Thsnk you for this video. I have all the symptoms you describe for BMS. I have been so frustrated for the past 2 weeks! I now have something to go on. Thank you so much!
Best presentation I’ve ever seen. Thank you so much. I have endured torture from doctors who told me this condition was stress-based even though I have neurological symptoms and a condition that affects the rest of my body. I’ve felt like a dismissed joke. Thank you from the bottom of my heart for compiling the research and studying this condition with such compassion. I wish my doctors would listen to your presentation in full.
Hi @LGrannis. Getting dismissed is one of the biggest problems with burning mouth syndrome. We take it seriously. Find out more on getting help on my website: susansklarmd.com/
Had burning mouth syndrome for about a year. I found It difficult to brush my teeth with regular toothpaste. After trying many brands, l found the kids watermelon and strawberry flavour (found at Walmart) the only paste l could use. If your suffering with this and worried your teeth are getting cavities due to the pain of cleaning your teeth give the kid stuff a try. Hope this helps.
Thank you so much for this valuable information. I have had this for 3 years now and this is the first time I´ve seen a dr. taking it seriusly. for two years I´ve seen 11 doctors, no one could help me. most of them said is was all in my head.
Jeff Henriksen It actually may well be in the head, Dr John Sarno the chronic pain specialist describes BMS as one the many different mind body syndromes ( In most ppl MBS manifests as severe back pain) that may occur at times of severe stress, depression. The brain scans of people who suffer from central pain sensitization show low seratonin and dopamine levels, it is all related to stress.
Wow that was so informative and helpful!. I've had Burning Mouth Syndrome for almost 7 & a half years after a session of Zoom teeth whitening at the dentist. This was the most comprehensive presentation I have heard in that whole time. Keeping calm & working on your stress levels is key. Thank you.
Thank you so much for putting this very detailed educational and easy to grasp video on burning mouth syndrome . I have burning mouth syndrome for the past 6 weeks , it was diagnosed within 2 weeks of symptoms . I got burning mouth syndrome directly from a tooth extraction that was complicated because I’am on warfin for the past 22 years from having a mitral valve replacement. Whatever the oral surgeon used to prevent bleeding after the extraction worked brilliantly but unfortunately triggered BMS . My symptoms are mainly on my tongue and it’s exactly painful at the tip of the tongue and can move from side to side as you stated at the beginning of the video .. I thought it might be getting better two weeks ago but sadly flared up again as bad as ever .. I’am not as depressed about it as much as I was initially, I think ? but possibly have a low grade depression from the chronic pain . it might be worth my while trying the tablet that melts on your tongue or visit my endocrinologist and discuss hormone possibilities .. I’am 68 and not sure he would consider prescribing hormone replacement for me at my age + my mother had a mastectomy when she was 60 years of age ..thank you again. You are a marvellous doctor and teacher. I appreciate the work and research you put into this video, I really do!
If I could make a suggestion that made a HUGE difference for me 8 yrs ago. I gave up all pre packaged foods, breads/flours, seed oils salad dressing, mayo, also stopped eating out for a few months. My symptons (burning lips & tongue cleared, as did fibromyalgia. Try for couple of months. No alcohol….sodas etc. Don’t bring it home! I know how I am……if it’s in the hse…..I’ ll eat it!
I suffered BMS. It was horribly painful & debilitating. In my case, it was caused by a severe allergic reaction to nuts, wheat, soy and/or molds in these products. Highly sweetened foods and beverages also worsened the burning, in my case. I stopped eating these products and the BMS stopped. Over the counter pills for allergies also provided some relief for me. Testing for allergies related to these, or other food substances one is ingesting or breathing may be a good idea.
Mine came from a black pepper vegetable soup. Mouth filled with red spots and feels burnt. Stopped eating it. Went away. Had fizzy drinks on the weekend and it came back. Fuckin odd.
Just finished this very informative video. Wow you are the one and only Dr. That I've heard take any jnterest in trying to find out what is happening to all of us suffering. This is horrible. Mine just returned after several months of remissjon. I was diagnosed by a naturooayh and basically was told there wasn't much he could do to treat it. This is horrible miserable. Thank you for all of this information. I've subscribed and well be saving for a consult.
Thank you for this. I had two crowns replace and a root canal and got blisters on both sides of underneath tongue. That was nearly 4 months ago. It has been very rough. Burning front of tongue on and off. Been to many doctors and they are all stumped including Oral specialists. I am praying this all goes away.
I started having this over the last year come and go and I’m perimenopausal...I remember my mother constantly complaining about this issue... it’s awful.. I do aloe Vera mouth rinses a few times a day that helps and I rub turmeric all over my tongue to help reduce the inflammation...I do find it helpful.....I want to get on some form of bio identical hrt but have no insurance
@ The Mic74key did you 55:18 get the hrt bio identical, have you healed. I'M perimenopausal live in the uk doctor just prescribed anti-depressant . I also have sore throat with a bad cough
I have been dealing with BMS for almost 3 years now. It started a couple to three weeks after having a tooth removed by an oral surgeon and taking medication for infection. After reading some of this information, the one common link I have read is that I and some others took antibiotics after having oral work done.
The cranial bones are not fused and have minute movements that promote the correct flow of spinal fluid in and out of the brain and spinal canal. So, removing a tooth can offset the jaw and/ or upper palate. This can cause abnormal pressures on the cranial nerves ( check that out) and nerve dysfunction/ pain in many facial areas. Check out the videos by Brendan Stack, DDS if they are still up. Brilliant person. A craniosacral therapist / traditional osteopath may help. ❤️
Thank you for this thorough discussion. I just had an appt with an allergist who suspects burning tongue and is starting with ordering a slew of blood tests. He mentioned possible hormonal, mast cell, etc., issues. I went to him for food allergies and we'll do the skin scratch tests after blood tests. I have chronic lower back pain as well, due to degenerative disc disease. These issues are certainly depressing and I look forward to getting relief. Thank you again for this video.
My mother has exact same things as you. Degenerative disc, allergies and burning mouth. I am hoping that this information I heard today will help her in finding some kind of relief for her burning mouth.
I loved your very informative video! am 73 years old and live in Israel. I got a very se ere BMS just on the left side of the mouth after a stroke that happened two years ago. I wonder if you saw neurological cases like mine and what would you recommend for treatments that I can ask to be prescribed here. Thank you in advance gor your help!
Hello @ClaudeSaban. I have not had experience with burning mouth following a stroke but many of the same treatments may work for you. Please see our website for more information: susansklarmd.com/
Help, constant pain can't take it much longer 10 weeks old. What can I do? Thank you, I take Lisinopril and I will stop that. I'm also under severe stress and have been for years. I'm a pre-diabetic. Finally I have a 22-year neuropathy that the diagnosing doctor believed was charcot-marie-tooth. I now believe it was more along the lines of electrohypersensitivity or radiation sickness.
@@drsklar Yes it was a number of different factors had to work them out one by one, did take 3 years though but compared to now a whole different world
@@mazhussain3470 I didnt take any meds, just took care of my B12 deficiency, which caused alot of other vitamins to be deficient (found out I malabsorp B12, because of reflux). To get rid of reflux, had to change eating pattern and habits and cut off PPI (Stomach meds, which there you go caused B12 deficiency and burning mouth, I had silent reflux. To relieve tension from years of teethgrinding due all of it, I wore a very smal light silicon soft device to keep teeth apart from tongue and keep mind of the whole BMS thing. I can now brush teeth again with any toothpaste, eat most things, but in moderation and finding out what causes reflux, B12 the key the main ingredient injections not pills, since they dont do nothing, took 2 years of injections to get back up, and I had severe BMS/nervepains/toothnerve pain/stomach aches in the end it kind of all hangs together one thing at the time
@@Luke_Sidewalker Thanks for your response, reflux seems to be the primary physical cause for BMS, just out of curiosity did you suffer from any cough??
😢 I have I believe being a man burning mouth syndrome have had it for almost 4 months now and they cannot figure out what I had so I found this information online I have all the symptoms and going through everything it says I mean everything I am so frustrated and so tired and so exhausted and in so much pain I didn't know what to do couldn't put anything in my mouth numbing
I have had severe burning of lower inner lip and sometimes end of tongue for about five years now. I constantly clear my throat due to mucous clog and my throat is often raw. Other areas are burning too, my anogenital area, worse when sitting or lying down, other areas on body burn. I was just diagnosed with small fiber neuropathy, though I'm very hypersensitive to everything, especial colognes, lotions, blooming trees, dryer sheets, candles, anything scented. I dont have numbness anywhere on my body like most people with neuropathy do. I wish my doctor would just test me for mast cell activation syndrome, even to just rule it out.
