Diagnosed with stage 4 cancer - non-hodgkin's lymphoma
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- Опубліковано 2 січ 2019
- If you suspect you might have cancer it is always best to just get it checked out! The sooner you find it the better. You don’t want to get to stage four like me. In this video I explain my symptoms and how I was diagnosed with stage 4 lymphoma. If you have been diagnosed with lymphoma or any other type of cancer you might be feeling how I felt during this time.
Want to know more about my experience with lymphoma and life after chemo?
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Did this video help you out? What did you find to be the most useful information?
This is me right now. Have 3 bumps below my jaw and 4 in various regions of my neck. Honestly tired of waiting just to get diagnose and going to see an ENT specialist tomorrow. Hopefully all is well. 😌
Getting the diagnosis (while not great) can be such a relief! At least you’ll know 1) if you’re fine, or 2) what you need to do to get back to being healthy!
Thank you for sharing your story. Please share more of the story. Have you heard of medications causing certain types of cancers? Is this type of cancer curable? Can it be found out through blood tests? (or what other way OR is thru MRI's scans only?) Why didn't they put you asleep for the bone marrow biopsy? (is there a reason why they can't?)
I will definitely be sharing more! I am not sure about medications causing cancer. I have heard about some chemos causing other types of cancer. I had two forms of lymphoma. One curable and the other will probably come back
Also I don’t think they can tell from a blood test. I had to do a CT (or PET scan, I can’t remember which but it wasn’t an MRI. I misspoke in the video) and a biopsy
I had non Hodgkin when I was 42 years old. I had 12 chemos, one session each week. They gave me 6 different chemo drugs, alternating two each week. The good news for you is I am now 76! I pictured Jesus killing the cancer with a pick. I kept my humor thru the 12 weeks. Cancer free for 34 years!!!
God Is Good never fails !
Wow. 22 years ago 3 weeks before my wedding I was diagnosed with non-hodgkin's. I thought the same thing no kids. We cancelled 300 people coming to wedding cause i needed chemo asap. after getting misdiagnosed for 3 months. We got married in church just our families. long story short. 11 months later my huband was diagnosed with hodgkin's lymohoma. I know insane. We saved his sperm in case. waited 5 years to be in remission. genection councelor said not genetic. so was gonna go for invitro. GOT PREGNANT ON OUR OWN 1 Try. then again, and again and 4th was when i was 40. i am 53 now. never lose hope!!!!!!!!
Wow! That's an incredible story!!!!! You should make a video about that. Thank you. I will keep you and your family in mind when I start to lose hope
How is he now
God bless you
Thank you 🙏🏼
@@MelanieCamille God bless you too. Strong and beautiful women. I admire you both. How are you doing right now?
You shouldn’t ever have to consider your workplace as being “incredibly understanding” because they let you go home immediately after a cancer diagnosis. America baffles me.
Wishing you all the best in your recovery x
Thank you
I agree. Id say idc im not going to work because I have cancer. You want yo fire me ill take you on legally. Ff that disrespect workplaces try to throw on vulnerable employees
I know right.
Thank you for sharing your experience - it has really opened my eyes ❤️
You've went through a whole lot. I hope and pray you are well now. Stay strong. Thank you for sharing your story. God bless 💛
This video was so helpful! I am currently in the process of trying to get a referral from my primary. I thought I had a tooth abscess but it's a swollen lymph node. It could be anything but hearing your story gives me peace of mind. I saw your other videos and I couldn't be more thrilled that you are now a mama! Your light-hearted attitude is so wonderful and calming! Thanks again.
Thank you for sharing your story. My mother was diagnosed with stage 4 DLBCL Lymphoma. She was treated with R-Chop. And she had been in remission until this September , but it seems like it relapsed. You are an inspiration, plz keep making these videos.
I guess I watch these videos to prepare myself in case this ever happens to me. I applaud you for make this video to help others. Toady is 4/20/23. Praying u are in remission.
Thank you for sharing your story - I need to watch this! It is very comforting
I am so glad ☺️
Thank you for your story. Please keep me in your prayers.
You are welcome. Will do!
So nice to have run across your video. I was diagnosed with stage 3 small cell follicular lymphoma Feb, 2017. I appreciate your openness and hearing your experience. I was devastated at first. I decided to go with a clinical trial of rituximab. I am here to tell about it almost four years later. Initially I was wrongly diagnosed with large B cell diffused lymphoma, it was a much more threatening form. I hate to say I was thankful for the misdiagnosis, but the truth is I was. I can not imagine battling both at the same time. God bless you :) I hope you are strong and healthy now.
