Sarah was in the hospital..
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- Опубліковано 12 вер 2024
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I completely identify with you Sarah and all the women who shared their story.
I am a 73yr old woman and 50yrs ago I was in the hospital for severe pain in my
my abdomen. After 1 week of tests I was told that it was psychological and sent home
1 week later I was rushed to surgery because I could not stand the pain.
They found that I had a growth in my abdomen that had ruptured. The diagnosis was
Endometriosis. The “Medical Profession “ did not check for this condition. Why, because
women all had cramps “that time of the month” and some women just were not strong enough
to handle it.
The lesson I learned from this
Keep going till you find a Dr who LISTENS.
Sarah I wish you to find a diagnosis and a cure.❤❤❤
OMGosh, I felt like I was reading my own story as I too ended having hysterectomy at age 24 due to endometriosis. After constant trips to doctor for 2 years, in so much pain, I was sent home last visit with instructions to see a psychiatrist, insinuating it was all in my head. I've been so proactive with my own care since then.
I too had endometriosis that was diagnosed after they operated to remove 6"" of my descending colon which they had thought after ignoring my complaints of pain for years was cancer. Finally they xrayed and said it was probably not cancer after all... anything female they like to ignore
I got POTS after having covid but it was because I got my second vaccine immediately after recovering from covid per my doctors recommendation.
I went to see a cardiologist, who told me I just had anxiety and that long covid didn’t exist and POTS was so rare that it’s practically a myth. The worst experience of my life. Just going to see the cardiologist, I wanted to pass out multiple times because my heart wouldn’t stop beating every time I had to move.
Anyway, no one was able to give me a proper diagnosis. I had to go on disability because I couldn’t work anymore. Two months of bed rest and my symptoms finally started to die down. I still get tachycardic when go from lying down to standing up and I’m much more sensitive to heat now, but overall I’m able to function normally without any medication so that’s honestly all I could ask for.
I hope you find out exactly what it is you’re dealing with and get better soon!
I am a licensed mental health provider and it makes me so upset when male "doctors" tell women their physiological symptoms are just "anxiety" and don't even consider a physical medical ailment. Obviously, anxiety can cause physical reactivity but anxiety and physical conditions are not mutually exclusive. I want to scream for you! Thank you for calling him out and advocating for yourself and getting another opinion! Also, I am familiar with POTS, but not Hyper-POTS or the ANA test you mentioned. Thank you for sharing!
Anxiety causes a whole slew of physical symptoms. Those symptoms are just as real as if they had a physical cause.
@@kateri17 That's not the point. The point is...male doctors in particular, tend to blame "stress" or "anxiety" regardless of the cause.
I must say I disagree with your statement. It is not just "male" doctors assuming a female's symptoms are related to stress/anxiety. As a male myself, I went through a period that I was at my primary caregiver's office once a week and at the local emergency room just as much. I was treated by female and male doctors, both could not tell me what was wrong with me and explained it as anxiety. I am also a registered nurse so I knew something was wrong and I'd never had an issue with anxiety. This went on for months until finally, one doctor cared enough to investigate. I don't believe it is a male or female doctor issue instead, it is an issue of the doctor having no idea what is going on and it is easier for them to diagnose anxiety than to tell you they have no idea what is going on. It also seems that once a doctor diagnoses you with anxiety every new issue will be related to anxiety in their eyes. They see anxiety in your chart and they get stuck on the anxiety cycle. BTW it wasn't anxiety in my case. Anxiety was used as a diagnosis so they could push me out the door as a nonemergency and free up a room.
@@xxxxxx-il4pg , thanks for your opinion? Why would you respond to a 3 week old comment anyway. Although honestly, I'm not going to take the time to read in entirety. What may have escaped you was, this my response to a female sharing her medical story. It was not meant to be an all encompassing statement excluding male perspectives on how they may also be treated unfairly. Anyway, I hope sharing your story was therapeutic for you.
Male doctors are the most chauvinistic creatures in the world. Just ask any head nurse with 40 years of experience who has dealt with a kid fresh out of med school trying to boss her around.
So glad you finally found someone who heard you. My sweet daughter in law has been dealing with the same issue for almost 2 years now. Started 6 months after she had covid. The only difference is she randomly passes out with her. She has been told it is all psychosomatic and she needed a psych eval. Was told that while she was lying there passed out and was tyachacardic. A few months ago, an er nurse gave us the most sound advice of all. She said, you have to be a a strong advocate for yourself because this tends to be a women’s disease and it is a man’s world regarding the medical field. She said until a lot more men begin developing these issues and a lot more women in the medical field and specialize in it that is how it stands. So yeah nurses! They know so much! Finally we have some diagnosis, POTS being one, but still have a long way to go. Good luck to you on your journey.
Absolutely right I went 11 months being told it was neteves one little women doc said no and if your primary doc doesn’t listen tell him to call me finally they did test and found the issues
POTS is no fun. I hope you find the relief, treatment and care you need🙏
Jibby,jabby clot shots
OMG, I have been dealing with this for four years- heart rate skyrocketing, low blood pressure, rashes, hives after eating anything, exhaustion, and every doctor is like: anxiety. It's so frustrating. Get well.
Post COVID or longCovid.
I have been diagnosed and know well what longCovid is...
POTS 💯
No joke this same thing happened to me. I have a murmur and autoimmune issues so I always pay attention to how my heart feels. I sat down to watch a movie and my heart rate was going nuts. The oxmeter said 144 and it wouldn't come down. ER trip, cardio doctor trip, they put me on a high dose of magnesium and a pill to lower my heart rate. I've been OK ever since.