I've had bms for about 5 years now, already on clonazapam and bruproprion for decades. Started off with metallic taste. My pcp told me to see my dentists, so I had all my old filling replaced. Then she took a blood test for lead. Then pretty much threw her hands up.
I stopped sweating 2 years ago and my body started burning24/7 nonstop. Reently last 6 months I have burning mouth. It gets dry. No doctor cares about my body burning nonstop. Not my body temp but my entire body feels like I have a fever non-stop. I have no quality of life. I just exist and take care of my disabled son. I hope you read this. Thanks.
My dentist's office recommended a night-time and day-time dry mouth remedy by OraCoat called "XyliMelts" that is sold on Amazon. Dru mouth CAN cause Burning Mouth Syndrome, or greatly contribute to it. These little pills stay inside your cheek, and THEY WORK. I hope this helps! Please don't let this get you down, you WILL find things that help. You are not alone with this, many people have it. Take care!
Do you take anything for it my whole body burns with BMS and I have sore throat and dry cough This illness is awful, I hope you find some cure soon as I'm from the U.K. All the doctors I have seen are clueless until I came across the very informative lady I knew what was wrong with me.
Oh just come across your YT channel your son is gorgeous. Does BMS affect your Mental health I started to feel really depressed and I didn't know ,now I know the two are connected feel there is no hope to recovery from this . Our NHS doctor jus shove antidepressants done us and therapy you will feel better in a few years
Hello I have had burning mouth for about 9 months now checked with the dentist nothing was found changed my toothpaste nothing have trouble eating and lost about 10/15 lbs burning is bad I have reached the point of no return. I am thinking it’s a vitamin problem but not sure I use to take Vitamin B12 shots then moved to the tablets and I have stopped I am not much of a meat person more vegetarian but the burning is terrible on a scale of 1-10 it’s 15. I am also diabetic so is there help for me
@sharina singh5180 Did you get the help you needed How are you doing now. Thought you could show some light to what is going if balancing hormone was a option for you
Please tell me, do you recommend taking alpha-lipoic acid 600 mg 2-3 per day. Is this 1800 mg per day? That's not a lot? I found a dosage of 100 mg. And how long can you take it?
Hello there! Thank you for the question. Some studies show benefit with lipoic acid. Others don't. The usual doses used in the studies is 200 mg three times a day. No one can say how long you can take it, but it appears to be safe.
@@hasinapatel1233 I took alpha lipoic acid for 2 months at a dosage of 1200 mg per day. No changes occurred. The burning sensation remained at the same level. This has been going on for 7 years now(((
I have had burning mouth syndrome since March of this year. I have cervical dystonia and I don't know if this is cause. My dentist said my teeth have are OK just worn I ĥave just been and had some blood tests done.
@Indi queen of unicorns Then try Benzydamine Hydrochloride mouthwash, was also effective however the clonazepam gave me complete remission, make sure you avoid swallowing the clonazepam.
@@Supsup7777 I simply let it dissolve in the mouth then spat it out, did wonders for me, within days it completely disappeared and hopefully will stay this way, i was also experiencing burning eyes which was directly linked to the BMS , that too disappeared, mine was the primary version of BMS (chronic dryness, burning mouth and pins/needles/tingling on my lips and upper chin) with no known cause except extreme stress at the time it emerged BTW it may be linked with dopamine and testosterone levels, try to boost these in conjunction with clonazapam use, if indeed you have the primary version of this horrible condition...BTW doctors in India claim anti-leprosy medication has shown great promise in BMS, lets hope. Regards and good luck Marisa
Ovary removed and I have this problem. I’m on hormone pellets put in so my hormones are spot on. I’m 99.9% sure it’s my THYROID! Had this for over 10 years and in that time frame I went 1 month free of pain when I thought I had my Thyroid right on but seem to keep missing the my mark. I believe my thyroid swings for me to keep it on the mark.
@@sherriheadaccordion The movement of the jaw and neck are interconnected. My neck injury caused my lower jaw to rotate and retract. There is an expert dentist who uses appliances to “ correct” neurological problems. Brendan Stack - May be retired now. Watch his videos.
My wife is a 7 year breast cancer survivor, who has been suffering with BMS for the past 18 months. Hers starts from the moment she wakes up until she goes to sleep. What course of treatment would you recommend for her, as well as other women who are cancer survivors with this miserable condition?
My dentist told me the burning mouth is from fungus and that i could get a prescription from my doctor. The doctor checked my mouth briefly and said I have no fungus.
Hello. Yes, sometimes thrush (fungus in the mouth) can cause burning. Please see our website and burning mouth online course to learn more: susansklarmd.com/
I’ve had this for 7 months after my mother died I was her carer for 18 yrs she died in front of me I tried too save her but couldn’t then my sister died 6 months later , I had the flu then had burning mouth syndrome, before that nothing , I’m dealing with grief issues and broken heart god bless all
Hi. We are so sorry to hear about your losses. Stress, loss and anxiety often precede burning mouth syndrome. There is more information on our website www.sklarcenter.com
Im a 32 year old guy and ive had burning mouth for about 3 months. My doc suspects its LPR/GERD but endoscopy came back clean with no irritation in my esophagus. I took heavy PPIs and H2 blockers for about 2 months and it didnt seem to help. I feel like ive hit a wall, how can i know if im refluxing or not? I dont have any heart burn or actual liquid coming up. Being a 32 year old guy i find it hard to believe that its primary BMS but at this point I have no idea.
Eat yogurt in any of the berry flavour, berry flavour ensure and drink berry blue Gatorade with alkaline water. Eat lots of water melon and leafy green vegetables. No hot fluids cause u r burning. Drink cool liquids, no caffeine, citrus fruits or alcohol. Get a good probiotic and u will be fine. Stay calm it helps also.
Hello Artjan, any improvement with your symptoms? I'm a 31 year old male, I've had this for 2 weeks only and it's already driving me crazy. Doctor thought it was a Candida issue but the treatment only seems to have made it worse..
@@josdeman5754 Hey im sorry to hear your dealing with similar symptoms. Im almost a year in since mine started and my symptoms are basically the same. From all the doctors ive seen no one really seems to pin point what is actually the problem. From everything ive gathered its LPR that is anxiety induced. I'm not sure if your symptoms are the same as mine but thats what they seem to think is my issue. Try gargling with a alkaline water and baking soda mixture a few times a day and see if that improves your symptoms. It seems to help mine when it gets bad. Good luck and most importantly keep your stress and anxiety under control dont make the same mistakes i did. God bless.
@@Artjan1 Hello Arjan, thanks for the quick response. Anxiety and stress seem to be the logic cause. For the past year I've had some really bad sleeping problems, I'm extremely fatigued and under a lot of stress. I've made a dentist appointment and have blood work scheduled to rule out any secondary causes. If all turns out negative with the tests, it seems the only option is to try and manage my stress levels. Good luck to you too 👍👍
Been two year after dental work I have this discomfort still have it after I spend almost lot of money on new bridge that have to remove dentist never reimburse me still have discomfiting and lost the money
What are your thoughts on on nasal cortisone spray and the correlation to BMS? Been on a nasal spray for 16 weeks never had BMS but I think I may now have a mild case of thrush from the spray!!!!!! I’m so pissed at my DR! They never ever tell you anything about adverse effects! Here’s your RX now I can BILL! So angry and frustrated!
I have suffered for 11 months... i am in Canada.... can i get on the mailing list so i can share with my young doctor who i think is not really believing how serious this is for me... I plan to try to share this video with her, so, if you can send a copy of the video that i can share, that would be good. I had a complete hysterectomy when i was 30 years old and refused to take Premarin... so, my hormones are wayyyy. out of whack..... perhaps I could benefit from bioavailable hormones. however, my young doctor says no way she would give me hormones because of heart problem they might cause.... I would like to try the hormones for a period of time to see if it helps because i have had one or another chronic pain problem for years.... fibromyalgia. etc. I would also consider a consultation if it isn't too expensive... as i am 78 years old and on a very small monthly income. please advise...
