Love Hard Fight Hard
Love Hard Fight Hard
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NJ Feeding Tube Placement - Hospital Inpatient - Real & Raw Vlog
Sorry for the low volume! I will try my best to fix that but I record on my old phone which has issues. Thank you for your patience!
Vlog of my NJ (nasojejunal) feeding tube placement. I had to have an NJ placed bedside during my 2+ week hospital admission for a severe sustained hypertensive crisis and severe malnutrition due to gastroparesis, exocrine pancreatic insufficiency and cyclic vomiting syndrome caused by hyperadrenergic POTS, Ehlers Danlos (vEDS) and Sjogren's autoimmune disease.
I debated for months on weather to upload this here as it's very raw and real. It was rough, but as always I'm keeping it real and transparent. I think patients and family/caregivers going through or expecting to go through the tough motions of having to get an NJ or NG feeding tube need to know what to really expect from a real patient's perspective. After a few days of tolerating the NJ feeds (I still have nausea, vomiting and pain but not nearly as severe as before!) I got my GJ tube.
I will try to post more videos of my new life with a feeding tube! As my doctros have said it's been LIFE CHANGING!! My feeding tube has given me another chance at life, and for me it's 100% worth challenges it brings! So grateful to God for finally giving me an option to aid in my healing and give me some much needed relief!
..::Related Vlogs::..
🎥Admitted For Hypertensive Crisis & Malnutrition + NJ & GJ Feeding Tube Surgery! Hospital Vlog - ua-cam.com/video/shPtGHwotcs/v-deo.html
🎥Finally Had My Gastric Emptying Scan - Officially Diagnosed With Gastroparesis AND Dumping Syndrome?! - ua-cam.com/video/c54DrT4vbIc/v-deo.html
OFFICIAL MERCH 🥰: www.bonfire.com/store/love-hard-fight-hard/
NEW GOFUNDME: gofund.me/b4cc6bac
..::My Links::..
💜 INSTAGRAM: lovehard_fighthard
💜 VEGAN GLUTEN-FREE FOOD BLOG: aheartfulharvest.wordpress.com/
💜 MY STORY ON LOVE WHAT MATTERS: www.lovewhatmatters.com/tag/mycotoxin-disease/
💜 10% OFF MIGHTY WELL (affiliate code- CLAIREW10): mighty-well.com/?afmc=CLAIREW10&CLAIREW10&
💜 PAYPAL DONATIONS: www.paypal.me/claireizabel
Переглядів: 4 941

