Woman Gets Colon Removed After Crohn’s Disease Worsens | Today
Вставка
- Опубліковано 18 тра 2019
- First doctors thought Byrd Vihlen had a food allergy, then the diagnosis
changed to irritable bowl syndrome. As her symptoms became worse and worse, she was finally diagnosed with inflammatory bowel disease.
» Subscribe to TODAY: on.today.com/SubscribeToTODAY
» Watch the latest from TODAY: bit.ly/LatestTODAY
About: TODAY brings you the latest headlines and expert tips on money, health and parenting. We wake up every morning to give you and your family all you need to start your day. If it matters to you, it matters to us. We are in the people business. Subscribe to our channel for exclusive TODAY archival footage & our original web series.
Connect with TODAY Online!
Visit TODAY's Website: on.today.com/ReadTODAY
Find TODAY on Facebook: on.today.com/LikeTODAY
Follow TODAY on Twitter: on.today.com/FollowTODAY
Follow TODAY on Google+: on.today.com/PlusTODAY
Follow TODAY on Instagram: on.today.com/InstaTODAY
Follow TODAY on Pinterest: on.today.com/PinTODAY
#WalkInMyShoes #CrohnsDisease #IBD #TodayShow
Woman Gets Colon Removed After Crohn’s Disease Worsens | Today crohn's disease
I bow my head to this husband. Some selfish husbands would have left her. The husband is truly a good and kind human being.
My chap at the time left me !!!
Her husbands words are so needed. People do the best they can.
When I had an ileostomy because I perforated after my first surgery, I was shocked how people I dated didn't care about it at all. Thankfully I don't have it anymore, but the day that I need to get one again. I'm ready
@@Gaetano.94 wish u all the best
So happy she has her husband and child.
What a good man a real man we need more of these men . Your parents taught you well to be kind and compassionate
lĺĺĺlĺĺĺĺlllĺlĺ
My Mum had Bowel cancer when she was in her early thirties. She had an iliostomy. She is now in her Eighties.
I comend you and your husband for having the insight to show others how this has effected your life. Thanks.
What perfect words, “just because someone doesn’t meet your expectations, doesn’t mean they are any less deserving of respect.” What a blessing these two are to each other.
I love your story. I have chronic
Crohns Disease. I have had this ever since I was 15 and so many people think that it's just a "stomach bug" and you'll get over it but they just aren't well educated about it. Even my job at times just couldn't understand the severity of this that there are days where it's a really big struggle for me to get out of bed. I found this inspiring because more people should learn more about this and know we are trying to live a long and healthy life just like everyone else. Thank you for this. 😊💙😌
I have this disease as well. Some days are worse than others. my job is trying to fire me bc i call out so much from this. I have an FMLA form from my doc. And havent been to work in 3 weeks. it makes it very difficult bc my husband is physically disabled as well. he has metal rods and plates in his back and disability doesnt pay him enough to pay the bills its a very scary time for us right now. but it makes it a little less scary knowing im not alone fighting this disease.
@@drewbombs7059 I am sorry it's been tough for you both. I only hope it gets better. I agree I wish that employers did more research on this type of disease because we never know on a daily basis. Sending hugs your way!
I have an ileostomy bag from Crohn's as well. Luckily my jobs were the ones who gave Soc.Sec. detailed info. on just how much of my days were spent on the floor curled up in pain, and often vomiting. (Pre ostomy days) I qualified for disability and I'm greatful for my jobs that helped with such an embarrassing disease. I have several other issues that continue to allow qualification but at the time of my application the Crohn's was severe enough, and attempting everyday living tasks were almost impossible. I figured I'd share this just in case you or others wonder how your job can influence receiving disability and hopeful understand the illness and all of it's hardships. Take care!
@@asherrogers2687 I hope all is well with you now with this. Sending hugs your way. I also am a type one diabetic on top of having crohns disease which makes everything just a bit more rough. If you don't mind me asking, how long have you had crohns? I'm 22 and I've had crohns since I was 16 and I am a "new" type 1 diabetic however they think I've always had this. I haven't been in remission at all since having crohns disease and it's been definitely frustrating to deal with at times but it's so nice go see others who have this disease as well. I think it's good to know about the job disability thing. However, I have thought of being on disability for this but I don't really want to be on it just because I do enjoy working and such but it's also just hard somedays. Here to talk if you need!