I am so proud of you for speaking up to the Dr. great job Drs don’t like it when you question there judgements 😊
Thank you. At the end of the day it’s our bodies and we should speak up for them ☺️
God bless you ! I will pray for you xo❤️🙏🏼💕
You are so poised and articulate and an amazingly strong young woman!! I am so impressed at how generous you are about sharing something so painful and difficult and personal. No doubt you will help and inspire many people! Wishing you many blessings for good health and beautiful, healthy children when the time is right for you. 🙏🙌💕
Thank you so much! I love to share my personal experiences because I feel like we can all learn from each other. I am a teacher by profession and at heart ☺️
@@MelanieCamille The world needs more people like you with heart and courage. Congratulations on your pregnancy. How exciting and wonderful you are now fulfilling your dream!! 💕
Praying for a full recovery ❤️
I’m actually doing great now! I’ve been in remission for 3 years and I’m now documenting my pregnancy!
You’re so strong ! Lots of courage to do such video ❤️
Great video. Thankyou for posting this 💜
You’re very welcome 💕
Wow you are very interesting!!! Love your personality!!! I am a cancer survivor for 19 years. I had hodgkin's lymphoma and went through chemotherapy and radiation therapy! I wouldn't wish that on my worst enemy!!! I am still feeling the effects today!! Well God bless you and hope you live a healthy life !!!!
Aww thank you :)
So glad you are here to tell the story! I can only imagine chemo and radiation where a lot worse 19 years ago
You are a bright and shining star thank you for sharing your amazing and touching story.... WOW what an awesome inspiration you are. You remind me how important it is to remember that your voice matters - you never know who may hear you and need you and may choose life one more day because of your compelling experience, survival and then here now today this inspiration! 💜 LOVE thank you
Just found out my nephew who is at has non-Hodgkins lymphoma. Thanks for your video. Appreciate it
You’re very welcome. I hope it helps 💕 Just remember medicine is really effective now a days. He will be just fine ☺️
Wow I can’t imagine hearing about being diagnosed with stage 4 lymphoma over the phone at work. That’s good that they told u asap cuz I imagine the drive to the doctors office would’ve been a lot of anxiety! I’d love to hear more about your story!
Thank you
I’ve just been referred to an oncologist because it’s likely that I have lymphoma. I have swollen cysts behind both ears, down my neck and under my armpit. I’ve been watching videos like yours to some kind of inspiration. Hope your still doing well today! To whoever reads this please pray for me ❤️
I hope these types of videos are brining you hope! Have you heard back from your oncologist?
How are you doing? Any update? Hope you're doing okay.
Yes I was diagnosed with Lupus just a few days ago. Thanks for asking me for a follow up!
@@tenille3633 I hope you're okay 🌹🌹
@@tenille3633 is Lupus manageable?
Love your positivity ❤ God bless you! New sub!
Thank you ☺️
Good Luck, May God Bless You.
I love that you say that about antibiotics!! I couldn’t agree more!!
I just hate them being shoved down my throat! Especially when I can tell I don’t actually need them. I’m all for them if I actually need them!
I also have a bump on my neck and i went to the doctor because a person i know has lymphoma so i thought ill check it out and he gave me antibiotics so now im looking for a new doctor it kind of sucks when doctors dont take you seriously
Ya it really does!
You are brave and strong!!!
Thank you! I don’t feel brave and strong, just determined to keep living
I want to hear more!!! Still sad I couldn't be there for you since I had a germy kid...haha!! Excited to watch your videos again. It's always exciting when you post one. Love you!
It's all good. I am glad you had a germy kid! lol
oh i just recently had the joy of a bone marrow biopsy and under local only . was so wonderful . its came back negative so that's good now i just want to get a game plan set up so i know how to scheduled my life for this run . like you i wasn't sick or tired or anything just notice a swollen lymphnode under my arm . its way bigger now but still no pain and no ill feelings .
Prayers for You
I am 13 and have had a swollen lymph node for about a month. It is super tiny and right at the line under my jaw. We are going back to the doctor for another appt. I’m really scared because I’m so young but I think it will get better. Btw you are super strong and I am so happy everything worked out for you!
How are ya?
Super glad you powers through it love you soooo much ♥️♥️
Aww
For emergency purposes so you know and get despite enough with pain that your willing to throw up... nausea and vomiting is not an allergy.... it’s definitely an aversion though for most. Hives and throat swelling and or trouble breathing etc are allergies. Although uncomfortable... the nausea won’t kill you. True allergies are the symptoms that have the potential to kill you. I get many patients that lost diarrhea even as an allergy.... it’s not... sometimes the drug is more important than unpleasant side affects. Glad everything Has worked out for you. Your strength is amazing and inspiring!! Stay strong gurl!
That’s what I thought. But they told me it was an allergy 🤷🏻♀️ Either way I’m ok with not taking it again lol
You're a brave girl
Hope you get better ❤️
Thank you. I feel so much better! Now I am just trying to figure out my gut health... Life can be so fun lol
God bless you Melanie , you're inspiring so many people
Thank you ❤️
Thank you for sharing your story
Thank you for following it! I will definitely be posting more on this topic
So happy you are doing well and if it was an MRI- they use no radiation❤️ CT Scans do.
