It breaks my heart hearing of an individual that looses their life to CF. My husband has CF and was bless to have a successful lung transplant. He is now 50 years old and experiencing some rejection. (he received the lungs 15 years ago!). I sometimes worry about him, but I know he is a fighter an lives his life to it's fullest. I pray that one day there will be a cure for this awful disease!!
I think Sam did the best he could at the time. He was so hopeful through research a drug would become available that would allow him to not go through a lung transplant that has a limited "lifespan" itself. It was his decision and his wife supported him the whole way. As for his son, he is growing and thriving and he and his mom have an incredible support system of friends and family. I cannot imagine a world without Sam's son in it. He is amazing and brings joy to so many people.
Amazing persons in this video. I met two girls with CF when I was only 9 yrs old at the hospital In 1979. They both were 11 and were much smaller than me. I once witnessed one of the girls having difficulty breathing and a lot of nurses rushed in the room to help her. I didn’t know what the symptoms were. I shared a room with both girls because I had an accident with boiling water and needed surgery. I’ll never forget those darling girls so sweet and kind. Both girls taught me the lyrics to the song Take Me Home Country Road by John Denver.
I was not expecting him to pass away. Wow-I am so sorry for your loss. God bless both of you and may you have comfort knowing Sam doesn't hurt anymore. God bless you.
Thank you for sharing this emotional documentary. It touched my heart as a parent who lost my son Daniel at age of 21years. He too was someone who NEVER gave up on ANY of his treatments and did everything he was supposed to do, he was talented both musically and artistically and lived his life to it's fullest. God Bless ALL our dear ones who are now free of their earthly restrictions. X
I am studying cystic fibrosis and i was trying to understand all about it so i looked it up in youtube and watched this video and it really touched me. Being a medical student means sometimes we forget that there are real people suffering from these diseases, Sam may failed in his battle but he had a life filled with love and success.. may he Rest In Peace
Thank you so much Lynn. If you are going to this length to learn about patients with this disease, you are going to be an outstanding physician Karlene
@@frankiekohl1593 He died. As long as you fight as hard as possible. To fall short or fail isn’t a negative. It’s just the way it happened. Also this is a world wide community it’s narrow minded to assume everyone’s first language is English.
I'm watching and learning about CF, even though I don't have it and don't know anybody having it. It's so incredible how these people and Sam appreciate life... very inspiring.
I was so hoping he got his new lungs...He just looks like such a sweet loving man...To Sam's wife and son I'm so so sorry for your incredible loss...I hope you and your son are doing well..I cried through the whole video but when he said he would have the transplant I balled like a baby...happy, excited tear's then when he said he passed away on the waiting list it broke my heart! Sams son will know he has an amazing dad watching over him...He was so positive and such a fighter! RIP SAM...❤👪❤
Hi Owen: You are growing into such a nice young man. Your dad would be sooooo proud! I'm the person who made this video. Your mom and dad were so generous to do this. Take Care, Karlene
What a beautifully done video. I found myself very emotional watching this . I have a different chronic disease and have only one functional lung . I am sorry for your loss. I hope this video does what it was designed to do. It is full of hope .
This once again makes one appreciate simple, but so necessary things like being able to just breathe freely. Sam's son and wife will have to go on without him. It is truly heartbreaking. It is very frustrating to see someone smoke especially when they are younger. Folks like Sam would give everything just to have a healthy lung while folks who choose to smoke willingly throw that gift away.
Thank you for sharing his story. This story will help with my research about cystic fibrosis. What is it? How do family, friends, brothers, sisters, their children, their mothers and fathers, and all their peers and loved ones deal with this? How does the patient deal with this? And to spread awareness about this disease. To help people understand what is this? And to supply facts and details that people can learn from and hopefully take something out of this to pass on to others. Thank you again. And I am so sorry for your loss. There are so many others like him. I will do anything I can to make a difference. And by listening to other stories like this one, I can help others understand. Sending my love to you from Maine 💜💜💜💜💜💜💜
My heart goes out to you Sam..I can't imagine how it must feel not getting enough air...my thoughts prayers are with you and your family! Stay positive and keep the faith...hugs Btw...your nurse and Dr. they are absolutely amazing...not only as caregivers but as people!!