God bless you Dr Skylar for posting this video. Bms is horrific. I really think the low dose naltrexone is starting to diminish the heinous intensity of my bms. 4 mg per day. Only a month in..we shall see!
Our Doctors are USELESS!!!! been suffering with this for past year saw everything primary doctor dentist for allergies ! Nobody knew ! Thank GOD for this video THANK YOU THANK YOU ! And just got diagnosed with neuropathy also have chronic pain so this all makes sense ! But all the other things can attribute wow so so much help
I'll be 67 next week.. I've been postmenopausal for 19 yrs, so that's not it.. I eat clean keto, don't drink (even pop), smoke, or do drugs, so that's not it. I take zinc, B-complex, B1, Vit D, & other supplements daily. I've also been on Levothyroxin for about 5 yrs bc of hypothyroidism, but my levels are good.. as is my glucose level. But my burning tongue & mouth... I know exactly when it started! It was about 3.5 yrs ago, right after I had 5 top teeth pulled & got a partial (my teeth were breaking & a crown broke off at my gumline). Then last January, I had to have the rest of my uppers pulled & I got a denture because more teeth had chipped & another crown broke off (I have had weak teeth my whole life). Trust me, this is HORRIBLE! My tongue burns within an hour of waking up & the inside of my lips feel raw a lot. Many times now, it feels like nerve endings are exposed on the edge of my now toothless top gums. I also get cotton mouth a LOT, but I know I'm still producing saliva bc I can feel it on the outside of my lips. I had never heard of this until it started happening to me... and I wouldn't wish it on ANYONE!
My burning mouth pain involves my tongue, lips and cheeks. I have non stop neuropathy pain from my cheeks down the entire right side of my body with the one exception of my right thigh plus both hands and feet. Does anyone else have FND? Functional Neurological Disorder or Fibromyalgia? All nerve and brain related, I have all of these and have to think they are all connected.
Mine too and it started last year. My lips started to swell I could actually feel them swelling. Then developed white patches on the inside of my cheeks and side of tongue. It went away but came back this morning.
Mayo Clinic did a nerve test on my legs that was extremely painful using electrical current, could that have been small fiber neuropathy testing? I have neuropathy in my feet and hands also. My mouth feels swollen inside and I keep biting the inside so I have to be careful, a new occurance. I also get white ridges along the outside of my tongue and along the inside of my lower lip. .....I will look up MCA. Thank you for offering ideas...
I have a burning mouth, tongue, throat and feels like my lungs burning too. It started about two years now. it's really upsetting annoying. life is not enjoyable.
I think I have this. I’m 41. Mine began this summer, June. All of sudden. I was experiencing high anxiety for months, due to Covid 19. Also began having weird gut issues and I think I have silent reflux. My primary thinks it’s all in my head. I’m really suffering. Also around the same time I was experiencing a lot of inflammation in my joints like my neck, mid back, low back. I was just aching and stressed. Then had a really bad low back flare up in July lasted through October 15. After several chiropractor treatments my back is back to normal now.
Hello TruthSeeker. Many doctors think this is an imagined or made up problem. It is a real disorder. Please contact us at 562-596-5196 for more information. Dr. Sklar
just ordered lipolic acid. tried pepcid and nexium (h2 blocker) and it provided temporary relief. going to a dr next week for a 2nd time. Dr didnt take me srsly the first time over 6 months ago.
So sorry to hear that you weren't taken seriously. We hear that frequently. We want to help as many people as possible. If you want to learn more about burning mouth syndrome, we have a lot of information on our website: www.sklarcenter.com
The low hormone state during breastfeeding can be a trigger for burning mouth. We have seen this before. For more information on burning mouth syndrome, please check out our website: www.sklarcenter.com
Absolutely, as high cortisol can cause high levels of stress which can lead to mind body syndromes such as BMS, read upon the works of Dr John Sarno for further info on central pain sensitization.
Lots of fire inside your body, associated wirh stress and emotions. Dont know how I will get rid of this roof of my mouth inflamated. Lots of fire and fevet condition. So sad
I've had BMS for nine years. My nuerologist said exactly the same, "Its psychogenic - its all in your head!!" He's not my nuerologist nowadays. I have become a recluse. After 3pm I cannot speak properly. Sometimes I resort to alcohol (just for the hell of it!) I have considered suicide. Thank you for your video.
Mine started after I chipped the bottom inside of one tooth tounge kept hitting it - tounge got sore taste buds inflamed .. had a bond fill put in chip to fix then it got 10x worse like thinking I had Algeria reaction to bond fill or glue .. it just got worse So on set nerve damage from tooth chip then more inflamed after bond fill 7 months now been to several doctors ER 7 Denist .. I thinking bond was an allergic problem which they thought 💭 I was Craxy it never happens Allergist 3 dermatologist Oral surgeon Big fat Zero Zero I am healthy Workout 7 days a week no tummy problems Wth is wrong w me I’m in pain afraid it will get worse
Drinking ice water with ice cubes. Klonopin and actually the alcohol free plaque mouth rinses help greatly. This is awful for sure. Mine came on suddenly and I was about 57. I'm almost 60 now and it comes and goes. I had invisalign at 55 so wonder if that also contributed. I just recently had a tissue graft for receeding gums with no problems? When this flares its gets worse as the day goes on. I work on a computer all day and get very tired and it gets worse. Your video is so informative. I get canker sores. Weight training/exercise is very helpful.
I got Invisalign too they drove me crazy. I had to take the off 3 months before I was finished. They definitely had something to do with the irritation.
This problem started happening to me two months ago. I have autoimmune issues. My tongue is white and I have no doubt I have a Candida issue. I’m wondering though if this is a cervical issue. I fell off my bike a bit before this happened. I already have cervical issues from ankylosing spondylitis. The problem is that I have so many possible causes. I’ve dealt with reflux a lot but changing to a raw vegan diet has helped tremendously. My tongue also appears swollen. I can see my teeth marks on the side of my tongue. I’ve also been diagnosed with lupus and mast cell. The burning is non stop even if I water fast.. so it doesn’t seem Food related. The only medication I take is PRN klonopin and an antihistamine if needed.. but I’ve been trying to ween from klonopin.. was taking it for mast cell.
Hi Marisa. If you have an autoimmune disease perhaps this could be of help google (subah Saraf, this diet can cure every disease), I had a family member with Crohns and a friend with sjogren and Type 2 diabetes who completely reversed their condition by following this diet, no gaurantee it will work for everyone but no harm in trying. Regards and goodluck
Type burning mouth syndrome. There is a doctor in Miami that relates this issue to Cervical instability. He explains that the nerves are involved. Type caring medical. I am trying to go. God bless.
Had a dental cleaning and after I left started burning in gums and mouth. Been round mtn. Trying to figure it out. Antibiotics steroids..nothing gives relief
@Heather Digsby My burning mouth started immediately after a neck injury. Look at Dr. Hauser videos. Changes in the jaw can also cause neck instability and the consequences. The neck injury also affected my hypothalamus/ pituitary from altered pressures in the brain/ nervous system. So, a hormonal approach may help ? .
@@prepperhaulyall9372 I do not know about fluoride, but once the neck “ isn’t right” all kinds of things can happen. My experience : after my neck injury I developed all kinds of issues, including hormonal issues, visual, hearing, muscle jerking, tremor, bladder, bowel, more.The hypothalamus and pituitary are located in areas of the brain that can be affected by too much pressure from spinal fluid ( we make about 1 1/2 pints a day ? ) that can not flow well into the spinal canal in the neck. The burning mouth may be caused by pressure on the cranial nerves in the brain stem area. This was proven for me by a neurosurgeon who did an special CINE MRI study that looked at spinal fluid flow. I have mild scoliosis, which runs in the family. Think this is a risk factor. Here is what helped me : NUCCA Chiropractic ( very gentle , no twisting, jerking ); craniosacral work, gentle pool. Appreciate that the sacrum, pelvis has a huge influence on the neck. So a history of a broken tail bone or fall on pelvis can also start issues. An expert on body mechanics and realignment is Jerry Hesch , Ph. d physical therapy. In Colorado. Look at his videos. Sending hugs.
i went 10 doctors 3 of them it was ent dentist gynei there is no cure i take vitamins but nothing i suffer from anixtiy and depretion but not every day and i dont take tablets i think its coming from menopause cause out side there is a million people suffer from stress at the moment i take vitamins about the nervs but nothing there is no hope and i feeling die 😢
Mine started after dental fillings. I have had scans and lots of blood work. I have swollen lip and throat and have even blacked out after eating. I fear eating now. I have lost so much weight I can only sleep now. I think it's the materials from fillings. It's terrifying. Even my eyes are blood red. Do you have to take all of these or just certain combinations?
