The Wonderful World of My Anxiety & Migraine with Aura (Kaleidoscope Vision)

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  • Опубліковано 3 лис 2024

КОМЕНТАРІ • 76

  • @lazygirl8877
    @lazygirl8877 5 років тому +15

    Man I felt this deep down inside my soul people don’t realize how hard the struggle really is and how tired you get from fighting everyday

  • @stephanieward6581
    @stephanieward6581 4 роки тому +11

    You're not alone. You may be an empath and feeling other people's energy. It's common for empath's to feel what you're feeling. I believe in you!!!

  • @SilverRocketStar
    @SilverRocketStar Рік тому +5

    I have the exact same problems i get palpitations then the ocular stuff. I have had GAD since I was 15 I am now 54. I think people don't understand that you also have to tolerate discrimination hatred and being looked down upon. Keep up the good work brother .

  • @morganpettigrew8967
    @morganpettigrew8967 3 роки тому +3

    Balling my eyes out watching this. This hits home so much. Months ago I had an accidental drug over dose and nearly lost my life, and now I’m scared of absolutely everything ranging from psychical things to mental things like me telling myself not to think some things cause something bad will happen. Have had So many doctors appointments every time ending in me being told I have anxiety, which before I only ever associated with being scared to do something for a few minutes. Now it’s all the time, everything you said in this video made so much sense I just started crying, I honestly admire you saying all this you don’t understand how much I loved this

  • @monaebreak561
    @monaebreak561 5 років тому +7

    At my worst I feared freaking out in my own home because I felt there would then be no safe space left on earth for me. It was a horrible time... I'm now on an SSRI and a PRN. Wish I had started meds much earlier, it's the one thing that has worked for me. Best of luck! Love following your journey to a better life!!! 🍀

  • @ponygirl9665
    @ponygirl9665 5 років тому +3

    Hello, so glad to see you made an updated video! I had just gotten into all your videos when you took a break. I think I've watched all yours, loved that last vacation! Your symptoms are so similar to mine.. the dizziness, visual weirdness. I, too am learning to not freak out about them. Thank you for being so real and honest :)

  • @sarahgrim4036
    @sarahgrim4036 4 роки тому +3

    Hi there I just saw this now. I have anxiety as well and used to get my worst attacks in the grocery store so I completely understand. I get migraine with aura as well, go figure right!? My best piece of advice is to not try so hard to fight the anxiety, welcome it. It's a part of you and the more you try and fight it the worse it will be. After a few months of this technique I was able to do alot more things and not even go into a full attack. I would shrug my shoulders and say things like, "oh hello, I see your back". Kind of joke with myself, it sounds cheesy yes but I'll tell you it took all the power away from the anxiety itself. It's part of who I am and I don't let it frighten me anymore. As far as having most anxiety in local places, this is because your mind has sort of stamped those places as something being wrong there. Kind of like how a smell quickly brings back a memory. The only way to fix that is to try and have new, good times at those local places. It's kind of like resetting that part of your brain. Go to the local places but go with someone, make it a short trip. Make it as enjoyable as possible and in time you will reset your brain and the attacks will diminish greatly. Hope this helps! Good luck to you!

  • @JonnyQ408
    @JonnyQ408 5 років тому +10

    Billy, since I’m fully recovered from Anxiety, agoraphobia, I haven’t had any panic attacks for over a year, I’m able to go out, I been working for almost a year now, you can beat anxiety by slowly down those negative thoughts that’s in your head, by doing slow those symptoms, and sensations that we have will slowly go away, first off don’t think about going somewhere like a shopping center, because you feel like you “have to” change the way you think from “I have to go to the shopping center “ to “I want to go to the shopping center “ better yet don’t think about it just go, I know easier said than done, but once I stop overthinking and stressing myself out those negative thoughts went away so did the symptoms, and Sensations, when I didn’t have anxiety, I never said to myself or out loud “I need to go the shopping center “ I’d just go, but once I started having anxiety, panic attacks along with being house bond, I kept trying to plan the best time, day to try leaving my house, by doing so I only feed myself more anxious thoughts

    • @katherinesway104
      @katherinesway104 5 років тому

      Jonny Q I also was housebound for 6 years. I really struggling with the idea of working. But I want to soo much. I’m not independent yet though like I can go into a store by my self with someone waiting in the car. But I haven’t been able to drive alone yet or anything like that.