Відео

Admitted For Hypertensive Crisis & Malnutrition + GJ Feeding Tube Surgery! Hospital Vlog
Переглядів 24 тис.7 місяців тому
This vlog was from my hospital admission in August 30-September 23' for my worst hypertensive crisis emergency, as well as severe malnutrition from gastroparesis and pancreatic insufficiency. They got to the conclusion that the malnutrtion was putting extra stress on my already damaged heart and organs so they placed an NJ feeding tube as a trial. Since it was so helpful they placed a surgical ...
A Wholesome SELF CARE & NATURE RESET 🌱 💚 Days In My Life Vlog
Переглядів 1,8 тис.Рік тому
An aesthetic, wholesome self care days in my life vlog! With much needed time spent in nature, earthing, gardening and sowing seeds, reading, healthy comfort food (vegan & gluten free what I eat in a day), making natural hypoallergenic skincare, meditation, time spent with Ann Purkins (my cat) and more! 💜 Love y'all!!! 💜 OFFICIAL MERCH 🥰: www.bonfire.com/store/love-hard-fight-hard/ NEW GOFUNDME...
The Loving Hut For My 35th Birthday! 🥳 💞
Переглядів 1,2 тис.Рік тому
Day in the life birthday vlog! Haircut reveal and dinner at my favorite vegan restaurant The Loving Hut for wholesome vegan food and vegan cupcakes to celebrate my 35th birthday with close friends/family!! My heart was so full 💜 Thank you to those of you who made it to my last minute get together and thank you to those who offered to vlog for me! I appreciate you so much! Biiig hugs!! OFFICIAL ...
How To Survive Gastroparesis & Cyclic Vomiting 🤮 My Tips
Переглядів 1,5 тис.Рік тому
Hi loves! This video I share my tips on getting through a cyclic vomiting and/or gastroparesis flare! I'm obviously speaking a lot about vomiting in this video, and what has helped me personally. If you're bothered by talk of vomit then I suggest you skip this one! Hope this is helpful for my fellow warriors out there who're struggling with vomiting on a regular basis. Lots of love! ♡♡♡ *Portab...
Finally Had My Gastric Emptying Study - Diagnosed With Gastroparesis AND Dumping Syndrome?!
Переглядів 8 тис.2 роки тому
Finally ad My GES (Gastric Emptying Study) at the hospital. I was officially diagnosed with Gastroparesis AND Dumping Syndrome after battling the symptoms for over 10 years. #GastricEmptyingStudy #Gastroparesis #DumpingSyndrome #GastricEmptyingTest TIMESTAMPS: 00:00- Teaster/Intro 00:35 - To The Hospital 01:06 - Parking/Break From IV’s 01:48 - At The Hospital 02:52 - Radioactive Oatmeal 03:40 -...
Easter Treat Hunt For Ann Purkins ♡ + I Keep Having Anaphylactic Reactions! 😨 Days In My Life Vlog
Переглядів 1,2 тис.2 роки тому
I keep having severe allergic reactions from my mast cell activation being flared up. I'm having a hard time figuring out all my triggers. I had to stop gabapentin and am having some withdrawal symptoms. Threw an Easter treat hunt for Ann Purkins, made a low histamine, gluten free vegan (mostly) carrot cake and planted some herbs for Earth Day! =) 𝐀𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐱𝐢𝐬 (𝐚𝐧-𝐚-𝐟𝐢-𝐋𝐀𝐊-𝐬𝐢𝐬) 𝐢𝐬 𝐚 𝐬𝐞𝐫𝐢𝐨𝐮𝐬, 𝐥𝐢𝐟...
Rushed By Ambulance To ER For Anaphylaxis! 🚑 Emergency Hospital Trip - Days In My Life Vlog
Переглядів 3,9 тис.2 роки тому
I had an ambulance ride to the emergency room for another anaphylactic episode where I couldn't breathe and had severe hypertension with bad cyclic vomiting that required IV meds and extra IV hydration. I had an outpatient GI appointment scheduled to discuss TPN, but it didn't go to plan. 𝐀𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐱𝐢𝐬 (𝐚𝐧-𝐚-𝐟𝐢-𝐋𝐀𝐊-𝐬𝐢𝐬) 𝐢𝐬 𝐚 𝐬𝐞𝐫𝐢𝐨𝐮𝐬, 𝐥𝐢𝐟𝐞-𝐭𝐡𝐫𝐞𝐚𝐭𝐞𝐧𝐢𝐧𝐠 𝐚𝐥𝐥𝐞𝐫𝐠𝐢𝐜 𝐫𝐞𝐚𝐜𝐭𝐢𝐨𝐧. 𝐓𝐡𝐞 𝐦𝐨𝐬𝐭 𝐜𝐨𝐦𝐦𝐨𝐧 𝐚𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐜𝐭𝐢...
A Magical Weekend!! 🔥 🥰 The Best Gluten Free Vegan Chocolate Chip Cookies ♡ Days In My Life Vlog
Переглядів 5922 роки тому
OFFICIAL MERCH: www.bonfire.com/store/love-hard-fight-hard/ PAYPAL DONATIONS: www.paypal.me/claireizabel ♡Vegan, Gluten Free Chocolate Chip Cookies - aheartfulharvest.wordpress.com/2022/03/28/fool-everyone-chocolate-chip-cookies/ ..::Related Vlogs::.. *Baking Vegan, Gluten Free Pumpkin Oat Muffins - ua-cam.com/video/t-u0vdwoGA0/v-deo.html *Getting My IV Pump Vegan Birthday Cookout!! 🍔🎈 Day In T...
