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Severe Autism a Full Day without ADHD Medication
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- Опубліковано 14 сер 2024
- Ezra has severe Autism and ADHD, and he sometimes takes medication to help him focus. Today, we want to share a full day without medication.
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You guys are very good parents. When I was afraid that my daughter could be autistic, I stumbled upon your channel and got so much positivity and courage. Thank you!
Wow, that means a lot. ❤️❤️❤️ Thanks for watching and sharing.
@@7Aheadfamily do what’s best for your son
❤️❤️❤️
This is the dad and mom everybody needs....keep going guys your channel is an inspiration
Thanks so much, that is so kind of you. ❤️
My 5 year old grandson is borderline level 2-3 ASD, no meds, but go,go,go all day long! Non verbal till 4 yrs old, when he finally was diagnosed and got some therapy. Thank you so much for sharing your family experiences. I feel so relieved and hopeful now. You have helped me see so many sides of autism, and appreciate the uniqueness of each child, on or off the spectrum!
Thank you so much for watching and sharing your story ❤️. Glad our channel and videos have been helpful. That means a lot. ❤️
@cindycuevas8668 you mean he started talking at 4? How did you do it?
@musiclist4792 ABA therapy really helped. He can ask for help, tell us when he wants or needs something. Still very basic, but huge improvement!
I always think he is enjoying the one-on-one with you two. no distractions.
Yes! He loves just being with us.
Thanks for the update regarding the medication. It's not easy to find the right one. Ezra seems happy when he runs.
Yes! He is normally such a happy kid, that’s why the medication’s have been such a struggle to be OK with.
You guys are great parents. Love your channel. I have special needs and found since going on meds I have been much better fewer meltdowns and also has helped me to be able to be a lot more social. I've been subscribed to you for a while and found your channel really cool as I try to gain as much information on autism so I can help out my friends and learn and grow
Thank you so much for joining us. ❤️ glad to hear that you have found a medication that works for you. If you don’t mind us asking, what is it?
Love you guys! It is a journey, for sure! With our son who has ADHD, it took years and years to finally find something that was right for him. We had similar experiences where his meds were making him more angry and more irritable. We found that stimulants were not the answer. We went for a period of time without meds. But now we have found a non-stimulant that works pretty good and it doesn’t kill his appetite and he isn’t irritable on it! I know every child and every situation is different, but this was just my experience. It’s important not to judge anyone who is or is not medicating their child. But you guys are amazing parents and you are doing an awesome job!
Thank you! Yeah, it has been quite the journey, if you don’t mind us asking what medication ended up working for you guys?
Exactly, what non stimulant you used eventually, now we are all curious... 🙂
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Yeah we’re ADHD and autistic too. They recommend strattera for people on the spectrum since we are very sensitive to stimulants due to our autism. (I am on strattera)
My son is 7 and has both autism and adhd, and I have been very strict about not having him on any meds for his adhd due to his autism.
Thank you for sharing.
Hi I'm from South Africa and my 10 year old child had more than one condition so we had to take him off of risperdal. Then we tried him on ritalin but he developed seizures and then serious tics. We have him see and integrative doctor who specializes in autism and now he's on a whole bunch of supplements including simple spectrum and this seems to be working nicely. Also the exercise is a brilliant idea. We also use a small indoor trampoline for him. And most importantly, our faith in Jesus, we pray with him.
Yes, faith and prayer is what gets us through. 😊 we might have to look into this other medication you mentioned. Thank you!
Wonderful that Ezra is without medication!! More of that
Yeah, we just still have not found a medication where we feel the side effects are not worse than the desired result. ❤️❤️❤️
@@7Aheadfamily I had an irritable mood with mine for about two and a half weeks when my dosage was upped from 40 to 60mg
Thank you for sharing ❤️ yeah there is so much to it. Do you feel like you’re in a good place now?
It is so sweet to see Ezra so happy walking with you. Makes my heart smile! My 4 yo grandson is level 2 on the spectrum. He has some words but does not communicate. He just started ABA about a month or so ago and his parents are seeing some regression in behavior. More meltdowns and not sleeping through the night anymore. The therapist could not offer any explanation 😕. Hopefully they will see some progress soon. Has this been your experience?
Yes. Ezra has regressed quite a bit. He was better potty trained when he was in Preschool than he is now. It’s important to keep on trying and teaching, which I am sure your kids are doing. ❤️ it’s a journey.
I hope you get his medication corrected ,soon. We go through this pretty much the same thing here. One of my sons is happy the other is sad I think it's because of the baby.
We should be here sometimes next week.
Congrats on the baby
@@7Aheadfamily thank you
❤️❤️❤️
Ahora mismo Ezra se ve mas contento, esta avanzando, buenos padres Dios te mando ❤❤❤
You’re so kind ❤️. Thank you.
@@7Aheadfamily se me olvidó comentar sobre caminar así como lo hisieron con Ezra , también a mi mi hijo caminamos hasta que se cansa , lo dejo correr afuera sin zapatos, incluso toma tierra y juega con ello, también muy importante darles agua más si toman medicamentos, a la larga otros órganos como el hígado se entorpese , estoy contenta ver a Ezra sentado con papá por unos segundos y poner atención con el libro , saludos❤❤❤
Thank you so much for sharing! That is awesome you do similar things with your boy. Yes! Water is very important, and sometimes it’s difficult to get him to drink. 😊
@@7Aheadfamily The only way my son drinks water is with a medicine dropper
Wow! That is so hard. So sorry it’s so difficult.