    • @JonnyQ408
      @JonnyQ408 5 років тому

      Katherine’s Way It take time to fully recover, I wasn’t born with an Anxiety disorder it just happened out of nowhere over 3 years ago, I was I was house bond for over a year, where I couldn’t even leave my bedroom, but I had enough of symptoms, sensation, negative thoughts, and I slowly left my house for a walk even if I only walked from my house to Neighbors house, and a month later I walked to the corner of my block, and each time I did it I felt more panicky, but I kept going further away, and sure it had times where I actually ran back home, but there was time I walked further away from house even while I felt dizzy, etc and sure enough a year have last and I was able to drive once again, I even went to visit my aunt and uncle, my dad drove which was an hour away, sure I felt panicky but at the same time I was happy, and not depressed and from that day on I felt like my anxiety was slowly going away, my negative thoughts was gone, and slowly my sensations, symptoms were fading away, and one day I started looking for a job, and I got a temp to permanent job, and I been working there for almost a year know, so my advice to you and anyone else, don’t feed your negative thoughts by stressing yourself out, those thoughts feeds off you, once you stop caring about the negative thoughts they will leave your mind, and so will the symptoms and sensations

    • @katherinesway104
      @katherinesway104 5 років тому

      Jonny Q yes I’ve not been house bound for about 6 months I can go into shops and go about the city with someone. I’m not sure I was born with anxiety either.. but maybe as I had severe separation anxiety. So my goals atm are going out past city limits and being comfortable with the uncomfortable I have a channel on you tube as well just sharing the journey. But working outside the home and driving again I think are my biggest tasks. Thank you for responding.

    • @tadeuszmusic
      @tadeuszmusic 4 роки тому

      Please share your secretes of what you did in order to beat it. I don’t have agoraphobia as I am able to leave the house but I have extremely bad social anxiety. Please share your secrets Jonny!

    • @JonnyQ408
      @JonnyQ408 4 роки тому +1

      Antidote I never had social anxiety till I started have panic attacks, which lead me to being house bond, having depression, I over came my Anxiety by stop feeding into the fears, negative thoughts, since we’re talking about social anxiety, if you fear being around large crowds of people, talking to strangers in large groups, or even a small amount of people because you’ll panic, the first thing to do it’s talk to people that you see, but you don’t really know to well or talk to as much such as your Neighbors, maybe even to family members such as cousins that you don’t see or talk to often, that way you’ll feel build up some Confidence into talking, and being around people, you can even go to the small stores, restaurant order your food, etc just make some small talk, by doing so you’re teaching your brain that you no longer fear being around people, I remembered when I started getting really bad anxiety I couldn’t even talked on my phone, answered the door when someone knocked the door, I couldn’t even talk to my neighbor that I used to talk to when I didn’t have Anxiety, you just have to go out there and be around people sure you’ll feel the Anxiety, but once you stick with the anxious feelings by being around people, you’ll build up Confidences, and you’ll start noticing that you’re not feeling as anxious as you once were, and you’ll be free of your social anxiety

  • @briwells596
    @briwells596 5 років тому +2

    Billy, so great to see you back..miss the videos. Dont know if youve read the Dr Claire Weekes books where she talks about going on holiday, really reminded me of that with what you said. She said that people came to her and said when they were on holiday, they could go in shops etc and asked why..as you suspect her answer was you have no bad memories is those shops. She goes on to say that people can make terrific improvement whilst away, when back home they slip back..reason being so many memories of panic and seeing people we know whilst at home feeling that way. Makes sense. Just keep on keeping on, you are doing great :)

  • @tadeuszmusic
    @tadeuszmusic 4 роки тому +2

    Really struggling atm. Even just getting the train or supermarket is a struggle atm. I’m in a bad patch but I’m sure we will all get through it eventually! Thanks so much for videos man. Always really helpful too hear you’re story and I relate to a lot of what you are saying.

  • @lydiacodding9308
    @lydiacodding9308 7 місяців тому

    I just came across your video because I just had my first ocular migraine and it freaked me out. What you described is exactly what happened, and was followed by extreme vertigo. Anyway, my search parameters lead me to you. I feel exactly where you are coming from. I loath panic attacks and I would love to never ever get them again…but they sneak up on me and assault me at the very worst times. My job, what I do for a living, is VERY public. I have to interact with strangers daily, and I have to swallow my terror, fight my urge to run away and hide. I think to meet me, no one would know it, because I’ve developed a strong shell around me. Therapy is helping a lot too. Still, there are days when I simply just can’t cope, and I feel trapped and weak.

