More MS Symptoms
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- Опубліковано 21 гру 2016
- More MS Symptoms
In this video I will be going into more depth about the symptoms that I had prior to my diagnosis as well as how my symptoms progressed further.
If you are feeling generous please donate to my Patreon. It helps me to continue making these videos.
www.patreon.com/MyJourneyWithMS
For further information about Multiple Sclerosis please contact The MS Trust or the MS Society.
www.mstrust.org.uk/
www.mssociety.org.uk/
This video could not have been made without the help of Martyn Greswolde at Fresh Mint Films.
Thank you Martyn.
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Hi paul. Im a medical student and i would like to thank you for taking your time sharing this stuff. It helps me a lot in learning this disease
I appreciate how you do your video. You sit still. You have great color distinction and simple horizontal visuals. You don’t edit it to death with abrupt stops and restarts. You are calm and well spoken. Ahhh. I can focus on what you’re saying. THANK YOU.
This is interesting to watch as this seems to be like how the visits to the doctor's should go for women too. But normally not...years of misdiagnosis and hypochondriac label seems to be the "normality" for women. Love seeing that you got your diagnosis and are getting treatment! You have a very good GP. It makes me hope that I will have the same. Thank you for sharing!
Brave man. I’m sitting here twitching and having pins and needles pain all over whenever I get tired from many kind of activity now. Thanks for being there for so many.
I've got tingles all over and chills and in my back and arms especially
Hello Paul. My 15 year old son,who is also my caregiver, Introduced me to your videos. I was diagnosed with MS in 2016 and I have been through EVERYTHING that you have been through. 2020 I can no longer walk drive or work. My name is Grace KinCannon. I live in Houston Texas USA
So sorry about that. But have you tried herbal medicine ? Is gonna improve... I can recommend you to a herbalist
@@barraqaalim7459 that won't help
Have an urgent neuro appointment later today as I developed optic neuritis a few days ago, urgent referral from the opticians.
Now i'm down the rabbit hole having learned that 20% of people diagnosed with Optic Neuritis either have undiagnosed MS or go on to develop MS. Odd symptoms I've been having but dismissed to being tired / overworked etc are now sounding alarm bells. For example: A few weeks ago, I woke up and my entire left leg was numb and tingly for a good few days. I assumed I'd slept funny but now, dunno. Every other day my limbs ache like I when you have flu etc. I have constant brain fog and if I don't get a full 8-9 hours sleep per day, I barely make it to 5pm before being so tired I have to lie down.
I'm 37.
God bless you brother for sharing your news. I hope that you and everyone who is suffering from MS or other health issues are finding therapies to help mask the pain and to be able to live again and not just exist in life!
Thank you for sharing.
Thank you for posting this. Very brave. I was inspired by your videos.
Thank you very much! It is inimaginable the help you can give just by sharing
Thankyou wishing you the best!!
Bruv, keep on doing the videos, they are very informative!
Hi Paul. I have watched some of your videos. As a medical professional I would like to say that I think your GP is a very valid colleague and that I hope you acknowledge his or her value. Best of luck with your future endeavours.
Are you a medical professional?
Thank you sir.
A lot of you're symptoms are like mine, treading up the hill (i felt for many years i was stuck like glue) a saying i used to say, before i was diagnosed, ty, this video helped :)
Thanks for the video, Paul. Very informative and appreciated
God bless you bro. Thanks for sharing
Thank you so much. You’re really helping me. I am awaiting to see someone. I have been referred to a cfs service but I know it’s so much more than cfs. Xxx
Paul, thanks for these videos. I am currently pre-diagnosis but about 90% certain I have MS due to my symptoms. I am going to an MS clinic in a few weeks. Anyway, I appreciate your honesty. The videos give people an idea of what they can reasonably expect, even though the effects of MS vary considerably. You have an excellent T-shirt collection, BTW. It reminds me that despite what is happening to our bodies, we still retain our essential selves.
These are helpful thankyou. I'm on my diagnosis journey at the mo. I've started having serious seizures as well so I will be shortly having emergency MRI. All my case workers think it's ms, so do I, so just waiting to see. Thanks again. Your symptoms are same as mine too. Hope you're well xx
Nice clear information well presented.
