How I Discovered I had Colorectal Cancer | Amy's 3b Colon Cancer Story | The Patient Story

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  • Опубліковано 16 лис 2024

КОМЕНТАРІ • 461

  • @beatpirate8
    @beatpirate8 Рік тому +151

    I was 21 when I had cancer. I had surgery and chemo and so far I’m still alive and kicking. Thank you for sharing your story!

  • @DQ_Mine
    @DQ_Mine Рік тому +144

    Good for you for speaking up. My step-brother died of colon cancer at 32. He suffered for years, but was too embarrassed to tell anyone, even a doctor. They found his journal hidden.

    • @elmidouihasnae7591
      @elmidouihasnae7591 Рік тому +14

      Freaking society, same for my dad

    • @amyhenningsgard8618
      @amyhenningsgard8618 Рік тому +13

      That’s so sad. I’m so sorry for your loss.🥲🌹

    • @tequilabumbum4373
      @tequilabumbum4373 Рік тому +9

      Thats terrible :// im so sorry he felt like he couldnt speak about it

    • @ShellysLivingLife
      @ShellysLivingLife Рік тому +9

      I am so sorry for your loss and that he went through his battle alone because of embarrassment-I have felt the same way just embarrassed to talk about symptoms s Today I went to a GI and have a colonoscopy scheduled but it took a lot to talk about it and be seen

    • @samanthamorena3585
      @samanthamorena3585 11 місяців тому +5

      I almost died when I was 17 & 19 for the same reason. Liver, kidney and heart failure etc for the same reason. Especially that young and 20 years ago you didn't ask, talk. It turned out to be Crohn's. I'm sorry he felt so alone, I was there. Sending you love light and peace. ❤❤

  • @deborah3686
    @deborah3686 Рік тому +251

    I went to my doctor for rectal bleeding and pain. She told me it wss just hemmoroids and said I could not get a colonoscopy until I turned 50. After a year of complaining, I finally got my colonoscopy. May 2022 is when I got the news of my colon cancer. I spent most of 2022 in treatment. Chemotherapy, radiation, and so many trips to Mayo in Rochester, MN. I'm now in recovery. Thank you for sharing these stories. It's good to know I'm not alone.

    • @joycenesselhauf1220
      @joycenesselhauf1220 Рік тому +17

      I’m so happy to hear you’re doing better! My prayers are w you!!! You can get a colonoscopy any age you want to! How dare she say 50 is your time line.

    • @JaneDoe-xn3ct
      @JaneDoe-xn3ct Рік тому +25

      hopefully you sued your doctor

    • @crocadoodle7101
      @crocadoodle7101 Рік тому +22

      There is no specific age when it comes to symptoms such as rectal bleeding. Shame on that doctor. Wishing you good health.

    • @niellalien
      @niellalien Рік тому +10

      I'm glad you're doing better. That's so insane, being told you're too young to get tested for something!

    • @realself9599
      @realself9599 Рік тому +5

      stay cancer free...prayers

  • @rbk7876
    @rbk7876 Рік тому +95

    Lost my spouse to colorectal cancer at age 48, she did not catch it early, married 17 years, I'm a percussionist in a classic rock band, met her at a gig, thank you for helping others and I'm praying for you and your family, 🙏🙏, be strong.

  • @tamarafaurot
    @tamarafaurot Рік тому +54

    I was 64 and had never had a colonoscopy. Tsk tsk. I was tired. Anemic. And bleeding that I ignored for at least a year. At first, blood when I wiped. Then blood all the time in my underwear. Then I was passing blood clots. Then the pain that finally sent me to the ER. I got a CT scan and the sweet Dr made a colonoscopy appointment for me, put his hand on my shoulder and said, don’t miss it. And I didn’t. A couple of weeks later I left the hospital without that 2a egg sized tumor and 12” of large intestine. Had an ileostomy for two months and have lived to tell the tale. Love to you girl.

    • @Christina-xu3yb
      @Christina-xu3yb 9 місяців тому

      Glad to hear your story! Praying you continue to be cancer free! Did the CT Scan by chance see a tumor or anything suspicious that had the ER doctor order a colonoscopy?

  • @jame2870
    @jame2870 Рік тому +131

    I'm 22 and getting my first colonoscopy. It feels awful when your family doctor waves your concern over symptoms. Labelling it as "just your anxiety" is so overwhelming. Luckily I have a specialist who listens. My heart goes out to you.

    • @americafirst9144
      @americafirst9144 Рік тому

      Colon cancer in young people since the 💉has skyrocketed. Hmm.

    • @IbenLeonoraGiljeVold
      @IbenLeonoraGiljeVold Рік тому +11

      Im 19 and concerned that I might have colon cancer as well.. my family says the same + my doctor dont think I have it because I havent lost that much weight..

    • @no_country_for_real_men
      @no_country_for_real_men Рік тому

      Sorry but she is incorrect. Modern doctors are not educated. It's just the opposite. Modern doctors are uneducated college degreed idiots. The older generation of doctors are the true professionals

    • @stephmartin1148
      @stephmartin1148 Рік тому +7

      @@IbenLeonoraGiljeVoldwow I am SO sorry! Dr’s should not wait until you are in your death bed before a diagnosis. Prayers with you that you get that answers you need. And also Jame! ❤️

    • @mdenjoyer831
      @mdenjoyer831 Рік тому +2

      news?

  • @cherylsloyer6872
    @cherylsloyer6872 Рік тому +109

    I had Stage 3 Colon Cancer... Lynch. I beat it! 🙏🙏🙏

    • @navbharat1443
      @navbharat1443 Рік тому +6

      Good. How long u have been cancer free ? It will give hope to many others who r going through this pain😊

    • @trublu3483
      @trublu3483 Рік тому +2

      God bless. Did you have blood? What are the first symptoms you experienced?

    • @SonyCamry
      @SonyCamry 6 місяців тому +2

      ARE U STILL OK?

    • @saifkhan-tq2kl
      @saifkhan-tq2kl 5 місяців тому +3

      im stage 4 colon cancer patient, i have seen on youtube that they dnt guide or replay to other so they can faight or learn that what should i do, anyways plz plz must pray for me

    • @محمدالعراق-ق4ع
      @محمدالعراق-ق4ع 4 місяці тому

      @@saifkhan-tq2kl I hope you recover. What symptoms did you have

  • @daniellebrown6887
    @daniellebrown6887 Рік тому +58

    I am so honored to be a small part of your survival story! You were such an amazing patient with so much love and light. Thank you for bringing that everyday.