I had a lot of those symptoms before I was diagnosed with celiac disease. I had thyroiditis and I would wake up with Adrenaline rushes and my heart would beat so fast, I would break out in those red splotches and I could feel it go all through my body. It was my body attacking itself because of gluten. Once I got diagnosed finally that it all gone and I am doing so much better! I pray they find out what is going on with you.❤️
I also have celiac! I never see people online who have it so seeing your comment made me a little happy❤️
I had thyroiditis and had those adrenaline rushes. Thought I was having a heart attack and drove myself to the hospital at 3am
Me, too!!
@@ida6417 You are not alone!!!
@@l.a.w.79 I'm so sorry you had to take yourself to the hospital! I don't know you but I would have taken you, even at 3am! I hope you are.feeling better now. ❤
York Cardiologist in the UK reports that a significant number of people have developed POTS up to 6-8 months post Covid as part of long Covid. Hope you get some answers quickly from your clinicians because the uncertainty in this situation must be extremely stressful. Good luck and hope you feel better soon.
"long COVID" is bull shit. They call the side effects of a specific medical procedure long COVID to keep on fooling people. Put your thinking mind on!!!
Either long covid or the other one, if you know what I mean. I am literally praying for Sarah because she’s a good person and I hope God will heal her.
lol... never mention the vaccine XD... it's "long covid" of course
Yes! The jab is causing all kinds of emergency medical situations all astound us. I've lost my Grandmother, 2 Aunts & 1 Uncle. (All Covid Vaxxed) 😥 😠 💔 Paying for Sarah!
@@normaortega4654 and unless the gov admits that, that’s what’s causing issues, they won’t begin to treat it.
It's SO annoying how hospitals always tell women they're having panic attacks 😡
Yep it's tragic 😢
Women and our partners need to understand the extent to which we HAVE to advocate for ourselves. Often when we’re already struggling physically. Men who are in relationships with women, please understand this. We ARE treated very differently than you by the healthcare system; you CANNOT interpret things the same way as if it were happening to you, because you are much more likely to be believed, treated appropriately and to have research backing up YOUR care. It’s only been in the last decade or two since women have been accepted into non-OB/GYN research trials. Please be ready to not allow your female partner to be brushed off even if you have to be a jerk about it.
Don’t believe me? Typical. OK, just in case I’m “lying” or “over-reacting” 🙄, ask a few of your female friends and colleagues about their encounters with healthcare.
@@merkinidgit I tend to agree with you that women aren't take seriously or believed, tho I also believe it's a general problem that happend to everyone and that it can also easily happend to men.
My father had Amyotrophic lateral sclerosis (ALS) and before he got diagnosed he used to go to a lot of doctors and he's been told for god know how long that he was just exhausted, that it was depression, psychosomatic, that it was in his head.
Wish everyon could be taken more seriously and believed 🙏
They do it to men as well. I know from experience.
YES!! They did that to my cousin who finally got to a hospital while having an episode, previously they’d ended before a medical professional could check her out, and this time her heart rate was in heart attack territory. Turns out she’d had a congenital defect that went undiagnosed until it began causing these problems. A quick procedure later, she’s fine. But those many misdiagnoses of “panic attacks” could have literally killed her.
Another RN here. I have dysautonomia too (just not POTS type) and EMS told me it was anxiety too. Autonomic testing confirmed the dysautonomia and treatment has helped a lot.
Watched most of the video thinking “this sounds like POTS” and got so mad when they told you “it’s just anxiety”. Glad to hear the cardiologist was more invested in helping you figure things out. It’s so unnerving when doctors dismiss you with the “oh it’s just X” as if you’re supposed to go home and deal with whatever as a chronic vague thing.
Also the government NHLBI site has posted articles on research being done possibly linking COVID to POTS. Might want to look into that.
@@GBORT578 definitely worth looking into, imo
I had cortisone withdrawal and every doctor was dismissing me for 'stress' etc. NO! I literally had severe neurological issues
Doctors don’t say ‘oh, it’s just…’. They’d say something like ‘we can’t find an organic cause, but this is consistent with anxiety. We have many different things we can try to get relief for you. If you develop new symptoms, let us know.’ Just because a patient finds an answer unsatisfactory doesn’t make it incompetent. House was fiction.
@@shamelesshussy well just be happy your experience is different because in my case that is exactly what they did and worse. I had nerve damage from cortisone but they said "your symptoms are just from stress from flying" doc1, "you are just at an age you need to make decisions in life" "you just want to understand things" and then not explain "you cannot get sick leave because you do not have a medical issue" when I was puking all day "you are used to feeling perfect and now you are not" doc2, "I am not going to waste my spit explaining this to you" doc3, "if it was not this you would have had something else" doc4 so they do just say those things. Or the lovely "it is not real, it is all in your head/between your ears" well yeah my brain is there indeed.
Sarah, was sick with many of the symptoms you describe. After 14 years finally found a doctor who listened. I have Thyroid disease and Adrenal Insufficiency. Make sure they check. They don't always get the diagnosis right the first time. BTW I went to a certain hospital in Minnesota with the initial MC. They said my heart things, breathing etc. were all in my head.
Praying for Sarah…and you too Carlo. You’re so lucky to have each other.
As soon as you began to explain your symptoms, I thought immediately she has POTS. I'm glad you finally got the proper diagnosis. It took my daughter years of urgent care, emergency rooms, and cardiologists to finally get hers diagnosed and under control. It is so scary to have and to watch someone you love suffer from it.