Medical Supplies Unboxing & Organization + POTS & Other Updates | Love Hard Fight Hard ♡
Переглядів 1,4 тис.2 роки тому
An informal IV medical supplies unboxing and organization vlog! Also a little update on my POTS, mast cell activation and more. Lots of love, dears! ♡♡♡ #MedicalSuppliesOrganization #MedicalSuppliesUnboxing #POTS #MastCellActivation ..::Related Vlogs::.. *Severe High Diastolic Blood Pressure Safe Foods - Days In My Life Vlog - ua-cam.com/video/H11_FB2iW2s/v-deo.html *Frustrations Scheduling My ...
Come Thrifting With Me! + Frustrations Scheduling My GES - Days In My Life Vlog ♡
Переглядів 6062 роки тому
Sharing my trouble scheduling my Gastric Emptying Study (GES). Plato's Closet trip again to sell some clothes, but also to also thrift this time! Had my routine cardiology appointment at the dysautonomia / POTS clinic. I'll share an update from my visit in my next vlog! Lots of love, my dears!! ♡♡♡ #POTS #DysautonomiaClinic #PlatosCloset #MedicalFrustrations .::Related Vlog::.. *Making Vegan Su...
How To Be Positive Through The Hardest Times - 5 Tips ♡
Переглядів 1,2 тис.2 роки тому
How To Be Positive Through The Hardest Times - 5 Tips ♡
What I Eat In A Week - Plant Based 🌱 | Love Hard Fight Hard ♡
Переглядів 8162 роки тому
What I Eat In A Week - Plant Based 🌱 | Love Hard Fight Hard ♡
Target Haul + Christmasy Vlog - Days In My Life | Love Hard Fight Hard ♡
Переглядів 8992 роки тому
Target Haul Christmasy Vlog - Days In My Life | Love Hard Fight Hard ♡
I Have To Wear An Eye Patch + Making Vegan Burgers 🍔 | Love Hard Fight Hard ♡
Переглядів 2,6 тис.2 роки тому
I Have To Wear An Eye Patch Making Vegan Burgers 🍔 | Love Hard Fight Hard ♡
Heating Pad For Chronic Pain - Hompres Smart Heating Pad Review | Gifts For Chronic Illness
Переглядів 8092 роки тому
Heating Pad For Chronic Pain - Hompres Smart Heating Pad Review | Gifts For Chronic Illness
Hospital For Chest Xray + Change In My MCAS Severe Asthma Treatment | Love Hard Fight Hard ♡
Переглядів 1,6 тис.2 роки тому
Hospital For Chest Xray Change In My MCAS Severe Asthma Treatment | Love Hard Fight Hard ♡
First Time Making S’mores! + Hardest 1,000 Piece Puzzle Ever 🧩 & Taste Testing Theo Chocolate!
Переглядів 4022 роки тому
First Time Making S’mores! Hardest 1,000 Piece Puzzle Ever 🧩 & Taste Testing Theo Chocolate!
Some Of My Safe Foods For Cyclic Vomiting + Severely High Blood Pressure - Days In My Life Vlog
Переглядів 6862 роки тому
Some Of My Safe Foods For Cyclic Vomiting Severely High Blood Pressure - Days In My Life Vlog
Baking Vegan Gluten Free Pumpkin Oat Muffins | Love Hard Fight Hard ♡
Переглядів 4932 роки тому
Baking Vegan Gluten Free Pumpkin Oat Muffins | Love Hard Fight Hard ♡
Cyclic Vomiting Syndrome Week In The Life Vlog - TW: VOMIT | Love Hard Fight Hard ♡
Переглядів 38 тис.2 роки тому
Cyclic Vomiting Syndrome Week In The Life Vlog - TW: VOMIT | Love Hard Fight Hard ♡
34th Birthday Vlog! 🎂🎈🥳 | Love Hard Fight Hard ♡
Переглядів 6682 роки тому
34th Birthday Vlog! 🎂🎈🥳 | Love Hard Fight Hard ♡
Medical Clearance For Surgery Take 2 - Am I Stable Enough Yet? | Love Hard Fight Hard ♡
Переглядів 5382 роки тому
Medical Clearance For Surgery Take 2 - Am I Stable Enough Yet? | Love Hard Fight Hard ♡
I didn’t See This Coming! 😥 + Cyst Ultrasound Results | Love Hard Fight Hard ♡
Переглядів 6992 роки тому
I didn’t See This Coming! 😥 Cyst Ultrasound Results | Love Hard Fight Hard ♡
Hospital For Another Ultrasound On My Complex Ovarian Cyst | Love Hard Fight Hard ♡
Переглядів 1,2 тис.2 роки тому
Hospital For Another Ultrasound On My Complex Ovarian Cyst | Love Hard Fight Hard ♡
Xolair For MCAS & Severe Asthma - My Experience | Love Hard Fight Hard ♡
Переглядів 1,2 тис.2 роки тому
Xolair For MCAS & Severe Asthma - My Experience | Love Hard Fight Hard ♡
Trip to the ER - They Found A Mass! | Love Hard Fight Hard ♡
Переглядів 7543 роки тому
Trip to the ER - They Found A Mass! | Love Hard Fight Hard ♡
SIBO Test & Dysautonomia Clinic Vlog | Love Hard Fight Hard ♡
Переглядів 4353 роки тому
SIBO Test & Dysautonomia Clinic Vlog | Love Hard Fight Hard ♡

