WYN'S FIRST INFUSION TO TREAT CRMO
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- Опубліковано 6 вер 2024
- Wyn goes into the hospital to have her first infusion of medicine to treat her CRMO. Please Subscribe to watch our family grow!
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We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
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I watch a family (violett vlogs) on youtube. Her son has CIPD, it effects his your nervous system, and was in a wheelchair, fell down stairs, etc He's receiving infusions and can walk/run again. It's worth watching some of their logs because she talks about infusions a lot, and him getting sick afterwards.
You are such a good mom. Wynn was so brave.
Thankful for you & Will for being hands on in your children’s journey’s! Don’t ever forget….YOU ARE ALL WONDERFUL♥️♥️♥️♥️♥️♥️♥️♥️
Prayers for Wyn. She's a strong little girl. 🙏🙏🙏
I want to thank you for keeping your written words at the end, up long enough so I could read what you wrote. Ninety nine percent of other written stuff I can’t finish reading what has been written. So, once again thank you! I sure hope Wyn gets complete healing from these infusions. It’s so sad to see a child suffer.
I love how Wyn is being a big girl about the needles and being in the hospital. I hope this helps her so the CMRO does not spread.
Wyn good a good job. I hope this treatment helps her CRMO and she has less pain.
Wyn, you were terrific, so brave! I guess you had nice nurses, too! They must have done a good job getting the IV set up. We sure hope this medicine will help you have a lot less pain. Sending a hug 🤗 Very proud of you!!
Wynn YOU are a 10…..the best….so brave…..a true Rockstar!
Shes a strong little girl, praying for her!!!
SO PROUD OF YOU WYN 💖
YOU ARE WONDERFUL 🤩🥰
Our sweet Wyn, you are so brave. We love you Grandma and Papa 😍
She is a BRAVE girl !!! Praying this helps her
Just sitting around in an environment where you have little control is tiring! So glad there weren’t severe side effects.
Prayer said for her condition to resolve. Please tell her she is very brave & a good girl.
Prayers for a speedy recovering. I did Cemo 2 years ago. Always think positive though this.
its so amazing how brave children are! keep up the good work Wyn!!!
Thank you so much for sharing this. My daughter was just diagnosed with CRMO. It helps her to see other children going through the same thing as her. ❤ Wyn is such a brave girl!!
Hi Wyn! Just remember you're so brave and so pretty
Wyn is a brave little girl prayers going up for wyn .
Hi Wyn, you were so brave. Wow, you did great. I'll wait, until next time to see what you get at the gift shop.
Prayers for you and everyone else.
She’s a real trooper!
I also have CRMO and i am having infusions next month. Im currently on neproxin and lansoprisole.
Just keep on top of bloodwork. All the meds can give her more health issues. I know due to my autoimmune disease
WTG WYN! Your is right you rocked it!
she is such a sweet girl and very brave. Hope this treatment will help her be pain free
I have an autoimmune disease, and I take methotrexate. You had the name right. Did she take it in pill form or injected? And why is she no longer on it may I ask? That's crazy that they're using the same medication protocols that they did with me. I'm 30, she's a child. The inflammation must be very bad. I remember the year I had my big flare up and everyday was so painful. I feel for your daughter because I know what she's going through now. I'm sorry that you have to watch this and go through this with her.
Nice! Im very surprised because i got it to! I have some in my back my hip and my 2 legs:( I hope ur Daughter is Ok. I know her pain:(
Wyn, I'm sooo proud of you! You did awesome!
I'm praying this works for her 🙏 💞
I've had like two or 4 IVs.
Hi my name is Aniya I have CRMO too you are so brave I would be really scared if I had to have that.
I love this family…
Just found this video today. I was looking up CRMO, we recently received a diagnosis. I want to know more….
Wyn, you’re a courageous little girl.
I deal with cronic pain on daily basis I’m still in the process of being diagnosed
I hope they find out what it is, soon, and that the Doctors can treat it so it will completely go away!! Good luck, hun!
Good on you kiddo!!!
Wyn is so brave
Cerebral palsy CP how to spell vertigo along with this teepee a CP specialist I'm also seeing a chiropractor as well
All will win school as well home I want to say and change it and learn
What Is CRMO
Chronic recurrent multifocal osteomyelitis (CRMO), or chronic nonbacterial osteomyelitis (CNO), is a disorder that causes bone pain due to inflammation in the bones not caused by infection.
Does she by chance have elhers danlos I have that same problem