Breath Easy 🌹 It's not fair we are more than patients no matter what diseases. 😔 you can do everything absolutely right and still die which is horrible. Pls use his name not just patient. Who cares if she is the only one working! She gets to live move on move forward. I been a care giver and a sick and this pisses line makes me angry! Not fair or right.
Hello Karene, thank you for this video, we would like to use it for viewing at our school but for unknown reasons it is being flagged as "Mature" content and we cannot view it. I was wondering if there was a possibility to download your video with permission and upload it to our library content management system with full attribution and reference to you and the original location
Did you used to get shuned because of the coughing I feel like it did that to me made me feel horrible like I didn't exist and that I had nothing good about myself starship constantly made me focus on everything bad I started feeling suicidal.
Estoy buscando un video de un hombre joven que murió de fibrosis acústica en el hammersmith y no consigo ese video tenia de profesion probar los carros de una fábrica y murió de fibrosis acústica Quisiera ver el vídeo otra vez ya en la urna le cantaron esta música Somewhere over the raibow Todos estaban llorando familiares medicos también terapeutas
Yo no escribí fibrosis acústica YO ESCRIBI FIBROSIS QUISTICA Y PUSE HAMMERSMITH HOSPITAS que no lo pusieron. Le cantaron en su urna creo que está cancion. Todos estaban llorando el no quería morirse SOMEWHERE OVER THE RAINBOW
Tomahawk1999 I'm sure he had considered a transplant but a transplant at 18 is hardly the best idea, especially if the person had a college plan. Maybe he wanted to make sure that he understood why he was doing it, making time to commit to the recovery and understanding the risks. Remember decision, time and risk are always the three most important things
How do you know he didn’t consider a transplant? Maybe he was on the list and didn’t get a match in time. Maybe the doctors determined he wasn’t a candidate. For a lung transplant, there’s only a 50% chance that a patient on the list will get a transplant because there aren’t enough donors. Even those who get a transplant, there’s still only a 50% chance they will live five years. You need to educate yourself before making judgmental comments.
The 5 year life expectancy is only 50%. That's part of why I didn't have one. Lungs don't like being transplanted. They get inflammed with rejection and you die.
Lebrun James 214 probably orkambi that you have heard about. It’s a drug that slows down the destruction of the lungs and is adding so many years onto people’s lives. It’s incredible however we cannot get it on the nhs as it’s too expensive. There are many people trying to get it here but we don’t know if it will be accepted. My cousin has cf and it will be so amazing for him.
Please let Jesus be your lord. I am so sad that You go thru' so much suffering. I can only pray for you, I cannot do anything to change the situation, but God can.
Very sad but for cf patients(I have it) feel its not fair to commit your life to someone healthy eg particulary cf males as they cant reproduce normally (Ivf for me doesnt sit right )and in many cases people with cf dont work.I hope Sam is in heaven now RIP
Ricky2901 that doesn't make them any less valid as people or second rate. What you say is very insensitive. When you love someone you commit to them no matter what... if you have doubts your love is not true, or you are mercenary or self serving, e.g., people who marry for other motives such as money. Many people cannot produce children normally and have ivf through the wonders of modern science, just as that same science has cured some conditions and helped others have a better quality of life.
So because someone can't work or make children because of a disability, they don't deserve a chance if someone is willing to give them one? Interesting.
I understand what you're saying. It's not about what we deserve. It's about the ones we leave behind and trying to minimize how many people we hurt. I don't have CF but I've had my own lung stuff and I get it.
One in 25 people [approx] are carriers of CF [I am one of them]. You would just make sure that your partner/spouse was genetically checked too. It takes two carriers to make a CF baby and even then, it's 75% chance of a non affected child. I'm pretty Sam would have done his 'homework' on this given that his wife worked for the CF institute.....
I am a parent of a child with CF. I didn't know I was a carrier. If i knew my child would get this because of me I would have done things differently. I never wish this disease on anyone.
What a compassionate doctor.
