Hello, thank you so much for your video! I have autism and been recently diagnosed with Hypermobility. It blew my mind when I found out how commonly this affects people on the spectrum and this answered a lot of questions I had about myself. I’m currently going through physiotherapy and getting stronger day by day 💪 Please take care of yourself and stay awesome 😊👍
hey sydney, i want to say that just because your hypermobility may be caused by muscle weakness (entirely or partially) doesnt mean that it isnt still hypermobility. there are many causes of hypermobility other than ehlers danlos syndromes. hypermobility means that something moves beyond a normal range of motion and the cause isnt relevant to just identifying it as hypermobility. the cause or causes is important but it is still hypermobility.
Thank you very much for the papers and for the video. After more than 20 years of gaslighting from doctors I am thirsty for any validation I can get. Also for EDS I strongly recommend youtuber Izzy Kornblau she is my favourite. She is now studying college (or uni?) so she doesn't have as much time for YT but she has loads of videos on the topic from the past. She also speaks out about medical gaslighting and patient advocacy.
I’ve been looking into this connection a bit on my own and it was cool to see you’ve done a video on it!! Haven’t watched yet, but saw another comment. I also have muscle weakness-caused hypermobility!!
I have hEDS and have an autistic son. Then I found out recently that I’m also autistic. I’m also bisexual AFAB but have many masculine tendencies. When I suggested hEDS to my NP, a light bulb went on for her. She exclaimed “yes, that explains everything!”
Absolutely you can! In my experience, if something is harder because of a disability but I love to do it, I will find a way to make it accessible. There are also finger braces that look like really cool ring things that might help with joint support if you need it!
If you have the symptoms and comorbidities of EDS what is it that is keeping you from that diagnosis? It is common to dislocate less when you're stronger for sure. Just curious if you've been ruled out by an EDS expert or not..
Someone in my immediate family has been ruled out by a specialist and, frankly, since there's no cure, it doesn't feel particularly worth going through the trouble to get a diagnosis cause either way it doesn't change how I live my life :)
Hello, friend? Do you know about the Cusack Protocol for people with hypermobility and/or EDS? It's a series of over-the-counter supplements that can really help with our symptoms. You may find it useful. I have -- I've been on it for about 5 years now, and my body is so much less of a PROBLEM. Fellow autistic person, queer person, EDS person, and mental health disorder person here. Three cheers to you, fellow human!
Heck yeah! Duly noted!! As far as we can tell, it's ?not EDS? So a lot of the things that help EDS don't do squat for me. Major help is 1) exercise and 2) not eating foods I'm allergic to. Which, logically, easy? But in reality, running around daily and not eating chicken fingers and mac & cheeses is truly impossible so we continue to enjoy the hypermobility adventures lol But anyway cheers to you too my dude!
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Hello, thank you so much for your video! I have autism and been recently diagnosed with Hypermobility. It blew my mind when I found out how commonly this affects people on the spectrum and this answered a lot of questions I had about myself. I’m currently going through physiotherapy and getting stronger day by day 💪 Please take care of yourself and stay awesome 😊👍
hey sydney, i want to say that just because your hypermobility may be caused by muscle weakness (entirely or partially) doesnt mean that it isnt still hypermobility. there are many causes of hypermobility other than ehlers danlos syndromes. hypermobility means that something moves beyond a normal range of motion and the cause isnt relevant to just identifying it as hypermobility. the cause or causes is important but it is still hypermobility.
That weirdly means a lot to me? Thank you :)
Just so everyone knows, the articles listed are no longer available but the science ones are. Thanks for the information!
Thank you very much for the papers and for the video. After more than 20 years of gaslighting from doctors I am thirsty for any validation I can get.
Also for EDS I strongly recommend youtuber Izzy Kornblau she is my favourite. She is now studying college (or uni?) so she doesn't have as much time for YT but she has loads of videos on the topic from the past. She also speaks out about medical gaslighting and patient advocacy.
I’ve been looking into this connection a bit on my own and it was cool to see you’ve done a video on it!! Haven’t watched yet, but saw another comment. I also have muscle weakness-caused hypermobility!!
I have hEDS and have an autistic son. Then I found out recently that I’m also autistic. I’m also bisexual AFAB but have many masculine tendencies. When I suggested hEDS to my NP, a light bulb went on for her. She exclaimed “yes, that explains everything!”
I’m autistic, have ulcerative colitis, and have been told many times that I’m double jointed. In fact, I was made fun of for it as a child.
you have a great sense of humor and are fun to listen to :)
You are so talented! I ❤ it!
When I have hEDS in my fingers can I still do art?! I have no other purpose than doing art and idk how to live without it
Absolutely you can! In my experience, if something is harder because of a disability but I love to do it, I will find a way to make it accessible. There are also finger braces that look like really cool ring things that might help with joint support if you need it!
If you have the symptoms and comorbidities of EDS what is it that is keeping you from that diagnosis? It is common to dislocate less when you're stronger for sure. Just curious if you've been ruled out by an EDS expert or not..
Someone in my immediate family has been ruled out by a specialist and, frankly, since there's no cure, it doesn't feel particularly worth going through the trouble to get a diagnosis cause either way it doesn't change how I live my life :)
Hello, friend? Do you know about the Cusack Protocol for people with hypermobility and/or EDS? It's a series of over-the-counter supplements that can really help with our symptoms. You may find it useful. I have -- I've been on it for about 5 years now, and my body is so much less of a PROBLEM. Fellow autistic person, queer person, EDS person, and mental health disorder person here. Three cheers to you, fellow human!
Heck yeah! Duly noted!! As far as we can tell, it's ?not EDS? So a lot of the things that help EDS don't do squat for me. Major help is 1) exercise and 2) not eating foods I'm allergic to. Which, logically, easy? But in reality, running around daily and not eating chicken fingers and mac & cheeses is truly impossible so we continue to enjoy the hypermobility adventures lol
But anyway cheers to you too my dude!