Glad you are on the road to
Recovery!! Im not kidding when I tell you that since my daughter was born via emergency c-section - I’ve had no less than 30 surgeries including multiple kidney stone surgeries, 2 spinal surgeries, skiers thumb repair, a lipoma removed 3 times, and surprise knee surgery. I have medical PTSD. I woke up last August’ and my glasses just stopped working- and I needed bifocals- overnight.
I have just had a spine surgery 4/19 and within my recovery time I’ve been told I have to have knee surgery. I got that because I knelt down at my 41 year old friend’s funeral.
When I tell you the gaslighting and the attitude of the people in the doctors offices.
Thank god for nurses. I’d be dead without them!
I've had exactly the same symptoms. You'd be just casually having a shower and the 'heart attack' symptoms start. I've woken up with it happening, it's happened out on walks, or just sitting watching a film.
Many times I've taken half an hour to walk a single flight of stairs cause my heart is pounding out of my chest!
It's thoroughly terrifying every time, and never getting a diagnosis is also really difficult to deal with. Stress makes it much worse too
After years of trying everything and having a million tests and seeing specialists, medication, diet, lifestyle changes and more I worked out on my own that I have both a gluten and lactose intolerance Also heightened sensitivity since having COVID!
Cutting them out has finally helped me feel more normal 😭 it happens very very occasionally now (if I'm stressed or I eat badly) please, PLEASE consider trying it. It'll hopefully save you a lot of trouble and time you'll otherwise waste feeling awful. xx
im 15 and i have a very fast heart rate, chest pains, i go dizzy, i get pins and needles, palpitations its horrible its been 197bpm in the past and 188 while literally lying in bed at mid night, ive had shit loads of tests, heart monitor, chest x ray, chest ultrasound. all sorts. one hospital discharged me and put it down to anxiety. went to another and they said theres no problem. i adore the nhs but uts not fair. its shocking to see the same thing happening in the us
I’m so sorry you’re going through this! I think doctors are full of shit when they tell women they’re having a panic attack. As a medical assistant and a woman with common sense, I knew right away what this was. Always listen to your body and what it is telling you and find a doctor that listens. Blowing off a patient with medical gaslighting is not okay. I’m glad that you and Carlo have each other and sending lots of love and prayers to you both. Also sending love and prayers to whoever is reading this comment. ❤🙏❤️
I’m so sorry your going through this. I have recently been through the same thing and am working towards an official POTS diagnosis. I am also a nurse so I completely understand where you are coming from. I live in CT and my doctor recommended that I go to Brigham and Women hospital in Boston and contact their autonomic neurology department. I hope you get some answers soon and start to feel better ❤
Lots of people that had the Covid vaccine are getting diagnosed with POTS. My previously healthy friend now has myocarditis. Please look at the stats for increase in heart problems post vax
Untreated POTS is incapacitating
Covid vaccine contraindications stated it could cause autoimmune diseases, and any pre-existing ones would be made worse. I’ve got vitiligo, which is why I refused to be vaccinated.
I would look at vaccine detoxing
Even the WHO are now admitting the vaccine may cause MS
Yes, detox protocoles! All the best💓✨
@@babymammoth6254 many many more (orders of magnitude) get it from COVID.
I've had 10 heart surgeries in the last 2 years, my normal heart rate was around 190/200 a minute, and that was sitting or laying down, so when I think that someone has 140 pulse I'm like, I wish I had that pulse :) Anyway, I was passing out so often that I got used to it. Now It's a different thing, it went to bradichardia after I got covid so now I have pacemaker implanted after all the surgeries and covid.
You have to take care of yourself and go to the doctor as soon as you're not feeling well, whatever the problem is.
After Cooooooovid or the jab??????
Sarah, I am praying that you get answers STAT. I had a similar story to you. I was experiencing this excruciating pain in the mid - semi upper part of the left side of my rib cage. I went to dozens of doctors / hospitals / Emergency Rooms in 3 different states, and each person I saw basically said they had NO clue what the situation was, they ccouldn't find anything wrong with me. I had more x rays than I can count, multiple CT scans, 3+ MRI's, and was still told that there was nothing wrong with me. This went on for 18 YEARS, Sarah. 18 YEARS. Finally, last year (last year was year 18, I am currently in year 19), a doctor at a hospital in rural Northeast Michigan took x rays and did a CT scan, and FINALLY found a hiatal hernia AND a congenital hernia on my diaphragm. I have been going around in circles trying to find a surgeon who would operate on me to correct the hernias. Thankfully, I have an appointment with one that I have a good feeling will actually operate on me. A couple months ago, the pain got worse and the area where I was experiencing the pain got bigger- it covered alot more surface area, and it was so bad that the doctor at the E.R. I went to a couple months ago barely touched me and I started screaming in pain so loudly you could hear me 3/4 of the way down a long hallway. An updated CT scan showed I also have an enlarged spleen. When I spoke to my PCP about THAT, she said that the enlarged spleen was showing up on every CT scan I had had done over the last few years. NOBODY TOLD ME UNTIL MARCH 2023!!!!!!!!! My PCP said it was nothing to worry about, but I am going to ask the surgeon I have an appointment with in a few weeks what HIS opinion is on the situation, and see if HE thinks I should have it removed or not, because I am not sure I really trust my PCP too much at this stage, seeing as that she has kept that crucial piece of info from me for like 3-4 YEARS. The enlarged spleen is the bigger of the reasons behind all the pain I am in, but the 2 hernias are making the pain situation considerably worse.