As a parents it’s hard to make decisions about meds😢 I was also struggled but I end up not give meds as my son has focus for learning once we get his attention and he is sensory seeker that’s make it hard to focus for long time , and my son is hyper too no meds I just let him to enjoy and be himself, but it’s depend if he not pay attention much and affect his life then medication is another option because we want they learn and be happy as well ❤
It’s my experience only . Also it’s not easy if you have another kids too 😢
I pray God give all us patients and strength
Thank you! Agreed ❤️
❤ I absolutely love your family! Absolutely wonderful
You are so kind. ❤️
I am glad Ezra is happy and enjoys the walking and running. Everyone is different and different medications work for different people. To answer the question, do what is best for Ezra.
Thank you!
I have two PAS with ADHD kids 7y and 5y both without meds on our decision. Its pretty much stressfull and draing energy but after all wort it. Better learning, less depresion so much happiness but allways on move.
So true! Thank you for sharing ❤️.
Depends on Ezra's function and how he is. Could be the dose of medication factors of his behaviors being overly tired and like you said sad. Do what you think is best for Ezra being his parents.
Thank you. We are trying different doses and types of medicine as well. It’s so difficult that he can’t tell us how he feels, so we just have to observe
@@7Aheadfamily you are welcome and use observation to your advantage of how he feels, through his iPad how he feels. Both you and your husband learned how to get Ezra to eat breakfast is going on walks.
Yes❤️❤️❤️
You guys are going to have to get that munchkin some running shoes! 😂
Yes! For sure. He actually has some, but we couldn’t find them at the time.
thank you for caring so much about your son's base level experience, I've had to fight so hard to get enough respect and independence to create my comfort
I can remember many times going to great lengths to conceal, transfer, and even burying food I didn't want to eat.
Thank you ❤️
Wow, yeah, that’s very interesting. I can see Ezra in that comment for sure!
Ah, bless him! I am quite exhausted just watching!
Tell me about it. He could go for so long!
Ezra without medication will make both of you healthier. I think talking to his doctor is key. That you think this is better. Neither me or my brother have medication. Both of us have delayed processing which makes everything take longer.
So true! That is good to know, thank you for sharing your story ❤️.
My son was like Ezra, He is 42 now and on meds. He didn't take anything until he turned 22. Parents know best for their child. My son was very difficult to raise and keep safe. He cried all the time, and bit things. We learned to live with this. He is too subdued now. I feel I made the right choice for us, to let him live his childhood free from meds. But I only had 3 kids. You just keep the faith, you are doing a great job!
I wanted to add, my son went to the Boston Higashi School, where they would run /jog every day. This really worked, the endorphins released in his body made him happier, and the activity kept him from being distracted.
Thank you for sharing. ❤️😊❤️
Yeah. We’ve seen that with Ezra too. ❤️
He has so much energy at a very early time
Yes, indeed! We have our camping video coming out tomorrow, he was wide awake at the rise of the sun as you’ll see in that one. 😊
@@7Aheadfamily 0k cantt wait to watch it!
Thanks yeah it’s a good one I think. 😉
Please consider putting captions on everything your children watch and on their tablets-and a screen reader and apps that read to them and highlight the words etc.Many Autistics have co occurring Auditory processing disorder (APD)and NEED to SEE language with a visual to CLARIFY meaning and to support comprehension.It’s well documented it helps children to read but is vital for Autistic children because of the APD-it doesn’t matter if they can’t yet do alphabet or speak. My son had his own iPad at age 3 and taught himself to read this way and also via a Google home..he would ask it to spell out words on repeat (as short term memory is also affected with APD ) and phonics are often a no go..whole word approach instead.
That is a really good idea. Thank you for sharing
That is awesome! Thank you for sharing ❤️. Awesome thing to do, we will do that. 😊
Good idea. Do you know What apps is it?
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Hey 👋 7 ahead family your kids are so cute ☺️😊❤ and Ezra are so cute 🥰 too 😊❤
Thank you!
@@7Aheadfamily I want to meet you soon
❤️❤️❤️
You guys doing good work 👏 it's encouraging everyone
Thank you! What country do you live in? We love seeing where people are from that find our channel!
God Bless U Ezra 🙏❤️❤️
❤️❤️❤️
You are wonderful parents, using meds or not is a very hard thing to decided. Ezra certainly enjoyed the running which is good for him and going to give you lots of exercise, he looked so much happier much more relaxed and his vocal noises sounded happier as well, I loved the way he took your hands and so much enjoyed running with you, but could you keep up that level of energy all the time.
I get the feeling you don’t want to medicate him, and that would be my approach to, but maybe there are times when it helps. It’s only you as his parents that can decide along with the help and support of your doctors.
It’s clear that Ezra needs help to channel his energy and the running really helped. Does he like jumping ? What about a bouncy trampoline or something. When I worked with special needs adults back in the 80s the group I worked in was for adults who where also hyperactive. Every day we had a 1 hour slot on a huge adult equivalent bouncy castle, which we had in the department gym, it was great fun for all and It helped burn off the energy. And like the running made it easier for our charges to focus afterwards. Maybe if Ezra enjoyed that king of activity as well as running it would be something that you could have in the home, in addition to running, he could possible go on it by himself with a little supervision ?
Very great thoughts! Thank you so much for sharing ❤️. Yes, Ezra does love going to the bounce trampoline place, and Adam and Benson take him when they go often. We also have a trampoline outback as well which he does enjoy for a little bit. Yeah, it is definitely challenging to find a way to burn off all that energy naturally. 😊 we will be in great condition for a triathletes or some thing if we can keep it up. 😊
Pet therapy could be possible if you fence in the backyard. Some suggestions for energetic animals are small puppy, chicken, and/or pygmy goat.
That’s a good idea. We aren’t allowed to have those types of pets where we live.
Try to remember during therapy it's important 2 give him & the therapist there time as well. It can make such a difference giving him time & space from his parents..
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Remember that video about "meditation"? That was the effect of the meds. Even if not given on that day.