I used to work for a head and neck surgeon who operated three days a week and had two days in the office each week. He always gave cancer diagnoses over the phone so you could process all your feelings and get your questions in order before having an appointment with him. He was incredibly busy and a literal miracle worker, he would operate on people who had been told by other doctors there was nothing to do and would end up curing them. He didn’t have time to let people have their reactions in his office...perhaps not the best bedside manner for everyone but if I needed surgery he’s the man I’d go to. Just one persons insight into why some docs give over the phone diagnosis’s.
Thanks for that insight! Unfortunately I’m pretty sure that wasn’t the case with my oncologist, but I totally see your surgeons point
I think most appointments where a serious diagnosis is announced is just that-an announcement.
You are too shocked and scared to think anything beyond "How bad is it? Am I going to die? What will happen to my loved ones?" to either ask or to take in any information the doctor might tell you. All those things happen in the follow up appointment, when you got to calm down a bit and think about the logistics of how to approach it.
That’s a good point
Never look back..never give up..never stop living..pray for you
Thank you 🥰
I thank Jesus for your faith. Crying out for you sweetie, the Lord is fighting for you!
Thank you 💕
All MD’s are different. There is no standard for notifications on certain diseases. Some docs will have you come in right away,however due to time sensitivity in starting treatment some docs want you to know as soon as possible and unfortunately that means getting the dreaded phone call at the most inopportune time. My friend got the call about his stage IV cancer while he was at a Red Sox game with his family.
I guess it’s better to get it sooner rather than later, but it does really disrupt your day. And then you life... lol
Thank you so much for this video. I am 31 and I am working on my Bachelor's degree. I was diagnosed with Diffuse Large B-cell Lymphoma on Monday. Like you, I haven't had any of the "classic" symptoms other than a lump (mine is in my tonsil and I have one hard lymph node in my neck), so other than having this big bump, I feel completely fine, so weird. I am desperate to at least finish my semester, but I am starting to worry a lot about being forced to drop out. I haven't been staged yet, but 4 weeks ago, my lymph nodes in my neck were clear on a CT, so hopefully the one that is acting up now is just a response to a pretty invasive tonsil biopsy. I really appreciate your videos, since NHL tends to mostly effect older people, it is good for me to see someone who is about the same age as me who has faced what I am about to face. Peace and Love
Also! So weird you were told over the phone!!! My doctor's office had a temp who kind of messed up and let slip that my doctor got my second CT bumped up a month after seeing my biopsy... so I knew... but he did make a point of clearing an hour of his schedule to break the news face to face and answer my questions.
This makes me so happy! This is exactly what I want my viewers to feel like after watching my videos. I want them to feel like they are not alone and hopefully a little less scared
That sounds like I much better approach!
How are you now ?
Lol I can never tell of people are asking me how I’m doing or others. But if you’re asking me, I’m doing very well. We just started trying for a kid!
My sister in law is currently going through stage 4 diffuse large B cell, as well as having the non aggressive form of lymphoma. This video really helped me understand, and also made me feel good about her recovery. She’s on her 4th chemo, only two more to go!
I am so glad I could help. Heck yes to only two more!!!
My Sister also have same stage 4 non hodgkin is your sister better now??
Im also primary mediastinal large b cell lymphoma ..my doctor told me its a rare condition..im scared im waiting at hospital for my 2nd chemo..it will be 6 days..through my neck..im 26 years old...chemo im scared of chemo
You can do it! This too shall pass
Hii
Amen! I love ranting about the over prescribing of antibiotics... if I get them when I don’t need them I just save them for the zombie apocalypse....good luck with your journey, hope you are doing well 🙏
I am doing great right now :)
I have just found you and your inner Brightness just shines through I am old now and I get very Depressed over the Things that have happened to me in Life and here's you talking about this with out falling in to the Depth of Depression I would And your young and full of Life and optimism I think your Amazing and Strong and with that Attitude will make your life what you want it to be PS and your very Pretty
OMG thank you! That you are so so sweet! I am definitely not always positive, but I definitely try to be. Especially when it comes to situations that are very easy to get depressed about. It helps that I’m in a very good place in my life right now ☺️
Thank you so much for sharing.
Thank you so much for watching!
I had falicular lymphoma stage 3 grade 3; I have been in remission since May 2017. Between
January 2017 and May 2017, I had 6 rounds of R-Chop. It was hard
because I have three children. I will be praying.
Luckily I am currently pregnant with my first! Despite what the doctor said!
Thank u for being soo open and sharing so others can learn from ur experience..god bless u
you rock Melanie!
Aww thank you ☺️
I like your name. I live in Michigan, and I make Rick Simpson oil. If you ever know anyone who needs the help, let me know.
Bless you 💕💕💕
Thank you 🥰
May God bless you exceedingly abundantly beyond all you see or imagine.