I tell you all this partly to show that I understand what you, Sarah, are going through, and partly to encourage you and ALL your followers to advocate for themselves medically. And if someone can't advocate for themselves, I encourage you and / or your followers to find someone who can fiercely advocate for you so that you don't suffer, and that you get the CORRECT diagnosis and treatment by the CORRECT doctor(s), who actually knows what they are doing and aren't some hick from nowhere who got his or her medical degree from their child's cereal box as a "prize". I pray you get well soon, Sarah, and all of your followers who are experiencing serious medical issues
I’m so sorry you’ve been feeling like this, I hope you’ll be able to figure it out soon now! Just wanted to put it out there that you should check if they tested your vitamin B12 levels when they checked your blood. I presented with similar symptoms (orthostatic tachycardia, extreme fatigue, tingling/tremor in arm and hand, memory problems, brain fog) and went to the doctor for suspected POTS, B12 came back deficient so I started frequent injections and the symptoms have started to clear. It’s possible to get symptoms when your levels are in the grey area (where you’re slightly above deficient) and it can be auto-immune, pernicious anaemia.
Research parasites! Especially if your jabbed!
So glad that you're ok. Please prioritize your self care. As women, we tend to think about everyone else, and neglect ourselves. Love your channel! You two are such a fun couple! Take care❤
So many things in common with this story including being a nurse. But it turns out I have MS for which there are a lot of good treatment options these days. Honestly knowing it was MS was a huge relief believe it or not! Autoimmune things can be so tricky and take so long to figure out.
Blanket statements aren’t helpful. My MS was diagnosed in five weeks. It was disorienting and out of the blue. It wasn’t a battle I fought, it was brutally clear cut.
MS is the worst. I’m glad you have a “mild form”, many are not that lucky.
THE MINUTE.... THE MINUTE you started talking about your symptoms, I knew exactly what you had! Or at least I suspected it. I was diagnosed with Long Covid and tons of us have also been diagnosed with POTS. This a very common illness for us folks. I am so sorry you are going through this. You have the BEST husband by your side. If you ever need any advice or you have questions about this, please feel free to ask anytime. I hope with a diagnosis, you are able to find peace moving forward. You are not alone Sarah! 🤗❤
I am so sorry you are going through this, but I want to say a big “Thank you” for keeping it Real 🙏❤️Despite your worries and concerns you are being real and authentic and showing the diversity of being human….its ups and Downs! Not like so many online only showing the “Pretty and heavily staged/edited good bits”.
You two are so adorable and remind me so much of my British Daughter and her Madeiran Fiancée. Hope all your health concerns resolve soon 🙏🥰Make sure to take your own “Care and attention Sara”, I at 63 recognise this well and have spent most of my life doing. Please don’t leave it as long as me to start showering the care and attention you give to others, on yourself too!! You so deserve it 🥰😘
It’s so tricky when you’re having all of these symptoms…it could be anxiety, POTS, perimenopause, the list goes on. But, it looks like you’re close to a firmer diagnosis, and I’m happy that you’re out of the hospital!! Praying for your healing!!!
I didn't know you were both fellow RNs! I'm a Registered Mental Health Nurse (UK).
Sarah, that sounds like a frightening experience. I experienced something similar with a gastric ulcer (It's just anxiety, night duty, stress... OMG! I can't climb the stairs!!!).
I honestly believed I was going to die, whilst waiting for the ambulance I sat in my porch because the slightest activity made my muscles burn.
I can truly empathise with that panic that 'this is it!' - I wish you a speedy and fulfilling recovery!
They blame everything on anxiety these days. I’m someone with ZERO stress. I don’t know how many times I saw the doctor with the craziest symptoms and anxiety was always their answer. Finally was diagnosed with Cushings, removed adrenal gland, healed and still had the crazy heart rate and extreme exhaustion, recently had a pacemaker and a week later they went back in did a revision because a lead was loose and placed too close to my diaphragm. Healing now but still not normal. Sometimes it seems doctors are just guessing. Don’t give up sooner or later you will find a doctor that is determined to find your problem and correct it. In the meantime don’t let them get away with the Anxiety excuse, no one knows your body better than you do.
Hey sorry hear, hope feel better Sarah
These longer format videos is 1000 times better than the reels, keep it up !
Wow so sorry you went through that. And reading through the comments and seeing how many others struggle with the same undiagnosed scares makes me so sad for everyone. I really wish that hospitals and doctors would focus on making people feel better and live their best life rather than money. Hope everyone is able to find some peace and good health ❤
I know someone who had this post covid earlier this year. It lasted a good 2 months. He's in his mid-20s.
I was diagnosed with POTS too! It took forever and I felt constantly discredited by MDs until I met with a DO who immediately recommended me to a neurologist. Would love to see another video about your progress and experience with POTS. There isn't that much out there and it's validating to hear your experience being an RN
When you started describing your symptoms I immediately thought about POTS. So glad you’re in a place with good doctors. It takes many many years sometimes to get that diagnosis. As for the rash, an allergist/immunologist or other specialist (sometimes hematologist) can look for mast cell activation syndrome which often comes with POTS and hyper-mobility too. Best wishes
I've had similar symptoms, they ended up diagnosing me with hyperthyroidism. It may be worth your while to get your thyroid checked. I hope you get the answers you need to start getting this under control. 💞
Hi Sarah, I'm sorry you were not feeling well. I had similar symptoms and my therapist advice me to get my thyroid and hormones checked, I went to an endocrinologist with my blood tests they diagnosed me with hypothyroidism, also my vitamin D was so low I finally understood my lack of energy and depression. I'm now on treatment and very greatful for my therapist because without her I would't have taken that path!