КОМЕНТАРІ

  • @ven0006
    @ven0006 5 днів тому

    You are so extremely brave, must have been so uncomfortable. Hope you are going ok? Take care xo

  • @bubbamanandkids2974
    @bubbamanandkids2974 7 днів тому

    Go carnivore

  • @beautyfromashes14
    @beautyfromashes14 12 днів тому

    Did xolair help you?

  • @user-hv7dc2pr2r
    @user-hv7dc2pr2r 17 днів тому

    I suffered like you for a year. I had lymphatic clots in my chest and neck. Every night I went to the hospital, but the way I overcame them was lemon juice, ginger, garlic, and green tea with thyme.

  • @RayhankhnaDbh
    @RayhankhnaDbh 23 дні тому

    😍 @ *LVGUCI* 😍 I love you so much and watching your videos makes my day brighter

  • @la0424
    @la0424 23 дні тому

    I have an irrational fear of vomit. It sends me into a full blown panic attack

  • @Koda_Grey
    @Koda_Grey 26 днів тому

    Oh I remember this awful feeling! I had 4 NJ tubes placed between January and April. It was miserable. So glad to have a GJ tube now. You did well! It’s such a miserable experience. Hope you are doing well!

  • @savannahmathis5438
    @savannahmathis5438 Місяць тому

    Ive been bawling for hours because im on my 6th day of a horrible episode. Seeing this did help some bc alot of times i feel so alone.

  • @birdy-numnum6321
    @birdy-numnum6321 Місяць тому

    ❤ Your Amazin! 🐣

  • @birdy-numnum6321
    @birdy-numnum6321 Місяць тому

    😂 Mad Respect! ❤

  • @birdy-numnum6321
    @birdy-numnum6321 Місяць тому

    😊Amazin x

  • @birdy-numnum6321
    @birdy-numnum6321 Місяць тому

    You are a Pioneer 💖🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @birdy-numnum6321
    @birdy-numnum6321 Місяць тому

    ❤ Thankyou SO much for this Babe 🎉

  • @alfonsinho74
    @alfonsinho74 Місяць тому

    Thank you for sharing not only your best side (Schokoladenseite in German, or chocolate side in english). It's not glamorous but it's you and you are AWESOME.

  • @tammydavis770
    @tammydavis770 Місяць тому

    I can relate to what you said with your Pancreas. I had Pancreatitis back in 2016, and they had me on Morphine for 8 days. I could not eat or drink. I could only suck on ice chips.