Thanks for sharing your story Paul....my doctor recently told me that I have Fibromyalgia, but after listening to the symptoms that you described, I'm almost certain I could have MS....the one thing that you described was how you remember things, but don't know WHEN they happened....another scary thing that I go through more often now is, for example, I will be in a place I know very well....then all of a sudden I have no idea where I am...it's a very scary feeling...I will be just standing in one spot totally blank :(
Hi Paul 😎 I'm waiting to see a neurologist here in Canada, had another MRI and was diagnosed with White Matter Disease, I had all the symptoms of MS, so seeing my GP Tuesday and hopefully the Neurologist soon! Your videos help ❤️
Everything u said I went Thur thanks for sharing
I’ve had a sleep disorder for 4 years and my friend at work recently got diagnosed with ms, and we have similar symptoms, and the early stuff you talk about is basically what’s happening with me, I haven’t lost the use of my limbs entirely, but sometimes I wake up and it feels like wading through water, and today for like 3 hours I had the same thing, couldn’t walk without holding onto everything so I didn’t fall, because it feels like something is like dragging me down or I have weights attached to my legs and it’s exhausting and my breathing gets more laboured. I went to the doctors about my sleep issues but they just said to get a better schedule, which I try and do but uni makes that difficult, and a bf who stays up playing war zone all night and won’t let you sleep. But now my main units are out of the way I’m gonna give myself 2months to do everything right, and if that still doesn’t work I’ll go back to the doctors and maybe ask for an mri or say about my carpal tunnel and inability to walk and loss of vision and brain fog and memory problems
Thank you for explaining the way u experience I have been diagnosed in 2018 with MS. However, I think I had it for much longer than I was diagnosed. The migraine half headache were severe and lose my consciousness with pain
Im concerned I may have MS... im seeing the slow decline that you've been describing... ill definitely be getting checked out...
Do u have it?
Thank you for all this information . very informative for what's happening to me. It's just crappy that my Doctors aren't taking notice when I tell them something isn't right. especially the electric shock that I am feeling. What about night sweats and cold Chills? have you endured that?
Paula Kaiser a
Sometimes you have to get downright rude.
I didn't challenge the extreme fatigue, leg weakness and falling, ankle swelling, bladder leaking, severe depression, low vitamin D3 now I have MS because my doctor is a dumbass.
I can't wait to see her tomorrow.
As someone recently diagnosed with MS, videos like these hit way differently. Hits home hard.
I have just come across your video diaries and they are amazing. I have had a few MRI's done. I have Central Canal Stenosis. I struggle with control of my body. I have severe weakness in my right arm and right leg. I lost the full use of my bladder in 1993. I did not know why. Your story sounds a mirror image of mine. What do I do x
Hi Paul, I have been experiencing very similar symptoms in my body over several years... I really would like to have access to your whole series. Would that be a possibility?
Kind regards, Marianne.
Thank u for sharing 🙏💜 it’s very helpful for those of us who haven’t gotten a MS diagnosis but feel our health deteriorating I have all the MS symptoms & have found some relief of tingling & neuropathy from high dose 1500 mg B1 Thiamine & 3/4 teaspoon potassium powder daily in case that’s helpful for anyone else
I was diagnosed March 2013.
Symptoms started fall 2012, with optical neuritis, being the first. Then I realized I could not jump on a jump rope; I couldn’t run. I shrugged off these symptoms.
But when I started seeing a cloud in my right eye, or double vision - I was told to go see an eye surgeon.
After MRI, he calls me to tell I have MS. I had no idea what it was. I googled it and was dumbfounded about this disease.
So how are you doing now... Any improvement?
@@barraqaalim7459 No new symptoms but the old ones (extreme fatigue, heat intolerance, speech hardships, cognitive difficulties) are still here.
In 2018 I had HSCT, Hematopoietic Stem Cell Treatment in Moscow, Russia - that was to stop further progression of the disease.
An MRI six months post showed no new lesions. So the stem cell treatment was successful for me.
However, I did have very many lesions up until my treatment. And I got to live with that.
Ok that's cool I wanted to recommend you to a herbalist who cured my Dad from ALS with his herbal medicine formula
He has cured so many diseases... I believed he can cure yours too
Email drokolosolutioncenter@gmail.com
Great info Paul! Glad you’re doing good. Now these symptoms...were they a constant symptom or were they come and go throughout the day? Almost like episodes? I have similar symptoms along with blurred vision, slight confusion, very blah, left arm or left leg very tired randomly. But they only last a few minutes and then I’m fine. This seems to happen about 5-7 times a day...these episodes. So were they episodes or constant? Thanks bruva.
Randy Samiz did you ever get a diagnosis?
