come to the cancer clinic with us 🩺 | oncologist appointment for BRAF V600E inhibitors vlog
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- Опубліковано 7 жов 2024
- I had an appointment with a chemo oncologist at the cancer clinic today to discuss the BRAFV600E inhibitor medication. I thought I'd vlog today instead of a sit down update video 😊 A very strange appointment... but we're glad we won't have it again any time soon!
My brain tumour was a grade II diffuse glioma with BRAF mutation - this is a specific as they can be with me unfortunately . It's not the xanthoastrocytoma that the doctor referred to it as throughout the appointment.
I will be sharing my brain tumour Facebook group soon 😊💗
If you're also going through this right now I'm here for you ❤️ If you want to chat please feel free message me on instagram @diaryofeireann
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Never stop asking questions. Always advocate for yourself. Please, if you can, get a second and third opinion.
Best wishes!
Thank you 😊
@@diaryofeireann 💯% agree, he may have been nice, but sounded as he was ill prepared for your visit. As this is your life depending on these doctors, don’t let them try to intimidate you into not asking your questions and if you find they do, my only question would be “Do I need to get a different doctor, one who has answers?”. They are the cancer oncologists, the professionals, they should be prepared to answer whatever questions you have!
Agree, please keep standing up for yourself. Get as much information as possible. I was diagnosed with a brain tumor last October. The first neurosurgeon said to operate right away. Better sooner than later, it could just get worse anf he scared me and my brother who kept me company. We decided to get a second opinion and saw a neurosurgeon who is known to be the best in this field. He said he wouldn't do the operation now and we should monitor it with frequent MRI's. Right now he would do more damage and its right at the brain stem which is pretty tricky. But he assured me even if the tumor gets much bigger he could still do operation. First I didn't know if he was just confident or arrogant but I trusted him and I decided to wait. I wish you all the strength in the world. You're very brave and strong and you're in my thoughts ❤b
Yes, I agree to ask all the questions as necessary. Unfortunately, some doctors may label you as having anxiety in their chart. Then other doctors see those notes and if falls into a circle of doctors thinking you have anxiety disorder and symptoms may contribute to those conditions. I've had that happen to me before, and I don't suffer from anxiety at all! I'm just making sure I'm understanding everything before I take x meds or x procedures.
Stand up for yourself please ❤get another opinion and an other one sending you love 💕
I'm hoping this video reaches a friend or family member of the greatest neurologist on earth and you get connected to someone who really knows what they're doing ❤.
Australian Dr Charlie Teo
Houston Methodist!!
Pat did they finally let this poor girl know if it’s benign or malignant?
I am a neuroscientist, how can I help?
In all honesty though, I do not deal with cancer very much. Sure, as I doctor I do. But as a scientist I am specialised in pain and functional stuff (BCI). What would be interesting for me to know though is her pain management. Did she mention that she was put on opioid medication this early on? Sure, for surgery. But if the cancer pain gets worse she would definitely talk to a pain specialist.
So yeah, I could be helpful in that regard. I practice in Germany though.
It’s better they don’t tell you how long they think you are going to live. I asked mine and she didn’t tell me, a year later she told me at the time she would had given me a couple of months and here I am almost 2 years! ❤ good luck
I agree no one knows how long we all have no matter what diagnosis we get! Watch Joel osteen and his mom’s story on her terminal liver cancer diagnosis at 40 something and now she’s 90!
I agree with this. A doctor should never tell you how long you have to live because then that solidifies the finite for you. You have much more control over your fate than you realize. Just live one day at a time. That's what should be concentrated on.
That’s true because even doctors with all the schooling can’t predict time and life spans only god knows how long we have and I would rather them not guess and give false hope
Be strong! ❤❤we know its very hard for you and your family
Get a 2. Or 3. Opinion
As a person with a chronic illness I find that the best way to get answers out of doctors is asking "if I were your family member sitting right in front of you what would your personal opinion be?"
I totally agree!😊
Yes! If it is an older male doctor I ask how would they advise their daughter? If it is a female doctor, I ask how would they advise their sister?