  • @Lynnrokx
    @Lynnrokx Місяць тому

    I wish I could learn self catheterization seeing I'm suffering from UTIs frequently and my skin is wearing out from irritations. I can't afford a urologist 😢

  • @alfonsinho74
    @alfonsinho74 Місяць тому

    I wish that you'll be soon able to make videos again! I hope you are doing better and better by the day and that God may shower you with abundant blessings.

  • @Dreadsinnababylon
    @Dreadsinnababylon Місяць тому

    Swallowing a piece of ginger helps me a lot with my nausea ❤ hot showers, soft warm not hot mint teas, breath work as you said

  • @Dreadsinnababylon
    @Dreadsinnababylon Місяць тому

    Yes for me is also more the nights. As soon as the sun comes out I feel a bit calmer and can allow myself to get some rest with constant guided meditations

  • @gnarlynicholasreviews
    @gnarlynicholasreviews 2 місяці тому

    How’re you not in the ER all the time? I just got diagnosed with this after YEARS of no idea what was wrong w/ me. The pain, nausea, vomiting, sweating, panic… Christ almighty I am so sorry you deal w/ this. It’s ruining my life.

  • @christinalapoint4135
    @christinalapoint4135 2 місяці тому

    Girl you aren’t fooling me. You don’t have endocarditis.

  • @christinalapoint4135
    @christinalapoint4135 2 місяці тому

    Is there anything not wrong with you. I’m in medical feild You are a hypochondriac

  • @christinalapoint4135
    @christinalapoint4135 2 місяці тому

    Ummm there’s no way u have all these things wrong with you. And what are pods

  • @annaWdbn
    @annaWdbn 2 місяці тому

    Have you ever tested for Lyme?

  • @user-tp8wc3yw7v
    @user-tp8wc3yw7v 2 місяці тому

    Милая красавица,моря душа болит за тебя ❤❤❤ Родная, прекрасная!!! Пусть будет все хорошо у тебя ❤😂❤

  • @user-tp8wc3yw7v
    @user-tp8wc3yw7v 2 місяці тому

    Девчонка, милая красавица ❤❤❤ Пусть будет хорошо у тебя всё будет ❤❤❤

  • @richardtony1999
    @richardtony1999 2 місяці тому

    She should get one to see how bad it is

  • @richardtony1999
    @richardtony1999 2 місяці тому

    Hot nurse

  • @carmenfernandez-cs9wk
    @carmenfernandez-cs9wk 3 місяці тому

    Traducir español

  • @MoparGuy1625
    @MoparGuy1625 3 місяці тому

    I have yet to be officially diagnosed but the symptoms are quite goddamn close. I see the dr who deals with pots in July. All I can say this absolutely sucks because I work in public safety and these symptoms suuuuuck. Came out of no where!

  • @EddyB-nq3mq
    @EddyB-nq3mq 3 місяці тому

    Well, watching my hives and inflammation dissolve every day until it all disappeared was definitely appeasing, I went with what I mentioned and after 20 days my urticaria disappeared. I just go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!

  • @AllThings357
    @AllThings357 3 місяці тому

    I have health problems that they are still trying to figure out. I see a bunch of doctors and tests seem endless…… I found your channel by looking up xolair injections, which I am about to start. I just wanted to share how moved and heartwarming you and your videos are. I do not have the words to express myself, but you are an inspiration to me.

  • @alfonsinho74
    @alfonsinho74 3 місяці тому

    God bless you dear Claire. I hope you are doing well and that soon you will start making videos again. You look so beautiful! As always.

  • @Ingrafre
    @Ingrafre 3 місяці тому

    Hey Sister! I see the spiders-falling-in-my-face during sleep, too! But the decades prior to taking LDN. Anyway, you don't have to smile so much and pretend you are the giggly girl. You are a woman in pain, you can live up to it. All the best!

  • @alfonsinho74
    @alfonsinho74 3 місяці тому

    I invite you to come to Mexico. I will get mango 🥭 for you every day!

