Why is this Shane’s Special Month?
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- Опубліковано 8 вер 2024
- Happy SMA Pride Month!! We are taking a moment this week to celebrate all the accomplishments and moments over the years to be proud of! Then, thanks to all of you, we are doing a special Q&A: SMA Edition. We top the week off with SMA Bingo.
For transcripts of this week's podcast click below: www.dropbox.co...
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Executive Producers are Riley Peleuses + Michaela Garrison for YEA Networks / YEA Podcasts
If you are interested in advertising on this podcast or having Shane and Hannah as guests on your Podcast, Radio Show, or TV Show, reach out to podcast@yeanetworks.com
Shane, I don’t know if you realize how many people you are helping just by existing ✨
That’s not something everyone can say. But you can. The mere fact of you existing is helping everyone, it’s kind of cool. Thank you!
From someone that has a major struggle with depression and anxiety and have had multiple suicide attempts your channel has helped me in so many ways. Shane and Hanna you two bring hope and strength that we can press forward through our ups and downs. I am so grateful I found your channel keep up your great work!
Go to Home Depot, buy a cup of concrete, drink it, and harden up
@@JeffDamaori-rh3ck Oh no.. a troll.. how original!
@@tastyw0rm , I know, I have depression and anxiety as well, but please, please, please don't take your own life. There's good in you and the world. Shane and Hannah are Amazing people, they will make you laugh so hard, make you shed a tear or two, they're very interesting, and I love what they both stand for, keep watching their videos Wishing you ALL the BEST! Sending love ❤️ and Big Huge Hugs 🤗🤗🤗🤗
@@JeffDamaori-rh3ck It's Not that easy!!!!!!!
@@JeffDamaori-rh3ckLol!!! 😂😂😅
By far the best podcast of yours. I am disabled and also a dwarf so I get approached with questions too. Most of the questions are from children which I love. Rudeness to people who are different stems from being uneducated about what makes them the way they are. Children need to be taught early on that we are all the same because we are all different. I encourage the questions especially when I notice the mom whispering…”shhhhh and don’t stare”. That’s when I am excited to talk to the child so they aren’t thinking that people who are different are scary and not approachable. I’m in Minnesota also. I live pretty close to the Mall of America. I love you guys and I want to thank you for helping me be ok with who I am.
I learned so much reading this comment honestly. Thank you. I’ve always just felt a tinge of awkwardness and not really knowing how to approach each individual person out of not wanting to upset anyone. Not that I would be going up randomly. But I’ve definitely felt the whole like don’t stare etc. and nobody wants that feeling. Great comment, thank you.
Shane, you can teach so many, whether disabled or nondisabled, about how to find joy in life. Your attitude is amazing. We can all learn from you. Thank you. God bless! 😊
I don't have SMA but I've been disabled for 3-4 years now and I want to say I'm also proud of you for being proud. I know I'm nowhere close to that goal, but it's good to remind myself it is possible. Good job to everyone who has learned to love and accept themselves. It's definitely not easy.
Shane, it’s a big deal to become PUBLISHED! Bravo 👏🏼👏🏼👏🏼
Ok, Shane aced his SMA pride list, we are all proud of him too! But Hannah, don't sell yourself short... your SMA emotional and physical support of Shane gets an A+ too. You definitely helped advance his self acceptance and self image, and are a loving wife and caretaker. I know you say it's natural and no biggie to you, but as I'm sure you know, most people are not capable of even comprehending that, let alone doing it! You are both my heroes, love to you guys!!! ❤🧡💛💚💙💜🤎🤍🥰
I envy Shanes organization...
Note to self: make notes and list.
Note to self 2: read notes and lists to self.
I think this is a wonderful video…as a 52 year old woman who was born with cerebral palsy and diagnosed with epilepsy at 15 years old I’ve spent my life dealing with all the same issues. I’m proud of I am because I grew up with parents who were very supportive and then, married my fully able husband over 28 years ago who is absolutely amazing. We also were blessed and have 2 children in their 20’s who are fully able. Our daughter just graduated with her masters degree in occupational therapy and says that growing up in our family dynamic was her inspiration to help others who are disabled ❤
God Bless you both for creating this channel to spread awareness about your disability as well as disabilities in general 🙏
Coming off the back of disability pride month.... The big thing I had to learn myself many years ago was that pride doesn't mean that we have to pretend that we love absolutely every aspect of the impact of our disability. Pride is about learning to love yourself for who you are, including the disability and realising that it shouldn't be something that you're ashamed of. Disability isn't something that should be pitied, felt of or treated as though it somehow makes you less than others or completely backwards ideas like the old idea that disability was somehow punishment for some terrible act that a past family member (or depending on the culture, perhaps yourself in a past life) had committed and this is somehow Karma. Pride is seeing all that nonsense for what it is and loving yourself for all of who you are in spite of the challenges even if on a practical level you don't have to love every impact or implication of your disability each and every day.