Did you lose your appetite? I eat about a quarter if what I used to. Have half a dozen other symptoms as well. Short term memory is worsening and I even lose entire days.
Any chance of a follow up video? Hope you’re doing okay
Hey I liked the video, but idk if it's just me, but I think a lot of people watching have MS, and let me tell you this video made my optics mess up big time, haha, the background kept moving away from you.
Nice shirt
I have the same symptoms for 3 months but no numbness and a bad back on the right so really hoping it’s just a back problem.
Hi mate thanks for the video it was quite informative. I'm suffering from some of the symptoms you mentioned and a few others. My symptoms are getting worse and I'm at the point where I need to go and get checked out but another part of me doesn't want to.
I recall back in 2010 that I was always fatigued every afternoon. After work I would lay down then I would wake up with my back covered in sweat. A year later I was suffering from cognitive issues, slurred speech, balance issues and hot spots over my body.
I'm researching as much as I can and I believe MS if a result of a viral infection. It seems there's no evidence that can quantify this disease, or it's just that pharmaceutical industry led research is piss weak.
Andrew Gallagher. I have same issues.. Started with fatigue then would get horrible brain fog and sometimes pressure in my head and behind my eyes and now a week ago got tingling in my feet etc. And tremors in my right hand...IT SUUUUUCKS. Need to get looked at.
Its bin a year that I get a weird feeling in left side frm head to toe rarely does it pain but for balance I have to consciously keep it otherwise wd slightly trip if nt fall. My bp was shot to 180.140 my concern is I cannot use my left hand and feet like before do nt feel like typing coz do not understand touch palm and feet hs less grip and sensation. Is it something serious? Also have brain lesions which are calcified granulomas with ring enhancement have no clue if its serious? Pls advice!!
Are you able to work? What are you doing/taking to feel well?
Please let us know how your doing!
How often do you do you get brain fog? I'm curious cause I'm undiagnosed at the moment but I have alot of symptoms you have. Right now I'm finding it very hard to concentrate and driving has got me pretty anxious lately. When driving I just can't think of who's turn it is to do what and lots of stuff that I learnt years ago sometimes gets me confused and it's super frustrating. This has actually been going on for weeks now and I'm hoping it's just going to be magically gone one day.
I generally get it on a daily basis. It's exacerbate with LED and super white lighting.
Hi, thanks for sharing your videos. I've had extreme brain fog, fatigue, tingling in left side only , hand and foot, shooting pains. I'm going for an emergency scan as soon as I can. My doctor doesn't know what's causing it, but it could possibly be m.s, I'm at a point in my life where I'm so terrified.
Hi. How are you doing? I hope you're okay :(
Same i am really scared hope they find a cure forever for this disease
i have told all doctors and they find nothing
i have those symptoms now worst i went numb from shoulders down then gradually only from hip down then my left leg numb since 2016
now am worst went to neurologist got brain mri ent doc said i had brain plaque neurologist said no and laughed yet my muscles or whatever is getting worst am stiff and in great grest pain
Hi! You might have fibromyalgia which I am currently suffering from
Hello, the electric shock in the feet was it like a vibrating feeling? I’m getting like a vibrating feeling in the heels is how I can explain it ty
I have MS, It’s different for every single person But mine is like a vibration that progresses along my feet and tingles a lot, this is a strange question but when you go in the Bath or have a Shower does your feet burn intensely?
peter cleo no they do not.
Tiffany Gomez that normally means you don’t have nerve damage
peter cleo ty for your quick response
@@Barnabydemossienaux i alsp have tingling in my feet and odd sensations like crawling same with my scalp/head. I have some pain too when i am in hot baths lately though not that severe but there is pain and it also goes red. I also have pins and needles when hot, like being directly under the sun or next to a heater, in my upper body like an itching but under the skin, and when im anxious and nervous since 4 years ago. Im anxious right now that I might have MS...
Shit.. I might have MS. I have an appointment with a rheumatologist soon. Should I mention my concerns?
So what happened
See a neurologist not rheumatologist.
Yes and then see a neurologist specifically for MS
how are you?
i had similar symptoms for a while and even went to see the doctor . but they say it is arthritis . my legs tingle and feel a bit numb from the knees down . also i have more trouble walking and steps . but am 72 years old so feel this is all normal ?
Marianne Lottes I’m 67 and have the same.
When you say you felt numb, is that the same as tingling? Or do you mean numb as in dead?
He had symptoms of paresthesia (numbness and tingling), which is common sensory symptoms with MS