4 Months Post Brain Surgery Update - Vestibular Nerve Section
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- Опубліковано 3 жов 2024
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🎥FILMED: October 09, 2023 and clips from September 2023
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It’s sow good to see you sitting up and be able to decorate for fall. ❤ 1:02
Feels really good! I LOVE fall decor so much! I can’t get enough!
🧠♥ So glad to hear you; you seem more yourself, challenges and all. Hugs to all your animal friends!
Thank you! I feel more myself than I have in the last 4+ months! Thank you for watching to the end! I appreciate it so much!💜
Vin and I are so glad to see your doing better!! You look like you have so much more energy. Can wait to see all the amazing things you and Bene will do ❤🧠🦮
Aw thank you! That means so much to me! I do have more energy. The tax to my body vestibularly was so great the first few months. I still am taxed by it, but nothing compare to how it used to be. Thank you for watching the entire video!❤️And give Vin some cuddles from me.
I’m so proud of you you’ve worked your booty off ❤ 13:41
Thank you Em! I really have worked os hard. ❤️
Good to hear an update. The first 4 months were very hard, even at 10 months after surgery I still have daily dizziness but I'm hopeful it'll go away with time. Haven't had a Meniere's attack since surgery :D
Thank you for sharing your experiences with me! That’s rotten you still have daily dizziness, but still hopeful it will go away as time passes and your brain adjusts. I really believe it will go away for both of us. The patience this recovery takes is so big. Thrilled that you haven’t had a Meniere’s attack since surgery! I haven’t either. I did get tinnitus from surgery. I did not have it pre-surgery. So many things I forgot to mention in this video.
First of all, you look well and sound terrific! But I’m going to admit it, I, too, had thought that after a few weeks, maybe 12 at most, disabling vertigo, etc., would have dissipated. The Ménière’s symptoms have held you back for so long, have cost you your profession, social interactions, and all the rest. I am sure you are more than ready to be done with them. Does your doctor estimate a time when the debilitating issues will resolve?
I, too, experience migraines. I remember my first one at age 28. Sometimes my head is on fire, but you and I both know that it is entirely possible to lead the very fullest life in spite of migraines. You’ve shared your other diagnoses, and, just from having watched your channel for so long, I think I’ve deduced that even with your other challenges, the ear issues have been the real juggernaut. I believe you will be able to put Ménière’s behind you and embrace a life devoid of most impediments. Are you still receiving counseling to help you through this, as you navigate finding the light at the end of the tunnel? Sending the brightest thoughts your way.
Thank you so much for your comment! My doctor would not give me a timeline for the vertigo to resolve. I know people 2+ years post who still struggle with symptoms. My hope is that one year post, I will be done with the majority of vertigo. My doctor did say I may always have balance issues, but that is still yet to be seen too. Migraines was actually the first thing that disabled me when I was 25. It came 5 years before Meneire's. Until CGRP inhibitors (class of migraine prevention medications) came in mid 2018, I was bedbound daily from them. Unfortuatley the migraines are back to chronic intractable and daily again. My hope is that another CGRP inhibitor will kick into gear again. I also have great hopes for my future and I'm dreaming big. :) THank you for the bright thoughts and the posotive hopes for me! Means a log. Sending a hug your way.
Brain emoji! Great review. You are a very thankful daughter! And loving and giving and loves Autumn about as much as I do!
Aw thanks for watching the entire video. I’m glad you got to see it! I’m deeply appreciative of you. I do love autumn - so much! I probably got my love for it from you!
🧠 Kelly, I’m so glad to hear your update. I’m so proud of you and am cheering you on as you continue to do the hard work to move forward. You are such a warrior, my friend. I’m sending you love and holding you in my prayers, always. 💜🌱✨
Thank you my sweet friend. Your words me so very much to me. It takes a warrior to recognize a warrior as you are very much one as well! Thank you or praying. And thank you for watching the entire video!! You are on my heart! 💜🌱🫶🏻
I am just so happy for you that you are seeing so much progress. And especially that when you push, that those exposures are helping with the progress. That risk taking can be very scary for us Meniere’s/migraineurs because the consequences can be severe but honestly, and I was just literally thinking about how important this is in my own journey this morning, it’s one of the keys to our true healing I believe. Sending you so much love and support… from a fellow Kelli. ❤️
Hi Kelli! Thank you for your comment! Absolutely! It is a fine line to live on - how far we push ourselves versus resting when we should. Both are so important - pushing ourselves at the right times and resting at others. I agree with you about it being key to healing! Thank you so much for the love and support! Sending some back your way! I hate you havve Meneire’s and migraines too! (Believe it or not, we share the same last name! My first name is spelled with a “y” tho.) So happy to hear from you❤️
You’re kidding… that’s wild that two Kelly((i) Smiths both have Meniere’s and migraines. Now that means I was definitely meant to find your videos!! And guess what… I’m also a redhead. Not as true as a beauty red as you but there’s genetic red in there alright. My Dad and niece have the true red.
