I Live With Syringomyelia and Chiari Malformation | Storytime with Kaite McKenna

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  • Опубліковано 28 січ 2025

КОМЕНТАРІ • 15

  • @lynnking2480
    @lynnking2480 Місяць тому +1

    I was diagnosed at 36 with Chiari Malformation had the decompression surgery and my neurosurgeon removed a piece of bone i was in the hospital for 3 to 4 days

  • @jillkoczent2803
    @jillkoczent2803 3 роки тому +5

    Best of luck to you Kaite! I have a son who's been through a couple of severe, life-threatening medical things, he talks about that stuff like he's reading a book about someone else, very similarly to how you talk about your brain surgery. Kids are so tough! I hope that you find health and peace!

  • @Gimpy-Deer
    @Gimpy-Deer 3 роки тому +1

    Being someone who was born with Spina bifida as well as hydrocephalus (excess water on the brain) I found this episode highly fascinating. ❤️❤️❤️

  • @JenWith1N
    @JenWith1N 2 роки тому +1

    I had 2 spine surgeries this past July. I had a very rough go. It would make a good story on your podcast. 😬

    • @ameegrant6055
      @ameegrant6055 6 місяців тому +1

      Hello, were your surgeries successful?

    • @JenWith1N
      @JenWith1N 5 місяців тому

      @@ameegrant6055 yes and no

  • @roslynpropst2750
    @roslynpropst2750 2 роки тому +3

    Hello my name is Roslyn I am 46 yrs. old I've also had this painful condition since birth and I have a shunt. My pain is so severe. Did you have your surgery?

    • @ameegrant6055
      @ameegrant6055 6 місяців тому +1

      Hi Roslyn, hope you are feeling better. How lung ago did you have the shunt inserted? Have you had any issues with the shunt? Like infection, brain swelling etc? Please advise

    • @ameegrant6055
      @ameegrant6055 6 місяців тому +1

      Hi, hope you are better now. Does this mean the Shunt was not a success?

    • @MelodyGossandannie111
      @MelodyGossandannie111 6 місяців тому +1

      I as well suffer extensively after many years with this disease.

  • @whoknows7834
    @whoknows7834 Рік тому +1

    I also live with Syringomyelia and Chiari Malformation

    • @ameegrant6055
      @ameegrant6055 6 місяців тому

      Hi, how are you doing? What symptoms do you have? Did you ever have surgery?

  • @elinordrake9716
    @elinordrake9716 10 місяців тому

    There's no time limits....hahhaahaha. No idea what part of the U.S she was finding G.P's with no time limits!