Well said!
Yes!
❤ This message enhanced my day and introduce me to a new way of thinking about the word pride, I appreciate you
💕
Yet Shane Burcaw and Hannah Aylward pretend to be in a relationship of marriage yet it's a business NDA relationship thats all about dark greed and fame.
The pride comes from your ability to overcome your disability, and coming to terms and living your best life. You guys are and I’m so happy for you. ❤❤❤❤❤❤
No one "Overcomes" their disability. You learn to accept it and be at peace with it.
I hope one day to have the type of love you two share for each other❤️ it gives me hope that there are still good people in this world. you guys look at each other with such deep, genuine love ive been watching you guys for years and it makes me so happy to see you going strong and building a family together💓💓
I really enjoyed your show and thank you for explaining the differences of SMA. I worked as a caregiver for 17 yrs and the questions that people would ask unbelievable. Most of the time they would ask me not my client. You both touched on that subject today am very glad. Love ya both. ❤
You both enrich my life
Glad I have made you part of it.
Love watching you two lovely people.❤
My daughter was born with Down syndrome and honestly I get perturbed when people give her pity wins. She can earn her own successes! Stop doing that!!!!
And I also get kind of growly when people categorize her with all people with Down syndrome. Things like, "they are so happy all the time." Please, live with her a full week. She is not happy all the time. She has normal emotions and behaviors that all young women her age do.
I think we are all learning with having someone different in our lives that it's just different. To take each person, one at a time and accept them where and who they are. Culture, abilities, disability, personality, likes, dislikes, quirks and faults. Every person you meet has value. Every person you meet will bless you if you give it a minute. It will not be what you are always used to but just maybe, that is a good thing. Stay open to people where ever they are. It's an amazing life!
PS Some of my best conversations have come from my girls theater pals who are autistic. I cherish those chats and seek them out when I can. Love you Shane and Hannah!
This channel brings me so much joy, you guys are amazing!
Look Shane you are a champion I have some health issues and watching your channel inspires me!! Please continue making content for us all!! You are awesome Shane!!!!
It always tickles me when Hannah curses! She “dumps” on your book! 😁
I thought about this for awhile and when I was 17 years old ( i have been disabled since I was 16 months old) i realized that I enjoy who i am and of course I wish i had the use of both arms and legs, but if i didn't have my disability at all would i still be me? Would my sence of humor be different? Would my out look of my life be different? It might, but I like who i am, the way I am. I don't want to change me. I just don't appreciate the people who make fun of me or bully me. It's not right for anyone to do that to anyone.I have people come up to me and say "I will pray for you" or they ask me on the spot do you mind if "I say a prayer for you now? With you ? Or i get"Wow, look at you, you can do that "? " You do so well even though you have a disability ". I love you Shane and Hannah you guys are great! I love both of your sence of humor. Thank you so much for this video. Keep up the great work you are doing to spread the word about SMA. Looking forward to seeing your next podcast. Sending love ❤️❤️ and Big hugs 🤗🤗 to you both
Awesome! I loved this video so much. You are helping so many people, including me. Humor is medicine.
I have a 9 year old son with a disability and getting him through school with an IEP that meets his needs and allows him to thrive in school has been a nightmare. We (my son, husband and myself) tell the IEP team what he needs and the vast majority of the time they tell me "that is not how we do things" This summer I have felt defeated and have started to think maybe we really are wrong. The fact that you told your school "this is how it will be done", or whatever, has given me encouragement to stick to our guns. It was a simple comment on your part but thanks for sharing it. I have good feeling your comment will make a big difference in my son's school life.