Was in your place for more than ten yrs! It really sucks! Mine was lips, tongue, & eyes. Eight yrs ago stopped eating 99% prepackaged foods stopped, late afternoon dirty martini (sigh🙁),drink 2 cups coffee, and lots of water all day. Didn’t eat out for many month (my choice ). Found that I had adopted an intermittent fasting food schedule. 8 - 16. The first yr….may hv been 8-9 mos, my burning mouth/ eyes were, basically gone. If I were in your shoes, Would definitely drop all sugars, seed oils, breads/ flours. Yes….it is hard for first week w/o your brain screaming for something SWEET! 2nd week is better and so on. Cook with avocado oil butter, coconut oil and use EVOO for light sautéing . I dropped 55 lbs w/O trying! Changed to whole food- plant based with red meat 2 - 3 x week .Other Doc’s on YT say “you can reset your body by going on a 36 hr fast! Please though……don’t just take my word,,,,research for yourself. “HEALTH BENEFITS OF FASTING “ 🤗
Was in your place for more than ten yrs! It really sucks! Mine was lips, tongue, & eyes. Eight yrs ago stopped eating 99% prepackaged foods stopped, late afternoon dirty martini (sigh🙁),drink 2 cups coffee, and lots of water all day. Didn’t eat out for many month (my choice ). Found that I had adopted an intermittent fasting food schedule. 8 - 16. The first yr….may hv been 8-9 mos, my burning mouth/ eyes were, basically gone. If I were in your shoes, Would definitely drop all sugars, seed oils, breads/ flours. Yes….it is hard for first week w/o your brain screaming for something SWEET! 2nd week is better and so on. Cook with avocado oil butter, coconut oil and use EVOO for light sautéing . I dropped 55 lbs w/O trying! Changed to whole food- plant based with red meat 2 - 3 x week .Other Doc’s on YT say “you can reset your body by going on a 36 hr fast! Please though……don’t just take my word,,,,research for yourself. “HEALTH BENEFITS OF FASTING “ 🤗
What about low dose naltrexzone. My pain Dr at Emory Atlantia Georgia, has started me on 4 mg about a month ago. Name is Dr Spektor. I’ve read positive clinical trials, NIH that say it helps over time.
I think a carnivore diet may help. It literally kills any inflammation in the body. Heals so many diseases auto immune, gut issues etc. You just eat only animal based foods including fish. Fatty meats are the best for woman especially. We need the fats for our hormones as we age. Most things usually boil down to inflammation and nutrition or lack there of is usualy the culprit. Its worth a 30 day try. Research it on youtube. There are lots of videos on it and its healing benefits even diabetes along with weight loss.
I am 57. Ive had this since age 23. Amitryptelene is the only med i was offered but it didnt help. I chew nicorette chewing gum ss the bitterness covers the sensation.
Hi Jackie. There are many other treatments. Check out my website for more information. www.sklarcenter.com or call the Sklar Center at 562-596-5196 for help.
@@lindak5492 Hi Linda. Please see my comment above. We are learning more all the time about burning mouth. Please see my website www.sklarcenter.com or call our center at 562-596-5296.
I feel like I need to send this to all my doctors. I’ve suffered for almost 3 years now and I’m just so exhausted, mentally and physically.
praying for healing for u this is a damn shame alot of the doctors dont know nothing !!
❤🙏
It's tms... Go to youtube/chronic pain PT... Watch the succes stories.
Omg it is inhumane! 5 years ! No relief!! Over counter prescription. Nothing works. It almost makes you want to die….
@@moneygettenwhere to watch success stories?
Thsnk you for this video. I have all the symptoms you describe for BMS. I have been so frustrated for the past 2 weeks! I now have something to go on. Thank you so much!
How are you now? Feel better? I’m painful now😢
@terrisharp did you get it sorted
Hello Terri. How are you?
I am suffering with it too right now
Im suffering too
Best presentation I’ve ever seen. Thank you so much. I have endured torture from doctors who told me this condition was stress-based even though I have neurological symptoms and a condition that affects the rest of my body. I’ve felt like a dismissed joke. Thank you from the bottom of my heart for compiling the research and studying this condition with such compassion. I wish my doctors would listen to your presentation in full.
I understand. Me too i possibly have it. Its terrible
Hi @LGrannis. Getting dismissed is one of the biggest problems with burning mouth syndrome. We take it seriously. Find out more on getting help on my website: susansklarmd.com/
Great presentation I am a dentist and had a patient today with BMS thank you 🙏 I feel better informed thank you 😊
Thank you for your interest. I'm so glad I could help.
I have this too but im at nowhere
@@drsklarhello maam. Im already a TABSU operation, can experience a menupose?
Very informative, detailed, and painstaking. Your empathy has already helped. Thank you
Hi Sally. I am so glad we have helped you. There is more information on my website: www.sklarcenter.com
This is the best interview I have seen on this subject. I am sharing it with doctors. Thank you so very much.
I'm so glad our videos have helped you. Please our website for more information: susansklarmd.com/
I thought I might have Cancer. Thank you for explaining it so well.
Me too... what a relief.
Had burning mouth syndrome for about a year. I found It difficult to brush my teeth with regular toothpaste. After trying many brands, l found the kids watermelon and strawberry flavour (found at Walmart) the only paste l could use. If your suffering with this and worried your teeth are getting cavities due to the pain of cleaning your teeth give the kid stuff a try. Hope this helps.
Try Biotene mouthwash
Thank you.
Thank you for giving me hope as I have suffered with this for nearly 4 months.
We are so happy to provide information and hope. Please see our website for more information: susansklarmd.com/
Fantastic Presentation and advice. Many, many thanks Doctor. I have a better understanding of my BMS.
Thank you so much for this valuable information. I have had this for 3 years now and this is the first time I´ve seen a dr. taking it seriusly. for two years I´ve seen 11 doctors, no one could help me. most of them said is was all in my head.
Jeff Henriksen
It actually may well be in the head, Dr John Sarno the chronic pain specialist describes BMS as one the many different mind body syndromes ( In most ppl MBS manifests as severe back pain) that may occur at times of severe stress, depression. The brain scans of people who suffer from central pain sensitization show low seratonin and dopamine levels, it is all related to stress.
Hi Jeff. It's not in your head. It is a real disorder. There is help. Learn more at our website www.sklarcenter.com.
Wow that was so informative and helpful!. I've had Burning Mouth Syndrome for almost 7 & a half years after a session of Zoom teeth whitening at the dentist. This was the most comprehensive presentation I have heard in that whole time. Keeping calm & working on your stress levels is key. Thank you.
Hi Dan. Glad that the information was helpful. There is more information at our website www.sklarcenter.com.
@@drsklar 👄
Thank you so much for putting this very detailed educational and easy to grasp video on burning mouth syndrome . I have burning mouth syndrome for the past 6 weeks , it was diagnosed within 2 weeks of symptoms . I got burning mouth syndrome directly from a tooth extraction that was complicated because I’am on warfin for the past 22 years from having a mitral valve replacement. Whatever the oral surgeon used to prevent bleeding after the extraction worked brilliantly but unfortunately triggered BMS . My symptoms are mainly on my tongue and it’s exactly painful at the tip of the tongue and can move from side to side as you stated at the beginning of the video .. I thought it might be getting better two weeks ago but sadly flared up again as bad as ever .. I’am not as depressed about it as much as I was initially, I think ? but possibly have a low grade depression from the chronic pain . it might be worth my while trying the tablet that melts on your tongue or visit my endocrinologist and discuss hormone possibilities .. I’am 68 and not sure he would consider prescribing hormone replacement for me at my age + my mother had a mastectomy when she was 60 years of age ..thank you again. You are a marvellous doctor and teacher. I appreciate the work and research you put into this video, I really do!
@smink8 did you recover from BMS
@@hasinapatel1233 No I haven't. I've had it for 10 years now and I've just learnt to live with it.
This started when I was 20 for me! I am now 60! I just had an aliblation 4 days ago. No change as of yet! I am also on Gabapentin.