  • @rayddonovan2608
    @rayddonovan2608 Рік тому +87

    I’m 51 and was diagnosed with 3B as well 2 yrs ago. I’m currently in remission but continue to test every 3 months for recurrence or metastasis. For me, the mental anguish of whether this comes back or not is far more worse than the surgery and 6 months of chemo. I wish you all the best in your recovery

    • @elmidouihasnae7591
      @elmidouihasnae7591 Рік тому +5

      I wish you a lot of courage , have as much fun as u can . Live

    • @tfoxen7518
      @tfoxen7518 Рік тому +3

      Can you inform us of the tests that you mention here?

    • @rayddonovan2608
      @rayddonovan2608 Рік тому +4

      @@tfoxen7518 Mainly blood tests every 3 months: CEA and ctDNA with annual CT scans

    • @juliejohnson789
      @juliejohnson789 Рік тому

      💖🙏💖🌈

    • @schl8675
      @schl8675 Рік тому +4

      3B as well, 6 months folfox, five weeks radiation and then surgery, as bad as it was, it is amazing how fast you rebound when done. My symptoms were brushed off because i had a negetive cologuard test, it was a false negetive, only after a trip to the ER for a complete blockage was my cancer found, DO NOT USE COLOGUARD. I agree about the mental part of recurrence, it sucks, i will likely have to have a bag the rest of my life, but it is not as bad as you would think it is, i can do what i want and eat what i want, and not live my life around a bathroom.

  • @carascottvo
    @carascottvo Рік тому +60

    I cannot believe this poor woman had such a hard time getting a colonoscopy after BLEEDING. That's freaking tell-tale, even if you're younger than 45. We have an awful food supply that's been sprayed with Round-Up, we're bombarded with fast food and sugar every day of our lives, new moms are stressed beyond belief, and people are getting sicker much younger. Doctors should already be aware of this and be willing to test.
    Bravo to this woman for fighting for her health, and standing up to the lab coats that all apparently think patients are stupid or hysterical.

    • @creativegirl9710
      @creativegirl9710 Рік тому

      Most people eat shitty, It's called the Standard American Diet aka SAD. Grains are horrible for your health. Processed foods, GMO foods, Monsanto foods, Frankenfoods, you name it. Most people eat crap. It's no wonder there's an epidemic of cancer.

    • @sarahcloer9261
      @sarahcloer9261 Рік тому +5

      I agree its not like anyone would want to willingly go get a camera up their azz if they werent worried sick. Yeah, Im sure there are the very few hypocondriacs but if I was a doctor i couldn't live with myself if I turned someone away and later found out they had cancer and it progressed bc of me.

  • @cindysackett4942
    @cindysackett4942 Рік тому +28

    I thought my bleeding was internal hemorrhoids but it ended up being colon and liver cancer. I've been receiving treatments for thirteen months and I always tell anyone new at the Cancer Center to never lose hope.

  • @Mike-01234
    @Mike-01234 Рік тому +52

    Co-worker was diagnosed with Colon Cancer 3B his only symptom was a few days of unusual looking mucous diarrhea no pain at all. When the GI doc found it said it was blocking about 75% of his colon. If he had not gone in and doctors took him seriously, he would have died if he left it for another 6-12 months. He was age 40 when he was diagnosed the GI doc up until the colonoscopy kept telling him he was too young to have colon cancer. He was shocked to find colon cancer said it was unusual. He ended up finding another doctor who actually said it's lot more common now days and any GI doc who turns someone away from a colonoscopy that has some symptoms is going to miss people who have cancer. That was almost 5 years ago he got treated and is has a normal life today.

    • @humanbeing00009
      @humanbeing00009 Рік тому +5

      did he had any other symptoms or like every time he passed stool he had mucous diarrhea?

    • @humanbeing00009
      @humanbeing00009 Рік тому +5

      Bro plzz answer?

  • @beausoter1763
    @beausoter1763 Рік тому +13

    I am stunned by your story! I just beat stage 3 colon cancer and my diagnosis came in 3 days after going to the E.R. The E.R. is the place to go if you have a "gut" feeling.

  • @robinmcknight4459
    @robinmcknight4459 Рік тому +25

    Exact thing thing happened to me. I was diagnosed a year ago at the age of 39 (originally told it was just “anxiety”) I have went through all of the radiation and chemo and surgery coming up in a few weeks. Definitely been the hardest year of my life but I have 3 young kids so we must push forward. Thank you for being an advocate and sharing your story. It’s so helpful to know we are not in this fight alone💜🙏🏻

    • @trublu3483
      @trublu3483 Рік тому +1

      Did you have bleeding? I'm sorry to hear. Good luck.

  • @faaque
    @faaque Рік тому +31

    You need to be your own advocate when it comes to dealing with healthcare . I was in horrible pain . Got misdiagnosed by ER's twice in different ER's . I got referred to a colorectal specialist . He took one look at the "hemorrhoid's" within seconds of just looking . He said it was rectal cancer . Your pain is real . Sometimes you need to fight the system . It was stage 3 , had radiation and chemo and I am cancer free 2 years later .

  • @Seeingisntbelieving
    @Seeingisntbelieving Рік тому +31

    My little cousin died at 24 years old. She was overweight up until about age 20 she suddenly thinned down-we thought she was working out…she thought it was from exercise too. In January 2014, she was rushed to the hospital due to extreme abdominal pain. They thought her ovaries were the issue…opened her up and found cancer everywhere in her pelvic area…gave her 6 months-she lived 11 months 11-28-14. The doctors think she had cancer for years. Maybe even was born with it. Trust your instincts💙!

    • @VoluntaristSociety
      @VoluntaristSociety Рік тому +1

      All of this is caused by diet. Stop blaming god.

    • @VoluntaristSociety
      @VoluntaristSociety Рік тому

      @@KatherineLaura6564 cancer is caused by humans, not genetics. Genetics heal cancer. You are still blaming God. It's not my God.

    • @thothkemet-lv8wq
      @thothkemet-lv8wq Рік тому +3

      Most doctors will tell you that cancer cells exist in everyone. The immune system gets rid of it daily. The mystery is why the immune system misses sometimes.