Thanks, yeah, I don’t think he been on medication for quite a while at that point, but maybe could have been correlated
@@7Aheadfamily Sometimes the effect stays for life. It develops not in every child, but anti ADHD medication has been noted as involved in the problem. .
Hmm
Aww sweet boy enjoy his workout
Thanks! He got in 5 miles that day!
Exercise is a good outlet to burn off all the extra energy and any anxiety they may be having. We do the same for Jackson ❤
Thank you for sharing. ❤️😊❤️
@@7Aheadfamily Anytime!!❤️🤗
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Some of that reminds me of the foothills in Boise and Bogus Basin.
Thank you for sharing. ❤️😊❤️
I tried to go without my ADHD meds and nearly lost my job. Definitely need it. It Definitely makes you less happy. Because ADHD is happiness. So when you suppress the symptoms, you suppress their joy. It messes with dopamine, that's why.
Interesting how he stims more off them. Me too.
Thank you for sharing. I have heard from another person, I know, that being on meds for ADHD makes life "boring" do you agree?
I m also 6 years old autistic child father love u all ❤❤❤❤
Thank you for saying hi and introducing yourself. Happy to have you here
You can breath love,suffering,pains,but just symbolism for others.
🤔
My son takes adhd medication but it took us trying 3 different ones to find the best fit for him. I also don’t give it to him until he’s had at least a few bites of breakfast.
It does seem like Ezra is doing great without them though. He seems happy and not so tired.
My son also eats more string cheese than any other food lol. He also drinks a lot of danimal yogurt drinks.
Wow! Sounds very familiar. 😊 If you don’t mind us asking what medicine did you wind up using?
@@7Aheadfamily we use vyvanse. It processes differently in the body and has more of a longer lasting mild effect. It does decrease the lunch appetite but we can usually get at least some cheese and juice in him. He eats a decent breakfast and dinner. (More cheese, yogurt, fruit, bread). 🤷♀️
Thank you for sharing! Yeah, that’s the latest one we tried. That’s awesome and it’s working for you guys!
@@7Aheadfamily it’s very potent. I wonder if his dose was too high. Ezra doesn’t look like he weighs much. My guy is around 67 lbs. It does make him really irritable if he doesn’t eat any lunch but thankfully he is old enough to realize that now.
Yeah, I think that’s Ezra‘s problem, we just can’t get him to eat with the medicine. How old is your son?
My nephew 5 years old is autistic child .he is non verbal & not sits in one place ...my brother & his wife so much worried
I see. The beginning of this journey can be very difficult. Is there support or are there services where your brother and his wife live? Can they get help? And can I get a diagnosis for their child?
Wow! Cheese (what he wants) after he takes a bite of cereal ( what’s ideal for breakfast) 😅😊 I soo have to try this .. my autistic 4 year old loves cheese sharp cheddar but it’s difficult to get him to eat a meal. ❤ 😊 🎉I’m gonna try try your cheese hack ..
Yeah, you really have to get creative sometimes 😊
I wish I shared Ezra’s enthusiasm about running. Maybe then I could shed some of these extra pounds 😬😬😬🤣
🤣 Thank you for sharing. ❤️
I love this video hes so happy and seeing that appetite my son is 2 and has autism like Ezra and is very sensory sensitive to foods and stems alot too how do you introduce new foods and whats his favorite foods I love that your not pushing meds ive seen what it does to kids and I know that schools and doctors like to push it but as a parent you know whats best for your kid
Thank you for being so kind!❤️😊❤️
Meds or no? I am level 1 and take a minimum dose antidepressant. If I have been without for a while, I recognize symptoms. I have had big depressions in the past. I also had ADHD med for a few years, but did not notice any difference either way. A friend's level 1 or maybe 2 daughter has many meds. I do not know what they are all for, but she is much happier than before diagnosis. I have not been watching long, but Ezra seems happier. Could it be lack of meds, or just the long walks? How to tell? I am always happier when I can get out in nature and take long walks. Yes med? No med? Different med? I think you just need to try things and find what works best for him and for you.
Agreed! Yeah, we’re in the process right now. 😊 he certainly loved visiting all the national parks.
@@7Aheadfamily I would have too!
Well, you can join us through this playlist if you would like… 😊
National Parks
ua-cam.com/play/PLLCliYhgnblYXAtWqsvQUKqlrENzK4UOx.html
Ezras little noieses awe so cute❤
Agreed ❤️❤️❤️
Thanks 🙏
I personally don't use medication for my daughters' ADD. The meds usually made the problem worse for them. They would become more aggressive rather than more focused. So, my girls have had to find other ways to work around their attention deficit disorder.
Yeah, that’s where we keep ending up as well. 😊 thank you so much for watching and sharing your story ❤️
Meds vs No Meds: Everyone has to do what works best for them. For Epilepsy-Meds for sure. ADHD-Debatable. Furthermore, a lot of remedy’s that don’t require medication.
For example; Tea is one of them because it can help you focus and calm down and good for you. Also a lot of over the counter.
(Omega 3s-brain boost)
Thank you for sharing! What type of tea works well for ADHD?
Green Tea or Chamomile. If Ezra prefers sweet, a small tea spoon of honey work with some milk.
To dilute the bitterness.
7:39 Ezra is saying “hurry up,” I think. He wants to run 🏃♂️
Ezra seems happier and more calm with meds.
He could also be growing and maturing which might mellow Ezra out.
Awesome thank you!
That would be nice. 😊
I wonder how Ezra would respond if you tried to teach him to do something with his cords (braiding, knotting, or whatever).
Also, have you ever tried teaching him to babble? Like whenever he starts vocal stimming, do the same, but insert a consonant every once in a while (start with something pronounced with the lips like b or p so he can see what you're doing). "Aaabaabaaabaa"
Great Ideas! Thank you for sharing, we repeat his sounds often and he loves it. ❤️❤️❤️ We should do that more though, try to change it into a b or a p.