So my 23 year old niece was misdiagnosed at Sunnybrook Hospital in Toronto: she had angiosarcoma and they said a “ benign adenoma”. Rare cancers are very hard to diagnose. Tragically for us angiosarcoma is pretty much the most aggressive cancer on earth. She was also misdiagnosed in Nice France where she went for her final year of university. She had the most wonderful time and fell in love with an amazing guy. When her breathing became laboured we decided to get her home to 🇨🇦. A lovely thoracic oncologist in France with 40 years experience told us he saw “ no evidence of cancer” in her lung biopsy so we were just beyond relieved of course. Then Sunnybrook did another pathology exam in liver and they figured out it was angiosarcoma. I think a big positive to take away with your experience today ( although holy 💩 Iget how stressful and frustrating) is that he DID keep saying that low grade one. Because we have found out through joining angiosarcoma groups that many people are misdiagnosed. There was no biopsy our first time ( MRI’s and tests only) and the dr I’m France obviously missed getting a good sample. Setting that aside we have discovered that whatever weird, rare, mix of certain cells they can grade the “ aggression factor” ( if that makes sense). I think with lower grade cells showing up and their belief in the pleomorphic it is showing slow growth. That’s the best case scenario with cancer! And we were told angiosarcoma pts maybe can live a year. Some only 3 months at dx . We literally have met so many pts and now friends if people living 25 years and one 40 years. Try not ( although SO hard!!) to put that expiry date stuff on yourself. There are cutting edge treatments ( for eg LMD ) that have just become available in the last few months. That mutation identification is a plus too. I would also look up “ Count Me In “ initiative which was started by Dr. Corrie Painter who was dx with angiosarcoma and told to get her affairs in order. She was 32 at time. 12 years later she is working high up on cancer research. It’s a $10 kit that is free and available to Canada and US pts . It creates a “ data bank “ because rare tumours tend to get “ siloed” on a dusty shelf. There ARE more pts out there with your same tumour and health professionals do NOT try to locate them and their txs. Thanks for taking us on your visit and I think their lack of urgency is a positive in a way? ❤❤❤
This is really great information and so helpful!
God bless you for providing this valuable, specific, and very encouraging information for Eirann and other patients!❤️❤️❤️
I am blown away at your strength. I mean, to go this long, without definitive answers has to be agony. And how can a doc say, "try not to think about it". This is life. But OMG, you and Devin are precious, God is our ultimate healer, and maybe it's HIS plan for you to be the FIRST person to be cured. God rules. Will pray for you every day.
Wow, to go for this long without treatment! ... Or have you been started on chemo, any Radiation??
@@akitajapan1651she’s been untreated, they don’t know for sure what she has so no treatment has started
Surely a much better plan then would for not be getting cancer and go through this.
So he's planned for her to get cancer and then be the first person that gets cured is that it? He sounds like a sadist the way you describe him, just toying with us.
Have you seen the new CAR-T treatment that has been developed by Massachusetts General? It seems to hold huge hope. Please do research (I guess, very likely you are already aware). ❤
As the sister of a sibling who literally fell through the cracks of the Canadian medical system (my brother was also diagnosed with a rare and very aggressive cancer) my best advice is to get another opinion outside of Canada as soon as possible.
I'm sorry you and your family had to go through that!:( I agree as well! I know a fair amount of people who have gone to get surgeries in the US. They weren't as serious procedures, but the wait times were insane for them if they were to, try, to get them in Canada.
To be fair she has gotten very timely care in Canada which is not the case for many people. Medicine is not an exact science and when you have rare pathologies there aren’t always answers or treatments.
I would try to get into Univ of Michigan in Ann Arbor which would be under an hour drive for them!
Yes, I so agree!
What about the Cleveland Clinic? That’s not too far either and they have an excellent reputation.
Doctors just don't have all the answers. They can be wrong, when they swear they're correct. The fact that you really weren't given a specific diagnosis, by everyone else, I wouldn't take to heart a negative prognosis by this doctor. You have every chance of a good future. You are the best advocate for yourself. I was in the medical industry for years. People who are able to advocate for themselves, or have someone who will do that for them, always do better. Never stop asking the questions you want answered.