  • @matthewharshbarger3637
    @matthewharshbarger3637 4 роки тому +4

    Bro the kaleidoscope vision is nerve racking as heck man. I have the same anxiety disorder and the vision. That’s why what he’s this video. Bro good luck. Greetings from the US try micro dosing if you can get a hold of them over there.

  • @TheSavageGarage
    @TheSavageGarage 5 років тому +2

    Id genuinely love to see your exposure videos brought back mate. just you and the camera attempting to do stuff. Makes for great viewing and helps me alot!

  • @oliviad5496
    @oliviad5496 5 років тому +1

    Lovely to see you back !!!! I missed you and your video's ❤❤

  • @lauramakin834
    @lauramakin834 4 роки тому +1

    Lovely to see you Billy! Last week half of one of my fillings fell out and I started getting unusual symptoms such as aching all over. I've been reading about amalgam fillings and mercury in fish etc. and how it can cause Anxiety. Don't know if it's a load of bs but best to keep an open mind x

  • @jaynunnayobusiness
    @jaynunnayobusiness 5 років тому +3

    I really missed seeing you, Mister. Thanks for posting.

    • @anxietyunited
      @anxietyunited  5 років тому +1

      Thanks Jay, it's good to hear from you. Hope you're doing well.

  • @jaredt.4048
    @jaredt.4048 4 роки тому +3

    I get Kaleidoscope Vision migraines every couple months. They just started this year, 2020. The total crap year. Mine starts as a small blind spot, either side, the evolves into the kaleidoscope aura and eventually works its way out of my field of vision... then the migraine comes and lasts for 24 hours! It’s scary stuff.
    Have you had anymore since you made this video?

  • @tracystandish3420
    @tracystandish3420 5 років тому +3

    missed you, glad to see your back. This is such an awful thing we're all going through. It sucks!! I do want you to know I get the same thing going on with my eyes it stays about 20minutes. P.s I would love if you and Drew would do another video. 😛

  • @rololulu1
    @rololulu1 5 років тому +1

    Great to see you again ,missed the videos man

  • @willtheskills4113
    @willtheskills4113 2 роки тому

    your life is a blessing you get to overcome such a big challenge. Your on a journey god bless

  • @JasonTryingToHelp-w3p
    @JasonTryingToHelp-w3p 2 місяці тому

    THIS MAY HELP SOME PEOPLE
    I'm 54. April 2, 2023 I had my first aura (without headache). Since then I've had 4-5 episodes per month (41 in total); sometimes twice in one day. I had an MRI and a visit to an Ophthalmologist; everything was fine. On April 11, 2024 I had a very unusual episode- a scary one. The entire field of vision was moving left to right and back again- bouncing side to side. It lasted a few hours and then it resolved. It never reoccurred but it scared me. I wanted to see if there was anything I could do to stop the aura so I made some changes:
    I was taking a blood thinner (Xarelto 10mg) and multivitamins/supplements (one-a-day vitamin, fish oil, saw palmeto, vitamin D tablet- nothing strange)- taken on the same day. I decided to both space them out and separate them. I now take the blood thinner on Monday, Wednesday, Friday afternoon and Sunday morning. I take the vitamins Tuesday, Thursday and Saturday. I initiated this spacing on April 20. My last aura was on May 23. I haven't had an aura in 78 days and counting!
    I'm not sure if I was taking too many blood thinners, too many multivitamins, or it was the interaction between the two. I did read later that multivitamins, while being useless can also interact with medication. I no longer take that multivitamin tablet at all now.
    No one told me that auras could be caused by the interaction of medications/vitamins.
    I hope this helps some people!

  • @MsChazzy666
    @MsChazzy666 4 роки тому +1

    Hey Billy, glad to hear from you.
    Vertigo and anxiety as we both know are a tough one. Is it one or is it the other . Both trigger each other. As for traveling I 💯 get this! As u know u travel a lot and I have no issue going places however I won't get on a bus here however .. on holiday I went on a bus loads wtf haha . Well least we u know Ur not alone with that one. And the vision yes I have had that and I put it down to vertigo either caused by anxiety or just vertigo spell.
    This time of year I always find my vertigo worse don't know why. X

  • @barbarainc
    @barbarainc 5 років тому

    I had a good 2 months till I got kidney stones and felt vulnerable. So good to see you. Xoxo

  • @monaebreak561
    @monaebreak561 5 років тому +3

    Missed you so much!!! (Not trying to be creepy or anything! 😄)

  • @ninatrentham8908
    @ninatrentham8908 5 років тому

    So good to see you again Billy.
    You are definitely missed.
    Would you consider challenging yourself and
    going to the store? It sounds as if you really want to conquer the small local challenges. We’ll be there with you all the way!
    Best from Burbank California!