7 Ahead - Was Ezra Diagnosed With ADHD & Level 3 Autism At The Same Time Or Different Times If So How Many Months Or Years Apart ?
Autism was at 21 months and ADHD was it six years old. Usually people who are diagnosed with ADHD. Have to go to school first. It’s a requirement in the US.
@@7Aheadfamily Why do many people show symptoms of ADHD but end up being misdiagnosed ( told he / she doesn't have it ) , something similar to what I went through 3 years back ?
Not sure, but in our experience, the ADHD diagnosis was not nearly as rigorous , measured, or scientific.
@@7Aheadfamily Can ADHD symptoms be masked at early childhood making it harder to diagnose until adulthood ?
Typically, it’s some thing that is found out because of struggles in school. Not sure if you saw our video about it…
sometimes a little caffeine also helps with some who have adhd
Sometimes. We’ve heard that too. Thanks for sharing.
I'll be starting ADHD meds soon myself.
Cool, please let us know how it goes!
I have a son just like your son too, but my son didn't go to therapy I don't know how to handle it with my autism son.
Are you able to get some support or help locally? Do you live in the USA? If so, what state are you in? There is support for therapy from each state.
It's not that easy. "Meds" or "no meds", unfortunately. My experience was that my daughter couldn't learn to read, even on Ritalin because the half life was as short, but after starting concerta at the beginning of 2nd grade, she was able to read in 2 weeks. It allowed her to focus. But that's completely different from Ezra and your situation. Each child is different. Plus the weighing of "risk/benefit ratio".
You guy's are doing the absolute best for your children and trial and error is how the medical community does it. Just 1 change at a time! Much love to you and your family big hugs! 🤗
So true!!! And thanks for sharing ❤️❤️❤️ We will have to look into Concerta.
@@7Aheadfamily you're welcome. It's a longer acting type of Ritalin. It's delayed release and helps the level to stay more consistent during the day. ❤️🤗
Yeah, that sounds more like what we need. ❤️ thank you!
@@7Aheadfamily you are so very welcome! I'm very glad that my comment helped.
❤️❤️❤️🙏
Hi, I am trying to get off all medications.
Not to pry or anything. Is that my bigger harness? And do you have a video explaining the harnesses that you use?
We have a video of him using a custom leash with a link in the description about custom leashes or harness
Here is the video
ua-cam.com/video/yREeroa8aWM/v-deo.html
Tell us what you think❤️❤️
I’ll start by saying that it’s not a question to anyone but you, the family, if the meds are right or not. Saying this out of personal experience with ADHD and experience working with children with ADHD. That being said, it might be that what he is currently prescribed is not right for him. If you are hanging between yes or no, I’d recommend not only talking to the provider about a change in the given medication, but can also say that different people find acupuncture, Feldenkrais, hydrotherapy, massage therapy (for sensory), etc extremely helpful, and of course sports (including running, crawling, climbing, etc). We are all different, so what might work for one may not work for another, but those are all well worth trying if you can afford it, alongside meds or in place of meds. I can say that with the existing options these days, it might take some trial before finding the right med.
you are wonderful parents, and you have amazing children. First time commenting here, so wanted to add it! Thanks for sharing glimpses of your family life. You are a true inspiration.
Your right, it is nice to get a second or third opinion if you are feeling wary❤️
I've been on multiple ADHD meds throughout my life. I'm on Vyvanse right now which is working decently. One thing I've noticed is when I take my meds, I'm laser focused on every task I do, and I don't stim very much. I can also sit down and still for longer and I'm more patient, but because of my meds (and Crohn's) I go multiple days without eating a single thing, and when I do eat it's something very small like a piece of fruit, or yogurt. I still feel hungry, but when I try to eat I feel really sick, or I just have no motivation to eat. I also seem really calm and sad, even though I'm not sad, I'm just focused. When I don't take my ADHD meds I eat at least one meal a day, and I seem hyper and happy, but I can't focus enough to start and complete daily tasks. I get hyper and I stim 24/7, and when I try to sit down and stay still, I go into sensory overload, but I also can't stop stimming and moving in a way that resembles tics in the sense that I can't control my body movements. I also have meltdowns more often. My doctor did a trial where I went a month without my ADHD meds to see if that was the cause of the uncontrollable movements, but it's just cause I have severe ADHD, and after taking my meds for a while, I basically forget how to self regulate cause I'm not used to the feels. Some parts of taking my medicine is really beneficial, but there's some parts that I definitely hate. One thing that helped me and could help Ezra is a medication that increases appetite. I don't take them anymore cause the side effects of one of my other meds is increased appetite, and even though I don't have that side effect, it could increase my hunger too much.
I appreciate your comments so much, because I feel like you're speaking for Ezra, in some ways. I see that a lot of what you just explained is happening to Ezra. If you don't mind me asking, when your ADHD medicine wears off, how do you feel? Ezra has a hard time at the end of the day when his medicine is out of his body. He seems to become angry.
@@7Aheadfamily I crash at the end, and when I crash, I lose all the motivation I had before, and I feel tired. The worst part is when it wears off while I'm in the middle of doing something, and I basically abandon that project because of the lack of motivation. Also if I go the day without eating when I crash I feel sick for the first few hours. I also do a lot of very repetitive stims, like rocking back and forth for multiple hours. That one is a stim that doesn't take a lot of energy, so it's a good one when I crash. Maybe when you notice his medicine wears off, you can distract him with an activity that doesn't take a lot of effort like watching a show he likes, and let him play with his cords and wrappers.
@@7Aheadfamily I have a feeling that he might feel angry, cause of the loss of motivation, and because of the strong urge to constantly stim , which is it's mostly uncomfortable because if a person on the spectrum tries not to stim , it makes the urge stronger, but if they're on ADHD meds then that crash will make them tired and restless at the same time, so the uncontrollable urge to stim and being tired causes frustration and anger.