She’s happily and most blessedly pregnant now. So your blessing exceedingly abundantly beyond all you see and imagine prayer is being answered! What a blessed sweet prayer you gave her! And how awesome is our God!! 😄🙌🤗🌈🌸
So amazing! I am so happy to share this new adventure of life now ☺️
I sort of stumbled onto your video because my wonderful uncle died of Hogkin’s disease at the age of 49. What a straight forward way you have in describing what might drive a person into fear and isolation! I just want to say Melanie, that you are an amazing person!
I am so glad I can be a small light in the darkness ❤️
New to your channel.praying for the greatest for you.
I’m actually doing much better! I’ve been in remission for 3 years and I’m now documenting my first pregnancy!
I'm an epidemologist and that is so upsetting to me. Family MDs say to me, well you don't know what it's like to deal with a patient insisting on antibiotics. I respond... THEN EDUCATE YOUR PATIENT!! There is a UA-cam doc, which is bizarre, but this is one of those cyst docs, he gives antibiotics, all the time, for just in case... Triggers me too! Blood work for infection and is it even bacterial? Don't take antibiotics guys, insist on facts
Yes!!! I mean If I really need it I will take it, but most of the time that's not the case
You singing my tune! I have refused antibiotics SO many times. Why do docs push the script? NEVER take antibiotics unless you have proof or labs you need them. Turns out I was right every time, never died. 19 years no antibiotics 😊
My Family doctor gives me antibiotics all the time. Without any blood work done. When I asked him, when he gave me antibiotics for a runny nose, he said "...it could get infected soon. So take them." 😅
OMG... I legit do not understand how doctors can think that’s ok...
Doctors push antibiotics and opioids plus many other drugs like lollipops because the drug companies make it worth their while. Not all doctors, but wayyyy too many. If this is not the case then we have hundreds of thousand of lazy, incompetent, ignorant doctors out there so I still go with my first comment.
I also got the call while I was at work. Thought that was odd and unnerving, but I was glad I knew right away it was like just ripping off a bandaid , if they called me into the office to tell me my results I would have been more anxious.
That's a good point
I give you so much credit for having the courage to go through such invasive testing and treatment. 3 months ago I had a lymph node - cyst swell up on my left neck. I have no other symptoms and actually got over shingles a couple of weeks before that. I just got another needle biopsy 2 days ago and am waiting for the pathology report. The first biopsy a month ago came back negative for mastic cells but a second one was ordered to be confident of the results
You’re a special lady.
Aww, thank you :)
I have Non-Hodgkins Lymphoma I went through the bone marrow thing I went through almost everything you did my platelets are really low next week I'm going or actually Thursday I'm going to the doctors for my platelets to see what he's going to do about them so I know how you feel I'm hoping not to lose my hair but if it happens it happens as long as I don't lose my life I am sorry to hear that you were sick and hope you get better soon and hope your fiance stays by your side have a nice day
That’s absolutely right! Hair will grow back, but you only get one life.
My fiancé is now my husband! 🥰
How r u now
Hi Melanie, I’m glad I found your video. I’ve had a lump under my chin for at least two years. It would get smaller and bigger. I mentioned it to my endocrinologist several times and he said the same thing - might be a virus I’m fighting. I went to him because I have hypothyroidism and I have a growing nodule (non cancerous) near my thyroid. I noticed the lump under my chin getting bigger these past few months and my general physician wanted me to get an ultrasound. There is indeed a swollen lymph node about 2-3 cm large. It’s hard to make out the symptoms, whether it’s due to my thyroid or something else. The GP did run my labs and he said my white blood cells look good so he wants to recheck in June and send me to a neck specialist if the lump is still there. Thing is, I know it will still be there. It’s been there for 2 years now. I noticed I’ve had a few rashes spring up near my armpits all the way under my upper arms. I have eczema patches but this is abnormal for me. My usual eczema routine hasn’t helped it for weeks now. I’m at a loss about what to do at this post. If I should just wait or push for an appt with the neck specialist ASAP. It’s scary and people, including family, around me don’t take my concerns seriously.
I would push for a biopsy of the lymph node. The only way to be sure
I don't even know you but really like you approach to the cancer. I have been dealing with prostate cancer 3/4 because the doctor say one thing and the pathologist says another. Anyway God bless and I hope you beat this thing get to become a mom.
Praying for you 🙏🏼
I am actually happy to say I’m pregnant with my first child! I am documenting it on this channel ☺️
@@MelanieCamille wahoo! So happy for you, Melanie. Wishing you a healthy pregnancy and delivery. Looking forward to watching some of that journey. Take good care. - Paige
Thank you ☺️
Two years later and hoping you are okay😍
Would love to hear more about your journey!
I have a “stage 4 lymphoma” playlist and a “pregnancy” playlist if you want to follow whats currently going on in my life ☺️
My grandmother had non-hodgkins lymphoma years ago before I was born (1980) and thankfully she was cured. Lived to be in her 70s. Passed from Alzheimer's.