    • @SilVia-hs2kb
      @SilVia-hs2kb 9 місяців тому

      @@VoluntaristSociety how do explain Babies having cancer? 🤡

    • @VoluntaristSociety
      @VoluntaristSociety 9 місяців тому

      @@SilVia-hs2kb the damage is cumulative on dna..

  • @130crowd
    @130crowd Рік тому +12

    Your doc is handling it differently (for others going forward) because YOU were brave and insistent. Many, many people have you to thank.

  • @EEA1981
    @EEA1981 Рік тому +34

    Oh my heart hurts for you and all you have gone through. Good for you for advocating! It is SO hard to face a medical professional and stand your ground like that. I was born with a very common heart defect and it rarely causes any discernible issues, especially in early to mid-life. I started having crazy arrhythmias, super fast heart rate (180’s just sitting still,) getting very short of breath, and palpitations. I spent more than a year seeing cardiologists and more often than not I heard, “it’s probably just stress, you’re too young (I’m now 41) you’re a busy mom of 3, do you drink a lot of coffee and have you tried meditating?” I KNEW it was more than that. I FINALLY found a cardiologist who really listened and went the extra mile with extensive and invasive testing. And finally, I learned what is really happening to my heart…it is failing. In exactly 4 weeks from today I will be undergoing full on open heart surgery to replace two severely leaking valves. I was so angry at first, thinking about all of the doctors who blew me off. But now I’m just grateful I will have the chance to see my kids grow up.
    Stay strong, you are a warrior! 🖤

    • @cinemacritic2715
      @cinemacritic2715 Рік тому +4

      And you are also a warrior!!! God wins. Many prayers.

  • @SuperAngelic5
    @SuperAngelic5 Рік тому +24

    I had abdominal pain 3 months ago. It was a sharp pain just above the appendix. Went to urgent care and the doctor did not know what it was. Went to my primary care, and she did not know what it was. The pain went away but I decided to go to the GI doctor anyway. He immediately ordered a CT scan and it showed a tumor. It was cancer. I am having surgery in two weeks. I am so glad that I kept pressing for answers.. Please do not ignore symptoms. Do not accept it when they pass it off as anxiety.

    • @sarahcloer9261
      @sarahcloer9261 Рік тому

      What kind of cancer? Prayers to you.

    • @SuperAngelic5
      @SuperAngelic5 Рік тому +2

      @sarahcloer9261 I appreciate then prayers . They said it is an endocrine type tumor.

    • @PacksMozart
      @PacksMozart 4 місяці тому +1

      ​​@@SuperAngelic5do you had the pain just before stool or permanent?

    • @SuperAngelic5
      @SuperAngelic5 4 місяці тому +1

      @@PacksMozart I just noticed your comment. The pain was always there for about three weeks. Then it just stopped hurting. It was a neuroendocrine tumor, stage 3. They removed it, and my last PET scan was clear.

    • @Ghetto-toaster22
      @Ghetto-toaster22 2 місяці тому

      @@SuperAngelic5after trying almost 3 years i finally gave up. A few weeks ago I decided to see a new doctor and they immediately said i needed an colonoscopy which i am having in 2 weeks. My symptoms are extreme fatigue, extreme constipation, occasional blood in stool and hip and back pain, mainly hips though. I have many other symptoms but prolly not related tho lol. I have has some strong stomach pains, like i was being stabbed. But prolly bc of the constipation tbh. How was your surgery? And i hope you are doing good!

  • @cynthiacarlson6404
    @cynthiacarlson6404 Рік тому +20

    Glad she advocated for herself. Too many women are treated with psych and psych is a symptom of a physical or spiritual or environmental issue.
    Physical should be carefully looked at and taken seriously

  • @carrierobinson4206
    @carrierobinson4206 Рік тому +33

    So glad you pushed to get the colonoscopy. I am so annoyed when doctors shrug things off especially because some of us pay a lot of money for health insurance.

    • @miac2382
      @miac2382 Рік тому +3

      I think a colonoscopy is like 1,000 dollars. If people want to get it they should be able too. Especially if they have able normal stools for a long time and blood.

  • @dopeymark
    @dopeymark Рік тому +31

    I went to the hospital on multiple occasions because of bleeding. I was told I wasn't bleeding enough to die and sent home. Two years later I was diagnosed with late-stage colorectal cancer. I just finished radiation and intravenous chemotherapy. Now I have to have a fairly dramatic surgery. I'm pretty angry it took two years for a proper diagnosis.

    • @lzzygrl9ify
      @lzzygrl9ify Рік тому +3

      How often did you bleed??

    • @trublu3483
      @trublu3483 Рік тому +2

      Did you bleed often? And was it mostly liquid stool?

  • @iotanb1772
    @iotanb1772 Рік тому +15

    Very interesting… just so u know, im a 38 year old man & was told by most doctors to see a psychologist. In my opinion, theres only a small percentage of doctors that are still curious or care enough to investigate past a few blood tests. The sad truth is if they thought i was a celebrity or abundantly rich, they would of tried harder. no accountability for the common person.

  • @myrnajoven9339
    @myrnajoven9339 Рік тому +18

    Thank you for sharing your story about colorectal cancer I’m on my therapy now and I’m hopeful that I can overcome this serious situation. God is Good!

  • @RR-ss7dn
    @RR-ss7dn Рік тому +9

    I’m praying for complete healing!

  • @lj9524
    @lj9524 Рік тому +10

    Thank you so much for sharing your story. Too many women get blown off by physicians. I too am a cancer survivor. You are a survivor who has been through hell and back again. ❤️

    • @GuiLOST-lz8su
      @GuiLOST-lz8su 7 місяців тому

      Why you just thing jist woman get underdiagnosticated?? Men have more cancer than woman and most later diag

  • @oberhasligoatfarm3085
    @oberhasligoatfarm3085 Рік тому +16

    They told me my 14 year old daughter had anxiety and that’s why she was showing TORETTS like symptoms. Turns out her vertebrate that connects to the skull was out of place.

  • @73cidalia
    @73cidalia Рік тому +21

    Apparently, a lot of doctors think that 99% of women’s problems are psychological. 🙄 It seems nothing’s changed. Even the word “hysterical” comes from the Greek “hystero” for “uterus” (think “hysterectomy”). Apparently, we’re mostly crazy hypochondriacs.