E'ireann Always remember you have a right to your notes and if you need help ask for a Patient Liaison which all Hospital's Prayers Are Lifted for you !!
I just commented this as well and how to get your records in Canada. It isn't difficult.
I would get another opinion to see if it is benign or cancerous and knowing what type of cancer is important, obviously putting your body through chemo and other cancer procedures are no joke and it important to know what you are treating...please start a gofundme to at the very least get the right answers even if you have to go to the United States. You have to be your own advocate, please I know it’s exhausting but please please please fight for answers! You will be so glad you did. Sending love & hugs and so glad you have a loving partner to help guide you through this.
No he’s consulted w other specialists
Edit
Good morning. As a cancer survivor my heart goes out to you. Miracles still happen. I have been following your path. All the best from South Africa ❤️
Thank you so so much ❤️ You're an inspiration 😊
@@diaryofeireann Neil Peart the famous drummer, was diagnosed with glioblastoma, they told him he had weeks to live, and he survived 3 and a half years!!!!!
Your emotions are normal. We understand and love you and are praying for you, sister! ❤🙏 ❤🙏 ❤
I appreciate that😊 thank you 🙏❤️
I am so sorry to hear about your frustrating experience. Good grief! Just a quick tip: It may be helpful to request a copy of all your test results and doctors' letters so you can review/bring with you wherever you go. Also, I'm not sure how much it would cost to send your patient file to somewhere like the Mayo Clinic for their specialists to review. Sadly, our Canadian healthcare system is so broken! I know lots of us would be more than happy to donate for Mayo Clinic specialist(s) to review your file/provide a course of treatment. Just something to think about...Sending big hugs and strength to you!❤😊
Are you able to come to the states at all? I work at the Cleveland Clinic in Ohio in neurosurgery and we have the BEST department. We deal with really difficult, rare cases and get visitors from all over the world. #2 hospital in the whole world!
Yea it's great of you have millions of dollars to piss away
@@erikhendrickson59 Rare cancers can be treated at teaching hospitals for no cost. All hospitals have charity programs if you can’t afford to pay. I’ve worked in healthcare my entire career and it’s not a cut throat “gimme millions or hit the bricks” situation.
Look into the Mayo Clinic here in Minnesota, maybe a chance to be seen if doctors can’t figure it out there. Worth a shot , Godbless ❤
Rochester Minnesota
There's also a London branch. @@jennit9479
I can’t believe the dr said he felt like he was being interrogated 😱 They are supposed to be there to answer any questions you have. Keep advocating for yourself and ask as many questions as you want too. Liked this vlog style vlog. I really hope you get more answers soon. 🩷
He probably meant that in a joking way because no doctor wants to tell a patient how long they think they have to live .
I have to say as nice a place as Canada seems to be, the Canadian medical system does not inspire confidence, at least going by some of the videos I've seen on UA-cam...
Hi Éireann, I've seen a couple of negative comments on here tonight which I hope won't upset you. Remember that there will always be people who project their own worries and insecurities onto other people in a bid to feel better about themselves. They do not possess the qualities of personality and strength of character which they clearly need to face up to their own difficulties. And so they hit out at others. Don't let them get to you. You have won the hearts and minds of so many people on UA-cam and elsewhere. We love you so much and we'll be here for you every step of the way. Take care, Rob (and daughter Soph!) xx
Im sorry, that doctor was so rude! Especially telling you to not think about it 🙄. There are way better doctors out there, that actually care 🩷 keeping looking! You'll find a good match to help you fight this! Also, love this BTS video ☺️
Im impressed at how well Devin knows the terminology etc, he cares for you so much. I am so sorry you have to deal with all of this at such a young age, you will be ok❤
You have every right to ask questions. Don't stop questioning as you have the right to get the care you deserve.
Man, I can't imagine getting different answers and non-answers from every different doctor. Hang in there!
