My Multiple Sclerosis Diagnosis | MS Journey | MS Story | Multiple Sclerosis Symptoms
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- Опубліковано 7 чер 2021
- Here I start my journey battling MS and I wanted to share and document what I am doing to overcome this incurable disease. I also wanted to share my early symptoms of multiple sclerosis and the months that lead to my eventual diagnosis which has just happened.
I’m looking to keep positive and will share my journey battling MS through diet and lifestyle changes, as well as the treatment I will be going on.
I want to build a community where us MS sufferers can come together and be strong in the fight to keep this disease away!
So stay tuned for more videos and hit subscribe if you would like to follow my journey and hopefully we can learn from one and another and live an incredibly healthy life.
Let me know where you are at in your journey in the comments below and let me know what has helped you come to terms with your diagnosis and what has helped you take control.
- MS Journey
- MS Story
- MS Symptoms
- MS Diagnosis
- What is MS?
- Living with MS
- Cure for MS?
- Can Diet Cure MS?
- Overcoming MS through diet and wellbeing
- Multiple Sclerosis Best Bet Diet
These are a few of the topics I will cover in upcoming videos so be sure to subscribe and let me know any other suggestions!
Music used Lower Loveday - Seeing You Around open.spotify.com/track/6EXChx...
2 years on and I’m so incredibly proud of this young man I have the privilege of calling my son. This video just came up on my feed again and it reminded me of where we were two years ago. Incredible mental and physical strength meaning for a more than normal life now. Well done buddy boy. Love you❤️
How sweet you are. What a lovely family ❤.
I have MS as well... you got yourself a hell of boy.
You should be so proud of him
Your son is an incredibly brave and intelligent young man. I’m sure he will have helped others in their journey with MS. I wish the very best for him in the future. Xx
I’ve been having symptoms since 6-8 years old and family dismissed it. I am now 24 years old and symptoms are far far worse. Finally taking a stand and demanding answers. Nerve conduction test in a few weeks. Definitely a nervous system issue I have leg convulsions and tremors and all signs point to MS but we shall see. I’m scared but ready to get answers to get treated. I deserve this. Who disliked this, I’m SO grateful you shared your story!! Fight on
Yes sounds like you are doing the right thing and pushing it through! I know it was the same with me, friends and family and even doctor didn’t really take it seriously when I was telling them I thought I had MS a couple of years ago!! So yes hopefully at least you get some answers and then you can move on, I know for me it was of course upsetting but also a relief to know what it was all this time. Wishing you all the best, keep me updated on how you get on, and thanks for the kind words! Definitely got to stay positive and keep fighting!
How are you now?
Update
Did you have a diagnosis?
I had to pay for my MRI because the insurance company thought i should go to therapy first! Diagnosed January 2023 at 55! 😢 fighting it every day because MS didn't know who she was dealing with!! ❤❤😊I'll be honored to take this journey with you!
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters
CCSVI is definitely one of the causes of MS.
The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI:
* a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos)
* a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel
* a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction
So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases.
A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment.
The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed).
For information: Dr. Domenico Ricci cell.3393828399
MRI IN MS VASCULAR PATHOLOGY
www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
This quantification of the disease pathology will help!
#CCSVI
Venous Hypertension
>microbleedings
>iron
>inflammation
>free radicals
>neurodegeneration
#multiplesclerosis
M.S. - Mystery Solved
Mysterious Autoimmunity
= CCSVI Neurodegeneration
M.S. - Mystery Solved
Mysterious Autoimmunity
= CCSVI Neurodegeneration
Keep in mind!
Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI
Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated!
If you hadn't noticed
Who Knew??
#BloodFlowMatters
What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS
Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
#Healthcare game changer when the cause
The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease.
-THOMAS EDISON
Best possiblity easing/eliminating cause of SymptoMS!
You can relate!
If your veins are blocked they should be opened if you have SymptoMS or not!
MRI IN MS VASCULAR PATHOLOGY
www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
Who Knew??
#BloodFlowMatters
What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS!
Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
#Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated!
The doctor of the future will give no medicine, but will interest his patient in the care of the
human frame, in diet and in the cause and prevention of disease.
-THOMAS EDISON
Best possiblity easing/eliminating cause of SymptoMS!
You can relate!
If your veins are blocked they should be opened if you have SymptoMS or not!
A Vascular problem led to the crippling nightmare of Multiple Sclerosis
The real Multiple Sclerosis nightmare started at the point of NeuroDx
The disaster of diagnosis being made by general physical observation over time,.
Especially when Time is something you can’t afford #CCSVI
Multiple Sclerosis is strong and you often need help.
Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪
#Symptoms often ease/DISAPPEAR
Facilitate Collaboration Neurovascular Disease Research! #CCSVI
FB Group: MSS
facebook.com/groups/4939355…!
- Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍
---------------------------------------------------------------
# The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ...
# Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal.
People who have diabetes or who have had a heart attack are most likely to develop silent ischemia ..
----------------------------------------------
# Risk factors :
- People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include :
use
1- Diabetes
2- High blood cholesterol
3- High blood pressure
4- A family history of heart disease
5- Age (after age 45 for men and age 55 for women, risk increases)
6- A sedentary lifestyle
7- Obesity
8- Unmanaged stress
--------------------------------------------
# To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do :
1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke .
2- Prevent diabetes or manage it if you have it .
3- Prevent or manage high blood pressure .
4- Prevent or treat high blood cholesterol and triglyceride levels .
5- Exercise regularly (talk to your doctor about what type of exercise is right for you) .
6- If you’re overweight, lose weight; maintain a healthy weight .
7- Eat a heart-healthy diet .
8- Take steps to reduce stress in your life, and learn how to manage stress .
9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions .
------------------------------------------------------
By : Kareem Blinder
Reference : www.beaumont.org/conditions/silent-ischemia
---------------------------------------------------------------
#coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
Thank you for sharing your journey on MS . My husband is 69 and his MRI indicates that he has MS. He has a neurological appointment within the next few weeks. Take care and God bless you with healing and wisdom on your journey ❤
Thank you for making this! I’m going through this now. 6 years ago I thought I had MS and my MRI came back normal, here I am 6 years later with lots of symptoms one including a numb foot for 2 months. I hate to hear you’re going through this but I feel less alone.