Definitely agree, keep fighting. I’ve spent 21 years working in & out of the school system, school employees will lie & manipulate in IEPs, & cut needed therapies & one to one aides all because of money/budget cuts not based on the student’s needs or goals. If you can hire an advocate to accompany you at these IEPs and ask to have them recorded, it could be helpful. 💞🙏🏼
I have cerebral palsy, and I’m a part-time wheelchair user I have gotten every single one of those bingo questions and statements.
I really enjoy both of you and how you so easily feed conversation together. I love how you laugh at each other. Very fun!!!
I LOVED your books. Waiting patiently for the next one
Hope everything is okay as I have missed Junkyard Mayhem? Hope both of you are alright & there are no problems.
I was feeling the same way. Keep checking to see if they posted here or on Instagram & more importantly hoping & praying all is well for them & their families.
I would ask you both if there is anything I can pray for you for but I wouldn't just press myself on you. I like these Q&A episodes, they're practical and have helped change my view on disabled people. I'm ashamed to say that I would have been one to treat you like a baby or nonexistent, however I've changed a bit in that regard. Thanks!
😂 they don’t care about you.
Bingo made me very happy! I was born with dystonia and essential tremor. The questions I most often get are, "Are you ok??" "You're a very nervous person. Calm down." (More of a statement, really.) And the winner is, "Are you drunk?' I get that one ALL the time, especially when my lower spine decides that I will suddenly, out in public, have to be a walking 90 degree right angle. My son often has to tell the police that "I was just born that way" (in some ways I envy the signifier that is a wheel chair😊) because the police very rarely believe me or my son. I just like to tell people, "You know the actress Katherine Hepburn? I'm like her, just not as elegant, or self possessed (except for "in my mind") 😅.
It sucks that the police have to get in your business at all!! Cool to have a son who advocates for you, though. Stay elegant🤎
Thanks, lovely person! We will all be elegant together! 🎉
So happy I found your blog. You bring such happiness to the world and your blogs are educational. I love your humor. ❤
Hello dear how are you doing today
Can we be friends?
I thought the rule was you couldn't call it SMA pride month until there is a SMA pride parade and flag! Get on that!
That was such a beautiful smile Shane gave when he said thank you to Zoe. You are a very handsome young man, and Hannah is blessed to have you.
You guys just make me laugh! Thanks for your efforts to educate all of us who know so little about being disabled. I have learned so much and discovered so many unconscious attitudes that once acknowledged, I can not think in the old way.❤❤
As a parent who lost 2 infant boys to SMA back in the 80’s it thrills me to see that there’s been advances in the testing for this disease. I love watching your channel. You make me laugh and Shane you are so lucky to have found Hannah
I think the opposite. Hannah is so lucky to have found Shane.
I'm so sorry you lost 2 sons. That has to be hard.i can't even imagine
You both do know how to make be burst out laughing, from out of nowhere with your banter, whilst simultaneously educating me, not just about disability/sma but about life. Love you both, and the messages you are sending out to the world. Keep being fabulous!!! Lots of Love, David (from Scotland) XXXX
I wait a whole week every Wednesday after I watch the latest podcast for the next one. It’s one of my favorite parts of my week!
About the concept of ”perks” bc of disabilities… I have epilepsy, and this gives me the option to cut down my workload from 100% to 85% because fatigue increases the risk for seizures. I also don’t have to work nights, for the same reason. And those are definately perks (I work as a nurse in a suuuper stressful setting) but I mean the NON-perks are that I at any time (anywhere) loose consiousness, pee myself, bite my tongue bloody and hit my head😅
I love the parking
Great Podcast as usual. You guys are great
Cause you are both amazing ❤
I could listen to you and Hannah all the time and I don’t miss any one of your vlogs your friend from Alabama.
Thanks for making me laugh and putting a huge smile on my face! I love what ypur doing! Changimg the world for the better! This podcast made me feel like i was just hanging out with great friends!
Prayer is not a bad thing. You should be thankful prayers are being prayed for you! Bless your heart!
👋🏻 Hey! First of all, LOVE YOU GUYS!!!
Great episode, I really enjoyed SMA Pride. I actually got quite a lot of new information. I could watch 3 more, no problem. So, go for it 😂!