  • @Blueberries-447
    @Blueberries-447 Рік тому +4

    I’ve been having signs of anxiety and coming across this video actually just made my anxiety worse but it’s nice to share your experience that doctors are not always right, and always do daily check ups your doctor

  • @ddramos7997
    @ddramos7997 Рік тому +7

    I'm so glad you advocated hard for yourself, and everything worked out so well in the end. God bless you and your beautiful family. Attn everyone: NEVER allow any doctor to use that "It's just so unlikely..." line on you to get rid of you without seriously addressing your concerns! So many people have ended up dead because of that. Follow your gut, and stand strong until they follow through. A "You were right" or "I'm sorry I was wrong" when it's too late for you to survive is criminal!

  • @TicTacMI
    @TicTacMI Рік тому +48

    Thank you for the stories of colon cancer patients-I’m 28 and having a colonoscopy in a few weeks since I’ve had some drastic changes in my habits and pain. Hoping for IBD over cancer, but I like to be prepared for the worst

    • @ThePatientStory
      @ThePatientStory  Рік тому +8

      We're thinking about you here at The Patient Story! Thank you sharing your story

    • @catherinebiermann7940
      @catherinebiermann7940 Рік тому +22

      I wonder how many of these doctors ever apologize for being wrong, and dismissing patients’ concern.

    • @dekjules32
      @dekjules32 Рік тому +7

      Praying for a good outcome for you. So glad you are going in.

    • @dutchgirlfarida
      @dutchgirlfarida Рік тому +5

      I need an colonoscopy as well am 30

    • @DQ_Mine
      @DQ_Mine Рік тому +5

      ​@@dutchgirlfarida Good luck. If you can, bring a supportive person with you.

  • @LudiCrust.
    @LudiCrust. Рік тому +35

    Same thing happened to me at age 37. It took me going to see a Jordanian GI doctor out of network that had just started practicing after emigrating here to give me a colonoscopy. He told me he’s been seeing it in younger people overseas for years & that doctors here need to start looking for it. This all happened in 2018 so hopefully it’s starting to change. Imo I think the driving environmental factor causing this is either PFAS and/or plastics. Bottled water is transported in hot trailers which releases microscopic pieces of plastic into the water.

    • @yaelWolfebaz
      @yaelWolfebaz Рік тому +6

      I’ve been thinking it’s plastic and PFAHS for years too, just intuition

  • @colleensmith3374
    @colleensmith3374 Рік тому +2

    Thank you for sharing this info re: your journey. Advocacy is so key. Great job. I lost my mother to colon cancer in 1990. Had my 1st colonoscopy at 33 after my 1st child was born. Since then I've had 4 or 5. I did fight with the last one when they wanted to go out to 5 years. I am 56 now, the same age the mother died. I have 3 college age sons and tell them how important taking charge of your health. No one cares about your health the most except you! So many folks are getting colon cancer earlier? Best to you and continued good health.

  • @vincentkosik403
    @vincentkosik403 Рік тому +4

    Same woth my Sister...she had colon cancer and the initial Doctor didnt think it was serious illness...afterwards she had a screening and it was advanced ....she passed away after a long treatment...very painful...breaks my heart to hear storys like yours....God Bless and prays for your recovery

  • @peterbland7227
    @peterbland7227 Рік тому +5

    Thank you for your story. My mother died of colon cancer in 1993 after a five year illness. I’ve been getting regular colonoscopies since then. There are 9 children in our family, and every one of us that got colonoscopies had pre-cancerous polyps.

  • @annairwin8147
    @annairwin8147 10 місяців тому +2

    I’m waiting to see if I have colon cancer and I’m 75…..had five polyps removed…I’m very scared but I know that God has me I had this done last Tuesday. God bless you and everyone here🙏🙏..I’m an old lady but I know what an eye opener for all of you young people🙏🙏..No family history

    • @50toinfinityatleast
      @50toinfinityatleast 9 місяців тому

      Did you find out your results? I hope everything is OK.

    • @givenfirstnamefamilyfirstn3935
      @givenfirstnamefamilyfirstn3935 8 місяців тому +2

      Only 5 polyps is great for your age, everybody grows them in the end. It doesn’t _mean_ cancer and Bowel Ca grows slooow anyway so fingers crossed you’ll be fine. ❤

    • @annairwin8147
      @annairwin8147 8 місяців тому +1

      @@givenfirstnamefamilyfirstn3935 Thank you and Thank the Precious Lord they were not cancer

  • @tranquility9325
    @tranquility9325 Рік тому +42

    Imagine the numbers of women who lost their lives due to being dismissed.

    • @alleyoop5185
      @alleyoop5185 Рік тому +7

      Only women? Why wouldn’t men be included also?

    • @notmyrealaccount8564
      @notmyrealaccount8564 Рік тому +5

      @@alleyoop5185 Women are more likely to be dismissed though which is what the video is about. I am not a woman but get dismissed for other reasons that make them think I am not a reliable witness to my own body. It’s sad and ridiculous but being a woman means doctors don’t believe you and probably the only reason I’m alive today is because I’m not a woman. I have been so close to dying from problems caused by doctors who kept dismissing me until someone by chance discovered what was wrong at the last second. Something that would not have happened if they had any other reason not to bother trying to find out what was happening because they presumed I was just anxious or was exaggerating and not worthy of further investigation or testing.

    • @GuiLOST-lz8su
      @GuiLOST-lz8su 7 місяців тому

      Why just women?? Women live lomgee better than man misogenic your speecg

    • @GuiLOST-lz8su
      @GuiLOST-lz8su 7 місяців тому

      ​@@notmyrealaccount8564
      Nooo they arent woman go much more to hospital cara than man
      Males die 10 years younger than male and 90% males deaths in violence suicide and drugs orverdose you should educate yourself

  • @lindahill9215
    @lindahill9215 3 місяці тому +1

    I'm just starting this journey, if you want to call it that. I have been passed around by 4 doctors now. You have to fight for test. You know your body😊

  • @chukchee
    @chukchee Рік тому +3

    That is so brutal...I send hope to everyone who has to go through cancer....

    • @cherrypie3942
      @cherrypie3942 7 місяців тому

      Thanks for your concern/prayers for everyone 😅

  • @boomeradvocate
    @boomeradvocate Рік тому +7

    Thank you so very much for sharing your story!! I am in midst of GI testing to determine cancer or not. On my 3rd gastro doctor (others during Covid and dismissed all symptoms). My 3rd Colonosopy is in 10 days, but it's been 3 yrs since last one. Your message has given me strength 💪 to advocate for my health. Ty 💗

  • @JuliaShalomJordan
    @JuliaShalomJordan Рік тому +4

    What a lesson. Always listen to your body. It speaks. Sometimes it YELLS.