Thank you very much for all this valuable information
You are welcome. Go to our website www.sklarcenter.com or our Instagram @drsklar for more information.
If I could make a suggestion that made a HUGE difference for me 8 yrs ago. I gave up all pre packaged foods, breads/flours, seed oils salad dressing, mayo, also stopped eating out for a few months. My symptons (burning lips & tongue cleared, as did fibromyalgia. Try for couple of months. No alcohol….sodas etc. Don’t bring it home!
I know how I am……if it’s in the hse…..I’ ll eat it!
Those are great suggestions. For more information on other causes and contributors, please go to our website: susansklarmd.com/
Thanks for your video. This was awesome. I live in VA. Do you see people in other states?
Hello @isellorganic. Thank you for your kind words. We see people in other states. Please go to my website to find out more: susansklarmd.com/
I suffered BMS. It was horribly painful & debilitating. In my case, it was caused by a severe allergic reaction to nuts, wheat, soy and/or molds in these products. Highly sweetened foods and beverages also worsened the burning, in my case. I stopped eating these products and the BMS stopped. Over the counter pills for allergies also provided some relief for me. Testing for allergies related to these, or other food substances one is ingesting or breathing may be a good idea.
Hello, glad to hear that your BMS stopped. Please tell me the name of the over the counter allergy pills that you took.
Mine came from a black pepper vegetable soup. Mouth filled with red spots and feels burnt. Stopped eating it. Went away.
Had fizzy drinks on the weekend and it came back. Fuckin odd.
I also want to know how to get rid of BMS😢
Just finished this very informative video. Wow you are the one and only Dr. That I've heard take any jnterest in trying to find out what is happening to all of us suffering. This is horrible. Mine just returned after several months of remissjon. I was diagnosed by a naturooayh and basically was told there wasn't much he could do to treat it. This is horrible miserable. Thank you for all of this information. I've subscribed and well be saving for a consult.
Hi Bekah. There actually are a lot of ways to help. Please look on our website for more information: www.sklarcenter.com
How are you now? Feel better? I’m painful now😢
Hello ,do you have any relief ? I’ve just been diagnosed and am suffering 😢
What about gut health?
Thank you for this. I had two crowns replace and a root canal and got blisters on both sides of underneath tongue. That was nearly 4 months ago. It has been very rough. Burning front of tongue on and off. Been to many doctors and they are all stumped including Oral specialists. I am praying this all goes away.
Do you take health insurance?
Thank you Dr.Sklar for this awesome information.
Always welcome!
I started having this over the last year come and go and I’m perimenopausal...I remember my mother constantly complaining about this issue... it’s awful.. I do aloe Vera mouth rinses a few times a day that helps and I rub turmeric all over my tongue to help reduce the inflammation...I do find it helpful.....I want to get on some form of bio identical hrt but have no insurance
There is help. Please check out our website at www.sklarcenter.com
@ The Mic74key did you 55:18 get the hrt bio identical, have you healed. I'M perimenopausal live in the uk doctor just prescribed anti-depressant . I also have sore throat with a bad cough
I have been dealing with BMS for almost 3 years now. It started a couple to three weeks after having a tooth removed by an oral surgeon and taking medication for infection. After reading some of this information, the one common link I have read is that I and some others took antibiotics after having oral work done.
This sounds like my situation too, same exact thing. I'm trying to narrow it down more and more.
The cranial bones are not fused and have minute movements that promote the correct flow of spinal fluid in and out of the brain and spinal canal. So, removing a tooth can offset the jaw and/ or upper palate. This can cause abnormal pressures on the cranial nerves ( check that out) and nerve dysfunction/ pain in many facial areas. Check out the videos by Brendan Stack, DDS if they are still up. Brilliant person. A craniosacral therapist / traditional osteopath may help. ❤️
Thank you for this thorough discussion. I just had an appt with an allergist who suspects burning tongue and is starting with ordering a slew of blood tests. He mentioned possible hormonal, mast cell, etc., issues. I went to him for food allergies and we'll do the skin scratch tests after blood tests. I have chronic lower back pain as well, due to degenerative disc disease. These issues are certainly depressing and I look forward to getting relief.
Thank you again for this video.
Did you cure Bms?
My mother has exact same things as you. Degenerative disc, allergies and burning mouth. I am hoping that this information I heard today will help her in finding some kind of relief for her burning mouth.
I loved your very informative video!
am 73 years old and live in Israel. I got a very se ere BMS just on the left side of the mouth after a stroke that happened two years ago. I wonder if you saw neurological cases like mine and what would you recommend for treatments that I can ask to be prescribed here. Thank you in advance gor your help!
Hello @ClaudeSaban. I have not had experience with burning mouth following a stroke but many of the same treatments may work for you. Please see our website for more information: susansklarmd.com/
THANK you ♥️♥️Sussane♥️♥️👍🙏 You’re a angel🌹
This is very informative.
Help, constant pain can't take it much longer 10 weeks old. What can I do? Thank you, I take Lisinopril and I will stop that. I'm also under severe stress and have been for years. I'm a pre-diabetic. Finally I have a 22-year neuropathy that the diagnosing doctor believed was charcot-marie-tooth. I now believe it was more along the lines of electrohypersensitivity or radiation sickness.
Good video. I had this for years glad its finally back to something of a normal situation in my mouth
Glad it helped!
@@drsklar Yes it was a number of different factors had to work them out one by one, did take 3 years though but compared to now a whole different world
@@Luke_Sidewalker Wish to share those methods, mine went into complete remission with Clonazepam, did this work for you?
@@mazhussain3470 I didnt take any meds, just took care of my B12 deficiency, which caused alot of other vitamins to be deficient (found out I malabsorp B12, because of reflux). To get rid of reflux, had to change eating pattern and habits and cut off PPI (Stomach meds, which there you go caused B12 deficiency and burning mouth, I had silent reflux. To relieve tension from years of teethgrinding due all of it, I wore a very smal light silicon soft device to keep teeth apart from tongue and keep mind of the whole BMS thing. I can now brush teeth again with any toothpaste, eat most things, but in moderation and finding out what causes reflux, B12 the key the main ingredient injections not pills, since they dont do nothing, took 2 years of injections to get back up, and I had severe BMS/nervepains/toothnerve pain/stomach aches in the end it kind of all hangs together one thing at the time
@@Luke_Sidewalker Thanks for your response, reflux seems to be the primary physical cause for BMS, just out of curiosity did you suffer from any cough??
When you say lower level lasers, do you mean red light therapy? What specific types of lasers were used 3x a week that gave the patients relief?
When I took estrogen I got breast cancer according to the oncologist?
How do you take peptides?
Chewing gum helps for me. It goes away while I eat and drink. Sipping water helps. I'm going to try infrared as of tomorrow.
I intend to ask my Doctor to listen to this. Thank you
😢 I have I believe being a man burning mouth syndrome have had it for almost 4 months now and they cannot figure out what I had so I found this information online I have all the symptoms and going through everything it says I mean everything I am so frustrated and so tired and so exhausted and in so much pain I didn't know what to do couldn't put anything in my mouth numbing
I have had severe burning of lower inner lip and sometimes end of tongue for about five years now. I constantly clear my throat due to mucous clog and my throat is often raw.
Other areas are burning too, my anogenital area, worse when sitting or lying down, other areas on body burn. I was just diagnosed with small fiber neuropathy, though I'm very hypersensitive to everything, especial colognes, lotions, blooming trees, dryer sheets, candles, anything scented.
I dont have numbness anywhere on my body like most people with neuropathy do.
I wish my doctor would just test me for mast cell activation syndrome, even to just rule it out.
I've had bms for about 5 years now, already on clonazapam and bruproprion for decades. Started off with metallic taste. My pcp told me to see my dentists, so I had all my old filling replaced. Then she took a blood test for lead. Then pretty much threw her hands up.
How are you now? Feel better? I’m painful 😢
How about the Vagus nerve? If you have a bulging disk ?
I stopped sweating 2 years ago and my body started burning24/7 nonstop. Reently last 6 months I have burning mouth. It gets dry. No doctor cares about my body burning nonstop. Not my body temp but my entire body feels like I have a fever non-stop. I have no quality of life. I just exist and take care of my disabled son. I hope you read this. Thanks.