I’ve had the same the past two years. I’m on thyroid med and vitamin D which helped. I had Covid, then pneumonia combined with Epstein bar which has trashed my lungs. Getting out of bed and taking a shower is a workout for sure. I know it’s frustrating. Hope you feel better soon.
I have POTS and my cardiologist recommended increasing my water and salt intake. I take LMNT electrolytes daily they are high in sodium so great for people with POTS and have really helped reduce how often i pass out. Working out your triggers definitely helps. Hot showers are the worst 💜
Same here!
My dr told me to do this as well, but on top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
On top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
My thoughts and prayers are with you Sarah and Carlo as you travel down this path of uncertainty. Diffidently, if you have symptoms like what you had/have Sarah go to the ER and get it checked out and don't take that "easy" way out. Follow your instincts, there is a reason your "instincts" kick in. When you feel like you're going to die that's a Very Good Clue to Something is going on, not anxiety. Blessing to you both and please keep us updated. I hope to the beach for fun. Amen 🙏
I hope you get an acurate diagnosis soon and that it is something that wont turn your world up side down. Best wishes for a quick recovery. Much love from Denmark
Olive leaf extract in 2 Oz water. Do not use preshredded cheese. It has things in it you don't need.
Hi guys, I heard from a cardiologist that many people have POTS now after having Covid. (People can have POTS without having Covid, too...). I hope you find out what it is. Take good care of yourselves during all of this.
I heard that many people have POTS from the COVID vaccines as well.
What are pots?
@@vanessamariano6103 Google POTS.
Or the shot, but nobody wants to talk about that
Sounds like damage from the jab.
My mom had the exact same symptoms and had a heart monitor many times and doctors did not know what was wrong. I did my research and found she was magnesium deficient. She takes magnesium malate and everything has cleared up.
I'm starting to think many of the issues we are having were bc of deficits in important vitamins and minerals. I've done a complete turn around about my profession in the last 5yrs. It has gotten worse in the last 4, but it's been a problem for a good while.
My niece has been diagnosed with POTS and I have suffered through years of these same symptoms without a diagnosis. I really hope that you get a solid answer, Sarah, I know it's frustrating and difficult.
POTS has been connected to the v accine. Along with bells palsy and now MS
@@onmywayto8083 huh.. so how do you explain it being decades for me and 12 years for my niece? Retroactive?
@@cyn4476 I don't know in your case. I was referring to the vaers reports that have been connected to different vaccines injuries
@@onmywayto8083 Same with covid itself
Not true, vaccine caused far more dangerous problems for middle agers and young people...
My 19 year old daughter had these symptoms and was diagnosed with Wolff Parkison White Syndrome. She had an ablation and has been better since. She had to see an electrocardiologist for true diagnosis. I hope you are doing better now. Best wishes!
THANK YOU for posting this because my daughter has been suffering these same episodes. This totally validated what she's had been telling her Dr for 2 years... and she was told it was just anxiety by her female Dr.. Until she went in experiencing POTS while in the office visit. Now she's moving through the Dr system trying to figure out what it is that she has. This only started happening after the COVID SHOT & having covid.
Wow, thanks for sharing. So sorry you had to go through that experience. Sounds scary. I hope you find an answer, and get the proper care.
That's scary AF. Thanks for sharing. Sending positive vibes your way, you guys. Hope you had fun at the beach.
Sarah, I'm so glad you are doing well. You and Carlo are perfect for one another. God bless you. I'm glad the Lord healed you. Have a great vacation guys! Love your channel. !
Sorry you are dealing with this too. So many people (esp. young women) have POTS and they still tell them they're having a panic attack or it's anxiety. Makes me so mad!
We really hope that research moves faster now as covid has increased the numbers of people affected.
Also, please look up MECFS. Doesn't mean you have it, but if you did, it would be important to not overexert yourself. It's tricky to realize you have it, because worsening of symptoms usually comes with a delay of about 1 day.
Sending love ❤
My dr told me to do this as well, but on top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
I hope you get the answers you need soon. In the meantime try to remember that a positive mindset is powerful medicine. I say this as someone who has been living with cancer for 20 years. I'll be saying a prayer for you and your doctors.
So happy you're getting better, my husband went through those same exact symptoms but he took an antibiotic and had an adverse reaction which basically poisoned him . He has what's called flouroquinolone toxicity so If you took any antibiotics like Cipro, levaquin etc before those things happened it doesn't hurt to check .
Try an Electrophysiologist - EP STUDY to rule out SVT. Supraventricular tachycardia.
For years I have been misdiagnosed with Panic attacks until a miracle of 1 ER that finally had discovered my issue. I needed an ablation of 2 electrical pathways that spun my heart out of control - over 200 bpm. Crazy shaking after episodes, at resting, sleeping, or overheating.
Symptoms
The main symptom of supraventricular tachycardia (SVT) is a very fast heartbeat that may last for a few minutes to a few days. The heart beats 100 or more times a minute. Usually during SVT, the heart beats 150 to 220 times a minute. The fast heartbeat may come and go suddenly.
Symptoms of supraventricular tachycardia may include:
Pounding or fluttering feelings in the chest, called palpitations.
A pounding sensation in the neck.
Chest pain.
Fainting or almost fainting.
Lightheadedness or dizziness.
