more regularly, but totally understand that your lives have changed so much...for the better. All the best to your beautiful family. 😊💕

  • @MrsGigi
    @MrsGigi Рік тому +4

    Lovely to hear little voices in the background. 💜

  • @stephanyzechel9391
    @stephanyzechel9391 Рік тому

    The best part of this was both Mary and Peter quickly turning at the loud noise. I was dying laughing. Parent life lolz

  • @ritaelona7513
    @ritaelona7513 Рік тому +1

    Love seeing him interact. He is so cute. Miss seeing you all your videos.

  • @adrianaiello1608
    @adrianaiello1608 Рік тому +3

    the port could not be working since it has had blood clotting inside of it since you had it taken out, but still glad you got a new one :-)

  • @susanplunkett5193
    @susanplunkett5193 Рік тому +8

    Look at him putting them on the string right off. That is so awesome. Such a sweet smart boy.

  • @sandracollins7938
    @sandracollins7938 Рік тому +1

    I missed y'all!! Good demo on the old port. It didn't flush so now I'm sure you're glad you replaced it. That line cut is questionable?! Glad you feel better.❤

  • @elizabethwilhelm9340
    @elizabethwilhelm9340 Рік тому

    I'm so happy for yall and where yall are in life now! I remember watching years ago, and your life was so questionable, and now, now you have 2 beautiful kids! ❤ Absolutly amazing 😊 God's blessings

  • @jenniferwolford4646
    @jenniferwolford4646 Рік тому +2

    Mini van? Are you expecting more children soon? I wouldn't even think of going over that cliff until 3 children! Possibly more!

  • @kaylabarnes
    @kaylabarnes Рік тому +3

    Little is really talkative.

  • @haleyphipps0417
    @haleyphipps0417 Рік тому +1

    I loved your update today Mary.❤ I'm glad to hear the surgeon let you keep your old port. Look's like mine that's on the inside of my body currently with 3 bumps on middle to find the place to access it. I think you had a power port like I do. Was interesting to see the placement of your new one and let me tell you,mine isn't up in the neck with the line, it's directed to my chest to my heart,so it's deep in my chest veins where I can't feel it on my skin. Getting excited to see Port #1 along side Port #2 on the tree for Christmas.😍🎄

  • @grandmamine4307
    @grandmamine4307 Рік тому +2

    I didn’t know that you could keep your port. When ever they take mine out I will ask for it. Mine was put in in January while I am going through chemo

  • @imogenoliver
    @imogenoliver Рік тому +1

    My medical nerd autistic brain would be content for hours experimenting, cleaning and learning the literal ins and outs of how your old port works Mary. This gave my brain some much needed happy hormones so thank you Mary, at least that’s someone I can geek out on medical things with and not have the other person get queasy the second I mention the word veins 🙄😂.

  • @Dyannitas27
    @Dyannitas27 Рік тому +1

    Kiwi co is awesome! We've been getting them for years. Started with the kiwi crate and Atlas crates, now we get the Tinker crates. And we've had the Maker crates too.

  • @debbiehowell1902
    @debbiehowell1902 Рік тому +1

    Y'all are such a cute family.

  • @thegatesofdawn...1386
    @thegatesofdawn...1386 Рік тому

    Elijah has changed so much! I love the way he said Mama. His hair is coming in now, it's nice to see him, its been along time.
    That port looks as if it would be hard to deal with, I'm sorry to say.
    Surgery is a big deal. ❤
    Maybe we will be able to see the other boy someday, God willing.
    Take care. 🙏

  • @keric3673
    @keric3673 Рік тому

    Playing/experimenting with the port would totally be something I would do!!

  • @desiregonzales6246
    @desiregonzales6246 Рік тому

    6 years? No way. I remember your surgery like it was last month! And, how you were like, "it's in my armpit. How is that going to work."

  • @Judymontel
    @Judymontel Рік тому

    I guess I've been watching for a while - I saw the thumbnail and thought "oh nice, a new ornament for their tree..." 😁😁

  • @angelahardison6616
    @angelahardison6616 Рік тому +2

    I'm on my 3rd Port replacement. The last one was the worse. Take care.