I hope this little piece makes you smile. I have a 5 month old daughter (my first born) and whenever I have your videos playing on the TV, she always looks at you and smiles and giggles ♥️ I have blonde hair and light eyes like you so sometimes I think she thinks it’s me on the TV lol either way, she loves seeing you! Hope this brightens your day a little bit! Stay strong ♥️
You can get your hands on all these reports. I am in Canada, and if you have a procedure or test done, you can request the records from that procedure or test. You usually have to fill out a form at the place you had it done, so it's usually easier just to get the form filled out at the site when you are there. it is a bit of an inconvenience, but it's a pretty simple form. Some results you can access online but I don't know if you have that option if you are here on a visa. Some doctors will also just give you a copy of what they have, but not all. We've gotten CD's of images as well as reports of these images. It is helpful because what I have learned is sometimes doctors don't fully inform patients, maybe because they think they won't understand so they dumb it down for you, and sometimes things get lost in that translation.
You got this, and thank you for these updates! We are all here, go out there and CRUSH IT. Miracles DO happen, did for me with another form of cancer at a young age too. Stay strong, we love you and are praying for you!
You're an inspiration!!! Thank you so much for sharing this with me and I can't wait to join you in that group of miracles lol 😊
I think your doing the right thing by asking questions one thing I will say your better off staying where you are
I understand you want to go to your home the health service in Ireland wont help anymore than we're you are
All the best for the next appointment ❤❤❤
I had to see 5 doctors before I found the one that actually knew what was really happening. Please don’t stop asking questions and follow your gut.
The degree of frustration that you must be feeling ~ it just blows my mind. You must be feeling numb at this point, because that’s the only way you’d be able to keep trudging along with that amazing smile on your face. Hang in there you sweet soul. You don’t deserve this disorganized medical care, but they’ve got to get it together at some point. Sending powerful good vibes your way ~ 🤗
I would most definitely be "interrogating" every medical professional I'd come in contact with. Even when medical people are nice, it's your life and I personally think I'd be thinking about it a lot and wouldn't want someone telling me not to think about it. Thanks for bringing us along. All the best from down South 🙏.
Hi Éireann, I'm so sorry you're going through this. Unfortunately, I know that Canadian healthcare is in a state of total crisis right now (my GP, nurse and doctor friends in Ontario are all really struggling). Doctors, nurses, and other healthcare workers likely don't have the time or bandwidth to give you the standard of care you need. Hearing your updates makes me so frustrated for you and for so many others who are going through health issues like this. I wish you the absolute best going forward and I hope you are able to get everything sorted to get back home to your family and friends, and hopefully to get the standard of care you absolutely deserve. Sending you love ❤
Thank you so so much ❤️ I was really hoping I was just a rare case because it's been such a struggle. That makes me so sad to know that plenty of other people are having this process too. Hoping and praying things get a little easier for everyone soon 🙏 Thank you again
Not different from US. We have long waits for specialists and hard to get a primary dr that's required for insurance. I live in wash DC area and this is in a place of many Drs. At least you don't have 6000 plus in insurance fees
Yes, Doctors and medical professionals have left or leaving the profession or moving. They’ve been getting their asses kicked since c-19. They’re burnt out and under appreciated. My doctor of 16 years just moved because the clinic she worked at cut their pay and upped their hours because the hospital mismanaged funds through the pandemic. Bringing in traveling medical professionals, paying them double than their regular workers. Then when they started losing money, everything was dumped back on the local workers. I’d leave too.
It's all world wide
No health system is good anymore
Uk and Ireland would be the same
@@kittyfarkasI agree. I live in the US & my stepfather waited so long to see a cancer specialist at MD Anderson (insurance issues) that by the time he was finally accepted, his cancer had spread to several organs & it was simply too late.
While the US has some incredible cancer doctors, the healthcare system is a literal nightmare.
You are doing an absolutely wonderful job of coping with this, particularly the uncertainty, my heart goes out to you.