Sounds like an incredibly tough woman 💜
You are a hero!
Aww thank you. But I’m not a hero. My oncologist and nurses were hero’s! I’m just a person trying to stay alive lol
Many thanks for replying. May I ask what doses did you take and for how long?
I was just diagnosed with Esophageal Cancer.
I have Fanconi Anemia, liver issues and type 2 diabetes....
I don't know how long I have.
Please keep me in prayer.
What a shocking revelation to receive. Praying for you and holding you in the powerful ho'oponopono prayer 💖
Thank you so much for all this information. I’m sorry this happened to you... but it’s so cool that you’re spreading awareness and educating others.
I started my search online because I’ve been feeling sick, on and off for years. Fatigue, shortness of breath and chest pains, upper back/shoulder pain, bruising, prone to infections...
And now I’ve lost 13 kg (28 lbs) in 3 months, and I’m fairly petite already.
I have the same bump on my cheek that doesn’t hurt, but I suspect it’s making my jaw hurt. I also have a bump behind my ear, under my jaw and above my collarbone. I’ve had swollen lymph nodes so bad that my husband woke up and found me on the couch with an ice pack on my face. I’ve had a cold for 3 months now and I’m starting to lose my mind, so I abuse my sleep meds I have for my anxiety. I also take way too much melatonin, but I CANT SLEEP if I don’t.
My doctor says that my blood is perfect and I’m “too young to be sick”. I’m 25...
He actually refused to send me to an ENT specialist for the bump on my cheek. He refuses to do a scan. He doesn’t even want me to call anymore because I’ve “bothered his assistants too much”.
I am completely broken. I really don’t know what to do, if I need to get a second opinion, which tests I should have done.
If anyone has some advice I would be so grateful...
Again, THANK you for these videos and I wish you lots of luck and strength. ❤️❤️❤️❤️
The whole "young=healthy" stereotype is what led me to go untreated for so long. Such bullshit!! I'm 26 and have every single concerning symptom now because I was ignored for more than a whole year. Switch to a different doctor asap!! Best of luck to you on this journey and take comfort knowing you are not alone! Here if anything blessings
@@maitreyadecoded3040 Oh my... I am so sorry. You did not deserve that. I know how frustrating it is to be ignored by the people who are supposed to HELP when you’re in pain/discomfort.
Thank you for your lovely, kind words. Let’s feel better soon ok?! ❤️
Time for a new doctor!
@@mrsmickayla how are you now ? Did they finally diagnose you ?
Thank you for your video, I’m currently going through tests and scans to find out if I have it, I don’t suppose I could send you photos of my scan for you to look at? if not I understand, thank you for your helpful video, I wish you the best of luck!
Good for you for not gulping down the antibiotics without a definitive reason.
Sending prayers your way
Thank you 🙏🏼💕
I blame the poisoned food supply for why younger people keep being diagnosed with cancer. This is scary stuff.
I agree!!!
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A government that does that and now we're supposed to believe they care about our health concerning covid.
more like vaccine poisoning
How about poisoned air full of petrol and diesel particles as well as so many other things, the poisons that go into water supply because of the need to combat germs with chlorine etc. and fluoride for dental health, the drinking of alcohol which is now known to be a cause of at least 25% of common cancers. Let’s face it, our lifestyles are killing us, and it will only get worse, not better.
God bless you my friend. Amen ❤😢
I went trhough the test, im waiting for my chemotherapy, Im Stage 4 too, hope all will go well, im 36. God Bless
How r u now
I had non Hodgkin's lymphoma ( mantle cell )stage 4. Dr. Told me it was incurable. I refused chemo, radiation and surgery. It's not until i surrendered to the my Lord JESUS CHRIST that. I saw healing to happen. GOD put key essential people in my life that contributed to my healing. All the praise and glory belongs to the Lord! Heal the spirit!!!
Amen!
@@MelanieCamille many miracles happened in this cancer journey.🙏
I use cbd waterbase thc free oil from zilis since april of 2018. It's a great product.
Amen
quique chavez what were your symptoms ?
Hi I hope you’re doing well today💛I can’t imagine what you’ve gone through. I really appreciate the fact that you did this video to help others. I would love to hear your opinion on my unresolving symptoms thats been ongoing for 18 months. I did every test possible(colonoscopy,endo,zinc,vitamin D,B12,ANA,celiac, thyroid panel,h pylori,every possible STD) and the only thing that was wrong was unexplained iron deficiency. I got iron infusion because pills didn’t work. Do you remember if you had unexplained iron deficiency? as for the symptoms did you had more symptoms others you’ve mentioned in the video? my first symptom was hair loss from scalp,body,eyelashes,eyebrows,armpit, legs(hundreds every day) ,I was disgnosed with chronic telogen Effluvium, drenching night sweats but not consistently like 7 times a month, extreme fatigue,IBS( do you remember if you had digestive issues? my stomach rumbling no matter what I eat), unexplained weight loss,memory loss, yellow ridged nails(did you notice changes to your nails?), geographic tongue, tingling in feet,back pain and muscles pains and insomnia(like getting up 3 times a night)?? I don’t have any itchying or swollen lymph node(that I’m aware of). my doctor referred me to do a full body CT scan .. I’m a little bit afraid but this past 18 months were pure hell. I just want answers🙏🏻. I’m 27 years old male. Thank you!
