My daughter was born with arthrogryposis or AMC for short. Her pain management Dr introduced her to LDN. She started out with 1mg and over the past 5 months she is now at a 4mg twice a day. She’s 15 and has had 13 surgeries in her short life. We’ve been all over the US to find specialists and someone to help with her pain. LDN has been a miracle drug. Of course we give God the glory for allowing it to work in her but none the less…. IT WORKED! So far no side effects and she’s been on it for approx 6 months now.
You are so uplifting and beautiful. I am considering trying LDN for chronic pain, still doing research. I'm off the heavy meds I was on for 20 years but the pain is limiting my lifestyle. I was researching the starting dose. God bless you, protect, guide and watch over you. I pray you feel better each day. Much love from Linda in Texas
Hello, Linda! Thank you!! =) I started at 4.5mg and have been on that dose ever since! I hope it helps you if you choose to give it a go! Thank you so much for your prayers. Lots of love
Hey Sister! I see the spiders-falling-in-my-face during sleep, too! But the decades prior to taking LDN. Anyway, you don't have to smile so much and pretend you are the giggly girl. You are a woman in pain, you can live up to it. All the best!
Your hair down and your shirt make you look like a mermaid :) Thanks for this video, I am going to start LDN soon, so it was interesting! Those are some really scary hallucinations!
@@iammellbell right, it's flown by, goodness! I'm hanging in here, dealing with my cyclic vomiting and POTS flared up as well as a bunch of other illnesses! I see you just had feeding tube surgery!! I hope you're adjusting to your feeds well and that it helps you.I may need a feeding tube due to my CVS, but it'd be an NJ first, I believe. Lots and lots of love to you!!
@@LoveHardFightHard It has flown by. Oh no. that is really tough :( . yes I would imagine an NJ first as long as you're not throwing it up. All the best with it, I hope it really helps you, feel free to message me if you want to chat about it or have questions etc :)
I just started LDN 2 weeks ago to help with fibromyalgia. Came across your video while learning from others experiences on UA-cam. I’m also vegan and have had the spider issue for decades - in my case it’s when I first fall asleep and am either overtired or over stressed (so often). Not fun! I’m sorry you’re experiencing it as well. It is indeed disturbing.
Love Hard Fight Hard thank you! 😘 So far it hasn’t made much difference but I’ve been told to give it 3 months. I’ve also applied for medical marijuana so will try that as well Lord willing. Thanks for sharing your story and struggles - you ever know who it will reach or how it will help them. Bless you 🙏🏻
Have you ever listened to Sally Norton? Most of your issues scream "high oxalates." Listen to one or 10 of her videos she ended up in a wheelchair too with all the same symptoms you're talking about. She's out of her wheelchair and a powerhouse now... Spreading the word about high oxalate foods.
Hope it is something that can bring you a good degree of relief for the foreseeable future. Long term chronic pain is insidious with how it can grind you down day by day, hour by hour. It's easy said, but keep strong and positive no matter what the setbacks may be, always try to keep fighting. All my best wishes and kind Regards.
Ryan that’s so true, been living with chronic pain for 29 years! Thank you for the great reminder to stay positive and for the kind wishes. Lots of love! 💜💖
Hi! Yes, I've been sick my whole life from genetic diseases, which progressively worsen over the years. I've been vegan 10 years and it's helped me with some symptoms!
@@nathan7265my daughter has been on it for 6 months or maybe a little longer and has had no side effects at all. She did tell me that she’s been having some dreams here lately of spiders lol and now ready all the spider comments… maybe that’s why
@@LoveHardFightHard Hiya, it you go on eBay, or Amazon just get a buffetted ascorbic acid, and bioflavonoid tablets as the Biof powder is foul. I had a cortisone injection in my neck three and a half years ago, that caused an embolic stroke. Screwed me over badly, and it was vitamin c that brought me back. Put it in a squeeze bottle and drink it throughout the day, and that way you don't get bolw intolerance. In a dark bottle as sunlight degrades the potency. Doctor yourself .com Linus Pauling institute Professor Sydney Bush All these great people are attacked over their ground breaking work with vitamin c. Once you start never stop as you get rebound scury. Vitamin c, water fasting, all brought me back from the dead.