Shortness of breath.
Sweating.
Weakness or extreme tiredness.
Never heard of POTS but it is interesting to see what I can learn about it. My daughter has this same issue and gets the same diagnosis as panic attacks or anxiety attacks and the brush offs. Thanks for sharing❣️happens you get good care and final diagnosis and great treatment options❤
Thinking of you both. My wife and I are sending you both prayers that everything will be ok. So lucky you both have each other. Please keep us updated. ❤🙏
Sarah, I am so sorry to hear what you have been going through. I pray that you are able to get the right answers and treatment. Love to you both. Ann x
Love you guys! Praying for you, Sarah and Carlo. Your love for each other will overcome any obstacles and God will be with you all the way. ❤
Yes anxiety is what they put a lot down too without doing proper home work so glad you went to the hospital and followed up. Be well I am a new subscriber and you are such a beautiful couple. God bless you both every day.
I can totally understand I found out when I was 30 that I had thyroid problems and when I was in my 40s, the thyroid medicine was expensive so I thought I no big deal. I’ll just quit taking it for a little while and as I was laying in a hospital bed. The doctor started telling me, quite loud tones that my thyroid helps run the electrical impulses in my heart and I was 2 inches away from a heart attack so I’m glad that you’re finding out what you need to do because it’s important. Good luck darlin I hope you remain healthy and happy.
The first symptoms you were talking about made me think Lupus. I really hope you check for it so you can rule it out. My brother lost a girlfriend to it because she ignored symptoms and it wasn't diagnosed soon enough. I hope you get it figured out and get feeling better, and please don't wait so long to get help. ❤
Get well soon Sarah. Sending love and healing. I hope you find out soon what you have. Bless Carlo for taking such good care of you. Thank you for letting us know.
Curious question…Have you taken the Covid shot?
I'm so glad you're alright! ♥️ Two years of what MD's said were panic attacks. Heartbeat was no less than 250 bpm, no lie! Finally, I blacked out, heart rate very high, three times I was hospitalized for stress. Turns out it was Super-ventricular tachycardia. My last one occurred at a well-known department store. I bent over to pick up a pair of gloves that had fallen on the floor. I couldn't stand all the way up, so I laid down on the floor. I honestly felt like I was having a heart attack. Paramedics came and I've been fine ever since. You just never know! I'll be praying for you guys!
So very happy you are feeling better. Hope you find out what exactly is happening but so glad both of you are nurses and aware when something is very wrong. Please keep us updated. Take care yourself and take a rest. Just relax and work on your help. Carlo you are a great husband. Make sure she relaxes and rest.
Try to see a neuropath or Eastern medicine doctor. I got back my blood work and everything was normal except one hormone was slightly elevated (I forget which). My GP said most doctors would probably recommend a certain medication (which had been recommended to me in the past). Instead my GP recommended yoga 🧘🏽♀️ which I definitely don't do enough of. I love that my GP errs on the side of less drugs, more "move your body" "relax your body".
I was vaccine injured after my second Covid shot and all the doctors told me I just had anxiety. Turns out it’s myocarditis. A lot of people got POTS after Covid and Covid vaccine so I would look into that too.
Oh boy !! Sarah!! Feel better bella!! and thank you both for being nurses. I didn’t realize that you were that’s the first I’ve heard of that from any of your videos. That’s awesome take care and I hope you had fun at the beach and got your vitamin D.🎉🎉
My heart goes up to 160-180 bpm, and I have PSVT. I hope you are doing ok. Sarah, I'm praying for your health. ❤❤❤❤❤
My daughter has POTS since she has been on medication it has made a huge difference in her life . She also has sclerderma as well it is very rare and took alot of years to get diagnosed it is an autoimmune disease . We went through hell for 5 years to finally get a diagnosis we were told for years it's anxiety ect thank God we didn't give up because she would have gotten sicker 😔 she also has endometrisis as well ....hang in there it is all about finding the right doctor and them doing the right tests ❤❤
Omg! That must have been so scary! Can’t imagine this. So sorry to hear this Sarah! Hope you get to figure out the right diagnosis so you can prevent or manage your symptoms. Sending prayers your way from one fellow nurse to another ❤
Check T3, T4, THS and also Vitamin D and Magnesium levels. Hope you get answers for improved health!
Oh wow! Thank God both Carlo and Sarah are both nurses! I cannot imagine what Carlo was feeling during that! I am relieved that Sarah is feeling better!
I have an accelerated heart rate from time to time and it can be a tricky thing. I can imagine how that can freak you out, especially since you actually have the nursing background to back it up. Hope all goes well!
I developed this from COVID and the vaccines. It’s a form of dysautonomia. Don’t let anyone tell you it’s “just anxiety”
Please keep us posted! This sounds a lot like what I’ve been going through and everyone including doctors have been saying it’s stress or long covid symptoms so it might be that. I’ve never been the same since. I could be cleaning or sitting randomly and have sharp chest pain out of no where that isn’t anxiety related. It’s just so random. My simple workouts have never felt harder or simple tasks like you said. I hope the doctors figure out what it is and how to help those suffering from it.
It’s the vaccine
Are you vaccinated??