Such great advice! Thank you so much for sharing ❤️
You’re describing him exactly! He started, banging his head at this time as well, and I’m guessing that’s why. Thank you 🙏
The nature has an grace sleep,easy,so i understand
🤔
Heads up on Autism for adults, for some reason Australia has a huge autism movement and a lot more acceptance and resources for adults.
Yeah, I believe that, we have a lot of followers from Australia.
I grew up on Adderal and all it did was give me insomnia, irritation and made me depressed. I don't think the meds are worth it, hearing how you described the way it affected lil mans! im no dr tho !
also definitely all about finding the right one - that didn't happen for me and my family found it better to keep me off of them after a time
I also lost my appetite when I took ADD/ADHD medication
Yeah, that sounds like about where we’re at. ❤️ Thank you for sharing your story!
I personally believe no meds. he seems happy without it. try for a while and if he is better then leave him to grow up drug-free. if you believe he is better off with meds then go ahead and give him a little and see how he is doing. Prays are the best meds in my book.
Thank you for the advice. ❤️ prayers are powerful!
To crack my head to see a light in my head .sorry..to laugh before the imaginarium pains
🤔
Did Ezra go to preschool? My friend suggested that my son who is level 3 ASD would develop social skills in preschool. I don t think he would because he does not play, nor learns by imitation. He does ABA at home.
Yes. We are actually working on switching schools with Ezra right now but here are some videos on that…
Ezra's LIVE School Update!
ua-cam.com/users/liveF20ROExUSvE?feature=share
Autism 2nd Grade School Ezra's 1st Day | Severe Autism
ua-cam.com/video/vYZLvnihw7k/v-deo.html
I don't eat when I am too tangled up, my brain is fogged in the morning and at night especially if I am trending to burn out. I have to protect my routine and my self respect during those times. Routine is the only way I can even function during those hours of the day
for me its way easier to risk not sleeping or being slightly tired at work late at night as apposed to being completely incapacitated for the first 2 hours of the day
Yes! I think Ezra thrives when we have a good routine.
Good thoughts.
When i can i have ever the same obstackes,another one want what is my,not my math
🤔
I think meds or no meds depends a lot. I am personally on medication for OCD and anxiety because natural and environmental remedies wouldn't work. The medication also helps with the emotional disregulation from autism I think, but that should be for my parents to judge. If there's other methods that work, then I think medication should be avoided. But there's nothing wrong with taking it
We appreciate you sharing you ideas!💕💕 Thank you!💕💕
I’m 22 and I have ADHD and I take meds for it, the medication causes loss of appetite. Even though I know my body is hungry, I can’t seem to get myself to eat. When I don’t take my ADHD med for a day, I could eat like a big bodybuilder that eats tons of calories.
Thank you for sharing. ❤️😊❤️
Still in the process of seeing if my son is diagnosed with ADHD but most likely he has it he's non stop hyper and both mommy and daddy both have it. I'm hesitant to put him on meds cause he is so little but maybe in the future. We try to do something every day to tire him out. He also gets super super hyper cause he's overstimulated at night but since we've lessoned the screen time it's been a little better at night.
Yeah, sounds like you have your hands busy trying to keep up to your little guy as well. 😊 It keeps us young anyway right. 😉
@@7Aheadfamily because of some medical issues this time last year I came out of the hospital barley able to move in a wheelchair and they gave me no physical therapy but you know what did? My son. Because I had no other option then watch him 24/7 I was eventually able to use a walker and now I'm using a cane. But all of that progress in one year with no physical therapy was definitely cause he's a wild child. So in this case it was such a blessing he's so wild! 😅
Wow! Yes, there comes advantages to struggles as well. ❤️ Glad you’re able to get around so well now!
I have a 2 1/2 year old grandson. He is on the list to be checked. He runs none stop and won’t hold my hand. He can say a few words he says good bye when he sees me and says good bye when I’m leaving. He says sky, plane,Apple. What worries me is he has no fear when he runs he doesn’t stop. He loves it when I let him put the lights on and off. He does that all day. When he falls he doesn’t cry. He also throw things like his food I don’t know how many sippy cups he has broken. I just wonder if I could teach him about danger. I bought the bracelet that you but on the wrist so we could walk together he cried and pulled them off so those will be going back.
Sounds very familiar. ❤️ Yea, Ezra loves his leash thankfully otherwise he would have been dead by now.
Thank you, so much for getting back to me. I pray that my grandson gets diagnosed soon if he has it. Yes, the leash is life saver I couldn’t agree with you more💯I love the style you have bc it gives him some freedom. I checked with Amazon they don’t have the kind you have,so I will keep looking.
We will pray for your grandson as well ❤️. Here is what we use for the leash. The guy is really good and gets custom measurements for the child. And the second thing is just the retractable end that we use…
Our new custom leash - MyBiggerHarness.Etsy.com
Retractable end - amzn.to/3svUVGL
@@7Aheadfamily Thank you, so much for your prayers and the links for the leashes.
How is Ezra at night does he sleep? Does he make noises all night ? What time are their bedtimes he has a lot of energy for the morning I'm impressed LOL
He will make a lot of noise sometimes but other times he goes to sleep quickly. His bedtime is usually around eight thirty. ❤️
Me personally I'm a no meds kind of person. I love it when I don't take my ADHD meds. I'm so full of life when I'm off my meds.