Hey Holly thanks for the kind words! Sorry to hear you are going through more symptoms, but I would think it's a good sign that there has been 6 years where there has been little activity until no (if that is the case). But yes definitely, none of us are alone in this so we just have to stick together and remain positive!
@@tomgarbett77 I had my MRI and had lesions on my brain, next i’m going for my spinal tap. I hope you keep sharing your journey and talking about diet ect. Thank you for great content.
@@hollsbabii Ah okay well not great, but either way it is a step forward. Hope you get full answers soon! Thanks for the kind words, I will keep posting because if it helps anyone else out at all then it is worth it and I believe we can do this!
@@hollsbabii how did it go? Hope all well
@@hollsbabii did you end up being diagnosed love ?
Inspiring. I admire your positivity and strength Mr Tom Garbett. Keep on helping others with your videos, your helping to change other people’s lives like you have had to change yours. Amazing.
Thanks so much for sharing your journey with MS. I have non-MS demyelination and a very similar picture of symptoms; the first major one being when I stepped on a long nail which almost disappeared into my heel and no pain… totally numb! I’d been experiencing intermittent loss of sensation, foot drag etc but shrugged it off and kept going. The vision, balance problems were extremely gradual and sporadic. I have had remissions lasting a year or more until recently, which have allowed me to look after my kids and my mother, thankfully. I’m no longer able to walk more than a few yards and I can’t face any more drug treatment which hasn’t helped. So I’m grateful for anything nutritional and supplements advice you find beneficial. Many, many thanks for sharing yourself and enjoy your day. 🙏🏽
Thanks for posting, Tom. Be the best you can be.
Thank you so much for the kind words. But yes that's the goal!
Thank you for sharing your story
Been dealing with monster for 25 years I'm still mobile but need a cane now. Stay positive
Really informative video, Tom. Thank you.
Ah thank you for the kind words, really appreciate it and so glad you found it informative! Have you had chance to check out my other videos too?
You are a warrior mate! Stay Strong
Thank you mate, really appreciate the kind words!
Sending you all the love brother. We’re all in this together. No one fights alone 🧡
Thank you! You're right we are in this together!
Clear concise inspirational vid appreciate your insight, waiting on some results to see if I have Ms or not hoping for the best I’m ready to battle either way !
Thanks man, really appreciate that! But yes hoping you get some good news but no matter what the result you got this! Got to keep that positive mindset.
Hi Tom!
Just found your video and it resonated a lot with me. I was just diagnosed with MS (less than a month ago) and, just like you, I kinda had been expecting it for the past 2 years. And also like you, I am 27 by the time of the diagnosis.
Even though MS is not a good thing, for me, this is the biggest of motivations to get healthy like I have never been before, for sure. 💪
Thank you for your video! Will subscribe 🙌
Hey Maria, good to hear that you are turning your diagnosis into a positive! I read something the other day where someone was saying that chronic illness is the equivalent of a stop light flashing on your car. And so in that way you can see it as a positive thing that you know something is knocking your body out of balance and so you can fix it!
Half the battle is your attitude, so you defiantly got a good one! You will do well🙏🙏🙏
Thank you, but you're definitely right! Placebo effect is a real thing which proves your point!
We share very similar experiences. I'm currently in a clinical trial for Ocrevus, fingers crossed. Wish you all the best bro, stay strong!
Cheers bro! It seems to be quite a common pattern in the early stages to be honest! But yes it is looking like I will be going on Ocrevus too at the moment! Not been decided yet but should be finding out at my appointment next week.
Thank you so much for making this Tom! Really helped me to hear this as I'm currently struggling tremendously with my symptoms which have just flared up for the first time. As a 19 year old university student it has been recently been completely destructive towards my academic, social and personal life, experiencing symptoms which doctors have told me point towards MS. So I'm starting to realize how frustrating it is to be held waiting for months if not years for imaging and consultations in order to get a diagnosis. Wishing all those suffering from demyelinating diseases utmost health, awareness and mental fortitude❤️🙏
Hi David, thanks for your kind comments and for sharing! Sorry to hear that you are struggling and that it is affecting your studies. But I would definitely recommend just keep pushing your doctors to force things through so that you can get a diagnosis and then deal with it. Then you can start looking into dietary changes, supplements etc that can massively improve the condition from the research I have done. Also a positive mindset is essential so make sure you keep strong and positive!
@@tomgarbett77 Hi tom, thank you for your reply! Appreciate the feedback and would say that I'm currently doing what you advise, it's especially hard to navigate the health system when your facing a wide, vague range of symptoms that are hard for doctors to understand as they point in many directions. I feel like what you said about keeping strong with a positive mindset is definitely something that makes all the difference. All the best
@@davidsender7380 Yes definitely, I do feel sorry for doctor's at the same time, because as you say the symptoms are very vague and can be very misleading so I think this is why they are so careful in diagnosing as they don't to be wrong, but at the same time it is very hard to prove! But yes definitely positive mindset is key! Wishing you all the best too
@@davidsender7380 Yes definitely David, it is a bit of a minefield in the health system, so you just have to focus on things you can control, like diet, mindset and lifestyle! All the best to you too!
@@tomgarbett77 Yes It's quite hard for doctors dealing with patients that have vague symptoms, to form a diagnosis. For sure must take all the opportunities to be on top of factors that are controllable!
Thanks again Tom and all the best!
Thank you for sharing. Love the positive thoughts it’s so so important.
I’m going through tests for mg or ms. I seem to have symptoms from both and I don’t know where I sit.
All the best.
No problem! But yes definitely keep positive and whatever the outcome you've just got to move on and do whatever you can to combat it! All the best to you too.
Hi guys, I'm also diagnosed with MS at the age of 27 too, my left aide was strange for. 3-4 months after a physiotherapy i went to neurologist and diagnosed with MS.