The problem of Crohn's is the blood. I treated it through the blood. I took herbs from us from Egypt. I bought it. It was called a cholesterol solvent and a liver fat solvent. I was cured of Crohn's. It simply means the colon is not the actual problem. The whole story is blood. recover #
So glad her husband stuck by her thru her illness. Support is very important. God ble
God bless both of them!
That is one good & honorable man. We should all be so lucky to meet someone like him.
My Mother has battled Crohn’s disease for 45 years. It has completely ruled her life; couldn’t work, can’t go too far from home, even hindering her and my Father’s retirement dreams of traveling. I have seen first hand the horrors of this disease and I commend you for coming forward with your story. My Mom feels the same way you did about getting an ileostomy...no way, no-how. I’m going to share this story with her so maybe she can finally understand there is hope for a better life. Thank you and God bless.
😐
What an astonishingly open couple! I'm so glad to know more; it will make me more empathetic and understanding when I meet someone with this issue. God bless this couple!
Gaye Dodge Agreed!!! ❤️
Thank you for telling your story.
Sadly chronic conditions are written off by even many health professionals as people seeking attention or hysterical woman syndrome. So glad she has a partner who was steadfast, and Drs. that kept on top of her condition as it yoyo'ed up and down.
Yep, this is what one of the doctors told my mom: "You are hysterical and your child is spoiled." It turned out that I had celiac disease, which I was only diagnosed with (by a different doctor) when I was close to dying. Another comment that really annoyed me was a supervisor commenting on my need to eat gluten free: "Back in the day, people just put up with it and ate those foods." Yeah, and then they sometimes simply died. Even though I almost died, I still feel like things could be much worse for me because I don't need medication or surgery, but ANY chronic condition should be treated seriously, and more research needs to go into actually curing them, in addition to the government using funding to educate the public.
Lmfao “hysterical woman syndrome.” Was looking for the insane SjayW comment that spews fabricated victimization narratives and nonsense myths of sexism. Thanks for the chuckle.
@@crypastesomemore8348 Lmao go study and stop embarrassing yourself, pedo 😂🚩...
I was diagnosed with UC at the age of 12, it came out to being Crohn's. I just got out of the hospital for a fistula and now need surgery. I am now 41. Many people don't understand the condition and severity of this condition. Someone may look ok from the outside, but the battle is within. I am leaving positive vibes to those living with UC/Crohn's. Keep up the fight. Don't allow it to win. Take care. I love you all.
Her husband explained so well. We are grateful for him....we who are ill....his standing up for us 💖
What a great couple, what a good husband, friend...you are brave and you are amazing.
I don’t have this but I do have chronic illness and it is so surreal even after all these years. It’s also exhausting
God bless you. You’re such an inspiring couple. 🕊🙏🏻
Vee Beth Herrera i have Chron and as you said it is exhausting, but it has affected my eyesight, even though both eyes have been operated, it has dimisión and have to use cortisona drops because Chron so cause Uveitis
Marisa Boyance , 🙏🌹
Eat black seed
And like her condition I too have an invisible illness. Just because a person looks normal and healthy on the outside doesn’t mean that are also healthy on the inside. It’s hard to look well and be chronic!
Becca Breen , 🙏🌹
Where can I find a man like him?? 😭😭 !! Thank you so much for sharing something so personal with us, your an inspiration to many! God bless x
I commend you for coming forward with your story. I have a much better understanding of what it is you deal with on a daily basis. God bless you.
Am a Retired RN who had Wound Care Certification and worked with patients & family members who were new to the ostomy & bag concept. When Hollister's First Start program sent out samples & a black bag for supplies, a curved bladed scissor was included. I found it much easier to cut the opening in the "cut to fit" barriers; was a much smoother cut line in the product. I since found them on a medical instrument site, and ordered 3 pair, to give to patients as needed. I believe, when teaching patients to change their bags & barriers, it was that the barrier was to be changed every 3-4 days (thus 2x/ week) and the bags 2-3 x/ week. Health insurance only covered a specific number of bags & barriers (also, in the " old das" known as wafers). I'd instructed patients/family to be certain to pay for a box of each for "extra". Sometimes the "covered" items from the supply store were delayed in the deliveries. You have a two- piece set up. I saw also that the bag is cloth covered on 2 sides; a frequent preference by patients. There are shorter, once piece styles available for when you go swimming, FYI. Your ostomy is " beautiful "... I know, just a nurse's perspective.