Hey , how are you doing now?
Thank you for sharing your story. I am glad you are in remission! I have one swollen lymph node in my neck that has been worrying me. It’s painless & since I’ve started paying attention and counting, it’s been there for 70 days so far. It gets bigger and smaller and bigger and smaller again but never goes away. The CT shows it’s less than a centimeter but they still want me to see a hematologist to make sure it’s not C. I can’t tell if it’s hard but I don’t think it’s moveable. I have no clue what to think :(
I pray that all the test come back and everything is good (or at least treatable) :)
swollen lymph node is very common, most of them aren't dangerous.
So true!
Hi! Reaching out years after this comment bc I have this as well. I have had 1 swollen node on my neck for a year that comes and goes for a year. I saw my dr and he gave me a 30 day prescription for scalp infection, and it got better for a month but came back. Did you find out what was causing it?
@@rachelknight6554 Hi! I’m glad they are being proactive in figuring out what is causing it for you. Mine is still swollen and now I find that I have a few more, all very small and painless-and movable. These indicate non C, so if yours is similar don’t panic! I am thinking mine is due to chronic inflammation and/or autoimmune. The doctor never seemed worried so I haven’t done anything else. Wishing you positive news and peace of mind!
I'm heading on this morning. Having a biopsy on lymph nodes.
Wish me luck.😊
Hi Thx for sharing your story. Just stumbled across your channel researching my health issues . Wondering - what type doctor handled your bone marrow biopsy? God bless .
IDK who actually did the bone marrow biopsy, but my oncologist asked for it
Hello! I love your personality. Such a strong soul♥️ Did you feel more bumps besides the ones in your head? Were you able to move them?
I felt one in my cheek and some under my chin. I also had a ton I couldn’t feel. They did not move much. When I first felt the ones in the back of my head, I thought maybe they were part of my skill and I just had never noticed until that point. Obviously that was not the case lol
No radiation with MRI so I’m glad you did that!
I was diagnosed non Hodgkin's lymphoma (peripheral T cell ) on 15 april18.then took 6 cycle chemotherapy.and I needed BMT to be done which was autologous transplant on October 18.doctor have told me that It can relapse.now I am 42 yrs old, became menopausal as chemotherapy effect.i have 2 kids.i am happy that I am still alive for my kids
That is so wonderful to hear! I hope to have a happy and full life like you :)
How r u now
I was diagnosed with stage IV non Hodgkin's lymphoma in March 2018. I had 18 weeks of chemo and at the beginning of August 2018 I was told I was in remission. I just got my chemo port removed yesterday. Stage 1 is if the nodes are only in the neck area. Stage 2 is if the chest is involved. Stage 3 is when you have swollen nodes in your abdomen, and stage IV is when it's in your bone marrow. Happy you're doing well now 😁
Thank you for clarifying that! I am so glad that you're doing better too!
@@MelanieCamilleYou're welcome, and thank you. 😊
It just means stage 4 (roman numerals) :)
Which staging system is that? It isn't the Ann Arbor system
How r u now
A nurse called me (I was driving ) to tell me I had breast cancer. It was a cold rush that went from my head to my toes. I’m sorry you had to go thru it like that at.
Wow that’s way scarier! They should at least make sure you’re sitting down and not in a car!
Melanie Camille
I wish you all the luck in the world. I was 48 I can’t imagine just starting my life like you are. I’ve been praying for you. You look good and you are happy that is what you have to do. Your happy attitude will help you through this. You are brave and strong.
Thank you so much ❤️
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I have several small lumps and a lot of discomfort in my upper neck/base of skull and back and neck pain for a while now. I'm curious what lab work they did prior to the lymph node biopsy or if they just went straight for biopsy?