My dentist's office recommended a night-time and day-time dry mouth remedy by OraCoat called "XyliMelts" that is sold on Amazon. Dru mouth CAN cause Burning Mouth Syndrome, or greatly contribute to it. These little pills stay inside your cheek, and THEY WORK. I hope this helps! Please don't let this get you down, you WILL find things that help. You are not alone with this, many people have it. Take care!
Do you take anything for it my whole body burns with BMS and I have sore throat and dry cough
This illness is awful, I hope you find some cure soon as I'm from the U.K. All the doctors I have seen are clueless until I came across the very informative lady I knew what was wrong with me.
@@hasinapatel1233 Nothing at all. We have winter here n it's very cold. So I'm shivering yet burning up. Can't stand it
Oh just come across your YT channel your son is gorgeous.
Does BMS affect your Mental health
I started to feel really depressed and I didn't know ,now I know the two are connected feel there is no hope to recovery from this .
Our NHS doctor jus shove antidepressants done us and therapy you will feel better in a few years
@@hasinapatel1233 No BMS isthmus least of my health issues I don't have depression, just lots if frustration. I hope your medicine helps
Hello I have had burning mouth for about 9 months now checked with the dentist nothing was found changed my toothpaste nothing have trouble eating and lost about 10/15 lbs burning is bad I have reached the point of no return. I am thinking it’s a vitamin problem but not sure I use to take Vitamin B12 shots then moved to the tablets and I have stopped I am not much of a meat person more vegetarian but the burning is terrible on a scale of 1-10 it’s 15.
I am also diabetic so is there help for me
Hi Sharina. So sorry to hear what you are going through. Please see our website for more ideas about getting relief: www.sklarcenter.com
@sharina singh5180
Did you get the help you needed
How are you doing now.
Thought you could show some light to what is going if balancing hormone was a option for you
Hello , how are you feeling now ? Any relief?
@@Parislashay NO RELIEF whatsoeve a
I have been to dentist romove one of my teeth and fixing one and I have mbs can be contacted?
I also have white patches too and burning tongue please reply
Thanks, do you ship to South Africa ?
Please tell me, do you recommend taking alpha-lipoic acid 600 mg 2-3 per day. Is this 1800 mg per day? That's not a lot? I found a dosage of 100 mg. And how long can you take it?
Hello there! Thank you for the question. Some studies show benefit with lipoic acid. Others don't. The usual doses used in the studies is 200 mg three times a day. No one can say how long you can take it, but it appears to be safe.
Taneshkasmile did you try ALA did it work for you.
Please reply
@@hasinapatel1233 I took alpha lipoic acid for 2 months at a dosage of 1200 mg per day. No changes occurred. The burning sensation remained at the same level. This has been going on for 7 years now(((
Hello , did the ALA help for you? Please we are all desperate
Thank you very much🙏🏼
I also want to say that I believe my BmS started after a 3 week period of two very strong antibiotics for a colon infection.
I do believe there is a gut connection.
I have had burning mouth syndrome since March of this year. I have cervical dystonia and I don't know if this is cause. My dentist said my teeth have are OK just worn I ĥave just been and had some blood tests done.
Thank you!
Thanks
I’m 67 so will hormones have anything to do with my BMS. I’ve had it for 15 years.
Thank you so much for this. It resonates with me greatly as I suffer from this and am looking for relief.
Same here
Suzy B Free
Try clonazepam as it is effective in most cases and in a 2017 study, in a minority of cases some patients experienced total remission.
@Indi queen of unicorns Then try Benzydamine Hydrochloride mouthwash, was also effective however the clonazepam gave me complete remission, make sure you avoid swallowing the clonazepam.
maz hussain do you chew it instead of swallowing it?
@@Supsup7777 I simply let it dissolve in the mouth then spat it out, did wonders for me, within days it completely disappeared and hopefully will stay this way, i was also experiencing burning eyes which was directly linked to the BMS , that too disappeared, mine was the primary version of BMS (chronic dryness, burning mouth and pins/needles/tingling on my lips and upper chin) with no known cause except extreme stress at the time it emerged BTW it may be linked with dopamine and testosterone levels, try to boost these in conjunction with clonazapam use, if indeed you have the primary version of this horrible condition...BTW doctors in India claim anti-leprosy medication has shown great promise in BMS, lets hope. Regards and good luck Marisa
Ovary removed and I have this problem. I’m on hormone pellets put in so my hormones are spot on. I’m 99.9% sure it’s my THYROID! Had this for over 10 years and in that time frame I went 1 month free of pain when I thought I had my Thyroid right on but seem to keep missing the my mark. I believe my thyroid swings for me to keep it on the mark.
Watch Dr. Hauser videos. My burning mouth is absolutely from upper cervical instability.
Hi Freedom Runner. Please check out our website for help: www.sklarcenter.com
Have healed BMS.
How tell me please!!!!!
No sorry I meant
Have you healed Bms?
I was asking because I am still suffering with Bms.
Chiropractor resolved it for me, Vegas nerve.........
@Sherri Head Oh yes ! Mine started after a neck injury.
Herniated disc and nerve pain triggered it for me.
Dental procedure caused mine! I still have a cough I never had before, which is miserable!
@@sherriheadaccordion The movement of the jaw and neck are interconnected. My neck injury caused my lower jaw to rotate and retract. There is an expert dentist who uses appliances to “ correct” neurological problems. Brendan Stack - May be retired now. Watch his videos.
This BMS started last week, I’m devastated.
How are you feeling now ?
I Have BMS 2 months ago looking for some sort of cure that has worked for other people.
Me to 😢
Any relief ? It’s been 2 years iv had it now 7 months I’m in pain
My wife is a 7 year breast cancer survivor, who has been suffering with BMS for the past 18 months.
Hers starts from the moment she wakes up until she goes to sleep.
What course of treatment would you recommend for her, as well as other women who are cancer survivors with this miserable condition?
My dentist told me the burning mouth is from fungus and that i could get a prescription from my doctor. The doctor checked my mouth briefly and said I have no fungus.
Hello. Yes, sometimes thrush (fungus in the mouth) can cause burning. Please see our website and burning mouth online course to learn more: susansklarmd.com/
I’ve had this for 7 months after my mother died I was her carer for 18 yrs she died in front of me I tried too save her but couldn’t then my sister died 6 months later , I had the flu then had burning mouth syndrome, before that nothing , I’m dealing with grief issues and broken heart god bless all
Hi. We are so sorry to hear about your losses. Stress, loss and anxiety often precede burning mouth syndrome. There is more information on our website www.sklarcenter.com
I’m sorry. Bless you.
Im a 32 year old guy and ive had burning mouth for about 3 months. My doc suspects its LPR/GERD but endoscopy came back clean with no irritation in my esophagus. I took heavy PPIs and H2 blockers for about 2 months and it didnt seem to help. I feel like ive hit a wall, how can i know if im refluxing or not? I dont have any heart burn or actual liquid coming up. Being a 32 year old guy i find it hard to believe that its primary BMS but at this point I have no idea.
Eat yogurt in any of the berry flavour, berry flavour ensure and drink berry blue Gatorade with alkaline water. Eat lots of water melon and leafy green vegetables. No hot fluids cause u r burning. Drink cool liquids, no caffeine, citrus fruits or alcohol. Get a good probiotic and u will be fine. Stay calm it helps also.
Hello Artjan, any improvement with your symptoms? I'm a 31 year old male, I've had this for 2 weeks only and it's already driving me crazy. Doctor thought it was a Candida issue but the treatment only seems to have made it worse..
@@josdeman5754 Hey im sorry to hear your dealing with similar symptoms. Im almost a year in since mine started and my symptoms are basically the same. From all the doctors ive seen no one really seems to pin point what is actually the problem. From everything ive gathered its LPR that is anxiety induced. I'm not sure if your symptoms are the same as mine but thats what they seem to think is my issue. Try gargling with a alkaline water and baking soda mixture a few times a day and see if that improves your symptoms. It seems to help mine when it gets bad. Good luck and most importantly keep your stress and anxiety under control dont make the same mistakes i did. God bless.
@@Artjan1 Hello Arjan, thanks for the quick response. Anxiety and stress seem to be the logic cause. For the past year I've had some really bad sleeping problems, I'm extremely fatigued and under a lot of stress. I've made a dentist appointment and have blood work scheduled to rule out any secondary causes. If all turns out negative with the tests, it seems the only option is to try and manage my stress levels. Good luck to you too 👍👍
Same story. How is it going now?