Yeah, that’s definitely our preference as well. ❤️
Can verify . Myself , and both my sons have inattentive type ADHD . The medication does kill your appetite. We tend to get very hungry at night as the meds wear off. For us , without the adhd meds we can’t get going . I can’t even stay awake without it . Literally will fall asleep driving n run off the road . My boys also have apraxia of speech . They are 16 and 20 if you have any questions you’d like to ask regarding that . My youngest son didn’t speak till 5 1/2. You can tell he has a speech issue at 16 , sometimes has a a slight difficulty finding the words. And speaks with what he calls his speech impediment . But he’s doing good . Does great in school
And is going to tech school to become an electrician
That is so awesome! Thank you so much for sharing ❤️. What do you feel? Has been the most helpful thing for your boys in developing their ability to communicate and speak?
Honestly . Time. The signing never worked for them , they just never got the hang of it . We didn’t have the speaking tablets at the time. But I can see where that would be helpful, but coukd become a crutch . We did all the regular speech therapies in school and some out … and to be honest with the ADHD, it took all they had to give their focus and effort in school. Once they came home , they just needed a soft place to land , where they could recoup and relax and they did not want to have school/ speech therapy mixed with their home world . For years when they were younger ( once they began school) I tried and tried and it’d end in meltdowns where we got nothing much accomplished . So I let them lead . As my husband always said “ some kids just take longer to cook “ lol. But being the worry wort I’d be like “ but what if they never get there , what if they never get much better” and my husband would say , “
They will in their time . And if they don’t what are we going to do ? Kick them out ? Lol… We’ll deal with it then “ My children do not have the added issue of autism , though they do exhibit some characteristics . One has always stimmed . But has learn to control it in front of others . He works full time in a warehouse , but I can hear from his room when he’s watching tv and stuff his hands clapping and stuff… lol… My youngest son with the more severe speech apraxia …. He has always preferred to be a loner and that has always worried me endlessly …. But then I look around at our family and me and my husband are not very social creatures and get almost all of our social interaction from coworkers and family … and Dalton being a smart kid just learned this early . He’s like “ mom , I deal enough with people at school all day , I don’t want to come home and deal with them” We did play dates all when he was younger and I’d have kids sleepover … and he could never wait till they left … lol. I learned follow their lead . With the speech as they were younger and even know ( my oldest has mostly out grown it , except for people thinking he has an accent … 😂) but my younger son the best thing is don’t interrupt when they are trying to get the story out … even if it’s killing you inside to give them the words …. Unless they ask…. Give them the time they need to put the words together . It frustrates to be interrruptrd when they know what they are trying to say , but the words are getting jumbled . Let them work it out of their mouth , even if you know what they are trying to say . And lastly when they were younger we never acted as though they were different or had a problem ( as with you ) both our children were effected so to us we didn’t quite know what “ normal “ was . And in a way that is a blessing . Particularly for your children . I don’t know your stance on religion … but I learned to give it to God and trust he’d guide me with what I should do to help them . We still have difficulties to this day , driving has been a nightmare with the inattentive adhd , but it’s just taken longer … social things are still an issue for both …. But like my husband said … They just aren’t done cooking , they will get to where they are meant to be eventually . Where they are meant to be may not look the typical path or may not even be exactky as you had wished or envisioned and that’s ok . Everyone is different , there is no normal as far as I’m concerned . And some of what is so called “ normal” im glad we didn’t have … the partying , the sleeping around , experimental drug use , worrying where they they were some nights …. I’m glad we skipped that ! You two are amazing parents and are doing everything in your power for your boys . God Bless you ! When they are little it’s much different. As they get older and even some now … follow their lead …. As I’m sure you already do ! Ps… I began watching these videos because I am in the process of trying to get hired as a paraprofessional. We had an amazing school district with amazing aides and teachers that were instrumental in making my boys successful . I’m trying to learn all I can about autism , so if I am hired ….which it’s looking pretty good …. I will have some working knowledge on autism . So thank you for all of this !!
Thank you for sharing your amazing experience! We do have a very strong faith in God, that’s what gets us through. 😊 that’s awesome that you’re going to help others ❤️. Here are some videos that we did with a doctor that might be of interest…
Playlist - Videos with a Doctors Professional Opinion
ua-cam.com/play/PLLCliYhgnbla95cuUgsvUd0CWgsxe-1ZY.html
Thank you so much ! That’s so kind of you ! It’s my turn to give back and I want to be that God Sent that I had for my boys in school .
It depends on how "sad" he gets on his meds. If he gets aggressive or melts down that's kind of a deal breaker.
So true! Yeah that’s where we’re at. ❤️
It took me years to find the right med for me, but in time you'll find the right ones. Be patient, they right medicines will come to you soon. 🙏
Thank you ❤️. Agreed!
I can’t remember, did you tell us which medication that you ended up going with?
@@7Aheadfamily Yes. I'm on quite a handful, but the main ones are Lexipro for depression, Risperadone for my autism, and for ADHD I'm on Clondine. You have to be careful with Clondine or your Blood pressure can drop. I'm also on iron and Fludrocortisone for my salt intake (I have POTS).
Wow, that is a handful. Thank you so much for sharing. We will look into some of these ❤️
I don't recommend adarol because some people like to get high on that. 🚬 not good. But rather than that I would personally say that what works best for him and for you guys also.
We haven’t tried Adderall. That is usually for when you’re older, not really for kids. But that is some strong stuff, I heard.
One idea you might try with Ezra when it comes to toilet training. (I seem to remember hearing that Ezra was somewhat trained during kindergarten so at least in theory he can do it.):
This is something I remember my mother doing with me mostly around age four or five (give or take). From what I recall I didn’t really make much progress from sitting on the potty chair or toilet when I was little (even around age three-and-a-half or four) because I didn’t really know what to do yet (let alone how to do it). What my mother would do with me was to have me sit on her lap fully clothed (but with underwear on instead of a diaper) and wait for me to “go”. When I did my mother would say something along the lines of, “Look Tommy, you’re going pee-pee!” (and point to the relevant area if I was wetting) or say something like, “Look Tommy you’re going poo-poo!” if I was pooping. In this fashion I associated the words with the corresponding function. You could maybe try something like this with Ezra once or twice a day and see if you get any results.