  • @ninatrentham8908
    @ninatrentham8908 4 роки тому

    Billy- Merry Christmas and I hope you are doing well. Looking forward to hearing from you again.

  • @sherifaafifi4154
    @sherifaafifi4154 4 роки тому +1

    Just do it. Travel Will help you to recover. U will be okay. Seating at home will make u thinking very much and it will causes mote anxiety.

  • @Christopher-sj2sc
    @Christopher-sj2sc 5 років тому +1

    Have you thought about going on a cruise from the UK? I know when I was on edge the fact I could walk outside on deck whenever I wanted, knowing there was a fully equipped medical facility on board and most importantly a bar where I could have a drink made it a much easier prospect for going away than flying!!!?!?

  • @Joshsmith-pk3cu
    @Joshsmith-pk3cu Місяць тому

    I get them all the time, sometimes three times a week

  • @nadiaheyns01
    @nadiaheyns01 Рік тому +1

    I just had this vision incident as well. I also suffer with bad anxiety. It was so weird. Also grew from small to large, and went away within like 5 minutes. I'd like to know what exactly it is, because I've never had migraines before. I do get tension headaches very often..... But it just really freaked me out.

  • @tadeuszmusic
    @tadeuszmusic 4 роки тому +1

    Btw just thought I’d say that I struggle to go to the supermarket also but I’m still able to fly! It’s deffo doable and I deffo force myself! It’s horrible but when u get there you feel such a sense of achievement. It will be uncomfortable and horrible to fly! But the only way is so give it a go I guess. I feel like I’m not really able to go to the airport but I do it anyway. That’s the best way I guess

  • @BuddhaofBlackpool
    @BuddhaofBlackpool 5 років тому +3

    Hi Billy, I've mentioned this a few times before. I am of the view that what you're suffering with is vestibular migraine (VM) or migraine associated vertigo (MAV) [which is the same thing]. You've just semi-confirmed this by revealing that you occasionally have ocular migraines, which are related to vestibular ones. My own videos on my channel talk a bit about MAV and its relation to anxiety; something that is often misdiagnosed. Also, those 'mini-spins' you talk about are very often potentially 24/7 available to sufferers. I am suggesting that if you changed what you ate and drank, your symptoms would possibly disappear. This is only speculation obviously, but your situation is so similar to mine and I spent 20 years with a misdiagnosis of anxiety, to later discover that it was MAV. Anyway, I'll leave it with you and won't comment on this again. I have a feeling that you don't want to hear this and are more comfortable in believing that it might 'just' be anxiety... of course, you may be right!

    • @danaconrad1734
      @danaconrad1734 Рік тому

      I've had the same. I stopped eating meat, eggs, and dairy and they've disappeared. I also seem to tend to get them during overcast days.

  • @barbarainc
    @barbarainc 5 років тому +1

    Awesome job!!!

  • @magicmegan4290
    @magicmegan4290 3 роки тому

    Maybe give yourself a timeline like, what age do you want to be when you go travel abroad? I know with anxiety and procrastination, it helps when there are deadlines to push us to finally take the steps.

  • @monaebreak561
    @monaebreak561 4 роки тому +1

    Hope you're doing good! We miss you!

  • @Cammobeatz
    @Cammobeatz 3 роки тому

    I can't stop having anxiety attacks the past few weeks...I don't have a safe space anymore.. ive recently dealt with 2 major losses in my life and its triggered my panic attacks... just now I woke up after panicking last night.. anxiety was high so I was about to take anxiety med then I seen the glitch in my vision letting me know I was about to have a vision aura🙁... having to take an ibuprofen for auras and im scared of taking Meds close together but that's another thing... so yea im currently getting over an aura and panic attack... ive gotten OVER my attacks and anxiety before for a long term time but now I'm back to square one... I just wish I would stop screaming for help because people just don't understand or really care to understand

  • @Geritopia
    @Geritopia 4 роки тому

    I've never heard the phrase "I would have been properly freaked out..." (regarding the migraine image). I guess it doesn't exist in American parlance. But I have been *properly* freaked out by a similar thing. Oh and you mentioned that you have a girlfriend... there must be gratitude for that!

  • @barbarainc
    @barbarainc 5 років тому

    I think it would be cool to repost the workshop series you did weekly, so I remember to watch it.