  • @anitagurns9480
    @anitagurns9480 10 місяців тому +1

    Good for you! You stuck up for yourself! You have to! I went through same thing! I had cancer too. You helped so many people sharing this!! Blessings to you!!!

  • @melz6019
    @melz6019 Рік тому +9

    My dad died from colon cancer at 63. After he died, his sister had a colonoscopy and it was discovered she had early stages of colon cancer. I then found out through obtaining death certificates that my dad’s mom died from colon cancer, as did her sister. I’m terrified now and know I need to have a colonoscopy.

    • @MrJamiez
      @MrJamiez Рік тому +2

      Family is cursed bro

  • @seasidepaper
    @seasidepaper Рік тому +20

    I had colon cancer stage 3 b - went through surgery and chemo but now for the one year follow up which should have been done in October 2022 - I can't get a CT scan scheduled. It's been 6 months on a wait list. I'm in British Columbia Canada , so I'm going go to a private clinic to have my annual CT scan done at a cost of +1500. Im tired of waiting with scan anxiety.

    • @Rombizio
      @Rombizio Рік тому

      I am glad I left that shithole of a country years ago otherwise I would be dead. Canada's health care sucks balls. Get out if you can.

  • @TH-xx9cn
    @TH-xx9cn Рік тому +1

    Exactly Amy, so many stories of "your too young" etc. Instead the professionals need to listen & stop down playing it. God bless you 💛 and thank you for sharing your story.

  • @BrianJuntunen
    @BrianJuntunen Місяць тому

    I'm glad to hear that you were able to be treated successfully.

  • @crocadoodle7101
    @crocadoodle7101 9 місяців тому

    Amy you are very well spoken and shared great information. As well, you have shown much grace to the various doctors.

  • @theresaakins2317
    @theresaakins2317 Рік тому +4

    If the doctors would have listened to you and not ignored you, you might have had 1st stage: cancer to be corrected and I am very sorry that you had to go through all that. You are a very smart and brave lady.

  • @EmilyHaysisabutterfly
    @EmilyHaysisabutterfly Рік тому +6

    I did 23 and me because I carry the colon cancer gene. At 46 I had 6 polyps removed. One was very big. I never would have pushed for the colonoscopy if it wasn't for the DNA test.

  • @colleenwilliams1452
    @colleenwilliams1452 Рік тому +5

    You are right. Women do know their bodies. I have a lung condition and I can tell in minutes if I am getting an infection.

  • @ketovida7250
    @ketovida7250 Рік тому +13

    My dad had a CT scan which showed nothing wrong, then had a colonoscopy 2 weeks later and a big tumor was found on his sigmoid colon. Yes c having a colonoscopy is very important.

    • @sti302man
      @sti302man Рік тому +6

      I’m glad you said this. Because I just had a ct scan for this same issue and it has come back negative. Now I’m going push for a colonoscopy!! Thank you. !!

    • @zacsborntorunrunningadvent3441
      @zacsborntorunrunningadvent3441 Рік тому +4

      Wow that just shows its important to get the colonoscopy!

    • @trublu3483
      @trublu3483 Рік тому +1

      Was he showing signs of fatigue or bleeding? Was his stool always liquid or narrow when hard?

    • @ketovida7250
      @ketovida7250 Рік тому +1

      @@trublu3483 No fatigue or blood in the stool (that he could see). The only change was the consistency of the stools as it wasn’t as formed and smaller in size. He kept complaining of a feeling of something obstructing his bowel and he was so right. I’m so glad his doctor listened.

  • @svaught1
    @svaught1 Рік тому +4

    I am so sorry you had to fight to get what you needed. I'm glad you are doing well. Hugs.

  • @JJ-5145
    @JJ-5145 Рік тому +8

    My best friend doing amazing so proud of her

  • @maryguillen5421
    @maryguillen5421 Рік тому +14

    I relate to you, after 3 years of feeling sick having symptoms and going from 3 different doctors having all sorts of bloodwork and nothing but you are told it's depression, hormonal changes, and yet my mammograms come out normal. My primary recommended compounded progesterone, well that just accelerated things as I had fibroid in my right ovary and was experiencing breast pain off and on for 2 years my ob/gyn recommended supplements for the pain. I told my primary that he should refer me to an oncologist prior to taking the progesterone and he said it was my hormones causing my symptoms. Well I was diagnosed with breast cancer that had metastasis to my uterus, had a total hysterectomy. Had low dose chemo plus took oral chemo as well. I did it in 2016 and 2019 but I decided I don't want anymore chemo or oral. I'm doing holistic changes by diet, juicing, doing mindset affirmations, rebounding, supplements and other things as well. Stay away from sugar it feeds the cancer. Knowledge is power educate yourself. Most importantly the power of prayer and Faith. 🙏

  • @speaktruth9313
    @speaktruth9313 Рік тому +7

    What doctor would refuse to give a colonoscopy at patient request..and she had malaise,weight loss ,change in bowel habits, rectal bleeding, ,family history of colon cancer…..sometimes I think these docs need to be investigated and replaced by a computer for diagnosing. So tired of this…my adrenal tumor was 6 cms till another doc found it.

  • @marylovesss
    @marylovesss Рік тому +2

    Ughhh! It quite literally pisses me off that your doctor brushed you off, due to “anxiety”.😡😤
    I suffered for years, I was told it was anxiety, it was all in my head, over and over and over again, so I quit complaining.
    On one normal routine pap exam, a young P.A. at my OB/GYN clinic did a panel of labs and sure enough, I had been feeling sick, because I was sick, I was diagnosed with an autoimmune disease. When NO ONE LISTENED TO ME, because I was “too young”.
    You’re a rockstar! 🎉 I’m glad that he’s learned from you. No one deserves that, we know our bodies. ❤

  • @jojoFranklin
    @jojoFranklin Рік тому +16

    Such an inspiring woman. Thank you for sharing your story and your determination for self-advocacy. Life saving messages.

    • @ThePatientStory
      @ThePatientStory  Рік тому +1

      Thank you watching!