@@swaleyblue5590 Glad it's helpful for you! I used to get high dose vitamin C IV's with other vitamins as well and it never helped me and was a ton of money and not covered by insurance anyway!
You are just so darling ❤. I'm sorry you're dealing with so very much! I hope you are able to find something else that will help you even more. Thank you for sharing. Take care!
LDN has boosted my natural killer cells. I'm still immunocompromised too, but it was nice to see the numbers move in a positive direction. It also helps with my day to day pain, but I still have pain flairs. MyGoodRx helps me pay for my LDN and that's a free program. You might want to try to look into that and see if it helps.
Yes, exactly same for me with the NK cells and pain. I used to use goodrx.com is that what you're talking about? I didn't think you could use coupons for compounded meds?
@@LoveHardFightHard yes, goodrx.com is what I mean but I get it at a Walgreens compounding pharmacy. Maybe they take it because Walgreens as a whole accepts goodrx?
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My daughter was born with arthrogryposis or AMC for short. Her pain management Dr introduced her to LDN. She started out with 1mg and over the past 5 months she is now at a 4mg twice a day. She’s 15 and has had 13 surgeries in her short life. We’ve been all over the US to find specialists and someone to help with her pain. LDN has been a miracle drug. Of course we give God the glory for allowing it to work in her but none the less…. IT WORKED! So far no side effects and she’s been on it for approx 6 months now.
You are so uplifting and beautiful.
I am considering trying LDN for chronic pain, still doing research. I'm off the heavy meds I was on for 20 years but the pain is limiting my lifestyle. I was researching the starting dose.
God bless you, protect, guide and watch over you. I pray you feel better each day. Much love from Linda in Texas
Hello, Linda! Thank you!! =) I started at 4.5mg and have been on that dose ever since! I hope it helps you if you choose to give it a go! Thank you so much for your prayers. Lots of love
Hey Sister! I see the spiders-falling-in-my-face during sleep, too! But the decades prior to taking LDN. Anyway, you don't have to smile so much and pretend you are the giggly girl. You are a woman in pain, you can live up to it. All the best!
So smile even with pain. Congratulations. Go bless you
Flavio Ferreira aww thank you so much! 😊
I get the spider hallucinations too. I had no idea it’s very specific and people get the same thing
Your hair down and your shirt make you look like a mermaid :) Thanks for this video, I am going to start LDN soon, so it was interesting!
Those are some really scary hallucinations!
Thank you! Wow, I'm so sorry I didn't see your comment until now...8 months later lol =)
@@LoveHardFightHard haahaha that's completley fine!!! I can't believe it was 8 months ago already! How are you going?
@@iammellbell right, it's flown by, goodness! I'm hanging in here, dealing with my cyclic vomiting and POTS flared up as well as a bunch of other illnesses! I see you just had feeding tube surgery!! I hope you're adjusting to your feeds well and that it helps you.I may need a feeding tube due to my CVS, but it'd be an NJ first, I believe. Lots and lots of love to you!!
@@LoveHardFightHard It has flown by. Oh no. that is really tough :( . yes I would imagine an NJ first as long as you're not throwing it up. All the best with it, I hope it really helps you, feel free to message me if you want to chat about it or have questions etc :)
@@iammellbell ty so much! Same to you, you can find me on instagram @Love Hard Fight Hard
Wishing you the best
I just started LDN 2 weeks ago to help with fibromyalgia. Came across your video while learning from others experiences on UA-cam. I’m also vegan and have had the spider issue for decades - in my case it’s when I first fall asleep and am either overtired or over stressed (so often). Not fun! I’m sorry you’re experiencing it as well. It is indeed disturbing.