I was way older than you at onset, and I had only a few weeks to wait between the anomalous result of a routine blood test, more blood tests, MRI, PET and a biopsy to have a diagnosis and treatment plan from a Consultant here in England who was notoriously blunt, accurate and damned good. By the end of my first appointment with him I had a stage 4 diagnosis, a % probability of survival, a treatment plan, and a recommendation to go home and share a nice bottle of wine with my wife. Even with all that, I could not have imagined making videos of my journey and sharing my feelings. With no prior knowledge of what was happening to me, my family each got got one phone call from me, explaining the diagnosis and treatment plan and emphasising that I would not give a running commentary. I sit here lost in admiration for all that you are doing. My diagnosis / treatment was 12 years ago, by the way.
I am so sorry you’ve had to deal with such poor treatment during this all. I’m actually in shock about it. My friend had a brain tumour she’s in Ottawa. She had her first Seizure, she went the emergency room, had MRI that same day, stayed in the hospital for 2 weeks then had her surgery (while awake yikes). She ended up getting an infection but that was dealt with immediately. Tumour was cancerous so she had radiation and chemo pills. All of this was dealt with in the first month after her first seizure (luckily her tumours diagnoses didn’t take months like yours). Even if she gets headaches now years later she’s instructed to go right to the emergency and tell them she’s had brain cancer so she’s seen immediately. Your attitude and positivity through all of this is incredible. ❤
You are such a strong young lady and my heart goes out to you. At 32 I had breast cancer and now I am 76 years old . My heartbreaks for you. I am sorry he was rude in saying you were integrating him. You have a right to ask him any question and as many as you want. I am sure if it were him he would be asking lots of questions. His remark about not thinking about it was so cruel. You can’t help but think about it because it is your life. God bless you. You are a beautiful young lady. I know Dr.’s are not God and don’t know all the answers. God has an appointed time for all of us. I pray you know shim as your personal Savior. God is the only person who holds all the answers. It is so hard to go through a scary situation. My prayers are with you and the Dr.’s for answers.
Praying that she gets the miracle and that she is the special case that survives this I have no doubt that god will be with you every step of the way ❤❤
Still watching this episode, but so thankful for your video keeping us on your journey. Sending love from Scotland 🏴
thank you very much 😊
Never give up i have had four years of a cancer fight let me wish you well enjoy life as best as you can .
How frustrating, as I’ve said previously I would be looking at others across the globe. It always takes a while to work out what you have and treatment but in this situation you want the best so you have the best chance and someone who says you ask a lot of questions, is not it. Sending ❤
ALWAYS advocate for yourself. never stop asking questions that's your right. I'd get a second opinion there seems to be so many inconsistencies with different doctors. thinking of you x
Please Eireann put a fund-raiser up babe.
Thank you so much for being so kind 💛 I’m so sorry I’m only finding this now
I'm so sorry that things are not going better, Éireann. Hopefully, things will turn out well, and this will eventually be a distant memory. No one knows what will happen, or when, for any of us. Never forget that. Hope you feel better now that the appointment is out of the way. Tomorrow is a gift to us all. Enjoy it! 💕💕💕
What a frustrating situation you are in! I'm so sorry that in such a serious health situation that you can't get better clarity and assistance from all those doctors! I would be so frustrated and upset. You are a gem of a person and as always I'm sending all the good vibes I can your way.
This is so so kind to say so thank you 😊 I understand that they don't have all the answers but it's just very stressful in the moment. Hopefully they get the answers soon! Thank you again ❤️
It seems like Dr’s are vey hesitant to provide you/any of us with any sort of further prognosis or information. I think often times they are afraid of getting sued for an “opinion” that might turn out to be false. It’s very frustrating especially when you are going to them to get their opinion! So essentially you went to the appointment for another blood draw. You think it’s a regular appointment but they draw blood, again, but can’t do anything further for you. How frustrating this is for you. If they were in your shoes they would want the same thing! You are doing a great job coping with this. I’d be a basket case. Keep on fighting, you are a true inspiration!😊
I just want you to know when you asked the dog if they knew how cute they were, their face was fully saying ‘Yes, yes I do.’
Wishing you the best.