  • @DesAMowadeng
    @DesAMowadeng Рік тому +1

    Port Tea compliments of Mary 😆

  • @phyllisaleshire4460
    @phyllisaleshire4460 Рік тому

    Thanks for the update! God bless you

  • @nibindringiel
    @nibindringiel Рік тому

    "Just to make you guys feel better" 😂😂😂

  • @angelathompson3920
    @angelathompson3920 Рік тому +1

    I miss all of you!!!😢❤❤❤❤

  • @miacolt2844
    @miacolt2844 Рік тому

    Omg!! I hunk I have that same exact port, and it has been infiltrating on me and leaking under the skin. I keep telling them, but they claim it’s fine. I definitely am about ready to get a new one.

  • @Jolieeeegirlll
    @Jolieeeegirlll Рік тому +2

    I’ve missed your videos!!! 🫶✨

    • @ivark56ofPA
      @ivark56ofPA Рік тому +1

      They bring positivity to the series .. They will be missed if they stop all together..😮😮

  • @user-gq4xw3fe2s
    @user-gq4xw3fe2s Рік тому

    I miss you guys so much. 😢 from Grandma Debbie xoxo 0:01

  • @haileyhudson4157
    @haileyhudson4157 Рік тому +1

    I got a new central line last week and I thought of you and meant to ask if I could keep the old one (it wasn’t infected or anything), but I was too dopey and forgot😂

  • @Pooterbug11
    @Pooterbug11 Рік тому

    I so miss seeing you on UA-cam allot more like you used to be. Miss you all so much.😢 Hope you all are doing well

  • @babygrils1000
    @babygrils1000 Рік тому

    love this video ❤❤❤

  • @kaylabarnes
    @kaylabarnes Рік тому +2

    4:07 did little guy say "dada"?

  • @biddiemutter3481
    @biddiemutter3481 Рік тому

    17:10 don't annoy Mary😂
    That was educational, and I can quite understand how you would want to test it .

    • @ivark56ofPA
      @ivark56ofPA Рік тому +1

      it was awesome demonstration..

  • @kevinbuckley2648
    @kevinbuckley2648 Рік тому

    Miss you guys

  • @oliviakite
    @oliviakite Рік тому +1

    Can I ask a genuine question, Mary? I’ve been told recently that I might have to stop IVIG because it has an increased risk of stroke. I had one 8 years ago and unfortunately another in August. I’ve been on IVIG for nearly 4 years and it’s really helped but my docs don’t want me on it because of its stroke risk. Anyways, I was just wondering what you use your port for these days?! I’m hesitant to get mine out just because I’m stopping IVIG. Thanks ❤️

  • @annputman9603
    @annputman9603 Рік тому +1

    Will we get to see the new baby soon.

  • @brittanyrobinson6004
    @brittanyrobinson6004 11 місяців тому

    I couldn’t even sleeping on right side at all. It was so sore for a couple of days for me

  • @marykowalski7349
    @marykowalski7349 Рік тому +1

    Is anyone else struggling without the Frey Life vlogs? I know how much their life has changed, but having watched since Scotland I care a lot about how the family is doing. As an adoptive Mom, I am always eager for updates on the boys. And as an animal lover, I need my glimpse of the animal family members.

  • @SaraNerys
    @SaraNerys Рік тому

    💛💛💛

  • @Take.It.Easy.7
    @Take.It.Easy.7 Рік тому +1

    I've never seen this families channel before, so when I saw the thumbnail, I thought she was holding a guitar pick, and was going to say that she swallowed it a long time ago and it's been in her chest ever since😂 so that's why I clicked on the video, all I can say is I'm pretty dumb😶

    • @elizabethr.9359
      @elizabethr.9359 Рік тому

      That’s so funny hahaha Mary has CF (Cystic Fibrosis) and that’s why she has had a port since she was 19! Just in case you were wondering :)

    • @Take.It.Easy.7
      @Take.It.Easy.7 Рік тому

      @@elizabethr.9359 thanks🙂

  • @pattyfluegel7816
    @pattyfluegel7816 Рік тому +2

    It seems like it bothers you where they put the line above your collar bone. Please share when you find out why that choice.

  • @tinmanlover1994
    @tinmanlover1994 Рік тому

    Hey Mary and Peter I've looked into a possible lawsuit for power ports since Mary had issues with your 2nd port since Day 1

  • @phillipadoran9341
    @phillipadoran9341 Рік тому

    Hi fray family have you started to to 4 weekly updates now missed my daily or weekly vlogs 😢 x

  • @desireewalker5894
    @desireewalker5894 Рік тому

    ❤❤❤❤

  • @mirandahart4550
    @mirandahart4550 9 місяців тому

    My last port cracked while in my body so it could’ve happened before removal.