Hi , thank you so much for sharing your story. I am 63 and suddenly developed an intense itching on the back of my neck with a rash that 2 prescription creams didn’t help and was given a stronger one from a dermatologist. I also have a small swollen lymph node in my neck that is palpable to the physicians. The worst part is that the itching has spread to other parts of my body. I am a nurse and know this is not normal especially when I have never had any issues with my skin, so I will be returning for a biopsy. Please pray for me as I lost both my youngest brother and then my 16 year old son to tragic accidents and have a wonderful daughter and 3 wonderful grandchildren and a wonderful son in law. I don’t know how she will deal with more bad news, but I know the Lord is good! Thank you again 😊🙏🏻
Linda
MRIs don’t have radiation, they are the safest mode of taking “picture” from the inside of your body. Best of luck and hope you’re doing better as days go by🤗
I know. I totally misspoke in the video. I wish I could go back and fix it because so many people have pointed that out! Lol Oh well 🤷🏻♀️
Hahaha no worries i have done that before too! It's an honest mistake. Hope you're doing well
Thank you ❤️
@@MelanieCamille Did you actually have an MRI for this or a CT scan? Which way round was the miss quote? Lol
Hey hun, thanks for this video. I have lymphoma and tumours on the trachea which are growing quite fast. I have the tracheal biopsy next week to check the type of lymphoma, but I'm just starting to get stressed out about waiting for results etc. How long did it take for you to recieve results back, how did you handle your own patience when waiting?
I’m so sorry to hear that, but you can beat this! That’s a good question. I don’t remember exactly but I think from my first biopsy (I had three) until my final diagnosis was about a week. I agree, waiting is the worst part
@@MelanieCamille yeah for sure. Definately beating this. Thanks for your video and reaching out. ❤️
I just stumbled upon your channel. I hope you are doing well. Did your blood work show up normal before your diagnosis? I have lumps in my neck some are enlarged lymph nodes for sure, but at least one the doctors can't figure out. It's hard and fixed in position. I also have two lumps just below my rib cage on my left side and recently I've developed another just below my left knee. I haven't had a biopsy, but Ct Scans and ultrasounds that didn't show anything. My white blood count is sometimes elevated, other times it's not. My liver enzymes are sometimes elevated, other times they're not. This has been going on for 5-6 years now. I'm just wondering how you got your doctor to do a biopsy? Mine hasn't offered and with the latest edition I'm starting to get worried.
How come you had the lymphnode autopsied first? Did they not do bloods first to check white blood cell count?
I have lumps small painless ones in my armpits, and a few in my neck that i thought were normal and my dr just did a blood test for it and everything came back fine? I also have a new pea sized lump in my pelvic area off to the side. I don't feel sick ever, i have a pretty stromg immune system, i do experience a lot of tiredness but I've put that down to diet.
Thanks in advance if u ever see this.
I’m so glad you’re okay now. You’re so strong!! If you don’t mind me asking, how big were your lumps? Were they hard or soft? I have been dealing with the same thing. My blood worked was clear though.
My oncologist said they were between 2 and 4 inches in diameter! But they did not feel that big. The largest felt like a good ball. They were all hard
@@MelanieCamille If you don’t mind me asking, did your blood work come back as normal or irregular? I’ve been referred for an ultrasound on my abdomen to see if my lymph nodes are swollen there. Despite receiving clear blood results
Mine was abnormal. My white blood cells and platelets were off. But I would assume it’s possible to also have normal counts
@@ohok8316 hello how are you feeling now?
how are you?
I had some blood work done because I’ve been feeling unwell for nearly a year and extremely fatigued. I often noticed that my neck swells up a lot and now the swelling hasn’t gone down in three months. I had the flu two months ago even though I got my flu shot and I take vitamin C and multivitamins every day. I had blood work done and it came back as EBV but my lymph nodes are still swollen and it hurts all the way down to my collarbone and I am just tired of feeling like I have not gotten any rest. I haven’t been sick since the flu and these are my only symptoms. What was your blood work like the very first time?
The blood work showed that I had very low white blood cells and blood platelets. Maybe you can see another doctor for another opinion?
EBV can wreak havoc on your lymphatic system alone. In fact it can cause so many problems that EBV is known to increase ones chances of getting lymphoma at some point in their life. Not trying to scare you, just make sure you’re aware!
When you test positive for EBV, you should be sure to have the docs double check your lymph nodes, just to be safe. 😃
Hope you’re feeling better.
Thanks. My lymph nodes are still swollen and all of my blood work is still normal. Had an ultrasound done that showed swollen lymph nodes on the left side of my neck. Doctor didn’t have a response for me. Went to the ER with neck pain and the doctor referred me to the the cancer center. I am having at CT done on my neck this coming up week.
@@nicolechapel3590 I wish you good luck and blessings! Keep us posted, and remember while you're waitimg for resutls that the fear is almost always worse than reality, even in the worst case scenarios.
@@nicolechapel3590 any update? Hope you are well
Because I have swollen lymph nodes in my groin and armpits. No night sweats, no fever no fatigue. I did have blood in my stools for about 24 hrs then but not after that to date. No health insurance.
How are you now?
Hope you're doing good
Thank you for sharing! What size were the bumps on your head? Pea size or larger?
MRIs don’t have radiation it’s magnetic resonance scanning, CT scans do have radiation though just FYI.
I know, I meant a CT scan. I wish I could fix that part because people point out that mistake all of the time lol
I can’t believe they were so reluctant to diagnose. They did a Ct scan on me, saw some enlarged lymph nodes, and automatically said, “it’s probably lymphoma.” Turned out to be sarcoidosis.