If you don’t mind - what gastro problems did you have? I have had sudden severe bloating that won’t go away and my GP thinks it’s the verapamil. Of course the last two meds I have added are verapamil and aimovig and they seem to be helping with the big vertigo attacks. So I really don’t want to stop them but the gastro symptoms are pretty bad and continuous. Still working on managing the Ménière’s and VM after 3 years
It’s great to see you are improving. And good to hear the struggles you have in different areas. I do as well and it’s frustrating. Especially when one second you are ok and the next you aren’t even doing something you could do before. It’s tiring to feel like everything is a struggle. I also have bad hearing loss and hyperacusis in one ear so that’s an added hurdle to get over
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I’m sorry to hear about the sudden severe bloating. That sounds miserable. How wild your GP thinks it is verapamil. Did they also evaluate you for other GI health conditions? Bloating can be related to so may different things. I can see why you wouldn’t want to stop the verapamil if it is helping. How much do you trust your GP? Would it be worth it to get a second opinion or maybe go to a gastroenterologist? Sometimes specialists just have a step up on these things. Truly such a challenging thing to deal with multiple chronic health issues at the same time because they can be in conflict with each other. Rooting for you as you continue to find the best treatment plan for you with the Meniere’s and VM. Both are so rough. I used to have hyperacusis. SO rough.
I hear you that it is tiring feeling like everything is a struggle. I *really* get that. Having multiple health issues, there are layers to the symptoms and side effects and limitations that we deal with. And then there is life on top of that! it can be exhausting and wearing. You sound like such a warrior. Keep fighting. One step at a time. I’m so glad you are here. Thank you so much for watching to the end of my video! That means so much to me! 💜
Hi girl! So nice to see you in the now 😊. You look good Kelly❤ . Sorry to hear the migrains are still so hard. Hope you will find a treatment that will help with that better. Lol...girl you are part robot now 😉😁 cool! Big hugz to your Parents indeed for being there for you. 🍀 small steps sweety! You will get there. I have faith in that. 🕯️
Sounds like your brain is indeed trying to cope again with all the stimulation. It will trust tge procces. I never had real vertigo but i know it is bad. I had it once when i whas little. I had a wax plug tgat had to be removed. And back then the docktor used a big metal seringe like thing pushing watter up my ear.
The docktor made the water to cold or he hit something in my ear. And that made my world spin around me indeed. Brrrr.
You are a champ girk🏋️ you can do it.
Hugz Marloes
Haha I AM part robot now! Watch out, world! Oh that sounds like a horrible experience with the wax plug in you rear and the doctor putting water in out! yes, cold water in the ear will make you spin. It’s terrible. I have learned so much about being patient with healing. I truly think I have finally learned that healing takes time and to let it happen instead of trying to push it when I shouldn’t. It’s been a steep learning curve, but I finally feel some peace about the process being a slow one and just allowing healing to take the course it needs to. Thank you for rooting for me! I feel so loved. Hugs back to you!
I found your videos on UA-cam today and they give me hope. My wife (Morgan) suffered a stroke in Aug of 2022 and one of the results (among many) is 24/7 vertigo. Over the last couple of months, she has been experiencing more and more stronger bad days. We recently had an appointment with an ENT, who said she couldn't do anything for her. However, she recommended seeing a doctor in a large city hospital. Apparently, a possible solution to Morgan's problem might be severing the vestibular nerve on the side of her head that suffered the damage from her stroke. The other nerve (we hope) might be able to compensate for the damaged nerve. In this age, it takes forever to get a referral and schedule a new patient consultation. So, we're waiting for that eventual meeting. Watching this video, you address the severe vertigo you're experiencing since the operation. Morgan has been living with that side effect for 16 months, so I believe she will be able to endure your symptoms easier (no such thing as easier, but you get my drift). I wish you all the luck in the world and hope your eventual recovery is full and complete. No one should have to live this way for the rest of their life. (I can see why some choose not to.)