  • @Sassygrannyvlogs
    @Sassygrannyvlogs Рік тому

    💙

  • @brittanyrobinson6004
    @brittanyrobinson6004 11 місяців тому

    I was very sore after having my port put in

  • @sunnya8
    @sunnya8 Рік тому +1

    *remnants* 😂😂😂😂

  • @childofquan3362
    @childofquan3362 Рік тому +1

    The port would be plugged because the blood clotted

  • @rachsl
    @rachsl Рік тому +1

    That port looks totally different from Ur old 1

  • @normaowens7340
    @normaowens7340 Рік тому +2

    He is his own worst critic on his painting

  • @mobstercrow7515
    @mobstercrow7515 Рік тому

    How is Ollie doing?

    • @ivark56ofPA
      @ivark56ofPA Рік тому +1

      Ollie will be 11 years old around Thanksgiving already. That's like 77 human years equivalent.. An old dog already!!

  • @candacevandeventer2456
    @candacevandeventer2456 Рік тому +1

    Is the baby available for you to adopt?

    • @junbh2
      @junbh2 Рік тому

      I imagine either no, or not yet, since they're not sharing information about the baby.

  • @callyflower
    @callyflower Рік тому +3

    Next time…get a slim port. They are almost flat and unnoticeable. Go to a cardio thoracic surgeon too. They do a much neater job.

    • @evercuriousmichelle
      @evercuriousmichelle Рік тому +1

      Good to know that there are slimmer options! I'm learning through this that it's important to ask for after photos of all possible options to see the surgeon's handiwork!

  • @fralinsandfriends
    @fralinsandfriends Рік тому

    Mary, I think you know you need food and meds. Maybe the medical team said that was okay. I know after surgery or sickness, I'd rather just sleep the day away. Do you ever notice when you're so so tired and you just lay down and adrenaline hits for some reason and you're wide awake. I hear Elijah in the background. Why would anyone expect it to be just another port, what so wrong? That's silly. New port, new pain. 😃😃👋👋💖💖

  • @notshaken62
    @notshaken62 Рік тому

    I’d be curious if flushing it with hydrogen peroxide would unclog it

  • @crystalchance3338
    @crystalchance3338 Рік тому

    Wait. They had a baby??

  • @ashleyphillips3526
    @ashleyphillips3526 4 місяці тому

    When can show the baby

  • @lindad1195
    @lindad1195 Рік тому +2

    You boiled the water then took it off the heat and dunked the port in. That’s not sterilizing anything. You would need to put the port in the boiling water, actively boiling water and let the port boil in it for 5 or more minutes to actually sterilize it. I know you can’t do that because it would probably melt but that’s what you have to do in order to sterilize something. Just so you know.😊

    • @junbh2
      @junbh2 Рік тому

      Cleaning it with sterilised water is still useful though, even though it doesn't fully sterilise it.

  • @anneliesgeefnietop7819
    @anneliesgeefnietop7819 Рік тому

    I would so do the same 😂

  • @geriann8
    @geriann8 Рік тому +1

    Why are you not doing content, miss you guys

  • @sandy4j
    @sandy4j Рік тому

    you be you anf forget if any onr judges your port

  • @DanielleHNewZealand
    @DanielleHNewZealand Рік тому

    Why don’t you put the needle end of it into the and of your tubing and flush it that way?

  • @310tammie
    @310tammie Рік тому +1

    I miss your videos😢

  • @ninnapoooh
    @ninnapoooh Рік тому

    Lo:÷ & prayers

  • @AutumnFalls89
    @AutumnFalls89 Рік тому +3

    Am I the only one who wants to see the gross stuff in the port?

  • @ivark56ofPA
    @ivark56ofPA Рік тому

    Good afternoon freys
    I know this episode is taken a few days after that operation of the port replacemrnt and continued recovery time .. I didnt expect it to be that large in your body i thought maybe a small one that you were showing in the last episode of two weeks ago.. Elijah was showing his artwork he did a pretty good job on the drawing followed by painting it.. Oliver resting on the sofa .. Thats odd you let your large animals sleep on the expensive furniture .. Thats fine if he was small cat like harry or something small dog they can sleep on the furniture. Certainly i would
    Not allow a larger breed of dog to sleep on that.. Todays episode is released on SEPTEMBER 19th which is one month after marys 34th birthday and 4 days umtil AUTUMN BEGINS on saturday and about 3 months til christmastime already.. Till next time GOD BLESS YOU!! PEACE!!!❤❤💋👍