ENJOY YOUR BEAUTIFUL DAUGHTER & HUSBAND & this next chapter in your life!
No them poop bags are gross
Beautiful story! My nephew has struggled w/Crohn's for the last decade. It breaks my heart that he or anyone has to struggle with this condition.
Kelly o My daughter was born with Crohn’s disease. She is now 31 and has had a miserable life
:( the husband's speech at the end is really truthful and beautiful. Good luck to both of them!
I had a temporary colostomy bag, myself due to severe constipation and diverticulosis and I had part of my colon removed, so I commend u for coming forward with your story and you have a beautiful husband and baby. God Bless you! 💜
Wow
I didn't know colostomy bags could be temporary. That's good to know.
@@jed52 Yeah, I only had it for about 4.5 months. But, what a difference it made .
Did it help with the constipation?? I have severe idiopathic constipation and have tried all the top drugs on the market with no success. I almost want an ileostomy so I don’t have to worry about it anymore. I have to do enemas every other day for anything to come out. Very curious to know if it helped.
@@kathynicklas9845 Yes it helped a lot, I felt much better when I had it.. it’s worth it, even on a temporary basis.
I had an ileostomy 43 years ago. Ulcerative colitis. The surgery was THE best decision I have ever made. It gets easier! Enjoy the baby!
Are you ok now?
Prayers your way! 🙏🏼
You are such a strong person and having the support from an amazing husband and baby by your side. This is real love!! 💙💜 God bless you🙏🏼 Keep pushing through them waves that come your way. 💪🏼
Dude you are so lucky to have her as your wife. May you both live a long and happy life
What a beautiful family, even through the storm, they hold onto the light of love. May God bless and keep them in his loving hands! 💝💝
My mother had a colostomy bag following her colon cancer surgery, I would help her with it. It could be very challenging at times. God bless
the two of you and your beautiful baby.
My mum had colon cancer too and had the bag 4 moths
Nicely done video, frankly sharing & explaining your specific details. Well done, putting the medical terms/words in layman's terms. Husband's support & your outlook are pretty special! Great job!
Very profound insight and conclusions.
Thank you for sharing your story and teaching us about this disease.
God bless you and your family.
I think you are one of the most beautiful woman I have ever seen. Your daughter is so lucky to have a brave strong mother to mentor her. 💕💐
Chronic pain awareness!!!
This beautiful couple is what a study in courage. And to have a baby, too! Byrd is an amazing woman who has chose to LIVE her life, and she is an example to all of us who struggle with life's difficult challenges. She is showing that moving forward in trust, both of herself, her husband, and her doctors, is the healthies way to live her life. Byrd is a marvel!
You're a brave lady. I'm glad you have Hope, and support, you believe in, may you continue to believe in your contentment.
I have a chronic autoimmune disease too and I related to every word you said! People think you'll just get better the next day and it's definitely not that simple. Bless you both and thank you for sharing and being a voice for so many people who have serious illnesses.
I had a colostomy for four years. It was much easier using disposable bags vs. the ones you emptied and reused. Have you ever tried them? Congratulations on your baby. God bless you and your family.
I'm so proud of you girl! Thanks for sharing your story!
A friend of mine had to have this done several years ago. Rough thing to go through. Chronic illness
I'm sorry that you've had to go through so much at such a young age. Thank you for being so brave to share.
My brother lives with this terrible disease. I commend this beautiful couple. May they be together many decades to come.
In this day and age: you are very courageous. Much love to you and your family.
Thank you for sharing and educating us all - you are both lucky to have each other and Penelope is equally lucky 🍀 ❤️
I have UC. I’m so grateful and appreciative that you and your husband were so open. Thank you for bringing awareness.
Penelope is one beautiful and lucky baby for having such amazing parents.
God bless!
Lexi, you are strong, you are beautiful and most importantly -you are loved. Blessings to you. 💙
Girl I totally applaud you. My story was I was diagnosed with ulcerative colitis when I was 9 years old and about 12 years ago I went through my colon removal and take down it was the best decision I ever made because of the time I was very sick I honestly couldn't leave my house unless it was in a car and I couldn't work I told my health was to a good stable level. Because of other health problems I myself cannot have children but I cheer every single time I see someone with my condition have a child and Penelope is absolutely adorable. Much love to you and your family.