Stay strong
Hey Tom, thanks for sharing your story. Like you, I “knew” I had MS before my diagnosis. I am sorry about the failed lumbar punctures. Keep taking good care of your health!
Yes it seems to be quite a common scenario where the patient figures it our and just knows before any medical professional. I know this is probably down to the fact that they are fearful of handing over an incorrect diagnosis so they have to be sure, but you know yourself when something is wrong. But yes the lumbar punctures were not fun at all, so glad I've got that out of the way for now! But thank you, you too!
thank you for your post...I just went through the lengthy and frustrating diagnosis. I have been having many symptoms over the last 6 years and they were all determined to be something other than ms. So I accepted what the doctors said until 6 months ago when I started having severe ringing in 1 ear along with severe neck pain.Well 3 MRIs and all the neurological tests later I got the shock and dis-belief like we all went through... I decided to do the infusion therapy which started 1 week ago and like you said I have MS but it does not have me....
I am going to fight through this everyday like we all are and it’s comforting to not feel so alone. People look at you like wtf is MS because until you feel the effects of it you really don’t understand....So God Bless us and keep moving forward.
Hi Jeff, thanks for sharing! But yes it seems to be very common that people struggle to get a proper diagnosis for MS. But at least it seems you are close now and you can ultimately move on. So yes keep fighting everyday, do whatever you can to beat it and you'll come out the other end a much stronger person for it! Wishing you all the best.
What an amazing person you are . I wish you all the best . Ive been having symptoms on and off since having optic neuritis 14 years ago . My main issue are my legs , lack of balance and walking difficulty. So frustrating. Im really scared too .
Ah why thank you I try to be anyway! Have you been officially diagnosed? I know it can be tough but you’ve got to stay positive and find out ways you can try to counteract the disease naturally! Are you doing anything currently?
Hi Tom- thx for doing this & great video! I was diagnosed just 2 months ago & finally got in to see Neuro. Went to 2 to interview & they differed a bit but I knew in my heart something was wrong. I was also very healthy, worked out etc. i am a bit older (54) & am floored about it. I just started Kisepmta my husband gives me. I am feeling very grateful to be on treatment & do lots of yoga to relax, get plenty of sleep & try to keep my stress low. I actually feel pretty good the numbness on my sole of my foot has never gone away it Probably won’t. Oh well so it is. I do feel like I’m managing MS and it’s not gonna manage me:) Let’s be positive & stay active!
That's a great attitude to have and I'm sure if you stick with that attitude then you'll cope just fine! Definitely keep up with the yoga and reducing stress because that plays a massive effect too. Wishing you all the best! Feel free to check out my latest video on what treatment I have just started!
Please stay strong! Praying for you 🙏. Hope you have seen the videos of Dr. Terri Wahl already. Also the iceman Wim Hof has many testimonials on his website of people with MS pretty much curing their MS with the WFM. Best wishes my friend 🙏
Thank you so much for your kind words of encouragement! But yes I am well versed in both of those approaches! I do Wim Hof breathing everyday plus cold exposure most days and I follow a slightly different diet to Terry Wahls but a similar one. So I am really optimistic with all this that I can really kick this disease into touch and hence why I am keen to share my journey! Thanks again for the kind comments!
Thank you for sharing. I am about same age got diagnosed this winter. Yeah I am quite fine with it but got some little issues due nervepain and solve it with movement and ice bathing ^^. Getting diagnosed is of course frecking bad but nowadays, affected people are quite lucky there is so much different ways controlling ure path of progression. Anyways I feel connected to ur story and that makes the truth about beeing affected by this condition a bit easier cause ur not alone with it.
Take care and I wish u all the best! Greetings from Swizzie mountains =)
I was called a liar a drunk a junkie. Never drank or did drugs. I was called lazy a bum and lost everything I had. Homelessness a while couldn't stand in line for food so I was SOL. After a decade of struggle I got a doctor to actually look at me. Of course it was simply depression or mental illness. So after some more time a doctor said hey you know what let's do a MRI. Wow what an eye opener. Now at 50 I am not even a tenth of where I should be because of discrimination and hate. I always wondered how it felt for someone to help you to get help from someone. I never experienced it
Stay strong 💯
Oh my Goodness. I’m so sorry you went through that.
@@loladeolaoye i lost my jobs but of course they made up stories it was something else...... I still suffer today because of how i was treated. i had to eat out of garbage cans for food for a long time. everyone turned their back on me. When i see these people with their stories wellllllllllllllll, not one person ever help me not one i had to fight for every meal fight to have heat in the winter even water at one point had that shut off. what a nightmare
Oh my god, are you doing okay now? Are you in a warm home?
@@loladeolaoye that was years ago. i found super kitchens to eat in they were on the other side of the city but i made it. after years of struggle i made it back. sleeping outside in an upstate ny winter is rough but some homeless guys helped me out. taught me the streets and how to survive. i went a few months without heat but the wheather warmed up. it took about 7 months for me to get the money to have it turned back on but i did it. collecting cans odd jobs... i always thought people were supposed to help people i have just never in my life experienced it. when i pulled out i made sure to help others. i always wondered no one ever helped me. i just came to the conclusion some people just get that luxury its not good or bad.
Hang in there man! So many similar symptoms and experience to my own ... hang in! You seem strong and knowledgeable so that's a big plus (my lumbar puncture was horrific, too ... but not as bad as yours! yikes)
Thanks man, I'm definitely keeping strong not gonna let this get to me!! But yes the lumbar puncture really was something I would not be keen to have done again! In fact I still have pain in my spine now from the first failed attempt! But thanks for your support!
@@mikesenior1333 thanks for sharing your thoughts Mike! But yes I kept pushing for one done with ultrasound which they did use to check in the end and they eventually got the fluid out. But yes so glad I took myself to A & E otherwise I’d be waiting forever, and it still taking me ages to get on any treatment which is why I’m making dietary and lifestyle changes to combat it in anyway I can! Have you tried any dietary and lifestyle changes?
Hang in in your positiv thinking. You have that.
Thanks you! Yes I think positive mindset is massive, so I'm going to make sure I keep on top of that!