Éireann, you are handling this whole situation so strongly. As someone who works as a doctor (not in oncology though), I'm really sad that you feel mistreated and about the injustice done to you so far, but I also have to sympathize with the doctor. Unfortunately, there are cases where we can't properly assess the prognosis... it would be really unprofessional to do so when we just can't know, even if we would like to have the answers. Still, this doctor doesn't seem to be well informed about your case (mixing up the diagnosis..), it would be very good to get another opinion, as painful as the whole thing is. It is your right to ask any questions that arise. Best wishes to you!!
I hate that you’re going through this. Your videos are helping a lot of people. Sending lots of love your way.
Good to hear from you. You are a strong woman but even they have bad days. He didn't give you an answer because nobody knows. Love to you, Devin, and the Dog Person ❤
Thank you so much ❤️ and very true 😊
You have every right to find answers for yourself! A Dr. Friend explained to me many years ago, medicine is a science. They only know what works for the majority. Keep on advocating for yourself and we will keep on supporting you! Hugs to You.
She is BEAUTIFUL!!!
Just praying you get answers. In the meantime cuddle that gorgeous doggie!!
You've been sooooo brave & patient with the abysmal medical care you're experiencing.
The doctor sounds arrogant and completely detatched emotionally.
I believe in miracles. 🙏
I'm keeping you in my prayers. You are handling this with such strength and grace. These doctors are so confusing. Praying you find the best care.🦋
I don’t love the way this oncologist sounds. keep searching for your answer, wishing you strength and sending you love.
What you're going through sounds exactly like 'Fawlty Towers', dear sweet Eireann.
You, and everone else in similar situations deserves so very much better!
The healthcare system where you are leaves much to be desired.
Stay strong.
Warm hugs
❣️
Stuff like this makes me grateful to live in British Columbia, we massively boosted salaries for healthcare professionals meaning there are few shortages and get some of the best in the world. The rest of Canada(especially the maritimes) is really struggling though.
I’m so sorry that they don’t give you better answers, Eireann! Keeping you in my thoughts and prayers. All my love and prayers in Jesus’s Name ❤️🙏🤗
I understand too well what you are going through right now. I've had a brain tumor for 2 months and today we still don't know exactly what it is. the brain biopsy gave nothing, neither did the lumbar puncture... I'm sending you all the best vibes I can from France and wish you the best.
Hey there how are you doing
as good as possible. the wait is long and the uncertainty is heavy.
I really wish you could come to the USA. The doctors that you have gone to seem so indifferent to your cancer. Not calling when they said they would. It seems after all this time they would get a plan and stick to it. Leaving you to worry about it, and not helping you with phone calls. You need an advocate to help you. Stanford University is a very good hospital and it’s your life, be a-little pushy and make them accountable. I don’t want to upset you, but it’s your life and you need all the help….please stay safe and we are all with you. You are a warrior ❤️❤️💐💐
Thanks for taking us along for the ride. Sorry you can't get more or better information but my experience with doctors is similar...they never want to commit to anything. You would think that after all their years of schooling they would be better equipped to inform their patients. I've been told that a persons ability to cope with and recover from any illness is based a lot on the persons attitude. I think you have got that covered.
Very cute dog.
thank you so much 😊 I'm so sorry that you've had that experience with doctors. It's a very stressful time so I hope you're okay and have gotten all the answers you were looking for. Thanks again!
Doctors don’t want to give a prognosis so early in a disease course. It is extremely variable so the range would probably 2-15 years if no other treatments are found which isn’t that helpful. Medicine is not an exact science.
You are amazing! Eireann Jesus loves you and He and your entire family are going to help you through all of us are here for you too ❤
I so so understand !!!!! The psychological impact is as horrible as the cancer itself at times!!!! Prayers for good report
You should get copies of your records and all imaging you’ve had done. Especially if you’re going to move eventually 💕
Hang in there my dear! I am dealing with Medullary Thyroid Cancer (not one of the "good" thyroid cancers to get) so I know how you feel, and also what the emotional roller coaster feels like. For what it's worth, that little voice deep inside me is claiming you are going to be the exception. Stay strong!!! Also, again, for what it's worth, my wife was diagnosed with Hodgkin's Lymphoma in early 2000. It's nearly a quarter of a century later and she is fine And yes, I just knocked on wood. ❤
You are both so young and so beautiful and so strong. You will get through it together.