Sending you neverending prayers and love. You are so incredibly brave, I admire your strength. Bless you and your beautiful family.
Wow .. this is so sad. I can only imagine how she feels mentally and physically.. definitely praying for you 🥰❤️
Thank you got the insights into this struggle - both for the individual and the couple.
Such an important story to share! Thanks for being brave enough to share it.
Thank you so much for coming forward and telling your story. I was diagnosed with UC in 2012 and it’s been a tough road. We got miraculously pregnant and are expecting at the end of July. I was hospitalized for part of my second trimester. Prayers for you, your husband, and your sweet baby!
Crohn's Disease and ulcerative colitis are NOT the same thing! I had my colon removed in 1989 from UC. I have a 15 year old daughter! I was blessed with an amazing doctor.
Meg Haesloop - you are correct, but this lovely lady didn’t say they were the same.
Crohn's is much more severe but they are both autoimmune
What a beautiful family. Thank you for sharing your story. ❤
Much peace, love and blessings for you and family 🦋🌻
poor woman , lets hope she will be okay ❤️
Blessings to you!! I wore a colostomy bag for 4 months and they were able to reverse me. I know what you have gone through.
Marty Summers /as a human being l assure you l understand that you suffered then you as you stated were reversed ,you know how you feel .You don't know how she feels . Do you know how my friend that died felt also . I don't wish too be rude we all have our road to travel or cross to burden us down on our tourney through life . Yes you know how you felt at the time and now .
@@danieljonesjones8047 Well if you have never worn a bag yourself your comments are irrelevant. You see everyone is the Monday morning quarterback these days. I almost died and had 9 inches of my colon removed. Yes, I am grateful I was reversed but by no means ever ashamed that I had a colostomy bag. So if you have never worn one, you have no clue what it is like.
Oh mine was only fire you win !
Your courage gives me courage. I have colon issues on a daily basis. I can't enjoy the food I loved and used to eat but have gladly given the food because of the pain. I would rather have the surgery and bag than the pain daily.
I'm so happy for you and your baby and the special man you married in sickness and in health.
Dear Loretta: I am rooting for you! I know you must feel up and down with your issues. YOU are very brave for what you go through, and with YOUR attitude. You are cared about. God Bless You!!!
Sunny All Day THANK YOU DEAR ONE.
Find a true colon specialist, many dr’s do colonoscopy and surgery, but few specialists out there. May make all the difference for you
Go to alba weinman on youtube u can be healthy go see her with a open mind i didnt want to believe but its true check her out
I was just recently hospitalized and was diagnosed with severe Crohn's disease and I was doing well, taking my steriods and doing my every-3-weeks infusions when it got really bad again (this week), went in for my infusion yesterday and was almost sent to the ER for fluids and stuff but I was able to stay in the infusion ward and get what I needed there. I'm having to be monitored at home rn in case I have to go back into the hospital. This disease is really horrible and scary and this video gives me hope. 💕
Thank you for your honesty and compassion.
I have a good friend who had her first operation at age 17. She is now 65! Her life has almost trailed the disease and the changes
Thank you for sharing your story.
You are very blessed!
Oh I pray for you and your family . I have IBS for 20 years , I do my best . Ups and downs 💕💕💕
Jeanne Hart have you looked into low dose naltrexone?
I wish you all the best!
I’m excited to be going to a LDN conference next weekend, the 2nd annual one.
I’m going due to my young kiddos GI issues... was an RN & now I’m going into functional medicine, as I don’t see conventional medicine having enough answers and insufficient help.
Well done! What a lovely couple and family. You can tell they deeply love one another.
Great couple! She's so inspiring and her husband is a keeper.
You are such a strong person, your husband is amazing too I have a colostomy too, I find it hard to show others but you have done an amazing thing to show others,
What a great family!! Hope she continues to improve!!!
Thank you for sharing your story. Congratulations on your beautiful baby!!
Blessings and best wishes.
Not only do I have Crohn’s disease myself, but I’m also autistic (I have Asperger’s syndrome, to be exact), and I have ADD (attention deficit disorder), and bad anxiety. I was diagnosed with Crohn’s disease in February 2020, just a few months before my 19th birthday, and my gastroenterologist said that there would’ve been the possibility of me having part of my colon taken out and replaced with a colostomy bag. I’m glad my doctor gave me the decision to see how I was feeling after being diagnosed and if it was getting worse to call him immediately.