Shane that is a great way to look at your disability. I’ve had a heck of a time accepting mine as well. I know what you mean. Like you have Hannah. I have good family as well. And , that is very true having good people around us. ❤❤
Hanna, just an observation, It seems like you have gotten Way more at ease and playful which is quite awesome. The banter is very fluid and so enjoyable. You are both great to have as my side dish with my coffee❤
Shane i smiled so big at your reaction to winning bongo game 😊❤ you have such a cool sense of humor
I worked for a man with DMD for years. We were watching a free event at Northern Fan Con and we tried staying in our seats for the next event (paid tickets required). He was kind of pissed when they asked him to leave, but at the same time happy that they treated him like everybody else. lol good times.
I won wheelchair user Bingo too. I pl;ayed along with you. I get almost all of those comments and have for my whole life. Too funny!
Self love is 💯 something to be proud of❤️ love you both
Sending love and groovy vibes from Texas. Adore you both.
Remember the Alamo
Nice to get a Q&A on the SMA. I feel more informed about it. I get a few of those bingo comments about my wheelchair.
I found your channel now…it’s late but i’m so glad to know about you both. I totally get your relationship. It’s so so beautiful to see love between you two. At first I didn’t get it…but i have two videos completely and then I understood. Thanks for making these videos !!!
Absolutely loved todays outro ❤❤❤
I like 👍🏾 these 2.
Shane, Hannah are really nice..
I came across your story from facebook and i was just amazed by this two beautiful soul. My huge respect to hannah i honestly see this woman has beautiful soul. May you both find all the happiness in eachother. God bless.
Shane and Hannah are hilarious thank you for making me laugh, love and live!
For what it's worth, Hannah's extra context makes me wanna read Shane's book even more😂
I did read your first book, and very much appreciated learning how it was for you as a child and growing up. Regarding your feelings about things you wish you had not written about...I don't know...but you could put out another edition of the book, and edit it the way you want.
Yes, your perspective of disability has helped me in my own perception of my disability and others as well. Thanks for all you do!
Love you guys so much!
If I am praying for someone (regardless of who they are or what their life looks like), it is that they would feel God's presence and know Him personally and allow themselves to be fully known and loved. That is my version of a miracle - but if someone asks me to pray for healing (mental, emotional, physical, spiritual... it does not matter), of course I will because they have opened up their heart and the vulnerability they have shared is a gift. It is a privilege to pray for others, and it is a way for me to put an action behind my words when I say that I am thinking about them. It is not pity. It is genuine love and concern. Some people think when you pray the answer is a yes or no sort of deal, but I have not found that to be the case. Either your situation changes or your perspective. Sometimes both. ❤❤ I am sorry for the times you have felt belittled when someone says they are praying for you. Some people do it out of pity, others pride. Just know it is not a reflection of God or His character. We often let the people who claim to represent God form our view of Him, but when God sent His Son Jesus to earth the religious/"church people" are the ones who killed Him. Saying you are a Christian or that you go to church does not matter if you do not allow Him to change your heart. To be a true representative of Jesus is to give of yourself without reserve even if you receive nothing in return. 😊
Love your videos as always! 💕💕
Every single podcast, you two make me laugh out loud! LOL
We went to see a band play, outside in a small town and a drunk guy, you know, the one that dances all alone, came up to me and literally spits in my face and asks "What happened to your legs?" I snapped back, "What happened to your face?" He walked away! LOLL
You guys have literally given me soooo much courage! Love you guys so much!!❤❤
This was one of your better videos. Awesome job!
Just received a notification to message you two on Telegram. Apparently I'm a "Lucky Winner". Sorry, not sure I am able to do so; I don't have instagram or text capability. Oh well!
The one thing I hope you and Hannah have a long life together
Love you guys ❤😊
Your banter is just so enjoyable 😂❤
Hello dear
How are you doing today?
I'm glad bingo had peaceful comments, another youtuber caught on video a guy reaching in her van trying to take her disability tags off her mirror, yelling at her that she didn't need them, because he saw her walk a short distance down her van's ramp before driving her mobility scooter out. She is a little person, I watched that video in horror.
Please PLEASE make your other books into audiobooks 😢 I would love to listen to it ❤
Shane💕 hugs i appreciate you on this
So wait... gogii berries ARENT magical??
Also... Shane singing his Christmas... I mean SMA pride song ❤
Happy SMA pride month!!!! I hope you enjoy and celebrate every day!
I love
You guys !!!! I’m also worried, usually your podcast is the highlight of my week but you haven’t posted in over 12 days, hope everything is ok!