  • @stephisturn
    @stephisturn 3 місяці тому

    Claire, I am really amazed by your strength. I am chronically ill and I have to endure some bad stuff, but you have so much more to bear and you are doing it with so much patience and grace🎉❤

  • @dinero1169
    @dinero1169 3 місяці тому

    You sound like me...yes... I eat one meal a day because of the nausea. I can eat that meal because of my gummy. Oh my gosh the constipation.

  • @dinero1169
    @dinero1169 3 місяці тому

    I go for my test today. I've been sick over a year testing for h pylori... negative... now gastroparisis ....no anti nausea meds that taste horrible today...my thoughts are so scattered today. They are already playing with fire by saying no coffee. Wish me luck on getting some sort of answer for why I'm nauseous daily for a year and a half.

  • @richardjackson2182
    @richardjackson2182 3 місяці тому

    A haunted room? Have you had a haunted room before?!?!?😮

  • @alfonsinho74
    @alfonsinho74 3 місяці тому

    How you manage to stay so positive, and to look always so beautiful is a miracle. You are a warrior for The Lord. I bless you in Jesus' Name.

  • @TwistedWhispers2
    @TwistedWhispers2 3 місяці тому

    I have CVS too. It's a miserable thing to go through, repeatedly. 😞

  • @bubugdaclown1673
    @bubugdaclown1673 4 місяці тому

  • @mattbyrne7621
    @mattbyrne7621 4 місяці тому

    My doctors are suggesting this as an option. I don’t really have to use my tube very often, but they are reluctant to remove it for fear of complications with a reinstall. Any pros or cons to the Mickey that you can share?

  • @bubugdaclown1673
    @bubugdaclown1673 4 місяці тому

    Isaiah 53:5 🙏🏾

  • @bubugdaclown1673
    @bubugdaclown1673 4 місяці тому

    You cant conquer what you dont confront, you cant confront you dont identify..glad you were able to identify your problem. Thank you for sharing your story 🙏🏾

  • @Bob-Horse
    @Bob-Horse 4 місяці тому

    You are so incredibly brave. If you were my daughter I would be so so proud of you. I will say a prayer for you tonight that in the name of Jesus Christ you will be healed and live a long, happy and fruitful life. You set us all an amazing example to live up to. May God bless you 🙏🏻

  • @Bob-Horse
    @Bob-Horse 4 місяці тому

    You are very beautiful, in every sense of the word 🙏🏻

  • @marlenafina3481
    @marlenafina3481 4 місяці тому

    🎉Going for my gastro emptying test in 2 weeks. Recently found out i I have h pylori and saw two different gastro doctors with 2 very different approaches and quite honestly I don't trust either one very much. One did a stool test right away and gave me pain meds and nausea meds The nausea meds made me constipated and feeling sicker so i discontinued them. The second doctor never gave me any pain meds and thinks it's gastroparesis. Except i got the results a few days afterwards and it is h pylori. I have an upcoming abdominal scan and the upcoming gastric emptying test.😢

    • @LoveHardFightHard
      @LoveHardFightHard 4 місяці тому

      Hopefully it’s h pylori which is treatable! I had it at one point. Good luck with everything! 💜

  • @chelseyhurd
    @chelseyhurd 4 місяці тому

    I get mine on Thursday! I’ve had a dangler PEG tube since July & it’s caused such body issues, I pretty much stopped wearing crop tops, especially if my formula is hooked up. I’ve wanted a MIC KEY button & they got mine in today to change out Thursday morning. ❤ So excited! Hope you’re liking yours!

    • @LoveHardFightHard
      @LoveHardFightHard 4 місяці тому

      Hi! Thanks for sharing!! That’s so exciting, I hope you like your Mickey button! Mine hurt like crazy for the first couple weeks but now I love it so much! PS: you are beautiful with or without a dangler tube! 💜💖

  • @alfonsinho74
    @alfonsinho74 4 місяці тому

    I am grateful to God for you having Lawson and others to help you. God bless you dear sister.