My heart really goes out to you as you seem to be in a never ending struggle for clarity regarding your diagnosis/prognosis. As a nurse I wish the medical profession was doing better for you. Thank you for sharing a peak at your adorable companion animals, especially your, "wee bun" lol! My family has kept litter box trained house rabbits for almost 30 years.
I’ve been there where they’re not sure and don’t want to commit and you’re just left in limbo. 🤯 Once you know, however rubbish the diagnosis is, you can at least get on with dealing with it. So my heart goes out to you. Never stop “interrogating” them. This is your life!! 💖
I’m really glad you have such a great partner and family. Of course your wee furry baby too ❤️ Take care, lovely ☘️ 💚 xo
Can you get a second opinion at an American specialty hospital? I'm not saying the usa is the all knowing country, but we do have world class cancer centers. My heart goes out to you!
Your videos are awesome! Your story is making a big difference in many people’s lives! Hold on to hope❤, appreciate every moment 🙏💖😃
You two are so calm positive and civilied. I'm sorry that doctor could not sufficiently answer your earnest questions. God speed in healing.
Completely feel the frustration , no definite answers but still smiling… here in UK you see adverts saying if you feel lumps or certain symptoms go to your GP to get it checked., What a joke , wait 6 weeks to get a GP appointment then wait again to see a specialist…all the very best to you…
I would advise you to seek a second opinion at Sloan Kettering in New York City. I believe a second opinion consult is around $300. You can at least see if they have anything different to say, and take the information to your neurologist/oncologist.
Canadian medical system is amazing….. i have had cancer twice, two different cancers and had amazing care theough both instances. Cancer free today at 44 years old.
I think in this situation, this cancer is much harder to treat, specialists can’t be certain of anything, they can not give professional opiniona or answers, because they DO NOT KNOW. They do their best.
I know in Canada out medical system is world class.
Your ability to stay positive in light of everything you’ve been through is so admirable. My brother had a brain tumor and the lesson we all learned was don’t rush into anything. Evaluate all options, get multiple opinions and then carefully make your informed decision.
Éireann I really pray for you. You seem like such a humble person. God bless you ❤
God bless you, Éireann. You are doing brilliantly. Praying for you daily. 🤗
Thank you for this "behind the scenes" of your journey. As always, you're in my prayers.
I know this was a weird one to vlog lol but I'm glad it was okay. Thank you very much ❤️
Please get second opinions third opinions from doctors who are not in the same clinic. You might consider calling Fred Hutchinson cancer center in Seattle You need to find Somebody who's specialized in your type of Cancer if that's what you have. Remember doctors practice medicine they really don't have all the answers, My oncology appointment is next month for blood work 2 time cancer survivor, You have a beautiful attitude and a wonderful husband to support you And you're a little dog. Stay well my friend
Hi Erieann, I hope you are doing well and I’m looking forward to your next update. Stay strong beautiful girl.
No matter what happens, EVERYTHING IS GOING TO BE OK-----NO MATTER WHAT HAPPENS!!!
I will keep praying 🙏 for this beautiful young lady. God is good no matter what.
2nd opinion - Royal Marsden, London, UK or Mayo Clinic USA.
Of course, definitely pursue regular medical treatment. But in addition to that, may I encourage you to visualize or meditate on your body healing the tumor? Imagine your immune system fighting this tumor successfully. The mind is very powerful. It may not always work, but I believe it makes a difference! Also, I wonder if you would like to try making fresh vegetable juices at home (you can add a bit of fruit for taste)? These will give your body lots of antioxidants to ensure that you are as strong and healthy as possible. Best of luck xx
So sorry the confusion and lack of consensus is continuing. I just love that you can still smile through the fear and difficult circumstances. That and so much more is what makes you such a beautiful person. You deserve better than what you are getting from the doctors. Many others are facing dissatisfaction with the medical system and professionalism seems to be lacking. I can say that, because I just went through 2 years watching my husband struggle due to a lung illness that could not be diagnosed specifically, could not be treated nor cured. Everyone I know is facing the same problems with the medical systems here in the US. I think every single question you have is valid and deserves to be fully answered no matter how long it takes or how uncomfortable the doctor might feel. I am thinking about you, Eireann and Devin. Sending strength and love. ❤️❤️
You are so strong ❤ All of my prayers to you. Thank you for sharing this for those that love you and for comfort to those as well who are going through something similar ❤
I’m praying you will be the first patient to be cured and you will be the one about whom others say “she did it and you can do it too”. Wish you all the best
It’s a pity you aren’t in Ireland 🇮🇪 north or south the level of professionalism is second to none ❤
Sending Éireann and family much Love, Strength and the Courage to get NEW DOCTORS 💞💜💞
Watched this after saying another prayer. I applaud your calmness in a daunting dx. Hanging in there, I and others the world over are rooting for a better DX and always HOPE❤.