Hi Tom! Thank you for making this video. I'm in the middle of the diagnosis process myself, going to my neurologist today to get it confirmed. I have very mild symptoms at the moment (lack of temperature sensitivity on my right side, mainly my arm), but they found some lesions on my brain and one in my spine. It's been a very shocking 2 weeks because I'm very active and only 25, but I relate to you in wanting to start treatment right away and making sure I can do everything to keep the disease at bay. You made me feel a lot less alone, big hugs from Brazil
Hey Isabella thanks for the kind words! But yes absolutely now is the time for you to hit it really hard so that it doesn’t progress and essentially stop it in its tracks! I think I’m a little further on from you by the sound of it so you’re in a great position where if you hit it hard now with diet and lifestyle I’m sure you’ll keep it at bay! Definitely look into the diet I’m on the ‘best bet diet’. I think where you are if you started that diet now, you’d have hardly any issues in the future because the diet affects it that much. But I will leave you to do your own research and wish you all the best, and let me know any further questions!
@@tomgarbett77 thank you for responding! I'll definitely look into it 😊
@@isabelablucher no problem! Like to help in any way I can! 🙌🏻
Your a hero bro❤️🙏🏽
Ah thanks bro really appreciate the kind words!
Best wishes. From Australia 🇦🇺
Thanks Sally, really appreciate the positive thoughts!
Hi Tom, I recently got diagnosed with MS back in Febuary and will be starting on a DMD called Copaxone soon as it's one my neurologist approves of for me right now, I hope whatever treatment you decided on is going well for you and just wanted to wish you all the best.
Hi Emma, thanks for sharing! But wishing you all the best, hopefully it’s the right treatment for you. I’ve still yet to have my appointment with neurologist/ MS team to decide on treatment but my private consultation suggested Ovrevus might be best for me. Wishing you all the best, we can beat this!
I would look in to Tecfidera. If copaxone stops it, that's good but Tec does it better on average.
I've been suspecting I have MS for quite some time but have not had the courage to go check it out. I am really afraid of doctors dismissing my symptoms and I get nervous when trying to explain all these random things. I had an MRI several years back after an ER visit and they found lesions in my brain. But they sent me to an ENT and an audiologist who said they can't figure out what is wrong. I gave up after that but I am now ready to go back and try to figure this out because my symptoms are getting worse and I am tired of just dealing with them. Thank you for video.
Just found your video! I am in the U.K. too (south west England) thank you for sharing, but had a completely different journey to you. I was 23 and suddenly couldn’t feel my legs. Went immediately to my GP (back when you could!!) and they saw me immediately. Did blood tests, asked me if I had private health insurance (which I did with my job) and referred me immediately. I saw a neurologist at a private hospital the following week, and they did an MRI and scanned with and without contrast. Few days later they said they had found abnormalities in my brain, so I went for another appointment with the neuro who said something was wrong, but to know for sure I would have the choice of repeating the MRI with contrast the following month, or a lumbar puncture. I chose the MRI, because it was less invasive. I hadn’t googled anything and thought I must be fine. Few days after the scan I went in to see my private neuro again, who diagnosed me. I want to share my story with you and anyone else on here that seems to be having an issue with the NHS. It’s absolutely diabolical, and quite frankly a joke. If you think something is wrong, you must get private insurance. It’s around £50-60 a month for a plan if you buy it yourself. You will be transferred back to the NHS after diagnosis, but at least my experience was smooth. I hope this helps someone x
Yes you are right the process with the NHS Is a nightmare. If I hadn't taken myself into A&E then I wouldn've had to wait a year for an MRI which is a joke. I was going to have to wait a year for a neurologist appt so ended up paying to have one privately. I'm glad though that you were one of the lucky ones and managed to have a relatively smooth process!
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters
CCSVI is definitely one of the causes of MS.
The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI:
* a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos)
* a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel
* a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction
So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases.
A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment.
The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed).
For information: Dr. Domenico Ricci cell.3393828399
MRI IN MS VASCULAR PATHOLOGY
www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
This quantification of the disease pathology will help!
#CCSVI
Venous Hypertension
>microbleedings
>iron
>inflammation
>free radicals
>neurodegeneration
#multiplesclerosis
M.S. - Mystery Solved
Mysterious Autoimmunity
= CCSVI Neurodegeneration
M.S. - Mystery Solved
Mysterious Autoimmunity
= CCSVI Neurodegeneration
Keep in mind!
Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI
Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated!
If you hadn't noticed
Who Knew??
#BloodFlowMatters
What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS
Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
#Healthcare game changer when the cause
The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease.
-THOMAS EDISON
Best possiblity easing/eliminating cause of SymptoMS!
You can relate!
If your veins are blocked they should be opened if you have SymptoMS or not!
MRI IN MS VASCULAR PATHOLOGY
www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
Who Knew??
#BloodFlowMatters
What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS!
Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
#Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated!
The doctor of the future will give no medicine, but will interest his patient in the care of the
human frame, in diet and in the cause and prevention of disease.
-THOMAS EDISON
Best possiblity easing/eliminating cause of SymptoMS!
You can relate!
If your veins are blocked they should be opened if you have SymptoMS or not!
A Vascular problem led to the crippling nightmare of Multiple Sclerosis
The real Multiple Sclerosis nightmare started at the point of NeuroDx
The disaster of diagnosis being made by general physical observation over time,.
Especially when Time is something you can’t afford #CCSVI
Multiple Sclerosis is strong and you often need help.
Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪
#Symptoms often ease/DISAPPEAR
Facilitate Collaboration Neurovascular Disease Research! #CCSVI
FB Group: MSS
facebook.com/groups/4939355…!
- Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍
---------------------------------------------------------------
# The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ...
# Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal.
People who have diabetes or who have had a heart attack are most likely to develop silent ischemia ..
----------------------------------------------
# Risk factors :
- People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include :
use
1- Diabetes
2- High blood cholesterol
3- High blood pressure
4- A family history of heart disease
5- Age (after age 45 for men and age 55 for women, risk increases)
6- A sedentary lifestyle
7- Obesity
8- Unmanaged stress
--------------------------------------------
# To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do :
1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke .
2- Prevent diabetes or manage it if you have it .
3- Prevent or manage high blood pressure .
4- Prevent or treat high blood cholesterol and triglyceride levels .
5- Exercise regularly (talk to your doctor about what type of exercise is right for you) .
6- If you’re overweight, lose weight; maintain a healthy weight .
7- Eat a heart-healthy diet .
8- Take steps to reduce stress in your life, and learn how to manage stress .
9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions .
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By : Kareem Blinder
Reference : www.beaumont.org/conditions/silent-ischemia
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#coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
Always do what you can to get the money to speed up your medical process and go private.
You don’t have anything if you don’t have your health.
You are strong young man. Stay well.
Yes you are 100% right, thanks for the kind words!
Hello! Thank you very much for this great video. I was wondering if you were diagnosed duirng the pandemic, did you have COVID then diagnosed with MS?
Thank you for sharing this.
No problem, I hope you found it valuable!
I do. Just got diagnosed myself and have had to start the (movie like) process of navigating Tysabri vs Ocrevus. Pretty stressful when I’m in pain.
@@CodeyWi Yes it is a very difficult decision, I am going through a similar decision struggle of which DMT to go on. Have you been tested for JCV?
@@CodeyWi Yes it really is a tough decision and one that I am currently going through! Have you been tested for JCV?
Thanks for sharing your story. You seem like a healthy guy that eats right and is emotionally healthy. What would be the cause for this?
Hey Tom, keep strong mate. Love the videos. I’ve been waiting to see a neurologist for my numbness and recently got a clear MRI of the head. Wondering at what stage you had the Lhermitte’s sign? Was it present from the onset?
Hey man thanks for the kind comments! Sounds like they will do MRI of the spine next right? But I got Lhermitte's probably a year after my first symptom which was just a very mild bout of numbness. Do you have that too?
I think the first stop will be neurologist and will probably lead to mri on the spine but that’s not for another couple of months. I have numbness alongside tingling and find your journey quite relatable. Thanks for sharing and continue with the content as I’m sure it’ll help many others in the future. Cheers
Hi Tom, I was dignosed with MS since i was 15 years old. Its been 16 years now fighting and learning to live with MS. Sometime it really feel bad when the symptoms comes espically when the eyes are being affected. As my symtoms are being considered not too bad all the while, thus I am starting to get my 1st doss of IV Rituximab only this mid July. As there is still no 100% cure for this, we will have a very long fight. The most important is that our mind have to aways stay positive and be happy. All the best to you. Stay positive, stay happy 😉😄😷
Are you physically active or disabled. Are u working
@@showkattantray4325 i am working part time now, am physically fit now
@@joyfulhope544 why not full time??? Have u worked full time in these 16 years.??
@@showkattantray4325 Firstly, as MS is a rare disease in Singapore i cant buy any health insurance here. Companies that i applied for need to buy insurace too. Since i am not eligible to have the insurance, the comapnies don't dare to hire me. Secondly, having MS let me get fatigues, lower back pain, headaces, night blindless easiliy. Because of all these, i tend to get many medical leaves. Comapanies dont like these kind of workers and it cost a lot of money going to clinics.
Hello thanks for sharing your story! But yes it definitely is all about staying strong and keeping a positive mindset. I am doing so much research into how diet, nutrition and lifestyle can help to halt MS so definitely keep an eye out because I think you'll find it very interesting. I am really optimistic that we can beat this thing! All the best to you too! :)
Thanks for sharing your journey. I was just diagnosed with MS a few days ago and am just in the processing stages. My first symptom was the optic neuritis and everything you were saying you experienced about that mirrrors what I’ve been going through. It’s nice to know I’m not alone and will be watching your journey and wishing you the best.
Thank you fo sharing! Sorry to hear about your diagnosis, at least you now have peace of mind that you know what it is. Now is your time to accept what's happened and move on - keeping positive mind frame and try and do whatever you can to combat it! I would defintely look into the dietary changes I am making because from the research I have done, the positive impact can be massive!
@@tomgarbett77 thanks for responding! I will definitely be researching nutrition and will continue learning from you as you share more. Thanks again for your openness about your MS experiences.
@@mdlmomo3684 No problem at all, wishing you all the best! And yes definitely keep watching my videos and stay in touch because if anything I post can help you then it's worth it! Wishing you all the best
@@mdlmomo3684 That's great, definitely do your own research! I will try to get out as much value as well to help you - and will keep sharing my journey. Thanks for the kind words!
My Nerves could have done without the music blaring in suddenly at me , but thank you for sharing anyway.
Apologies didn’t quite get the levels right there!
Yep similar symptoms as many have mentioned & yes we've all been dealt a rubbish hand and are unlucky but I say often that the diagnosis as horrific as I found it initially has given me the gift of living life to the fullest & doing things I otherwise wouldn't have. My MS has progressed to secondary since diagnosis approximately 23 yes ago. It is what is & there is still so much unknown. Its similarly to COVID is staggering & it's only because of COVID'S onset that people are more understanding.
Completely agree, you have to take a diagnosis like this and turn it into a positive. For me it has made me completely switch my approach to diet and mental mell-being that I think will actually massively benefit my life from here onwards! You've got to try and gleam out the positives no matter how dire the situation. Yes definitely still a very unknown disease similar to COVID in that sense and the effect it has on the immune system overall. Great to hear you are living life to the fullest, just make sure you keeping on doing and that's all that matters! Have you been offered any DMT's?
Hi Man, thanks for this video. I have the same situation as you did... Have basically confirmed verbally and in letter form but do not have an official diagnosis. I have been doing everything to get the lumbar puncture but it's proving hard. Had 3 MRIS with contrast. Feels good to not be alone!
Yes don't worry man you're definitely not alone! Wishing you all the best, it does take a while to get diagnosed, but I would say do what I did and act as if you have been diagnosed so that you can start making positive changes to your lifestyle and diet now to positively impact the disease if it is confirmed! Did you have a lot of action on the MRI?