It breaks my heart hearing of an individual that looses their life to CF. My husband has CF and was bless to have a successful lung transplant. He is now 50 years old and experiencing some rejection. (he received the lungs 15 years ago!). I sometimes worry about him, but I know he is a fighter an lives his life to it's fullest. I pray that one day there will be a cure for this awful disease!!
Russell Davis can u please contact me on my email malakrabhi.mr@gmail.com
Russell Davis Wow that's amazing to have had his transplant lungs 15 years! I hope your husband is doing well.
malak rabhi why do you want russell davis to contact you so you can scam that person outta money ? and bull shit them that you have a fucking cure
That's amazing! I'm so happy for you and your family...God bless 🙌
Jw is he doing well? This was written 6years ago.
I think Sam did the best he could at the time. He was so hopeful through research a drug would become available that would allow him to not go through a lung transplant that has a limited "lifespan" itself. It was his decision and his wife supported him the whole way. As for his son, he is growing and thriving and he and his mom have an incredible support system of friends and family. I cannot imagine a world without Sam's son in it. He is amazing and brings joy to so many people.
Karlene Brantley Coleman Hi first of all I am so sorry for your loss! My son in law has CF he is 26, on waiting list for double lung transplant.
Amazing persons in this video. I met two girls with CF when I was only 9 yrs old at the hospital In 1979. They both were 11 and were much smaller than me. I once witnessed one of the girls having difficulty breathing and a lot of nurses rushed in the room to help her. I didn’t know what the symptoms were. I shared a room with both girls because I had an accident with boiling water and needed surgery. I’ll never forget those darling girls so sweet and kind. Both girls taught me the lyrics to the song Take Me Home Country Road by John Denver.
I was not expecting him to pass away. Wow-I am so sorry for your loss. God bless both of you and may you have comfort knowing Sam doesn't hurt anymore. God bless you.
What a sweet doctor.
Thank you for sharing this emotional documentary. It touched my heart as a parent who lost my son Daniel at age of 21years. He too was someone who NEVER gave up on ANY of his treatments and did everything he was supposed to do, he was talented both musically and artistically and lived his life to it's fullest. God Bless ALL our dear ones who are now free of their earthly restrictions. X
Rest in peace Sam. This doctor has an amazing heart.
Thank you guys for saying this stuff it it makes my heart happy because he is my dad❤❤❤
I am studying cystic fibrosis and i was trying to understand all about it so i looked it up in youtube and watched this video and it really touched me. Being a medical student means sometimes we forget that there are real people suffering from these diseases, Sam may failed in his battle but he had a life filled with love and success.. may he Rest In Peace
Thank you so much Lynn. If you are going to this length to learn about patients with this disease, you are going to be an outstanding physician
Karlene
Sam did not fail in his battle. That was in bad taste to say that. I too have an illness everybody has their own Journey.
@@frankiekohl1593 He died. As long as you fight as hard as possible. To fall short or fail isn’t a negative. It’s just the way it happened. Also this is a world wide community it’s narrow minded to assume everyone’s first language is English.
Thank you so much Jorge! You are so right about the baby and how much love he brings to Sam's wife.
What an inspiration he was. Thank you for sharing his story.
I'm watching and learning about CF, even though I don't have it and don't know anybody having it. It's so incredible how these people and Sam appreciate life... very inspiring.
I am sure this is a dumb question. I would think they could put a chest tube in and drain the mucous from his lungs.
I was so hoping he got his new lungs...He just looks like such a sweet loving man...To Sam's wife and son I'm so so sorry for your incredible loss...I hope you and your son are doing well..I cried through the whole video but when he said he would have the transplant I balled like a baby...happy, excited tear's then when he said he passed away on the waiting list it broke my heart! Sams son will know he has an amazing dad watching over him...He was so positive and such a fighter! RIP SAM...❤👪❤
Thank you for sharing Sam's story. I am a nursing student and it helped put a face to this awful disease. I wish you and Owen all the best.
Wow. what a story. Prayers to Marisa for her loss.
Rest in Peace Sam. All the best for Marissa and Owen
Agreed. RIP Sam. Condolences to his family and friends. I hope they find a cure soon for this dreadful disease.