The first time I remember my mother doing this technique with me was at age three-and-a-half on a trip to Nantucket. I was in Pampers full-time on that trip with the exception of bath time and some time on my mother’s lap outside. I didn’t use the toilet or any potty chairs on that trip but I started to become more aware of what my body was doing (and what certain toilet-training-related words meant). One time that my mother pointed out what was happening (without any commentary or judgement) was during one of my baths in Nantucket. Therefore sitting on a lap is not the only place where this technique can be practiced.
You can also combine this with having Ezra sit on the toilet after meals and snacks and see if you get any results that way. If Ezra “goes” you can point out what he is doing (and afterward what he did) and give him some praise and some candy or some other small reward.
It looks like Simon has made a lot of progress with his training (aside from an occasional accident here and there). I wonder if this progress might be (at least in part) a function of doing something similar to what I described here with Simon some time recently.
That is a great idea. Simon was honestly very easy to potty train. He had a few accidents but hates being wet, so he goes in the potty, I has very few accidents, usually just in the car, when he feel he doesn’t have a choice. Ezra will hold it until he can get alone in the closet or behind a chair, so we’ve been trying to put him on the potty regularly, and try to give him some privacy too. It has been a challenge. I really appreciate your ideas. They are really insightful.
@@7Aheadfamily I actually thought about asking in my question above whether Ezra hides when he needs to poop but I initially decided not to because I thought it might be too intrusive to ask about. Out of curiosity how long has Ezra been hiding before “doing his thing” (as it were)? I have heard that most kids start hiding before doing this somewhere in the two to three year age range. The fact that he is hiding is actually a pretty significant sign of toilet training readiness. It also means (as long as he is not being punished for accidents) that his ability to feel embarrassed is beginning to develop. Based on this I have to say that while his language skills don’t seem to be coming along all that much just yet that his social skills seem to be coming along a bit. In fact, my own ability to feel embarrassed didn’t begin to kick in until I was in third grade (around age nine). That puts this aspect of Ezra’s social development a bit ahead of where I was at that age.
Also my parents recently confirmed (during a phone conversation) that while my language abilities were fairly normal (especially by about third or fourth grade) that my social skills were very basic for someone my age all the way through grade school and for a bit longer. For example, while I was toilet training accidents never embarrassed me and my sister and mother have both confirmed that I did not hide at any point during this process (unlike an average “neurotypical” child). Like me, my sister is also on the spectrum but she actually started hiding before “doing her thing” at about the normal age (from what I have been told). In other words her social skills were pretty consistently ahead of mine (including having more friends during her school years than I had). She has what is currently considered to be level one/mild autism. (I have what is called either Right Hemisphere Syndrome or Right Hemisphere Deficit Syndrome (depending on the source). Some years ago I read an article about it online titled “Asperger’s by Another Name”.) In addition, my sister started reading books around age two and started understanding some of them a bit later. She also remembers dates very well and hardly ever forgets when anyone’s birthday is. She is also four years older than I am which may have given her an edge in some areas.
Like Simon, though, I usually did not like being wet. It was not just wetness from accidents or spilled drinks that I didn’t like it was wetness in general (with the exception of baths and showers (I usually enjoyed those)). I think it was pretty much that along with having sensitive skin that explains why I toilet trained at all. In college when I took Sociology 101:General Sociology (back in the 1990s) I heard (during one of the professor’s lectures) about the M&M method that I referenced in an earlier comment. I remember this was in connection with a lecture about classical conditioning vs. operant conditioning. The lecture mentioned the importance of getting results with a reward every time (or close to it) initially and then randomizing and gradually phasing out a reward until one is no longer needed. He illustrated this concept by mentioning that our parents most likely used M&Ms during our toilet training (My mother was one of the few who did not because she was unfamiliar with the technique.) and then said something along the lines of, “Show of hands, do any of you still need M&Ms?” and in this class of as at least thirty or forty students not a single hand went up. The professor followed this up by mentioning the role of embarrassment in the process of toilet training (Specifically how rare it is to see kindergarten students in diapers (in the absence of incontinence or any developmental conditions that would account for it)). I remember after thinking back on this lecture (later that day) being surprised to learn that for most people toilet training is more motivated by social factors than by more simple considerations such as itching and rashes. I didn’t realize until then just how unusual my own toilet training experience was.
For now this pretty much sums up my thoughts and observations on toilet training.
@@7Aheadfamily On the subject of Simon’s accidents in the car when he feels he has no other choice I noticed that in the video about the trip to Dollar Tree that Simon did not appear to be crying like many kids would after an accident. I’m thinking that this is pretty common with kids on the spectrum because I didn’t cry after accidents either when I was little (or at any age really) and from what I have been told neither did my sister when she was younger. I also didn’t notice any other signs of Simon being upset but it’s possible that I missed something given that understanding body language still doesn’t come naturally to me.
This makes me wonder if maybe Simon (in situations like this) feels pain or discomfort and then closes his eyes and pretends that he is on the potty so he can do what he needs to do and be able to feel more comfortable. If so then it would technically be an “on purpose” rather than a true accident. Even so considering his age and developmental level I would not consider it to be misbehavior per se. Therefore I do not think that he should be put in time out or otherwise punished for doing this. That being said it’s probably not too early for you to find some developmentally appropriate way for Simon to begin helping (in small ways) with the cleanup process by handling you wipes, small towels, wash cloths, or other safe and non toxic supplies that you need to use for the cleanup process.
I think you’re right! These are some great ideas. 😊 we can definitely have Simon help clean up. Thank you!