Been two year after dental work I have this discomfort still have it after I spend almost lot of money on new bridge that have to remove dentist never reimburse me still have discomfiting and lost the money
What are your thoughts on on nasal cortisone spray and the correlation to BMS? Been on a nasal spray for 16 weeks never had BMS but I think I may now have a mild case of thrush from the spray!!!!!! I’m so pissed at my DR! They never ever tell you anything about adverse effects! Here’s your RX now I can BILL! So angry and frustrated!
I'm from berks county where are you from
I have suffered for 11 months... i am in Canada.... can i get on the mailing list so i can share with my young doctor who i think is not really believing how serious this is for me... I plan to try to share this video with her, so, if you can send a copy of the video that i can share, that would be good.
I had a complete hysterectomy when i was 30 years old and refused to take Premarin... so, my hormones are wayyyy. out of whack..... perhaps I could benefit from bioavailable hormones. however, my young doctor says no way she would give me hormones because of heart problem they might cause.... I would like to try the hormones for a period of time to see if it helps because i have had one or another chronic pain problem for years.... fibromyalgia. etc.
I would also consider a consultation if it isn't too expensive... as i am 78 years old and on a very small monthly income.
please advise...
Hello. Please see our website for more information and ways to get help: susansklarmd.com/
has anyone got relief from drinking distilled water? or combining distilled water with DMSO?
God bless you Dr Skylar for posting this video. Bms is horrific. I really think the low dose naltrexone is starting to diminish the heinous intensity of my bms. 4 mg per day. Only a month in..we shall see!
Any updates
You mention peri menopause and menopause, but what about post menopause?
Our Doctors are USELESS!!!! been suffering with this for past year saw everything primary doctor dentist for allergies ! Nobody knew ! Thank GOD for this video THANK YOU THANK YOU ! And just got diagnosed with neuropathy also have chronic pain so this all makes sense ! But all the other things can attribute wow so so much help
Just been to the doctors and diagnosed my own BMS. After seeing 5 doctors in the last 3 months and I'm from the UK.
I'll be 67 next week.. I've been postmenopausal for 19 yrs, so that's not it.. I eat clean keto, don't drink (even pop), smoke, or do drugs, so that's not it. I take zinc, B-complex, B1, Vit D, & other supplements daily. I've also been on Levothyroxin for about 5 yrs bc of hypothyroidism, but my levels are good.. as is my glucose level.
But my burning tongue & mouth... I know exactly when it started! It was about 3.5 yrs ago, right after I had 5 top teeth pulled & got a partial (my teeth were breaking & a crown broke off at my gumline). Then last January, I had to have the rest of my uppers pulled & I got a denture because more teeth had chipped & another crown broke off (I have had weak teeth my whole life). Trust me, this is HORRIBLE! My tongue burns within an hour of waking up & the inside of my lips feel raw a lot. Many times now, it feels like nerve endings are exposed on the edge of my now toothless top gums. I also get cotton mouth a LOT, but I know I'm still producing saliva bc I can feel it on the outside of my lips. I had never heard of this until it started happening to me... and I wouldn't wish it on ANYONE!
We are so sorry to hear what you are going through. You can find more information and help on our website: susansklarmd.com/
My burning mouth pain involves my tongue, lips and cheeks. I have non stop neuropathy pain from my cheeks down the entire right side of my body with the one exception of my right thigh plus both hands and feet. Does anyone else have FND? Functional Neurological Disorder or Fibromyalgia? All nerve and brain related, I have all of these and have to think they are all connected.
Hi Sweltering. That sounds terrible. Please see our website for help: www.sklarcenter.com
Might be an idea of looking up Mast cell activation. MCA
Mine too and it started last year. My lips started to swell I could actually feel them swelling. Then developed white patches on the inside of my cheeks and side of tongue. It went away but came back this morning.
Have you been tested for small fiber neuropathy? Have your cytokines been checked?
Mayo Clinic did a nerve test on my legs that was extremely painful using electrical current, could that have been small fiber neuropathy testing? I have neuropathy in my feet and hands also. My mouth feels swollen inside and I keep biting the inside so I have to be careful, a new occurance. I also get white ridges along the outside of my tongue and along the inside of my lower lip. .....I will look up MCA. Thank you for offering ideas...
I have a burning mouth, tongue, throat and feels like my lungs burning too. It started about two years now. it's really upsetting annoying. life is not enjoyable.
Do you have a severe cough ???? Check for acid reflux.
@@mazhussain3470No cough! Curious…..why the question ?
@@booreed7813 Because Acid Reflux can alos cause BMS, but it is much easier to resolve than the version which is "atypical pain".
Can one dose of lyrica cause this?
Where are you located.
Hi Claudia. We are located in California. Please contact the Sklar Center at 562-596-5196 for more information.
Is anyone experience burning sensation and sour tasting at the same time? Please respond, i need answers 😢
Yes
It started with taste/smell and days later debilitating pain
I think I have this. I’m 41. Mine began this summer, June. All of sudden. I was experiencing high anxiety for months, due to Covid 19. Also began having weird gut issues and I think I have silent reflux. My primary thinks it’s all in my head. I’m really suffering. Also around the same time I was experiencing a lot of inflammation in my joints like my neck, mid back, low back. I was just aching and stressed. Then had a really bad low back flare up in July lasted through October 15. After several chiropractor treatments my back is back to normal now.
Omg. I'm reading and I see that people with this program have survival issues.
Look up caring medical and their treatment for this issue.
@@mariaavila-pu8xr What do you me survival issues?
@@TruthSeeker410 Cervical issues.
Typo!🙈
Hello TruthSeeker. Many doctors think this is an imagined or made up problem. It is a real disorder. Please contact us at 562-596-5196 for more information. Dr. Sklar
Has your burning stopped?
just ordered lipolic acid. tried pepcid and nexium (h2 blocker) and it provided temporary relief. going to a dr next week for a 2nd time. Dr didnt take me srsly the first time over 6 months ago.
So sorry to hear that you weren't taken seriously. We hear that frequently. We want to help as many people as possible. If you want to learn more about burning mouth syndrome, we have a lot of information on our website: www.sklarcenter.com
s Hello ,had the alpha Lipolic acid helped you ? I’ve just been diagnosed 😥
Could postpartum/breastfeeding cause issues especially if it’s hormonal??
The low hormone state during breastfeeding can be a trigger for burning mouth. We have seen this before. For more information on burning mouth syndrome, please check out our website: www.sklarcenter.com
I have had this for 2 years. It is exhausting my gums burn all the timeexcept when i sleep
Could high cortisol or testosterone cause BMS?
Absolutely, as high cortisol can cause high levels of stress which can lead to mind body syndromes such as BMS, read upon the works of Dr John Sarno for further info on central pain sensitization.
Lots of fire inside your body, associated wirh stress and emotions. Dont know how I will get rid of this roof of my mouth inflamated. Lots of fire and fevet condition. So sad
Where is this office
Hi Simone. We are located in Long Beach, California
Yes, I also aggravate my burning mouth if i brush my teeth with activated charcoal.
I suffer fro burning mouth my Nigths are the worst it wakes me up feeling my brain foggy like disrorented. I need hep please
Hi Simone. We have a lot of information on our website: www.sklarcenter.com
I've had BMS for nine years. My nuerologist said exactly the same, "Its psychogenic - its all in your head!!"
He's not my nuerologist nowadays. I have become a recluse. After 3pm I cannot speak properly. Sometimes I resort to alcohol (just for the hell of it!) I have considered suicide.
Thank you for your video.
I can understand why you have considered suicide.
I’m scared. It’s only been 6 months for me. This is torture.
Burning mouth - cervical instability can cause it.
Mine started after I chipped the bottom inside of one tooth tounge kept hitting it - tounge got sore taste buds inflamed .. had a bond fill put in chip to fix then it got 10x worse like thinking I had Algeria reaction to bond fill or glue .. it just got worse
So on set nerve damage from tooth chip then more inflamed after bond fill 7 months now been to several doctors ER
7 Denist .. I thinking bond was an allergic problem which they thought 💭 I was Craxy it never happens
Allergist
3 dermatologist
Oral surgeon
Big fat Zero
Zero
I am healthy
Workout 7 days a week no tummy problems
Wth is wrong w me I’m in pain afraid it will get worse
Drinking ice water with ice cubes. Klonopin and actually the alcohol free plaque mouth rinses help greatly. This is awful for sure. Mine came on suddenly and I was about 57. I'm almost 60 now and it comes and goes. I had invisalign at 55 so wonder if that also contributed. I just recently had a tissue graft for receeding gums with no problems? When this flares its gets worse as the day goes on. I work on a computer all day and get very tired and it gets worse. Your video is so informative. I get canker sores. Weight training/exercise is very helpful.
