Adding Tomorrows - Cystic Fibrosis Foundation
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- Опубліковано 4 лют 2025
- The FDA recently approved Kalydeco, the first drug to address the underlying cause of cystic fibrosis for a small segment of the CF population. Meet two children who are still in need of a lifesaving treatment for CF.
I have Cystic Fibrosis, I watched this while doing the exact same thing that they are doing in the video; taking my treatment with the vest and nebulizer, it is so great to know there are kids just like me :)
Danithemakeupturtle
My aunt had the gene for Cystic Fibrosis and she also had the gene for a autoimmune disease called Juvenile Rheumatoid Arthritis. Juvenile Rheumatoid Arthritis is a chronic joint destroying disease. Well scientist and doctors have known for decades that the disease can destroy
Joints
Eyes
Internal organs and the disease can put patience at risk for a life threatening infection called Tuberculosis.
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If someone with Juvenile Rheumatoid Arthritis does not grow up around a community of children with the autoimmune disease they can become deeply deeply depressed.
Why do even a few people dislike this video? Its so well done and such a strong and genuine message!
goCF！
When you have a child with Cystic Fibrosis the daily regimen becomes a way of life; when I took a moment to watch this video, it really hit home. I guess it is true, sometimes you have to take a step back to capture the view. I'm not ashamed to say I can get a bit emotional if I dwell on it. On the bright side, the CF Foundation is making great advances thanks to our many supporters and the goodness of God.
was just searching up for my nursing care plan .. and found this
u guys made me cry ..
true inspiration
I have cystic fibrosis to and I don't let that stop me from doing good in school or sports or pretty much anything. So I'm happy to know people are just like me
Thanks so much for posting this video. I know exactly how you feel as a parent, as I have a fourteen year old son with cf. Your video is very inspirational. Keep up the good work and I hope your beautiful children continue to thrive and stay healthy. Thanks again.
Candice
look, have faith in youself. your life is not going to end. study have come up, and stats have changed. i have CF, and my doctor says that i could live well into my 60s. i am healthy, and i hope you make it thru.
God bless these adorable kids!! Donate today! Add tomorrow's!
I do research on CF - this video was so inspiring, motivating and touching. Thank you!
343i brought me here as well. Good to know they care. This video should have more views.
these are my cousins I kno both of them very well, they are so strong I'm the same age as kieth and he is such a strong kid
Don't say that, I know many people who are well above 50 who have it. Keep fighting. We've got this.
My name is Dan an my son was diagnosed with Cystic Fibrosis. He is only two week old. Thank you for sharing your experience.
Hey Dan! Haven't seen you in a while! I just want to say I miss you guys and for you and your family to stay strong! I love you guys!-Lexi 😘😊
I love this video, and used it in a presentation of mine. Great job!
Currently doing my vest now 💪🏻
I originally asked Frankie to post this, and to see it jump from 200 views to 6K is awesome, thanks everyone.
God bless children with this disease and hopefully a cure is found
Hey guess what guys!....
Frankie's post brought me here!
Doing a CF presentation for my PT class, any updates on these warriors?
how did the presentation go
I have cf so can tell u first hand this all sounds idilic but in the uk and many other parts of the world we don't have vests and such effective medication I'm not saying these kids have it easy but I am saying manny people don't relies how bad cf truely is or how many people are affected by it xxx
Why do Americans with Cf use a vest. And Canadians don’t ?
uh ummm im suprized at how many people care im nine and i have cf and my moms dad died of cancer and he was clost to me and my mom was practily taken from me shes never around the house any more and my dad is taking care of her so i have to feed myself and do everything my self right now inculding my treatments so i mostly on here wishing my family wasnt broken like this :,(
I'm looking to get in contact with this family. Can anyone help?
William Miller hey William I am the boy in the video. You can message me or email me if you want to get in contact! -Keith
William?
I have CF. I'm 28, so my life is nearing its end. But its good to know kids today will have a better chance at life with the new treatments and drugs that are being developed.
Hey man, how are you doing?
i have CF
1:59 I have cf and now I know what I sound like to other people lol
It's not funny
343 brought me here...so in a way halo is curing cystic fibrosis :)
ps. share this video on facebook!
343 brought me here
so few views n comments :o
I never intended to have the top comment. It just kinda happened for some reason. It's not like I said *Oh please make this top comment!* It's actually my first time getting top comment but I really don't care it's not like I'm getting awarded for something.