@@tomgarbett77 Hey Tom; thanks for replying! Had 2 legions the first time around then 2 years later a third, I don't know too much about all of this stuff but that doesn't sound too bad to me yet... I think! I am terrified about the Lumbar as I hate needles etc so that won't be a pleasent one i'm guessing!!
@@sammbate2962 Hey Samm, but yes I would say from what I know that 3 lesions in total across two years is very much on the low side which is great for you! That's probably why you are finding it difficult for them to push along because they probably don't feel it is urgent enough, which is frustrating as that was my exact situation at the start of this year! And yes lumbar puncture is definitely not fun but necessary! I was pretty scared before but now I've had 3 so you just learn to deal with it and overcome it!
@@tomgarbett77 You are right but that's whats so annoying because If i start the DMT's now it will take a lot longer for it to progress! Looking into doing HSCT before any disablity sets in... Not sure how you qualify to get it on the NHS or prehaps a clinical trial!
@@sammbate2962 yes I think HSCT would be the best option and that’s what I would love to go on, but like you say it is hard to get on the NHS 😑 I think they offer it in some situations if DMT’s don’t work. I’m definitely going to ask my neuro what the possibility is.
I get numb patches in my back when I feel like I have a muscle knot! I never thought of that as being MS related, kind of makes sense now lol. A years wait for a diagnosis is insane, I had no idea NHS was that bad. I'm in Australia, I couldn't get an MRI for my optic neuritis unless an emergency came in for me to tag along with because it was a long weekend when I was admitted and they didn't want to give me steroids until they did the MRI but then I became the emergency because I completely lost all vision in my left eye and next to no vision in the right and I was just thinking omg thanks now I'm blind forever! I fully recovered a few weeks after the steroids though. I guess my diagnosis and treatment was pretty quick then, it just felt like forever being stuck in hospital for a week and not being able to see.
Sounds scary that you went totally blind in the one eye and almost totally in the other but glad you regained your vision fairly quickly! But yes it seems they don’t really take you seriously until they consider it an emergency which is frustrating but on the other side there are probably loads of misdiagnosis’s that they correctly put on the back burner because it is very hard for them to diagnose… just incredibly frustrating when you want answers asap!
Hi Tom.thanx for sharing your journey.do not give this bug the satisfaction it wants.you are a handsome young man and i strongly believe in that saying...why not me.the Lord knows who is strong enough and we can be an example for everyone specially others with MS.🙏
Thank you so much for the kind words! But yes you're exactly right, we've got to make the best out of what we are given and turn a negative into a positive and make you a stronger person. I already feel like it has changed me so much for the better as a person, so that helps me see the positive in my diagnosis! Wishing you all the best 🙂
@@tomgarbett77 thanx.i have MS now for 6years and had to stop my full time work as a hairdresser after 25 years and although that was not my ideal and alot of tears and stubborness...the Lord gave me so much more.my daughter is wrinting her matric now and i can be at home and be there for my family and spent much more time on my hobbies and when tired i can just rest.
@@petro3441 That's a shame that you had to give up your job, but at least you have managed to turn that into a positive and be able to spend that time on other things that will make you happy. Always got to try and turn any negative in life into a positive!
@@tomgarbett77 positive we will be😉🥳
Hi tom , thanks for your story. A very strong young man. I’ve been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now? Such a hard time!! Thanks
How are you now?
How are you doing now?
I've been having really bizarre things happen with myself lately, and they all seem to point at MS and I'm getting a bit freaked out. I could barely walk today, suddenly, along with inner body crazy vibrations and dizziness. Little things like this have been happening more and more frequently and the doctors in the ER just nudge them off with no reasoning. They just go away and come back suddenly and severely.
Great video tom x I've had symptoms for 24 years, still cant get a gp to send me to a neurologist.
Hi Linda, so sorry you still can’t get a neurologist appointment! Do your symptoms affect your daily life?
@@tomgarbett77 yeah, spasms (MS HUG ) have to stand still cant breath for 30 seconds, wakes me during night. Eyes blurring, occasionally double vision, numb patches, itching skin, joint pains, now bladder problems. Been told its fibromyalgia, ME, chronic fatigue etc. Need to see a neurologist, willing to.pay but still need gps referral, can u tell me how much your private session was.
@@lindaaitken8579 Yes I would say from your number of symptoms it sounds like you really need to push to get an appointment ASAP. Can't believe the doctors are fobbing you off. My private appt cost £250 which was a lot but in my eyes completely worth it to get the ball rolling quicker. I didn't need a referral either I don't believe, I think I just booked in if memory serves me right.
nice video. did you have mono or glandular fever beforehand??
i got diagnosed w/
MS April 2021
Sorry to hear that, I hope you are doing okay. At least you know now what it is though and you can move on and do whatever you can to keep it at bay! Hopefully you'll find my videos useful because I talk about many different ways we can combat MS holistically.
Hey Tom , talking about your journey is the hardest part.. gotta have lot of courage to do so.. which drug are you on now ? DMF ?
Thanks Archie I do think it helps though in a way and can be quite therapeutic… I’m still not on any dmt there are discussions of me going on ocrevus but I still haven’t had confirmation from the neuro. At the minute though I’m in control of all symptoms from my diet and lifestyle changes luckily. Have you made any similar changes?
Diet and lifestyle changes... Total makeover of everything...
@@archie2217 Brilliant, I definitely think it is the way to go and hit it from all angles! Have you seen benefits?
Hey Tom
Doctors have done an MRI and nerve conduction and think the numbness tingling is carpal tunnel in the hand but have no explanation for other symptoms. Wondering if you ever had a clear MRI through your diagnosis process?
Hey so no with me when they did an MRI they found demyelination which suggested MS. Althugh they had previous thought I had cubital tunnel syndrome which is the same as you but the other nerve in your arm. What are your other symptoms?