I had invisaligns too,,,I often wondered if there was a connection
I got Invisalign too they drove me crazy. I had to take the off 3 months before I was finished. They definitely had something to do with the irritation.
This problem started happening to me two months ago. I have autoimmune issues. My tongue is white and I have no doubt I have a Candida issue. I’m wondering though if this is a cervical issue. I fell off my bike a bit before this happened. I already have cervical issues from ankylosing spondylitis. The problem is that I have so many possible causes. I’ve dealt with reflux a lot but changing to a raw vegan diet has helped tremendously. My tongue also appears swollen. I can see my teeth marks on the side of my tongue. I’ve also been diagnosed with lupus and mast cell. The burning is non stop even if I water fast.. so it doesn’t seem Food related. The only medication I take is PRN klonopin and an antihistamine if needed.. but I’ve been trying to ween from klonopin.. was taking it for mast cell.
Hi Marisa.
If you have an autoimmune disease perhaps this could be of help google (subah Saraf, this diet can cure every disease), I had a family member with Crohns and a friend with sjogren and Type 2 diabetes who completely reversed their condition by following this diet, no gaurantee it will work for everyone but no harm in trying. Regards and goodluck
Type burning mouth syndrome.
There is a doctor in Miami that relates this issue to Cervical instability.
He explains that the nerves are involved.
Type caring medical.
I am trying to go.
God bless.
Had a dental cleaning and after I left started burning in gums and mouth. Been round mtn. Trying to figure it out. Antibiotics steroids..nothing gives relief
@Heather Digsby My burning mouth started immediately after a neck injury. Look at Dr. Hauser videos. Changes in the jaw can also cause neck instability and the consequences. The neck injury also affected my hypothalamus/ pituitary from altered pressures in the brain/ nervous system.
So, a hormonal approach may help ? .
@@nanallen1 I also have lots of trouble with my neck and wondered about that too. Thanks for the info. I've also wondered about fluoride toxicity?
@@prepperhaulyall9372 I do not know about fluoride, but once the neck “ isn’t right” all kinds of things can happen. My experience : after my neck injury I developed all kinds of issues, including hormonal issues, visual, hearing, muscle jerking, tremor, bladder, bowel, more.The hypothalamus and pituitary are located in areas of the brain that can be affected by too much pressure from spinal fluid ( we make about 1 1/2 pints a day ? ) that can not flow well into the spinal canal in the neck. The burning mouth may be caused by pressure on the cranial nerves in the brain stem area. This was proven for me by a neurosurgeon who did an special CINE MRI study that looked at spinal fluid flow. I have mild scoliosis, which runs in the family. Think this is a risk factor. Here is what helped me : NUCCA Chiropractic ( very gentle , no twisting, jerking ); craniosacral work, gentle pool. Appreciate that the sacrum, pelvis has a huge influence on the neck. So a history of a broken tail bone or fall on pelvis can also start issues.
An expert on body mechanics and realignment is Jerry Hesch , Ph. d physical therapy. In Colorado. Look at his videos. Sending hugs.
Heather, sorry to hear that. Please check out our website at www.sklarcenter.com for help.
Treatment is at 35 minutes in.
Perhaps we should add notes in our videos to make this more accessible. Thank you!
i went 10 doctors 3 of them it was ent dentist gynei there is no cure i take vitamins but nothing i suffer from anixtiy and depretion but not every day and i dont take tablets i think its coming from menopause cause out side there is a million people suffer from stress at the moment i take vitamins about the nervs but nothing there is no hope and i feeling die 😢
Hi Graziella. Menopause may be part of the cause of your pain. There is help. Please see our website at www.sklarcenter.com.
@@drsklar thanks very much
@@drsklar pls i need to ask you something can you pls tell me how long to pass away 😢
I neglected to say, a gum, "Mighteaflow", and an aloe vera gel made by a company called Revive provides temporary relief.
Mine started after dental fillings. I have had scans and lots of blood work. I have swollen lip and throat and have even blacked out after eating. I fear eating now. I have lost so much weight I can only sleep now. I think it's the materials from fillings. It's terrifying. Even my eyes are blood red. Do you have to take all of these or just certain combinations?
I haven't be able to sleep in the past 4 nights
Inside of my mouth feels puckered..constantly…taste is awful
Inside of my lips as if I put Alum!
Some days I’m ready to have my tongue removed !!
😢
Was in your place for more than ten yrs! It really sucks! Mine was lips, tongue, & eyes. Eight yrs ago stopped eating 99% prepackaged foods stopped, late afternoon dirty martini (sigh🙁),drink 2 cups coffee, and lots of water all day. Didn’t eat out for many month (my choice ). Found that I had adopted an intermittent fasting food schedule. 8 - 16. The first yr….may hv been 8-9 mos, my burning mouth/ eyes were, basically gone.
If I were in your shoes, Would definitely drop all sugars, seed oils, breads/ flours. Yes….it is hard for first week w/o your brain screaming for something SWEET! 2nd week is better and so on. Cook with avocado oil
butter, coconut oil and use EVOO for light sautéing . I dropped 55 lbs w/O trying! Changed to whole food- plant based with red meat 2 - 3 x week .Other Doc’s on YT say “you can reset your body by going on a 36 hr fast! Please though……don’t just take my word,,,,research for yourself. “HEALTH BENEFITS OF FASTING “
🤗
Was in your place for more than ten yrs! It really sucks! Mine was lips, tongue, & eyes. Eight yrs ago stopped eating 99% prepackaged foods stopped, late afternoon dirty martini (sigh🙁),drink 2 cups coffee, and lots of water all day. Didn’t eat out for many month (my choice ). Found that I had adopted an intermittent fasting food schedule. 8 - 16. The first yr….may hv been 8-9 mos, my burning mouth/ eyes were, basically gone.
If I were in your shoes, Would definitely drop all sugars, seed oils, breads/ flours. Yes….it is hard for first week w/o your brain screaming for something SWEET! 2nd week is better and so on. Cook with avocado oil
butter, coconut oil and use EVOO for light sautéing . I dropped 55 lbs w/O trying! Changed to whole food- plant based with red meat 2 - 3 x week .Other Doc’s on YT say “you can reset your body by going on a 36 hr fast! Please though……don’t just take my word,,,,research for yourself. “HEALTH BENEFITS OF FASTING “
🤗
What about low dose naltrexzone. My pain Dr at Emory Atlantia Georgia, has started me on 4 mg about a month ago. Name is Dr Spektor. I’ve read positive clinical trials, NIH that say it helps over time.
I'm taking dexamethasone sol .5/5mil
Does it help?
metronidazole caused me this !!!
The same u used for what? 5 day on metronidazole 3 pills a day cause me acid reflux at night and bms
H pylori
@@maxine6374that's long too you got acid reflux too?
I think a carnivore diet may help. It literally kills any inflammation in the body. Heals so many diseases auto immune, gut issues etc. You just eat only animal based foods including fish. Fatty meats are the best for woman especially. We need the fats for our hormones as we age. Most things usually boil down to inflammation and nutrition or lack there of is usualy the culprit. Its worth a 30 day try. Research it on youtube. There are lots of videos on it and its healing benefits even diabetes along with weight loss.
I'm convinced my burning tongue/mouth syndrome is caused by Parkinson's disease....
I am 57. Ive had this since age 23. Amitryptelene is the only med i was offered but it didnt help. I chew nicorette chewing gum ss the bitterness covers the sensation.
Hi Jackie. There are many other treatments. Check out my website for more information. www.sklarcenter.com or call the Sklar Center at 562-596-5196 for help.
I have had since I was 28, am now 67. I've tried a lot of different things, nothing works.
@@lindak5492 Hi Linda. Please see my comment above. We are learning more all the time about burning mouth. Please see my website www.sklarcenter.com or call our center at 562-596-5296.
@@lindak5492 any chance you ladies have been suffereing from cervical instability?