Thank you for sharing this story. I'm turning 52 in Nov 2017!
Hi Owen: You are growing into such a nice young man. Your dad would be sooooo proud! I'm the person who made this video. Your mom and dad were so generous to do this. Take Care, Karlene
What a beautifully done video. I found myself very emotional watching this . I have a different chronic disease and have only one functional lung . I am sorry for your loss. I hope this video does what it was designed to do. It is full of hope .
You are so very kind and I hope for the very best with your journey. Karlene
Thank you so much for viewing this video and for your comments.
Karlene
Karlene Brantley Coleman Thank you for sharing this!
Are you related to Marisa?
Haydee Stoffel Are you talking to me or someone else?
This once again makes one appreciate simple, but so necessary things like being able to just breathe freely. Sam's son and wife will have to go on without him. It is truly heartbreaking.
It is very frustrating to see someone smoke especially when they are younger. Folks like Sam would give everything just to have a healthy lung while folks who choose to smoke willingly throw that gift away.
I cried like a baby. He left a part of him with his wife; a mini SAM!
Rest In Peace Sam 👼🏻
Thank you for sharing his story. This story will help with my research about cystic fibrosis. What is it? How do family, friends, brothers, sisters, their children, their mothers and fathers, and all their peers and loved ones deal with this? How does the patient deal with this? And to spread awareness about this disease. To help people understand what is this? And to supply facts and details that people can learn from and hopefully take something out of this to pass on to others. Thank you again. And I am so sorry for your loss. There are so many others like him. I will do anything I can to make a difference. And by listening to other stories like this one, I can help others understand. Sending my love to you from Maine 💜💜💜💜💜💜💜
Rest in peace Sam. you will be remembered :(
So sorry for your loss. At peace with the angels now.x
God bless those going through the fight of CF.
What an amazing doctor!!! Prayers for Marisa and Owen!!
I'm so sorry for the loss.
Thank you Teddy
My heart goes out to you Sam..I can't imagine how it must feel not getting enough air...my thoughts prayers are with you and your family! Stay positive and keep the faith...hugs Btw...your nurse and Dr. they are absolutely amazing...not only as caregivers but as people!!
Did you not watch the video? Sam passed away. You’re commenting like he’s still alive.
@@Youre_Right Sometimes its a real virtue to keep your thoughts to yourself...you should try that...have a beautiful day...
People we must bring awareness to this horrible horrible disease!!!!! The saddest video ever!!! I
I'm sorry for your loss.
This made me tear up😢
Breath Easy 🌹
It's not fair we are more than patients no matter what diseases. 😔 you can do everything absolutely right and still die which is horrible. Pls use his name not just patient. Who cares if she is the only one working! She gets to live move on move forward. I been a care giver and a sick and this pisses line makes me angry! Not fair or right.
R.I.P. SAM....so sad
I've known a few people who have had this disease. Very Sad.
R.I.P. Sam😢😢😢
Rip. Sam u not suffering any more
Hello Karene, thank you for this video, we would like to use it for viewing at our school but for unknown reasons it is being flagged as "Mature" content and we cannot view it. I was wondering if there was a possibility to download your video with permission and upload it to our library content management system with full attribution and reference to you and the original location
i in tears
Did you used to get shuned because of the coughing I feel like it did that to me made me feel horrible like I didn't exist and that I had nothing good about myself starship constantly made me focus on everything bad I started feeling suicidal.
so very sad. .....
Nice soul!!
Estoy buscando un video de un hombre joven que murió de fibrosis acústica en el hammersmith y no consigo ese video tenia de profesion probar los carros de una fábrica y murió de fibrosis acústica Quisiera ver el vídeo otra vez ya en la urna le cantaron esta música Somewhere over the raibow Todos estaban llorando familiares medicos también terapeutas
Yo no escribí fibrosis acústica YO ESCRIBI FIBROSIS QUISTICA Y PUSE HAMMERSMITH HOSPITAS que no lo pusieron. Le cantaron en su urna creo que está cancion. Todos estaban llorando el no quería morirse SOMEWHERE OVER THE RAINBOW
extremely irresponsible of sam not to have a lung transplant. the poor kid will grow up without a dad.
