Thank you for sharing. I was diagnosed this past Feb. It helps hearing other people’s stories. I also am concerned for my husband. He has a difficult time talking about it. 🙏 for our guys
Hi Beth. Thank you for the update. I am sorry that you have to be an ALS sufferer. It's so heart breaking and frightening. I will add you and your husband to my prayers. I hope speaking to us will help you. In turn you help others! God Bless. 🙏❤🙋🙏
just found your channel, adding you to my nightly prayer list. My husband has Alzheimers, he is in the mid stage, can no long drive or use the phone and has trouble eating with utensils, he still has plenty of appetite. It is a lot of work and we know what the end of it results in , but both of us have great faith and we know we will see each other again. I am not in the greatest health myself but God has given me strength to care for him myself. He has a great attitude much like yourself. We all will have something if we live long enough that will end our time here.
@bethbrock2797 yes Beth. Our bodies were not made to last 4ever. We were sent here to prepare for our heavenly home. Unbelievers will not understand, but God is actually blessing you. You will see him and all your saved family members who have gone before you. I will pray that God gives you strength to make this journey.
ALS warrior here! My respiratory function is at 80% and that was last checked in May so I’m not sure where I’m at now. I go back to the clinic in a couple weeks for my check up. But I’ve been wearing my (BiPap) for a year now and it’s not as scary as it sounds. I actually really love my (BiPap) once you find a mask that fits you and is comfortable you’ll sleep so much better at night. I wear my (BiPap) now about 14 hours a day/night. I don’t have the trilogy but just the regular (BiPap). Maybe it’s an insurance thing which will cover which. But just be patient with it and you’ll notice a huge difference as you start to get comfortable with it.
My daughter bought a curling brush. That made her happy. She has to use a walker but can't get up by herself. Today I was able to visit her. Her son got her up he tried to move so she could stand better and she fell back into her chair. Her speech is about like yours. By the time we were ready to go she was very tired.
@@bethbrock2797 her hands were the first to go. She thought she had carpal tunnel but the tests revealed that it was not. Her right hand is the worst but she still tries to sew. Her sisters are doing the ✂️ cuting and pressing.
I had a scare in 2021… had trouble pushing my brakes in the car and lifting pots or pans and dropping things and muscle cramps and spasms . Then it all went away . Sometimes I wonder if it will return
Hi Beth.. I thought I had commented on your first video but went back to look and it’s not there.. I’m currently waiting for a neurologist appointment and have been waiting a long time..both my primary doctor and rheumatologist are both putting out referrals and putting urgent..I’m am very certain of what the diagnosis will be,.I have had symptoms since December of last year and they have spread from spasms in my bottom lip to hands, then right shoulder atrophy and spasms in right arm then extreme right hand weakness,.some spasms are so strong they hurt, then also it’s so easy to pull muscles doing absolutely nothing,.now I have spasms in my esophagus when I eat and fatigue is bad but I also have lupus which is why I see a rheumatologist but she says these new symptoms are definitely not autoimmune and I agree. My question is how did you get into an ALS clinic and did you have to have a diagnosis to get in or did you just make yourself an appointment? I hope you see this and can help me, I’m loosing hope at seeing a neurologist any time soon and need to know what’s wrong with me 😢
Hey, there, thank you for telling me about your situation. I looked online and found the ALS association of Georgia and called them, and it got me in touch with their support group leader. The leader told me who the doctors were in my state who specialize in ALS, that run a multidisciplinary clinic, and I did not have to have a referral. I hope that helps.
@@bethbrock2797 thank you so much for responding,.my doctor called yesterday and I will be seeing a neurologist in December,.the 1st neurologist that took me called back and canceled my appointment because she said after reading my medical records I didn’t fall under her area of “expertise”,.they called me back later with a new neurologist and appointment with a neurologist that specializes in upper and lower motor neuron disorders,..😔 although I am happy to finally have an appointment I feel like this is one step closer to hearing what I fear most and in all honesty I’m terrified..
I just know that I called the ALS Association on my own, and they gave me the number and person's name for the nearest multidisciplinary clinic, and I called. I spoke to the clinic manager, and they got me in about 4-6 weeks later. I couldn't stand waiting around. A neurologist isn't enough unless they specialize in ALS.
You're such a good woman with a beautiful heart and loving soul. Blessings and prayers to you...
You look so lovely♥️🙏
Thank you for the support.
Prayers 🙏🙏
Thank you for sharing. I was diagnosed this past Feb. It helps hearing other people’s stories. I also am concerned for my husband. He has a difficult time talking about it. 🙏 for our guys
I know what you mean. I like connecting with others. Also I know no ALS females. All in my support group are men.