@@tomgarbett77 I get numbness in the foot on the same side and numbness in the face on my right but it’s all acute. Guess I’ll have to keep testing. Keep up the videos man, you’re helping many others out there and hope you kick things butt! All the best
Hello, I m in the same situation, not diagnosed yet , my symptoms also started in my arm , elbow and fingers.I have cervical lessions (2) , and a few spots in my brain(4-5 size around 3-4mm). I m curious what should expect from this disease . I ve been watched your videos, You said that also have lessions in your spine. What s your thought about having these lessions in your spine? Next month i have an appoiment with my neuro if she ll make the diagnose I wll ask about Ocrevus.
Yes sounds like a similar position to me, although I wasn't given size specifics of lesions to you! I think it's very hard to predict it sounds as though it affects everyone differently. So I think this is due to everyone's lifestyles being different because there are clear links between lifestyle and MS. So I think it's all about learning about these factors and changing your life accordingly to stack to odds in your favour. So this is looking into diet, Vitamin D, Fish oils, stress levels, sleep etc. These are all factors you can change to stack the odds in your favour!
Let us know what DMT you're going to get, if any. And if you feel like telling us, of course. :)
Yes I will definitely be sharing that and how it works for me! I am still awaiting my appointment to go through the different options, but I will definitely be posting updates :)
I have a benign tumors r on my spine.I am Gettingb symptom that stab me through the legs fown to my toes.lts like electrical shocks.
MRIs with contrast only way to truly detect it too
CT scans aren't enough my cousin had to near BEG to get his you have to be demanding too
Yes, It is really hard to get an MRI. I knew I needed one to confirm but the doctors didn't want to give me one. Eventually it wasn't until I took myself to A&E because of my visual issues that they did an MRI and saw de-myelination. So frustrating but you definitely have to push for it or nothing will get done.
@@tomgarbett77 and on top of that Docs won't say what's up they often say everything is fine unless there's obvious bad matter showing
Yes, My son had a lesions on his brain, on his neck and 1 in the back of his eye.
I will not be getting a spinal tap no way. Thanks for sharing
Yes it wasn't fun at all!
Hey how do you feel now???
Heya, I'm in the UK too. And wondering how much you paid for private consultation?
Im trying to get tests etc done for my symptoms. I don't know whether this is ms. I've been on the waiting list for conduction tests on my carpal tunnel nerve for over 6 months and still got no date yet. Since then numbness has happened in my ulnar nerves and both legs too, but the Dr refused to change my referral to add them on to be tested. Dr basically totally dismissed me. So next week I'm going to book in with a new GP and see if she will help me. I have cognitive problems and urinary problems too that seem to suggest ms to me. But the numbness is after compression like bending my arm etc and goes away after a little while. Rather than numbness for weeks/months. Also I have temporary weakness in arms and legs. So I don't know if they fit with ms.
I'm so stressed and emotional daily about all this and just want to know what's wrong with me :(
Hey Katy, sorry to hear this getting you so down and stressed! But sounds like a very similar situation to what I was in, where my numbness was ruled as cubital tunnel syndrome. So I would definitely advise going private if it is worrying you that much, my appointment was £250 though so not cheap but I needed to get the ball rolling quicker. What helped me as well was that I went to A&E because of the vision problems and they did an MRI and discovered demyelination which really sped up proceedings. So yes whatever you do I would definitely advise doing whatever you can to push it along, because the emotional stress it’s puttin you under really won’t be helping! Hope that helps, let me know if you have any more questions!
@@tomgarbett77 thank you so much for your reply :)
And yea I hadn't thought about going into a+e before to get MRI faster! I'm going to keep that in mind for whenever I see the opportunity!
Did you just Google to find your nearest private neurologist? I'm in South Wales xx
@@kath3832 No problem Kath! :) Yes I didn't either, but my sister is a nurse and when I told her about the situation that I was struggling to get seen, and that I was convinced I needed an MRI, she told me to go to A&E because once you're there they kind of have to see you and get stuff sorted. They usually take numbness quite seriously too so if you go in with that they likely will see you and get an MRI done. They might keep you in overnight though, because that's what they did with me until they can get an MRI done.
But yes I pretty much just googled private neurologists and did it that way! Wishing you all the best!
I think i have it. My doctors being lazy and isn't really focusing. My symptoms are left arm numb, left eye vision loss, left leg numb when walking :(
That's really frustrating that your doctor isn't helping you very much. But does sound like your symptoms should be taken seriously, so just keep pushing to make sure you can get an MRI done, as that is usually when the penny drops and they realise what is causing all the problems.
Diagnosed 2 weeks ago :( also ON, 27, male, also incredibly healthy - dont smoke / dont drink / not obese / vegetarian most of the time... feels horrible.
Yes it can be tough to take, but you need to stay optimistic and positive! In my experience so far that has really helped me be happier which has in turn made me healthier!
@@tomgarbett77 Definitely been binge watching your content :) Love the channel! Also planning on fighting it as best I can. Following all the recommendations and hope to take Ocrevus if possible! A healthy body is at the very least a good foundation to fight this disease long term.
@@__Wanderer Yes thats the best attitude to have! Glad you like my content enough to binge watch it! Haha
@@tomgarbett77 It's great to hear your perspective - I felt thrown in the deep end - my neuro essentially talked to me for 10 minutes and provided zero information about what it all means. It's been a month of scrambling for information / reading scientific articles :)
@@__Wanderer yes it can be very frustrating because they can be very dismissive and de-sensitised to it because they deal with it every day. So definitely get involved in communities like this on UA-cam and elsewhere as I have found that really useful’
I have different symptoms, numbness, vertigo, imbalance, headaches, tingling, short memory loss, difficulty to swallow and nystagmus, and it was written in the brain MRI report that I had "Small nonspecific left posterior parietal white matter focus of T2 and FLAIR hyperintense" yet the Neurologist said that the brain scan was normal, so he didn't ask for spinal scan because my brain scan look normal, maybe I'm at the beginning stages of MS? but I don't believe that's the case because I had some weird symptoms in the last 5 years, did you have similar result to your brain MRI ? and do you think I should ask for spinal MRI and lumbar puncture? the doctor told me that he's going to do another brain MRI in few months and I don't know what to do, should I wait for few months or ask for the spinal MRI and lumbar puncture? I'm really tired :(
Hi August, but yes that sounds interesting that the brain scan is coming back normal. "Small nonspecific left posterior parietal white matter focus of T2 and FLAIR hyperintense" would suggest they have found something, but that at this stage they would not characterise as MS. However I would say a lot of your symptoms would resemble lesions in the brain and not the spine which is probably why they are focusing more on the brain. So it is a difficult one, I would suggest though that if it really affecting you mentally and physically then do all you can to push for a spine MRI and Lumbar Puncture. Because I am so glad now that I pushed everything through quicker, because if I hadn't then who knows I might have been waiting for a diagnosis for years and letting the disease progress further. So I think it comes down to how much it is affecting you because you shouldn't have to live life with that hanging over you constantly. Wishing you all the best though, let me know if you need anymore advice!