    • @ThapsieT
      @ThapsieT Рік тому

      Thank you very much appreciated 🙏

    • @kennyh5083
      @kennyh5083 Рік тому

      @@ThePatientStory Take DMSO, Plz Seriously! DMSO cures cancer and tumor growth by dissolving the coating cancers use to protect themselves from your immune system! I know of at least three people with stage 4 cancer and inoperable brain cancer who were sent home to die by their medical doctors and cured themselves %100 by taking DMSO! I myself have used DMSO to completely cure my severe case of spinal arthritis! It works and it can save your life!

  • @BLFulle
    @BLFulle Рік тому +7

    I've had 3 types of cancer in 13 years,. The breast cancer has come back twice and it looks like it's back again. That's 5 battles with cancer. Each time I was told there was nothing wrong with me. I had to fight to have basic tests done. When they removed my first cancer (thyroid cancer) the mass was the size of a racquetball. All along they kept telling me my numbers showed nothing. I finally had an allergy doctor tell me he felt it was thyroid cancer. It was because of him I finally got a biopsy.
    Same thing happened with the breast cancer the second time. I was being seen at what's considered to be the best hospital in the world.
    You must fight! If you know something is wrong don't give up. Get second and third opinions. Research, present your case.
    Don't let them put you off until it's too late.

    • @mycharmedunicorn8715
      @mycharmedunicorn8715 Рік тому

      If I ever get breast cancer they will both be removed. Everyone I know gets breast cancer back with a vengeance and it kills them

  • @javixavalier4456
    @javixavalier4456 Рік тому +17

    I got a colonoscopy in November because was suffering weird symptoms. I’m 26 so some would think that my doctor was hesitant about a colonoscopy since I’m young. My doctor is Asian (don’t know if this matters) but he quickly wanted me to get a colonoscopy as he explained it’s the absolute best way to diagnose something by finding or excluding possibilities. Everything came back fine and am now being treated for a deep anal fissure.

    • @unknownthetruth4895
      @unknownthetruth4895 Рік тому +1

      What were your symptoms ?

    • @LamHoang-cz6cr
      @LamHoang-cz6cr Рік тому +3

      It’s funny but when i was in Vietnam, they would do any test needed to find the issue IMMEDIATELY. But when I came to Canada, all I got is blood test and “you are young, everything will be fine, just your anxiety”. Back at my home, they never ever blame anxiety for physical problems without further test

  • @JDMimeTHEFIRST
    @JDMimeTHEFIRST Рік тому +10

    I think women are always told it’s just our feelings and in our head. My grandmother died at 44 and I never met her. I want to have one but while some insurance companies say family history says 35, others ignore family history and tell you to wait until 45 (in other words after my grandmother died).

    • @elizabethc3842
      @elizabethc3842 Рік тому +2

      Stomp your feet, get on the phone with your insurance, as for a patient advocate, yes the insurance does have those and you have a right to one... push like your life depends on it

  • @sanddollar252
    @sanddollar252 Рік тому +4

    I did a Cologuard fecal test months ago that came back positive for Colorectal Cancer. I’ve also had pain, bleeding, etc for six months. Unfortunately, I have been refused a Colonoscopy, and I’m 63 years old.

    • @jesswinnett9186
      @jesswinnett9186 Рік тому +6

      Please keep pushing. Go to another doctor or hospital. Praying for you! 🙏🏼💕

  • @d011p4rtz
    @d011p4rtz Рік тому +8

    been dealing with chronic stomach issues and nausea for the last 12 years since I started college at the age of 19; have spent so much time being gaslit and ignored by doctors telling me I'm too young, nothing's wrong, this that and the other...I gave up a long time ago because I got tired of all the procedures, being poked and prodded and ignored..I stopped going entirely. I'm on state insurance and they only cover so much and have a really long waiting list..at this point, I just hope I live long enough to see my daughter grow up into the person she's meant to be...

    • @amysuhy3550
      @amysuhy3550 Рік тому +4

      Nobody’s life span should depend on how much insurance they have! I’m so sorry and this needs to change! Yesterday!!! Your in my prayers!!!

  • @tinaboyd7574
    @tinaboyd7574 Рік тому +2

    Thank you for this! I am in chronic pain, judt had a CT Scan with contrast. Now I need to push for a colonoscopy.

  • @jessiedoggie1942
    @jessiedoggie1942 3 місяці тому +1

    It can happen suddenly as it did for my wife on Valentine's Day 2013 when she woke me up in the middle of the night and told me that she had excruciating pain in her abdomen. We went to our local hospital's ER where they did a CT scan, found a mass in her pelvis, and transferred her to another hospital for surgery. By the end of that day they had removed a tumor at her ileocecal valve and did a double shotgun resection. It was stage 3b and she started FOLFOX chemo soon afterward and stayed on it for 6 months except that she stopped the platinum drug after 4 months due to increasing neuropathy. CT scans were negative for years afterward and eventually stopped. She still has the neuropathy in her toes but no other issues. Prior to the Valentine's Day event she had no symptoms at all But since the tumor was in the ileum which is much smaller diameter than the colon, it must have gotten totally blocked and caused the pain. Unusual I think for colon cancer to present at that site.

  • @ew7512
    @ew7512 Рік тому +8

    Nothing grinds my gears more than doctors dismissing women as anxious. 🤬🤬🤬🤬🤬

  • @shannonbloebaum4164
    @shannonbloebaum4164 Рік тому +2

    My mom and grandma died from colon cancer and people are getting this at such a much younger age so please get checked and do not let your dr give you the run around!

  • @HudsonChalmers
    @HudsonChalmers Рік тому +10

    My GP told me it was piles, he did the finger and glove test. As did you I got fed up and told him to send me for a Colonoscopy. I was Stage 3a.

  • @Mimi-fe2gm
    @Mimi-fe2gm Рік тому +1

    Always go with your gut!!! We know ourselves better than anyone... stand up for yourself and hope and pray it's nothing. ❤ xo

  • @donna3465
    @donna3465 9 місяців тому +1

    Shame on the medical professionals for dropping the ball BIG TIME. If I were a doctor, the very first thing I would check for would be cancer. This is inexcusable.

  • @katytaylor681
    @katytaylor681 8 місяців тому

    Very interesting, thank you and wishing you the best of luck.

  • @Bugsy0333
    @Bugsy0333 9 місяців тому +1

    You are an inspiration to all thank you for sharing this it has been very informative You are amazing !