    • @barbarainc
      @barbarainc 5 років тому

      Like i get started and forget to go back

  • @Behindstage
    @Behindstage 4 роки тому

    I went on the eurotunnel in the summer,i was a little angsty as I had ear pressure due to allergy’s and they can make me feel dizzy,there is a little pressure on the train and it did make my ears pop (like a plane.I’d suck a sweet or have some earplugs) but i was fine, it was easy, you would enjoy it, I think it’s a great idea,I hope my comment has encouraged you to go.

  • @vancewhittall2810
    @vancewhittall2810 5 років тому +1

    Good to see you Billy, although you'd rather not be on video talking about anxiety again....................I'm here living in France with my anxiety...............kettles on if you can make it this far !?

  • @oliviacarvalho6391
    @oliviacarvalho6391 4 роки тому

    I have Kaleidoscope visoon when o look into a wall or the sky. ALL the time. I havent migraine

  • @tonipittoni5527
    @tonipittoni5527 Рік тому

    Hi I feel for you I was in the same position the only thing it helped me was medication .

  • @mixxndj
    @mixxndj 4 роки тому +1

    I had one today.. aura migraine.. dude, you sound so much like me... Can I ask you.. do you drink any alcohol whatsoever? I was drinking a little wine everyday and it messed with me big time! Not just the next day but for months .. then I’d drink wine to feel better but not realizing it was contributing to the long term anxiety feeling and problem you are describing!

    • @anxietyunited
      @anxietyunited  4 роки тому

      Hey Mikemix, I dont drink alcohol at all. Haven't for years now, I used to dislike the way it made me feel.

    • @mixxndj
      @mixxndj 4 роки тому

      Anxiety United good! Ok another one for you.. what about lectins? Do you eat a lot of plant based foods? Beans, tomatoes, cucumbers? Peppers?? I read plant paradox by dr. Gundry and it helped clear up my mind by reducing lectins... I couldn’t freaking believe it..

  • @brookebaldwin8513
    @brookebaldwin8513 4 роки тому

    i think we are anxiety twins. I have those damn auras and I also can do anything outside of my save zone and I cant do the same stuff in my own town. its crazy... also do you have any videos on GAD? I think that's my main issue

  • @tadeuszmusic
    @tadeuszmusic 4 роки тому

    Just seeing you out doing your regular graded exposure is great to see! So do more of that I guess. Also there’s not loads of concrete research on it. But CBD oil is meant to be great for anxiety! So maybe give it a go.

  • @mixytampa812
    @mixytampa812 Рік тому

    What meds do you take I’m on celexa and it’s amazing stopped everything but I still get the auras

    • @ponyclub3198
      @ponyclub3198 Рік тому

      My neurologist advised me on taking daily supplements of Magnesium citrate and it worked for me

  • @PaulKelsey-s2o
    @PaulKelsey-s2o 6 місяців тому

    It's nuts ain't it I can't go in one particular aldi in Sheffield but in others I can do it without as much spinning frigging hate it cheers mate you are a star 👍

  • @Jahfriend
    @Jahfriend 10 місяців тому

    ❤ to you mate had it nearly forty years had the migraine auras had it loads off times the way you describe it is spot on first time I had one went A and E that was 20 odd years ago had some recently you have to keep going its no picnic all the stuff u have I get it daily makes life so hard. I made lots off financial mistakes because anxiety held me back and lost loads its a beast i often ruminate what i could off been but i just keep going thats all you can do here if you want to chat love fishing to 👍 if you send me email address would be good to chat

  • @uniquecornn2783
    @uniquecornn2783 5 років тому

    First... and anxious.

  • @barbarainc
    @barbarainc 5 років тому

    Have you considered working out

    • @anxietyunited
      @anxietyunited  5 років тому +1

      My gf is insisting that I need to work out (I think it's because she cares, not because I'm overweight) lol. I think I need to give it a shot.

    • @barbarainc
      @barbarainc 5 років тому

      @@anxietyunited i need to start too. Even just a 20 min walk can help from what I hear. Hugs.

  • @sanchez4500
    @sanchez4500 5 років тому

    So you can go fishing for hours....But at the market you freak out?....Mybe your self sabotaging your self.....I think you can accomplish this with practice....

  • @DonHalli
    @DonHalli 5 місяців тому

    Occular migraine. I have them all the time. Zigzags, poor vision etc. Lasts 20 to 30 minutes. Im going through a lot of crazy symptoms that are related to these kind of symptoms. Good luck.