@@babymammoth6254 I think the vaccine is causing a lot of illnesses, I know many including myself that are suffering with extreme tiredness and other symptoms since having the jab, also know way too many who currently have cancer, had HA or clots
When I had thyroid cancer and heart failure together it was some like this have they checked your thyroid and that said mine tested good on labs but I did have thyroid cancer after all they removed it all came back into order praying you find your answers and are healed in Jesus mighty name sweet Sarah
You really have to be your own advocate these days. I was misdiagnosed for over a year for gall stones, and ended up in the emerg having surgery because my doctor just didn't think it was gall stones & then lost the results of the ultrasound I had the year before which showed them. I'm so sorry you're going through all this, you are a young healthy woman, you shouldn't have to deal with this! Praying you get some answers & get back to full health soon.
Currently, I have a condition called 'post gustatory hypertension'.... When I eat, I sweat profusely, my blood pressure increases, and my pulse rate can reach 200bpm plus. Also, as a Charge Nurse in the UK, this was MASSIVELY concerning.....I am STILL in limbo, jolting, monitoring, and yet Doctors seemingly don't care....Arrhythmias are dangerous and concerning. I trust you get it sorted ❤❤❤❤
covaids shot?
You've helped me immensely. Thank y'all so much. I hope you enjoyed your beach day! ❤
Oh WoW Sarah, what a saga to be going through. I find it amazing how health care workers can be so dismissive without even making a proper assessment. I’m glad you are on a clearer path to finding out what this is. Carlo is so supportive and both being nurses you know when something isn’t right! Stick to that gut instinct.
Oh, I'm sorry you're feeling so unwell. A lot of those symptoms could be from Covid. Pots syndrome. My son had those symptoms and other weird random things too. It is hard to figure out because it's all these strange syndromes post covid. We're all learning about it together unfortunately. Hope you feel better.
Could as well be Post Vac, unfortunately. I know 2 ppl personally with very similar symptoms who have never had Covid in their lives. But the Vac.
@@k-mixxx7927 I agree! I have about 15 clients who have all had mysterious illnesses but not a single one is questioning the possibility of it being a reaction/response to the va$$. It literally breaks my heart to see this happening.
@@niascheiber horrible 🙈 my son, my partner and my husband also had problems... My son luckily only for some months and it was very obvious that it came from the vxxxx (same day). My dad almost died with 2 heart attacks, needed reanimation and operation (some days after the vxxxx). My partner is suddenly deaf on one ear but he denies every connection.
2 friends of my dad died after the booster, same time he had the heart attack (they went for the booster together). Another friend of him lost sight on one eye after booster.
My boss suddenly got an Autoimmune disease after the second v, and Colitis Ulcerosa after the booster. My daughter in law is ill every 2-3 weeks since the booster.
The other 2 friends I spoke of, are suffering since 2 years now and can not have a halfway normal life anymore. Let alone all the others on Instagram, who speak about their stories... 🙈🙈🙈
This can't be normal! Neither one of all the ppl I wrote, had Covid at this time. No one. It CAN'T be Long Covid then. It just can't. Still, docs tell them it's Long Covid and they must have had it without noticing 🙈 eh come on!!!
I had the same symptoms for months and months, SOB, paresthesias, dizziness, heart rate switched from tachy to brady and back, extreme weakness/lethargy. I would turn purplish red. I also had POTS symptoms though not the typical POTS. My neurologist finally drew a slew of labs and discovered my B12, Vit D, Iron and ferritin were all critically low. Especially the B12 which they started on injections immediately every other day. It took a neurologist to finally get to the bottom of this. It’s still ongoing but finally doctors are taking me seriously. I also have 3 autoimmune diseases that can affect how I feel. I’m praying you’re feeling better Sarah. I also am a nurse and yes, a bit of knowledge can be a bad thing 😂 Our brains immediately turn to worst case scenarios. I’m praying for your healing.
Hope you get a right diagnostic soon Sarah. Love you both!
You have POTS for sure. It's dysautonomia. Your autonomic nervous system crashed, so to speak. Did you have a prior infection or vac? Or did it just creep in slowly? I'm an MD and I went through POTS 20 years ago. Imagine what kind of a fight I had to fight with dumbdocs then! Practically nothing was known about it at the time. It is a slow recovery (over 1 year), but I recovered fully (because it was an acute episode after a vaccination).
Wow! I'm shocked it was not svt. I work in an emergency room and your described symptoms presented as svt. (I'm also glad it was not anxiety 😅). I'm glad you are OK. Sending prayers 🙏 ❤
I’m so sorry for what you’re going through!! It was hard for me to even listen to your symptoms because I have suffered these exact symptoms for almost 25 yrs now. I’m sure you’re probably getting a lot of people commenting different things, but I promise, I have those exact symptoms. Dragging myself out of bed, the constant heart racing, and being so short of breath..etc. mine started in my mid 20’s, 26. I wasn’t diagnosed until I was 30, because firstly I was diagnosed with horrible anxiety disorder! I heard you mention an autoimmune disorder and MS as a possibility, well I was diagnosed with MD, which is Myotonic Muscular Dystrophy. You cannot tell by looking at me, and it comes on adults in their mid to late 20’s, with a 50 year progression period. Not saying that’s what you have at all. I just hate to see another person go through literal years to figure it out. If nothing else, a good Neurologist can at least rule some of these autoimmune diseases out for you. Good luck and God Bless!! 🙏🏼✨🍀
Have you been exposed to mold? This sounds like me before I found out I was being exposed to mold. POTS can be caused by a Vax injury
I know this because my son and I are both V injured
I know so many people who died right after the vax or booster. My brother now has stage 4 cancer. Came out of nowhere fast, right after he took a 4th injection. He now has about 4 months to live. The vax kills anti-tumor genes. Proven.