Oh god, the bingo game made me lol 😂. Being mistaken for someone else 😂. And the goji berries 😂
Love you both❤❤
I am proud to have Cerebral Palsy because I was made exactly the way God made me. Besides I can't change the fact that I was born with CP. Everyone has a purpose. When some asks me what do you have, I say, I have Cerebral Palsy, but it doesn't have me!
Im new here, and i love watching you guys. You guy are so happy people. 😊
Happy SMA Pride month
I’m a better person because of you guys bringing awareness to people with disabilities and their challenges. However I thought the title meant Shane got his period for a month….
🙄
Well, then, I hope they changed the title since I first saw it or you have a weird mind. 🤪
I have been wanting to buy all of your books but just haven't gotten around to it. What a perfect time/month to actually buy them. By the end of the month, I will own every book you've written. ✨️
Thank you for this video, hearing people say these things doesn't seem too horrible, but they way you explain it and put it into perspective, I cringe now thinking that someone (including my old self) would say these things to you!
HI ALL
You guys crack me up much respect Shane ya doing awesome my man Australia love's ya and you Hanna lol
this video was very interesting, educational and fun to watch ! thank you !
Shane is so funny I love them both 😊💕
Ah ha ha ha ha Hannah’s
“Poor you” that you had already broken up when the book was published 😂
❤ Te seguimos desde españa 🇪🇸🇪🇸🇪🇸
SO as a Christian there's a difference between someone praying for healing and praying for blessing. So when I say to my disabled friends Im praying for u I don't mean Im praying for u to not be disabled but for that the blessings from God continue to pour on ur life.
It’s ok sensible people that are not afraid of the dark understand that there is no Christian god
Thanks anyway
@@JeffDamaori-rh3ck So saying that people that belief in God aren't sensible? Funny cause I think science would disagree with u as both Einstein and Darwin believed in God. Darwin never denied God's existence what he denied was Biblical creation.
@@JeffDamaori-rh3ck😂 🎉
@@davidfitzpatrick6535he’s saying he hopes you get out of your cult one day
OMG EINSTEIN AND DARWIN wow lim off to the nearest church lol
Dang! Those goji berries are no joke! Lol
A great couple! Keep up the good work!
It was nice to meet you today ❤
Hey guys, great episode as always - just letting you know there are quite a lot of mistakes in the captions, would be great if you could review them :)
Ok, I just need to tell you guys that the automatic translation of subtitles to swedish keeps changing SMA to ASMR😅
Happy Pride Month. So much love out to you Shane and Hannah. You guys rock and never worry about the negative comments and always feel pride in who you are as I respect the heck out of you Shane. Thank you for your work you two. Peace. You are loved.
p.s. Hannah, your wedding ring is awesome. It shines so brightly. wow!
As an electric wheelchair user myself, when somebody says "Do you have a license for that." (too often) I just say, "Nope, I stole it." Also one time a couple of children asked me what happened to me and my then caregiver told them an elephant sat on me; the poor kids were agast and were like, "whoah omg!". I felt sorry for them going back to their parents and emphatically stating that they met some poor person in a wheelchair who had been sat on by an elephant! rofl As a disabled person sometimes you just have to laugh. 😂
You guys are amazing never see a couple more in love ❤❤ keep up you great work love from the UK 🇬🇧
Love you guys!!! 😊
Shane I love diagonal too! 33:30
I get similar. There was a lesbian couple got married in a city near me, my boss, who was the head of science in the school I taught at, asked me if I knew them. I just shook my head lol yeh I know every gay person in the UK, NOT! Lol
SMA pride 🎉month yay!
You guys didn’t post today, and now I’m panicking!! Y’all ok?!
I just found this out and thought that since you live in Minnesota, land of Minnesota Twins and the late Harmon Killebrew, you may be interested.
“Harmon’s later years were spent raising funds for charitable organizations. Harmon and Nita established the Harmon Killebrew Foundation to raise funds for other 501(c) 3’s in honor of his mother who reminded him frequently “we are here to help each other son!” Harmon’s foundation now has established the Harmon Killebrew Legacy Program to raise funds to build Miracle League Fields for physically disadvantaged children in Payette, ID, Phoenix, AZ, Minneapolis, MN and Washington D.C. as well as scholarship programs for Payette High School athletes.”