Hi Beth. Thank you for the update. I am sorry that you have to be an ALS sufferer. It's so heart breaking and frightening. I will add you and your husband to my prayers. I hope speaking to us will help you. In turn you help others! God Bless. 🙏❤🙋🙏
Thank you for praying for me. I can feel that people's prayers help me by strengthening me emotionally ❤
just found your channel, adding you to my nightly prayer list. My husband has Alzheimers, he is in the mid stage, can no long drive or use the phone and has trouble eating with utensils, he still has plenty of appetite. It is a lot of work and we know what the end of it results in , but both of us have great faith and we know we will see each other again. I am not in the greatest health myself but God has given me strength to care for him myself. He has a great attitude much like yourself. We all will have something if we live long enough that will end our time here.
It sounds like he is blessed to have you. I am grateful we can pray. It's how we can best get through this.❤
@bethbrock2797 yes Beth. Our bodies were not made to last 4ever. We were sent here to prepare for our heavenly home. Unbelievers will not understand, but God is actually blessing you. You will see him and all your saved family members who have gone before you. I will pray that God gives you strength to make this journey.
Prayers🙏
❤
ALS warrior here! My respiratory function is at 80% and that was last checked in May so I’m not sure where I’m at now. I go back to the clinic in a couple weeks for my check up.
But I’ve been wearing my (BiPap) for a year now and it’s not as scary as it sounds. I actually really love my (BiPap) once you find a mask that fits you and is comfortable you’ll sleep so much better at night.
I wear my (BiPap) now about 14 hours a day/night. I don’t have the trilogy but just the regular (BiPap). Maybe it’s an insurance thing which will cover which. But just be patient with it and you’ll notice a huge difference as you start to get comfortable with it.
Glad to hear from you:)
I have made the adjustment to the Trilogy. You are right and I do sleep better❤
Beautiful smile
❤
My daughter bought a curling brush. That made her happy. She has to use a walker but can't get up by herself. Today I was able to visit her. Her son got her up he tried to move so she could stand better and she fell back into her chair. Her speech is about like yours. By the time we were ready to go she was very tired.
So it sounds like she can use her hands ok?
Im glad yall are helping as a family❤
@@bethbrock2797 her hands were the first to go. She thought she had carpal tunnel but the tests revealed that it was not. Her right hand is the worst but she still tries to sew. Her sisters are doing the ✂️ cuting and pressing.
@@bethbrock2797 I live an hour away and dont drive that far my daughter took me.
Same here, right hand
☀️🙏☀️🙏☀️🙏☀️🙏☀️🙏
I had a scare in 2021… had trouble pushing my brakes in the car and lifting pots or pans and dropping things and muscle cramps and spasms . Then it all went away . Sometimes I wonder if it will return
I'd feel the same way. It's a vulnerable position. I hope u can pray and ask for help In whatever way you need.❤
❤
Hi Beth.. I thought I had commented on your first video but went back to look and it’s not there.. I’m currently waiting for a neurologist appointment and have been waiting a long time..both my primary doctor and rheumatologist are both putting out referrals and putting urgent..I’m am very certain of what the diagnosis will be,.I have had symptoms since December of last year and they have spread from spasms in my bottom lip to hands, then right shoulder atrophy and spasms in right arm then extreme right hand weakness,.some spasms are so strong they hurt, then also it’s so easy to pull muscles doing absolutely nothing,.now I have spasms in my esophagus when I eat and fatigue is bad but I also have lupus which is why I see a rheumatologist but she says these new symptoms are definitely not autoimmune and I agree. My question is how did you get into an ALS clinic and did you have to have a diagnosis to get in or did you just make yourself an appointment? I hope you see this and can help me, I’m loosing hope at seeing a neurologist any time soon and need to know what’s wrong with me 😢
Hey, there, thank you for telling me about your situation. I looked online and found the ALS association of Georgia and called them, and it got me in touch with their support group leader. The leader told me who the doctors were in my state who specialize in ALS, that run a multidisciplinary clinic, and I did not have to have a referral. I hope that helps.
@@bethbrock2797 thank you so much for responding,.my doctor called yesterday and I will be seeing a neurologist in December,.the 1st neurologist that took me called back and canceled my appointment because she said after reading my medical records I didn’t fall under her area of “expertise”,.they called me back later with a new neurologist and appointment with a neurologist that specializes in upper and lower motor neuron disorders,..😔 although I am happy to finally have an appointment I feel like this is one step closer to hearing what I fear most and in all honesty I’m terrified..
@@ronicalee3112 I'm so sorry. That is a long wait. Can you find your nearest ALS multidisciplinary clinic? Maybe you could get in sooner?
@@bethbrock2797 I’m not sure,.should I try that? I’m at a loss on what to do at this point
I just know that I called the ALS Association on my own, and they gave me the number and person's name for the nearest multidisciplinary clinic, and I called. I spoke to the clinic manager, and they got me in about 4-6 weeks later. I couldn't stand waiting around. A neurologist isn't enough unless they specialize in ALS.
What did your cervical MRI ?
For my cancer?
@@bethbrock2797you have cancer?