Find a brain surgeon or oncologists to see. One that has done many cancer surgeries. In Tampa, Florida is the Moffitt cancer center. Highly regarded. Also Cleveland clinic inOhio. And Mayo Clinic in multiple locations. All excellent.
The oncologist should never have said he felt like he was being interrogated, that is very unprofessional of him considering the situation you are in. I'm only just making my way through your videos, but I'm sending you all the best of heartfelt wishes.
Funny how the appointments and scans/etc. Just become a new part of life. Thank you for courageously sharing your journey. It's inspiring.
You have such a beautiful accent to match your beautiful personality. Never give up. Your journey will be filled with ups and downs. You're in my thoughts and prayers. Keep your head held high and you will conquer this.
You’ll find you get different takes from different specialists as you move through this, I had the same thing happen with my cancer, I would suggest being a little firmer with them, insist on being told what’s happening and don’t be afraid to ask for second opinions, provided you do this politely they will be fine with it, and chase them up on things, otherwise you’ll be left waiting weeks for information unnecessarily, firm and polite will save you time and angst! 🙂👍
You're so sweet. This positive attitude will help you so much.
You are such a sweet and patient person 💛 your positivity is so contagious as well! I'm sitting in the urgent care a little freaked out about this severe morning sickness and I'm worried about my baby, and you're keeping me company so thank you so much ❤
I love the way you and hubby look at each other so much love. Prayers continually going up for you and your family I know this journey is not easy for any of you. ❤
This is just totally heartbreaking 😢. The world is so unfair. At least you seem to get good care and hopefully 🤞🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 it’ll do miracles 💗.
Hi Eireann. You are in my thoughts and prayers. I'll be cheering you on the whole way. You've got this. Stay positive and pray. You'll beat it.
I am so sorry the doctors have not been ideal . This happened to me with doctors over and over again . Then I learned I had to become a doctor to understand my diseases . I read and read and read and I learned so much. All doctors are good for is ordering test and giving meds in my opinion
Hang in there hun! And never stop asking questions, it’s your heath and you’re entitled to know! ❤
Hi Eireann. I totally get it. I don't have cancer but my spine is falling apart. :( You really are one of the most positive peeps I have ever known. You are ALLOWED to be human so we all understand. I really, really, REALLY HATE cancer. God love ya....
As someone who had chemo in 2021 for a rare ovarian tumour, I totally understand how you feel. Unless people have been through it, people won't know how hard it is. From the multiple bloods, scans, multiple appointments, surgery, more appointments, more scans and bloods, lung test, oncology appointment, chemo, infusions, more appointments, assessmwnts, more lung tests the list goes on.
Thank you for posting about your journey. As your channel grows I hope that besides knowing how many people care the channel with UA-cam will financially helps you too. Perhaps an oncologist who is a specialist in your type of tumor would reach out to you in an "off the record" type of way without charge to just guide you through the process as a friend. Remember that scans/reports/labs are yours. I have had some serious medical stuff and I always kept a physical binder of everything. So much gets screwed up in the healthcare systems. Sending positive energy from New Hampshire USA
I'm so sorry you are going through this run around. You must be so incredibly frustrated.
Think about it all you want or don't want. And continue to advocate for yourself, or should I say keep on "interrogating".
Your strength is admirable!