Oh wow, thank you for sharing this with me. THat is very interesting that they would do a vestibular nerve section for her. It sounds like it could be helpful. I agree, it does take forever to get a referral/appointment! I had debilitating vertigo since 2010, so I am pretty used to vertigo, but the vertigo I experienced post-op was MUCH worse that I had ever had. My neurosurgeon told me is the case when the vestibular nerve is cut. It is extreme. It does improve though as the brain compensates and learns so that is the best news. I definitely was better prepared on how to cope with it because of my extensive experience with vertigo, but it is extremely difficult even so. Thank you for your well wishes. I'm so sorry that your wife is living with teh vertigo she is. WHat an awful side effect to get from a stroke. Please let me know if there is anything I can do for you all. Send your wife my love and let her know I'm rooting for her. SHe is not alone. And you are not alone! Being a caregiver can be rough. Please keep me updated. All the best to you both.
Thanks be to God!
Good to hear your recovering well praise God 🙏💖🙏
Thank you! It is so good to be doing so well. I also have a 7.5 month update video if you are interested. ua-cam.com/video/Id6NuCoXSAo/v-deo.html
You are so strong!! all that hard work has payed off and you should be proud of yourself
Thank you so much! That means a lot to hear. 💜
May I ask, why are the IV infusions needed after the vestibular nerve resection? Thank you.
I think they are for her migraines not vertigo.
@inthedaysstillleft1257 the IV infusions are for chronic migraine treatment, not meniere’s. Here is a video I did explaining the IV medications and why I get them: ua-cam.com/video/rDtmzZ1qvbI/v-deo.htmlsi=I3MEX_l2_uGZG6P-
When you say vertigo are you talking about visual spinning or just dizzieness ? When I have the vertigo attack where the whole world is spinning and it won’t stop for hours, that’s when I purge and that is what I just cannot handle.
The vertigo is violent rotation. It is more than dizziness. It definitely impacts my vision. Similar to what you described. I'm sorry to hear that you experience it. It is hellish.
Glad to see you up and talking. Its a day by day journey but, your going to get through this😊
Thank you for the encouragement! How are you you doing vertigo/balance wise?
Glad to see you. Smiling!
Thank you so much Lisa! It feels good to be in a better place.
so glad you're making progress! 🧠 You've got this
Thank you Sierra! Me too! And thank you for watching the entire video! 💜
Looking good.
Thank you!
Kelly so glad you’re progressing, it’s such a joy to see your latest video. You’re continually improving which I’m glad to see. Keeping you in my thoughts and prayers because I see there working. You are a very brave soldier of God to be so strong going through your recovery. I’m so glad you remind we are definitely not alone! You’re Prayer Warrior 🙏 Helen. Sending Hugs 🤗 Prayers🙏 & Lots of Love 💗
Thank you, Helen. It feels so good to be progressing. Thank you for your prayers. They are precious to me. Hugs and love coming your way!
Hi Kelly, wishing you well ❤
Hi Tom!! Thank you so much! I hope you are as well as possible.
@@IncredibleAnyway thank you Kelly
Oh no I’m so sorry you fell. Falls. Suck ❤ 11:21
They really do. I wish neither of us had experience with them!
❤ So good to hear your voice! Praying for you, my friend!
Thank you so much! I’ve been praying for you too! ❤️
🧠
Thank you!
Could you change your glasses to help or. Would that not help bc your brain is still healing ❤️🩹 7:58
Are you talking about how the sun affects me when I go from inside to outside? I have tried to wear sunglasses, but my brain does not like it. It’s like a catch 22 because I really rely on my vision right now to help me balance. ANd when I put the sunglasses on, it takes some of that vision away and I feel more off kilter. But then of course that moment of going inside to outside is scary with it being so bright, I get disoriented. There is no good fix unfortunately!
@@IncredibleAnyway well that too . I just more meant how you said you had troubles in the restaurant or movie !! I wondered if changing would help !!
@@IncredibleAnyway but yes that makes so much sense. When one of our senses is bad / not working the others pick up the slack
I know you’ll be annoyed at my comments as others will be but please look into the medical medium information. Don’t focus on him or where he says he gets the information from but read up on vertigo, Ménière’s, pots, dysautonomia, he knows exactly what’s going on and how to heal. 🧠
I don’t think anyone is annoyed with your comment. Thank you so much for watching the entire video and for caring enough to share what you think will be helpful to me. 💜
@@IncredibleAnywayaww thank you for your lovely comment