C MacDonald how interesting! Hope it’s helpful for you!! 💜💖
Love Hard Fight Hard thank you! 😘 So far it hasn’t made much difference but I’ve been told to give it 3 months. I’ve also applied for medical marijuana so will try that as well Lord willing. Thanks for sharing your story and struggles - you ever know who it will reach or how it will help them. Bless you 🙏🏻
You are terribly gorgeous
LDN gave me heart problem, nothing before taking it, nothing after I stop
You can totally take the LDN in the morning instead… Walla… no more bad dreams✨
Have you ever listened to Sally Norton? Most of your issues scream "high oxalates." Listen to one or 10 of her videos she ended up in a wheelchair too with all the same symptoms you're talking about. She's out of her wheelchair and a powerhouse now... Spreading the word about high oxalate foods.
Hope it is something that can bring you a good degree of relief for the foreseeable future. Long term chronic pain is insidious with how it can grind you down day by day, hour by hour. It's easy said, but keep strong and positive no matter what the setbacks may be, always try to keep fighting. All my best wishes and kind Regards.
Ryan that’s so true, been living with chronic pain for 29 years! Thank you for the great reminder to stay positive and for the kind wishes. Lots of love! 💜💖
Have you not been well most of your life? If not, for how long have you been dealing with this? How long have you been vegan.
Hi! Yes, I've been sick my whole life from genetic diseases, which progressively worsen over the years. I've been vegan 10 years and it's helped me with some symptoms!
It's time to try carnivore@@LoveHardFightHard
You definitely could use a dose of vitamin C.. Yr brunette hair is pretty
Thank you! I take high dose vitamin c and used to get vitamin c IV's.
You are so beautiful
Thank you so much =)
You need a better microphone.
Is it addictive? What’s it like to quit?
Nathan it’s not addictive whatsoever. I’ve been off of it several times than back on, never had any withdrawal symptoms or any problems coming off it.
Love Hard Fight Hard. Thank you. Do all users experience hallucinations?
Nathan I don’t think so. Mine were brief, only lasting a short period of time before they went away. Hope that helps!
@@nathan7265my daughter has been on it for 6 months or maybe a little longer and has had no side effects at all. She did tell me that she’s been having some dreams here lately of spiders lol and now ready all the spider comments… maybe that’s why
Maybe your dose is too high???
Honey, you need 10grams of vitamin c to start to reset your body.
Thank you for the recommendation! I wish I knew where to find such a high dose of Vit C! Any Ideas?
@@LoveHardFightHard Hiya, it you go on eBay, or Amazon just get a buffetted ascorbic acid, and bioflavonoid tablets as the Biof powder is foul.
I had a cortisone injection in my neck three and a half years ago, that caused an embolic stroke. Screwed me over badly, and it was vitamin c that brought me back.
Put it in a squeeze bottle and drink it throughout the day, and that way you don't get bolw intolerance.
In a dark bottle as sunlight degrades the potency.
Doctor yourself .com
Linus Pauling institute
Professor Sydney Bush
All these great people are attacked over their ground breaking work with vitamin c. Once you start never stop as you get rebound scury.
Vitamin c, water fasting, all brought me back from the dead.
@@LoveHardFightHard I’m get high dose vitamin c iv drips. They help a lot. I get them every month.
@@swaleyblue5590 Glad it's helpful for you! I used to get high dose vitamin C IV's with other vitamins as well and it never helped me and was a ton of money and not covered by insurance anyway!
You are just so darling ❤. I'm sorry you're dealing with so very much! I hope you are able to find something else that will help you even more. Thank you for sharing. Take care!
LDN has boosted my natural killer cells. I'm still immunocompromised too, but it was nice to see the numbers move in a positive direction. It also helps with my day to day pain, but I still have pain flairs. MyGoodRx helps me pay for my LDN and that's a free program. You might want to try to look into that and see if it helps.
Yes, exactly same for me with the NK cells and pain. I used to use goodrx.com is that what you're talking about? I didn't think you could use coupons for compounded meds?
@@LoveHardFightHard yes, goodrx.com is what I mean but I get it at a Walgreens compounding pharmacy. Maybe they take it because Walgreens as a whole accepts goodrx?