  • @Shackbanshee
    @Shackbanshee Рік тому +6

    Oh my god. I'm so lucky I got my colonoscopy (I'm 35) after bleeding. Turns out it was mild proctitis, treatable, and I'm doing much better! I attribute some of my fast care to my asshole attitude. After having pain he dismissed in the past as anxiety (ended up hospitalized with meningitis), I have learned to be kind but pushy.

  • @followyourdreams8673
    @followyourdreams8673 Рік тому +7

    I’m terrified to go to the doctor again because they just roll their eyes and say it’s just your anxiety. My poor stomach is so sore after eight months and I want a second opinion but that is like getting a winning lottery ticket. I just live with it because I don’t want them to label me anxious any more.

  • @naturegirl5681
    @naturegirl5681 Місяць тому +1

    The Gastro dr told me I just had a colonoscopy 4 years ago and cancer doesn’t grow that fast. I too was bleeding and he said that was probably a hemorrhoids said I’m bleeding and I need a colonoscopy. He did it and when he came out afterwards with eyeballs the size of silver dollars. He said you have a cancerous tumor the size of a plum and we need to schedule you for a sigmoidectomy immediately. They got it all with robotics and they got it all. Thank the Lord. Today you have to advocate for yourself.

  • @sawdust2556
    @sawdust2556 5 місяців тому

    ❤❤❤ Thank you for teaching us. Take care.🙏🏻💕

  • @shortcakecanadiangirl4722
    @shortcakecanadiangirl4722 Рік тому +1

    So many Doctors pas off symptoms; it’s your diet: your sleep; whatever. You always need to advocate for yourself and don’t take NO for an answer! They follow standard protocols and if bloodwork is good they immediately think great no problems. They don’t do enough screening , early enough or frequently all because of $. It’s sad. I would gladly pay however that may upset those that can’t afford to.I’m glad you got in in the week. I know of many waiting weeks for CT/MRI and surgery.

  • @preese100
    @preese100 Рік тому +3

    Thank you sis....good information and video extremely helpful!

  • @ericablaschke3497
    @ericablaschke3497 Рік тому +11

    Doctors are good at that not taking you seriously and blaming on anxiety. Mental health and psychosomatic people who work in mental health and medical providers believe people who have a psychiatric history are being psychosomatic stigma stigma. I work in psych for 15 years it happens too often. Trust your gut you know your body fight don’t listen to them. If you have a psych history don’t share with providers because all they see is psych most doctors won’t take you seriously and attribute it to psych. Not everyone but a lot. Stigma is in our healthcare system and needs to stop

    • @sandilobianco6734
      @sandilobianco6734 10 місяців тому

      Erica, Primary care doctors now give the mental health test by Pfizer. My friend + I filled it out. We were both offered psych meds. The tests asks if you are very tired and do we sleep a lot. which could be a physical symptom of something.

    • @ericablaschke3497
      @ericablaschke3497 10 місяців тому

      @@sandilobianco6734 that’s why I don’t bring up mental health symptoms and if they ask about depression I lie. The pcp I have now is better than ones I had in the past. He is knowledgeable and he listens. He doesn’t dismiss you. He probably wouldn’t subscribe meds he would probably send me a referral to psychiatrist since that is not his realm of expertise. I don’t take psych meds. Over the years I have learned they just cause me problems. They make me anxious I make mistakes or I’m so zoned out or feel absolutely nothing. I just find other ways to cope; uplifting music, going to the gym, keeping busy having structure; work is good for me, I like most of my coworkers and they like me, I like the patient population. I get depressed and upset around my toxic family, have high functioning autism and trauma very isolated when not at work. My cat is comforting as well and being around children. My mom takes loads of psych meds for her mental illness, she has tardive dyskinesia. She tried to drug me as a teen with these drugs. I was called the crazy girl for taking these drugs. Since I’ve stayed away I have not had not had to be hospitalized in years. I work on a psych unit and don’t care for psych and the lack of real treatment patients are given just drugs no therapy or skills group, just rec therapy groups instead, little pay, high stress, some populations dangerous, little staff with high acuity.

  • @piyushdharmadhikari7959
    @piyushdharmadhikari7959 Рік тому +2

    Your Brother from India. Hope you are feeling better now sister. Thanks for the video. I am also 47 and patient of IBS. Will go for colonoscopy very soon.

    • @c.c.6930
      @c.c.6930 Рік тому +1

      This is a very nice comment.I'm keeping my fingers crossed for you, Brother..

    • @piyushdharmadhikari7959
      @piyushdharmadhikari7959 Рік тому

      Please take care sister. I just lost my job on 28th March 2023. Hope will find another soon. Keep up the spirits high for yourself and others as well. Give my regards to your family. Namaste.

  • @Trogdor1365
    @Trogdor1365 Рік тому +2

    I've lost 3 aunts and 2 female cousin to lynch-related cancer. And multiple female cousins who have had cancer and tested positive for lynch syndrome.

  • @anniewilkins2620
    @anniewilkins2620 11 місяців тому

    God bless you and your family. You are a beautiful person. Thank goodness you pushed for it. Stay blessed young lady 🙏 ❤

  • @lyndalou2892
    @lyndalou2892 Рік тому +1

    Thank you so much for this very powerful and informative video. Blessings to you on your healing journey ! 🌅🌅🌅

  • @christieleonard4359
    @christieleonard4359 Рік тому +2

    I just found out. My mental health definitely got in the way. I knew something was wrong. Didn't know it would be cancer. Should have cause the last few years my dad has been in to get precancerous polyps removed & had a bowel resection early this year. Bleeding was always dismissed for hemorrhoids. The doctor talked to my husband & said he would call later in the day. That was the 27th & this is now Halloween. I've got so many questions & concerns. I'm 47, scared & alone.

  • @vancekershaw6876
    @vancekershaw6876 Рік тому +1

    I hope you feel better soon and my heart goes out to you and I'm sending healing prayers for you

  • @cathyholt5215
    @cathyholt5215 Рік тому +1

    Good for you girl!!❤

  • @tinalayton7133
    @tinalayton7133 19 днів тому

    I’m just starting to watch your video. I’ve been saying the same thing. I’m just not feeling good. About 3 weeks ago they diagnosed me with diverticulitis. I’m still not right. I don’t have blood in my stool. I see a specialist in a month. God bless you 🙏🏼🙏🏼🩷

  • @steinbauge4591
    @steinbauge4591 Рік тому +2

    Here (Norway) you can get a colonoscopy at a private clinic for 5-600 $. Its good to remember that it is a procedure with a certain risk. I wanted my doc to put me on the list for one but he did not think I had enough symptoms, and he was right. I had a sluggish digestion from poor hydration and irregular sleep.