OMG! 😮 I’m pretty sure they legally have to know what it is before saying anything. Or at least it’s considered good legal practice. I’ve never heard of a doctor assuming what a diagnosis is
Melanie Camille you’d think, right? All my paperwork that summer under diagnosis was “lymphoma.” I think a lot of sarcoidosis patients have this happen. And because of extenuating medical circumstances it took a particularly long time to have a biopsy. So for about 7 weeks it was lymphoma (until it wasn’t).
Wow! That’s so scary!
How has your sarcoidosis going for you I have same thing.
@@MelanieCamille Wrong , I was told I had cancer 7 times...and the second to the last time . they said it was advanced Ovarian...4 weeks or so... but they all proved to be wrong, until I had a bad eye and went to the doctor , only to hear I had cancer for the 7th time...this time the biopsy proved it. Non Hodgkin's Lymphoma...of the tear ducts. Stage 4. Went to an Oncologist... very older and cold and told me what he was going to do refused to tell me anything about my condition. Answer my questions and especially refused to hear my opinions... I worked as a Home Health and Hospice CNA for years and drove cancer cases for radiation and Chemo.... for 20 years... I told him I refused Chemo and Immunology....and he got angry. So I left and called the office and told them I was done. I went on Keto diet... no sugar, flours and low carbs, Take CBD oil for any pains. I did 5 months of THC in Rick Simmons form. Hated the feeling . Lost my one eye.... and the other has lost 50+% of vision. Pet Scan shows it did spread in two places... but her I am 4 years later still going strong...GOD told me to be still and know HE is GOD. I did and HE is !! My eye looks bad and they wanted to do radiation on it....a year ago...but then pushed the Chemo and Immunology....again. WE did ask the doctor to allow me to try another doctor and his words were, If she doesn't want me....she can go elsewhere. The problem is the Hospital is less than a mile away, and there are 6 Doctors there...The Radiation Doctor was the one who asked, and she was shocked by his answer. I had warned her. I am 72 and still able to function and do my jobs taking care of my husband, He is 76 and crippled. GOD is amazing and he does care. I think this has been a blessing... I am able to share and enjoy each and every day. So Happy to hear your good news ...hope it all goes well.
Thanks for the video
Absolutely! I hope it helped
Hi I’ve been having a lot of swelling in my glands in my neck my armpits and my groin did your bumps come and go or did they pretty much stay consistently swollen. My doctor has told me that I have fibromyalgia. Did just do an ultrasound today and said it was negative even though my lymph nodes were swollen and the tech and radiologist noticed them.
The left part of my neck is swollen and I’m having trouble breathing do you think it could be lymphoma I’m getting a little nervous it’s been a couple weeks now
I am not a doctor so I couldn't say, but you should definitely get that checked out
If you are having trouble breathing, that is an emergency....you need to go to emergency....
Oh ya good point! I totally missed that part!
Might be tb.....
I hope you're doing well! Curious of a couple things: did you ever have a CT Scan or just the MRI? Wondering if one or the other is more effective at diagnosis of any type of lymphoma. I've had some lymph nodes around the neck, back of head and front of neck (by my throat) that have been getting swollen and tender. 2-3 specifically that always feel swollen. Had a CT scan done with negative imaging. Came back negative, but I'm not sure I trust my docs. Its just been very weird with these being swollen/tender. Alcohol definitely makes them feel more tender. Wondering if I should insist on the MRI and/or biopsy on top of the CT...
I actually got a CT scan. I miss spoke when I said MRI. You can always see a different doctor for a second opinion (which is never a bad idea). But if you notice it getting worse after eating or drinking certain things it could possibly be an allergy. I am not a medical professional so definitely
see a doctor for a diagnosis, but it might be another thing to explore if your CT's keep coming back negative
Got my ct scan results going Monday to my primary doctor. Because I don’t understand my ct scan results. It says prominent scattered cervical chain lymph nodes. Palpable marker of interest in the deep region where patients concerns are
While I too have swollen nodes on my neck, right of spine, I also “feel” tentacles branching out. The redness is tense, and the area does hurt, I’d like to hear more about the issues related to the gut area. What were the impacts to this region (stomach, liver, kidneys,etc)?
Just lost my best forever(one in a million wonderful girl) friend...in her thirties...she had non hodgkins....years back....had chemo and we didn't know if they'd beaten it......however she beat it ...........doubled her weight...looked amazing....had a lump but she said nothing more...stayed in touch...she got her own home etc...got a life..I moved to a different town.....years on.......I believe she said t hey found another lump...became much thinner (her selfies on facebook looked thin)...hadn't seen her for years but connected on facebook and calls....she never told me her cancer had returned... My phone is cut off..(ex had been paying for it but stopped).....next thing I know....I see the obituaries on her facebook😥😥😥😥 I'm still shocked.. .I'm still processing.....grief...🙏....xxx