@@tomgarbett77 I told the neurologist that I suspect MS and I need more test, he let me take brain MRI with contrast, he said if you have it it'll show on the results and he referred me to a family doctor to do more blood work to see for any other possible causes, I'm still waiting for my next appointment, you see I'm not worried if I have MS in fact I probably be relieved if I did, it's the unknown factor that I hate, having weird symptoms and not knowing the cause, I think the doctors in your case and mine are afraid to rush into diagnosis , because I read that some people were misdiagnosed with MS.
@@augustt8282 Yes this all sounds very familiar to me, I was actually relieved when I was told it was MS because like you I just wanted to know and didn't want it to be anything more sinister. But yes the MRI with contrast should be good as that will show if there is any activity or not. So fingers crossed you get that appointment and your results soon! But yes I think they are definitely scared to misdiagnose, which is probably the right thing because some of the MS treatments can worsen other conditions so they need to be absolutely sure and unfortunately there is no straightforward test for it.
Are you from Worcestershire? I recognise you?
Hi Tom the best you did was go straight hospital especially during attack The neurologist always seem have issue with appointments My first attack was worst but threw years it's my MS milder now But still never like they way it before MS different now We take better care ourselves make sure we take right vitamins get excercises less stress some sunshine Did you think hereditary Tom my Mom has isolated syndrome MS it only occurred once It prevalent among Scandinavians Engish Scottish Irish I feel it could be hereditary it's just my opinion Thanks for sharing your story Tom 😊
Yes definitely so glad I went to the hospital! That’s good news that your MS is getting milder, have you been doing any diet in particular to help it? But yes vitamins and less stress definitely a factor, Vitamin D especially which is why it is so prevalent among Scandinavians and UK where sunlight is weak. But yes I definitely think there is a hereditary factor that makes you susceptible to the disease, but then external factors like diet stress and vitamin D cause those genes to be triggered to create the overactive immune response! ☺️
@@tomgarbett77 Hi Tom my deit is vegetables seafood chicken no red meat fruits Vitamins supplement are B12 liqued and amino acid capsules turmeric vitamin D and calcium Whole body herb for joints All from the Vitamin Shop I see difference most with B12 Vitamins I was on Rebiff for few years So MRi was good every year so I eventually stop taking it I felt it wasnt necessary and to many side effects also I was born in North New York City it's cold most time But I actually moved to Florida to see if there was a difference and there was big difference of the way I felt expect during July August weather extreme heat . But its wonderful here I still have my house in New York but havent been back lately I weary about this MS drugs to many of them cause Brain infections What is that all about Tom ? They actually approve these drugs from FDA Hopefully is there some safe pill I might take again in future😊😊
@@juliettesleeve7452 Sounds like you are doing a great job with your diet which I think will be helping you massively! Do you try and cut out gluten and dairy at all too? But yes the extra sunlight in Florida and warmer temperature will definitely be helping you to keep your vitamin D levels good and with all the other benefits of sunlight. (Very jealous of you by the way having a house in New York and Florida!! 🤩) But yes the treatment options still aren't great - I'm over in the UK and it's looking like I will be going on Ocrevus which I don't think has any links to brain infections so hopefully that will work well for me. Although I am convinced the diet and lifestyle changes make more of a difference than the treatments options!
@@tomgarbett77 Hi Tom thank you I try best I never really drank whole lot milk anyway I have almond milk with my coffe thats about it I have muti grain english muffins I going to be doing my grocery shopping today Your jeouslous Its was experiment first to see how I felt Sunshine does help Its summer all year round here in South Florida I'm in Delray Beach ,Palm Beach County Its opposite New York lifestyle. You know Tom you mention that MS medication I think I going to be taking it to Sounds good when I go Neurologist again ask fo prescription We be taking same medication at same time Thank you for important information Your UK wonderful there so many beautiful villages love it! I remodeled kitchen here during summer and it look so pretty to My mom was here to help out Workers took more time than I expected I put Grey blue Quartzie countertop I think make appointment now to Nerogurogist Talk again Tom 😍🌴😍
@@tomgarbett77 Hi Tom this medicine
is an infusion How long does last before next injection is taken I thought was pill I didn't notice just read side effects earlier sounds okay 😍😍
How long did the vision loss last?
It was around about a month and then it started to improve and by about two months it was back to normal, fortunately!
WOW!!! THAT MUSIC IS LOUD!!!!!!!!!!!!!!!!!
Carnivore diet is great for autoimmune conditions
A year's wait? Who waits a year for any kind of appt?
I know, it is crazy really, especially when it is something as serious as a neurological disorder!
I’ve had MS for 25 years. Hard slog but discovered Dr Joe Dispenza. Please watch his testimonials and read his books.
Hi Tim, thanks for sharing that I will definitely check him out because I haven't come across any of his content before I don't believe! What kind of things does he suggest?
@@tomgarbett77 Hi Tom, here something to have a listen to. I recommend his book, "You are the Placebo" but you must look at the hundreds of testimonials here on You Tube. ua-cam.com/video/jI1hqSm0N6k/v-deo.html
@@timwilks6574 thanks for sharing that Tim, just watched the video and found it really interesting! Definitely going to look into it more because it is fascinating stuff and I do believe it to be true. I was definitely stuck in a rut for the couple of years before my diagnosis and was putting myself under so much stress without realising so I definitely think the mental side of things is a huge contributor.
Covid vaccine?