Wow! Thank you so much for sharing your experience, and so much great information on potty training! Yes, we are getting closer with Ezra, just missing that last piece for him to communicate with us, or go to the potty on his own when he needs to go. Hopefully soon!
Honestly I don't know which I do prefer, meds or no meds, I usually take meds to make me sleep easily since I have trouble with sleeping, and I can't sleep at night without them
Thank you for sharing. Sometimes it is difficult to sleep and it's so important to get a good nights sleep.
does he have adhd? or does those meds work for autism because i didnt think there wereany meds for autism
These are meds for ADHD. Though, there are anti-depression meds that can help too. Talk to a psychiatrist about what your concerns are and there are different meds that can help. They aren’t for everyone though. A lot of Autistic people choose to stay off of meds.
Its a hard job you guys are doing well but one ting i want you when he is pulling your hand ask him to say things if he can say star he can say more just prompt him it will take time but he will definitely say my 5 year old talking in sentences
My child was diagnosed with severe autism but she is doing well talking fully toilet train and do lot of things together with us fully following command and reading and just started writing it took me long time to come this far I do lot of therapy at home by myself
Congratulations! That is awesome. 😊 yes that is a great technique. And thank you for sharing.
That is so awesome! Great job. 😊
What do you feel has been the most helpful for your daughters progress?
@@7Aheadfamily yes it was very hard and hyper I do lot of hyper therapy like trompline comparison massage rocking I don't go until she says if she isn't sure I ask her to say and give her the word try this I am sure it will take time but will happen
They offered me meds and i said no
Yeah, such a difficult decision as the parent. I wish he could tell us what he wants. Hopefully someday soon. ❤️
Do you use CBD ? I’ve heard of some people using cbd for adhd and autism
We did, but Ezra didn’t do well on it. He got more hipper active.
Ezra looks more happy when he's not taking meds, how much miles did he walk?
yes, true. He this day he walked 5 miles
the harness made me laught a litlle bit
Thank you for sharing!💕💕
I also have autism and ADHD and I tried different medications for a while but it didn’t really help.
Thank you so much for sharing. ❤️ that is where we continue to end up as well. 😊
Thank you for sharing. It is quite a unique journey for everyone
So I just genuinely want to know is there a reason that you have the title autism adhd meds how does being autistic have to do with adhd and adhd meds wouldn’t someone with adhd and no autism have the same or similar challenges without their meds as someone who is autistic with adhd without meds
Great questions! Thank you for watching and reaching out. Ezra has ADHD and autism. Here are a few previous videos that will hopefully help make more sense…
3 Signs Your Child has ADHD and Autism
ua-cam.com/video/1I-sB1lpwwQ/v-deo.html
Autism and ADHD New Medication Results for Ezra
ua-cam.com/video/lLDY4COxmdk/v-deo.html
Also, to further answer your question yes, someone with ADHD, and no autism would have similar challenges, however, with Ezra it’s more difficult since he is nonverbal and has difficulty in helping us understand how the medication is affecting him.
PSA: never go off meds fully without a doctors permission. Assuming I went off my fluoxetine for a day, I would be a mess. Medication is the only thing that has helped my adhd/anxiety symptoms
Thank you for sharing. That is very true. Especially with certain types of medication, they need to be tapered off and not just go completely off all at once. so glad you found something that is helpful to you.
@@7Aheadfamily that’s what happened with my anxiety meds. My doctor said it was OK to go off them but I got put back on the meds a year and a half later after I went on, then a year after that my dosage was upped so my focus would be better at my job
That’s awesome! Thank you for sharing your story ❤️.
Oh, yes. I forgot to say, I hated milk on my cereal. Since being on my own, I do not eat cereal. When I was married, my wife made very nice breakfasts. I did not want to get divorced, but life has been much better since.
So glad things are going better for you! Thank you for sharing ❤️.
I also don’t like milk on my cereal. I eat cereal but without milk. I usually eat either Raisin Bran Crunch or the Special K cereal with the chocolate pieces. The one with the dried strawberries also works.
I love the ones with the dried strawberries as well. 😊
And really is only who believe just in me as the doctor,becouse i.m
🤔
Have you ever heard about stem cell therapy for autism ?
We’ve heard of it, but haven’t looked into it really.
Be careful! If you increase his need and ability to walk, his need will increase, if you miss a day he might surprise you with intensity in a meltdown because he is able to perform better
I work out a lot and I've found that I need to keep my routine or I get cranky and my intensity is greater
Very good thought! Thank you ❤️
That’s awesome! What kind of workouts do you do? And for about how long?
I think working out really helps Ezra
Famales commander the war in imaginarium,and politucs,what we to do..we are strong,but Jupiter matter
🤔
I can not stop me to laugh..if the world song is...believe me..trust in me..he has many cars and here is the respect....hard before puberty...
I’m not sure I understand
Inca plang din.cauza breselor facite unde trebuia sa fie numai figura paterna...sau materna,in cazuri feminine,o fi diferit?
I think it’s important that the child has their parents involved in their life.
@@7Aheadfamily
Of course,but when he listen your heart,in.finish of the day...is so smart to.understand..you do not know what to do..no quilty
❤️❤️❤️
@@7Aheadfamily
And....he not like it...what????
The scene with the book...
Sensibility....what he want.....not in your arms???
❤️❤️❤️
What is moon???
🤔
Duality...hard personality
🤔
The moment they found you...here is our life's risks...internet
I'm trying medicine right now for me and my medicine makes me not hungry either
Thank you for sharing🩵
I think just what me to do...
❤️ I’m not sure I understand.
The gun of critics,everywhere
🤔
How many kids you have ?
We have 5 kids. They are introduced in Thai video ua-cam.com/video/T9whr7Okt24/v-deo.html this was over a year ago though. So the kids are a year older now.
I arque to understand....be new...be atention..let me
I’m not sure I understand