What a beautiful story of courage and love.
🦁💕
What a precious couple! I am so sorry for your pain and grief; I admire you both tremendously. Brave and beautiful souls! Thank you for sharing your story with the world. You are an inspitation. I am sending love, light and healing to you!
What a beautiful story of a strong, courageous woman and a loving couple. Thank you for sharing to raise awareness and remind people that they should always lead with empathy. Penelope is beautiful.
He is such a warm person.
Thank you guys for sharing your story with us. Praying for you both.
God Bless Them Both!!!
Beautiful couple.
Gorgeous baby!
Congratulations!
My goodness , I just love you all! Thank you for sharing.
I was case #100+ I am your long range study. I have had my pouch for over 30 years and it still looking and working great. If I had to go back to an ileostomy I would. I won a legs contest, went swimming, and met someone new all while I had the ostomy.
This was a good video. I appreciate this couple sharing their story. I know someone with Crohn’s disease and I had no idea of what she really deals with daily until I watched this video. Btw, what a beautiful 👶 baby!
Your story is important. My 16 year is fighting Crohns really hard since several years this minute. This disease can be really brutal. Hope you keep decently healthy.
I am so touched by their message. A truly beautiful couple.
THIS IS AN AMAZING MAN, HUSBAND, FATHER, SON. HE IS KEEPING HIS VOWS
Her husband is a truly wonderful person and his words are powerful
God bless you two and your beautiful baby.
Thank you for being so brave to share 💜
Your so strong. What a amazing story
Thank you so much for sharing your story. 💕
My Father just had major surgeries and major back to back critical life threatening events due to blood loss from a partial small intestine removal. He has been in remission from Colon Cancer for over 15 years but now has an Ileostomy bag and still cannot eat solid foods and may never be able to again. We are grateful for his survival but it is so hard accepting what has happened.
I too believe that there is nothing to be ashamed of and the stigma is very difficult to rise above.
I am in Awe of his video and just want to say Thank You. Thank you to this couple for being vulnerable and honest about these issues and thank you for opening up your struggles to the world. I wish this beautiful family many blessings.
Finally, thank you for allowing me to cry with a smile and hope in my heart and know that my Dad will live a normal life again one day ❤️
I too suffer from crohns disease and have had an ileostomy for 15 years... It has given me back my freedom to actually eat normally and travel without needing to always be near a bathroom..
I tried different crohns meds and at one time had a pharmacy similar to yours... My crohns is now managed by cannabis, I haven't needed the other meds for 4 years and am much healthier and happier. Best wishes for you and your beautiful family! Thank you for sharing your story😊
Wow ........... really amazing. Thank you ever so much, for sharing this with us.
Thank you for your courage to speak about Crohns. I've struggled with it for over 30 years. The tests, meds and appointments seem almost endless. By bringing awareness to this disease you make it easier for others to understand what it's like to live with a chronic illness. May God bless you and your beautiful family.❤ I'm wishing you all the best with your journey of motherhood.
Thank you both for sharing
"You're not going to get better tomorrow". When she said that, a cold chill ran thru me. It brought home to me her reality. Thank you for sharing your braveness and story with me. You are quite the woman.
Congratulations on the safe arrival of your baby girl. I too had UC and now crohns. Started 29 years ago and diagnosed 27 years now. I have been lucky to have avoided surgery but one of my lowest points was learning that my son too has crohns. Great film that shares a lot of good points. I too have a supportive husband. I am holding out for a cure and prevention of others getting this disease x
Thank you for sharing your story. My 26 year old daughter was recently diagnosed with severe Crohn’s disease. She is dealing with the impact of her disease on her life. It is helpful to hear others stories of their journey with Crohn’s. Do you have any advice for her?
Wow.. I was unaware of such a chronic disease.. Im so proud of you for bringing this to light... You will help alot of people with this. Thamk you.
A lot*
My son has crohns disease and he has suffered. I am happy you shared your story to bring awareness to this disease. Thank you
Thank you for sharing. I hope you continue to have joy in your life.
What a great family. Strength and love to all of you. Thanks for sharing. God bless🙏❤️
Thanks for sharing and the lesson 🙏🌹
shes so lucky she got quickly diagnosed, it took my mother over ten years to get diagnosed and for a doctor to listen to her. and now me, im in the works of being diagnosed after 6 years and so many doctors ignoring me.