    • @Truecrimebabe
      @Truecrimebabe Рік тому +1

      Is that true for non citizens? Like if I could do that while being there on vacation.

    • @matthewthomasjames
      @matthewthomasjames 11 місяців тому +1

      I’m glad you mentioned the risk factors. Not everyone needs to be running in for colonoscopies because of these risks. I have ulcerative colitis and I detest getting them. I’ve had terrible reactions from the anesthesia. Have also heard that dormant tumor cells can break off during a colonoscopy and spread to other areas. Still, it is unfortunately the best way of detecting a tumor in the colon.

  • @rossbuchan6593
    @rossbuchan6593 Рік тому +1

    I'm new to this I never post a comment...my wife's just been diagnosed with bowel cancer.... we've just found out hrs ago .. we're in shock !!

  • @monanwright
    @monanwright Рік тому +1

    There seems to be alot of inadequate Dr's these days. So many with cancer diagnosis are told basically that it's all in their head. There are so many cases of it on YT.

  • @skdkskdk
    @skdkskdk Рік тому +9

    Living in Europe I'm experiencing public healthcare disintegrating, some places faster, some places slower, and getting anything else than an X-Ray is getting tougher, colonoscopy? No way Jose!

    • @Chahlie
      @Chahlie Рік тому +2

      In Canada as well. I'm lucky enough to have a GP but it's hard to get an appointment and when you do get one he doesn't have time to even lay hands on you. Broken legs and so on are fine, but anything internal you will die here. Luckily we can see our bloodwork online if we can get someone to even order it. I've been waiting over a year for an ultrasound for stomach pain. And I'm a kidney donor.

    • @elizabethmcleod246
      @elizabethmcleod246 Рік тому

      @@Chahlie Are you in BC?
      I was left to die there with a severely pinched groin nerve.
      I got the surgery I needed because I hired a registered nurse consultant. No doctor I saw in BC would help me even though they said they would.

    • @deniseadams1703
      @deniseadams1703 Рік тому

      I’m in the UK but I must be registered with a really good GP surgery. Yes, have to have a telephone discussion first but then face to face appointments when necessary. I developed an autoimmune disease eighteen months ago and I cannot fault my treatment. Recently I had to be referred for a pelvic scan which was done within fifteen days and I have received an appointment for an unrelated problem from the hospital within three weeks. Neither of these appointments were arranged under the two week rule for cancer concerns just issues with my adrenal glands not kicking back in after tapering off steroids.

  • @ellensoucek1914
    @ellensoucek1914 8 місяців тому

    Colonoscopies shouldn't be age-related. Blood in the stool, as well as other symptoms, should be enough to facilitate a screening. Good for you for being your own advocate.

  • @kimglass4851
    @kimglass4851 Рік тому +2

    Had colorectal cancer in 2016 almost stage 4 at age 48,,,,I had been losing weight
    and had horrible stomach pain....dr sent me for a CT scan and didnt hear back until
    2 weeks when the dr called and said he set me up with a surgeon....I asked what for
    and he went silent....then he asks me if anyone had called me with my results and I said no....
    he then blurts out that I had cancer, I went through hell and even though Im still alive,
    the side effects have been horrible and continue to be horrible. almost 7 yrs later.
    Not sure if I would go through that again if it does come back....maybe I should have kept
    the colostomy bag.

  • @scottjackson163
    @scottjackson163 Рік тому +7

    This is a horror story. I’m 64 and about to get my 2nd colonoscopy. So sorry that this has happened to you. Anybody would want you as a mom.

  • @ginaverdi6101
    @ginaverdi6101 10 днів тому

    She fought for a colonoscopy! You have to keep checking in with your Doctor and demand what you need!

  • @DaRyteJuan
    @DaRyteJuan Рік тому +6

    It’s so weird. The patients who _don’t want_ a dang colonoscopy, they pressure us to get one. The patients who _need_ a colonoscopy can’t get one.

  • @ddflower7
    @ddflower7 8 місяців тому

    Sorry this happened to you. I hope you will invitecjesus as your savior. Hope the best for you and healing and many years.

  • @JDMimeTHEFIRST
    @JDMimeTHEFIRST Рік тому +2

    Doctors have to do continuing education so even older doctors have no excuses for not knowing updated criteria.

  • @TLilacTwilight
    @TLilacTwilight 7 місяців тому

    You are so Brave and are right about every piece of advice. I do not have Cancer. But I surely though I must havd had brain cancer or uterine cancer or something. My symptoms pretty much my whole life but became severe within the last 10yrs were...extreme fatigue, pain all over, muscles aches that take weeks to recover from activity, Dry eyes hardly no tears, dry mouth, bleeding gums, occasional burning & aching spine and stiffness, ocassional swollen joints/ tendons, random fevers with no other symptoms, constant swollen glands, reccurrent athsma, recurrent tonsilitis, heart palpitations, recurrent bladder infections and blood iurine that anibiotis couldn't help, and repeated vocal loss due to parylzed vocal chords.
    It was like comstant bouts of the flu with no flu symptoms. Oh you know they called the Pschy team for me the many times I went to ER Cause they just knew I had to be kray kray....😂🤣
    In 2017 I fainted while cooking breakfast I went into the hospital and was there 4½ days due organs so inflammed they were shutting down and body fighting but no labs showed anything so they began running test for autoimmune, ever was 104. With no response to tylenol.
    Diagnosis is Sjögrens Syndrome prestening unusually and affect the nerves and connective tissue causing neuropathy, osteoarthritis, fibromyalgia, swollen glands and all over inflammation sometimes with organ imvolvement and fatigue. In addition to that I have intercranial hypertension. Turns out I'm not krazy at all 😂

  • @pamelcakes04
    @pamelcakes04 Рік тому +4

    I have lynch too and have been feeling yucky for like 2 years. I am hoping it's not something but the doctors l see, seem to all gaslight me and tell me that its all depression and anxiety or me being overweight. I weigh 219 pounds and have always been heavier. I need help and its starting to weigh on me. 😢

  • @Godblessyou10100
    @Godblessyou10100 2 дні тому

    God bless you and your beautiful family ❤❤❤🙏🏼🙏🏼🙏🏼🙏🏼