I have POTS and Bradycardia, i have to get up slowly. My heart rate can be low enough to make all the alarms go off. I was told that eventually I will need a pacemaker. I'm very thankful for having a good set of doctors.
I remember, just before I was diagnosed with POTS. My sister was dying from cancer. I went 5 days a week to help my mom care for her. When she would call for me, i would jump up. I took around 5 steps, and everything went black. The room was spinning, and I almost pulled a bookcase down on me. It wasn't the first time it happened, but it was the closest i came to seriously hurting myself!
Sarah, I really hope you find the right doctor to help you. Sending prayers your way.
Been waiting on an update sorry to hear prayers for Sarah and hope things settle down soon and get better 🙏
Hi Carlo& Sarah!! I’m so sorry you haven’t been feeling well,Sarah!! This is why I find it so frustrating when doctors dismiss patient’s symptoms!! I’m glad you’re both nurses and know what protocols you need to follow for your care!! Please take care of yourselves!! Sending prayers and love to you both!!!😍😍😍😍🙏🙏🙏🙏
I spent over 8 months off work, with top cardiologists telling me that I could not feel what I did, eventually my sister , an ICU nurse suggested I ask for a particular drug, the Dr. shrugged and gave me a script , it literally was like magic, switched off the palpitations and I’m working still, but if I forget to take it, it comes back. They tried the whole anxiety thing with me too and tried to kill me with beta blockers.Drs don’t always know or care.
Can I ask the medication you take that helped? I’ve been struggling for years
Same here, out of control tachycardia several times before I had care other than myself bc I am an RN. Tried all protocols to no avail until I hit 225 sustained over 4 hours-scary with a terminally ill husband at home requiring 24/7 care-and got a DX of SVT’s after a 30 day Holter test. Now all is good without any symptoms or complications. Hope you’re doing good Sarah!
Not research, but for me n=1, I had mild covid and got POTS after. Ignored it and got a burnout after a while. A year later, right now I'm getting into the mind-body theory, and I feel like for me that might be the answer. If you're interested, read "Breaking Free" by Jan Rothney
Thanks for that: my daughter’s been having these episodes so your vid has been useful especially about the ANA test. ❤
Ahhhh yes….anxiety 🙄. That’s what they tried telling me too.
Sarah you sound like you are telling my story from 5 years ago. Not one physician could tell me what was wrong with me. For 3 months I knew I was going to die. I literally felt like my body was giving up. In the end it actually was. I ended up in the hospital for 4 days and couldn’t walk. I couldn’t finish a shower. They thought pots, they thought everything that would eventually end my life. Long story short I did some research myself because I knew I wasn’t going to last much longer living like I was. I begged them to check my b12 after my family doctor mentioned it was borderline deficient. Have your level checked. Then once you have your level get yourself a vial of b12 and a syringe and give yourself an injection if no doctor wants to admit that that is what it is. Your level does not have to be super low to be anemic. I was on daily loading doses for a couple of weeks and 5 years later am still on weekly injections. Once I had a few b12 injections I took a maintenance dose of folate for a while and iron as they will come down as they are finally able to do what they need to do. None of them works without the other. I have never felt better. When I finally figured it out I felt better than I ever had. Some cofactors such as potassium and magnesium levels need to be monitored as they also get used up in the early goings. Good luck! I hope you feel better soon!
Btw….you wouldn’t believe how many have the same story.
Med student : Went through something similar (150 bpm only when standing up, came on very brutally), never got a proper diagnosis (except anxiety...) It for sure looks very much like POTS !! Your ANA being positive doesn't necessarily mean anything especially when that low
Until you have a final diagnosis you could increase your salt intake and wear compression socks, it helps a lot to lower your heart rate. If it's POTS it will probably calm down eventually, it often comes in waves.
May God bless you with a true diagnosis soon and a miraculous healing! Thank you for sharing you probably have helped thousands of others.❤❤❤
These same things were happening to me in 2014 and after a million tests I finally found some country bumpkin doc who figured out I have Sarcoidosis. It's a rare autoimmune disease and no one knows why it comes or how to truly get rid of it, but I did Solumedral infusions for 3 years every other week and it put the Sarc in remission. Every now and then I start getting super sleepy and my heart starts to act up again so they put me on Metoporal for the heart palpitations. It's helped a LOT!
I hope you feel better Sarah ❤️🫶🏻 sending love to you guys
I’ve had all of your symptoms and recently seen a neuromuscular Dr in FL. He diagnosed me with POTS and I started on Propranolol. It’s helped significantly. Also increasing water and salt.
I also have autoimmune issues AS and RA. Which autoimmune issues come in pairs a lot of the times.
Wishing you the best. I hope you start feeling better really soon and find answers. Hopefully they can help you.
Thanks for the update! Glad you are doing better now and hope all turns out well for you! Love your videos 😊
You are without doubt the cutest couple on earth. When I hear Carlo trying to pronounce some words and gets them half right, it reminds my of my late Italian Mother-in-law. As for those Doctor's with their dismissive attitude, I had the same problem, one flat out told me it was all in my imagination. I could be sitting still and my heart rate would go so fast I felt like my heart was going to jump right out of my body. It took a woman Doctor who sat and patiently listened to what I was saying that found out my problem and steered me in the right direction and specialist that was able to treat me. I am quite old, but thanks be to God for the Doctor who did listen, I now have a better quality of life. Just remember that the squeaky wheel always gets the most attention, keep asking questions. Good health to you both, and God Bless.
My favorite Couple Always 🇺🇬🇺🇬🇺🇬❤❤❤❤