Tomahawk1999 I'm sure he had considered a transplant but a transplant at 18 is hardly the best idea, especially if the person had a college plan. Maybe he wanted to make sure that he understood why he was doing it, making time to commit to the recovery and understanding the risks. Remember decision, time and risk are always the three most important things
How do you know he didn’t consider a transplant? Maybe he was on the list and didn’t get a match in time. Maybe the doctors determined he wasn’t a candidate. For a lung transplant, there’s only a 50% chance that a patient on the list will get a transplant because there aren’t enough donors. Even those who get a transplant, there’s still only a 50% chance they will live five years. You need to educate yourself before making judgmental comments.
The 5 year life expectancy is only 50%. That's part of why I didn't have one. Lungs don't like being transplanted. They get inflammed with rejection and you die.
😢RIP
What’s that thing in his nose called ?
It is a nasal canal to deliver oxygen.
Apparently there's been a breakthrough in cf but I don't know what it is
Lebrun James 214 probably orkambi that you have heard about. It’s a drug that slows down the destruction of the lungs and is adding so many years onto people’s lives. It’s incredible however we cannot get it on the nhs as it’s too expensive. There are many people trying to get it here but we don’t know if it will be accepted. My cousin has cf and it will be so amazing for him.
Gryffindor Life its for a rare and specific mutation
A P it is proven to help around half of people with cf
Was lung transplantation never considered for him?
Unfortunately Sam got too sick for a lung transplant before a donor could be found. Karlene
You don't have to do anything you don't want to.
i dont have c.f,bu these c.f videos remind me of how much of a prick i am.
Please don't think that Paul! We all fall short at times and just the mere fact that you self aware shows you are a good person! Karlene
May Allah rest his soul in peace.😔
Me in my age group me and my friends they have me and Jennifer on Sam’s grave.
It’s as old as someone who can go to the Olympic Winter Games.
Does the baby have CF?
No.
I think this is the first time I've heard about a male having CF! Is it just much more common in females?
No. This disease is Autosomal Recessive so males and females are affected equally. It could just be your experience...
Please let Jesus be your lord. I am so sad that You go thru' so much suffering. I can only pray for you, I cannot do anything to change the situation, but God can.
RIP Sam💙🙏 So grateful that the new drug Trikafta is saving the lives of CF patients in 2020!!✌#davesandersstepdaughter
What are tax dollars should be going to.
Very sad but for cf patients(I have it) feel its not fair to commit your life to someone healthy eg particulary cf males as they cant reproduce normally (Ivf for me doesnt sit right )and in many cases people with cf dont work.I hope Sam is in heaven now RIP
Ricky2901 that doesn't make them any less valid as people or second rate. What you say is very insensitive. When you love someone you commit to them no matter what... if you have doubts your love is not true, or you are mercenary or self serving, e.g., people who marry for other motives such as money. Many people cannot produce children normally and have ivf through the wonders of modern science, just as that same science has cured some conditions and helped others have a better quality of life.
So because someone can't work or make children because of a disability, they don't deserve a chance if someone is willing to give them one? Interesting.
I understand what you're saying. It's not about what we deserve. It's about the ones we leave behind and trying to minimize how many people we hurt. I don't have CF but I've had my own lung stuff and I get it.
@@franny5295 Yes it can be a very cruel world. Thanks for the response.
💖💖💖
😢
💔
Do you feel good about yourself?
K
No disrespect to Sam, but there is no way I would consider having children with a genetically deadly disease like this.
if your implying bc the child could get it? then you need to do research...
One in 25 people [approx] are carriers of CF [I am one of them]. You would just make sure that your partner/spouse was genetically checked too. It takes two carriers to make a CF baby and even then, it's 75% chance of a non affected child. I'm pretty Sam would have done his 'homework' on this given that his wife worked for the CF institute.....
ziggy morris there is pretty genetic implantation diagnosis and you check to see if your partner is a carrier
It’s recessive.
I am a parent of a child with CF. I didn't know I was a carrier. If i knew my child would get this because of me I would have done things differently. I never wish this disease on anyone.
Back off
Good for nothing